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Recent Posts

Pages: [1] 2 3 ... 10
1
Insurance, Benefits Programs & HIV / Advice
« Last post by Tonny2 on Today at 12:59:34 pm »



         ojo.        Hi everyone!

I just got married to a foreigner, I added him to my health plan which it will increase my premium 230 dollars a month, we don’t want to be a “public charge” while his change of status process is pending. What I’m paying for him monthly it’s too much?, is there another option to get him health coverage, he is also hiv positive…in advance, thanks for feedbacks…hugs.                                                                     ojo
2
Living With HIV / Re: Forum Intro + Navigating US healthcare
« Last post by Withau on Today at 11:22:15 am »
Hi Leatherman,

Thanks for the info.  The Ryan White tip is very helpful.  I realize that most of the meds are developed in the US, but I was under the impression that Medicare and insurance companies choose what meds they will cover based on cost, etc.  Good to know that that is not necessarily the case. Thanks again.

3
Estoy infectado? / Re: Duda transmisión
« Last post by Jim Allen on Today at 09:55:17 am »
Buenos días. Soy hombre, y realicé masturbación mutua con otro hombre, eyaculamos ambos. Luego de ello nos masturbamos nuevamente y volvimos a eyacular ambos, por segunda vez. Mi duda es si el semen de mi pareja, que podría haber estado presente en sus manos, estuvo en contacto con el glande de mi pene y la cavidad de mi uretra, existe riesgo de transmisión de VIH.
Gracias.

No hay riesgo de vih, a menos que hayas tenido otros encuentros sexuales que no hayas mencionado aquí. .

Como eres sexualmente activo, hágase la prueba para detectar el VIH y las ITS por lo menos una vez al año.
4
Estoy infectado? / Re: Duda transmisión
« Last post by Nick2095 on Today at 09:22:59 am »
Buenos días. Soy hombre, y realicé masturbación mutua con otro hombre, eyaculamos ambos. Luego de ello nos masturbamos nuevamente y volvimos a eyacular ambos, por segunda vez. Mi duda es si el semen de mi pareja, que podría haber estado presente en sus manos, estuvo en contacto con el glande de mi pene y la cavidad de mi uretra, existe riesgo de transmisión de VIH.
Gracias.
6
Living With HIV / Re: Forum Intro + Navigating US healthcare
« Last post by leatherman on Today at 08:52:40 am »
In addition it looks like I would have to take what I get - no choice on meds and there might be limited treatment options.
in america? are you joking? every med is available here - as long as there is a payee. the only limit to which meds you take are you, your doctor, and what your insurance formulary will pay for. Formularies almost always cover all but the very most recent meds that have come to market. (Often those newer meds are added within a 6 month period) In 28 year of taking HIV meds (and I use medicare and medicaid) in OH, SC and NC, I've never encountered a limit to treatment options - except in the earliest years when the options themselves were very few.

unless someone from Wisconsin is here and chimes in, you're best bet is to locate the Ryan White HIV clinic nearest where you will be living or the Wisconsin state Ryan white office and speak to one of their representatives. They would be the best choice to help you navigate the Medicare, Ryan White extra help, and medicare Part B Drug insurance plans available in your state.

Looking at the info I can find online I'm wondering if I am correct to think HIV Meds will cost me about 6000 dollars a year.
HIV treatment costs $20-30k a year. Your out-of-pocket cost however would be based on what your insurance will cover and what extra help you might be provided by the Ryan White program (if financially eligible). Definitely talk to someone with Ryan White because unfortunately America's healthcare is a tangled expensive mess
8
Living With HIV / Forum Intro + Navigating US healthcare
« Last post by Withau on Today at 06:09:36 am »
Greetings,

I've been living in Europe for 25 years and am approaching retirement age.  I'm getting pressure from family to return to the US, and one of my kids made a great offer for low cost housing in rural Wisconsin.

However,  I am riding an emotional roller coaster trying to navigate the US healthcare system.  I can't figure out what HIV therapy would cost me on Medicare,  and it's overwhelming trying to figure out which plan would be best. 

