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Main Forums => Living With HIV => Topic started by: Dan J. on April 26, 2007, 12:24:56 pm

Title: What is the biggest personal challenge you face regarding your hiv status?
Post by: Dan J. on April 26, 2007, 12:24:56 pm
I guess with me it's trying to keep a positive attitude, fighting depression and anger at myself to not taking care of me 20+ years ago. Lately I've been missing meds. I haven't taken a dose in 5 days. I know I need to, but I just don't want to. Sometimes I feel like a need a break from the abdominal discomfort, PN,  & other side effects. I don't know when I will take another dose of meds. Maybe Friday, maybe not.

Dan
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: ademas on April 26, 2007, 12:39:58 pm
Battle fatigue is my biggest challenge.
I have a bipolar brother who needs me, and a dog who adores me. 
If it weren't for them, I don't know that I wouldn't have opted out by now.

(Dan...take your meds, or take a break from them altogether!  I know you know this...)

xox
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: David_CA on April 26, 2007, 12:46:58 pm
Dan, I hope things improve for you soon.  Personally, I'm afraid -almost paranoid- about missing doses.  I've only been on meds for 5 months, but I haven't missed any so far.  I felt so crappy when I had that nasty PCP a while back and do not wish to repeat that experience.

As to the biggest personal challenge, I guess it's not getting overwhelmed by all this.  I'd not had any health concerns until a little over a year ago when I found out my HIV status.  It's was a shock to find out that I really wasn't as invincible as I've always felt I was.  I try not to think of any of this as permanent, although I know it is.  It helps keep me from dwelling on it all.  Take care.

David
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: GSOgymrat on April 26, 2007, 01:10:59 pm
It probably sound shallow but dealing with lipoatrophy has been my biggest challenge. I handled the other symptoms and side effects, the uncertainty about the future, the clinical trials, the medical bills, my partner being ill, etc with less difficulty. Because I've kept my HIV infection a secret from practically everyone the lipo stressed me out. When coworkers pulled me into their office and asked if I'm feeling okay, when family members made comments about how thin I am, when strangers made rude comments it all felt like a personal attack. I'd have to quickly think up an excuse to cover up the secret. It suck when you catch people talking about you behind your back. Part of me would like to just tell people and be done with it but I have my partner's feeling to think about. It's not my secret is our secret.

So if it is such a big secret why am I posting photos? Because I felt the need to share my lipo experience with other people who are going through it. Because I'm not ashamed of having HIV. Because if people find out about it they will just have to deal. My partner was not happy when I posted my lipo photos but since doing so I've received emails from over 300 people from literally around the world thanking me for doing so. He has since conceded that I did the right thing.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Dan J. on April 26, 2007, 01:24:38 pm
It took  a lot of strength for you to post your lipo photos. Mucho respect to you. thanks for sharing.

 :-* Dan

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jimw on April 26, 2007, 01:50:24 pm
Whether or not to tell my parents.  I come up with a million reasons not to tell them, but I want to, I want them to know, but I don't want them to worry about me (reason #1).  My mom's best friend's son died back in the beginning of the epidemic from AIDS (PCP) and I remember how much that upset her and I am afraid that she will think that my fate is the same as Steven's.  J. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: puertorico2006 on April 26, 2007, 01:58:10 pm
Lipo scares me too....Im not on meds but I know the day will come...

that and social rejection......

but honestly so far my fears have "not come true" because i havent been rejected so i guess im lucky  ;D

I havent had any health issues to deal with yet thankfully but im sure if i did then i would be worried about other things...
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Dan J. on April 26, 2007, 02:21:22 pm
Whether or not to tell my parents.  I come up with a million reasons not to tell them, but I want to, I want them to know, but I don't want them to worry about me (reason #1).  My mom's best friend's son died back in the beginning of the epidemic from AIDS (PCP) and I remember how much that upset her and I am afraid that she will think that my fate is the same as Steven's.  J. 

Jim,

You will decided in your own time when you feel it is right to tell your parents.  I am pretty sure your  parents would be sad and worry about you if & when you do  tell them, but from what I can gather in your post I am even more sure that they would be there to support you the best way that they would know how to.  I wish you the best, and you will find plenty of support here when you do feel the time is right to tell your family.

Dan
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jimw on April 26, 2007, 03:39:19 pm
Jim,

You will decided in your own time when you feel it is right to tell your parents.  I am pretty sure your  parents would be sad and worry about you if & when you do  tell them, but from what I can gather in your post I am even more sure that they would be there to support you the best way that they would know how to.  I wish you the best, and you will find plenty of support here when you do feel the time is right to tell your family.

Dan

Dan, thanks.
I have been struggling with this for a while and picked up the phone a couple of times and called to tell them but ended up just talking about other things.  I just don't want them to find out some other way, as I am out to all my friends and some of my family, but they know my parents don't know.  thanks for the support, J
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: sdcabincrew74 on April 26, 2007, 06:26:34 pm
Utter exhaustion.  That is my biggest challenge.  Granted I feel 1,000 times better than I did just before going into the hospital with PCP.  But an afternoon nap is almost a constant in my life these days. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Matty the Damned on April 26, 2007, 06:36:55 pm
Treatment adherence. It's an enormous effort for Matty the Damned. Not the night-time dose, but remembering to take the morning dose.

Bugger. Which is what I've gotta do know. Ah, shit! Or did I already take the fucking thing?

MtD
(Who can never remember)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Blixer on April 26, 2007, 06:49:30 pm
Matty,  That's why I put mine in the weekly pill container set.  Then I can look and "know" if I've taken those buggers.  It is almost like automatic for me.  I wake up at 6 AM every morning and take those things.  Almost like a built in alarm clock.

Dan, I can understand not wanting to take the meds. I can understand wanting a break from the side effects.  I look at mine ever now and then and think... "you mean I have to do this for the rest of my life???"  And then I do it....

I think my biggest challenge is the social stigma that leads me to being a bit of a hermit.  I'm very shy anyway.  I do want to get back into the dating realm, but the disclosure issue really puts me off.  I'm afriad of rejection.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: cubbybear on April 26, 2007, 07:24:20 pm
Mine is trying to get out of this funk I've been in since I was diagnosed and was very sick in 2005.  I've not been the same since, and trying to get on top of that and back to my usual self is the biggest challenge.  Right when I think I am back up there and come out swinging, I get KO'd again.  That's my biggest challenge since becoming HIV+.  I want my mojo back.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Matty the Damned on April 26, 2007, 07:41:27 pm
Matty,  That's why I put mine in the weekly pill container set.  Then I can look and "know" if I've taken those buggers.  It is almost like automatic for me.  I wake up at 6 AM every morning and take those things.  Almost like a built in alarm clock.

Hey Blixie,

Yeah I know. I'm gonna get one of those things next week when I see my GP, the Honourable Lady Jane.

MtD
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on April 26, 2007, 08:07:23 pm
The biggest challenge for me has been just being a woman with AIDS.  There's not a whole lot of studies on women and the special situations women with HIV  have always seem to go, well, for lack of better words, unstudied.   
     That, and the lack of support.  I don't know one other woman in my town who has HIV.  Not even in neighboring towns.  The two women I know who had died quite awhile ago. 
     Other then that, it's just something else to deal with...........
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mjmel on April 26, 2007, 08:15:47 pm
The biggest challenge was to stop the self-destructive lifestyle and thoughts of dismay. I abolished that messy mind set in the early 90's.
Recent 2 years: Acute facial wasting--which has been corrected.
Since 2000: Constant fatigue. I address that issue with vitamins/supplements and 5 mg. dexies to jump start my day.
Meds at 6 am/6pm: Even with the weekly med box I still forget to take my meds from time to time. Have forgotten either morning or night dose but never both. I don't freak out about it--no point in that kind of reaction.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: xyahka on April 26, 2007, 08:18:42 pm
Well.... my biggest challenge? there are lot (1 month and half diagnosed here...)

1. I have debts with my credit cards over 2000 usd and my current salary is not enough to pay them
2. Yesterday i got all my credit cards blocked until i pay those i am in debt with
3. I am getting paid 90 usd every two weeks and banks want me to pay something like 200 usd monthly (not leaving anything for food, transportation, etc).
4. I got water cut at home cause i couldn't pay it.
5. The fear of telling my older sister and the way she would react
6. The fear for lypodistrophy and that some day i will hit hospital bed (which will lead to my disclosure at work... even if i try to hide it, once disclosed i will be fired... common thing here)
7. The fear i can infect someone else (or perhaps already infected someone) and they will come back to claim what i did so... eventhough i wasn't aware of my status
8. I am affraid to cry, and depress since i have heard what it does to us....but sometimes i just need to do it.
9. Fearing to die in a pity way
10 Another thing hard to handle is the huge amount of pain i receive everyday... from professional sides, personal side, days like yesterday when i broke down and cry are becoming so usual...that sometimes i just can't stand them anymore...
11. It is difficult to get rid of the anger, frustration, and real hate i have towards life nowadays... i didn't deserve this... i know none does, but i always... always tried to be a good person... have my hands clean... never hurt anyone... and what i got? an hiv diagnosis.
12. Other hard thing is that I am 1 month and a half into this and i still don't know my first Cd4 results i will get them in two weeks. Don't even expect VL test, thats too expensive so they won't do it also there just ONE machine in the whole country able to do such test.

I try everyday not to lose the faith..... but days like yesterday i just doubted God worried about my situation... i just simply though "he must be playing on the other side... against me".

These are just few of the things i find hard to handle...and i am just a month and a half in this.... if what will come later will be worst.... i am not sure i can make it.

Juan Carlos
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Dan J. on April 26, 2007, 08:38:47 pm
Juan,

Just remember that this forum is here for you & that you are not alone in this struggle.

Dan
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on April 26, 2007, 09:33:59 pm
Juan:
    We're here for you!  All you have to do is make it through-one day at a time (I know that line is overused, but it works).
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: milker on April 26, 2007, 10:16:33 pm
I thought about this post a lot and I can't find a challenge for now. May be the fear of rejection, but this seems so selfish to me that I don't count it as a challenge. Maybe it will be when i'm rejected many times.

