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Author Topic: CD4 dropped 1000 points in 4 months!  (Read 605 times)

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Offline Tyler2017

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CD4 dropped 1000 points in 4 months!
« on: November 09, 2017, 09:01:33 AM »
   Hey guys what is goin on?! This is my first post here so I will introduce myself.. My name is Tyler and I was diagnosed with HIV about 17 months ago after my old roommate drugged me with GHB, raped me, and gave me HIV. I also have a brain tumor/seizure disorder that I'm dealin with.
   So I just got back my labs and my viral load is below 20 so undetectable but my CD4 count has dropped to 1498 from 470 about 4 months ago. My question is. Has anyone else experienced such a drastic drop in CD4 while keeping viral load undetectable? Also, I might add that I recently had to pay a lot of money for something and I didn't have money for food so I was hardly eating and lost a lot of weight for like 2 weeks about 2 weeks before the blood test.
                                           Thank you Guys!
                                             
« Last Edit: November 09, 2017, 01:40:41 PM by JimDublin »

Offline JimDublin

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Re: CD4 dropped 1000 points in 4 months!
« Reply #1 on: November 09, 2017, 09:09:40 AM »
Hi

I hope you know the forum is open to everyone on google, including the spammers and idiots so posting your name might not be the best idea. If you want to edit that let me know.

Sorry to hear about the food situation and hope you have that sorted out. As for the drop well total counts are more prone to large variances I lost 300 odd on my last count, its not that important at all as long as you are UD and still within normal range as you seem to be.

If anything as long as the % that is more important was still within relative normal rage, so what was the CD4 %?

Jim
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Offline Tyler2017

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Re: CD4 dropped 1000 points in 4 months!
« Reply #2 on: November 09, 2017, 09:15:11 AM »
I would normally just go research about the CD4 percentage but ill just ask.. What is that? I also have no problem with my name being attached to this. Thank you though buddy..I appreciate it =)

Offline JimDublin

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Re: CD4 dropped 1000 points in 4 months!
« Reply #3 on: November 09, 2017, 09:33:56 AM »
Well if you're worried about an unexpectedly low count then your CD4% will help you understand if this is a real change. The percentage is more stable than the exact CD4 count.

Unless your count is really low it does not mean that much to be honest, no real point worrying about them. Your test reports will show CD4% = XX%, that means that XX% of your lymphocytes are CD4 cells. The average normal CD4% for HIV negative adults is about 38-40% anything below 20% is considered low.

What did your doctor say? That is really who you should be talking to about this.

Jim
HIV 101 - Index & everything you need to know
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline JimDublin

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Re: CD4 dropped 1000 points in 4 months!
« Reply #4 on: November 09, 2017, 01:48:44 PM »
@Tyler

Look I changed your account name and details in your own post. This is after both myself and other members raised concerns for you.

Look talk to your doctor about your results and as you are new to the forum, I am going to ask you to post only in this 1 thread for the time being so we can assist you better as a community.

Jim
HIV 101 - Index & everything you need to know
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline mecch

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Re: CD4 dropped 1000 points in 4 months!
« Reply #5 on: November 09, 2017, 05:27:15 PM »
   So I just got back my labs and my viral load is below 20 so undetectable but my CD4 count has dropped to 1498 from 470 about 4 months ago.                                       

Hello welcome to this forum. I guess you meant that the other way around , dropped from 1498 to 470.

How long have you been on the treatment, and how many tests do you have showing trends in your CD4?  What was your CD4 at diagnosis with your first tests?

Well listen, I can't explain it at all I don't know the science. How soon before you can have a retest. Maybe that will set your mind at ease. Also, talking to the specialist

I wanted to say that you posted a fair amount of traumatic life experience in your post so well, if you ever want to talk about that, you can talk to us here.

Hoping you are eating again, and well.

 :D :D :)

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline bocker3

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Re: CD4 dropped 1000 points in 4 months!
« Reply #6 on: November 11, 2017, 10:25:02 AM »
Like Jim pointed out -- you have a good amount of CD4 cells, so not much to worry about, health-wise, though a change like that can be disconcerting.

You only gave us this result and the last one -- what was your CD4 counts like prior?  Were they closer to the 1400 level or the 500 level?  Is it possible that the 1400 result was, in fact, some sort of outlier and the 500 is more consistent with your earlier history?

I ask this, because we all tend to be more "alert" to changes that we consider "bad" and often "celebrate" changes that we consider "good" -- even though either could be an indication of something going on (or either could actually mean nothing at all -- which is often the case).

finally -- what does your doctor say about this?  He/she is in the best position to counsel you on the meaning of such a difference, as they have your full clinical picture -- we do not.

Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2015 969/28% <20

Offline harleymc

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Re: CD4 dropped 1000 points in 4 months!
« Reply #7 on: November 16, 2017, 02:19:04 AM »
I'll swap you. My CD4 counts are up 50 in 6 months.

You can have my 170 and I'll take your 470.

Offline kentfrat1783

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Re: CD4 dropped 1000 points in 4 months!
« Reply #8 on: November 16, 2017, 06:32:18 AM »
Sorry Harleymc but I laughed at that one. 

I'll swap either of you as my CD4 is only 42. 

(Yes I do know this isn't a laughing matter but I needed one right about how).

But, yes as others have said look at the count over time and not just at one test.  I'm thinking if I would have that wide of a test result my ID doctor would want to re-test me just to see if it something else is going on as well.  But it can very from day to day and even the time off day it is taken. 
09/07/2017 - CD4 42 (6%)     VL  54        (1.70)
05/11/2017 - CD4 2   (1%)     VL 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: USA

Offline Jackmydin

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Re: CD4 dropped 1000 points in 4 months!
« Reply #9 on: November 16, 2017, 06:38:49 AM »
Sorry Harleymc but I laughed at that one. 

I'll swap either of you as my CD4 is only 42. 

(Yes I do know this isn't a laughing matter but I needed one right about how).

But, yes as others have said look at the count over time and not just at one test.  I'm thinking if I would have that wide of a test result my ID doctor would want to re-test me just to see if it something else is going on as well.  But it can very from day to day and even the time off day it is taken.

Hey Kent! Cheer up :) at least you achieve something there by dropping vl and improvement on cd4 count. Its better than nothing consider it moves up like 2000%! (From 2 to 42)

Offline kentfrat1783

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Re: CD4 dropped 1000 points in 4 months!
« Reply #10 on: November 16, 2017, 08:46:49 PM »
Hi,

I do like your logic as I am from the accounting field. 

Then again I'm not allowed fresh fruits or vegetables so it's hard for me to be optimistic. 

Yes, I'm improving but still no where in a semi-safe zone. Even my ID doctor stopped talking about 200 and is only hoping for 100 at this point. 

Maybe one day.
Kenneth
09/07/2017 - CD4 42 (6%)     VL  54        (1.70)
05/11/2017 - CD4 2   (1%)     VL 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: USA

 


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