POZ Community Forums

Main Forums => Living With HIV => Topic started by: ryeguy on June 18, 2006, 10:51:28 am

Title: I've been purged!!!
Post by: ryeguy on June 18, 2006, 10:51:28 am
Helli hallo,

As I wanted to post something new and see how you all have been doing I discovered that my profile had been purged without m e being informed!! Not nice, I know I am nor often online here but still I always come back. Anyways just got to see how to upload a photo again and everything will be ok.

My topic,

My legs keep withering away, just wanted to ask if anyone else is also having the same situation with trizivir. I have taken it since 2001 and am considering changing the therapy due to the leg and hip wasting. Does anyone have any info or recomendations as to what meds don't work in this way.

Would be happy for some input!

Greatings from Berlin

Title: Re: I've been purged!!!
Post by: Cliff on June 18, 2006, 11:01:17 am
Hi Rion,

Welcome back.  We moved to a new forum system, thingie....everyone had to create a new account and start all over.  So it's not just you, unfortunately.  But this forum thingie is much better...once you learn all the bells and whistles.

What did you decide on whether to immigrate to the US or stay in Germany?
Title: Re: I've been purged!!!
Post by: jkinatl2 on June 18, 2006, 11:01:56 am
heya Rion!

We all got purged, when they switched over to the new forums. It wasn't personal, trust me ... or if it was, it was universally personal <grin>.

I am sorry about the lipo issues you seem to ba having. I hope someone smarter than I can help you with that issue. Regardless, you are in my thoughts :)

Title: Re: I've been purged!!!
Post by: ryeguy on June 18, 2006, 11:26:15 am
As to the new forum..... How do I upload a photo??????
Title: Re: I've been purged!!!
Post by: ryeguy on June 18, 2006, 11:34:47 am
;D    ok as all can see I found out how to upload pics:-)

Now anyone with info on skinny legs and trizivir please comment. As one can see in my pic, My body is pretty much ok...... from the waste up, the waste down I look like a 60 year old marathon runner who is starving!!!
Title: Re: I've been purged!!!
Post by: joemutt on June 18, 2006, 11:45:28 am
Hi there, from the waste up it looks more than pretty ok,lol
I can't help you unfortunately, am on Combivir Viramune , my legs and hips
also skinny, mmm... will ask my dr this Friday, maybe I ll learn more and let you know.
Title: Re: I've been purged!!!
Post by: blondbeauty on June 18, 2006, 01:55:23 pm
I am not an expert. I am not even on meds yet, but in www.thebody.com there have been two live chats about that and in both of them D4T and AZT are the culprit of lipoatrophy. I think trizivir has AZT. Change it for somethig else.
Title: Re: I've been purged!!!
Post by: Oceanbeach on June 18, 2006, 10:57:23 pm
Blondbeauty is correct, Trizivir is a combo of D4T, 3TC, and AZT.  I have only been on Trizivir for 11 months but D4T and 3TC have been the usual suspects in my regimen for almost all of 10 years on meds.

I used to have incredible legs but not no more.  I used to be able to run 2 miles every day but not no more.  Between the meds and the PN, there are days when every step is in agony.  On the UP side, I can still walk and my numbers have been stable since 1998.

I did not mind being purged, the new forums do have a lot of fun features, whistles and bells.  However comma I had 500 + posts in the old forums and was looking forward to receiving an incentive prize like a toaster or a new BMW  ;D.  Have the best day
Michael

www.Commission-on-AIDS.org (http://www.Commission-on-AIDS.org)
Title: Re: I've been purged!!!
Post by: Terry on June 19, 2006, 11:48:59 am
the waste down I look like a 60 year old marathon runner who is starving!!!

Hey, You saw me running in the Bay to Breakers!  ::)

Terry
Title: Re: I've been purged!!!
Post by: Trish on June 19, 2006, 11:56:15 am
Hey there...long time no see.  You have been missed my dear.

Sorry about the wasting issue -- I don't have much to offer there.  What I can offer is my love & support, which you will always have.

HUGS!!!

Much love,

Trish :-*
Title: Re: I've been purged!!!
Post by: newt on June 19, 2006, 12:17:16 pm
Trizivir is abacavir + 3TC + AZT.  The chicken legs are prob from the AZT.  It must go.  All things being equal the simplest switch would be to Epzicom (Kivexa) which is abacavir + 3TC, so what you's taking now, plus something else, anything else, that's not a nuke, Sustiva, Viramune, a PI, boosted or unboosted....

- matt