Juan, your blog was very positive, so it sounds like despite all those burdens you are able to have enough strength to overcome them. If you suddenly get overwhelmed you know where to call for help :)

Milker.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Iggy on April 26, 2007, 10:16:49 pm
The biggest challenge for me is to lose the baggage that comes with having HIV;  I need my strength and focus in too many other areas than to worry about that which I can't control.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: SouthSam7 on April 26, 2007, 11:02:21 pm
Depression for sure, but also physical fatigue.  Today on my way out of town I wondered if taking a med holiday would give me some energy back.  I almost fell asleep at the wheel even though I got 7 hours of sleep last night.

I was fine mentally when I was first diagnosed, but there are things you never think about until you find out you're positive and you've lived with it a while.  Like how draining keeping such a big part of your life secret from so many members of your family, your friends and co-workers. 

Yeah I'm glad I'm here - for the moment.  But sometimes I think what's the point of dragging it out, if I'm always tired and "living a lie".
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on April 26, 2007, 11:24:16 pm
Hey guy in Bama:
  What do you mean by "living a lie?"
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Pilot on April 26, 2007, 11:45:04 pm
The hardest thing is keeping it a secret from everyone and I understand how someone might feel they are living a lie....but what choice does one have when if its found out it can be a bad situation gone worse.

Keeping it a secret, which I have successfully done for ten years and having to live in poverty just to get a bottle of pills each month....only in America...lol....but of course i keep paying into all the programs even though I don't qualify for any of them.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: allopathicholistic on April 27, 2007, 09:37:15 am
The biggest challenge was to stop the self-destructive lifestyle and thoughts of dismay. I abolished that messy mind set in the early 90's.
Recent 2 years: Acute facial wasting--which has been corrected.
Since 2000: Constant fatigue. I address that issue with vitamins/supplements and 5 mg. dexies to jump start my day.
Meds at 6 am/6pm: Even with the weekly med box I still forget to take my meds from time to time. Have forgotten either morning or night dose but never both. I don't freak out about it--no point in that kind of reaction.

Hugs to you. Fatigue sucks. Could you kkep us posted if you feel up to it? For me in 2000-2005 my biggest challenge was workplace disclosure. Since then it's been coming to grips mentally that most likely I can never return to my old industry in the same capacity, which allowed me my own apartment without roommates, spending cash, a sense of career stability, etc. Things are so very different now I feel like I'm living in a strange new world with new rules
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: DanielMark on April 27, 2007, 10:21:50 am
Boy, that's a big question Dan. I'm not sure I can narrow it down to one biggest challenge, since new ones come along each day. Being vigilant against the desire to drink or drug to escape it will always be with me. Fortunately, I got wind that I was probably HIV positive during a routine exam at a Rehab Clinic I checked into in New Hampshire in December of 1987, so for eight months prior to my actual diagnosis I’d already had a good foothold in living without booze and drugs. If I didn’t have that I would be dead today. Period.

Fatigue continues to be a problem. For example, I just finished cleaning my bathroom and I needed to sit down and take a break. It seems absurd that housecleaning should leave me exhausted but it often does. Learning how to say “no” sometimes took me a long time as well, but I’m better at that than I used to be.

Emotionally it’s been a challenge at times, but I don’t suppose  any explanation is necessary about that here. After eighteen years, the initial instinct to freak about any physical change has long left me. I can keep things in perspective better at this point in my life.

Learning to live with incontinence has also been a challenge at times. Imagine going on a date and wondering how a potential lover will react to seeing that you wear adult diapers? That’s fun. Thank God I haven’t lost the ability to laugh at myself is all I can say.

Daniel
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Queen Tokelove on April 27, 2007, 12:28:21 pm
The hardest thing is keeping it a secret from everyone and I understand how someone might feel they are living a lie....but what choice does one have when if its found out it can be a bad situation gone worse.

Keeping it a secret, which I have successfully done for ten years and having to live in poverty just to get a bottle of pills each month....

I can definitely relate. That is my biggest challenge because I have tried on many occassions to be open and disclose. Only to have it end badly and now I feel like I can't trust anyone to tell them. What may be easy for some is not easy for others.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: SouthSam7 on April 27, 2007, 10:13:13 pm
Hey guy in Bama:
  What do you mean by "living a lie?"
Betty I mean that it's lying by omission if you don't tell someone you have hiv.  If you don't tell them you have hiv, then they would assume that you are hiv negative.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on April 28, 2007, 02:02:16 pm
hi all,

i have read this thread with great interest and at the same time, with such sadness. it troubles me that after 26 years of hiv/aids in the world, and especially here in the usa, STIGMA & disclosure issues still rule so many lives.

with so many long term survivors contributing to these forums, i feel the need to ask this question. how many of you with 10 to 20+ years of living with hiv are fed up with the stigma associated with hiv and the feeling of having to live this illness as a secret. i am especially concerned with those who still find it diffficult to talk to their parents, siblings, best friends about this disease? haven't we as a nation learned anything?

we ( LTS's) have had an adequate amount of time to process much of the anger, frustration, despair, fear, anxiety, etc,etc that comes after the shock of our initial diagnosis. i understand it is a long term process getting through the multitude of feelings associated with having an illness that we were supposed to die from.  then having to adjust from "i'm going to die" mode to " now that i am living with hiv, how am i going to deal with side effects and other complexities associated with "living with hiv"( ie. insurances, re-entering the work force, dating, & long term relationships). wow, it was just as tiring listing them as it was thinking about what it took to get through them!

but here's my point. after 10 years of getting adjusted to life with hiv, when is time to stop worrying about stigma and disclosure? aren't we past the point where hiv is no longer just a "GAY" or "IDU" disease? that aids does not discriminate, that it effects everyone.

i can understand the stigma associated with the early years ( for me, late 1980's)because it was for that reason alone, that this hiv+ heterosexual stayed away from support groups. how was i going to identify with gay males and IDU users, something i knew nothing about? so for 2 years after my fiance passed away i tried to live this disease all by myself. that was my fault and my loss. that meant 2 years of beating myself up with alcohol and quite nearly costing me my life.

that time came when i nearly killed myself driving under the influence. i realized then that this wasn't the path i wanted to take. i then reached out to a support group, and although i was nervous as hell that first night being around a circle filled with folks from different life styles than i.  the end result was sharing with folks living with what i had became the driving force behind a most life enriching experience.

from support group participant to becoming an aids activist and contibutor to the legislative process has been the best thing that ever happened to me. but more importantly, the more i talked to others about living with hiv, the more comfortable i got living with it.

now i resent hidding behind the stigma, and choose to reject stigma as part of my life. are their other LTS's that feel the same way? if you don't, why not?

yes, it is true that it took 20 years before i experienced rejection due to my hiv status ( ie "flags of a father" POZ APRIL EDITION), but everything happens for a reason,  and as a result of missing my son's return from iraq,  i was able to participate in C2EA and march my ass off in washington DC.

and yes, fear of rejection dominated those couple of years after i lost my fiance to aids in 1989, but faite & that support group brought me my current wife and the end to those fears.

screw the military, but thanks for reminding me that there is a time and a place to disclose. to me, there are plenty of times we need to disclose, otherwise how do we teach the less educated to fear the virus, not us?

be honest with me LTS's? am i living a pipe dream here or am i right?  that the time has come for us LTS's to stand up against stigma, and give the newly infected folks the courage to be open about their status, so parents, siblings, and friends can share in supporting them through the difficulties of living with their illness. that we don't die alone leaving our loved ones at the casket with the question, "why didn't he/she tell me they had aids?"

enough is enough. no person should have to fear disclosing to those whom they care most about. it is time to break down those barriers so living with hiv can be about support & survival, not silence & stigma!

FEAR THE VIRUS, NOT US!

AM I RIGHT?

kellyspoppi

 

 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on April 28, 2007, 03:54:19 pm
Hi Kelli: 
  I'm with you on this.  But remember, you  are not a gay person and thus don't face the same kind of fears, emotions, feelings and issues that some gay people do.  I'm bisexual and when I came out in the local newspaper as being such (because my state has no hate crimes bill) I got a very nasty letter from a lady from the Catholic church.  Also remember, if it weren't for the protests and demands from gay people, there wouldn't be the medicinal advances and treatment advances that there are today.  People have always been active.  It's just that some people probably have very valid reasons not to be.  And who knows anyone else's family?  Mine happens to be very supportive, but they still had to be educated.  Some families are still very rejecting if something happens different from the "norm" that they expect out of their family members.  I wish things in my home town were different, but I don't even know any other women in my town who are HIV+.  I'm sure there are, they just "stay in the closet."  I wish things were different EVERYWHERE.  But until the day comes when everyone can be safe, I just try to remain as accepting as possible about other people and what they decide to do. 
 Hugs,
   Betty ;)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on April 28, 2007, 06:19:17 pm
thanks betty,

you will get no argument from me on any of the points you addressed. i am fully aware that if it wasn't for the actions of the gay population in this country, i probably wouldn't be alive today. it was a gay act up member who moved back to my city that got me started in my involvement back in 1994.

and i also must say, unfortunately, that here in new york state where our aids service delivery systems are pretty thorough, and we have a large plwa advisory committee, a majority of those infected who are active advocates are gay males. it makes me so mad that white heterosexual positives are still in hiding for the most part.

i know it took me quite a while to get past those fears, but my pleas are to those LTS's who have gone through that process. we all have to come to that point sooner or later. it is too damn agravating not to.

i was in washington dc this week for aidswatch and the vast majority of attendees were either gay males or minorities. we need more representation from the hetero positives to show there is balance in how this disease is spreading.

call it what you will, but i'm hoping to plant a fire in some butts here to get folks to come out and help in the fight. many of us have been the voices for so long we are feeling the burnout. we need new blood to pick up the torch and carry on the message.

my thanks to you for your personal message. everything you said is true. i am just so angry though that aids has been a part of our lives now for 26 years & stigma still rules the day. we have got to make it end.

kellyspoppi
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on April 28, 2007, 09:40:10 pm
Hey Kelli:
  I'm with you all the way. The heteros have certainly NOT been doing their jobs.  In the town I live in Indiana, there is only one AIDS agency and NO ONE  who is employed there is HIV+.  It makes me really angry, but they say someone has to have a degree to work there.  I am finishing a BS in psychology and that may be one of the places I hit up for work when I graduate, so maybe I can make a difference.  I know I'm bi, but just a female face in this town, someone who actually has the virus, would be good.  There are so many here who are afraid to go to any type of HIV support group.  I don't know any other woman in this town who's willing to "out" herself about her HIV status.  I am.  I don't care who knows, because I refuse to live life in hiding.  Good job Kelli, point well taken! ;)
   Peace-
Betty a.k.a. Hollywood (hmmmmm... I wonder where that name came from? Actually I got it when I was a stripper when I was 17 and it just stuck).
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: milker on April 28, 2007, 10:29:25 pm
Kellyspoppi,

I got chills reading your post. It felt like the Nikki Giovanni's talk at VT. I will use it to get strength about disclosing to my sister.

