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Author Topic: Boston trip  (Read 4556 times)

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Offline OzPaul

  • Member
  • Posts: 415
  • 40 year, Long Term Survivor/LTNP
Boston trip
« on: November 09, 2006, 05:43:48 pm »
Hi Everyone

I'll be thinking of our great big Forum family this weekend as I make another trip back to Boston from my home near Melbourne, Australia to participate in Bruce Walker's 'elite controller'  study at Harvard.

Though I have been very blessed these past 25 years and have not ( thus far) become ill or needed meds, I do not take these blessings for granted. As I wing my way back to the USA and while I undergo apherisis and donate a ton of white blood cells, I carry the words and hopes and aspirations of many with me. I hope and pray that this study in some way may be able to help find a key to unlock the mystery of HIV and thus help the cause of developing a vaccine or cure.

There are several other members here at the forums who participate in this study. For those of you who don't know about this study, here is the link.

http://www.mgh.harvard.edu/aids/hiv_elite_controllers.asp
 
I'll post again as I find out any information that I'm able to share once I return from Boston.Thanks for your continued support.

With best regards for the 'family'

Paul
Logged

Offline Longislander

  • Member
  • Posts: 2,489
Re: Boston trip
« Reply #1 on: November 09, 2006, 05:45:37 pm »
Safe journey buddy, and thank you.
Logged
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Blixer

  • Member
  • Posts: 712
Re: Boston trip
« Reply #2 on: November 09, 2006, 05:49:11 pm »
Best of luck on your trip to Boston and I know we will all be looking forward to any insights you can share.
Logged
David
Diagnosed 1/9/06
8/27/2007 CD4 598, 29%, VL 58 (72 wks)
11/19/2007 CD4 609, 30%, VL < 50 (84 wks)
2/11/2008 CD4 439, 27%, VL <50 (96 wks)
5/5/2008 CD4 535, 28%, VL <50 (108 wks)
10/20/2008 CD4 680, 28%, VL <50 (132 wks)
Changed to Atripla in 2012
1/14/2013 CD4 855, 35%, VL <40

Offline Teresa

  • Member
  • Posts: 1,755
Re: Boston trip
« Reply #3 on: November 09, 2006, 05:58:09 pm »
Have a safe trip!

Thank you so much!

Hugs
Teresa
Logged
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 34,126
Re: Boston trip
« Reply #4 on: November 09, 2006, 06:04:03 pm »
Good to hear from you, Paul. Have a safe trip. Looking forward to reading your report when you're back home.

Cheers,
Logged
Andy Velez

Offline Eldon

  • Member
  • Posts: 2,664
Re: Boston trip
« Reply #5 on: November 09, 2006, 09:40:29 pm »
Hey Paul,

Have a safe trip!


Make the BEST of each Day!
Logged

Offline joemutt

  • Member
  • Posts: 1,167
Re: Boston trip
« Reply #6 on: November 09, 2006, 11:35:23 pm »
Hi Paul, Have a safe trip and help find a solution against that bug, lol
 :-*
Logged

Offline Queen Tokelove

  • Member
  • Posts: 6,031
  • Smokey the Smurf
Re: Boston trip
« Reply #7 on: November 10, 2006, 02:50:26 am »
Have a very safe trip....I'll be thinking of you and the good things you are doing on behalf of us. I hope I said that right. Keep us posted...
Logged
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

Offline Longislander

  • Member
  • Posts: 2,489
Re: Boston trip
« Reply #8 on: November 10, 2006, 09:31:26 pm »
right as rain, Queen ;D
Logged
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Queen Tokelove

  • Member
  • Posts: 6,031
  • Smokey the Smurf
Re: Boston trip
« Reply #9 on: November 10, 2006, 09:51:29 pm »
 :-*  Thanks Long....
Logged
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Boston trip
« Reply #10 on: November 12, 2006, 09:24:07 am »
Hello Paul,

Wishing you the very best. Have a safe trip !



Ray
Logged
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline Razorbill

  • Member
  • Posts: 622
Re: Boston trip
« Reply #11 on: November 12, 2006, 09:40:25 am »
Thank you Paul, for your long travel and getting stuck to help others.  If you haven't been, don't miss the Aquarium and the Isabella Stewart Gardiner Museum.
Logged

Offline OzPaul

  • Member
  • Posts: 415
  • 40 year, Long Term Survivor/LTNP
Re: Boston trip
« Reply #12 on: November 12, 2006, 03:43:28 pm »
Thanks for your good wishes everyone !!!

I arrived last night at 11pm. It was a good and eventful journey to Boston. Although it was a long trip I only had four plane changes which all went like clockwork, no glitches, no drama.

Monday morning I have my physical and blood screening then I'm off across the river to meet with  Dr.Bruce Walker.
Tuesday at noon I make my blood donation. It takes about 2 hours. the procedure is called leukapherisis My blood is taken  then spun. I get back my red blood cells, they keep all the white cells. about 2 billion of them. These are then given to researchers who do their analysis and store some for further future study. I plan to eat really well (even better than usual) to give them the best cells I can !!

I'll start a new thread with the info I find out and that I'm allowed to share.

Best wishes.

Paul
Logged

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 34,126
Re: Boston trip
« Reply #13 on: November 12, 2006, 04:54:45 pm »
Speaking of eating well, Paul, if you aren't already familiar with them, you might try the great ham sandwiches at Durgin Park Inn down in Feniel Square (spelling?) and the seafood at Jimmy's is pretty great too.

Cheers,
Logged
Andy Velez

Offline FiercenBed

  • Member
  • Posts: 183
Re: Boston trip
« Reply #14 on: November 12, 2006, 06:21:06 pm »
can i have some of those white cells? :)
Logged
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