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Author Topic: Bloodwork and Virtual Visits  (Read 2408 times)

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Offline kentfrat1783

  • Member
  • Posts: 397
  • Instagram: kentfrat1783
Bloodwork and Virtual Visits
« on: April 15, 2023, 03:37:45 pm »
Hi All,

Hope everyone is doing well and if you are lucky enough to have some nice weather your way I hope you have been able to enjoy it the way you want too.

Now onto my story.  I had my virtual visit with my specialist just to do over some basics and to get orders for bloodwork and to get a refill on my Rx.  They would have refilled anyways but I wanted to get my labs done. Mostly my CD4 as I'm just pre-occupied with that.

Some of the results are already in and now the one that worries me is my Bilirubin level.  Not that it is out of range yet but it has been trending higher the past few years and just at the max normal range of 1.0.



My other livers tests are well within normal range.  I'm sure they will just say they will wait and test again in 6 months but I do the "what ifs" on if it is indicating another issue. 

Just another thing to look at but if their is a problem at least we will be able to look into it quickly.  That is the one benefit of being positive.  We know a crap ton about our bodies and catch issues early. 

Kenneth
Date - CD4 - Percent - VL
08/23/23 - 366 - 26%
06/20/23 - 349 - 21% - UD
04/15/23 - 229 - 19% - <20
11/14/22 - 486 - 24% - 73
10/12/22 - 316 - 19% - <20
06/20/22 - 292 - 21% - <20
01/25/22 - 321 - 22% - <20
09/22/21 - 278 - 19% - <20
02/02/21 - 225 - 19% - <20
06/08/20 - 257 - 20% - <20
03/17/20 - 285 - 19% - 101 (2.00)
12/17/19 - 290 - 20% - <20
09/17/19 - 218 - 16%
06/18/19 - 173 - 16% - <20
03/13/19 - 170 - 16% - <20
January 2019 - Started Triumeq
12/05/08 - 174 - 18% - <20
08/28/18 - 166 - 15% - <20
05/08/18 - 106 - 11% - <20
03/05/18 -   90 - 10% - <20
12/11/17 -   60 -   8%
09/07/17 -   42 -   6% - 54 (1.70)
May 2017 - Started Atripla
05/11/17 -    2 -    1% - 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: US

Offline Jackmydin

  • Member
  • Posts: 91
Re: Bloodwork and Virtual Visits
« Reply #1 on: April 16, 2023, 08:12:12 am »
I had similar issue with my liver now too, my AST/ALT reading is considered high, and my doctor puts me in liver ultrasound +hep b/c testing.

Did your doctor give you any explanation what could possibly cause the high bilirubin?

Offline kentfrat1783

  • Member
  • Posts: 397
  • Instagram: kentfrat1783
Re: Bloodwork and Virtual Visits
« Reply #2 on: April 16, 2023, 09:33:50 am »
Well I am one of those bad patients that look at my results before I hear back from them (That's the bad part of the online account).  I don't expect to hear from them until I get my CD4 results back in a week or so. 

I'm sure that I won't be able to get additional testing until it is truly out of range.  I do know that I got the vaccine (TWINRIX) for Hep A and B but I have no immunity for Hep B so they are looking at that closer. 

Just all the fun and see what they say in a few weeks.
Date - CD4 - Percent - VL
08/23/23 - 366 - 26%
06/20/23 - 349 - 21% - UD
04/15/23 - 229 - 19% - <20
11/14/22 - 486 - 24% - 73
10/12/22 - 316 - 19% - <20
06/20/22 - 292 - 21% - <20
01/25/22 - 321 - 22% - <20
09/22/21 - 278 - 19% - <20
02/02/21 - 225 - 19% - <20
06/08/20 - 257 - 20% - <20
03/17/20 - 285 - 19% - 101 (2.00)
12/17/19 - 290 - 20% - <20
09/17/19 - 218 - 16%
06/18/19 - 173 - 16% - <20
03/13/19 - 170 - 16% - <20
January 2019 - Started Triumeq
12/05/08 - 174 - 18% - <20
08/28/18 - 166 - 15% - <20
05/08/18 - 106 - 11% - <20
03/05/18 -   90 - 10% - <20
12/11/17 -   60 -   8%
09/07/17 -   42 -   6% - 54 (1.70)
May 2017 - Started Atripla
05/11/17 -    2 -    1% - 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: US

Offline kentfrat1783

  • Member
  • Posts: 397
  • Instagram: kentfrat1783
Re: Bloodwork and Virtual Visits
« Reply #3 on: April 17, 2023, 08:55:10 pm »
And the magic tests came in today:

CD4: 229
VL: <20



At least the CD4 is back to where I thought it should be, as I didn't believe the November numbers. 

Last, is it bad that it made me think of "Life Support" from Rent?  (Hopefully that didn't age me too much)
Date - CD4 - Percent - VL
08/23/23 - 366 - 26%
06/20/23 - 349 - 21% - UD
04/15/23 - 229 - 19% - <20
11/14/22 - 486 - 24% - 73
10/12/22 - 316 - 19% - <20
06/20/22 - 292 - 21% - <20
01/25/22 - 321 - 22% - <20
09/22/21 - 278 - 19% - <20
02/02/21 - 225 - 19% - <20
06/08/20 - 257 - 20% - <20
03/17/20 - 285 - 19% - 101 (2.00)
12/17/19 - 290 - 20% - <20
09/17/19 - 218 - 16%
06/18/19 - 173 - 16% - <20
03/13/19 - 170 - 16% - <20
January 2019 - Started Triumeq
12/05/08 - 174 - 18% - <20
08/28/18 - 166 - 15% - <20
05/08/18 - 106 - 11% - <20
03/05/18 -   90 - 10% - <20
12/11/17 -   60 -   8%
09/07/17 -   42 -   6% - 54 (1.70)
May 2017 - Started Atripla
05/11/17 -    2 -    1% - 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: US

Offline numbersguy82

  • Member
  • Posts: 431
  • Adrian Alan
    • Instagram
Re: Bloodwork and Virtual Visits
« Reply #4 on: April 18, 2023, 09:51:41 am »
Hey Kenneth,

Glad to hear that your cd4 is what you hoped it to be. I will be honest I don't have much input regarding the other figures, but I am glad you are that feeling good!

