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Autor Tema: Latest results: I'm lucky and confused.  (Leído 6237 veces)

0 Usuarios y 1 Visitante están viendo este tema.

Desconectado auspoz

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  • Mensajes: 179
Latest results: I'm lucky and confused.
« en: Octubre 22, 2013, 06:13:23 am »
Ok, so after nearly 8 years since diagnosis, I got my latest numbers:
CD4: 720
%: 32
VL: 2180
No meds.

How is this possible? It's been a long time. I always prepared myself for lots of meds. My numbers have remained pretty similar. I thought I'd be on meds by now.

Don't get me wrong, I feel very lucky. But I feel confused as I haven't really tried to be mega healthy. 

This condition is fucking with my mind, when I should really be jumping for joy.

My heart honestly goes out to peeps who have a tougher time. In fact, I feel guilty to be like this.

Sorry, just had to share. Some things just make no sense to me.

auspoz.
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Desconectado Miss Philicia

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Re: Latest results: I'm lucky and confused.
« Respuesta #1 en: Octubre 22, 2013, 09:29:09 am »
I forget what the exact clinical definition is for a long-term non-progressor, but if you're not that then you are at least what would be called a long-term slow-progressor and may not need HIV meds for another 5 years or more.

Just make sure not to rest on your laurels -- continue to have your counts regularly monitored, and always have yourself mentally prepared to go on meds should your cd4 count reach the level that Australia dictates for doing so.

In the meantime enjoy your life, don't be confused about any of this, and by all means do not allow yourself to feel guilty that you are not on meds for so many years when other people are not so fortunate. It is, what it is.

And yes, I've known more than a handful of folks that have been in your position, some going on much longer before needing to go on HIV medications.
En línea
"I’ve slept with enough men to know that I’m not gay"

Desconectado J.R.E.

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  • Positive since 1985, joined forums 12/03
Re: Latest results: I'm lucky and confused.
« Respuesta #2 en: Octubre 22, 2013, 09:56:18 am »
Hey Auspoz,...

I was another one that went quite a few years, without being on meds. After being diagnosed positive in 1985, I had a TCELL count in the mid 900 range (med free), in 1999, ( 14 years),.. viral load was also at about 1000. Sometime after that, everything fell apart !

And I agree, ... enjoy life, and these years of not yet having to be on medication !! 

I also agree with MP, about not resting on your laurels.  This is where I made my mistake. It's gets too easy, living many years med free, it can allow one, to slip into a dangerous mindset.  By 2003, my tcells were at 16, and a viral load of 500,000, and I had a lot of bad shit going on.

The above is where you don't want to get to. So, keep up with your labs, and when it's time, you will be much better prepared to start.


Ray

 

En línea
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Desconectado auspoz

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  • Mensajes: 179
Re: Latest results: I'm lucky and confused.
« Respuesta #3 en: Octubre 23, 2013, 10:02:35 am »
Thank you both. I just felt weird. Maybe I'm a slow progressor. With my VL so low I guess that's true.

I'm glad I've had time to adjust to the idea of meds, it won't be scary, but considered.

Geez I'm glad I can vent here. :)

Hugs

auspoz.
En línea

Desconectado Fisher

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Re: Latest results: I'm lucky and confused.
« Respuesta #4 en: Octubre 23, 2013, 01:56:07 pm »
Ok, so after nearly 8 years since diagnosis, I got my latest numbers:
CD4: 720
%: 32
VL: 2180
No meds

It is quite possible. Look at my past stats.

If you were up to it and in the US, NIH would likely fly you in, bed and feed you, and collect a few of your white blood cells.



