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So, I went for my regular labs on Tuesday, June 21st which included my yearly RPR for syphilis. I also had to go on Thursday for Quantiferion gold TB test (as it is only drawn by the lab on certain days).... After going out to South Beach last night for a few drinks, I came home to find an envelope taped to my door that was marked "Confidential." I open the envelope and find a notice that I have to contact the Department of Health..... so, I am thinking, shit, either the syphilis that I have been treated for twice before (once about a year prior to infection) and then once right when I was diagnosed (a recurrence - which doc states can happen with seroconversion for persons who have had a recent case) or I'm thinking it could be TB.
I send my doctor an email - she is great and responded back to me today..... She says my syphilis RPR came back positive. It always has shown some level however, it has remained acceptable. But, now it appears to have come back. So, she will be moving my follow up appointment to review my labs up from July 11 to this Monday (June 27).... she said we will discuss and plan next steps ---- which, because this is my third occurrence, may involve a lumbar puncture to see if it is neurosyphilis. If it is, there would be the 10 day hospitalization to treat. If it is a lower level recurrence or a new infection - and not neurosyphilis (or if she doesn't order a LP) then I will receive my first of three rounds of double cheek cement butt shots on Monday.
Oh the joys of trying to rid oneself of syphilis when HIV positive....
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Oh darling. :(
Syphilis is such a beast.
Did she tell you the actual RPR titre? If it's 1/1 or even 1/2 you might get away with a normal course of treatment. Anything above 1/4 is a problem.
But expect to have that LP and if it's positive then an IV infusion is a certainty.
Love,
MtD
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http://www.youtube.com/watch?v=ZanZPFn6dE0
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Oh darling. :(
Syphilis is such a beast.
Did she tell you the actual RPR titre? If it's 1/1 or even 1/2 you might get away with a normal course of treatment. Anything above 1/4 is a problem.
But expect to have that LP and if it's positive then an IV infusion is a certainty.
Love,
MtD
I will find out the titer on Monday - unless she share with me via email or if my labs get posted online - but that probably wont occur til Monday.
The only way it could be a new infection is from this one itty bitty incident when I decided to join a friend after a night out and we went to the luxurious bookstore down the road --- I was only supposed to be getting a little bit of oral satisfaction through the elegantly designed glory hole; however, the anonymous troll on the other side of the wall pulled a bait and switch and moved me from enjoying oral satisfaction to converting this hardcore bottom - albeit only for this encounter - to a full blown top (I thought I could have more trust in the anonymous troll )--- but I digress...
It is actually seeming like it is a recurrence and an unacceptable elevation in the titer, thus the reason that the bells were rung over at the health department --- I am even more of a biohazard than I already was at this point - so, I will probably have to have the LP.... I don't know how well I will handle laying on my side with a large needle shoved inside of me ----now, laying on my back with a large ------- oh, never mind, that is what got me in this mess in the first place ::)
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http://www.youtube.com/watch?v=ZanZPFn6dE0
LOL ---
Ms. P:
It's not me that's the whore --- ::)
it's these sloppy ass South Florida trolls that discreetly replace their mouth with their boongie ---
All I wanted was a little head - was that so much to ask??? ;D
See previous reply in response to Matty's post for glory gory details.
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I'm surprised you didn't listen to this guy before you paid a visit to the luxurious Bookstore down the road
http://youtu.be/zcZ-jg670bE.
I hate that you have to go through a LP.
Aroha
Jan :-*
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I'm surprised you didn't listen to this guy before you paid a visit to the luxurious Bookstore down the road
http://youtu.be/zcZ-jg670bE.
I hate that you have to go through a LP.
Aroha
Jan :-*
Jan:
LOL -- keyboard now baptized in V8 --- thanks
I'm learning to hate you tube ---
On the bright side - at least he didn't give me HIV --
aww shit - that's right --- never mind..... ;)
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Sorry to hear this Phil...
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Oh Dear ,I,m sorry to hear this Phil,hope you get thro this with as little discomfort/pain as pos take care
t
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All I can say is...I can relate...my experience wasn't fun...I hope yours into too advanced
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Sorry to hear this Phil...
Thanks urban ----
yeah, its sucks, but I'll get through it ---
just one of those things.
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All I can say is...I can relate...my experience wasn't fun...I hope yours into too advanced
I know Ac - I immediately thought about you when doc mentioned the LP possibility and possible neurosyphilis. Hopefully, I will start getting more clarification on everthing on Monday.
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Oh Dear ,I,m sorry to hear this Phil,hope you get thro this with as little discomfort/pain as pos take care
t
Thanks T -
Just gotta do what we gotta do --- and march on.
I just want to get it taken care of - so, I am willing to go whatever route the doc determines is best.
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Sorry you are going through this Phil .
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Sorry you are going through this Phil .
Thanks Jeff -
in the whole scheme of things, it isn't that bad - lots of other people deal with worse on a daily basis -
The worse part is that I'm almost used to getting the cement but shots that the treatment requires - if doc goes that route again.
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This sucks, Phil. Hope it gets resolved without much ado.
Glad I didn't go into that "fancy" booth with you ::)
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Booth-queening is so déclassé -- the kool kids throw on some soccer socks and order in!
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Booth-queening is so déclassé -- the kool kids throw on some soccer socks and order in!
We're old school / vintage. Bookshops, bathhouses, bushes in the park at dusk, and mall restrooms lead to more memorable tricks.
Now, truck-stops? Nevah evah.
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Booth-queening is so déclassé -- the kool kids throw on some soccer socks and order in!
What can I say - I live in North Miami - we aren't as classy as those queens in Fort Lauderdale ;)
And, since I have moved down this way - I don't even own a pair of soccer socks, I did however order in this evening - a Philly Cheesesteak loaded.... there go my triglycerides, in addition to the syphilis, in addition to the sleep apnea, in addtion to the CPOD, oh, and did I mention I have HIV? Geesh....
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We're old school / vintage. Bookshops, bathhouses, bushes in the park at dusk, and mall restrooms lead to more memorable tricks.
Now, truck-stops? Nevah evah.
Oh lord. I remember doing the beats. Good times. :)
MtD
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We're old school / vintage. Bookshops, bathhouses, bushes in the park at dusk, and mall restrooms lead to more memorable tricks.
Now, truck-stops? Nevah evah.
Do we even have truck stops down here Rev?
Plenty of bookstores (one about 5 blocks from me), Haulover after dark, bushes at the gay beach in Lauderdale, in addition to mall restrooms, gotta include the restrooms at the local colleges (although some of the younger students have that sweet beer smelling breath)
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Oh lord. I remember doing the beats. Good times. :)
MtD
Tell me bout it. Being a slut doesn't give ye the same joie de vivre it did in the classic, pre-mancunt era.
Do we even have truck stops down here Rev?
Plenty of bookstores (one about 5 blocks from me), Haulover after dark, bushes at the gay beach in Lauderdale, in addition to mall restrooms, gotta include the restrooms at the local colleges (although some of the younger students have that sweet beer smelling breath)
I think the truckstops in Our state are somewhere near the more rednecky areas (as in any place north of WPB).
Most bookshops in my part of town have gone the way of the LP. Happy Books on US1 used to be a happenin' joint --especially on the weekends. Nowadays it's the same three creepy queens and some bitter fat man behind the counter.
Remember the golden era of Flamingo Park? I saw one too many South Beach beauties riding it cowboy style back in my barhopping days, long before Truvada was used as an alternative to condom usage.
Now, college bathrooms --especially the one at my school-- are still gay rendezvous locations. Lots of peepee comparison going on between athletes and geeks after 7pm.
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Ive changed my ways and now now think pre-gay marriage sex is of the devil and probably makes the baby Jebus cry . Fortunately I was raised Catholic so if I fall into sinful sex I can mutter a few ole hell yes Mary during the act and save myself .
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It's not me that's the whore --- ::)
it's these sloppy ass South Florida trolls that discreetly replace their mouth with their boongie ---
Sorry to hear the news.
Wishing you the best,
From a Central Florida Highly Virtuous and Stunning...
:)
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Sorry about this, Phil. I wish the most painless of treatments for you.
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The only way it could be a new infection is from this one itty bitty incident when I decided to join a friend after a night out and we went to the luxurious bookstore down the road --- I was only supposed to be getting a little bit of oral satisfaction through the elegantly designed glory hole; however, the anonymous troll on the other side of the wall pulled a bait and switch and moved me from enjoying oral satisfaction to converting this hardcore bottom - albeit only for this encounter - to a full blown top (I thought I could have more trust in the anonymous troll )--- but I digress...
Oh stop digressing lying, bitch. We all know you got it from a toilet seat in the basement of your local MegaChurch.
Sorry about the cement shots. Maybe you should just invest in a cement mixer and do your own shots - it would save you money in the long run. ;D
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So, I got an appointment for today with my ID doc - I will be seeing her @ 3:30 and we will see whats up.... I also left a message on the cell phone of the Dept. of Health worker who left the tapped envelope marked confidential on my door in a widely publicly accessible apartment building telling her how inappropriate that was to do - and then not to return two phone calls I have left her on top of that... next step, after seeing the doc is to make sure that the Director of the Department of Health is aware of how the notification was done.
Will post an update later on docs findings/recommendations....
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... Dept. of Health worker who left the tapped envelope marked confidential on my door...
I had that same 'pleasure', but mine was taped to the front door of our house. It could have easily blown off and out into the yard and disappeared in the hands of a nosy passerby. I also complained about this. I'd think it would be more appropriate to try Ole Reliable, the USPS, first and then resort to such methods if that failed.
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Dont mean to be too much off topic, but what is the health department posting on all your doors? Is it just a confirmation that you received your diagnosis from the Dr? Seems like overkill. When I tested positive the health department called me, asked me like 2 questions and that was it. No doorknob hangers.
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Hi All:
@ bug: they do the notiifications in person or via the letter on the door to try to increase follow up and get people treated. I actuallly called the worker's supervisor today and called the Bureau Chief in Tallahassee and talked with both of them and let them know of the flaws in their system. They seemed like they will address it --- we'll see....
In regards to my visit to my doctor - my titer was 1:8 which makes it seem like it is not a new infection but a recurrence of the old infection. Previous titers were 1:4 and 1:2, respectively.
She was going to do the "cement butt shot" treatment starting today - but we talked about it and decided instead that I will go at the end of July and have the RPR done again - if it stays the same (1: 8 ) or goes up then she will order the lumbar puncture - because that will be a good indication that it is neurosyphilis. It didn't make sense to get the treatment started today and have it temporarily lower the titer, only to have it go back up again in a year.... we both agreed this would be the best route to go for now.
On the plus side, my CD4 went up to 802 (my highest numbers ever) and percentage fell to 38%.
On the bad side - my triglycerides went up to 391 from 280 on the last draw ---- so, she wants me to be more adherent to my Lopid medication and see a nutritionist to adjust my diet....
So the saga contines....all-in-all it could be worse and I am grateful to have a super doctor who works with me and is a partner with me in my health care.
Edited to fix the smiley face with sunglasses that decided to invade my titer reading of 1: 8
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On the bad side - my triglycerides went up to 391 from 280 on the last draw ---- so, she wants me to be more adherent to my Lopid medication
C'mon hooker. Why are you skipping that tiny pill? Tsk, tsk...
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C'mon hooker. Why are you skipping that tiny pill? Tsk, tsk...
I really have no excuse Rev -
I have no problem with the once a day Atripla - but when it comes to the twice a day Lopid, I get lazy about it. But, I have to make it a priority to get on track. Tonight I will take it with my Atripla and then take tomorrow at 11 am and so on and so on....
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What the hell? I go away for a few days and you end up with Syphilis. It's clear I cant leave you girls alone any more.
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What the hell? I go away for a few days and you end up with Syphilis. It's clear I cant leave you girls alone any more.
Well at least we know who to blame now, so no more vactions for you young man.
Aroha
Jan :-*
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What the hell? I go away for a few days and you end up with Syphilis. It's clear I cant leave you girls alone any more.
Will, I didn't tell anyone that you were here with me... really I didn't --- oops, well, I mean I hadn't, sorry ::)
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ok, this may sound simplistic , but how do you know you have syphillis? My dorctor tests me ever 4 months i guess i've been lucky, but is there any symptom one should look for? just curious.
mike
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ok, this may sound simplistic , but how do you know you have syphillis? My dorctor tests me ever 4 months i guess i've been lucky, but is there any symptom one should look for? just curious.
mike
Syphilis can be diagnosed in a few ways. The best way is by blood test. In fact you usually need two different blood tests, a specific treponemal serology like TPHA or FTS-Abs and a non-specific test like VDRL or RPR.
The first one determines if you been exposed to the syphilis bacteria, like an HIV antibody test can tell you if you been exposed to HIV. The second determines how serious the infection is. Think of it as being like a viral load test.
It is customary to do both together, though this doesn't always happen. Some doctors just do the non-specific test. The problem with that approach is that things other than syphilis can trigger a false positive and lead to people being treated when they don't need to be.
The window period for syphilis testing is 3 months.
Other ways of diagnosing syphilis include carefully observing symptoms in a patient. The first stage of syphilis always presents as a small, odd looking sore called a chancre. The chancre is quite distinctive and is completely painless. Secretions from the chancre can be taken and examined under a special microscope, called a "dark field microscope", to see if the syphilis bacteria is present. This stage occurs 7-10 days after initial infection.
The chancre is highly infectious. Because the chancre is painless, it can often be missed if it's inside your body (like in the rectum or somewhere similar).
The secondary stage usually occurs a few months to a couple of years after the primary phase. It's characterised by fevers and a rather horrid rash on the palms of the hands and the soles of the feet. Other flat lesions can appear on the body. You this stage is also contagious.
Tertiary syphilis usually occurs many years after the secondary stage (though it can appear much earlier in immunocompromised people) and is the most serious phase. This is when people develop the really horrible things like general paresis of the insane, tabes dorsalis, gummas and caries sicca amongst other beastly things. Symptoms of tertiary syphilis include psychosis and personality changes, dementia, peripheral neuropathy, blindness etc. It can also cause havoc with your heart, lungs, liver and other squishy bits.
The problem with late stage syphilis is that it can be mistaken for many other things. The damage caused at this stage is (usually) permanent but further damage can be arrested with penicillin treatment.
So on balance, routine blood testing following unprotected sexual contact (including oral sex) with casual partners is the way to go.
MtD
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^^ Which is why I like to have a full STD screen at least once a year.
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As a routine any GP/doctor should initiate a discussion when you first see them about how often and what type of sexual activity you are engaged in.
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Phil,
If you do have to have the LP done, PLEASE plan to be off work for two days after to lay down and take it easy..I was up and about the very next day and developed the worst headache I have ever had...It actually brought me to a fetal position and made me cry..Drink plenty of caffeine too..The procedure itself was painless...but the spinal headache..just awful..and that's because I tried to be superman right after it
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I tried to be superman right after it
Did you wear a cap and your knickers on the outside of your tights? Maybe your knickers were too tight. ;)
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Did you wear a cap and your knickers on the outside of your tights? Maybe your knickers were too tight. ;)
That could very well be the problem Ann! I did put the knickers in the dryer the night before..They probably shrunk :)
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Phil,
If you do have to have the LP done, PLEASE plan to be off work for two days after to lay down and take it easy..I was up and about the very next day and developed the worst headache I have ever had...It actually brought me to a fetal position and made me cry..Drink plenty of caffeine too..The procedure itself was painless...but the spinal headache..just awful..and that's because I tried to be superman right after it
Thanks for the tip and support Ac -
I won't know whether or not it is oging to happen until August 8th - if it does, then it should be shortly after that date.
