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Author Topic: Updates  (Read 3378 times)

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Offline arber_B

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  • Posts: 22
Updates
« on: December 12, 2019, 03:25:57 pm »
a brief background:
I was diagnosed the first week of October and I was on Biktarvy on October 9th.
Initial numbers CD4: 456 and 19%, VL 239.
November 26th: CD4 638 and 28%, VL UD <20.

However, the tests on Nov 26th should high levels of my AST (68) and ALT (166) liver enzymes.

My doctor thought that I should stay on Biktarvy, and to redo the test in a week which I did. Then my numbers were still high. However, ALT dropped to 91 but AST went up to 117.
My doctor told me that these two enzymes usually peak on HIV meds but she's suspected that they will go back to normal. I redid the test last Tuesday and both are within normal ranges (higher than before the treatment, but normal).

Thank you all for your encouraging words and help when I was driving myself crazy!


Offline Expat1

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  • Posts: 385
Re: Updates
« Reply #1 on: December 13, 2019, 10:07:58 am »
I had a spike in these numbers about my 5th month on ARVs.   They spiked for about 6 weeks and returned to normal.  I was worried but doctor said it was common.  He was vigilant about testing for the next few weeks.  Said if it went to 5 times normal he would be very concerned, and if to 10 times normal time for different medicines or switch out the ones that were likely responsible, or go off meds till normal (while under supervision and only brieftly.)

Hang in there.

Offline Jim Allen

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Re: Updates
« Reply #2 on: December 22, 2019, 12:02:58 pm »
Glad to hear all was fine.

Best, Jim
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Online harleymc

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Re: Updates
« Reply #3 on: December 22, 2019, 09:00:19 pm »
YAY!

Live long enough and you'll accumulate a few test results that are off the scale.

I'm 34 years into this journey, the latest weird one for me, is cholesterol that is unmeasurably high, literally of the scale,  So we'll see next time around as my previous tests have been in healthy range.

It's amazing what a few months will do or a different lab etc etc

Offline JosephP

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  • Posts: 318
  • Keep looking FORWARD... Dx'd 8/10/2013...
Re: Updates
« Reply #4 on: December 23, 2019, 11:11:08 pm »
a brief background:
I was diagnosed the first week of October and I was on Biktarvy on October 9th.
Initial numbers CD4: 456 and 19%, VL 239.
November 26th: CD4 638 and 28%, VL UD <20.

However, the tests on Nov 26th should high levels of my AST (68) and ALT (166) liver enzymes.

My doctor thought that I should stay on Biktarvy, and to redo the test in a week which I did. Then my numbers were still high. However, ALT dropped to 91 but AST went up to 117.
My doctor told me that these two enzymes usually peak on HIV meds but she's suspected that they will go back to normal. I redid the test last Tuesday and both are within normal ranges (higher than before the treatment, but normal).

Thank you all for your encouraging words and help when I was driving myself crazy!

Don't worry, mate! These spikes while terrifying seem to be normal occurrence as our bodies deal with the hiv.. I had a spike in my VL about 6 months after initiating treatment, and I panicked. My ID Dr. told me not to worry but you can just imagine how could I do that... I had the tests repeated about a week later and that was the longest week waiting for the results.... Then I got a call from the doctor telling me that everything was just fine... But for added security she had requested the tests to be completed again and by a different lab. All was fine... But talk about stress! Don't drive yourself crazy. It is easy to do..
Today January 20, 2020, I have taken 2378 pills of my ARV since first pill. This means 79 bottles of 30 pills of ARVs at an average of $3950 per bottle or $313,103 USD for my treatment. I have a compliance of 99.83% taking my meds and only .17% (or 4 pills) non-compliant. Of these four pills two I forgot completely, One I lost and one I didn't have with me while traveling! I became UD 3 months after treatment start   ***We are all dealing with this. And we will live long and productive lives!! AND, yes the Lord is my shepherd. Life is good... And thanks for the meds! ***

 


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