Thanks, Kellyspoppi

Milker.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on April 28, 2007, 11:33:12 pm
thanks milker. i'm not familiar with nikki's speech, but i hope it was inspirational.

betty, i just completed my 2nd term on the board of directors of my ASO. i wonder if your agency has any hiv+ folks serving on it. i also chaired the client services committee for the agency, which gave us pwa's an opportunity to learn more about the agency, how they handle all aspects of client services, and when needed, asked the agency to respond to why some services were taken away without first consulting the committee they formed to provide client input on service related issues.

most boards of directors are required to have plwa membership, or it not required, they are encouraged to seek representation from the plwa community.
then most boards have sub-committees which meet to cover different aspects of the agency, like finance, governance, client services, fund-raising, etc, etc.

client services committee usually is made up of the agencies dir of client services, the asst to the exec director, and then clients of the agency.

if you are thinking of going to the agency for employment why not inquire first about becoming a board member. most agencies would like to say they have pwa members on the board as it looks good when they are applying for ryan white funded grants.

if your state does not have a ryan white hiv care network, and you would still like to get connected, see if anyone knows who the state c2ea rep is. the campaign to end aids is looking for more people to hop onto their cause.

if you have any further questions, please feel free to send me a PM hollywood.
"kellyspoppi@aol.com"

i look forward to hearing from you.

KP
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: milker on April 28, 2007, 11:45:46 pm
http://www.youtube.com/watch?v=O-Qx9dIr-68

Milker.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: xyahka on April 29, 2007, 01:58:25 am
Hi Kelly i am with you and i also think that if LTS's would have taken the time to disclose some time in the middle of the 10 to 20+ years of living with illness now ......

1. There would not be so many newbies here nor around the world
2. We would be much more open to disclose and talk about this
3. We all would face less stigma

My intention is not to blame anyone for what was not done... i am gay in the closet and i understand all the fears (i am in latin america, remember) but... a change must start in some moment... i put my face in the blog, disclosed to my friends and mothen... and i can tell you this.. my friends are most likely not be infected. Now they know it happens to anyone and slowly they will start spreading the news about this. I am by now their life example that this illness can be handled and i hope that at least helps some others behind me. If we all do that we might create the change we all have wished for.... but i know it takes time for some of you... well.. if there are some others who are brave enough.. lets start talking.. it is the only way to be heard.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Matty the Damned on April 29, 2007, 05:24:40 am
Hi Kelly i am with you and i also think that if LTS's would have taken the time to disclose some time in the middle of the 10 to 20+ years of living with illness now ......

1. There would not be so many newbies here nor around the world
2. We would be much more open to disclose and talk about this
3. We all would face less stigma

My intention is not to blame anyone for what was not done... i am gay in the closet and i understand all the fears (i am in latin america, remember) but... a change must start in some moment... i put my face in the blog, disclosed to my friends and mothen... and i can tell you this.. my friends are most likely not be infected. Now they know it happens to anyone and slowly they will start spreading the news about this. I am by now their life example that this illness can be handled and i hope that at least helps some others behind me. If we all do that we might create the change we all have wished for.... but i know it takes time for some of you... well.. if there are some others who are brave enough.. lets start talking.. it is the only way to be heard.


What?

Fuckin' what?

Let me get this clear. I'll requote it in another fuckin' colour.

Hi Kelly i am with you and i also think that if LTS's would have taken the time to disclose some time in the middle of the 10 to 20+ years of living with illness now ......

1. There would not be so many newbies here nor around the world
2. We would be much more open to disclose and talk about this
3. We all would face less stigma


Now I may not be the brightest light on the christmas tree and I'm painfully aware that English is not Juan Carlos' (the newest AIDSMEDS blogger if I'm not mistaken) first language.

But am I the only one who reads something a bit off in this post?

I'd say more, but I could be missing something in the translation here. Certainly someone is missing something.

MtD >:(
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on April 29, 2007, 09:29:41 am
matty,

i understand what he is saying. stigma has ruled peoples lives with hiv for far too long. fear of it ruled my life and i'm not happy about it. i have resented living with an illness that i was afraid to talk about for fear of reprocussions.

had i been more open about my illness as a heterosexual white male, maybe by talking to the press and being open about how i got hiv back in the mid- 90's, then maybe i could have helped to prevent the spread of aids in the heterosexual community.

look, i know i am talking alot of maybe's here, but what i am admitting to is that i am fed up with stigma, plan to be more open about my illness, because i feel after 26 years the time has come to break down these barriers.

i am not blaming anybody but myself here. had i gone through the process of getting comfortable with my illness and spent more time being open about living with it, instead of letting fear of stigma rule my life, then maybe i could have helped to prevent a few less newbie's in this world.

because i don't represent the perceived norm of who is getting infected, yet assume more and more hetero's are getting infected every day, i owe it to use my story as a way to reduce future infections.

and i owe it to myself and my health to be open about my illness, to talk to others about my hiv just as if it were cancer. living in silence is no longer an option for me.  i recognize i am in the minority here, but i feel it is time to end this stigma bullshit, and i am mentally prepared to lead the way.

i hope that clears up your questions about the response to my previous post.

kellyspoppi 

   
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Matty the Damned on April 29, 2007, 10:11:04 am
K,

It is entirely possible that Matty the Damned has grasped the wrong end of the stick here, he is notoriously hot-tempered as befits his red-headed nature. ;) It is often the case that the error lies not in the writing, but in the reading.

If that's the case in this situation he apologises to both Juan and yourself.

MtD
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on April 29, 2007, 10:39:00 am
no apology necessay matty. i immediately understood where you were coming from and i value your opinions.

i am in a new place with this disease in my life and as betty has clearly pointed out to me, others who post here have a legitimate reason to feel uncomfortable disclosing and fear stigma. they have valid concerns!

my mission is to try to do something about reducing those fears. i am saddened by seeing more and more newbies posting here, and feel much of their fears have as much to do with this continued stigma as it does with their life expectancy.

it also saddens me when i still read posts of folks who are afraid to disclose to their families and dear friends, and that they must live this illness in silence and isolation. that should no longer be the case after so much time has passed, but unfortunatey it still exists.

hopefully more folks who post here will reach a point i have and begin to take action to reduce this stigma. enough is enough!

kellyspoppi 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: J.R.E. on April 29, 2007, 11:03:10 am


Making sure I get myself up for work everynight ! Thats my main goal/challenge, keeping myself employed.


Ray
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on April 29, 2007, 11:18:21 am
milker,

much appreciate you giving me the opportunity to witness nikki's speech. truly inspirational.

thanks again,

KP
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on April 29, 2007, 12:41:39 pm
Hey Kellly-
  The ASO here has NO ONE who's HIV+ on their board, nor do they want any on it right now, for reasons unbeknownst to me.  It's kind of a strange agency and trying to get them to give a reason for anything they do, is, well next to impossible. :(   I'm not sure about the Ryan White money for Indiana.  I will definitely call there tomorrow and ask them about the issues you raised.  Good points!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on April 29, 2007, 02:35:37 pm
betty,

you stay in touch and let me know if i can help in any way.

KP
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: naftalim on April 29, 2007, 04:04:26 pm
In my case it has to be the relationship issue, or lack thereof. As a hetero male, I dont even try to get to know anyone who is not positive.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Peter6836 on April 29, 2007, 08:25:00 pm
ANGER, not that I am infected, or that my life may be shorter than it may have been, or that I may have to suffer some illness that others may not experience. Anger that I have not yet found my bliss. What I am meant to do with my life, what I should do with my life, how I can make a difference in the world. I want so much to feel love and experience love. I want so much to be Christ like and do the right things with my life. Its length does not matter but its substance does. I feel that I have a clock ticking that now creates a timeline that I need to follow. I have no problem with my mortality, I have no fear of death. But I have a fear of living, a fear that I will not live life to its fullest. That I will not be able to love as much as I can. That I will not be able to be loved as I would like. I fear that I will not be able to make the difference in the world that I want to make. Not that I want to be known as Gandhi, or King, or Einstein, I just want to make a difference in the world that is important.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Strayboy74 on April 29, 2007, 09:00:03 pm
the biggest personal challenge facing me with regard to my HIV Status is allowing myself to ask for help.

-joseph
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: incognito on April 30, 2007, 05:46:36 am
biggest challenge is finding a lover, partner, or long term relationship.  often when i meet someone new and maybe have dated a few times, the feeling that it might turn into something long term is immediately and completely overwhelemed by the odds that the potential partner is probaly negative. (has happened way too many times).  almost always now i work hiv status into the conversation right away if i feel like there is long term potential.  better to have the pain up front before investing a lot of energy and emotion into the relationship. its a horrible barrier to being intimate and dating.   knowing that being hiv+ extreemely limits options for potential partners is a source of constant depression.  i travel a lot for work and often in remote locations.  that plus being poz makes me wonder if i'll ever have a partner again.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: racingmind on April 30, 2007, 05:24:51 pm
The biggest challenges I have been repeatedly facing since testing positive are:

Feelings of worthlessness; like I failed somehow.

Feeling "damaged."

Feelings of depression, anxiety, and despair.

Fatigue and lack of motivation.

Severe mood/attitude swings. 

 :-\

 


Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Dan J. on April 30, 2007, 07:10:21 pm
The biggest challenges I have been repeatedly facing since testing positive are:

Feelings of worthlessness; like I failed somehow.

Feeling "damaged."

Feelings of depression, anxiety, and despair.

Fatigue and lack of motivation.

Severe mood/attitude swings. 

 :-\



 





I know exactly how your feeling.

Dan
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: SASA39 on May 03, 2007, 05:10:27 am
1.Social stigma

2.Fear : - of cancer (almost all my family has died from it :mom, dad , uncle, sis ...)
            - of disclosure ( consequences for my kids , wife  my job  )
            - of nasty side effects ( lypo , neuropathy , ....)
            - fearing to die in a pity way
            - some other medical issues that have to be solved (varicose veins opperation...........)
            -because I was late starter and doc have saved my life CD4=58 ( with no visible signs beside a termendous tiredness and throath Candida)

3."living a lie" life style.........only my wife know

4.Shame because I`m afraid of allowing myself to ask for help.( in some matters : specialist - proctologyst , .....)