En línea
- fisher
06/15 CD 365 %24 VL<20
01/15 CD 468 %24 VL<20
09/14 CD 385 %22 VL<20
07/14 CD 391 %20 VLUD
04/14 CD 486 %23 VL<20
11/13 CD 351 %21  VL<20
10/13 CD 390 %16  VL<20
06/13 CD 315 %19  VL 22
02/13 CD 396 %14  VL<20
12/12 CD 392 %13  VL320
11/12 CD 428 %13  VL1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 – Western Blot
05/83 – 04/98 - Mon - Pa

Desconectado Miss Philicia

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Re: Latest results: I'm lucky and confused.
« Respuesta #5 en: Octubre 23, 2013, 03:35:00 pm »
Fisher, why did you go on Atripla a year ago and now say you aren't on meds and have a detectable viral load?
En línea
"I’ve slept with enough men to know that I’m not gay"

Desconectado tednlou2

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Re: Latest results: I'm lucky and confused.
« Respuesta #6 en: Octubre 23, 2013, 09:45:23 pm »
Cita de: Miss Philicia en Octubre 23, 2013, 03:35:00 pm
Fisher, why did you go on Atripla a year ago and now say you aren't on meds and have a detectable viral load?

Fisher quoted the OP without using the quote feature, which made it look like he was posting it about himself.  I thought the same thing, until I remembered those numbers sounded very familiar. 
En línea

Desconectado mikeyb39

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  • Mensajes: 980
Re: Latest results: I'm lucky and confused.
« Respuesta #7 en: Octubre 24, 2013, 12:32:41 am »
I like it when folks like to gloat (sp?) about there 'no med' status, always seems to do wonders for those having to remember to take their meds everyday
En línea
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD
09/05/2014 switched meds isentress, prezcobix -still only two antivirals
10/14/2015  cd4-600 , VL-UD

Desconectado auspoz

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  • Mensajes: 179
Re: Latest results: I'm lucky and confused.
« Respuesta #8 en: Octubre 24, 2013, 03:53:43 am »
I'm sorry you took it that I was gloating. Far from it. I'm confused as all hell.
En línea

Desconectado J.R.E.

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  • Mensajes: 8,207
  • Positive since 1985, joined forums 12/03
Re: Latest results: I'm lucky and confused.
« Respuesta #9 en: Octubre 24, 2013, 07:34:35 am »
Cita de: mikeyb39 en Octubre 24, 2013, 12:32:41 am
I like it when folks like to gloat (sp?) .


Whose gloating ?  I don't see any gloating taking place.!
En línea
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Desconectado Fisher

  • Member
  • Mensajes: 290
Re: Latest results: I'm lucky and confused.
« Respuesta #10 en: Octubre 24, 2013, 07:27:05 pm »
Cita de: Miss Philicia en Octubre 23, 2013, 03:35:00 pm
Fisher, why did you go on Atripla a year ago and now say you aren't on meds and have a detectable viral load?

All through my history I've always had a viral load usually between 1,500 and 2,500 and CD4+ between 700 and 900. Last fall my VL jumped to 120,000 and CD4+ down to 350. The virus managed a way around my natural immunity. So I needed to start therapy last winter. . .

I've been on Atripla for 3/4th a year, and now nondetectable. Unlike most stats if your read them mine are "reverse" with my latest results on the top, rather than on the bottom.
En línea
- fisher
06/15 CD 365 %24 VL<20
01/15 CD 468 %24 VL<20
09/14 CD 385 %22 VL<20
07/14 CD 391 %20 VLUD
04/14 CD 486 %23 VL<20
11/13 CD 351 %21  VL<20
10/13 CD 390 %16  VL<20
06/13 CD 315 %19  VL 22
02/13 CD 396 %14  VL<20
12/12 CD 392 %13  VL320
11/12 CD 428 %13  VL1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 – Western Blot
05/83 – 04/98 - Mon - Pa

Desconectado Fisher

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Re: Latest results: I'm lucky and confused.
« Respuesta #11 en: Octubre 24, 2013, 07:39:03 pm »
Cita de: Miss Philicia en Octubre 23, 2013, 03:35:00 pm
Fisher, why did you go on Atripla a year ago and now say you aren't on meds and have a detectable viral load?

