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Author Topic: Are your doctors dismissing you?  (Read 7581 times)

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Offline guitargal

  • Member
  • Posts: 114
Are your doctors dismissing you?
« on: November 21, 2018, 04:20:02 pm »
Just wondering if you are as frustrated as I am. The doctors and ASO's are not meeting my needs at all. I have even switched doctors, clinics and now moved to a new State and find the same run around. Nobody cares. No help out there.

please reply with a yes or no and your State, years positive as I may write an article and need some info. Feel free to PM me.

I find, being a woman, arrogant male doctors are dismissing my health issues. perhaps they have no answers, fine, just say so.  Not a one has been able to diagnose or treat my issues and not a one has said the word AIDS.

thanks
diagnosed in 1992.


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What a long strange trip it's been

Offline Grendal

  • Standard
  • Member
  • Posts: 36
Re: Are your doctors dismissing you?
« Reply #1 on: November 21, 2018, 09:12:23 pm »
Yes, they think antidepressants are the answer to everything. I’ll pm you.

Grendal
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Offline punkinpuff

  • Member
  • Posts: 11
Re: Are your doctors dismissing you?
« Reply #2 on: November 26, 2018, 02:14:18 pm »
Yes and no, and I'm in Texas.

I say yes, because all of the case managers and doctors I met initially were very dismissive and cold. It was really depressing. I don't have any health coverage besides Ryan White, so I thought that's just how it would have to be. But, I'm not one to just roll over and take it. I got on the phone and started calling the highest management I could get on the phone. And it worked! My husband and I now have a very caring and personable case manager and both have doctors that fit our individual needs.

There are professionals out there who care, but you have to dig around to find them. And don't be afraid to complain! The squeaky wheel gets the oil.
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Offline dallas nk

  • Member
  • Posts: 63
Re: Are your doctors dismissing you?
« Reply #3 on: December 01, 2018, 09:53:23 am »
I’m in Texas as well. I see a Dr. whose specializes in HIV and in regards to testing and evaluating my levels, he’s awesome BUT other health needs, not so much. He recommended that I get a “PCP” for my “other issues” and yes I’ve postponed finding a PCP because they are cold and even my HIV doctor likes to refer meto all sorts of other specialists etc when I complain about health issues. It’s an uphill journey but keep searching. There are great docs out there
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09/20/2016-diagnosed cd4 41 cd%5.8 VL 34990
11/2016-post-poned treatment while awaiting to qualify for ARV study- cd4 29 cd%? VL?
12/2016-started treatment (Triumeq) this late because found out didn't qualify for research study
1/24/2017- cd4 233 cd%15 VL<40
4/27/2017 cd4 206 cd%18 VL <40
07/24/2017 cd4 227 cd%20.6 VL <40
10/31/2017 cd4 191 cd%23.9 VL 70
12/7/2017 cd4 248 cd%22.5 VL <40
1/30/2018 cd4 220 cd%27.5 VL <40
4/17/2018 cd4 295 cd%29.5 VL <40
8/9/2018 cd4 310 cd%31 VL <40
11/15/2018 cd4 293 cd%32.6 VL <40
02/12/2019 cd4 347 cd%31.5 VL <40
10/09/2019 cd4 380 cd%31.7 VL<40
01/30/2020 cd4 337 cd%37.4 VL 70(started Biktarvy)
06/05/2020 cd4 306 cd%38.3 VL 20
07/31/2020 cd4 235 cd%39.2 VL 20
08/28/2020 cd4 248 cd%31 VL <40
12/02/2020 cd4 329 cd%36.5 VL 160
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