5.Being a black sheep : loosing my all day permanent  job as a engineer ( due to a tiredness and Sustiva.........)while everybody else is working.That has as a consequence :
Quote :Feelings of worthlessness; like I failed somehow.
           Feeling "damaged."
           Fatigue and lack of motivation.
           Severe mood/attitude swings

6.Feeling that I `ve betray my kids and wife: only truly friends beside my parents that I`ve ever had >consequence : deep Depression without any social support........................

7.Feeling like I have committed a self suicide (like dying inside me)

8.Bad dreams and inner thoughts that won`t go away.

9.Anger  because I was never like this before

10.Great Mental & physical tiredness because of stated above.Feeling that I`ve did not deserved this desease............

Enough.......................?

But a question is :

How to get rid of all of this ?

Sorry if this was too depressing and too direct but the title was apropriate and I have no other place to speak.And there are many fine members here......... ( with great dose of courage , dignity and human feelings toward other members)

Trying to fight this  damn desease ,and myself..............without booze , AD`s , or something worse.....................
Any comments will do .................or better proposals.............
Let`s try to find a solution together.................

                                                  Al

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Iggy on May 03, 2007, 08:37:35 am
SASA - please don't apologize for what you wrote - it's empowering to me to see someone so starkly honest about their fears.  I personally thank you for this.

Quote
Trying to fight this  damn desease ,and myself..............without booze , AD`s , or something worse.....................

I'm not sure if you meant fighting yourself or fighting the fears within yourself, if it is the latter - I am in the same place.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: SASA39 on May 03, 2007, 12:12:52 pm
What i meant is a fact that I`m fighting not to use those things to eradicate fear.This desease is not an ordinary one.Because in most deseases you are fighting one enemy ( high pressure ,  heart , ...) , or two/three ( diabetes in late stages).But here feel like walking in a Bronx in a middle of a darkest night
waiting to be robbed again & again..................or fight against whole highschool class of yours.................no single day of rest , without fear ( not all of them , but they DO have a pattern of  showing) , meds , side effects...........add more...............
                                                    Al
And a purpose was to point to all of them and to find a way to fight back.         
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: erasfred on May 03, 2007, 04:38:17 pm
Treatment adherence. It's an enormous effort for Matty the Damned. Not the night-time dose, but remembering to take the morning dose.

Bugger. Which is what I've gotta do know. Ah, shit! Or did I already take the fucking thing?

MtD
(Who can never remember)

That I totaly agree with and then the total and utter exhaustion in th early afternoons.  ???  I have had a bout of depression a few months back after three years of living with Hiv But my doctor has put me on a course of Happy tablets and it's improving.

Rassie
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: erasfred on May 03, 2007, 05:05:36 pm
hi all,

i have read this thread with great interest and at the same time, with such sadness. it troubles me that after 26 years of hiv/aids in the world, and especially here in the usa, STIGMA & disclosure issues still rule so many lives.

It is not only the USA but the same still happens in South Africa and I am sure that it happens all across the world if we take the time to find out about it

we ( LTS's) have had an adequate amount of time to process much of the anger, frustration, despair, fear, anxiety, etc,etc that comes after the shock of our initial diagnosis. i understand it is a long term process getting through the multitude of feelings associated with having an illness that we were supposed to die from.  then having to adjust from "i'm going to die" mode to " now that i am living with hiv, how am i going to deal with side effects and other complexities associated with "living with hiv"( ie. insurances, re-entering the work force, dating, & long term relationships). wow, it was just as tiring listing them as it was thinking about what it took to get through them!

I've learnt to adopt the attitude of "SO WHAT"

now i resent hidding behind the stigma, and choose to reject stigma as part of my life. are their other LTS's that feel the same way? if you don't, why not?

screw the military, but thanks for reminding me that there is a time and a place to disclose. to me, there are plenty of times we need to disclose, otherwise how do we teach the less educated to fear the virus, not us?

be honest with me LTS's? am i living a pipe dream here or am i right?  that the time has come for us LTS's to stand up against stigma, and give the newly infected folks the courage to be open about their status, so parents, siblings, and friends can share in supporting them through the difficulties of living with their illness. that we don't die alone leaving our loved ones at the casket with the question, "why didn't he/she tell me they had aids?"

enough is enough. no person should have to fear disclosing to those whom they care most about. it is time to break down those barriers so living with hiv can be about support & survival, not silence & stigma!

FEAR THE VIRUS, NOT US!

AM I RIGHT?

kellyspoppi

  In South africa Our Support froup motto is "Nothing For us Without Us" Can We do that if we are not willing to talk about it?

 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on May 04, 2007, 04:07:20 pm
erasfred,

thanks for the comments. i'm not sure i understand though what you meant when you said you took on the attitude of "so what"? to dealing with the complexities of living with hiv?

kellyspoppi
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: chemistry001 on May 05, 2007, 07:46:13 pm
First off TAKE THE MEDS, don't start missing doses.

My biggest challenge has been to keep smiling. When the people close to me have been told and they fall apart i feel i have to be strong for everyone.
Before the aids i was always the person that made everyone smile, that friends would come to looking for comfort and a shoulder to cry on. I was always the person to deal with other people's problems. So when my new found friend (or should that be fiend, aids) came along and almost took me away, i have found it hard to cry in front of people.
I still remember laying in the hospital bed hooked up to drips and oxygen when i was told i had aids and thinking, all i want to do is cry, but behind the curtain were family and my boyfriend and i was not able to, so the doctor went away and the curtain was drawn back and i smiled and said " they think it's a viral chest infection".
That night i told my boyfriend, he fell apart and i took him in my arms and held him until he stopped crying, all the time i couldn't cry but kept saying its fine, I'm going to be okay.

When my bloods have come back lower than i had hoped and prayed for i still manage to smile and say "Its fine, they will be better next time". I still have not cried about the whole situation, but put on a brave face and face the world.

That has been my biggest challenge

Love to you all
Paul xXx
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: planonstaying on May 05, 2007, 09:02:20 pm
The hardest part  is not telling everyone.  I am new to all this. I   have started being angry at the world i think and want both the acceptance and the conflict that disclosing would bring. didnt realize how angry I was till it was pointed out=//.
i committed with my therapist not to go all radical and seek  long term problems  by being over open
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: milker on May 05, 2007, 09:13:43 pm
i committed with my therapist not to go all radical and seek  long term problems  by being over open
Yup, I over disclosed the first two days after getting the news, and I regret that, it was absolutely not necessary.

Milker.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on May 05, 2007, 09:20:08 pm
Actually, when I found out I told someone I was in treatment with at the time. Well, my mom called on our patient's phone in the lobby and the person I told answered.  She told my mother, who, of course, immediately panicked. My first husband died two days later.  So my mom came up to the treatment center and brought my daughter up with her, who was five at the time.  I had to tell my daughter about her father, but I didn't tell her about the HIV.  When I got out of treatment, I got a degree in medical assisting and got my daughter tested by one of the pediatricians where I worked.  The doctor just told her she needed to check on how her (my daughter's) body was doing.  Thank God she tested negative.  I don't know what I would have done, since this was back in '89 and they didn't have the treatment advances they do today.   I'm truly grateful that she was negative.  My heart pounded all the way to my daughter's doctor's office to get the results!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Strayboy74 on May 05, 2007, 09:23:14 pm
Biggest difficulty for me (aside from the one I've already mentioned) is in achieving and maintaining solid BMs.  And, the dryness of the toilet paper.

It's so bad at times that I swear my ass is cracking the other way!

-joseph

*edited to add aside.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on May 05, 2007, 09:24:45 pm
Hey Joseph-
    When that happens to me, I put vasoline on the toilet paper before wiping my ass!  Maybe that will help, I don't know.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Strayboy74 on May 05, 2007, 09:29:25 pm
that sounds messy...   like a big glob or something???

LOL

-joseph
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: milker on May 05, 2007, 09:56:22 pm
that sounds messy...   like a big glob or something???

LOL

-joseph
Bon Appetit !

No, seriously I hope this situation improves soon, Joseph.

Milker.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: BT65 on May 05, 2007, 10:20:26 pm
that sounds messy...   like a big glob or something???

Yes, but a smooth, tolerable glob!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: AIDS2HIV on May 05, 2007, 11:12:30 pm
jsut thought id share this site, as this thread seems appropriate..it answers everyones "biggest personal challenge"......"self"

www.selfcreation.com
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Iggy on May 06, 2007, 01:17:59 am
uhm...bettytacy, strayboy and milker can I dare be so bold as ask that you don't make this a joke thread?  Personally - I don't appreciate it.

Have fun all you want in the off topic forum where I guarantee you will not hear a word from me, but as someone who comes here to deal with Living with HIV your irrelevant comments really hurt me and disturb me.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Strayboy74 on May 06, 2007, 01:36:22 am
uhm...bettytacy, strayboy and milker can I dare be so bold as ask that you don't make this a joke thread?  Personally - I don't appreciate it.

Have fun all you want in the off topic forum where I guarantee you will not hear a word from me, but as someone who comes here to deal with Living with HIV your irrelevant comments really hurt me and disturb me.


With all due respect, iggy, my question and my biggest challenge have all been on the level.

I never took this thread as a joke.

And if you feel that my responses in this thread have been such, all I can tell you is that it's a pity you feel that way.

I'm sure that if you reread my postings sans ego and attitude, you'll find that the whole transpiring was genuine.  So, if my postings in this thread, do indeed 'hurt' and 'disturb' you (as you say), then it's entirely an issue of your own creation, and I fear I cannot help you.

I think you're being terribly sensitive on the issue.

-joseph
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Iggy on May 06, 2007, 01:39:14 am
Quote
that sounds messy...   like a big glob or something???

LOL

-joseph

Yes ...it's all my imagination and ego and attitude.

I'll leave it to the moderators
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Andy Velez on May 06, 2007, 08:01:07 am
OK, please pause for a minute here folks, before this powerful thread gets sidetracked through what I think maybe a misunderstanding.

Iggy, I don't read the comments you are getting as a deterioration of the thread into move into jokes as being that. What I get is a very real and common problem of side effects being referred to by Betty, Stray and Milker with some dark humor.

However, even as I say that, at the same time I would ask them and others to not get into personality interpretations and exchanges, but rather stay on course with the theme of this thread which has evoked affecting responses from so many members.