Currently I only need to have labs done every six months and I pick up a prescription for 3 months of Genvoya and a blood pressure med each quarter.  My total cost per year including everything is 40 euros. My health is good and life is pretty stress free.

Looking at the info I can find online I'm wondering if I am correct to think HIV Meds will cost me about 6000 dollars a year.  In addition it looks like I would have to take what I get - no choice on meds and there might be limited treatment options.

I would be truly grateful if anyone would be willing to share advice or experience on how to "afford" HIV.  I would love to be closer to family,  but returning to the US feels like a dangerous move! I can also use suggestions on the best places to live, or any other topics that come to mind.

Thanks for reading and stay well. 
9
Research News & Studies / Enochian BioSciences
« Last post by Matts on Today at 04:13:31 am »
Some news that give some hope. A Longterm Survivor with quite high VL even under ART became undetectable for months. Another "normal" ART patient had the same results.

"Enochian BioSciences announces Scientific Presentation of a Person with HIV Exhibiting Controlled Blood Levels of Virus for 255 Days Following Treatment with a Novel Cellular Therapy


Published: May 12, 2021 

 
LOS ANGELES, May 12, 2021 (GLOBE NEWSWIRE) -- (NASDAQ: ENOB) – Enochian Biopharma, Inc., a company focused on gene-modified cellular and immune therapies in infectious diseases and cancer, today announced the release of preliminary data relating to the use of a novel cell therapy approach in controlling human immunodeficiency virus (HIV) in humans. Dr. Serhat Gumrukçu, co-founder and inventor of Enochian BioSciences and Director of the Seraph Research Institute (SRI), presented the findings at the Annual Meeting of the American Society of Gene and Cell Therapy (ASGCT). Presentation can be found at https://www.enochianbio.com/about-us/collaborations/

A 54-year-old man, diagnosed with HIV in 1986, had persistent HIV detected in his blood, despite antiretroviral therapy. With approval from an Institutional Review Board, this single patient was treated with a novel cellular therapy of natural killer (NK) and gamma delta T-cells (GDT) – a small subset of immune cells that can be infected with HIV but could also be a key factor in controlling the virus. The NK and GDT cells were collected from a person who does not have HIV. Because the patient stopped antiviral treatment and received some supportive medication before the cellular therapy, the level of HIV initially increased, as expected.

However, HIV levels began to decline after approximately three weeks, and after 100 days dropped below the detection level of routinely used blood tests (20 copies/ml). HIV levels in the patient’s blood have remained at or below detection for an additional 255 days, all while the patient has not been taking antiviral medication.

This innovative cell therapy could be a potential strategy to achieve a “functional cure” for HIV. This could potentially allow persons living with HIV to stop antiviral treatment for extended periods of time. Dr. Gumrukçu and SRI are currently pursuing a regulatory pathway with the FDA to study the approach in more patients. Enochian BioSciences holds the exclusive license for the proprietary technology.

Dr. Mark Dybul, a prominent global HIV expert and Executive Vice Chair of Enochian BioSciences said, “As an HIV researcher, clinician and former leader of large, global HIV treatment programs, I am excited by these results. Although antiviral treatment is very effective, it is expensive and some patients cannot, or do not want to receive it. This, combined with the fact that access to antiviral treatments is limited, creates a significant unmet medical need. While the findings presented are preliminary and in one person with HIV, I’m hopeful that with further testing in larger patient populations, SRI’s novel cell therapy approach could one day be an alternative HIV treatment to many.”

https://www.biospace.com/article/releases/enochian-biosciences-announces-scientific-presentation-of-a-person-with-hiv-exhibiting-controlled-blood-levels-of-virus-for-255-days-following-treatment-with-a-novel-cellular-therapy/
10
I’m considering that. If I quit holding onto the money for a down payment and just rent a new place, I can pay off my credit card and pay most of my car loan off. Plus get a new iMac. I’m thinking…

If you spend down the money, you probably wont lose medicaid.   This might be the time to get those dental implants, a used car etc.  Again talk to a case manager at an Aids Service Organization.
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