Do any of you know how many meds you've taken thur the yrs.

[denb45]

OK I know this has been done before, but I was way too lazy to look up whatever thread is was on
so here's my updated list of Meds, how do yours stack up, I thought this was more appropriate for the LTS forums?

20 years of treatment, 19 different medications.

Zidovudine (AZT)
Epivir (3TC)
Viread
Videx (ddI)
Zerit (d4T)
Ziagen
Hivid (ddC)
Crixivan    
Sustiva
Viramune
Kaletra
Norvir
Viracept
Reyataz
Fuzeon
Isentress
Hydrozyurea
APTIVUS
TRUVADA

[leatherman]

19 yrs of treatment, 17 medications
(positive 26 yrs)

Epivir, Epzicom, Emtriva, Retrovir/AZT, Truvada, Videx, Videx EC, Viread, Zerit, Ziagen, Viracept, Norvir (liquid, gelcap, pill), Sustiva, Viramune, Crixivan, Kaletra (liquid, gelcap), Reyataz

[RapidRod]

27 years positive next month and I've only been on medication since 2005

Sustiva
Truvada

Kaletra for a week

Atripla

[leatherman]

only been on medication since 2005

lucky dog woof, woof!

Kaletra for a week

[denb45]

27 years positive next month and I've only been on medication since 2005

Sustiva
Truvada

Kaletra for a week

Atripla

WOW Rod, I started AZT back in 1990, been on meds for the last 21 yrs now 

[RapidRod]

lucky dog woof, woof!
 

I have to agree, I was real lucky and thankful I didn't have to go thru a lot of what you all have had to go through. It still hasn't been a walk in the park and I wouldn't wish it on anyone.

[J.R.E.]

I started meds in 2003

Been on:

Viramune ( still am, started on it)

Epzicom ( still am, but was taking it in the beginning in separate doses)

Trizivir-for about a month ( around 4/04)

Zerit- for about a month ( in 03 )

Viread was added to Viramune and Epzicom - from July of 04 to October of 09.  I was on a four drug regimen, and decided to stop the Viread, and take my chances. So far so good.

Ray

[Solo_LTSurvivor]

Wow, this was a great way to test my memory   

The only way I could remember was in groups of the various regimens.  I think I remembered them all, LOL

Viramune, Epivir, AZT

Viracept, Zerit, Epivir

Ziagen, Combivir

Zerit, Epivir, Ziagen, Rescriptor, Viread (replaced Zerit or Epivir eventually?)

Kaletra, Sustiva, Zerit

Epivir, Zerit, Sustiva

Current: Epzicom, Sustiva

[AlanBama]

I had to use the AIDSmeds treatment list as a "cheat sheet":

Zidovudine (AZT)
Epivir (3TC)
Invirase (Saquinavir)
Viread
Zerit (d4T)
Ziagen
Hivid (ddC)
Sustiva
Viramune
Norvir
Viracept
Truvada
Combivir
Epzicom
Emtriva
 
My "favorite" of these is Saquinavir; it saved my life (literally) in 1996.  My most "hated" is AZT, followed by
a close second, ddC.

Currently, I am taking Viramune, Ziagen, and Emtriva
 

[denb45]

Alan, it dose jog the ole memoires tho 

[AlanBama]

I have often thought of trying to make a list of all the medical problems I have had (with HIV) but I could not do it without dr's charts to go by, because I (stupidly) did not keep a journal, was too sick to keep one a lot of the time anyway, and I have only sketchy memories to go by.

[aztecan]

Not nearly as many as others have been on.

Let's see . . .

AZT
Epivir (3TC)
Saquinavir (later reformulated as Invirase)
Crixivan
Sustiva (replaced the AZT,Epivir with Combivir)
Reyataz
Norvir
Lexiva
Truvada
Isentress

This, of course, doesn't include the other meds I take for other things, including those caused by the above drugs.

But, it did make me stop and try to remember.