Thanks for your cooperation. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: flight62 on May 06, 2007, 04:55:08 pm
biggest challenge is finding a lover, partner, or long term relationship.  often when i meet someone new and maybe have dated a few times, the feeling that it might turn into something long term is immediately and completely overwhelemed by the odds that the potential partner is probaly negative. (has happened way too many times).  almost always now i work hiv status into the conversation right away if i feel like there is long term potential.  better to have the pain up front before investing a lot of energy and emotion into the relationship. its a horrible barrier to being intimate and dating.   knowing that being hiv+ extreemely limits options for potential partners is a source of constant depression.  i travel a lot for work and often in remote locations.  that plus being poz makes me wonder if i'll ever have a partner again.

I couldn't had said it better. I'm going to have to stick a dildo in that slowly closing relationship window. :o
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: flight62 on May 06, 2007, 05:03:00 pm
Another challenge for me is facing that there is a big chance I will have to actually watch my parents or siblings die. Or that I just might be in a position to grow old alone and rot in my bed before anyone notices.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on May 06, 2007, 09:07:04 pm
i have re-read this thread after being away for a few days, and a couple of common issues remind me of the days of turmoil and darkness.

depression. boy can i identify with that. i really hadn't had a chance to deal with my pwn hiv until my fiance died. i just remember than when she was alive things seemed normal. as long as we had each other, we could deal with this disease together.

after she passed and the family and friends had left after the wake and funeral, i remember laying on the end of the bed saying over and over"who is going to want me now that i have hiv?". then the sobbing started and seemed like it would never end.

i couldn't get under the covers in bed without her there to warm my soul anymore, so i spent every night lying on the edge of the bed staring at the television until it would my eyes were so tired they couldn't stay open. one can only take that so long.

so then i tried hitting the bars trying to find someone to fill the void. every single weekend was the same routine. as soon as my son was picked up by my ex, i was right out the door behind them heading to the first bar. most nights i was blind by midnight but somehow maintained standing until they closed as the birds began to churp. how i made it home i'll never know.

music made me cry during this depression and i couldn't seem to get out of this hole i was digging myself into, deeper & deeper as the loneliness and despair became more overwhelming.

as i said before, a near miss accident startled me enough where i began to seek help. that was 1991, and i am still here to tell you that finding yourself a good therapist, one who can teach you cleansing meditations, visualizations, hypnothereapy, etc etc can make all the difference in the world.

for those with relationship issues, this too was a tremendous sourse of my depression. i was in my late 30's when my fiance passed. i had a great job, decent apartment, and i still felt i looked pretty damn good for my age. but hiv made me feel like i lost that edge, like i was dirty, like i had this flaw on my person that everyone could see.

anytime i found myself in a one night stand, i had this mind blowing fight between the devil on one shoulder saying "go for it!" while the angel was on the other shoulder saying "you must disclose!" who the hell could get a rubber on with all that infighting!

most times i would tell her i just wanted to pleasure her so i wouldn't have to disclose, but sure enough, a few nights later they would be back and place me in that situation once again. some would burn skid marks running out the door, and some would stay.

then you had to deal with "how were their family and friends going to feel with this guy playing russian roulette with their loved one!" or some that were so interested in getting married, they tried to get infected by you just to make sure you wouldn't break up with them. how bizzare!

therapy helped me work through all that. after going to the clinic with one of my negative girlfriends, sitting in the waiting room waiting for her to get her test results, i had a panic attack. that was the last time i dated a negative woman. i just couldn't live with the thought of being responcible for passing this onto another.

once i came to that realization, i met my current wife at a hiv support group. call it faite. whatever, it was how it worked itself out for me.

i just wanted to let you know, i have been there, and this is how i survived my depression.

kellyspoppi   

 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jake72 on May 07, 2007, 02:45:03 pm
I'd say the biggest challenge I face is that there is (currently) no closure to it.  Other challenges (getting through school, an unpleasant job, a crappy relationship, many other illnesses/conditions) have a point where you're done or you just walk away.  Then you can begin to get on with your life.  Then you can exhale and say "that sucked, but I'm past it now." 

With HIV, we don't yet have the luxury of closure.  Every  time I take these damned pills (and I've never missed a dose, despite major med burnout here), I'm reminded that I have a stigmatized illness that, frankly, most of the world doesn't have.  I'm reminded of the fact that I was infected by someone who betrayed me.  Every time I go in for bloodwork, part of me remembers the sheer terror I felt in the doctor's office when I first got that poz diagnosis.  And as undetectable as I may be, as robust as my immune system is (knock on wood), and no matter how much personal and professional fulfilment I may have, I'm still just as HIV+ as I was on the day I was diagnosed.  And that, barring some amazing cure, therapeutic vaccine, or non-daily treatment option, I know that in six months, one year, five years, ten years, I'll still be taking pills, every single day, because I'll still be just as poz as I am now, as I was nearly eight years ago when I was diagnosed. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: resilientboy on May 07, 2007, 11:48:22 pm
im only twenty one yrs old and i have to deal with this shit.  i believe the hardest thing to for me to deal with is the reality of it all from the meds to disclosing!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kellyspoppi on May 08, 2007, 08:16:28 am
jake & resilient,

as you could tell from my previous post, i too was there once. but the fact is, we have hiv and we will have it for all long time to come, and all the baggage that comes with treating it.

i used to think it was like walking down the street with this dark cloud hovering over my head wondering when the hammer was going to drop down and hit me. but that was before they found meds to keep us alive.

another way i viewed it was that it was like i was a runner being chased by hiv. as long as i was capable of staying out in front of it, then aids would never rear it's ugly head into my system. meds have given us the potential for a longer life before that happens. yes, it can be exhausting, just thinking about the complexities of that prognosis, but choosing to "live" that complex life is really up to you.

back in 1990, i went to a large group psychic reading (about 20 people in the circle) and during the course of several readings, one of the psychics called out my name. he said i have a message for you. i see this extremely dark cloud hanging over your head, but i want you to know that there is brilliant rays of sunshine about to rise above all that darkness, and that soon your feelings of despair will be lifted.

i had no clue what he meant by that at the time, but certainly now, 17 years later, i do. knowing you have the availability to live a somewhat normal life should bring "hope" into the picture.  without hope, we would be nowhere.

now it becomes a matter of "what are we going to do with the rest of our lives?" are we going to let hiv rule our life, or find a way to take back control. that is totally up to the both of you.

i have done everything i possibly can to take back control of my life. to become educated about my illness and about my treatment. i have become an advocate for myself and others with this illness who can't, or won't speak out for themselves. i have connected myself to the hiv community by getting involved with those agencies who serve us so that they have a voice of the client to deal with. and i have tried to live my life as though hiv was just a nuisance, like some dog who comes up barking at you when you are out for a walk. if you stare him down, he'll go away.

reach out my friends, and get connected. regain control by making your body, mind, and spirit whole again. then pick up a glove and get back in the ball game!
life is all about choices, giving in, or getting on with it.

i choose to live! how about you?

kellyspoppi
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jake72 on May 08, 2007, 10:04:00 am
I appreciate your words, Kellyspoppi, but I don't want to give off the wrong impression.  I'm not sitting around sulking and sobbing.  I'm generally an upbeat person, and since my diagnosis, I've pursued my education, built my career, traveled, become a vegetarian, quit smoking, etc.  But since the thread was about personal challenges, I admitted mine.  I don't like being "chased by HIV."  And I'm far from being newly diagnosed.  I don't think I ever will be "okay" with it.  That doesn't mean I'm being held back or missing out on the fullness of life.  For the most part, I'm not letting HIV control my life.  In fact, unless I'm taking meds or posting here, I usually don't think about it.  I'm certainly not in denial and have accepted the reality of this.  But that reality is that no matter how successful, active, happy, and healthy we are, we still have to take those same pills, deal with the same side effects, etc., which implies that we do have to give up some control.

And since the community here was asked, I confessed that the open-endedness (the very need to take toxic pills day in and day out to stave off illness and/or death) of this does bug me.  The (as yet) neverending quality of the nuisance of this does annoy me and will probably continue to annoy me.  If there ever (miraculously) is a cure or a therapeutic vaccine, then the memory of the experience will likely annoy me.  I guess that's just one of my nutty quirks. 

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: JPinLA on May 08, 2007, 11:27:23 am
Being newly diagnosed the biggest challenge is believing it...oh, I'm reminded everyday when I take my meds and I basically think about it every minute but it still does not feel real.  I imagine that must sound a bit off but I've felt like I've been watching a movie about myself with a similar type of disconnection and ambivalence I would a summer blockbuster. 

That, coupled with telling or not telling friends and family, guilt, shame, worry about my partner, future..all the regular feelings I expect that come along with being HIV positive. 

Now that I'm sitting here writing this, I actually think that one of the biggest issues is the shame.  I realize this is a common theme, but if I was diagnosed with testicular cancer I would not be hesitant to tell any of my family or friends.  It is, once again, the stigma surrounding HIV that makes it so much more difficult; at least for me.

JP

 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: justchill on November 02, 2013, 02:25:23 pm
finding poz women, also the thought of not being able to have children
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mecch on November 02, 2013, 02:57:16 pm
finding poz women, also the thought of not being able to have children
Read threads on this forum. Discuss with HIV+ parents.  HIV+ people can have children.  ;D
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mecch on November 02, 2013, 03:02:03 pm

5.Being a black sheep : loosing my all day permanent  job as a engineer ( due to a tiredness and Sustiva.........)while everybody else is working.That has as a consequence :
Quote :Feelings of worthlessness; like I failed somehow.
           Feeling "damaged."
           Fatigue and lack of motivation.
           Severe mood/attitude swings


Part of your combo is SUSTIVA?   I think you should find out if you can get off this drug. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: SouthSam7 on November 02, 2013, 06:10:50 pm
Certainly stigma is there and it is a challenge. I find stigma is more of a side effect of terrible care in my area (Atlanta). Depression and severe fatigue, too, but I think I could reduce the severity of each if I didn't have the stress of trying to get my medication and adjunct care, as well as trying to keep my food stamps, etc.

Birmingham, Alabama is light years ahead of Atlanta as far as COMPREHENSIVE HIV care goes, in my experience.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: bocker3 on November 02, 2013, 11:31:25 pm
Why did we resurrect a 6.5 yr old thread??
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jkinatl2 on November 03, 2013, 01:20:55 am
Certainly stigma is there and it is a challenge. I find stigma is more of a side effect of terrible care in my area (Atlanta). Depression and severe fatigue, too, but I think I could reduce the severity of each if I didn't have the stress of trying to get my medication and adjunct care, as well as trying to keep my food stamps, etc.

