Welcome, Guest. Please login or register.
October 17, 2018, 06:01:40 am

Login with username, password and session length


Members
Stats
  • Total Posts: 736800
  • Total Topics: 60982
  • Online Today: 290
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 am)
Users Online

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Partner newly diagnosed with HIV and PCP  (Read 8886 times)

0 Members and 1 Guest are viewing this topic.

Online JimDublin

  • Administrator
  • Member
  • Posts: 9,705
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Partner newly diagnosed with HIV and PCP
« Reply #50 on: July 27, 2017, 02:15:55 pm »
The important part is he is viral suppressed, his body can focus on healing and CD4's don't tell the whole story.

How is he feeling? Better and more active?
How are you coping with the stress, do you have support and time out for yourself? I guess not much over the last few months but if he is doing okay I think there is no harm in taking some time for yourself if you can.

Jim
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,494
Re: Partner newly diagnosed with HIV and PCP
« Reply #51 on: July 27, 2017, 03:18:40 pm »
As Jim wrote, the more important thing now is that he maintains an "undetectable" viral load.  His CD4's will recover in time and they are moving in the right direction.

It can take a year or even longer for CD4's to stabilize above 200, especially when the nadir is so low and if the infection has been there for a long time.  It seems to me that he is actually making good progress on his CD4 reconstitution.

So don't get caught up in the weeds or his recovery.  He is doing fine.

Take care of yourself, too.
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,152
Re: Partner newly diagnosed with HIV and PCP
« Reply #52 on: July 30, 2017, 03:52:39 pm »


       ojo         Hello dear Lee, I think it's time for you to take a vacation, your partner is doing fine, according to the numbers you are sharing...his treatment is working and his "soldiers" are recovering, they 9cd4), not only were fighting hiv, but also they were beaten up by the chemo, so, don't feel bad, relax and take a break. If you knew how long it took me to become UD and for my "soldiers" (cd4) to get over 200, you will be sorprised...come on, go and take a break and relax, he is doing fine...best of luck    ojo

Offline Lee82

  • Member
  • Posts: 18
Re: Partner newly diagnosed with HIV and PCP
« Reply #53 on: October 02, 2017, 04:32:58 pm »
Hello all.

We just came back from a wonderful 2 week holiday, and both feeling good.

He has his latest cd4 count in a couple of weeks and hoping we get over that 200 mark this time. Just a quick question, today they gave him the flu jab at his GP's office. Is this ok for someone whose CD4 count was last at 170?

Apart from that, the only issue is his KS. He probably has around 20 lesions on his body which he got upset about one night during the holiday. I'm hoping in time they will fade, but know this probably wont be the case. It's such a shame because in every other aspect his progress is amazing, yet we are reminded every day by the marks. I call them his battle scars. Emotionally i'm getting there, the whole last 12 months plays on my mind a lot. The support there for partners is really limited so after Christmas i'm thinking of getting involved with a charity. Thanks you lot. Xxx

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,494
Re: Partner newly diagnosed with HIV and PCP
« Reply #54 on: October 02, 2017, 04:37:15 pm »
Yes, there should be no problem whatsoever for his having had a flu shot.  Flu shots are almost always made from inactive virus.  Rest assured, his healthcare provider would never have given him a flu shot if it put him at risk.

On the contrary, it was important that he got a flu shot.  It was the right thing to do.
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline Lee82

  • Member
  • Posts: 18
Re: Partner newly diagnosed with HIV and PCP
« Reply #55 on: October 02, 2017, 04:54:55 pm »
Great thanks for the quick reply as ever.

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,494
Re: Partner newly diagnosed with HIV and PCP
« Reply #56 on: October 02, 2017, 05:03:58 pm »
You're welcome.  Remember, too, to get a flu shot for yourself.

