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Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

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Recent Posts

Pages: 1 2 3 [4] 5 6 ... 10
31
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on May 18, 2024, 07:34:43 pm »



            ojo.         @JimAllen, thanks for replying…I will save some money to visit  Ireland…hugs
32
Insurance, Benefits Programs & HIV / Express Scripts HIV meds
« Last post by PHLApoz on May 18, 2024, 03:39:45 pm »
Hello. I just want to ask if anybody here is availing their HIV meds through Express script? My company sponsored Health insurance is tied up with them. And so I have no choice but to avail my biktarvy with them. The trouble
Is they are no longer accepting product coupons from manufacturers  from Gilead. Hence I  have to pay 300 dollars for every three months of my treatments. I was wondering if they accept funding from Ryan White program?

Thanks
33
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by leatherman on May 18, 2024, 02:12:40 pm »
Keep it in the lab and stay there
while it makes a cool slogan (u=u) that's easy for the neggies to understand, every time a doctor talks to a patient, they should explain the # and discuss how under 200 is successful treatment. that would relieve a lot of patient stress. (like the stress of your worries, Joe, as I'm trying to work my rant back around to the your posts here. LOL)

The amount of people who have come here fearing the smallest "blip" under 200, just shows how under-educated patient's are about this infectious disease. And it's not all our faults for not knowing; doctors could easily explain this in under a minute...and not ruin their billing. LOL
34
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Jim Allen on May 18, 2024, 12:42:15 pm »
Hiya.

It will be fine, true generic drugs have the exact same active ingredients, no difference whatever, so the same drug but cheaper.

Hope you spend the savings on something nice for yourself. Hugs.
35
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by Jim Allen on May 18, 2024, 12:37:01 pm »
Quote
it's only a concept and I wish it wasn't used

100% agree with this.

The term UD/Undetectable should be scrapped or at the very least not used when sharing results, labs or discussing VL with people living with HIV. Keep it in the lab and stay there. Makes me cringe whenever someone mentions it but I just have to live with that for now.
36
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by leatherman on May 18, 2024, 11:57:05 am »
the clinical definition of suppressed HIV, ie "successful treatment" is a VL<200.

unfortunately, even though the word is used a lot, the word "undetectable" is not really well-defined.....quite frankly, it's not a real number, it's only a concept and I wish it wasn't used.

Some people has used it as if it meant their HIV was cured, or completely gone. The definition of UD totally misses that we have reservoirs of latent HIV, that at any minute could release some and give you a VL of 10k, while your daily meds worked to knock that HIV out. An hour later you could have a VL of 0. The definition also misses the small group of people who are never able to quite reach UD but remain under 200.

The only important number for people living with HIV is that their VL <200.
37
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by Tonny2 on May 18, 2024, 11:55:36 am »



                ono.             Hello there!… congratulations!  Keep doing what you have been doing. Keep taking your medication as ordered and little by little  your soldiers will increase… Keep up the good work… Hugs
38
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by Jim Allen on May 18, 2024, 11:45:02 am »
Quote
Otherwise I have been feeling much better physically then before my DX. I do have a cold ATM but it is not as bad as they have been in the past
.


Glad you are physically feeling better. How are you otherwise doing?
39
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by Jim Allen on May 18, 2024, 11:18:38 am »
Quote
Does this mean I have entered the undetectable realm?

The March, April and May results you posted here were all fully supressed (undetectable).

March and April the labs used by your clinic could provide a count, May results was below the threshold for an accurate count.  The treatment/clinical goal to suppress the virus has been met for months now

Another lab could count go as low as 10 or even 1 copy but as low as 1 copy is rarely used, certainly not in routine blood work.
40
I Just Tested Poz / Re: Tested Positive on Jan 16 2024 Updated
« Last post by Joebilly73 on May 18, 2024, 09:43:10 am »
Update

Previous Labs
Labs March 1, 2024
CD4 - 141
CD4% - 4
VL - 54

April 8, 2024
CD4 - 89
CD4 % -4
VL- 33

May 14, 2024
CD4 - 91
CD4% - 5%
VL - <20

---- Reference Range ----
HIV 1 RNA, QN PCR
<20 DETECTED
Reference Range: NOT DETECTED copies/mL

HIV-1 RNA was detected below 20 copies/mL. Viral nucleic acid detected below this level cannot be quantified by the assay.
 
 
This test was performed using Real-Time Polymerase Chain Reaction.
 
Reportable Range: 20 copies/mL to 10,000,000 copies/mL (1.30 log copies/mL to 7.00 log copies/mL).


Does this mean I have entered the undetectable realm?

Otherwise I have been feeling much better physically then before my DX. I do have a cold ATM but it is not as bad as they have been in the past.
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