Welcome, Guest. Please login or register.
May 11, 2021, 05:47:36 am

Login with username, password and session length


Members
Stats
  • Total Posts: 759576
  • Total Topics: 64409
  • Online Today: 244
  • Online Ever: 4912
  • (November 13, 2019, 02:56:14 am)
Users Online
Users: 2
Guests: 218
Total: 220

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Scottish man age 25 dying from AIDS-related illness  (Read 1293 times)

0 Members and 1 Guest are viewing this topic.

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 17,049
  • Twitter @JimAllenDublin
    • HIV Lessons
Scottish man age 25 dying from AIDS-related illness
« on: January 15, 2020, 07:13:37 am »
Tragic to read this, glad the story was shared to highlight the issue of late testing. It is sad to say that it's not a unique situation. Far better availability, preferably free of charge and more routine HIV/STI screenings are certainly needed.

Full story: https://www.thecourier.co.uk/fp/news/local/fife/1076252/kirkcaldy-man-25-with-aids-fights-for-life-having-not-known-for-years-that-he-had-hiv/

In Short:
Quote
Ross Scott of Kirkcaldy, who is just 25, is being treated in a hospice for AIDS (acquired immune deficiency syndrome) having not known for years he had been infected with HIV (human immunodeficiency virus).

Nathan Sparling, chief executive of HIV Scotland, said Ross’s case was “quite unique” because most people with HIV manage to live long-term with the disease thanks to drugs which prevent the virus from replicating in the body.

However, he said without prompt diagnosis, treatment did not always work.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Marcanthony

  • Member
  • Posts: 49
Re: Scottish man age 25 dying from AIDS-related illness
« Reply #1 on: January 15, 2020, 04:59:16 pm »
This is so sad to read. Really struck a cord with me, as this could have happened to me. I was late, very late with PCP etc.
Just sheer luck for me that a doctor suggested a hiv test and was treated quickly. I’d been sick for years before and like this guy, fobbed off constantly with different illness.

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 17,049
  • Twitter @JimAllenDublin
    • HIV Lessons
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline nethan1621

  • Member
  • Posts: 20
Re: Scottish man age 25 dying from AIDS-related illness
« Reply #3 on: February 20, 2021, 04:07:42 pm »
This is sad to hear . I dont know why its happening kind of unfortunate things. Specially living in a better country,  better care and access, with family support, its a such unfortunate not to diagnose at early stage.RIP , he is not in pain anymore.

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 17,049
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Scottish man age 25 dying from AIDS-related illness
« Reply #4 on: February 20, 2021, 04:10:05 pm »
People don't test regularly and there is a lack of access to services.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Loa111

  • Member
  • Posts: 249
Re: Scottish man age 25 dying from AIDS-related illness
« Reply #5 on: March 03, 2021, 07:37:33 am »
Very sad to hear & shocking he died. I see he was DX'ed in 20017 & died in 2020, that's 3 years...
I am wondering was he an unlucky one who did not respond to treatment out of thousands of advanced DX people who do respond?

Makes me feel very lucky & fortunate when I was DX'ed with a very advanced case that treatment worked for me & I fully recovered. I could have been like this poor guy!

I incorrectly thought in this modern age that everyone would respond to treatment if DX'ed late.


Offline leatherman

  • Member
  • Posts: 7,857
  • Google and HIV meds are Your Friends
Re: Scottish man age 25 dying from AIDS-related illness
« Reply #6 on: March 03, 2021, 11:46:09 am »
I incorrectly thought in this modern age that everyone would respond to treatment if DX'ed late.
none of these articles mentioned if this man had gone onto ARVs or not.

while ARVs can often produce the Lazarus effect (I was one of those people - twice!), many times though an extremely late diagnosis just doesn't leave enough time for someone to recover. My 2nd late partner was hospitalized in mar 08 after a flu in Feb that he "just couldn't shake". He was dead by May 1. :( He had already been so ill (although asymptomatic until that flu) with HIV and non-Hodgkin's lymphoma that there wasn't enough time for the ARVs to give him a chance. :(

but my partner is not the only one. This article from 2018 discusses the nearly 7000 people a year who still die of AIDS in America    https://www.poz.com/article/truth-about-the-7000
leatherman (aka mIkIE)

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 17,049
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Scottish man age 25 dying from AIDS-related illness
« Reply #7 on: March 03, 2021, 11:54:32 am »
Yeah.

Sadly I was notified last Thursday of another young person who passed away. I had been chatting with their partner for a while and offering support. Well, emotional support, someone to talk to.

Diagnosed late, so AIDS, multiple opportunistic infections and simply too much damage had been done or not enough time to recover.  :(

Quote
This article from 2018 discusses the nearly 7000 people a year who still die of AIDS in America

Yup and looking at 2018 for EU we also had too many people diagnosed late (53%), so an increased risk of ill health, death and onward HIV transmission. Underreporting of deaths remains an issue in the EU but there were at least 822 reported. https://www.ecdc.europa.eu/sites/default/files/documents/HIV-annual-surveillance-report-2019.pdf
« Last Edit: March 03, 2021, 12:01:47 pm by Jim Allen »
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

 


Terms of Membership for these forums
 

© 2021 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.