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Hi All:
@ bug: they do the notiifications in person or via the letter on the door to try to increase follow up and get people treated. I actuallly called the worker's supervisor today and called the Bureau Chief in Tallahassee and talked with both of them and let them know of the flaws in their system. They seemed like they will address it --- we'll see....
In regards to my visit to my doctor - my titer was 1:8 which makes it seem like it is not a new infection but a recurrence of the old infection. Previous titers were 1:4 and 1:2, respectively.
She was going to do the "cement butt shot" treatment starting today - but we talked about it and decided instead that I will go at the end of July and have the RPR done again - if it stays the same (1: 8 ) or goes up then she will order the lumbar puncture - because that will be a good indication that it is neurosyphilis. It didn't make sense to get the treatment started today and have it temporarily lower the titer, only to have it go back up again in a year.... we both agreed this would be the best route to go for now.
On the plus side, my CD4 went up to 802 (my highest numbers ever) and percentage fell to 38%.
On the bad side - my triglycerides went up to 391 from 280 on the last draw ---- so, she wants me to be more adherent to my Lopid medication and see a nutritionist to adjust my diet....
So the saga contines....all-in-all it could be worse and I am grateful to have a super doctor who works with me and is a partner with me in my health care.
Edited to fix the smiley face with sunglasses that decided to invade my titer reading of 1: 8
Good news! And you DEFINITELY have the right attitude ;D
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Since we're on this subject. Is a titer of 1:128 extremely high? I've already received the three butt shots. But these measurements are confusing me.
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Since we're on this subject. Is a titer of 1:128 extremely high? I've already received the three butt shots. But these measurements are confusing me.
Was the 1:128 titer after your treatment? If so, how long after the treatment? With positive people it can take longer for the titer to go down --- your doc should be checking it every three months until it gets to acceptable levels --- my doc told me anything greater than 1:4 sets off the alarms. It should fall from 1:128 to 1:64, 1:32: 1:16: 1:8; 1:4.... as long as they are seeing a downward trend in it then everything is usually considered in order...
In my case, mine had fallen to 1:2 from a prevous infection than a recurrence that happened at seroconversion -- but then it went up to 1:4 and the latest was 1:8 --- and the alarms went off. So, when I get labs done the end of this month and get the results on 8/8 if it hasn't went down or goes up then doc will order the LP.
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I had a titer of 1:128 before my treatment. I'm confused. So 1:4 is lower than 1:128?
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I had a titer of 1:128 before my treatment. I'm confused. So 1:4 is lower than 1:128?
This is being expressed as a ratio.
So one part of X to 128 parts of Y is a much higher ratio than one part X to 4 parts Y.
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This is being expressed as a ratio.
So one part of X to 128 parts of Y is a much higher ratio than one part X to 4 parts Y.
Thanks. Last year I tested negative for it upon finding out about my HIV status. The lesion/small rash didn't appear on my "situation" until Jan/Feb. I happened to have my very first sexual encounter after my diagnoses until December, so I'm assuming that was the cause. I tested positive for Syphilis in late Feb. That's when they found out my titer was 1:128.
So my next question is, is it normal for it to be high for first occurances? I received 4 butt injections. The first time I just got once, because according to the "new" guidelines, that's all that was required, but then I called my ID doctor who said I should have gotten three. And since I didn't get the 2nd one until 2-3 weeks later, I had to restart my entire course of treatment over. Sucks right? My PCP said that I received well over the required amount of treatment and at that time all of the lesions went away instantly. But one thing I've noticed about antibiotics is to NEVER drink anything carbonated or with sugar as it can cause some UTI issues. Is this normal? Urgh! My doctor told me I should be fine, and that I am just worrying too much. My last CD4 count was 807 and I'm UD. I go in for my new blood work this weekend.
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hi, I'm sorry you're going through this Phil. It's not just people with HIV. My Neg. husband was treated for a positive RPR test 20 years ago, never had any symptoms. Ten years later, his titer went up again & he was given Cipro but it didn't agree with his guts. so he got a shot. The doc was my internist/ID doctor. Six to 12 months later his titer went back up again & this time he got a series of 3 shots.
That was 10 years ago & it hasn't come back. Best of luck with your treatment!
Hugs, deibster
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The RPR test does not actual test for Syphillis directly. There are also many things that can cause false positives and false negatives.
Your doctor should confirm with a direct antigen assay. One is a VDRL but there are others.
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Dayuuuuuummmmm syphilis!!!
So, the results of my latest RPR were just emailed to me by my ID doc. The titer is still 1:8 (it didn't go up or down from the last reading). I see her next Monday, 8/8. From the looks of things and sound of her email - she will be ordering an LP (lumbar puncture) for sometime next week. She is leaning towards it being late latent / neurosyphilis. Which, if confirmed by the LP, will mean approx. 10 days in the hospital starting around 8/15....
She said she wish she had known that when I was originally treated back around 6 years ago that I actually had experienced hearing loss (which came back after treatment) - because she said the doc at that time should have ordered a LP (even though I wasn't HIV+ back then)..... but the past is the past - so, we move forward.
Should have a better idea of exactly what is going on after I see her next Monday. Ugggghhhhhhhhh!!!!!
-Phil (who wishes they had a better way of diagnosing neurosyph other than puncturing my spine with a needle)
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Rats. Sorry, Phil.
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Rats. Sorry, Phil.
Thanks Tim -
I'm gonna check w/ doc and see if they do have to do the LP if they can admit me overnight - but, I think it will be a "no" as they pretty much do it as an outpatient procedure. My biggest concern is that the hospital/clinic is about 10 miles from home which means the ride back and I don't want to incur that post LP headache that I have heard about by having to be upright when coming back in the car (as everyone has said that you basically need to lie in a horizontal position for some time after having the LP). I don't deal well with headaches.....
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Dayuuuuuummmmm syphilis!!!
Geez Phil, so sorry buddy. But onward through the fog I guess :-\
I'm gonna check w/ doc and see if they do have to do the LP if they can admit me overnight
Hmmm.Well all you can do is ask. Mine was done while in the hospital so I cant really comment on the outpatient type, maybe someone who's had the outpatient will come along and comment. Although I am sure the docs have ways for you to avoid the spinal headache in that situation otherwise they wouldnt do them outpatient.
But the LP itself is a cakewalk, of course I was jacked up on Dilaudid which helped
-Will
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Hi Phil
Sorry to hear you are still worrying about this.
I had my LP done as an out-patient and didn't suffer any post headaches, not everyone does, everyone is different.
If you just rest up for an hour after you should be OK, and there's nothig stopping you from popping a couple of Panadol just in case, it won't hurt.
Thinking of you and glad to hear they are at least doing something now.
Aroha
Jan :-*
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Thanks Jan -
I'm sure that I will be okay - just get myself worked up a bit when it comes to certain medical procedures. It took me forever to get okay with getting labs done -- well, actuallly after the first time (when they took 16 tubes) I pretty much was forced to get used to it.
I plan on seeing if the doc will allow me to take some type of anti-anxiety pill before the procedure --- of course, any good pain killers after the procedure would be great as well (hell, any great pain killers even if I didn't have the procedure would also be great - ;) )
I'm just gonna have to go with the flow on this - as I have been to date.
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Sorry to hear about this.
I have read caffeine pills can prevent the lb headache, not sure if thats true. I had ruptured a disk in my back a few years ago an had to have several epidurals in my lower spine. While not exactly fun they were not painfull. Im not sure hpw that compares to a lumbar puncture.
Again, just sorry to hear about this, I hope it comes off without a hitch.
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Sorry to hear about this.
I have read caffeine pills can prevent the lb headache, not sure if thats true. I had ruptured a disk in my back a few years ago an had to have several epidurals in my lower spine. While not exactly fun they were not painfull. Im not sure hpw that compares to a lumbar puncture.
Again, just sorry to hear about this, I hope it comes off without a hitch.
Thanks bug -
I think I also heard somewhere that caffeine helps prevent the headaches - I may have to try that (I'll also check w/ doc and see if it is something that can help). Those who have had lumbar punctures have said that overall the actual procedure isn't too bad - but those who have gotten the post LP headache said it hurts like hell... hoping that I will be one of those who doesn't get one.
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Yus.
1/8 is a problem. The persistence of that number certainly sounds like tertiary latent syphilis.
You're at the business end of the Great Pox and an LP is a must. Also an IV infusion. The problem with neurosyphilis is you won't know it's happening.
But sometimes we obsess about neurosyphilis and neglect, at our peril, the other forms in particular cardiovascular syphilis.
You have my love and constant thoughts. :-*
MtD
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Hang in there Phil. I certainly hope you don't get the post LP headache, but even if you do, remember that it's small beans compared to the damage untreated tertiary syphilis can do to you. You're in my thoughts - and I'm sending nasty go-away-vibes to your little bacterial bastards. That'll teach 'em! (http://i933.photobucket.com/albums/ad174/dash1293_2010/Emoticons/59.gif)
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Thanks Ann and Matty -
I am anxiously awaiting my Monday visit w/ the doc.
The worse part is that over the past few weeks I have been having increasing muscle pain, fatigue, and have had a noticeable decrease in some cognitive functioning (my job involves a lot of typing - as do responses on the forums) and I have found myself misspelling more words, leaving out complete words, incomplete sentences, etc.
Then, over the past two weeks I have been experiencing tightness/pain in my chest - not extreme pain, more irritating muscule tightness type of pain (then Matty throws in the cardio-syph, which hadn't even occurred to me - in addition to the neuro-syph)
So, now I am beginning to sound like I belong in the I AM section ------ perhaps, I AM SYPHILLIS? ;)
I AM NEURO-SYPH (which kind of sounds like a super hero) or I AM CARDIO-SYPH (which makes me sound real buff)....
Edited because that should be "...I belong in the AM I section, not I AM - although that kind of fit too --- BTW, did I tell you I have been experiencing cognitive issues? ::)
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BTW, did I tell you I have been experiencing cognitive issues? ::)
AKA Goldfish Bowl Syndrome (GBS)
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Thanks Ann and Matty -
I am anxiously awaiting my Monday visit w/ the doc.
The worse part is that over the past few weeks I have been having increasing muscle pain, fatigue, and have had a noticeable decrease in some cognitive functioning (my job involves a lot of typing - as do responses on the forums) and I have found myself misspelling more words, leaving out complete words, incomplete sentences, etc.
Then, over the past two weeks I have been experiencing tightness/pain in my chest - not extreme pain, more irritating muscule tightness type of pain (then Matty throws in the cardio-syph, which hadn't even occurred to me - in addition to the neuro-syph)
So, now I am beginning to sound like I belong in the I AM section ------ perhaps, I AM SYPHILLIS? ;)
I AM NEURO-SYPH (which kind of sounds like a super hero) or I AM CARDIO-SYPH (which makes me sound real buff)....
Edited because that should be "...I belong in the AM I section, not I AM - although that kind of fit too --- BTW, did I tell you I have been experiencing cognitive issues? ::)
If it helps Phil, those things are not really the symptoms seen with neurosyphilis or cardiovascular syphilis. It's way more than likely that what you're describing is anxiety related and has nothing to do (directly) with syphilis.
Just get yourself tested and treated. It's (probably) gonna be unpleasant but it will work out just fine. :)
MtD
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Phil, I got you this cute little cup and saucer just in case you decide to load up on caffeine before your LP.
Bottoms up! ;D
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/63485905_ysRGwhNu_c.jpg)
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AKA Goldfish Bowl Syndrome (GBS)
I googled goldfish bowl syndrome - but can only find goldfish syndrome - however, the description seems to fit GBS --- I am soooooooo confused.... ???
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Phil, I got you this cute little cup and saucer just in case you decide to load up on caffeine before your LP.
Bottoms up! ;D
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/63485905_ysRGwhNu_c.jpg)
Cool -
I can add this to my set of three that say: "SLUT," "TRAMP," and "TRAILER PARK DIVA"
Thanks Ann!
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If it helps Phil, those things are not really the symptoms seen with neurosyphilis or cardiovascular syphilis. It's way more than likely that what you're describing is anxiety related and has nothing to do (directly) with syphilis.
Just get yourself tested and treated. It's (probably) gonna be unpleasant but it will work out just fine. :)
MtD
Thanks Matty -
Why would you think it is anxiety related? I mean I don't seem anxious, do I? I mean, anxious me? Naw, I can't be anxious..... could I? I mean, I don't think I am, doesn't seem to be.... or, well, maybe, I mean, possibly, I mean on the surface perhaps, but then again.... anxiety? wow, I don't know, I mean, I guess, I suppose, I mean, I have been hyperventilating... but, you know, I don't know, I guess, well, If I look at it from a different perspective, I mean, I have been kind of - well, I don't know, possibly a little, but then again - how does anxiety look, how does it feel - what does an anxious person do? I seem to remember, no maybe I don't remember, but, then again, I might remember.... anxious? naw, can't be... ;D
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Thanks Matty -
Why would you think it is anxiety related? I mean I don't seem anxious, do I? I mean, anxious me? Naw, I can't be anxious..... could I? I mean, I don't think I am, doesn't seem to be.... or, well, maybe, I mean, possibly, I mean on the surface perhaps, but then again.... anxiety? wow, I don't know, I mean, I guess, I suppose, I mean, I have been hyperventilating... but, you know, I don't know, I guess, well, If I look at it from a different perspective, I mean, I have been kind of - well, I don't know, possibly a little, but then again - how does anxiety look, how does it feel - what does an anxious person do? I seem to remember, no maybe I don't remember, but, then again, I might remember.... anxious? naw, can't be... ;D
Now son, you don't want Reverend Matty to start prayin' fer you too?
MtD
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Now son, you don't want Reverend Matty to start prayin' fer you too?
MtD
I've already lined you up to deliver mass on South Beach this Sunday; working on booking you for Easter prayer at the Kabbala temple in Las Vegas; and may have an in to replace Christmas worship services normally delivered by the Pope at the Vatican with you.
I'm doing all this in the hopes that people will start seeing images of Matty on toasts and that your prayers for Ms. P's feet and Phild's syphilis will be answered:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/Jesus_Toast_Main.jpg)
Edited to fix cognitive dysfunctions
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I've already lined you up to deliver mass on South Beach this Sunday; working on booking you for Easter prayer at the Kabbala temple in Las Vegas; and may have an in to replace Christmas worship services normally delivered by the Pope at the Vatican with you.
I'm doing all this in the hopes that people will start seeing your images of Matty on toasts and that your prayers for Ms. P's feet and Phild's syphilis will be answered:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/Jesus_Toast_Main.jpg)
Oh Lord son, you're not a Cathylick are you? :(
If you are, we might as well stamp your coffin "Straight To Hell" right now and be done with it.
Coz Cathylicks ain't Christians. They're idol worshippers and no amount of genuflecting and ring kissing is gonna save them from the firey reward Jesus is stoking up for them as we speak.
Now I know what you're gonna say "Cathylicks are Christians! We're the original Christians!" but that just ain't true because the boy buggers don't follow Jesus.
Anyone who has read his King James Version 1611 Bible will know that Mary is the Diana Ross of the Cathylick religion and Jesus is just one of the Supremes to those sad and misguided folks.