Also, you may wish to ask your partner's healthcare provider if your partner should also get a Pneumococcal Conjugate Vaccine (PCV13) shot:

https://www.cdc.gov/vaccines/hcp/vis/vis-statements/pcv13.html

https://www.poz.com/article/hiv-pneumococcal-vaccine-23049-3892
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,152
Re: Partner newly diagnosed with HIV and PCP
« Reply #57 on: October 02, 2017, 08:58:53 pm »


      ojo        Hello Lee, I'm glad you two are doing great...as for the flu shot, I got it with a zweo cd4 during five years, so he will be ok...hugs and please keep  us posted   

Offline Lee82

  • Member
  • Posts: 18
Re: Partner newly diagnosed with HIV and PCP
« Reply #58 on: October 26, 2017, 01:34:31 pm »
Hi all, well he just had his latest CD4, and again only went up slowly. This time from 170 to 184. Still undetectable.

Think iíve finally realised now thats its going to be a long gradual process. This time last year he collapsed on me and was close to death, so to go from a CD4 of 10 to 184 in a year is pretty good going.

Kaposi Sarcoma is still present but doctor happy that all the lesions are still flat.

Onwards...

Online JimDublin

  • Administrator
  • Member
  • Posts: 9,705
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Partner newly diagnosed with HIV and PCP
« Reply #59 on: October 26, 2017, 02:05:53 pm »
Glad to hear he is doing okay.
10 to 184 is great, its progress in the right direction.

That said don't read too much into the CD4 count, I know its easier said that done, however the count does not equal a measurement of healthy.

Jim

HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline CaveyUK

  • Global Moderator
  • Member
  • Posts: 1,554
Re: Partner newly diagnosed with HIV and PCP
« Reply #60 on: October 26, 2017, 05:57:17 pm »
He could very well be tipping over 200 if the CD4 test was done at a different time of the day. It's THAT variable, so don't obsess too much about it.

The only thing that matters is he stays undetectable. That allows the body to function normally without having to constantly fight HIV and also allows it to build up the CD4 cells over time. You can't do anything about the latter though, so purely focus on the UD status.

It sounds like you are doing this anyway, but try not to focus on the HIV as much as you can. Live your lives. Have fun. Before you know it time will fly and he will be sitting there with a count you are happy with, and with KS scars that will be all but gone.

Don't waste too much energy and time during life, worrying about something that no longer warrants worrying about. It will be good for the soul.

Anyway, delighted at the progress and do pop in occasionally to update us.
HIV - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here:
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,152
Re: Partner newly diagnosed with HIV and PCP
« Reply #61 on: October 27, 2017, 11:22:11 am »

      ojo      hello lee, thanks for keeping us posted...i'm glad he is still UD, it means his treatment is working, now, his cd4 needs time to recover, and to tell you the truth, i think it is good his cd4s are increasing little by little, this way, he could avoid IRIS, because of his KS, so, you two, focus in "vivir la vida loca", and keep us posted...just a note, it took me from january 95 to february 2000, to get over 200 cd4s, i lived fuve years with no cd4, although i should admit. i lost some battles living with aids for that long, i'm legally blind due to cmv retinitis, but i'm still here sharing  my experiences with you all...best of luck...hugs for both of you                        ojo
« Last Edit: October 27, 2017, 11:26:48 am by Tonny2 »

Offline Lee82

  • Member
  • Posts: 18
Re: Partner newly diagnosed with HIV and PCP
« Reply #62 on: January 25, 2018, 02:02:42 pm »
Hi all, hope you are all well and good.

So my partner had his most recent blood tests last week and his CD4 count has gone up from 184 to 202. Finally we are over the 200 barrier! Doctor says if his next count is still over 200 we can stop using the Bactrim and just take the 2 pills a day.

Unbeknown to me, he had been taking pics on his phone of the KS on his body at the start, middle and end of last year. And Iíd forgotten exactly how bad it first was and how much better they have all got. Lots have disappeared completely, some stubborn ones remain.

