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Main Forums => I Just Tested Poz => Topic started by: Poz-3/6/07 on March 29, 2007, 05:32:40 pm

Title: NEED HELP - Website for tracking our numbers?
Post by: Poz-3/6/07 on March 29, 2007, 05:32:40 pm

I remember reading on this forum a website that people use to help track their CD4 and VL numbers.

I cant find the post....

Anyone have a great website to help us track our progress?

Staying Positive about being Positive

 ;D ;D ;D ;D

Title: Re: NEED HELP - Website for tracking our numbers?
Post by: milker on March 29, 2007, 06:02:56 pm

The cool tools!

http://www.aidsmeds.com/CoolTools.shtml

Milker.

Title: Re: NEED HELP - Website for tracking our numbers?
Post by: Poz-3/6/07 on March 29, 2007, 07:18:08 pm

Thanks Milker !!!!!

I appreciate it.

Title: Re: NEED HELP - Website for tracking our numbers?
Post by: BobF on May 19, 2007, 06:05:36 pm

It's a great, free site for testing all sorts of tests we have to have (or may have to have!) -- beyond just VL and CD4.

Title: Re: NEED HELP - Website for tracking our numbers?
Post by: LT on May 21, 2007, 06:08:11 am

Perhaps I'm an old fuddy duddy here.

I'm a full fledged geek, having started playing with computers 35 years ago.  Obviously I'm very comfortable with these little digital beasts.  I've used them to track and graph my numbers for more than 21 years.

All that being said, I'm not sure I'd want to keep my blood counts online.  There's always the issue of web site longevity.  Some day the sponsors may choose to pull the plug, and then your data is all gone.  Also worth considering, is site security.  How well is the data backed up?  How current are security patches applied to the software?  How frequently are patches applied?  Could a hacker trash it all, and again your records go Poof.  Also from a security point of view, how private is the data?  Is it stored in an encrypted manner? Would others have access to it? Admittedly all the bad guys could do is track it back to an email address.

I know a lot of younger people like to live their entire life online.  That's fine, and I'm certainly not judging or criticizing.  I'd just like to suggest an alternative.

This might sound shocking and antique, you could always do it the old fashioned way, and at least keep a paper backup.

Project Inform (one of the first groups to translate HIV issues and treatment information , from medical mumbo jumbo into human readable terms) has a pretty good PDF package of forms to keep track of all your HIV related medical stuff.  They've even got a page in there our female friends.  The link to that package is:
http://projectinform.org/pdf/tracking.pdf (http://projectinform.org/pdf/tracking.pdf)

Title: Re: NEED HELP - Website for tracking our numbers?
Post by: Ann on May 21, 2007, 06:34:16 am

Hi LT,

The graphs produced in Graph My Labs are printable, so it's easy to keep a paper record of them.

I can't address the security questions - but I'll make sure Peter sees this thread.

Ann