I remember years ago watching the news on my new fangled color television receiver set and seeing one of those Cathylick popes standing at a winder balcony (Pope John Paul George and Ringo I think it was) waving to a crowd of hell bound Italians like some palsied drunk hailing a cab.
It was disgusting. >:(
You'd best repent of your wicked ways before it's too late, Phillip.
MtD
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Oh Lord son, you're not a Cathylick are you? :(
You'd best repent of your wicked ways before it's too late, Phillip.
MtD
Naw, phild is FAR from Cathylick -
the whole sit, kneel, pray thing was much too hard on my legs ----
Now, the "get on your knees and stay there" thing - well, I have that one mastered
Which I guess could still work at certain seminary schools. ::)
HELPFUL TIP:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/incaseofpentecost.png)
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It's spelled Catlicks, Matilda. Everyone knows they lick Ceiling Cat's ring - and I'm not talking about the one on his paw.
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/ceilingcatgtfo.jpg)
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/ceilingcat128491266887143433.jpg)
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Naw, phild is FAR from Cathylick -
the whole sit, kneel, pray thing was much too hard on my legs ----
Now, the "get on your knees and stay there" thing - well, I have that one mastered
Which I guess could still work at certain seminary schools. ::)
HELPFUL TIP:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/incaseofpentecost.png)
A Pentycostal are ya? Well that's a step in the right direction.
But of course provided you're not a Oneness Pentycostal. Those folks are as sure to end up roasting in the Lake of Fire with the Mary Worshippers along with Anna Nicole Smith and a mess of Norwegian socialist youth.
Of course Trinitarian Pentycostals might have a chance at salvation, but you'd be well advised to put the rattlesnakes down and stop swinging from the chandeliers during church services.
The LORD doesn't take kindly to those who try to outshine him on the Sabbath.
It's spelled Catlicks, Matilda. Everyone knows they lick Ceiling Cat's ring - and I'm not talking about the one on his paw.
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/ceilingcatgtfo.jpg)
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/ceilingcat128491266887143433.jpg)
Don't start me on Methodist Lesbians. The LORD has a special extra hot corner in Hell for y'all.
MtD
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A Pentycostal are ya? Well that's a step in the right direction.
Nope - not Pentycostal either - although, a Puerto Rican I used to fuck around with was and ummm ummm ummm (okay, syphilis doesn't seem that bad after reliving those images)
Anywhooooo, these images should provide a better idea of what phild is:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/Riverside_Baptist_Church_jpg_scaled500.jpg)
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/BaptistHumor.jpg)
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/cartoon-eskimo-baptism.jpg)
8)
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Nope - not Pentycostal either - although, a Puerto Rican I used to fuck around with was and ummm ummm ummm (okay, syphilis doesn't seem that bad after reliving those images)
Anywhooooo, these images should provide a better idea of what phild is:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/Riverside_Baptist_Church_jpg_scaled500.jpg)
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/BaptistHumor.jpg)
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/cartoon-eskimo-baptism.jpg)
8)
A Baptist? Well son, why didn't you say? :)
If I knew you were born with your feet Hot for Jesus we needn't have gone through all of this rigamarole.
Of course you better be a Southern Baptist or at the very least an Independent Baptist in the style of the saintly Reverend Phelps.
Those heretical American Baptists and Cooperative Baptists, well they're just no better than Quakers.
MtD
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Don't start me on Methodist Lesbians. The LORD has a special extra hot corner in Hell for y'all.
I know! I got the brochure just the other day - I'm so excited!
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/il_570xN.jpg)
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A Baptist? Well son, why didn't you say? :)
If I knew you were born with your feet Hot for Jesus we needn't have gone through all of this rigamarole.
Of course you better be a Southern Baptist or at the very least an Independent Baptist in the style of the saintly Reverend Phelps.
Those heretical American Baptists and Cooperative Baptists, well they're just no better than Quakers.
MtD
I forget what kind of baptist I am ---- I just know that I got dunked in the water and almost drowned (very traumatizing) --- oh, and I like this sign:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/SignsPrayer.jpg)
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I forget what kind of baptist I am ---- I just know that I got dunked in the water and almost drowned (very traumatizing) --- oh, and I like this sign:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/SignsPrayer.jpg)
Primitive Baptist? :)
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I know! I got the brochure just the other day - I'm so excited!
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/il_570xN.jpg)
Hillary Clinton tells me that y'all get issued with double headed tridents. :)
But I think we all know what book you're really reading from:
(http://tool.shagnasty.net/wiki/images/0/0e/A_girls_best_friend.jpg)
Turn or burn!
MtD
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The fact that the dog is pawing at her ass is hilarious.
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The fact that the dog is pawing at her ass is hilarious.
I don't think we need to bring your promiscuous mother into this. :)
MtD
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I don't think we need to contaminate this thread with off colour references to your promiscuous mother. :)
MtD
A your mom joke? You've previously done better. Besides her girl parts were wrecked in her late 40s, she's not been promiscuous for an age.
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Hillary Clinton tells me that y'all get issued with double headed tridents. :)
That's great news - I'm even more excited now!
But I think we all know what book you're really reading from:
(http://tool.shagnasty.net/wiki/images/0/0e/A_girls_best_friend.jpg)
Bullshit. Everyone knows I prefer pussies. (http://i933.photobucket.com/albums/ad174/dash1293_2010/Emoticons/014.gif)
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A your mom joke? You've previously done better. Besides her girl parts were wrecked in her late 40s, she's not been promiscuous for an age.
Yup, a 'yo momma' joke.
I'm not gonna waste "A" material on you.
That's great news - I'm even more excited now!
Bullshit. Everyone knows I prefer pussies. (http://i933.photobucket.com/albums/ad174/dash1293_2010/Emoticons/014.gif)
All cats are grey in the dark, Your Annship. :)
MtD
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BTW, we have evolved from phild's syphilis anxiety to religion, yo mamma jokes, and bestiality -
I feel much better -
and my thread has nearly 3,000 2,500 views - it is kicking Ms. P's foot surgery thread in the arse!!
Not that I'm competitive or anything (good baptists are never competitive).
BTW, why doesn't the stats page update and reflect most popular pages by views? I want my Dayummmm Syphilis to go down in history. Dayummm it!!
Edited to fix number of views - dayummmm cognitive issues
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Yup, a 'yo momma' joke.
I'm not gonna waste "A" material on you.
All cats are grey in the dark, Your Annship. :)
MtD
A is for...
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A is for...
"A" is for the fact that I can rely on "Andy Dick - Live from the Improv" material and still kick you into touch.
MtD
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A is for...
...Ahellraiser?
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I'm detecting a bit of......
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/funny-fake-original-star-trek-inspirational-poster.jpg)
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I'm detecting a bit of......
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/funny-fake-original-star-trek-inspirational-poster.jpg)
I agree. I can totally see Ann giving Hecky one up the chutney with a strap on.
MtD
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Dayuummm, I forgot what I was going to post...
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/41lOhg4En1L__SX385_.jpg)
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I laughed so hard at this thread I got a chancre .
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I laughed so hard at this thread I got a chancre .
You're gumma be sorry.
MtD
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I agree. I can totally see Ann giving Hecky one up the chutney with a strap on.
Only if he has a ball-gag in his mouth so I don't have to listen to his silly prattle.
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/ball-gag-ball-gag-silence-demotivat.jpg)
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Only if he has a ball-gag in his mouth so I don't have to listen to his silly prattle.
(http://i933.photobucket.com/albums/ad174/dash1293_2010/Jokes/ball-gag-ball-gag-silence-demotivat.jpg)
whats the safe word ? Halitosis ?
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You're gumma be sorry.
MtD
I was going to post some pictures of chancres - but started viewing them and threw up in my mouth a little.....
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whats the safe word ? Halitosis ?
Hecky doesn't get to have a safe word. ::)
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Hecky doesn't get to have a safe word. ::)
Safe words are for weenies. If you don't think you've got a better than even chance of dying why bother getting into the sling?
MtD
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Safe words are for weenies. If you don't think you've got a better than even chance of dying why bother getting into the sling?
MtD
'zac-a-diddly-do-do!
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And now a word from our sponsor:
"Father Reilly," the mother superior reported, "I think you should know that there's a case of syphilis in the convent."
"Oh, good," the priest replied. "I was really getting tired of the Chablis."
Now back to the show....
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'zac-a-diddly-do-do!
Damn right. Half the fun is digging your way out of the shallow grave. :)
MtD
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So, I saw my doc yesterday - the latest titer came back 1:8 - no increase/no decline. She has put in a referral for the LP. We are trying to do it on an outpatient visit - but having a hard time getting a routine LP scheduled anytime before October, so, I will be finding out tomorrow if I will be admitted overnight to the hospital within the next week to be able to get it done (she thinks that would be quicker - even though she is reluctant to do it). She says if it comes back neurosphyilis then I would probably be in the hospital for a few days and perhaps sent home with an antiobiotic pump - but she couldn't be sure of that.
In other news, latest labs showed a slight decline in the cd4s - which fluctuate anyway - down from an all time high to 667 (still not bad) and 36% (has been going down over the last few labs - but doc says nothing to worry about and still within acceptable range of 30-61%) and the VL is UD (<20 copies).
So, the syphilis saga continues....
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/syphilis_postcard.png)
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Damn. Good luck, Phil. I think that the sooner that you handle, the better (even if it is uncomfortable).
Hugs :-*
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Just Git 'er done Phil.
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Good luck, sounds like your doc is on top of things. It might be better doing the lp inpatient. Didnt you say you live kinda far from the hospital? At least if you do i inpatient you could stay lying down and hopefully avoid the lp headache. Besides i you do get it, they have better drugs at the hospital. I would push for the morphine drip kf its on the menu. Maybe you could even get a sponge bath out of it.
Good luck.
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It might be better doing the lp inpatient. Didnt you say you live kinda far from the hospital? At least if you do i inpatient you could stay lying down and hopefully avoid the lp headache. Besides i you do get it, they have better drugs at the hospital. I would push for the morphine drip kf its on the menu. Maybe you could even get a sponge bath out of it.
Yeah - I do live about 10 miles from University of Miami hospital - where I would be admitted. I actually would prefer the inpatient - so that I can stay laying down and so that they can deal w/ any post LP headache I might get. Morphine or dilaudid - would be nice to have on the menu (Even though those who know phild know that I avoid painkillers at all costs ::) ;) )
I really just want to get the procedure over with and move on as the waiting thing is the most difficult.
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I missed this thread somehow but naturally I'm hoping for the best and a quick recovery .
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I missed this thread somehow but naturally I'm hoping for the best and a quick recovery .
Thanks Jeff, I appreciate it.
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I missed this thread somehow but naturally I'm hoping for the best and a quick recovery .
Thanks Jeff - I appreciate it.
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So.... after literally calling Radiology (who my doc referred me to), then calling Interventional Radiology, then calling another department in Radiology, and then calling the specific doctor within Radiology - I have finally got the date set for my LP (as an outpatient procedure). It will be done on Monday, August 22nd.
Of course the labs I had done on 7/25 can't be used - so, my doc had to send me a requisition for new labs (ProTime, CBC, PTT and INR)(??) - I will get these done on Monday, 8/15, so they will be "fresh" for the doc.
They should have the results of the LP back by 8/23 or 8/24.
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Dayummmmm syphilis! you scary!
Hiii Phil,
we share an common enemy, so you have my support and prayer all the way.
when I found out I was hiv positive, syphilis came with the combo. I'm still processing an on going treatment, already had 3 butt cheeks shoot, missed the last one. Have to redo it all over again ugh. got one injected about two days ago, ass still hurt. Two more to go. So six total in less than a month and a half, oh the joy.
though, i can't compare or imagine how LP is going to be like for you. ๏̯๏
I hope it will goes quickly, and painless for you. maybe after the treatment you and I should retaliate syphilis with a club. =P
Hope to hear from you soon again after 8/15. Best wishes, and bravery!
-Timmy
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And the fucking saga continues...
So, after going in for labs on Monday - because the doc doing the LP said I have to have labs within one week of the procedure - scheduled for Monday, August 22nd, I get a call yesterday from the doc's office that is doing the procedure asking why my doc referred me to him - when he typically doesn't do routine LPs, but only ones for those patients that docs could not successfully do one on before....
I explain the run around my doc and I both got and that we had finally been told that he would do --- so..... the call ends with no problem - procedure scheduled to occur as planned for this coming Monday.
Well, today I get a call from the doc's office doing the procedure - he has been trying to reach my ID doc to see why she referred me to him ---- giving the same reasoning mentioned above. BUT, he can't reach her, because she is out of the office this week...... SO, I am now being told that until he talks to her to clarify why she referred me to him, the procedure is being cancelled....
What does this mean for me? Well, first I AM PISSED.... I now have to get the labs done again (whenever they decide that they want to do the dayumm LP - which can't even happen til after he talks to my doc), I have to cancel my time off from work that I had already moved appointments around to accomodate, I will then have to put in for different time, reschedule appointments, also get labs done again, etc, etc
Did I say I AM PISSED OFF? I called my docs office and cussed them out and just sent her an email letting her know that this all could have been avoided had she done what I had requested and just admitted me to the hospital for 23 hours to get the LP done - but no, she wanted to go the OP route ----- and said, if we have any hassles then she would go with the inpatient ---- well..... NEWSFLASH - WE ARE HAVING HASSLES.
BTW, did I say that I AM PISSED? Hopefully, she will respond to my email today (even being out of the office), she will talk to the other idiot (I mean doctor), and they will proceed with the LP for this Monday ------ especially after the chancges I have gone through and getting myself mentally ready for it...
So, in the meantime... I continue to wait and the syphilis continues to go untreated --- lovely.....
BTW, did I say I AM PISSED? and the saga continues....
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Are you pissed off, Phil?
I'm sorry to hear you are getting this kind of run-around -- it sounds absolutely ridiculous. Especially after having your labs drawn already.
I am pissed off just reading this.
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Phil , I'm SHOCKED that the State Dept. of health in whatever state you live in hasn't gotten involved in any of this, providing that they even know about any of this yet.............good luck, and you really need to be treated ASAP, it's shocking that your not getting any :o
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Thanks for pissing me off Phil
-
My ID doc just emailed me and told me that she talked with the doc that is supposed to do the LP on Monday - and he has agreed to do it. She said I should get a call from his office tomorrow confirming the Monday appointment. She agred that the difficulties and hassles I have been experiencing in getting this done are unacceptable and apologized. Hopefully, the call will come tomorrow.
While I am happy that it seems to be working out - I now have some expected apprehension about having a doc perform the procedure who really doesn't seem to want to do it. But, I will get over that --- I just want to get the procedure done and find out what is going on so I can treat it (either in the hospital with antiibiotics or, if not neurosyph, than with the cement butt shots).
Of course, until I am there on Monday and laying on the table - I won't really believe that it is happening (almost like hooking up with a trick on a website - you don't really believe they are coming over to do the deed until your in bed with your legs up in the air ;D -------- I love analogies)
And the saga continues....