Hoping things continue to get better and better.

Offline harleymc

  • Member
  • Posts: 1,073
Re: Partner newly diagnosed with HIV and PCP
« Reply #63 on: January 27, 2018, 09:56:45 pm »
G'day Lee, so glad your partner is doing so well.  It also sounds like the stress you were feeling is greatly reduced.

Well your sweetheart well and truly has more cd4s than me now. With the KS lesions, my KS started reducing quite quickly but there was some scarring for about 2 years from the worse ones.

But even those scars will fade with time. The before, during and after shots for the KS would be fabulous to see in some sort of online gallery.

Offline Lee82

  • Member
  • Posts: 18
Re: Partner newly diagnosed with HIV and PCP
« Reply #64 on: May 03, 2018, 11:15:02 am »
Hi all

Not such good news this time. His CD4 count has went down to 178 from 202. His viral load is still undetectable. In himself he is absolutely fine.

The doctor hasnít continued his prescription for septrin as he said his CD4 % is still rising and his VL is undetectable, but if thereís one thing ive learnt from these forums itís that if your CD4 is under 200 you should be on some prophylaxis to prevent any opportunistic infections??? Also the doctor doesnít want to see him every 3 months anymore and now says every 6 months should be fine.

Am I worrying about nothing here, or should I be challenging the doctor?

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,494
Re: Partner newly diagnosed with HIV and PCP
« Reply #65 on: May 03, 2018, 11:34:35 am »
Not to worry, CD4 blips occur and a CD4 number can change 100 points or so daily.
What's important is that your partner continue to adhere to his antiretroviral regimen and remain undetectable.

As to your question, recent protocols suggest that primary and secondary PCP prophylaxis can be withdrawn as long as the patient has been undetectable for a lengthy period (three to six months) and maintains CD4's above 100 (and at 14% or thereabout), so your partner's doctor is not off the mark. 

https://aidsinfo.nih.gov/guidelines/html/4/adult-and-adolescent-opportunistic-infection/321/pcp

Relevant language:

A combined analysis of 12 European cohorts16 and a case series66 found a low incidence of PCP in patients with CD4 counts between 100 and 200 cells/mm3, who were receiving ART and had HIV plasma viral loads <50 to 400 copies/mL, and who had stopped or never received PCP prophylaxis, suggesting that primary and secondary PCP prophylaxis can be safely discontinued in patients with CD4 counts between 100 to 200 cells/mm3 and HIV plasma RNA levels below limits of detection with commercial assays. Data on which to base specific recommendations are inadequate, but one approach would be to stop primary prophylaxis in patients with CD4 counts of 100 to 200 cells/mm3 if HIV plasma RNA levels remain below limits of detection for at least 3 to 6 months (BII). Similar observations have been made with regard to stopping primary prophylaxis for Toxoplasma encephalitis.67
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,152
Re: Partner newly diagnosed with HIV and PCP
« Reply #66 on: May 03, 2018, 02:00:47 pm »


       ojo       hello dear lee...i wouldn't worry, your doctor is right, no need for septrim, he is UD, besides, if his % is raising, that means good news...i haven't read ptk reply, just if i sounded just like him...you two keep enkiying each other, he is doing great...best of luck and hugs                                                                           ojo

Offline CaveyUK

  • Global Moderator
  • Member
  • Posts: 1,554
Re: Partner newly diagnosed with HIV and PCP
« Reply #67 on: May 03, 2018, 03:28:36 pm »
Indeed, a fairly stable setting such as UD and being adherent to meds, is one of those occasions where CD4% comes into play as it gives the doctor a better idea of whether there is a worrying trend going on or not.

It doesn't sound like there is a worrying trend in this case. So try to relax. You can never control CD4's and they can be impacted by just about anything including, as has been said, the time of day.
HIV - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here:
PEP and PrEP

 


Terms of Membership for these forums
 

© 2018 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.