HUGS,

Mark

[Theyer]

I have often thought of trying to make a list of all the medical problems I have had (with HIV) but I could not do it without dr's charts to go by, because I (stupidly) did not keep a journal, was too sick to keep one a lot of the time anyway, and I have only sketchy memories to go by.
[/quote]

I understand, the sketchy memories play havoc ,for me, with having a clear idea off time lines, some years are represented by one or two hyper clear memories and that's it. Off course I was a great believer in herbal pain control,
all most evangelical
love mhtv

[AndyArrow]

I also had to use the drugs section on here to help jog my memory because my memory was never very good to begin with and also because I actually tried to forget a lot of these drugs.  Heres the list as best as I can recall.

Emtrivia
Epivir
Truvada
Viread
Zerit
Viramune
Norvir
Kaletra
Prezista
Fuzeon
Isentress

Least favorite - Back when they had trouble producing Norvir (late 90s) and I had to drink that NASTY liquid norvir

Current -
Truvada, Prezista, Norvir, Isentress

Hugs & Stuff,
AA

[leatherman]

Least favorite - ... that NASTY liquid norvir

agreed! but what do you expect from a 'gasoline' (ethanol) based medication?!?! 

[Jeff G]

I cant begin to remember them all but I will name a few ... and they are not in the right order .
AZT
Zerit
Epivir
Norvir
DDI
Viramune
Isentress
Prezista
Truvada
Sustiva

And now back to Atripla .
 

[denb45]

I cant begin to remember them all but I will name a few ... and they are not in the right order .

And now back to Atripla .
 

You did just fine jg, just fine, thanks for your im-put, this really gives some info, on what we've taken thur the yrs. and maybe some Doctor will come in here and see this, and tell us why were all so fucked up with are health and bodies, you just never know, I hope to find this info out anyway I can, I hope 

[rondrond]

AZT
Norvir
Crixivan
Epivir
Zerit
Viramune
Truvada
Epzicom
Ziagen
Isentress

[heartforyou]

AZT
Zerit
Epivir
Norvir (remember the orange liquid that left a bitter taste for hours?  the most horryfying one of all)
Crixivan
Ziagen
DDI
Hivid
Invirase
Viramune
Sustiva
Viread
Epzicom

My guess is I have taken about  75.000 HAART pills since I started.. now, how many full  bathtubs would that be ?

xxx Hermie

[mecch]

.

[Miss Philicia]

Infected for (at most) 23 years (at least) 21 years, AIDS diagnosis for 18 years, 18 years of treatment, 18 different medications

[denb45]

Infected for (at most) 23 years (at least) 21 years, 18 years of treatment, 18 different medications

We are some old mo fo's  I gave my list to my ID-Doctor, and she ask me if she could use my list for training purposes @ the school of HIV/AIDS Medicine @ University of New Mexico, I was quite flattered 

[BT65]

Are you talking just about HIV meds?  Or meds in general?  Strangely enough, I cannot remember all the names of the meds.  Like Alan, I never kept a journal, doctor's notes, labs etc.   I know I took all the early ones-AZT, ddC, ddI, 3tc, Crixivan, liquid something (could it have been Kaletra, or maybe Norvir), Viramune, Zerit, Sustiva, Lexiva, Truvada, Abacavir (isn't this the one you have to carry a warning card with you), now on Truvada and Isentress (easiest combo I've been on). 

I'm sure that's probably not a complete list.  I was diagnosed 21 years ago, most likely been infected for 23 or 24, diagnosed with AIDS 16 years ago.

[denb45]

Nope just HIV/AIDS Medicine, but your right Betty, if I did included all of the other ones in 20 yrs. that were for the side effects, then it would be a lot more, and I can't even recall a lot of em'  

[alberche]

Dear Denb!!!

I take out my hat for you! LOLOL... a great list, and a great survivor!!! not surprised your doctor has taken your list as a "case-of-teaching".

Mine is a short one:

Truvada
Sustiva
Reyataz
Norvir
Etravirine

I've been lucky, all the times, once a day. Norvir in those lovely and discrete big alcohol smelling capsules. I must confess it helped me to improve my swalowing skills... 