Birmingham, Alabama is light years ahead of Atlanta as far as COMPREHENSIVE HIV care goes, in my experience.

I have spent my entire twenty years with HIV in Atlanta and hae managed to receive pretty adequate care, even during the slurry of misinformation that comprised the late 90s and early 00's. Might I ask where you are getting care?

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: leatherman on November 03, 2013, 02:51:30 am
Why did we resurrect a 6.5 yr old thread??
in the spirit of halloween;
or maybe it was the time change  :D
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mecch on November 03, 2013, 07:25:19 am
justchill opened the Zombie thread.  Then I responded. 

Since his post was recent, I didn't read the date on the few posts before it, and responded to a 5-year old post.
  :-[ :-[ :-[ :'( :'( :'( >:( >:(
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: curious1here on November 03, 2013, 06:08:48 pm
Shame it didn't get more responses. I think it's really good Idea for everyone just coming on and letting all their challenges/fears/pain out in a rant :) I hope everyone is okay. This is a specially family, who support people they have never met around the world giving them strength and hope x
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: J.R.E. on November 03, 2013, 07:39:30 pm
 8)

Personally, I don't think there is anything wrong with reopening an older thread.

It's kind of interesting to see where we've been, and where we are now.

In April of 2007, I wrote in this thread, that my biggest challenge was

"Making sure I get myself up for work every night ! That's my main goal/challenge, keeping myself employed."


And now in November 2013,  I am ready to retire from the same job, that was a challenge for me over 6 years ago. I think that's an achievement. I set my goals, conquered my challenges and it's paying off.

Ray  8)


Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mitch777 on November 03, 2013, 08:06:13 pm
I agree Ray. Actually for many reasons, two of which are the fact that it was a good question to begin with and the other being many of us were not on this site when it was posed.
I will have to put a bit of thought before I post but would bet the answers will be much different and yet much the same. (yes, it can happen :).)
So many variables both personally and progress in terms of facing new challenges let alone the differences in age and length of time having this bugger in our bods.
I'm hoping to hear more from everyone too.

Thank you also curious1here for your description of this place. It is exactly how I feel.

It's time for this thread to continue as it is an ongoing process for all of us.

m.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: J.R.E. on November 04, 2013, 07:49:00 am


It's time for this thread to continue as it is an ongoing process for all of us.

m.


And I agree also. In fact,  I think it should be a sticky !

Ray
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Rhaegar on November 05, 2013, 10:16:49 am
My biggest challenge when I was first diagnosed was to figure out how to deal with the anger at myself that was affecting my job and relationships at the time.

Now, the biggest challenge I face is navigating health insurance plans to make sure I can switch jobs.  Quitting a job and moving onto a new one isn't as easy as it was prior to my diagnosis.  It requires some planning, and sometimes even COBRA coverage.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mitch777 on November 05, 2013, 08:17:32 pm
After a tearful talk with my mom today I can answer the question.

This gets a bit complex so bare with me as my emotions are on steroids.

Mom has enough electrical cords plugged into her brain to grasp the fact that she knows her life is fading. She is depressed, angry, confused and fearful. She doesn't know where to turn at times.

Unfortunately she knows many connections are lost forever.

What to do, what to do. I guess it's just part of life and being human.

This disease has taken a toll on my life. Cognitive awareness seems to slip away in silence. The similarities between my mother and I scare the shit out of me as I know the age difference between us should have delayed our common bond.

So my answer is Ageing with HIV after 31 years.

This is simply my experience and I know those of you that have not lived with this virus as long as I will fare much better.

I strongly suggest to the moderators that this thread become a sticky because it chronicles the struggle each and every one of us faces along the journey.

What I have posted today will most likely change in the years to come. I try my best to be optimistic even in the face of my personal challenges. Ya, I bitch a lot. Comes with the territory.

Sincerely,
Mark
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: cicero on November 05, 2013, 09:43:02 pm
I read these posts and relate on various levels with everyone.

Being new to this -- now about 3 months in -- my biggest challenge is shaking the somewhat irrational fear that I'm going to lose my mind. That between the virus and the medication, I'm going to start fading mentally, when I've always been, if nothing else, pretty sharp.  Fear that I'm not going to be able to take care of myself, that I'm going to lose the capacity to do so.

Fear of wasting away, even though I know its different for the newly infected now than it once was.

That, and the fear that something will happen to my employment and I won't be able to afford having this disease. That the employer will figure out that I've become an expensive employee and conveniently eliminate my position.

Fear that every little thing (a runny nose, a scrape, a zit) is going to explode into something deadly or hideous or both.

Also, the fear that I am all alone. I know I'm not the only person with HIV, but I don't know anyone who has it anymore (the one person I was very close to who had it is now deceased though not from the virus), and I just have a couple friends as it is, and as supportive as they are I'm not sure they quite understand.

I don't really worry about the social stigma in a certain sense, but I guess I *do* in that I worry people will find out and recoil from me.

So, in short, my biggest challenge is the fears that I assume are common for us all.

And mitch777, I hear you on "bitching a lot".  You've got 31 years of this, a lot of that time a lot less hopeful than now, so as far as I'm concerned you can bitch bitch bitch away. In fact, please do. Optimism is good for you, but so is venting and expressing yourself.  My best wishes for what it's worth to you and your mother as time marches on. :)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: joemutt on November 06, 2013, 02:29:03 am
fatigue.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: klassykitty on November 06, 2013, 08:06:51 pm
I'm glad it was resurrected.

It's interesting to read about the challenges people were having 4 years before I was diagnosed.  I wish I had seen this thread when I was diagnosed it may have taken away some of the scardyness that I had. 

I think finding straight men who are "willing" (couldn't think of another word) to have a relationship with a woman who has  AIDS a challenge.

That and the MOUNTAIN of paperwork I have to do every 6 months.

I agree with Cicero that most of us have the same challenges whether it was when we were newly diagnosed and the challenges have gone away, or challenges that  stay with us.

Oh yea, and my doctor still will not let me travel outside of the states yet. >:(

Michelle 8)

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: harleymc on November 07, 2013, 06:31:10 am
@SouthSam7

Quote
Betty I mean that it's lying by omission if you don't tell someone you have hiv.  If you don't tell them you have hiv, then they would assume that you are hiv negative.

The big lie is by the people making the assumption that the world is entirely populated by HIV negative folks. It should not be our responsibility to challenge counterfactual 'magical thinking'.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mitch777 on November 07, 2013, 09:06:50 am


And mitch777, I hear you on "bitching a lot".  You've got 31 years of this, a lot of that time a lot less hopeful than now, so as far as I'm concerned you can bitch bitch bitch away. In fact, please do. Optimism is good for you, but so is venting and expressing yourself.  My best wishes for what it's worth to you and your mother as time marches on. :)

Cicero,

Thanks for you kind words. They have plenty of worth.  :)

 I understand your fear of fading mentally as I seem to be living it.  I tend to believe that being newly diagnosed with todays meds and meds yet to come that you will likely not have to experience this problem. Even among us LTS, many/most don't have cognitive loss. Of coarse, I'm not sure what lies ahead for any of us but hope and faith are two things we must grab with a tight grip. It's not always easy.

Waking up each morning brings uncertainty for me but I try like hell to enjoy the day. :)

m.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Basquo on November 07, 2013, 09:27:36 pm


Oh yea, and my doctor still will not let me travel outside of the states yet. >:(



Why? Do you live with him?  :o  Sorry, I know that's flippant, but I've seen you up close and you are a perfectly capable world traveler! I can understand that he might be concerned if you wanted to go somewhere that was known to harbor issues that might compromise someone with a compromised immune system, but I don't see why you can't bloody well go where you please. You're not going to turn to dust should you choose to take a trip to Canada.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: NY2011 on November 10, 2013, 09:44:44 am
the biggest personal challenge I now face is finding the courage to be comfortable with having this so-called "status" that has one of the worst social stigmas associated with it, and being able to dismiss the assumptions that people may make about my lifestyle and all that goes along with it.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: watl on January 04, 2014, 06:50:59 pm
I absolutely love this thread and am surprised I hadn't come across it before it was resurrected. It's real and without the usual varnish. It has those details one can only get from others who have lived with this disease other sites can only provide in the most clinical of descriptions. For myself, I want to know what possibly lay ahead other than "I have lived for x number of years with this and so can you."  What exactly does that mean anyway?  Am I doomed to periodic sicknesses?  And what does periodic mean?  Weekly?  Monthly?  Yearly?  These are the real stories I come here for and I sure hope there are many more of them.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: minatl on January 04, 2014, 08:04:55 pm
I have spent my entire twenty years with HIV in Atlanta and hae managed to receive pretty adequate care, even during the slurry of misinformation that comprised the late 90s and early 00's. Might I ask where you are getting care?

jkinatl2--Wondering where you get care in Atlanta?  Several of us Atlantans here, and I'm new to town and newly diagnosed.  Not too crazy with my care so far....
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Battle4Hope on January 18, 2014, 11:51:31 am
taking daily medication upsets me a lot.....i wish for a miracle pills to altleast stop daily doses :(
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on January 18, 2014, 11:56:18 am
taking daily medication upsets me a lot.....i wish for a miracle pills to altleast stop daily doses :(

Maybe they can make gummy antivirals to make them fun to take . Sponge Bob would never make us sad at pill time .

I think we have room to reasonably expect a once a week or month therapy in the coming years . 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Battle4Hope on January 18, 2014, 12:48:49 pm
haha....ya u are rite@jeff,'anti viral chewing gum', LOL ;D....hey,thanx huh,u blew my worries for time being........lets hope for sum innovative medication !!!!!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on January 18, 2014, 12:53:58 pm
haha....ya u are rite@jeff,'anti viral chewing gum', LOL ;D....hey,thanx huh,u blew my worries for time being........lets hope for sum innovative medication !!!!!

I do think some better treatment options will come our way but until then a good laugh every now and then is powerful medicine as well . 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: leatherman on January 18, 2014, 01:09:12 pm
I would be remiss to not mention something first before posting some good news, Battle. First off, many many people take daily medications. It's actually the blessing of medications. In the early 1900s people were mostly dying by 40, today the avg life span is near 80-something. A large part of that is because people (poz and neg, old and young) take daily meds and fight off death daily. ;)

Secondly, I remember the days of taking 32 pills a day to keep the HIV at bay. Now I take 5 and think it's a blessing! But news out just this year talked about upcoming meds that may be once-a-month injections or maybe even once-evert-THREE-months injections. That's pretty spectacular!