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Well that's good news, but let me warn you about something, your State Dept. of Health ( after your doc tells them about your Syphilis) and they will cause it's required by Law, they will follow up on this, and contact you, make sure you communicate with them about your treatment, cuz they can & will get nasty if you don't
and Phil, I hope it all works out, I'm sure it will ;)
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Well that's good news, but let me warn you about something, your State Dept. of Health ( after your doc tells them about your Syphilis) and they will cause it's required by Law, they will follow up on this, and contact you, make sure you communicate with them about your treatment, cuz they can & will get nasty if you don't
and Phil, I hope it all works out, I'm sure it will ;)
Hi Den -
Thanks for the advice --- actually when my first titer came back almost two months ago at 1:8 the health dept got in touch with me and I let them know that I was following up with treatment through my doc at UM. Nice thing (if you wanna call it that) is that I haven't been sexual with anyone since finding out - and my ex - who I still mess around with - got tested and he is okay. We have put the brakes on things until I get it all worked out. Thanks again for the concern - it is definitely appreciated.
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And the saga continues....
So, let me fill you in on the latest..... I received a phone call today at noon informing me that the procedure would be done on Monday and that my copay would be $100. I also received notification of the appointment via my electonic medical record online. So, I scheduled various work meetings to occur on Tuesday and Wednesday afternoon. Well, at 4:30 I received a call from the doctor's office informing me that the doctor had talked with my doctor; however, they had already filled the Monday slot. She asked if I could come Tuesday or Wednesday. I let her know that I could not as I had already had prior commitments.
I am now scheduled to get the procedure done on Thursday, August 25th (65 days after I received the first results of the titer). I was unwilling to change my Tuesday or Wednesday work commitments because of all of the games and hassles I have had up to this point. So, I should be getting the procedure done on Thursday. If this doctor's office calls to cancel the Thursday appointment for any reason, I will have to look into putting in some type of complaint to the appropriate person as I really think that their handling of this has been unacceptable. I don't think it was appropriate for them to fill the slot with someone else, particularly after they had talked to my doctor and after I had received both a phone call and an online confirmation that the appointment was going to be Monday, August 22nd (as originally scheduled).
And the saga continues...
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Phil why don't you just go the State or County run free Health clinic, and get the 2 cement-shots and be done with it, they will even re-test you for free again, and re-treat you if they need too, why prolong this agony ???
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Phil why don't you just go the State or County run free Health clinic, and get the 2 cement-shots and be done with it, they will even re-test you for free again, and re-treat you if they need too, why prolong this agony ???
If he has neurosyphilis, then this method won't work at all. The LP is needed to determine and diagnose that.
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Phil why don't you just go the State or County run free Health clinic, and get the 2 cement-shots and be done with it, they will even re-test you for free again, and re-treat you if they need too, why prolong this agony ???
My ID doc could have done the cement shots - the problem is that this is my second recurrence ---- after having been treated twice before (once around 5 years ago or around then and then again around 3 years ago) --- the recurrences, along with the slow increase in the titer are leading the doc to believe that it is neurosyphilis - which is why I need the LP to see if it is..... othewise, if I get the cement shots, it will take the titer down temporarily, but, if it is neurosyphilis it will just come back..... eventually, if I keep getting the cement shot treatments - and it is neurosyph - the doc says that it may get resistant to the treatment - which will really create a major problem. Thus, I have no choice at this point but to get the LP (which they are giving all the hassles with) so we can figure out the best treatment route.
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If he has neurosyphilis, then this method won't work at all. The LP is needed to determine and diagnose that.
My guess, he probably doesn't have neurosyphilis anyway, and it really won't matter, the State will still try and treat no matter what your ID doctor says, that's the way they do it here in New Mexico, why I dunno, but it is what it is, @ Phil this sucks, I hope your doctors get there shit together, it sound like they don't know what-the-fuck they are doing ;)
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My guess, he probably doesn't have neurosyphilis anyway, and it really won't matter, the State will still try and treat no matter what your ID doctor says, that's the way they do it here in New Mexico, why I dunno, but it is what it is, @ Phil this sucks, I hope your doctors get there shit together, it sound like they don't know what-the-fuck they are doing ;)
Thanks Den -
I'm hoping it isn't the neurosyph - in which case I will get the shots (I don't know if it will be one round or three)
If it is neurosyph - then doc says I will go in hospital for 2-3 days then be sent home with an IV pump of antibiotics - and a visiting nurse to change it out for another 7 or 8 days.
UM is usually pretty on top of things - but this has been one of the rare times when they are just fucking up all the way around.
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Thanks Den -
I'm hoping it isn't the neurosyph - in which case I will get the shots (I don't know if it will be one round or three)
If it is neurosyph - then doc says I will go in hospital for 2-3 days then be sent home with an IV pump of antibiotics - and a visiting nurse to change it out for another 7 or 8 days.
UM is usually pretty on top of things - but this has been one of the rare times when they are just fucking up all the way around.
If you do have neurosyph, you'd be blind or deaf by now or insane, my guess is you don't, I hope that it's not and these fucking doctors, wow some of them really got there-head up there ass don't they ;)
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If you do have neurosyph, you'd be blind or deaf by now or insane, my guess is you don't, I hope that it's not and these fucking doctors, wow some of them really got there-head up there ass don't they ;)
Unfortunately, that is what makes my doc think it could be neurosyph ---- because when I frst got diagnosed with it 5 or so years ago - I actually did go deaf in my left ear --- had to get a hearing aid and everything. Then, after the treatments, the hearing came back.... so, doc thinks with the recurrences and the slow rise in titer and the previous hearing loss, that it could be latent, neurosyph.... hoping not.... that is why the anxiety about getting this LP out of the way.
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Unfortunately, that is what makes my doc think it could be neurosyph ---- because when I frst got diagnosed with it 5 or so years ago - I actually did go deaf in my left ear --- had to get a hearing aid and everything. Then, after the treatments, the hearing came back.... so, doc thinks with the recurrences and the slow rise in titer and the previous hearing loss, that it could be latent, neurosyph.... hoping not.... that is why the anxiety about getting this LP out of the way.
Well let's hope you don't, if you do the way it's treated is w/ a pick-line and a 14 day IV-pump, that you'll have to change every 8 to 12 hours, NOT FUN, I had the change it when my otherhalf had this, but come to find out he really didn't have neurosyph, his LP came back NEG, but his titer was a lot higher than yours, so they give him that 14-day-pump, when all he really needed was the cement but shots, that the State give him anyway, after the IV-pump ;)
Edited to ADD: we think the State did this cuz I'm POZ and he's not, and I was non-reactive for the last 25 yrs. wich was kinda strange, that I didn't get THIS from him, but i was lucky cuz I still tested non-reactive :)
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We are hoping it isn't the neurosyph - but the slow rise in the titer (from 1:2, 1:4, to 1: eight), per my doc and the previous symptoms (hearing loss before) lead my doc to think it is ---- she said she would not be as likely to think that if the titer was a lot higher --- the insidiousness of latent is the slow progression (from what she says)..... I would rather just go through the shots - which I wouldn't be surprised if I still have to get even if they find neurosyph, treat it with the IV over the two week period. But, I am hopeful that they do the LP Thursday, find out it isn't, and then I can go in the following week and get the shots.
Why did they put your partner on the IV without having the LP results back showing that it wasn't neurosyph, if I can ask?
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Aside from the scheduling bullshit and the dr thats doing the lp stuttering over it, to me it sounds like your id dr DOES know what she is doing, and would tend to agree that you should follow her instructions.
Good luck, heres to an easy lp. Better safe than sory.
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We are hoping it isn't the neurosyph - but the slow rise in the titer (from 1:2, 1:4, to 1: eight), per my doc and the previous symptoms (hearing loss before) lead my doc to think it is ---- she said she would not be as likely to think that if the titer was a lot higher --- the insidiousness of latent is the slow progression (from what she says)..... I would rather just go through the shots - which I wouldn't be surprised if I still have to get even if they find neurosyph, treat it with the IV over the two week period. But, I am hopeful that they do the LP Thursday, find out it isn't, and then I can go in the following week and get the shots.
Why did they put your partner on the IV without having the LP results back showing that it wasn't neurosyph, if I can ask?
Cuz he had this over zealous doctor, that didn't know what the fuck he was doing ( fresh outta med-school) also when the State give him the but-shots,( after that 14-day pump that this doctor put him on) I had to get them too, as a pre-cautionary measure I WAS PISSED, I mean I hadn't had Syphilis since 1981 when I was in the NAVY ??? due to me being non-reactive, and being POZ, they put me thur HELL, cuz he had never had this before, and we always have safe sex, most of the time cuz he's a neggie...
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Dayummm Den - I can onlly imagine - I would have been pissed too. Well, I'm just ready to get this thing done and do whatever I gotta do to treat it and move on.....
I checked my online health chart and they still have me scheduled to go on Monday - for the x-ray that was supposed to occur before the procedure - so, now I have to call tomorrow and find out why the fuck they haven't changed that ---- so, I don't get hit with missing a scheduled appt - or go in on Thursday and they ask why I didn't get the x-ray ----- I am seriously getting close to telling this doc's office to pull their heads out of their asses..... UGGGGHHHHHHHHHHH.
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Dayummm Den - I can onlly imagine - I would have been pissed too. Well, I'm just ready to get this thing done and do whatever I gotta do to treat it and move on.....
I checked my online health chart and they still have me scheduled to go on Monday - for the x-ray that was supposed to occur before the procedure - so, now I have to call tomorrow and find out why the fuck they haven't changed that ---- so, I don't get hit with missing a scheduled appt - or go in on Thursday and they ask why I didn't get the x-ray ----- I am seriously getting close to telling this doc's office to pull their heads out of their asses..... UGGGGHHHHHHHHHHH.
Yeah check in to that and follow up on it too, a missed appointment can run you up to 35 to 45 bucks, ya know they just nickel & dime you to death for a missed appointment, I'd rather spend that on a nice dinner :D
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I'd rather spend that on a nice dinner :D
Same here....
Thanks again Den - for the support, concern, and advice.
Hopefully, I will be able to vacate this thread within another 10 days... ;)
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Ah well fuck it. It's gotta be said.
Slut.
I just hope you don't go the way of that African dicK - tay - tor who went doo-lally cuz of the same crap.
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Ah well fuck it. It's gotta be said.
Slut.
I just hope you don't go the way of that African dicK - tay - tor who went doo-lally cuz of the same crap.
LOL --- LMAO
Ann - this is actually left over from my slut days - I haven't been a slut for a while now --- at least 6 years -- I used to need both hands to count who I had been with in one week, now I can count who I have been with in the past 6 years on two hands......... and both feet (all toes).......and both ears.... and my nose (both nostrils).... and each ball.... and (but, I still don't think that would make me a slut anymore..... maybe not any less, but definitely not any more... ;))
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And the saga continues...
So the doctor's office called today - they have pushed my Thursday LP appointment time back from noon to 3 pm
(At least it looks like Hurricane Irene isn't going to hit us - so, they shouldn't have a reason to cancel it because of that)
Two days and I should finally have this procedure done and over with...
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(At least it looks like Hurricane Irene isn't going to hit us - so, they shouldn't have a reason to cancel it because of that)
You are jinxing yourself. Now Irene is going to Dog leg over to Ft Laudy and flood yall out. Appt cancelled.
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You are jinxing yourself. Now Irene is going to Dog leg over to Ft Laudy and flood yall out. Appt cancelled.
(http://i812.photobucket.com/albums/zz42/livebythemoon/4bafe676.gif)
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A little less than 19 hours until my lumbar puncture...
The nurse from UM called today - nothing to eat after 9 am - have my ride there and home worked out. Still have to get up in the morning and go to work.
Luckily, my office is about 10 minutes tops from the UM hospital where the procedure will be done.
Nervous? You bet.
But, at least I am finally moving forward and on my way to finding out next steps.
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A little less than 19 hours until my lumbar puncture...
Best of luck and good results Phil . I bet you have been poked with bigger things than an LP and liked it ;) .
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Good luck, hooker. Hopefully it won't hurt much and you'll be over this chapter soon.
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Luck isn't needed Phil. You're in good hands at the UM hospital and your LP will go smoothly. Keep us updated!
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Hope it's an easy one Phil, with no hangover!
A
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Best of luck and good results Phil . I bet you have been poked with bigger things than an LP and liked it ;) .
Yes I have -
but the bigger pokes were in my ass, not my back ;D
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Glad I chatted with u earlier Phil...Hopefully my LP experience put u at ease a little bit..I'll keep u in my thoughts my friend ;)
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You have my best, Phil!
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Thanks everyone -
And it was great talking with you earlier AC - you really did put my mind at ease about tomorrow.
BTW, if anyone would like to be my stand in for the LP - just let me know. ;D
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Thanks everyone -
BTW, if anyone would like to be my stand in for the LP - just let me know. ;D
I would have rather been your stand in for getting syphilis , that part sounds more fun ;) .
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I would have rather been your stand in for getting syphilis , that part sounds more fun ;) .
LOL -
And the keyboard is covered in water --- dayummm it!
Actually, it was rather fun getting it ---- if I could remember which person it was that gave it to me LOL
Just kidding -
Okay, I'm not kidding (Ann was right ---- I'm a slut) ---- yeah, right - the only thing getting any action is my hand --
and I'll tell you, the ultimate in rejection is when your jacking off and your hand falls asleep. ::)
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I'd help u out if I could!!
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Good luck Phil. I'll be looking for an upate, and wish you the best. :-*
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Thanks for the kind words and support everyone -
I leave here (work) at 1:30 and a colleague is driving me over to have the procedure done - then another colleague is picking me up and driving me home after the procedure.
I will be leaving here in about 40 minutes - signing in at UM at 2; procedure at 3; and should be out of there around 5:15 and home by 6....
Ugggghhhhhh, and yes the nerves have kicked in, but it will be okay. :-\
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LP done - at home resting
I'm a little sore from where they put the needle for the procedure and did the lidocaine injections - they had to give me an extra one because the first one wasn't deadening the spot enough.
I have a very slight neck ache - but nothing too bad.
Overall, it went well.
I should have the results within a couple of days.
Thanks all for your support.
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Thanks for the update . hopefully the worst is over and you will be on the mend soon . Hang in there .
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I happy your LP is finally done, Phil! But not as happy as you are, I'll bet!
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Phill, so glad your LP went fine, and glad you avoided the dreaded headache.
Anxious to hear the results.
Now go take it easy for a bit ;D
-Will
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Phill, so glad your LP went fine, and glad you avoided the dreaded headache.
Anxious to hear the results.
Now go take it easy for a bit ;D
-Will
Thanks Will - but...... neck is starting to hurt worse - I've taken 4 tylenol so far ----
and feeling dizzy.... getting ready to lay back down on the couch and be immobile - which is hard for me - I'm used to moving around and doing things ---- Mr. Multi-tasker (lol) but feeling kind of crappy right now.
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Phil, I hope you're feeling better today, and that those awful side effects go away soon. :-*
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Thanks B -
Neck is still hurting --- nothing extreme - just a constant low level pain; still some dizziness when I sit up for too long...
I am working from home today - I brought all my paperwork and info I need on flash drive - and have access to my work email.... I have a conference call at 10:30 and another at 1:00 - which I can do remotely.
In between writing three grant projects that I am working on (one with a 9/1 deadline, one with a 9/2 deadline; and another with a 9/6 deadline) I am making sure I keep some caffeine going in me (to ward off the headache), taking Tylenol, and taking intermittent breaks - laying on the couch....
I think I am getting through it okay - I might have been able to go to the office, but didn't want to chance being on I-95 in rush hour traffic this morning and having a bad headache or the dizziness hit (the drivers are crazy enough without me driving dizzy). I also would have had to take breaks laying on my office floor and that isn't really too comfortable. Boss was cool with me working from home - I will go into the office tomorrow and finish up a couple of the projects - the goal is to have them ready for College President approval first thing Monday A.M.