Hugs!

[David Evans]

Alberche,

Just a reminder that this is the Long Term Survivor's forum and only long term survivors may post here.

Thanks for your cooperation.

David
Moderator

[MarcoPoz]

I'm lucky (?)  Positive 20 years, this year.

Brief start up on AZT mono therapy, but got off of them quickly.

Waited 5 or so years before going on anything else:

AZT, DDI (puke makers)
AZT, DDI, Viramune
AZT, 3TC, Viramune
Combivir, Viramune

Hmmm, but the list of other meds is MUCH longer

[alberche]

Dear David, I take note, and will only post back here when I'm a LTS too, into 15 years or so, I promise! but I hope I can drop from time to time to read LTS colleagues' very interesting posts, from which "not newbies-not LTS" people, just like me, find lots of interesting advises and informations to learn from.

Kind regards :-)

[LabRat]

Good Thread Dennis! I think that doctors are just now discovering the long term side effects of the drugs we've taken in the past. Hence my screen name.
AZT
DDI
Epivir
D4T
Crixivan (kidney stones and surgery due to this drug)
Kaletra (one of my favs...constant diarrhea even with 2 doses of immodium per day)
Viread
Sustiva
Isentress

Plus the other drugs for OI's, drugs to counteract side effects, and more drugs to counteract the side effects of the first counteractive side effect drugs!  A vicious cycle. LOL

[denb45]

Good Thread Dennis! I think that doctors are just now discovering the long term side effects of the drugs we've taken in the past.
Plus the other drugs for OI's, drugs to counteract side effects, and more drugs to counteract the side effects of the first counteractive side effect drugs!  A vicious cycle. LOL

Yup, you got that right, Yeah us LTS know this all to well, and we all have the fucked up bodies for proof, I know I'm one of the living dead, but I try not think about it so much 

[LabRat]

LOL Dennis! Reminds of the recent series on AMC..."Walking Dead"

[BigDaneDogs]

You may be the "walking dead" but you dang sure don't look like it - lol!!!!  18 years and 16 different meds (will be 17 with Insentress).   

[Solo_LTSurvivor]

:: Bump::

I think this thread needs to be resurrected so that those who are newly diagnosed and/or hesitant about starting a regimen for fear of the side effects (who always read the LTS forum) can see what they were fortunate to have missed out on.

[denb45]

:: Bump::

I think this thread needs to be resurrected so that those who are newly diagnosed and/or hesitant about starting a regimen for fear of the side effects (who always read the LTS forum) can see what they were fortunate to have missed out on.

Well we don't wanna scare anyone off, just the mire sight of some of us LTS is bad enough 

[Solo_LTSurvivor]

No, but maybe some of them will stop bitching about having to take ONE pill/day or complaining about something that taking Gas-X will cure   

[Miss Philicia]

No, but maybe some of them will stop bitching about having to take ONE pill/day or complaining about something that taking Gas-X will cure   

I'd complain too if I got AIDS because some scheming poz queen lied to me about his infection, or if I'd gotten it by not having sex at all in the first place.

[denb45]

No, but maybe some of them will stop bitching about having to take ONE pill/day or complaining about something that taking Gas-X will cure   

You've hangin out in the Living w/ and AM threads much too long welcome back to the fold, you've been missed around the LTS Thread 

[Solo_LTSurvivor]

I'd complain too if I got AIDS because some scheming poz queen lied to me about his infection, or if I'd gotten it by not having sex at all in the first place.

Oh you mean those gift givers are still up to their dirty tricks?  Quel dommage!!!

You've hangin out in the Living w/ and AM threads much too long welcome back to the fold, you've been missed around the LTS Thread 

I came to my senses after realizing that not everyone can swim with bitchy sharks.

[denb45]

Oh you mean those gift givers are still up to their dirty tricks?  Quel dommage!!!

I came to my senses after realizing that not everyone can swim with bitchy sharks.