Quote
This year, we learned much about a couple of "long-acting antiretroviral" candidates in the works. Most notable among these is GSK1265744 -- which, although it may need to be injected, is being engineered so that it only has to be taken once every four weeks at the most.

Early clinical trials involving these drugs have shown promising results. Now, to be sure, it's not a guarantee they'll work out, and many months of study lie ahead before we can even begin to entertain the idea that they'll become a part of regular HIV care. But it sure is an exciting concept to consider, all the more because it may be achievable.
http://www.thebody.com/content/73500/10-moments-that-changed-hiv-care-this-year.html?getPage=5

Just keep saying to yourself that the meds (and google LOL) are your friends. Thanks to the power of positive reinforcement (saying that mantra, taking your meds, and living another day) one day you may start to really feel that way too ;)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: CybertronEra3 on January 21, 2014, 03:02:13 pm
For me it's only been almost 7 months and I feel that the biggest hurdles are my lack of motivation, the self-imposed isolation, my constant irritability that just kills any chance for intimacy and navigating my role in life. Also the stress of keeping mum on my status from family members and longtime friends. I know one day I will disclose my status but until I reach certain physical health goals and an undetectable status that will not happen any time soon. The lack of motivation is my biggest challenge. I feel once I break through the rest will be quickly resolved. Before my new status I always considered myself a very self-aware individual but recently it's hard to look at aspects of life without the flash of the word P O I N T L E S S dominating my internal narrative. I know Im just in a bit of a haze and it will pass but till then it's a mental battle coupled with the one happening in my body. I'm a self professed secular humanist, and am determined to leave this world a better place then what it was when I was birthed into it. I feel my proverbial clock ticking away when left to my own devices.  Then there's also a maddening "fuck it" mind frame that leads to a call for anarchy. Alas this cosmic struggle will be played out by my choices alone and hope I can accomplish everything I can before I check out.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: darryaz on January 21, 2014, 05:04:01 pm
taking daily medication upsets me a lot.....i wish for a miracle pills to altleast stop daily doses :(

A 90-something friend of my Mom's told me once that she LOVES her pills.  She is the only person in her family who lived beyond their 50's.  She completely attributes her longevity to the PILLS she takes every day.

So in the "big picture" taking a few pills each day may not be so bad :)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Joe K on January 23, 2014, 04:34:07 pm
My biggest challenge is to decide what to do with my life, now that I am single.  In March, I will have lived with HIV for 30 years.  In June, I will become 60 years old.  I have lived as much of my life poz, as negative and I simply can no longer remember the feeling of not being HIV positive.  I have been involved with the HIV community, in some capacity for 28 of those 30 years.

I have lived at least two decades longer, than anyone told me I could, when I became poz and some days, I feel I am long past my expiration date.  I have battled depression all my life and combined with the damage from HIV and medications, I am in a body that is old and frail, decades before it should be so.

I no longer fear death and in some ways, will welcome it, simply to stop the hurt and heartbreak.  So many of my dreams were crushed when I became poz and while I have no regrets, I resent what has been taken from me.  Yet, I still question why I survived, when all of my friends did not?  I got to live, but I was left alone.  I was lucky, I am told, but many times I am not so sure.

HIV did not just damage me personally, it took away the only world I knew and left me to fend as a stranger in a strange land.  It killed my friends and each and every death is permanently etched upon my being.  I remain numb from the loss and feel it every day, when I look around and find myself and few others, left from those terrible times.

Just to be clear, I am doing fine and writing these words, helps me to clarify what my "real" issues happen to be, as well as sharing my experience, of which many others on these forum share.

I assume this is my "mid-life" crisis, but no flashy cars for my birthday.  Instead, I will step back and pause, to reflect on my utter good fortune in life and then figure out what I want to do for a "second act."

I do this, not only for myself, but for those I have lost, the ghosts in my mind, as I will never stop mourning their loss...  nor shed the feeling of abandonment. 

Nobody did it to me intentionally, but it still happened.

Joe
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Ann on January 24, 2014, 07:19:18 am
Thank you for sharing that with us, Joe. I know it wasn't easy.

((((((((Joe))))))))

Love you buddy. We're all here for you.

Ann
xxx
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on January 24, 2014, 08:08:41 am
Thank you for sharing that with us . Hugs .
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: RiderMan on January 29, 2014, 10:07:24 am
Hi everyone.  Good to read this email string, insightful and therapeutic for me.  I was diagnosed fall 2012 and no meds yet. My personal challenges are the same as when I found out cuz I am not being proactive to address them:

1) Disclosure to family - I did reach out to my dad and afterwards my sister, both were supportive however have not told my mom. She would be broken and I do not want to see her depressed (she is already battling this)

2) Every day without fail I think what an idiot I was. My brother died of AIDS in the mid 90s, I remember taking him to the hospital for a strange skin rash, asked the doc to do a blood test. I saw 1st hand what someone goes through, but I still put myself in a risky situation (unreal!)

3) I have a daugther who is 5, I know that one day I will need to tell her and it really worries me.  I love her so much and I worry that she will see me differently

4) I actually reached out to the person that I contracted HIV from, she recently said she stopped meds and will go with experimental meds, she does not trust her doctor; I am pressuring her to seek a new doctor but does not appear interested. From reading many posts I only see that meds are the true solution and not detoxification, vitamins etc (but I could be wrong)

5) starting meds; I had 2 doctors evalatuate my situation and both recommended different meds, this concerned me.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: zach on January 29, 2014, 12:58:40 pm
loneliness, nothing else has even come close. it hurts

regrets, for a period in my life when I went out of control, high risk behaviors, and now i'm paying the price

stigma, I've learned to not only live with that, but challenge people about it. but losing so many lifelong friends with little fanfare really hurts

being totally poz outed in the small town where i'm from, everyone knows. tim knows where i'm from, i'm sure he can understand that

but what really killed me, my youngest son sat in class and listened to kids making fun of hiv/aids.... I've never in my life felt so ashamed as when he cried telling me that story

edited to add: and falling so completely apart when I was diagnosed. even without that little tid bit, I was already under incredible stress, I had worked really hard to build a life and felt like I was right on the edge. then the AIDS thing. and I shattered and broke, and lost everything i'd achieved. now I don't know how or if I can ever put it back together again. and I feel lost
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: thunter34 on January 29, 2014, 01:00:37 pm
but what really killed me, my youngest son sat in class and listened to kids making fun of hiv/aids.... I've never in my life felt so ashamed as when he cried telling me that story


Ouch.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: thunter34 on January 29, 2014, 01:10:08 pm
jkinatl2--Wondering where you get care in Atlanta?  Several of us Atlantans here, and I'm new to town and newly diagnosed.  Not too crazy with my care so far....

I am in the ATL area, and I get treatment at the Grady IDP.  Now many would gripe about this, but overall my care has been downright decent.  And I have to say that the doctor I have now KICKS ASS.  He has twice now taken the time to call me at home to check up on me.  Once when my collar bone  was broken, and now when there was a potential blip/maybe more situation going on.  He has also given me email access to contact him with questions or concerns at any point in time.  I didn't get that good of care when I was under the usual insurance frame.

Now...as for the question, I sort of share an answer with Joe:  I have zero idea what to do with my life.  That's just being honest.  Put bluntly:  I was raised in a very evangelical environment and taught to expect the end of the world long before I would ever see gray hairs.  Then despair over my personal truth versus the fantasy world I was raised in led me to essentially try to take myself out passively.  Well...long story short, I pulled through all that and have come around to being a bit more fond of myself these days.  And yet...I find myself here at 43 without a clue as to what I "want to be when I grow up".  My collection of health issues keeps me uncertain about what kind and how much work I can do, but the biggest factor is that I am facing a future I never expected to have - for two different reasons.

That's it.  That's me in all my humbling truth.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: SouthSam7 on January 29, 2014, 01:50:16 pm
After two years in Atlanta, I moved back to Birmingham. The uninsured care in Atlanta was atrocious. I thought I could literally die so I had to leave.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: thunter34 on January 29, 2014, 07:38:02 pm
After two years in Atlanta, I moved back to Birmingham. The uninsured care in Atlanta was atrocious. I thought I could literally die so I had to leave.

Don't know how you and I managed to have such drastically different outcomes in the very same system in the very same city.

While I agree that there are significant problems with regard to how the state handles ADAP, I remain skeptical that Alabama would be some land of milk & honey in comparison.  Seriously?

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: hivtalian on February 02, 2014, 11:43:00 am
Joe reading your post made me really emotional.
I've jut been diagnosed, not even 2months, and I'm 40.

And reading what you said about all your friends gone made me think about how things have changed in last years and how "lucky" all the newbies like me are, living in an era when hiv is not anymore the monster it was in the past.

It's also thanks to stories like yours, that "new" people like me can hope in a better future and can jump over all the depression that comes just after the diagnosis...

I guess from what you wrote that you had a life full of love of all those friends gone, who will stay inside you, and now they're there with you helping me, and all the people like us, to go on and fight.

I've been thinking "life is gonna be a shit", "it's all gone", "game over", I?ve been also thinking of suicide not even 2 months ago, but thanks to people like you, some friends here and a great doctor I really trust on, who gave me my pills straight ahead for treating my acute infection, Im' feeling pretty good and I'm very ...positive toward my future.

My biggest challenge concerning being positive?
It's not about death now, I know we have quite a good life expectancy.
It's not about pills, I know they're and they're gonna be my best friends forever , and I'm happy to swallow.
It's about, I must confess, my sexual life. I'm still feared to have sexual intercourse and I have to fight the automatic thought "I'm poisonous".
I'm feared to figure out how to behave with my sexual partners (telling or not my status?) and to do even safe sex (oral sex without condom is a big concern, but ...thank you Ann for your great advices...!).

But all I can say is that every day is getting better, and one month ago I'd never have thought I could be so "quite good" after just few weeks.

My pills work, no acute side effects so far and values are great (cd4 922 and VL 1024, starting from cd4 716 and >500000 end of december 2013).