Thanks again all for the support and dealing with my anxiety over the procedure - which really was unwarranted as it wasn't that bad.
Now, just waiting for results - they took the samples immediately to the lab yesterday after the procedure, so those should be back today or tomorrow.
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So the results are starting to "trickle" in --- Still waiting on the primary results (the VDRL).
got this email from my doc a little bit ago...
OK Phil, so far everything looks good (cell counts, glucose, etc) but the VDRL is the main test and that will be done later today.
I’ll let you know.
Hopefully, I will know more later today ---- and the headache has now become more persistent, but not debilitating.
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I'd help u out if I could!!
Me too! An order of chicken noodle soup is on your way :)
Hope you recover soon!!
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Good news -
Doc just emailed me -
Test results = Non-reactive
She says "no worries" and for me to contact her next week, so we can arrange for the two cement butt shots and that should take care of putting the titer in its place.
;D
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Yay! I'm happy for ya ;)
Now, don't go celebrate at the local bookstore. Take a little break, ho :-*
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Yay! I'm happy for ya ;)
Now, don't go celebrate at the local bookstore. Take a little break, ho :-*
But, I only go to the bookstore to read the books and magazines ;D
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Congrats! and well, at least all you will get it's a couple of (big) pokes behind there ;D
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Yay!! So glad you don't have to go thru the boredom in the hospital that I had to endure! Glad u are doing good..Keep sucking down the caffeine and DO NOT drive with that headache! You might end up like I did..On the side of the road crying like a 2-year old
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Great news, Phil.
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What a relief! Good luck with the cement shots. Ouch!
But, I only go to the bookstore to read the books and magazines ;D
Yeah, yeah, yeah. We all know you only look at the pictars. ;D
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Good news -
Doc just emailed me -
Test results = Non-reactive
She says "no worries" and for me to contact her next week, so we can arrange for the two cement butt shots and that should take care of putting the titer in its place.
;D
What did I tell ya Phil ? I was correct wasn't I :-* now keep outta them n bookstores, they aren't good for you :o I 'm happy that it all worked out for the better, take care now 8)
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Good news -
Doc just emailed me -
Test results = Non-reactive
Great news, Phil. Time for a Snoopy Dance!
http://www.darkharbor.com/snoopydance/ (http://www.darkharbor.com/snoopydance/)
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Glad to hear that Phil
A
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Phil, I've been purposely avoiding this thread because it brings back memories of a S-situation with my now-deceased ex...and it was very selfish of me to do so.
I read it all today, and the support you have been given (and a lot of the side-tracks) is priceless! I'm glad everything went well and ended up in only the cement butt shots. Healthcare is a lot of people involved in scheduling a lot of shit and having to fill out a lot paperwork. I agree with you and everyone that the scheduling headaches were unnecessary.
Speaking of headaches, in case anyone reading needs pain relief after a LP, the last time I checked, Excedrin still has caffeine in it. It was the drug of choice for Rush Week when my sister was a sorority girl.
Hugs,
Creighton
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Thanks for the support everyone -
It looks like I spoke too soon yesterday ---
I just got back from the hospital - I had to be taken there by ambulance this afternoon about 2 pm. I had a massive post-lumber headache and neck ache --- was vomiting and everything --- WORST headache i have ever had in my life - I was crying like a baby.
They gave me a CT scan and some dilaudid -- but they elected not to do the epideral blood patch - but gave me a script for percocet and caffeine pills.
I am back home now and resting - and I do mean resting. I think I tried to do too much yesterday and had plans to go into the office today and tomorrow to catch up on some work - but no matter what I plan, my body is telling me different.
WORST headache ever --- I wouldn't wish it on my very worst enemy. I am hoping it has passed now - I am scared to death of it coming back - that is how bad it was.
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Shit Phil, I was worried this would happen after you were going on about how much you were doing instead of LYING DOWN. One could be forgiven for thinking that should have been easy for you. ::)
I hope you keep still for a while and GET SOME REST DAMNIT!!!! They should have kept you in the hospital and tied you to the bed.
Feel better, ok? Bad headaches are no fun. I used to get migraines so bad that I'd bang my head on a wall because that actually felt better. Weird, eh? Anyway, I can empathise. :-*
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So sorry to hear about that. I hope you feel better soon.
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Shit Phil, I was worried this would happen after you were going on about how much you were doing instead of LYING DOWN. One could be forgiven for thinking that should have been easy for you. ::)
I hope you keep still for a while and GET SOME REST DAMNIT!!!! They should have kept you in the hospital and tied you to the bed.
I knew it.
Phil, you silly hooker, I told you not to go tricking at Twist and the adult bookshop last night. You are supposed to REST.
Hope you are feeling better now. DO NOT GO TO THE OFFICE TOMORROW. Stop playing.
Hugs :-*
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Sorry Phil ... feel better soon .
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Oh no!! Phil Im so sorry that u caught that horrible headache..I know it all too well..U were like me! Tryin to work and shit! It's one of the most awful things u can have! Worse than a toothache! The post LP headache is the ONLY headache that made me cry too..I actually considered suicide lol...Rest Rest Rest!! I would spank you if I could!
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I really have to wonder why hospitals don't treat an LP as an inpatient procedure and strap workaholics down to their beds for at least 24 hours afterwards. It couldn't end up costing more than the follow-up when the intense headache happens, could it? I mean, when you add in the cost of the ambulance ride, the CT scan..... it all could have been avoided by an overnight stay and some straps.
Phil, hope you're feeling much better today. If you are, DO NOT take that as a sign you can do some work. REST! That's an order, mister!
:-*
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I will say that the LP headache is nothing like I have ever experienced before - worse than any migraine I have ever had --- I honestly didn't care what they did to me at the hospital, as long as it was going to make the pain stop. It is that intense.
I agree Ann that they really should do better post procedure care - as it had to cost a fortune for the hospital visit yesterday with ambulance, CT, etc. I don't know how much I will get hit with - it depends on whether my insurance company defines the ambulance ride as medically necessary. I know that I will have a $200 copay for ER - since I was not admitted. If they would have admitted me, it would have been waived - but then I would have had a $300 a day (for up to 5 days) copay for admit.
The CT and other procedures will be covered. The ambulance will be no charge if considered medically necessary - otherwise, I think it might be another $100.
I feel a lot better today - I still have some neck pain - and I have a fear of the headache returning, so I am taking it slow. However, I do have to do some work today - as I have a deadline for a $750,000 grant that has to go for approvals tomorrow and a $35,000 grant that also has to go for approvals. I am going to go easy on things though - and ease my way into it, but with $800,000 on the line and all the work that various people have put in to getting the proposals done, I can't just drop the ball.... I only give the above info to put into perspective why I have to work when I feel not quite up to it -- believe me, I would love nothing more than to not do anything - but that is not an option.
I will definitely go easy though and space everything out.
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Phil... what are we going to do with you buddy??? Glad to read you are feeling better at this point in time.
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This just don't make no dayummm sense --
I keep trying to get some of this work done, but I can't sit up for more than 10 minutes without my neck hurting and stiffening up so bad that it nearly brings me to tears.
Extremely frustrating.
I wish this pain would just pass already. They should have sent me home with a morphine drip, dayummm it!!!!
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This just don't make no dayummm sense --
I keep trying to get some of this work done, but I can't sit up for more than 10 minutes without my neck hurting and stiffening up so bad that it nearly brings me to tears.
Extremely frustrating.
I wish this pain would just pass already. They should have sent me home with a morphine drip, dayummm it!!!!
Go lay down NOW ... its the perfect solution :-* .
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They should have sent me home with a morphine drip, dayummm it!!!!
They should have strapped you to the bed like I said earlier.
This is a time when a houseboy would have been ideal. He could have held your laptop above you at just the right angle so you could work while lying on your back in bed - if his dangly bits didn't distract you too much, that is!
I get how important this bit of work is to you, but isn't there a coworker who could help you out? I mean, come on Phil, your health has got to come first. Dayummmm indeed! >:(
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Sounds like a horrible ordeal, I hope you feel better soon.
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Go lay down NOW .
Exactly!!
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I like Ann's idea of a houseboy!
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Sent home from work today as I have excruciating pain in my neck - I can barely move it. I only feel no pain when laying completely flat.
I have contacted doc who did LP - he says its not his responsibility to handle situation - and told me to contact the referring doc (my ID doc).
Talked to my ID doc who says it is not her responsibility to handle as it should be the doc who did the procedure.
Talked to ER at UM - they say it is responsibility of either my ID (referring doc) or the doc who did the procedure to handle as there is nothing they can (or will) do.
I have called Patient Relations - they are trying to sort things out and see who can handlle the situation -
They seem to think it may be a leak of CSF (?) fluid - causing the brain to push down on the brain stem - which is located at base of where head meets with neck - but no one wants to take responsibility to do a epidermal blood patch to seal the leak.
So, here I lie at home - waiting for UM to find out who will take care of me ----
My mother, who is my medical surrogate - is giving them until 3 to call back and then will be calling them.
And, yes, I am lying completely flat as I type this...
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Somebody needs to fuckin do something and get you some relief from this excruciating pain.
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Phil I'm so sorry this is happing to you . You seem to be handling the frustration you must feel in stride . Get well soon .
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This really sounds like a ridiculous situation, and ultimately your PCP needs to sort it out as to who to send you to. Why can't you just go to the ER?
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This really sounds like a ridiculous situation, and ultimately your PCP needs to sort it out as to who to send you to. Why can't you just go to the ER?
I went to ER Saturday - and they said they don't do the blood patch there. I spoke with both docs yesterday via phone conference call facilitated by Patient Relations. They have me on bed rest until tomorrow. The doc that did procedure says I am just one of the rare cases that is having an adverse effect. He still does not want to do blood patch as he says it has its own potential complications. He said if I am not better by Thursday (one week post procedure) he will consider doing it. Meantime, they have me on caffeine and pain pills - but I still can not stand or sit upright for more then a few minutes without severe neck pain. I'm hoping it passes today.
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Oh Phil, I am feeling your pain all the way over here in Texas..I can't believe they are pushing u back and forth like that..That's an entirely different headache on it's own..I feel so bad for u man, since I have felt that headache..It truly is a sledgehammer blow to the back of the head..I cried everyday I had it man..I just hope yours will begin to subside soon..I went thru 5 agonizing days before I was admitted to the hospital for my syphilis treatment and they gave me pain meds to help with it..Headache was finally all gone a week after my LP..Keep ur head up buddy...or...in this case, keep it down, on a pillow
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Thanks all -
Back at work today -
Headache/neck ache finally passed last night around 10:00 pm (5+ days post procedure)
I am going easy on things today - as I feel much relief, but at the same time I can tell that if I move too suddenly or jar myself in any way that it may come back.
Now, I just have to schedule the follow up with my doc for the cement butt shots - which should occur next week sometime.
Dayummmm syphilis! Also, my doc has been informed that unless it is a life or death situation, I will NEVER have a LP done again.
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So, the hospital sent their claim to my insurance company for the ER visit last Saturday:
$10,308.00!!!!
Of course, my insurance has their established agreement with the hospital - so they will actually only have to pay $895 and my co-pay is $200.
Still waiting on the ambulance bill. That should be another nice one.
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Dear Phil,
Glad to hear that wasn't neurosyph!
I was surprisingly diagnosed of syphilis last July. Testing done since I got infected until this one in July have not showed anything. My doc says that titleing is in the lower range, which means a secondary stage, so I should have go infected some time ago.
I've been a good girl, I promise!!!! But, in my case, it has not been enough though! (Maybe I have to make a new definition of what means to be a good girl....)
Well, I got immediately those six cement injections, two each week during 3 weeks.
Now in October I will be tested again. My doc already has informed that if titles remain unchanged, I'll be candidate for a LP and intravenous. So I hope cement did its job!!! Don't have any particular interest in having a LP done, the sole idea makes me feel the pain already.
I am a bit tired of all this! but, what did I expect?? Let's wait and see.
Thanks for sharing your experience!
Hugs!
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Hi Alberche -
Hope your titer goes down ---- the LP procedure itself is not bad at all. They basically give an injection of lidocaine in the area (which stings a little) - then they do the actual puncture (which I did not even feel) - I just laid there and tried to keep my mind at ease (meditation) and kept my breathing relaxed. Immediately after, I didn't feel anything either. It really wasn't until a couple of days later. I would suggest asking your doc (if they do have to do an LP) for a script for some pain pills (like 5 or 10 mg Percocet) - that way you can have it filled and ready to go to be immediately ready to deal w/ the headache if it starts coming on. Both docs involved in my care admit that is where they "dropped the ball." If you can get the headache under control before it gets the upper hand then you should be able to handle it. (They say only 30% get post LP headache and only 5% get it as severe as I had it)
BTW - tomorrow at 3:30 I get my two cement butt shots - the doc hasn't let me know yet if it will be one round or if they will do three (with my titer hanging at 1:8, it may only be one round - and I think the clinical guidelines for syphilis treatment w/ people co-infected w/ HIV has been revised to say just one round of the shots is needed - although, some docs still go old school with it).
Best of luck on your labs - keep me informed - and feel free to PM if you need to ask anything during the process. Ac (one of the members here) was a big source of support for me during my experience - as were many others on the forums.
-Phil
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(They say only 30% get post LP headache and only 5% get it as severe as I had it)
Trust you, Phil. You're so speshull! Good luck with the cement. Hope it sets well. ;) :-*
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Good luck with the cement. Hope it sets well. ;) :-*
Well, getting ready to leave the office and head to my doctor's office at UM to get the 2 cement butt shots..... I can think of a lot of other things that would be more enjoyable. I should be posting in a few hours, albeit in pain (Ouch, already hurts just thinking about it).
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Wassa matta, butt hurt too much to post? It's been like like nearly five hours already. Details, we need 'em!
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Wassa matta, butt hurt too much to post? It's been like like nearly five hours already. Details, we need 'em!
I'd provide gory details - but given the new guidelines, I shall refrain ;)
Well, I only had to get one shot on one side (2.4 million CUs) of penicillin --- before it was 1.2 million on each cheek.
It hurt like hell (yes, I know, I would never be able to give birth to a child - I am a wimp)
I do have to go back next Monday and the following Monday to get two more shots (3 rounds total) - I was hoping that one would do it.
I left the UM clinic which was very nicely air conditioned immediately after getting the shot and walked out into the scorching 90+ degree heat --- I very quickly almost passed out (literally) - my legs got numb, feet numb and hands numb) --- I had to sit down on a bench for a few minutes before going to the parking garage to get my car.
So next week, I know to sit in the waiting area for 15 or 20 minutes afterward to avoid feeling that way again.
My ass isn't that sore at all right now --- I've felt worse ::)
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Ugh so sorry Phill, I've had those shots before and they suck.
I hope you have someone coming over tonight that can massage your ass and work away the pain.
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I hope you have someone coming over tonight that can massage your ass and work away the pain.
;)
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Yeah they hurt, but, it only last for about 2 to 3 days @ least that's what I recall, Phil, you'll be better in no time ;D they are a very cruel reminder aren't they :)
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Yeah they hurt, but, it only last for about 2 to 3 days @ least that's what I recall, Phil, you'll be better in no time ;D they are a very cruel reminder aren't they :)
Yes, they are a very cruel reminder -
I told my doc that I think they purposely make them hurt, just to make you remember what brought you there ---- and so you don't come back....
