How can I help my case manager help me?

[zach]

First steps towards transfering medical... she did not have her shit together for our appt.

[zach]

Labs done, forms filled out, when results are get in to see doc, meds should follow

If Atlanta will refill for my son tomorrow, I think I'll be ok, if they don't

Return of the viral load

Flaming hoops of death, I swear they just want to see us jump

[bmancanfly]

Good luck.

It's never a bad idea to let people know what meds you are on.  Sometimes people have extras. 

[Wade]

Wishing you the best Zach, things always have a way of working themselves out.

That's a good back up plan from the BMan, there seem to be plenty of members not far away from you.

[OneTampa]

Hope all goes well Zach.

Best,

OT

[zach]

Met my new doc, got results from my labs... back down to 170 something


I'm tired of caring about it, I take my meds, that's all I can do... beyond that, it is what it is

They claim I'm in the pipeline for meds, not gonna hold my breath on that though

The reaction annoys me is all, OMG your nadir was so low! OMG your cd4 dropped, why?? Like I've been bad patient or something

[Lightfighter]

Man I feel your pain. In march I was at a VL of 50 and 385 CD4.  My doc sent me a letter saying I must have missed doses and not remembered andthat I should be UD and CD4 should be higher. I didn't miss anything at all.

The guys on here were great.  I know and they know all of that is different for every person.  My doc is older and not super up to speed onthe new stuff, but he's all I got within 100 miles of home, and he's 95 miles away 

I switched to tivicay and descovy.  I had labs on the 14th. UD and 489 CD4. 

Keep doing what you know to do brother.  You, me, and everyone in here knows that it will work itself out. 

Hope things start working out in your favor. 

Met my new doc, got results from my labs... back down to 170 something


I'm tired of caring about it, I take my meds, that's all I can do... beyond that, it is what it is

They claim I'm in the pipeline for meds, not gonna hold my breath on that though

The reaction annoys me is all, OMG your nadir was so low! OMG your cd4 dropped, why?? Like I've been bad patient or something

[mecch]

They claim I'm in the pipeline for meds, not gonna hold my breath on that though

Clarify please Zach. Are you currently without meds?  Thus the drop?

[zach]

I have 12 pills, so it's not dire yet... just cutting it close

Going to see if atlanta will fill again for me, I was good with then until November, so there is an off chance they might

Viral load is still UD, and honestly I've been in the 170s for a couple years now with little change... this is the norm for me... the blip was the jump above 200

[mecch]

Hope you get the new pills soon.

[zach]

So I strategically skipped some doses, skidded in sideways before they came through locally.

Thanks are owed here. This is a fantastic community of supportive souls.

This is the first time I've pulled off connecting to care in a new area, last time I tried was a total failure. Scared me off of trying again for a long time.

Glad I I gambled this, I'll take the loss of a few days, no regrets at all.

Happy it's worked out, hope the good mojo keeps up

[Ptrk3]

I'm glad to read things worked out well for you, Zach.  I hope, too, your mojo keeps on the good side of things and that you are now well situated in your new location, digs, and career.

Keep your spirit strong:

https://www.youtube.com/watch?v=nvlTJrNJ5lA

[bmancanfly]

That's good news.

Time to start rebuilding that reserve supply. 

[mecch]

good to hear 

[zach]

That's good news.

Time to start rebuilding that reserve supply. 

[zach]

And I'll keep beating that drum around here too... I went foto and milked my stockpile, then lit fires under everyone in my> supply chain

One of the biggest lessons this forum taught me, be my own strongest advocate