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Author Topic: Study participants wanted - Measures of retention in HIV care  (Read 2111 times)

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Offline Jim Allen

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Study participants wanted - Measures of retention in HIV care
« on: November 09, 2023, 05:22:02 am »
Short summary: The aim of the study is to develop a framework for an unambiguous and standard definition of retention in HIV care. The study is looking for people living with HIV to participate to seek their views.

If you are interested in participating, contact: rehmann@mcmaster.ca


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Reminder to forum members your participation is strictly voluntary, and the study isn't affiliated with the forums / poz.com or its affiliates.

Also, a general reminder that any product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forum members unless permission has been secured from POZ. More information see Survey, Study & Research Requests 
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Offline BubbaPat

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Re: Study participants wanted - Measures of retention in HIV care
« Reply #1 on: November 14, 2023, 03:35:23 pm »
Sounds interesting.  I just shot them an email.  I'll keep y'all posted.

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Offline leatherman

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Re: Study participants wanted - Measures of retention in HIV care
« Reply #2 on: November 14, 2023, 07:24:46 pm »
I replied also.  ;D after working with ryan white quality management, I curious to talk about this measurement. A few years back I did a poster for consumers explaining the medical visit gap because it's so darned confusing - and that's just part of how RW determines retention in care
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
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Offline leatherman

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Re: Study participants wanted - Measures of retention in HIV care
« Reply #3 on: November 22, 2023, 11:39:39 am »
I just got out of the tele-interview and it went very well.

I learned some things (considering the differences in resource rich vs. limited resource areas; whether ER visits count towards or against retention in care) and the interviewer learned some things (AZT was 24 pills a day, 4 pills every 4 hours; my local Ryan White's consumer campaign to explain the Medical Visit Frequency and Gap measures that help define retention in care).

If you have about 45 mins, consider helping in this research project. As I mentioned to the interviewer, our consumer campaign was designed to help PLHIV understand that providers/doctors track various measurements to make sure we are all getting quality healthcare so that HIV transmission is reduced and PLHIV are able to lead healthy lives. When we (PLHIV) understand what data points are being monitored, we can make sure we're getting the right healthcare. By participating in this interview, not only can you learn how being "retained in care" is measured through a variety of ways now, but you can help give your opinions on what you think about what YOU being "retained in care" does or should mean.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Jim Allen

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Re: Study participants wanted - Measures of retention in HIV care
« Reply #4 on: November 22, 2023, 12:17:05 pm »
Interesting, thanks for the update.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

 


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