She said it is because they have a treatment that works - so, why try to improve it and make it less painful....
That's easy for her to say...
-Phil (whose ass cheek is still feeling abused)
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I've had plenty of the caulk shots. I find that the less time looking at the thing before it jabs a person, the better. Although honestly mine just don't hurt that badly.
Maybe my ass is the least vulnerable spot.
Anyhow, kudos to you for getting this behind you.
Pun intended.
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I've had plenty of the caulk shots. I find that the less time looking at the thing before it jabs a person, the better. Although honestly mine just don't hurt that badly.
Maybe my ass is the least vulnerable spot.
Anyhow, kudos to you for getting this behind you.
Pun intended.
It actually isn't as sore this time as when I have had them in the past. I think you are right - I should not have looked at the needle prior to her jabbing me.... I probably just got myself worked up. It was only sore for the first hour. It is actually better only getting one prick then it is two (I never thought I would say that) - at least in this case.
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I do have to go back next Monday and the following Monday to get two more shots (3 rounds total) - I was hoping that one would do it.
That took me back to when I did 8 weeks in the VD Clinic back in the UK... ;)
Penicillin injections can be a bit painful, just bite the bullet it will be over soon enough.
Aroha
Jan :-*
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It is actually better only getting one prick then it is two (I never thought I would say that) - at least in this case.
I never thought you'd say that either! (doubt I would!) ;D
Good to hear your butt isn't too sore. Don't look at the needle next time! Try to not clench your cheeks - needles tend to hurt and bruise more easily if the muscle it's going into is flexed. I learned that the hard way.
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you can also take Doxycycline instead ;D
http://www.medscape.org/viewarticle/583767
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you can also take Doxycycline instead ;D
http://www.medscape.org/viewarticle/583767
Thanks Elf -
Yeah, although doxcycline is an option - most of the med providers here prefer to go w/ the hit it hard approach of the 2.4 million units of penicillin - and go the three rounds - while I haven't looked up information/research comparing the efficacy of the two treatments, I think that most providers only go the doxcycline route if there is an issue using the penicillin (i.e. allergies, resistance) - probably also has to do with not having to worry about adherence (as the doxcycline would involve maintaining strict compliance with the dosing schedule and completing all of the scheduled doses on a multiple dose a day x multiple day schedule) ---- I am okay doing the cement butt shots ---- as I know that it hits it strong and hard (and having my butt cheeks hit strong and hard is not necessarily a bad thing, right Ann?) ;D
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(and having my butt cheeks hit strong and hard is not necessarily a bad thing, right Ann?) ;D
Definitely a good thing in your case. Definitely. ;D
Now where did I put my paddle?
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Thanks Elf -
Yeah, although doxcycline is an option - most of the med providers here prefer to go w/ the hit it hard approach of the 2.4 million units of penicillin - and go the three rounds - while I haven't looked up information/research comparing the efficacy of the two treatments, I think that most providers only go the doxcycline route if there is an issue using the penicillin (i.e. allergies, resistance) - probably also has to do with not having to worry about adherence (as the doxcycline would involve maintaining strict compliance with the dosing schedule and completing all of the scheduled doses on a multiple dose a day x multiple day schedule) ---- I am okay doing the cement butt shots ---- as I know that it hits it strong and hard (and having my butt cheeks hit strong and hard is not necessarily a bad thing, right Ann?) ;D
The causative organism of syphilis (treponema pallidum) has for reasons not fully understood never shown evidence of resistance of penicillin. It remains, in clinical parlance, "exquisitely sensitive" to that particular drug.
Where penicillin or it's various derivatives cannot be used, erythromycin is generally the drug of choice.
MtD
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The causative organism of syphilis (treponema pallidum) has for reasons not fully understood never shown evidence of resistance of penicillin. It remains, in clinical parlance, "exquisitely sensitive" to that particular drug.
Where penicillin or it's various derivatives cannot be used, erythromycin is generally the drug of choice.
MtD
Thanks Matty!!
Good info to know -
But erythromycin wouldn't allow them to hit my ass strong and hard right (not to be confused with Strong+Smart ;D ) -- and I wouldn't have this lovely day after effect and glow about me ;)
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Thanks Matty!!
Good info to know -
But erythromycin wouldn't allow them to hit my ass strong and hard right (not to be confused with Strong+Smart ;D ) -- and I wouldn't have this lovely day after effect and glow about me ;)
Erythromycin is not optimal and, in Australia at least, normally reserved for gravid females and those who are hopelessly allergic to penicillin.
Penicillin is the drug of choice for the treatment of syphilis. Even in those allergic to penicillin, allergenic challenge techniques are preferred to recourse to erythromycin.
If you are having trouble responding to penicillin, your doctor might consider prescribing probenicid to augment the treatment.
MtD
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Oh, forgot to mention.....
I did have a slight Jarisch-Herxheimer reaction last night to the antibiotic ---- interesting to learn about, not interesting to have --- fever, chills, and muscle ache....
Basically the syphilis bacteria were exploding --- take that you little M-Fer's!!
The Herxheimer reaction occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment (Source: http://en.wikipedia.org/wiki/Herxheimer_reaction also see: http://www.aafp.org/afp/990415ap/2233.html )
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Oh, forgot to mention.....
I did have a slight Jarisch-Herxheimer reaction last night to the antibiotic ---- interesting to learn about, not interesting to have --- fever, chills, and muscle ache....
Basically the syphilis bacteria were exploding --- take that you little M-Fer's!!
The Herxheimer reaction occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment (Source: http://en.wikipedia.org/wiki/Herxheimer_reaction also see: http://www.aafp.org/afp/990415ap/2233.html )
The Herxheimer reaction is a well documented and entirely expected consequence of treatment. Normally it's an issue for those with primary syphilis and is unusual in more secondary and tertiary cases, though HIV changes all the rules.
MtD
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The Herxheimer reaction is a well documented and entirely expected consequence of treatment. Normally it's an issue for those with primary syphilis and is unusual in more secondary and tertiary cases, though HIV changes all the rules.
MtD
You are right about that Matty - when it comes to la syphilis, HIV infection definitely changes all the rules.... my doc has pointed that out throughout this whole process. I think I only had the minor Herxheimer reaction because my titer isn't exactly out there in the stratosphere (it has been holding steady at 1 to eight) ---- I noticed the muscle ache lasted from around 7pm - 11 pm last night; had a slight fever until around 11:30 - took a couple of Advil - and the fever broke - had some night sweats and chills that woke me up about 4 am - but other than that I'm good to go today.
Doc said yesterday that all lab work from LP was good - except for the FTA-ABS, which was elevated - however, that is to be expected and will show "positive" for life and is not a good indicator of treatment success.
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You are right about that Matty - when it comes to la syphilis, HIV infection definitely changes all the rules.... my doc has pointed that out throughout this whole process. I think I only had the minor Herxheimer reaction because my titer isn't exactly out there in the stratosphere (it has been holding steady at 1 to eight) ---- I noticed the muscle ache lasted from around 7pm - 11 pm last night; had a slight fever until around 11:30 - took a couple of Advil - and the fever broke - had some night sweats and chills that woke me up about 4 am - but other than that I'm good to go today.
Doc said yesterday that all lab work from LP was good - except for the FTA-ABS, which was elevated - however, that is to be expected and will show "positive" for life and is not a good indicator of treatment success.
Specific treponemal assays such as FTS-Abs and TPHA will remain positive for life following infection and provided you were not treated prior to seroconversion.
It's the RPR and VDRL tests which, being non specific, should become non reactive after a successful course of treatment, under ideal circumstances.
But in some poz types a VDRL or RPR test can remain stubbornly reactive at 1/1 or even 1/2 following successful treatment. Syphilis requires particular management, especially in HIV positive folks, to ensure that you are not treated again unnecessarily.
MtD
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But in some poz types a VDRL or RPR test can remain stubbornly reactive at 1/1 or even 1/2 following successful treatment. Syphilis requires particular management, especially in HIV positive folks, to ensure that you are not treated again unnecessarily.
MtD
So true ------ this has been the case with mine - it has been monitored every 6 mos. to 1 year since initial treatment three years ago was holding at 1:2 before deciding that it wanted to climb to 1:4, then to the 1 to eight (where it appears to have gotten comfortable).
Just got off the phone w/ doc's office: Shot #2 is scheduled for next Monday @ 4:30 pm (I think I will have them do the left cheek this time so it doesn't feel left out).
BTW, I have been so meticulous in reporting my status and the various events in this thread so that others perhaps can avoid some of the pitfalls or know what to expect if HIV+ and diagnosed with a new case (or have a previous case and treatment) of syphilis. Also, so many times I see posts in the AM I thread with people worried about their possible HIV exposure, when (as Ann and others say) if you are sexually active it is important to have a regular STD panel done, as syphilis is a major threat and is nothing to be played around with.
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With reference to the Herxheimer reaction it's normally only experienced after the first injection when we expect to see the massive death of disseminated treponemes. Following shots should be unremarkable.
But again, in HIV all the rules are changed.
MtD
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With reference to the Herxheimer reaction it's normally only experienced after the first injection when we expect to see the massive death of disseminated treponemes. Following shots should be unremarkable.
But again, in HIV all the rules are changed.
MtD
Thanks Matty -
I'm hoping that is the case. And, I definitely know to sit down for a bit in the waiting area after getting next week's injection as I do not want to take a chance of passing out (which I came entirely too dayummm close to doin yesterday - it was not a good feelin at all)
Each time I have seen the doc and the doc who did the LP they have remarked about how treatment of syphilis is so difficult in HIV infected persons; how the outcomes are less predictable; and how more is still being learned about it.
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Thanks Matty -
I'm hoping that is the case. And, I definitely know to sit down for a bit in the waiting area after getting next week's injection as I do not want to take a chance of passing out (which I came entirely too dayummm close to doin yesterday - it was not a good feelin at all)
Each time I have seen the doc and the doc who did the LP they have remarked about how treatment of syphilis is so difficult in HIV infected persons; how the outcomes are less predictable; and how more is still being learned about it.
Treatment is always gruesome. I had syphilis when I was 15 and remember the Herxheimer reaction with particular vividity. The fever and headache is not the bad part, it's the sense of impending doom that makes it terrible. :(
I really sympathise with you, darling. :-*
But as I said, HIV has really changed the rules when it comes to syphilis. Since the advent of the Pandemic, we've seen in the developed world a commensurate increase in cases of tabes dorsalis but the same cannot be said for General Paresis of the Insane, the latter being largely restricted to developing countries.
Fascinating stuff. :)
MtD
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Hi Alberche -
Hope your titer goes down ---- the LP procedure itself is not bad at all. They basically give an injection of lidocaine in the area (which stings a little) - then they do the actual puncture (which I did not even feel) - I just laid there and tried to keep my mind at ease (meditation) and kept my breathing relaxed. Immediately after, I didn't feel anything either. It really wasn't until a couple of days later. I would suggest asking your doc (if they do have to do an LP) for a script for some pain pills (like 5 or 10 mg Percocet) - that way you can have it filled and ready to go to be immediately ready to deal w/ the headache if it starts coming on. Both docs involved in my care admit that is where they "dropped the ball." If you can get the headache under control before it gets the upper hand then you should be able to handle it. (They say only 30% get post LP headache and only 5% get it as severe as I had it)
BTW - tomorrow at 3:30 I get my two cement butt shots - the doc hasn't let me know yet if it will be one round or if they will do three (with my titer hanging at 1:8, it may only be one round - and I think the clinical guidelines for syphilis treatment w/ people co-infected w/ HIV has been revised to say just one round of the shots is needed - although, some docs still go old school with it).
Best of luck on your labs - keep me informed - and feel free to PM if you need to ask anything during the process. Ac (one of the members here) was a big source of support for me during my experience - as were many others on the forums.
-Phil
Dear Phil, thanks a lot for your advise, I will tell my doctor about this, and will post my experiences.
Big hugs from this very very bad girl!!!! ;D
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2nd cement butt shot today at 4:45 pm -
It wasn't nearly as bad as last week - of course, I made sure that I sat down for 15 minutes afterward to make sure that I didn't go through what I did last week...
Only one left to go --- and I don't ever want to deal with this dayuuummmm syphilis again.
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I'm happy its almost over for you Phil . I know you have been through enough with this .
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2nd cement butt shot today at 4:45 pm -
It wasn't nearly as bad as last week - of course, I made sure that I sat down for 15 minutes afterward to make sure that I didn't go through what I did last week...
Only one left to go --- and I don't ever want to deal with this dayuuummmm syphilis again.
It's very cold HARD awaking isn't Phil ;D I won't even touch anybody expect my otherhalf Bob, I know better, and so does he, he learned the HARD WAY too about 6 yrs ago, he was very lucky he didn't DX over this ;)
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I don't ever want to deal with this dayuuummmm syphilis again.
For real. Syph is a helluva little bug at any level. My titre is still reactive at 1:16, better than 1:128 when I was hospitalized but still bad, it's left me with a retinal detachment and a bad case of reactive arthritis. The antibodies stay in your body for years and can continue to cause problems even AFTER you've dealt with the infection. Be glad you're taking care of it now before it escalates, because it can very very quickly!
BTW nice Morbid Angel patch on that kitty. ;D
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2nd cement butt shot today at 4:45 pm -
It wasn't nearly as bad as last week - of course, I made sure that I sat down for 15 minutes afterward to make sure that I didn't go through what I did last week...
Only one left to go --- and I don't ever want to deal with this dayuuummmm syphilis again.
Ouuucccchhhh!!! LOL :-) In July, when I got my "cement touch" I had to get in my car and drive back to work from hospital, with no time to wait and rest... kids: do not do this if an adult is not with you!!! I passed stood up the rest of the day.
Otherwise, the painful sensation has its charming side too... kinda pain-pleasure boundary... but I'd prefer not to repeat the experience.
;D
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My doctor just sent me the lab images taken by microscope of my syphilis infection ---- I thought you all would like to see what this nasty little bugger looks like:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/bacteria-pox.jpg)
Looks so harmless --- but don't let the looks fool you!
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My doctor just sent me the lab images taken by microscope of my syphilis infection ---- I thought you all would like to see what this nasty little bugger looks like:
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/bacteria-pox.jpg)
Looks so harmless --- but don't let the looks fool you!
Don't know what all the fuss was about Phil...he is the cutest little Syphy-lus I have ever seen...a big hug will make it all better.. ;)
Aroha
Jan :-*
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I'm sorry you cute little syphilis's died Phil . I know you are grieving right now so take your time before rushing out to get another case of them .
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I'm sorry you cute little syphilis's died Phil . I know you are grieving right now so take your time before rushing out to get another case of them .
LOL - Very funny J- Love Ya!! ;D
(http://i772.photobucket.com/albums/yy8/phildinftlaudy/obamafacepalmfinish.jpg)
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Glad you 2 finally broke up. :) Some relationships don't need to continue...
wolfie
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Glad you 2 finally broke up. :) Some relationships don't need to continue...
wolfie
Thanks wolf -
I actually think Mr. Syphilis could be categorized as a "stalker." I'm thinking about getting a PFA (protection from abuse) order against him. ;)
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Getting the final "cement butt" shot tomorrow ---
Have a busy day --- big project at work, so I will have to fit the shot in during the day, then back to work, then will have to take a conference call at 4:30, while driving to Hollywood, Florida to meet a friend for dinner and the Al Jarreau (7 time Grammy winner) concert at the Hard Rock Casino, Hard Rock LIVE in Hollywood (I got two complimentary tickets)..... so, while my ass will be sore, at least my ears will be massaged with the soothing sounds of Al Jarreau ;D
http://www.hardrocklivehollywoodfl.com/
http://www.youtube.com/watch?v=01cSqCD8x0w
We're in this love together...... which is obviously what my syphilis thought..... dayummmm syphilis!
