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Author Topic: Found out last week but found out my cd4 score yesterday and it's low  (Read 5058 times)

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Offline Josenoway10

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The result came back at 108 for my cd4 score. I couldn't have been infected for more the 6 months either. Is this normal or am I in a dire situation?

Offline Ptrk3

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CD4's of 108 is low, but the fact that you are not ill is very good.  Many people with CD4's like yours or lower recover swiftly and go on to live long and healthy lives.

What you need to focus on now is getting your viral load count and the genotype of your HIV infection in order that you can get on an appropriate antiretroviral regimen to stop the virus from replicating within your body (goal:  an "undetectable"
viral load) so that your CD4 count can recover and climb to 200 and above.

You may also need to start on Bactrim in order to guard against opportunistic infections such as pneumocystis pneumonia.

Though you have a low CD4 count, with proper medication and due adherence to its regimen, you will fully recover. 

Work with your health care providers to begin the appropriate medical intervention as soon as possible.
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Offline Tonny2

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  • Posts: 2,938

          ojo         Hola Pepe...I'm sorry for your diagnosis, I, as must of all, know how you are feeling right now, but I got news for you, you are going to be fine. Your cd4 is low, but eventually, will go up, first thing to achieve is to bring down your viral load, whatever might be, and to do that, you have to start treatment...I hope you are already seeing and specialist so you can have all kind of blood test done and start med or meds...I can only wish you the best for now, hang in there like a monkey and keep us posted, va?...cyber hug, you need it                                                       ojo

Offline baylav

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  • Posts: 13
Josenoway10, you are in a better position than me, mine is 30 and only found out last week, hopefully we will pull through. I havent started meds yet because of a chest infection. God willing we will all be ok.

Offline leatherman

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Quote
Many people with CD4's like yours or lower recover swiftly and go on to live long and healthy lives.
a quick word of encouragement to our new members:
quite a number of us were diagnosed with very low numbers. Nearly a 1/3 of the people who get diagnosed with HIV are diagnosed at a hospital because they are severely ill with low cd4s and an opportunistic infection (i.e. an AIDS/Advanced HIV diagnosis)

Getting diagnosed, getting on treatment, and remaining adherent are key to knocking the HIV down to undetectable, letting your cd4 rise (to whatever they will rise to), and going on to live a long and healthy life.

on a personal note, it was 20 yrs ago this past March, that I was last in the hospital with 5 cd4s and about to die of PCP (pneumonia). These days at 55, I'm healthier than I've ever been (UD and 375 cd4s), enjoying life with my dog, my husband (of 7 months) and our season passes to the local amusement park.

it's always hard at first to see the light at the end of the tunnel; but the tunnel isn't that long (thanks to the huge advancements in medications). it just takes a little time and meds to get these first days behind you. ;)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline LeftyBowler300

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  • Posts: 106
Hey JoseNoWay

You may be in a dire situation as far as needing to start your treatment, but you'll be fine otherwise. The important thing is you've caught it before it got worse.

Check my story in this forum.

I was diagnosed 2 months ago with a CD4 of 8 and multiple opportunistic infections.

Hospitalized for 6 days + 14 outpatient visits with a picc line inserted in my arm for infusions.

Only missed 3 weeks of work, haven't missed a day since, been going to the gym, started bowling again, running errands etc.. living a busy life.

Nowadays medicine is nothing short of phenomenal.

Are you under general care or do you see an infectious disease specialist?
Apr 1, 2017 DX - CD4 8 , VL 820,000
OI's: Disseminated Histoplasmosis, Thrush, PCP
Apr 17, 2017 started Genvoya, Bactrim, Sporanox, Azitrhomycin
Jun 9, 2017 - CD4 42 (3%) , VL 100
Jul 17, 2017 - CD4 57 (4%) , VL 53
Sep 16, 2017 - CD4 57 (4%) , VL 130 - Ugh..
Oct 20, 2017 - CD4 63 (5%) , VL 100
Dec 1, 2017 - CD4 56 (3%) , VL <20
Mar 15, 2018 - CD4 73 (5%) , VL <20
Nov 5, 2018 - CD4 104 (7%), UD
Jan 26, 2019 diagnosed with HIV-associated DLBCL (lympoma) with 6cm mass near liver w/ abdominal fatty tissue involvement
6 rounds of RR-EPOCH
2 rounds of high dose methotrexate
(8 rounds of IV chemo total)
11 Lumbar punctures with intrathecal chemo
June 5, 2019 - Complete Response/Remission
Feb 20, 2020 - CD4 187, VL UD
Aug 2020 - CD4 247, VL UD
Stopped all prophylaxis
June 2021 - 2 years remission

Offline kentfrat1783

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  • Posts: 421
  • Instagram: kentfrat1783
Well I was diagnosed after being admitted to the hospital with what I thought was pneumonia but was Pneumocystis pneumonia (PCP).  I really couldn't get any worse.  My o2 level fell to 75 and have some liver and heart issues, and turns out my CD4 count was 2.  Even the ID doctor said while he was telling me of the results I'm surprised you are still alive. 

It has just been over 2 months since I was diagnosed and doing better and on my second bottle of Atripla.  Limited side effects and feeling so much better.  I'm also on Bacterium and Zithromax.     

I'm just worried about my followup appointment in September as I hope my CD4 count goes up and to find out my viral load. 

Just talk with your doctor and do what you feel is best after hearing their advise. 
Date - CD4 - Percent - VL
08/23/23 - 366 - 26%
06/20/23 - 349 - 21% - UD
04/15/23 - 229 - 19% - <20
11/14/22 - 486 - 24% - 73
10/12/22 - 316 - 19% - <20
06/20/22 - 292 - 21% - <20
01/25/22 - 321 - 22% - <20
09/22/21 - 278 - 19% - <20
02/02/21 - 225 - 19% - <20
06/08/20 - 257 - 20% - <20
03/17/20 - 285 - 19% - 101 (2.00)
12/17/19 - 290 - 20% - <20
09/17/19 - 218 - 16%
06/18/19 - 173 - 16% - <20
03/13/19 - 170 - 16% - <20
January 2019 - Started Triumeq
12/05/08 - 174 - 18% - <20
08/28/18 - 166 - 15% - <20
05/08/18 - 106 - 11% - <20
03/05/18 -   90 - 10% - <20
12/11/17 -   60 -   8%
09/07/17 -   42 -   6% - 54 (1.70)
May 2017 - Started Atripla
05/11/17 -    2 -    1% - 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: US

Offline virgo313

  • Member
  • Posts: 358
Hello Josenoway10,

Just echoing what other said, "you will get better".
I have low CD4 too. I am feeling good now. You will too soon.

Regards.
RVD Nov 2015. VL --> Log 5.32 HAART on 23/11/15
TDF+FTC+EFV / Chemo KS - 25/11/15 - 20/01/16.
CD4 - 4 (3/11/15) / VL - 225,000

 


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