Rent? The musical??? Oh no, the only songs I know are fast food jingles LOL

Alan
JOIN US FOR PEER SUPPORT Every other Friday @ 7pm EST, PM me your email address for meeting link/information

Offline LeftyBowler300

  • Member
  • Posts: 106
Re: Bloodwork and Virtual Visits
« Reply #5 on: April 18, 2023, 05:05:46 pm »
I wouldnít worry about it if itís in the normal range. Even if itís mildly high.
If itís greater than 3 and associated with acute severe abdominal pain or other elevated liver blood work then itís a cause for worry.
Iíve had more dances with jaundice than I care to. Both involving either a flattened or blocked bile duct. In both cases I had severe abdominal pain, bilirubin was higher than 7, and other liver blood work (AST/ALT) was way out of wack too.
Apr 1, 2017 DX - CD4 8 , VL 820,000
OI's: Disseminated Histoplasmosis, Thrush, PCP
Apr 17, 2017 started Genvoya, Bactrim, Sporanox, Azitrhomycin
Jun 9, 2017 - CD4 42 (3%) , VL 100
Jul 17, 2017 - CD4 57 (4%) , VL 53
Sep 16, 2017 - CD4 57 (4%) , VL 130 - Ugh..
Oct 20, 2017 - CD4 63 (5%) , VL 100
Dec 1, 2017 - CD4 56 (3%) , VL <20
Mar 15, 2018 - CD4 73 (5%) , VL <20
Nov 5, 2018 - CD4 104 (7%), UD
Jan 26, 2019 diagnosed with HIV-associated DLBCL (lympoma) with 6cm mass near liver w/ abdominal fatty tissue involvement
6 rounds of RR-EPOCH
2 rounds of high dose methotrexate
(8 rounds of IV chemo total)
11 Lumbar punctures with intrathecal chemo
June 5, 2019 - Complete Response/Remission
Feb 20, 2020 - CD4 187, VL UD
Aug 2020 - CD4 247, VL UD
Stopped all prophylaxis
June 2021 - 2 years remission

Offline kentfrat1783

  • Member
  • Posts: 397
  • Instagram: kentfrat1783
Re: Bloodwork and Virtual Visits
« Reply #6 on: April 18, 2023, 07:29:20 pm »
I wouldnít worry about it if itís in the normal range. Even if itís mildly high.

Sometimes I just need reminded that it's OK.  Even my Specialist came back and message that she is pleased with all of my labs but one is still waiting to come back. I can just from time to time blow things out of proportion.

Rent? The musical???

Yes, the musical. Doesn't help that sometimes those songs come on when I'm at the gym.  I'm glad I have my headphones in as I could only imagine what people would think.
Date - CD4 - Percent - VL
08/23/23 - 366 - 26%
06/20/23 - 349 - 21% - UD
04/15/23 - 229 - 19% - <20
11/14/22 - 486 - 24% - 73
10/12/22 - 316 - 19% - <20
06/20/22 - 292 - 21% - <20
01/25/22 - 321 - 22% - <20
09/22/21 - 278 - 19% - <20
02/02/21 - 225 - 19% - <20
06/08/20 - 257 - 20% - <20
03/17/20 - 285 - 19% - 101 (2.00)
12/17/19 - 290 - 20% - <20
09/17/19 - 218 - 16%
06/18/19 - 173 - 16% - <20
03/13/19 - 170 - 16% - <20
January 2019 - Started Triumeq
12/05/08 - 174 - 18% - <20
08/28/18 - 166 - 15% - <20
05/08/18 - 106 - 11% - <20
03/05/18 -   90 - 10% - <20
12/11/17 -   60 -   8%
09/07/17 -   42 -   6% - 54 (1.70)
May 2017 - Started Atripla
05/11/17 -    2 -    1% - 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: US

Offline leatherman

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  • Member
  • Posts: 8,470
  • Google and HIV meds are Your Friends
Re: Bloodwork and Virtual Visits
« Reply #7 on: April 18, 2023, 09:04:23 pm »
Yeah! You're undetectable!

I'm glad I have my headphones in as I could only imagine what people would think.
LOL The staff at Planet Fitness have a running joke trying to guess what I'm listening and lip-syncing to when I'm on the treadmill. They have learned that "Off the Wall" by Michael Jackson is the BEST album; Missy Elliot and NIN have the best tunes for the elliptical; and Dream Girls and Phantom of the Opera tie for best musicals.

Rent? The musical??? Oh no, the only songs I know are fast food jingles
hopefully you're joking or else you're like my poor Larry. I don't know how he ended gay believing that "Burlesque" is a musical. At least it's got Cher. So now, much to his chagrin, I found out that DirecTV has a Musical channel and he comes home most days to hear me singing along. At least now he's interested in the  "legally blonde" musical. ROFLMAO
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

 


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