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Hi Phil, I'm glad that your ordeal is coming to an end & that your sense of humor is returning. I hope & pray that your stalker doesn't return. Hugs from P-Town, Deiby
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Hi Phil, I'm glad that your ordeal is coming to an end & that your sense of humor is returning. I hope & pray that your stalker doesn't return. Hugs from P-Town, Deiby
thanks Deiby --- yeah, it has bee an ordeal, to say the least..... hopefullly my next titer will be a good one ---- doc has already said that with the rule out of neuro, if they see a recurrence, then we will have to explore cardiosyph - which definitely would not be a good thing at all. But, I'm pretty hopeful and sure that the saga is drawing to a close.
One other thing I hope this thread refects is the level of support that is available from these Forums and that getting through many of life's challenges - with or without HIV/AIDS - sometimes requires a sense of humor.
Thanks again for your support and hugs to you from Miami! ---- Phil
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I'm very glad your saga is coming to an end. I wish mine was. I'm having surgery on my eye tomorrow, my left retina has a pretty low chance of reattaching, the surgery is more or less to make sure I can retain the form and shape of the eye without having to have it removed in the future. Please the take the cement butt shots as the path of least resistance, and be glad you didn't get Neurosyph. I am pretty grateful to still have one eye that more or less works, but that never had to happen if I had discovered it sooner like you did.
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I always say that its important to leave your dignity at the office door when seeing your doctor.
Anyone who is sexually active, even using safer sex practices, needs to get at least two full STD panels a year.
Syphilis and other STDs can circumvent the use of condoms, and those diseases can rapidly progress in HIV infected people. I mean CRAZY rapid.
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Hope everything went well today Phil
...and that you have a pillow to sit on -- sounds like a long night :o.
A
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I always say that its important to leave your dignity at the office door when seeing your doctor.
Anyone who is sexually active, even using safer sex practices, needs to get at least two full STD panels a year.
Syphilis and other STDs can circumvent the use of condoms, and those diseases can rapidly progress in HIV infected people. I mean CRAZY rapid.
zactly -- I always fail to understand why HIV doctors don't just routinely do the six month screening for their patients that are sexually active. Actually my current clinic does, but previous doctors have not. They prefer to wait for green puss to appear oozing out of your piss hole.
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wait for green puss to appear oozing out of your piss hole.
Is this abnormal? Wow ---- and I thought it was from the skittles I was eating! Taste the rainbow type of deal and all ;)
Final shot was yesterday. I had a different nurse do it (Sylvia) she was much more gentle with the needle. The other nurses are great, but they try to get the med in quickly, since it is a lot to go in - so, the feeling is a little more - how do you say it? "Impactful." Sylvia wanted to have the dose go in more slowly, which eased the pain somewhat; however, it also meant that instead of the needle being in for a few seconds, it was more like (or at least felt like) a few minutes. Still, it did result in my butt cheeks being a little less sore through the evening. I was able to enjoy the Al Jarreau concert --- it was excellent. I also played some slots before leaving the casino --- went in with $40 and left with $116 --- not a bad evening. Oh, and my "date" paid for my dinner and Coronas.... so, free concert tix, paid dinner and drinks, and $76 win on the slots.... priceless!
I see doc on 10/10 to get lab results - however, this set of labs won't have the titer since it is so soon after treatment and I was actually in the course of the tx when I had labs done --- so, we won't get another RPR result until January most likely.
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zactly -- I always fail to understand why HIV doctors don't just routinely do the six month screening for their patients that are sexually active. Actually my current clinic does, but previous doctors have not. They prefer to wait for green puss to appear oozing out of your piss hole.
My doctor ask me every time I'm in if I have been sexually active , if I have been she does all the test just to make sure I didn't expose myself to anything . Its a great peace of mind knowing your status .
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Well, got my results last month: titles went down from 32 to 8. No need of new cement touchs so far.
Next lab-check on February. I am happy this thing got diagnosed just on time to avoid its stealth progression.
Now, I'll keep being a good boy. I think this has had a big impact in my risk perception, as much as HIV diagnosis did. I am now thinking about all of it.
Dear Phil, Glad to hear your Syph is gone.
Hugs!
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I received my last shot last Wednesday. Maybe I have a high pain tolerance, but they were not near as bad I thought after what people described. I had 2 different nurses inject me and on one occasion a med student who wanted to practice...lol. Afterwards they wanted me to wait for 20 min before I left. I snuck out right away. Had to get back to work. The anxiety was worse than the treatment.
Thangsgiving morning I ran an 8K race with no problems.
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oh, hell....
giant, puss filled bump.
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Thanks Tim..
I was going to bump it but thought that I would appear too self-absorbed and it would border on self-promotion.... and as humble of a person as I am, I could just never bring myself to do it...
;D
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oh, hell....
giant, puss filled bump.
Gurl, you are shameless. This is one nasty STD ridden zombie thread.
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Gurl, you are shameless. This is one nasty STD ridden zombie thread.
Yeah... but if I get another 340,000 or so views I might just have a chance of beating out the "I Love Porn" thread.... just trying to send a message.... From "I Love Porn" to "Dayuuumm Syphilis"....
Zombies with Syphilis -- sounds like a Friday night SyFy movie.
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339,999 to go now. Perhaps a new infection would properly revive the thread and assist with reaching that top pozzie award? ;D
Wolfie
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Ah, syphilis...how I do remember my experience with thee. Clumps of hair in the drain, rashes, and yes - pus filled bumps.
Ever so pretty.
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46 year old looking for 18 - 35 with issues for desperate freaky sex. Those with healthy self esteem please look elsewhere. Driving distance of Cumberland mall, Smyrna GA only.
What, wrong thread?
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46 year old looking for 18 - 35 with issues for desperate freaky sex. Those with healthy self esteem please look elsewhere. Driving distance of Cumberland mall, Smyrna GA only.
What, wrong thread?
I'm gonna have to my criteria, not one single PM for my previous desire for a tall, sinny dude in Ohio. I'm expanding to the tri state area (WVA, OH, KY) for ANY man. 18 - 80. If arriving from KY, please put on your cleanest dirty clothes. 8)
Wolfie
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WANTED:
Tall, well-built men with good
reputation who can enjoy the beauty of pea-
cocks and who appreciate a good fuc-
schia garden, classical music and tal-
king without getting too serious.
But please only read lines 1, 3 and 5.
Ps./ Let's meet at the Ritz. Wednesdays after 2pm. Bring your own poppers.
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my previous desire for a tall, sinny dude in Ohio.
A Freudian slip of bible-belt proportions!
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Thanks everyone - only about 338,000 more to go.....
11,200 posts on the wall
11,200 posts
Put one up
Just say "shut up"
11,201 posts on the wall
11,201 posts on the wall
11,201 post
Put one up
Just say "shut up
11,2012 posts on the wall
[SUNG TO THE TUNE OF '99 bottles of beer on the wall]
Oh, BTW - Tim and Wolf... some how the men that you all have been sending for took a wrong turn (I guess they had bad batteries in the Garmin), anyway... they have been entertaining me for the past few hours... Oh, looks like another one is driving up...... in a tractor (hmmmmm, nice clean dirty clothes, oh and look - he has Kentucky plates on the tractor.... go figure)
Time to play hostess some more..... BRB
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Aw shudduppayouface!
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A Freudian slip of bible-belt proportions!
Um, a sinny skinny dude would be awesome.
Wolfie
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Ah, syphilis...how I do remember my experience with thee.....
well I have found memories of syphilis, but it was well over 29 to 32 ago,
and those dam cememt butt shots aren't fun :(
when I was Station @ Nav-Stay Philly, PA
(now I know why I hated Philadelphia, PA so much)....no pun intended Miss P ;)
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I just re read this entire thread as I was diagnosed with syph in November...
I got a call from the NYS Health Dept saying that someone who had tested positive for syphilis listed me as someone who he had exposed. The case worker said there was a small chance of me catching it since he was diagnosed as late latent and was relatively non infectuous.
I visited the clinic, they drew blood and gave me a penicillin shot just in case. A week later they called me and said I had tested reactive and needed to come in the next two weeks for 2 more shots. At the conclusion of the 3rd shot I asked for a letter for my ID doctor documenting the treatment. I also asked them for what my blood tests actually read.
They said the RPR was non reactive, therore no titer, but the FTS -Abs was reactive. I had never been diagnosed or treated before, I never had any symptom s I noticed...no chancre, no rash etc.
From what I understand the FTS -Abs will test positive forever, and if since my RPR was non reactive last time unless newly infected it will continue to be non reactive....What is the evidence of successful treatment?
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First post - be nice!
I was co-infected with syphilis when I tested HIV positive in October last year. I have to say I was absolutely bricking it when I went for my first set of penicillin shots - the nurse had told me it would hurt like hell. I've coped pretty well with all the new crap you have to deal with when you test positive, but lying on the gurney with my trousers yanked down, I actually thought I was going to cry and ask for my mum.
What a fuss over nothing. I mean, yes, the shots are not exactly fun, but they weren't any more painful that most of the other injections I've had. I had two shots every week for three weeks, and only one of them was at all painful - and that was because I was unconsciously tensing my buttock and the needle ended up in a funny place (we had to try that one again).
The pain actually came about 8-12 hours later. Sitting down was a slightly more delicate procedure than usual. That said, the pain reminded me of the delayed onset muscle soreness you get after doing some particularly punishing squats in the gym. Uncomfortable yes (and highly annoying that, just as it finally subsided towards the end of the week, I had to go and have it done all over again), but not by any means unbearable.
So, I suffered tremendously, but not because of the actual shots, but because of the fear that a nurse (who really should have known better!) had engendered in me for the week leading up to them!
Just thought anyone who was about to have treatment for this might appreciate a few words of reassurance that it won't necessarily be awful.
Benji :-)
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Hi there, Benji! Welcome to the forums. Good post; it will be of value to anyone who goes thru this in the future.
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First post - be nice!
I was co-infected with syphilis when I tested HIV positive in October last year. I have to say I was absolutely bricking it when I went for my first set of penicillin shots - the nurse had told me it would hurt like hell. I've coped pretty well with all the new crap you have to deal with when you test positive, but lying on the gurney with my trousers yanked down, I actually thought I was going to cry and ask for my mum.
What a fuss over nothing. I mean, yes, the shots are not exactly fun, but they weren't any more painful that most of the other injections I've had. I had two shots every week for three weeks, and only one of them was at all painful - and that was because I was unconsciously tensing my buttock and the needle ended up in a funny place (we had to try that one again).
The pain actually came about 8-12 hours later. Sitting down was a slightly more delicate procedure than usual. That said, the pain reminded me of the delayed onset muscle soreness you get after doing some particularly punishing squats in the gym. Uncomfortable yes (and highly annoying that, just as it finally subsided towards the end of the week, I had to go and have it done all over again), but not by any means unbearable.
So, I suffered tremendously, but not because of the actual shots, but because of the fear that a nurse (who really should have known better!) had engendered in me for the week leading up to them!
Just thought anyone who was about to have treatment for this might appreciate a few words of reassurance that it won't necessarily be awful.
Benji :-)
You are right Benji --- they aren't awful - not something I want to get again - I'd rather have something else injected in my ass (with full disclosure, of course ;D ) --- The LP wasn't even painful.... it was the post lumbar puncture headache I got that was excruciating.
Oh, and regarding the success of treatment that was posted by bufguy - as you have seen from this thread --- once a pozzie gets diagnosed with the syph - it is a good idea to make sure the doc is adding to your labs a RPR titer about every 6 months to make sure that it isn't creeping up. And, of course, if you are sexually active than a regular STD panel is definitely in order - on a regular basis.
Some people clear the syph and don't have a recurrence. Unfortunately, I was not one of those people. The doc and I are both hopeful that we have finally got it under control. I get my next labs the end of March and will find out in early April if we have been successful this go round. (This have been my longest period between labs since getting diagnosed, as doc and I decided that we would see how every 6 months goes since I have been staying UD, am med compliant, and my triglycerides are under control.
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Personally I didn't enjoy syphilis but that's just me .
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Personally I didn't enjoy syphilis but that's just me .
Jeff, I don't think anyone in here ever enjoyed syphilis past or present , @ least I hope not :o
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I never got the benefit of having an STD before the AIDS. Just like everything I do in life, I go full force all at once.
As far as the headaches and the LP, I remember them telling me I would probably have one after they were confirming my diagnosis for Crytococcus. I remember thinking; really, I've been complaining of the worst migraines ever for several months now so I'm sure I can handle it. After about the 10th one, I hardly even felt them.
Wolfie
How many posts to go now?
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How many posts to go now?
One less now.
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Jeff, I don't think anyone in here ever enjoyed syphilis past or present , @ least I hope not :o
I knew I should of thrown in one or two of those smiley things .... :) :) :) or three .
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I knew I should of thrown in one or two of those smiley things .... :) :) :) or three .
"gigles"
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I think like 320,000+ posts to go....
But I am moving up in the rankings!
My mother is going to be so proud of me when I tell her that my "Dayuuumm Syphilis" thread is one of the most popular.... She loves it when I achieve great things.
Of course, getting teh AIDS wasn't considered one of my greater achievements by her -- go figure..... I don't know why... I mean, after all, I am the first person in the immediate and extended family to have it (at least that I know of), that should at least count for something? :: hhhmmmphhh...
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I think like 320,000+ posts to go....
But I am moving up in the rankings!
Phil if your "Syphilis Titers" remain as low as mine ( I haven't had Syphilis in over 28 yrs.) you doing just fine :D
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I was always taught to make my goals attainable...
so, instead of trying to beat out "I Love Porn" which has 352,000 views (to my 11,000+ views for "Dayuuummmm Syphilis").... I am going to try to beat out "Chantix" - which has 400 replies.... I only need 129 more repliesto beat it and be the top ranked thread for replies
If you won't do it for me, do it for my mother.... she will be so proud knowing that I have achieved something meaningful in my life.
:D
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If you won't do it for me, do it for my mother.... she will be so proud knowing that I have achieved something meaningful in my life.
:D
:-[ Phill honey, are you sure your doing ok dear, I'm a little concerned over why teh Dayumm Syphilis, is something you would even want to share with your dear old mother, unless I'm totally missing out on something here....I don't get it Phill splain lucy? :o
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I so want a retro STI (there, +1 post *)
- matt
* Is that helpful?
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Chancre? YOU brought her.
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Chancre? YOU brought her.
Is Phil tying to tell us in a round about way that teh Dayummmm Syphilis has returned for a encore performance and he's to shy to tell any of us :D
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Lame syfy joke of the day:
"Father Reilly," the mother superior reported, "I think you should know that there's a case of syphilis in the convent."
"Oh, good," the priest replied. "I was really getting tired of the Chablis."
Ba-dum-Ching!
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I am posting this here (http://www.nydailynews.com/entertainment/music-arts/adam-lambert-queen-lead-singer-filling-shoes-idol-late-freddie-mercury-article-1.1016781) because it's directly related to AIDS.
