Welcome, Guest. Please login or register.
April 16, 2024, 05:46:13 pm

Login with username, password and session length


Members
  • Total Members: 37635
  • Latest: Ranoye
Stats
  • Total Posts: 773156
  • Total Topics: 66328
  • Online Today: 248
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 3
Guests: 183
Total: 186

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Someone Who Isn't Me  (Read 5335 times)

0 Members and 1 Guest are viewing this topic.

Offline oksikoko

  • Member
  • Posts: 690
  • Writing the congressman again
Someone Who Isn't Me
« on: April 02, 2013, 11:31:24 am »
Hi, everyone.

I know I'm persona non grata around here, but I've got a serious question for a friend (yes, I have one, and I need him to stay healthy a long time). It's really not me: I take Stribild.

He's run out of Atripla and can probably not get a new prescription for two weeks. He has Medicaid, but it's in the process of being renewed, so money/insurance is an issue. Does anyone have advice on options in these cases? We're in NYC and I'll do whatever needs to be done. PM me if you have any answers or advice.

Thanks,
Lee
Code: [Select]
2014-11-14: CD4 Wars Episode II: Return of the Stribild (released in Europe as Stribild II: Werewolf Bitch)
2014-11-06:                ☣ VL (→) 12,627      ☣ CD4 (→) 639
2014-??-??: off treatment  ☣ VL (?)              ☣ CD4 (?)
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

If no one complains, nothing will ever change.

Offline Matts

  • Member
  • Posts: 272
Re: Someone Who Isn't Me
« Reply #1 on: April 02, 2013, 02:53:08 pm »
Can't You order cheap generic Viraday online in the US?

Anyway, I thought everybody gets affordable HealthCare meanwhile, and the poor people have MedicAid or so, or Am I wrong?
It has to be possible to get lifesaving drugs even when You're in a renewing process or something is terribly wrong with the laws.
Dovato

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: Someone Who Isn't Me
« Reply #2 on: April 02, 2013, 04:10:02 pm »
ASO's can usually fill out an "emergency form" for one months of meds.
"I’ve slept with enough men to know that I’m not gay"

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: Someone Who Isn't Me
« Reply #3 on: April 02, 2013, 04:16:45 pm »
... who misses oksikoko greatly
"I’ve slept with enough men to know that I’m not gay"

Offline bmancanfly

  • Member
  • Posts: 786
  • Medicare For All !
Re: Someone Who Isn't Me
« Reply #4 on: April 02, 2013, 04:22:20 pm »
... who misses oksikoko greatly
Ditto

Check your PM's
« Last Edit: April 02, 2013, 04:24:58 pm by bmancanfly »
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: Someone Who Isn't Me
« Reply #5 on: April 02, 2013, 05:19:37 pm »
oksikoko - nice to see you!
Hope you are a successful angel on this quest.  :D
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline thunter34

  • Member
  • Posts: 7,374
  • His name is Carl.
Re: Someone Who Isn't Me
« Reply #6 on: April 02, 2013, 09:46:00 pm »
ASO's can usually fill out an "emergency form" for one months of meds.

Not here in Georgia.  The moment your eligibility expires, the wheels stop.  No meds - none - nada - zilch -until you get all your T's crossed and I's dotted.  With duplicates.

AIDS isn't for sissies.

Offline tednlou2

  • Member
  • Posts: 5,730
Re: Someone Who Isn't Me
« Reply #7 on: April 02, 2013, 11:15:28 pm »
Oksikoko,

I hope your efforts work out for your friend.  And, I hope you will come back and keep in touch here. 

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: Someone Who Isn't Me
« Reply #8 on: April 03, 2013, 02:52:28 am »
Not here in Georgia.  The moment your eligibility expires, the wheels stop.  No meds - none - nada - zilch -until you get all your T's crossed and I's dotted.  With duplicates.



I had it done here when I moved from NYC, one month only while my application was being processed. Grant it this was 9 years ago, nor is it heavily advertised and must be signed by both a case worker and a medical doctor.

My eligibility wasn't "expired" because I was a new applicant -- perhaps that is the difference. You know, like when someone is on death's door in an emergency room they will expedite your application.
"I’ve slept with enough men to know that I’m not gay"

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,786
Re: Someone Who Isn't Me
« Reply #9 on: April 03, 2013, 05:07:23 am »
At the ASO I work at, though it's not advertised, we are often able to get our hands on actual meds for someone who has a temporary window of being without them.  Some doctors actually get samples, and we get them from the doctor, or when people change meds they often donate the ones they will no longer be taking. 

I would check with the ASO's in your area.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Condom and Lube Info https://www.poz.com/basics/hiv-basics/safer-sex
Please check out our lessons on PEP and PrEP. https://www.poz.com/basics/hiv-basics/pep-prep

https://www.poz.com/basics/hiv-basics/treatmentasprevention-tasp

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: Someone Who Isn't Me
« Reply #10 on: April 03, 2013, 07:40:44 am »
At the ASO I work at, though it's not advertised, we are often able to get our hands on actual meds for someone who has a temporary window of being without them.  Some doctors actually get samples, and we get them from the doctor, or when people change meds they often donate the ones they will no longer be taking. 

I would check with the ASO's in your area.

same here
"I’ve slept with enough men to know that I’m not gay"

Offline Jeff G

  • Administrator
  • Member
  • Posts: 17,064
  • How am I doing Beren ?
Re: Someone Who Isn't Me
« Reply #11 on: April 03, 2013, 09:26:30 am »
This subject came up at our Patient Advisory Board meeting last night . The social workers and nurse practitioners put up with red tape and jump through the hoops to get meds from ADAP but if the patient isn't compliant or fails to get his meds one month it really messes the system up and new proscriptions don't get sent .

Patients at the clinic are complaining about 3 hour waits at the pharmacy while the social workers sort through meds , ADAP and shipment of meds when things go wrong . 
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline oksikoko

  • Member
  • Posts: 690
  • Writing the congressman again
Re: Someone Who Isn't Me
« Reply #12 on: April 03, 2013, 04:18:57 pm »
Thank you, everyone. I believe it's been sorted thanks to the advice and generosity of the members of this forum.

Gratefully,
Lee
Code: [Select]
2014-11-14: CD4 Wars Episode II: Return of the Stribild (released in Europe as Stribild II: Werewolf Bitch)
2014-11-06:                ☣ VL (→) 12,627      ☣ CD4 (→) 639
2014-??-??: off treatment  ☣ VL (?)              ☣ CD4 (?)
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

If no one complains, nothing will ever change.

Offline Fisher

  • Member
  • Posts: 290
Re: Someone Who Isn't Me
« Reply #13 on: April 04, 2013, 08:30:55 pm »
Persona non grata?

I have no idea why you would be.  But I'm relatively new here. But I do know that time heals, and the hearts I've felt here are full of life and forgiveness . . . even though the teeth are sharp and sometimes bite.  But rarely.
- fisher
06/15 CD 365 %24 VL<20
01/15 CD 468 %24 VL<20
09/14 CD 385 %22 VL<20
07/14 CD 391 %20 VLUD
04/14 CD 486 %23 VL<20
11/13 CD 351 %21  VL<20
10/13 CD 390 %16  VL<20
06/13 CD 315 %19  VL 22
02/13 CD 396 %14  VL<20
12/12 CD 392 %13  VL320
11/12 CD 428 %13  VL1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 – Western Blot
05/83 – 04/98 - Mon - Pa

 


Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.