PLease Help /Advice - Adverse Skin Allergy

[dewrites]

I am calling out franticly to those who are in similar situation or any Medical Experts to shear some light and advice on my experience;

I have been living the life of a vampire because I have to either confine myself at home with block out curtains or seek shelter over shopping malls or office buildings with basements access or shelter that shield me from any form of sunlight BY 645am to 730pm. I will have to stay or hide there for the whole freaking day in order to avoid the UV rays that caused my skin to burn up and itch.

To this day, I have yet discover the main reason (As in which drug) to my sun allergy nor recover from the burn-liked marks on my hand and wrist. Professor and senior consultant from the National Skin Centre told me that I might have to live with it for the rest of my life.

I am now on Lamivudine, Tenofovir, Atazanavir and Ritonavir for the last 18 months with cd4 of 800+ and UD. Found out that I am suffering from Thyroid-Graves disease recently, which is eating me from my sleep. I have great difficulty getting to sleep.

I am very sad and depress, as I cannot function like a normal human being. I cannot hold a proper job be it day or night job. I am deprived of living the simplest life.

Hope to hear from you,
De

Pictures attached:
http://s1180.photobucket.com/albums/x416/handandwrist/?action=view&current=Wrist.jpg&newest=1#!oZZ2QQcurrentZZhttp%3A%2F%2Fs1180.photobucket.com%2Falbums%2Fx416%2Fhandandwrist%2F%3Faction%3Dview%26current%3DHand.jpg%26newest%3D1

http://s1180.photobucket.com/albums/x416/handandwrist/?action=view&current=Wrist.jpg&newest=1#!oZZ1QQcurrentZZhttp%3A%2F%2Fs1180.photobucket.com%2Falbums%2Fx416%2Fhandandwrist%2F%3Faction%3Dview%26current%3DWrist.jpg%26newest%3D1

[Ann]

Hi Dewrites, welcome to the forums.

I'm sorry nobody responded for so long, but I don't think any of us could tell you anything more than what the professor and senior consultant from the National Skin Centre told you. Could you get a second opinion? Your ID doctor may be able to give you another referral. It sounds like you need a more aggressive investigation and evaluation.

I was wondering if your Graves disease might have something to do with it so I did some googling, but I couldn't find a connection to the type of skin problem you're experiencing. Are you treating the Graves?

On a lighter note, maybe you could move somewhere like northwest England where we don't get all that many sunny days.

My heart goes out to you - it can't be much fun living like a vampire. Hang in there ok? And see about finding a dermatologist who will investigate your problem more thoroughly. Good luck!

Ann

[dewrites]

Thanks and hugs, Ann

Apologized for the tardy reply. I just have to accept it as part of my life

Appreciated your input and well wishes.
Regards,
de

[dewrites]

Hi Ann,

And yes, I am on 6 x Camazol & 2 x Inpanol tablets for the am for this stubborn Thyroid of mine and 2 x Inpanol before bed to calm my heart beat.

Thank you v much for asking
de

[Ann]

Dewrites, sorry to hear you haven't gotten anywhere with this problem. I hope the two meds you mention are helping with your thyroid and sleep problems. Take care of yourself and hang in there, ok?

Hugs back atcha,
Ann