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The nun joke is gud 8)
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I was always taught to make my goals attainable...
so, instead of trying to beat out "I Love Porn" which has 352,000 views (to my 11,000+ views for "Dayuuummmm Syphilis").... I am going to try to beat out "Chantix" - which has 400 replies.... I only need 129 more repliesto beat it and be the top ranked thread for replies
If you won't do it for me, do it for my mother.... she will be so proud knowing that I have achieved something meaningful in my life.
:D
Talk about mommy issues. Phil, you are beginning to scare me. Just don't bring her the knife. ::)
Joe
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Gratuitous post to increase reply count. 8)
Joe
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Dayummmm Syphilis is only 232 views behind:
Matty the Damned's Numbers are in --UPDATED--
Started by Matty the Damned
11,921 Views
and 138 replies behind:
But He Looked So Healthy! Australian Man Charged With "Knowingly Spreading HIV"
Started by Matty the Damned « 1 2 3 ... 9 »
420 Replies
I'm sure Matty won't mind Syphilis rising to the top - so to speak.... let's make it happen. ;D
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I have decided that going forward I am going to support the "Nutrition Wumpette's Style" thread instead. The goal is to reach a thousand posts by end of March.
Bye bye SyFy thread! :P :P :P
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I have decided that going forward I am going to support the "Nutrition Wumpette's Style" thread instead. The goal is to reach a thousand posts by end of March.
Bye bye SyFy thread! :P :P :P
You have fallen into the trap that is gripping America -
the syndrome that is making our children obese -
JUNK FOOD and BAD NUTRITION!!!!!!!
While syphilis runs rampant --- rampant I tell you - rampant!
Support "Dayummmm Syphilis" NOT "Nutrition Wumpette Style"
Otherwise, you shall leave me no choice then to attempt to do what ATT tried to do to T-Mobile - and that is, ask the moderators to merge - yes, merge - the two threads...... so, it will be Nutrition - Dayummm Syphilis Style"
And, I don't know about you...... but that just doesn't sound right --- and leaves a "bad taste in my mouth."
- Phild (who knows a little somethin' somethin' about having a "bad taste in his mouth")
::)
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Project Greenlight should totally work on making "Zombies With Syphilis".
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Had I viewed this educational musical production, I might have avoided le syphilis:
http://www.youtube.com/watch?v=BPKAe0IiDsg
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I have decided that going forward I am going to support the "Nutrition Wumpette's Style" thread instead. The goal is to reach a thousand posts by end of March.
Bye bye SyFy thread! :P :P :P
TEAM PHILD!
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TEAM PHILD!
Thanks for the support Tim!!!
And don't worry, I got your back when you call on me to push up the counts on any of your threads ;D
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DAYUUUMMMM DAYUUMMMM DAYUUUMMMM!!!!
So, I just got back from the ID doc --- best lab counts ever (see other thread) -
CD4s 1041, VL=UD, Triglycerides 136 (normal), LDL cholesterol 103 (normal), HDL cholesterol 42 (normal)
NOW, the bad news....
My RPR (syphilis) titer has went back up to 1:16.... Health Department has already contacted the doc and wants to confirm I am in treatment for it..
Doc is at a loss - as the lumbar puncture indicated no neurosyphilis. As detailed in previous posts in this thread - I had initial treatment with cement butt shots (one round) a couple of years pre-HIV; had recurrence when I seroconverted - received three rounds of cement butt shots; then had another recurrence, got LP and another three rounds of butt shots (that last go-round was in September 2011)...
Doc is going to check with some of her "syphilis guru" colleagues and try to see how to approach this - these are what she sees as possible options:
1) Do nothing - as I may just be one of those people whose RPR is always going to fluctuate between 1:4 and 1:16;
2) Do another 3 rounds of cement butt shots; or
3) Admit me to the hospital and put me on 14 days of IV antibiotic therapy...
At any rate, the waiting game has once again begun, as we shall wait until she confers with her colleagues and until June 20th - when I see her again and we review that round of labs to see if the RPR has went down (which would indicate a fluctuating RPR), if it has went sky high (which would indicate a new or re-infection - which is highly unlikely as I have not been sexually active), or if it has risen slightly which means a more resistant strain that either needs the butt shot treatment or the more aggressive hospitalization.
DAYUUUMMM SYPHILIS! This is getting real old, real fast. Very frustrating to say the least.
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DAYUUUMMMM DAYUUMMMM DAYUUUMMMM!!!!
So, I just got back from the ID doc --- best lab counts ever (see other thread) -
CD4s 1041, VL=UD, Triglycerides 136 (normal), LDL cholesterol 103 (normal), HDL cholesterol 42 (normal)
NOW, the bad news....
My RPR (syphilis) titer has went back up to 1:16.... Health Department has already contacted the doc and wants to confirm I am in treatment for it..
Doc is at a loss - as the lumbar puncture indicated no neurosyphilis. As detailed in previous posts in this thread - I had initial treatment with cement butt shots (one round) a couple of years pre-HIV; had recurrence when I seroconverted - received three rounds of cement butt shots; then had another recurrence, got LP and another three rounds of butt shots (that last go-round was in September 2011)...
Doc is going to check with some of her "syphilis guru" colleagues and try to see how to approach this - these are what she sees as possible options:
1) Do nothing - as I may just be one of those people whose RPR is always going to fluctuate between 1:4 and 1:16;
2) Do another 3 rounds of cement butt shots; or
3) Admit me to the hospital and put me on 14 days of IV antibiotic therapy...
At any rate, the waiting game has once again begun, as we shall wait until she confers with her colleagues and until June 20th - when I see her again and we review that round of labs to see if the RPR has went down (which would indicate a fluctuating RPR), if it has went sky high (which would indicate a new or re-infection - which is highly unlikely as I have not been sexually active), or if it has risen slightly which means a more resistant strain that either needs the butt shot treatment or the more aggressive hospitalization.
DAYUUUMMM SYPHILIS! This is getting real old, real fast. Very frustrating to say the least.
1/16 eh?
Hmmm. You definitely need a syphilis guru.
Just one observation, as far as I know there aren't any "resistant" strains of syphilis. Precisely why it's so hard to treat in some HIV positive people is a bit of a mystery, but it's not due to T. Pallidum developing resistance to the penicillin.
As far as I know.
MtD
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1/16 eh?
Hmmm. You definitely need a syphilis guru.
Just one observation, as far as I know there aren't any "resistant" strains of syphilis. Precisely why it's so hard to treat in some HIV positive people is a bit of a mystery, but it's not due to T. Pallidum developing resistance to the penicillin.
As far as I know.
MtD
Well, that makes me feel better about there being no resistant forms of syphilis -
Doc is completely puzzled as to why I am not able to clear it... and why the titer keeps going up..
I know that I am probably making my way (if not already there) to the top of the Dept of Health's "hit list" or Top 10 Most Wanted for Syph...... If I was whoring around like I used to, I wouldn't be as frustrated, kind of scared, and baffled..... but, there just seems to be no reason to explain why this dayuumm thing keeps wanting to stick around... I mean, I'm really not all that nice of a guy (I just play one on TV).
As much as I joke about the situation - to keep me sane throughout this process - it is also becoming a bit unnerving. Leave it to me to be one of those rare people who can't get rid of a nasty bug that most of civilized society is able to clear with a shot or two or three..... If I get the shots again, it will be the fourth time in about 7 years (3 times in 3 years) that I have had to go there. UGGGHHHH.
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There are resistant strains of Syphilis for sure, although I think it never loses sensitivity to Penicillin for some odd reason. Anyway sorry to hear the titer has gone up Phil. Don't balk to go into the hospital if that's what needs to be done.
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Hmph. I call bullshit. You're conspiring with your syphilis to increase the length and views of your pet thread.
What an attention whore! You'll do anything for attention, won't you.
Seriously though, sorry to hear this is continuing to be a problem.
Matty, shame on you. ::) A quick google would tell you that there are indeed some resistance issues, particularly resistance to azithromycin. There have been resistance issues concerning syphilis going as far back as the early to mid-20th century. Just have a little lookie here (http://scholar.google.com/scholar?hl=en&q=%22+resistant+syphilis%22&btnG=Search&as_sdt=0%2C5&as_ylo=&as_vis=1).
Penicillin is still effective, which kinda surprises me. :o
Phil, I seem to remember one member (years ago, can't remember who) being treated intravenously for two weeks but he didn't have to stay in hospital, they gave him some sort of portable pump that was strapped to his torso. I think it's similar to an insulin pump that some diabetics use. If they decide you need the two week treatment, ask if this pump thingy is available.
It would suck if you'd have to sit around a hospital for two weeks because of this. It's bad enough hanging out in a hospital when you're feeling ill, but it would be torture to have to do it when you feel good.
It sounds like you're in good hands, so try to not let this stress you out too much. I'd say "keep us posted" but I know you'll be aiming for another six pages, so no worries there. ;D
Congrats, btw, on joining Miss PeePee in the 1000+ club. :)
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Phil, so sorry to read this. I hope your doctor and some "guru" can come up with a plan that's workable. Be thinking of you. :-*
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I was treated at home for two weeks with a portable pump. I even learned how to change the bags and batteries. Still had to have a nurse cone in and change the iv injection site every day, but at least I could go get groceries and stuff. The alarm that went off when the bag was low or tubes got linked was annoying.
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Phild,
I have only words of support to provide you. There's nothing quite so frustrating as a physician who is scratching his head and doesn't know what to do next. Definitely sounds like it is time to engage a subject matter expert. The shots just don't seem to be clearing it up. But as least you ruled out neurosyphilis already.
Hugs,
Henry
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Sandy Syph: "Excuse me young man, can you tell me where I might find the Slutfest Ball?"
;D
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Sorry this happening Phil . I know very little about the subject except for that the cement shots worked for me when I was a lad with the spots .
I also vaguely remember my docs saying my titers or RPR had started climbing at one point but it went back down to whatever the exceptable level is . I'm hoping the same happens for you , best of luck buddy .
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bump - matt
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Dayummm... I think Florida (http://www.youtube.com/watch?v=_e08iD26Rj8) just found out she got Syphillis too!
Hope you and Florida get better Phil ;)
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Can anyone tell me if gonorrhea can be recurring in hiv?
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Latest response from my doctor to an email I had sent her regarding the status of the dayummmm syphilis....
"Hi – well, I spoke with Jose Castro, who is the director of the DOH STD clinic here in Miami.
We had an interesting discussion, and I compiled all of your serological and CSF findings since 2010 for him to have a look at.
Awaiting his response, will let you know when I hear back from him.
Susanne"
And the follow-up once she got his response:
"OK! I spoke with Jose after he reviewed the info.
He does not feel that the 1:16 is different enough from 1:8 to warrant additional therapy right now, and agrees that the CSF findings were not concerning.
He recommends to check again in July 2012 and see where you are at that point.
We had a long conversation and I can talk with you more about this at our next appt.
Best,
Susanne"
So the saga continues.... doesn't seem like I will no anything until I see the doc on June 20th.
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Hi Phil!
I`ll also have a syph control next month. Apparently things should be OK, let's see what it comes from it. I guess no more cements!!!!
Glad you are doing well too!!
Kisses!
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So, my inquiring mind wanted to know and I followed up via phone with my doctor today ahead of my scheduled appointment w/ her next week regarding the outcome of the RPR.
She reports that the RPR is back down to 1:4 - which is acceptable.
We will continue to make it a regular part of my labs - to monitor it as she reports that I may be one of those "lucky" rarities who will have occasional elevations in it and that if the elevations do not regulate and go down on their own, I will have to undergo further treatment.
How long will this go on?, I asked....
She said that from talking to her colleagues that are experts in this area - this may be a lifelong thing... She actually says that she is going to have one of her colleagues at my appointment next week, as they want to talk with me and get my permission (via signature) to further study my case as the incidence of this occurring is quite small. She said it has nothing to do with resistance and there are researchers who are still trying to figure out why this occurs in the rare instances when it does.
As far as being infectious, she says that all of the research (which is limited, thus the reason they want to include me in monitoring and studying it further) is that the levels never go up to a point that makes it infectious to others... however, they still don't know if the back and forth in elevation causes adverse affects to the brain, heart, or other organs that are typically impacted by syphilis.
So, while I am happy that the RPR has come down, I am not feeling good about having this as an ongoing issue..... Leave it to me to be "syphilis' special patient."
I wonder if I could get Lifetime to make a movie about this? I'm thinking maybe Jeff Goldblum could play me; Cuba Gooding Jr. my partner/ex-partner; Sigourney Weaver my doctor; and perhaps, throw in a cameo appearance by David Spade as Ms. P...... Just thinking out loud here ;D
That all said, at least now I know why I can't seem to find any type of information online or elsewhere that comes similar to my case. I'm kind of wishing that Dr. House M.D. was real.... of course, Omar Epps (ummm ummm ummm) would be an added benefit of having the Dr. House team investigate my case.
Ok, I haz ranted and vented enough.... back to our regularly scheduled programming.
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Dayummmm syphilis is right! I just had my first RPR come back positive today with a titer of 1:16.
What do the different titer levels mean?
One penicillin butt injection down, 2 to go. Makes me never want to have sex ever again.
-Kevin
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One penicillin butt injection down, 2 to go. Makes me never want to have sex ever again.
-Kevin
Yep, it's been almost 4 years since my last sex encounter. since my Dx, I've become very afraid of all STDs, not only HIV. Seeing this thread sometimes puts me in paranoid state.
The only good thing about being "out of service" for so long, is that at least I don't need regular check ups, or having fear that a thing like Syph sneaked in.
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What do the different titer levels mean?
Hi Kevin,
Just to answer your question about syphilis tests levels (or titers as they called in literature). These are results of quantitative serologic tests that show the lowest concentration at which syphilis antibodies are still detectable (i.e., yield a positive reading). Each next titer represents a twofold dilution, e.g. the first reactive one of 1:1, and then: 1:2, 1:4, 1:8, 1:16, 1:32 and so on.
It is more difficult or impossible to link the titer to disease stage, though, I have read a paper that stated the seroreactivity usually reaches a titer of at least 1:4 in primary syphilis, and rises usually to 1:32 or more in secondary or early latent syphilis.
Even after treatment the titers will take some time to get lower or become nonreactive (if ever). However, failure to achieve a fourfold decrease in titer within six months after treatment in primary or secondary syphilis suggests a treatment failure and/or reinfection, and warrants reevaluation of the case.
I hope this helps.
Nickd.
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So, after the RPR titer holding at:
1:4 11/16/12
1:4 02/18/13
It has jumped to
1:8 09/20/13
I see the ID doc 10/16/13, however, we will probably not treat as 1:4 and 1:8 seem to be my syphilis bouncing ball (almost a pun) "norm."
Two different colleagues of my doc have looked at my case and are tracking my results along w/ some others as they try to figure out why some of us pozzies don't seem to clear this and the titer tends to bounce around....
If it follows its pattern, it should drop back to 1:4 on the next round of labs....
Dayummm syphilis.
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Dear Phill,
I'm my last two controls end of 2012 and mids this year, my RPR has repeated the same results (I don't remember the figures, but they were not as low as expected) the fact is my doc did not give too much importance to this, and let any decision depending on results of the next screening.
I received treatment in October 2011 and in the first year the tites lowered a lot, but since then, they do not get any lower. I'll have next visit on December, so let's see what happens. I'll keep you posted.
Take care,
:-)
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6 years after my initial post and my RPR titer still comes back reactive. However, it is finally down from 1:4 to 1:1.