Child PLEASE...you know dam well some of these queers are scared of water......

[Jeff G]

I just drop by this forum to wallow in self pity from time to time .

[Miss Philicia]

I just drop by this forum to wallow in self pity from time to time .

I drop in here to see if I'm suffering more than anyone else.

[wolfter]

I just drop by this forum to wallow in self pity from time to time .

   Thanks for the smile this morning.  I agree with Solo, perhaps some of the newbies can see our history and have thanks for a one a day pill.  I'm sure many of us don't even have that option.  I believe it was the liquid Norvir that I could barely take and hold down, another medication that had to be refridgerated and yet another one that had to be taken every 4 hours.  Critical not to miss a dose.  What a joy setting the alarm clock to achieve that.

I can't recall, nor care to research, all the combos that I've taken but I know it's close to 15 different meds. 

[jkinatl2]

  Thanks for the smile this morning.  I agree with Solo, perhaps some of the newbies can see our history and have thanks for a one a day pill.  I'm sure many of us don't even have that option.  I believe it was the liquid Norvir that I could barely take and hold down, another medication that had to be refridgerated and yet another one that had to be taken every 4 hours.  Critical not to miss a dose.  What a joy setting the alarm clock to achieve that.

I can't recall, nor care to research, all the combos that I've taken but I know it's close to 15 different meds. 

I remember going to the movies and hearing dozens of watch-alarms go off, and see a bunch of guys make a beeline for the lobby.

They didn't all come back.

[denb45]

25 years of treatment, 18 different medications.  what were your past & current Meds .......share yours

Zidovudine (AZT)
Epivir (3TC)
Viread
Videx (ddI)
Hydrozyurea
Zerit (d4T)
Ziagen
Hivid (ddC)
Sustiva
Viramune
Kaletra
Norvir
Viracept
Fuzeon
APTIVUS
TRUVADA
Isentress current meds
Complera current meds

[aztecan]

OK, in the order I took them, to the best of my recollection:

AZT (6 capsules a day)
Epiver (3TC) (two tablets a day)
(Eventually switched to Combivir, which is the above two drugs in one pill, twice a day)
Saquinavir (9 capsules a day with full fat meal and grapefruit juice)
Crixivan (6 capsules a day - 2 every 8 hours precisely - on an empty stomach)
Sustiva (1 pill a day)
Reyataz (1 capsule a day)
Norvir (one soft gel capsule a day)
Lexiva (one pill a day)
Isentress (current med) (one pill twice a day)
Truvada (current med) (one pill once a day)

These are just the HIV meds. There is other stuff as well.

HUGS,

Mark

[denb45]

Yikes!    I feel like such a HIV/AIDS dinosaur, just trying to recall of these meds    guess I'm not alone 


HUGS

DEN

[allanq]

Den,

I started AZT in 1989, and since then I've taken 20 different HIV drugs.

Currently taking:

Prezista
Norvir
Sustiva
Isentress


Other drugs I've taken:

Retrovir (AZT)
Epivir (3TC)
Videx (ddI)
Zerit (d4T)
Ziagen (abacavir)
Hivid (ddC)
Adefovir (clinical trial)
Rescriptor (delavirdine)
Crixivan (indinavir)
Saquinavir
Agenerase (amprenavir)
Aptivus (tipranavir)
Reyataz (atazanavir)
Viracept (nelfinavir)
Kaletra
Fuzeon

~ Allan

[mitch777]

 Here are some that I remember:

AZT
3TC
DDI
D4T
Crixivan
Atripla and the separate components before they were combined in one pill
Isentress (current)
Truvada (current)

There may have been a few more but my memory sucks.

[Theyer]

Can,t remember my present combo without getting the drug bag out.

[wolfter]

Goodness, I don't remember all the meds I've taken .  Like Theyer, I have enough difficulty remembering my current ones.  Which reminds me, I need to update my laminated list that I always attach for medical purposes. 

I don't remember it's name, but the one that had to be refrigerated was the worst.  Such a pain in the ass when taking trips.