I am confused. I haven't said I am not on meds now. I had a 22 copy VL load earlier this year which caused alarm. But not that I had stopped meds. But unless I did not put my words right, I never said I stopped taking meds.  If my CD4+ ever get back to the 700-800 range I plan to stop therapy and see if natural immunity can take back over. But that is highly unlikely.
En línea
- fisher
06/15 CD 365 %24 VL<20
01/15 CD 468 %24 VL<20
09/14 CD 385 %22 VL<20
07/14 CD 391 %20 VLUD
04/14 CD 486 %23 VL<20
11/13 CD 351 %21  VL<20
10/13 CD 390 %16  VL<20
06/13 CD 315 %19  VL 22
02/13 CD 396 %14  VL<20
12/12 CD 392 %13  VL320
11/12 CD 428 %13  VL1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 – Western Blot
05/83 – 04/98 - Mon - Pa

Desconectado Miss Philicia

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  • Mensajes: 24,793
  • celebrity poster, faker & poser
Re: Latest results: I'm lucky and confused.
« Respuesta #12 en: Octubre 24, 2013, 07:47:02 pm »
Cita de: Fisher en Octubre 24, 2013, 07:39:03 pm
I am confused. I haven't said I am not on meds now. I had a 22 copy VL load earlier this year which caused alarm. But not that I had stopped meds. But unless I did not put my words right, I never said I stopped taking meds.  If my CD4+ ever get back to the 700-800 range I plan to stop therapy and see if natural immunity can take back over. But that is highly unlikely.

Maybe I misunderstood something -- but in this post below you wrote:

CD4: 720
%: 32
VL: 2180
No meds
En línea
"I’ve slept with enough men to know that I’m not gay"

Desconectado jkinatl2

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Re: Latest results: I'm lucky and confused.
« Respuesta #13 en: Octubre 24, 2013, 11:13:38 pm »
Cita de: Fisher en Octubre 24, 2013, 07:39:03 pm
I am confused. I haven't said I am not on meds now. I had a 22 copy VL load earlier this year which caused alarm. But not that I had stopped meds. But unless I did not put my words right, I never said I stopped taking meds.  If my CD4+ ever get back to the 700-800 range I plan to stop therapy and see if natural immunity can take back over. But that is highly unlikely.

Really? Natural immunity?

Is this a thing that is being done?
En línea
"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Desconectado Fisher

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Re: Latest results: I'm lucky and confused.
« Respuesta #14 en: Octubre 30, 2013, 10:14:19 am »
Guess that's not the right turn for it. Maybe resistance.
En línea
- fisher
06/15 CD 365 %24 VL<20
01/15 CD 468 %24 VL<20
09/14 CD 385 %22 VL<20
07/14 CD 391 %20 VLUD
04/14 CD 486 %23 VL<20
11/13 CD 351 %21  VL<20
10/13 CD 390 %16  VL<20
06/13 CD 315 %19  VL 22
02/13 CD 396 %14  VL<20
12/12 CD 392 %13  VL320
11/12 CD 428 %13  VL1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 – Western Blot
05/83 – 04/98 - Mon - Pa

Desconectado auspoz

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Re: Latest results: I'm lucky and confused.
« Respuesta #15 en: Noviembre 02, 2013, 09:40:22 am »
Woah peeps. Back to ME! (Sheesh). Maybe I am a slow progressor. Hope I'm doing the right thing by staying off meds ATM. I'm sure I could go on them tomorrow if I asked. Just still seems weird to me. Wasn't expecting this. :/
En línea

Desconectado auspoz

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Re: Latest results: I'm lucky and confused.
« Respuesta #16 en: Noviembre 04, 2013, 07:54:25 am »
And so today my doc tells me I'm a "slow progressor". Probably. Jeepers this ole thing makes no sense.

Auspoz.
En línea

Desconectado mecch

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Re: Latest results: I'm lucky and confused.
« Respuesta #17 en: Noviembre 04, 2013, 10:31:19 am »
Auspoz, what exactly is bugging you? Why does is make no sense.  You are labelled and slow progressor, so voila!  Not the usual experience, but your experience makes perfect sense.

You can continue as you are, untreated. Or take treatment. Again, its a rational consideration that you can do, based on worlds of experience.  Then you make your decision and move on...

Whats the problem. Nobody identified that you were a slow professor up to this point? Well OK, now you know... Learn about that and count your lucky stars. 


____

The snafu about Fisher has already been explained.  He didn't HIGHLIGHT a quote.




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