So thank you all, thank you Joe for sharing (go on, life's worth living every day, and I'm sure you've reached that interior melancholic smile typical of wise people which is a gift for everybody), thank you Ann, and thank you research for giving us the chance to fight, and who knows, maybe, to win, battle after battle, this war.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Cenlaguy on February 20, 2014, 10:07:26 pm
My biggest problem is dealing with this hiv rash that appears on my face. It's driving me crazy and idk what to do. I have been out of work for almost two weeks now. I have tried cortisone creams. Didt work. I have never had acne so this is very embarrassing. I don't even leave my house it's so bad. I went to my person doc yesterday and he have me a cortisone shot. I hope this helps. Does anyone know how I can make this go away? I just started my meds about 3 weeks ago as I was just notified I am hiv pos. I am taking stribild. My cd4 count was 314 and vl was 274,000 before starting meds. I don't go back for another lab work until next month. Someone please help if you have been through this situation. Thanks.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Almost2late on March 27, 2014, 04:50:51 pm
Hi Everybody,

My biggest challenge was back at the end of January when I had PCP in the ER and stayed in the hospital with this brand new (to me) diagnoses. Thought of suicide constantly back then but I also thought of my family and what that would do to them, So I kind of got over it, sought of.. Now it's a few challenges that go hand in hand, I gotta go to work, I got KS and no one at work knows about it but they kinda know something is wrong.. I just tell people to mind their own business and they get pissed. Sometimes I get up in the morning and think to myself "fuck it, I'm not going" but I still manage to go in.. I could handle taking the pills, just don't know if I can continue going to work and getting OI or cancer and not telling people.. need these fuckin CD4's up so maybe I can get on with my life! >:(
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Almost2late on March 27, 2014, 04:56:16 pm
It's almost Friday and Sunday I'm going to the AIDS walk so cheer up dude 8)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: hope_for_a_cure on March 27, 2014, 06:51:43 pm
I suppose reacting to the initial shock at diagnosis should be my 'biggest personal challenge' with regards to my HIV status.  It is not however.  The week I was diagnosed was really suppose to just be a trip down to see my mom and attend her 80th birthday party.  The problem was that I was so sick upon arrival that I was not able to do much more than stay in bed.  A quick trip to a doctor here landed me in the hospital for tests... no need to go into details as they are not germane to where I am heading with this.  I found out I had full blow AIDS.

OK... the first big challenge for me once I was able to breath w/o my oxygen concentrator again would really be the adjustment to this whole new lifestyle.  Additionally, the stress related to obtaining health care and meds on top of my relocation to SC proved to be a challenge.  My period of financial hardship ended up being a double edged sword actually.  I immediately qualified for ATRIPLA's Patient Assistance Program and MIAP status which took care of the $44,000.00 hospital room charge.  You have to be pretty destitute for that to happen and I was in that category at the time.  On the other hand I had to sell my home in Maryland (very very little profit) and close out that part of my life for good.   

The soul searching that I went through and redefinition period changed me the most.  My initial application for Social Security Disability was approved and thank goodness I had some good employment in my past that allows me a decent monthly amount.  Challenges such as rebuilding a life while living with family, starting over and regaining financial security from nothing, trying to get my 'effin' CD4 count to stay above 200 would be my biggest challenge actually.  I am basically pretty upbeat and the whole AIDS thing and now Cancer (lymphoma) thing have not done me in yet. 

I miss my old lifestyle living in the home I own, dating, traveling, etc. from time to time but realize that I am needed here as a caregiver for my elderly mom who would be in assisted living otherwise.  I truly am at peace for the most part... very rare for me to get depressed and honestly I could see where folks would.  Its just not in my chemistry for some reason.  Don't get me wrong, I have my days when it seems 'heavy' but those are not frequent.  Support from friends and family in my case is amazing.  A simplified life has actually done me good now that I think about it... by that I mean... living in a small town with family and no longer being stressed over keeping up a 100+ year old house that was way too big for me to begin with. 

Sorry... don't usually vent here like this.  Good thread.  Just a bit of insight for some of you who do not know me here.  I have met many of you and consider you to be friends for life!  Hope to meet others when I can make it to an AMG again. 

Best to all!

James
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: drewm on March 27, 2014, 07:23:03 pm
At this point, 4 years into this, the biggest challenge is keeping up with the required paperwork to maintain eligibility for medication assistance etc. Not to sound smug, because I certainly don't mean to, but some days I don't even think about having AIDS. At this point in my life, it's a nuisance but little else.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mitch777 on March 27, 2014, 09:08:42 pm
James and Drew,

Thanks for the posts. I can relate to them both.

Mark
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: ratcat on March 31, 2014, 09:39:30 am
     The biggest challenge for me is the fact that I decided to pay for all of my care out of pocket, and in order to do this, I live in Thailand, where I was infected.  I miss my family and the USA but I do understand that life in the States is much more complicated and expensive and that there is little freedom there anymore.  I don't miss paying taxes, high rent and looking at the rear view mirror every 10 seconds when I'm driving.  Taking a pill every day is not a big deal, but traveling for an extended period of time would be and is difficult because It's not easy to get my hands onto more than a six month supply of meds.  So, basically I am trapped in a foreign country, working a fun but not high paying job.  HIV has forced me to plan more....and has stopped me from making any big plans!  I hope that this makes sense.   
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: zorro62 on April 27, 2014, 02:29:40 am
The loneliness. Fighting the urge to  resort to drugs and chaos to compensate.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: phoenix on May 04, 2014, 09:35:15 pm
deciding when and who to tell. been one year since I was diagnosed with HIV/AIDS and i  have told no one. it doesn't feel right not letting family and close friends know. I realize that the fear of rejection and shame are the things I need to work out. getting there just takes time.         on a brighter note thanks to all  of you for this site. this is my first ever post anywhere and after reading what I wrote I still got a long way to go in learning to express my thoughts.  thanks for listening                   
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on May 04, 2014, 10:25:33 pm
deciding when and who to tell. been one year since I was diagnosed with HIV/AIDS and i  have told no one. it doesn't feel right not letting family and close friends know. I realize that the fear of rejection and shame are the things I need to work out. getting there just takes time.         on a brighter note thanks to all  of you for this site. this is my first ever post anywhere and after reading what I wrote I still got a long way to go in learning to express my thoughts.  thanks for listening                   

Welcome to the forum Phoenix . I think you will find many other people in the same situation as most of us have struggled with the same issues at some point .

I'm happy you decided to join us . 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Theyer on May 05, 2014, 11:51:46 am
deciding when and who to tell. been one year since I was diagnosed with HIV/AIDS and i  have told no one. it doesn't feel right not letting family and close friends know. I realize that the fear of rejection and shame are the things I need to work out. getting there just takes time.         on a brighter note thanks to all  of you for this site. this is my first ever post anywhere and after reading what I wrote I still got a long way to go in learning to express my thoughts.  thanks for listening                 
Welcome.
Re--- expressing your thoughts. Just bash away dear heart and if you create a fire storm jump in quick say sorry and blame it on getting the dosage off recreational drugs wrong coz 97.5% off regular posters have been there.

If that horrifies you then say someone slipped you a Mickey Finn 98% off regular posters have used that one 85% more than once.

Apart from the not telling how are you otherwise.
And welcome again.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Theyer on May 05, 2014, 12:01:55 pm
Hi Everybody,

My biggest challenge was back at the end of January when I had PCP in the ER and stayed in the hospital with this brand new (to me) diagnoses. Thought of suicide constantly back then but I also thought of my family and what that would do to them, So I kind of got over it, sought of.. Now it's a few challenges that go hand in hand, I gotta go to work, I got KS and no one at work knows about it but they kinda know something is wrong.. I just tell people to mind their own business and they get pissed. Sometimes I get up in the morning and think to myself "fuck it, I'm not going" but I still manage to go in.. I could handle taking the pills, just don't know if I can continue going to work and getting OI or cancer and not telling people.. need these fuckin CD4's up so maybe I can get on with my life! >:(

That broken down bike is running away with it,s self. It takes time to get over what you had, its hard, it will not be helped imagining worse things. Having typed that ,I also will admit to doing it to. Trick is to then quicky celebrate the fact that I am only day nightmaring and flip it into celebrating the absense off a pesky OI.

Ain,t PCP enough or are you by nature just greedy dear heart. ?
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: ARMANDO on May 13, 2014, 07:04:27 pm
MY BIGGEST CHALLENGE
 that i no longer know how to live,i no longer know how to love ,i no longer know how great pain and desperation can be,i no longer want to know or be known.I ONLY EXIST BUT I NO LONGER KNOW HOW TO LIVE!!!TIME PASSES ,days turn into weeks ,weeks turn into years,i see DEATH AND DYING all around me but still i remain.I know this sounds like it came from some book but this is my reality and the i the only thing i look forward to is sleep.When i sleep ,i escape life for another day.







Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: JosephP on May 17, 2014, 11:18:34 pm
deciding when and who to tell. been one year since I was diagnosed with HIV/AIDS and i  have told no one. it doesn't feel right not letting family and close friends know. I realize that the fear of rejection and shame are the things I need to work out. getting there just takes time.         on a brighter note thanks to all  of you for this site. this is my first ever post anywhere and after reading what I wrote I still got a long way to go in learning to express my thoughts.  thanks for listening                 

Exactly my biggest personal challenge!!! 6 months into this new "stage" of my life and I am still scared and afraid to "Let the Cat Out"... The daily meds are not a problem and I am actually almost anal about taking it...I always have one pill with me at all times and I feel like something is missing if I am not carrying one.

And the old sexual life!!! It has come a grinding halt! I just don't know what to do so it has stopped!..
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: drewm on May 18, 2014, 10:26:04 am
I am reading a lot of comments about "the new normal" whatever that may be. It has dawned on me that I really barely remember my life before May of 2010 and if I choose to dwell on that date, everything becomes pre and post dx. I don't have any magic advice for how to live our lives and can only offer up what I have done.

The first year was rough but at times rewarding when the labs kept coming in showing progress. Sexual prowess eventually returned and is as good as it ever was. (I am, however, in a relationship and he is also poz). Second year became even easier, third year the same. Now, it's juggling paperwork etc.

I simply refuse to let AIDS manage my life...I manage it. My psychiatrist helps but life really has moved on.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: ARMANDO on May 26, 2014, 07:05:25 pm
thats  good attitude to  have right now but i suggest you wathe the HBO SPECIAL THE NORMAL HEART.IT GIVES A VERY ACCURATE PORTRAYAL of what the early years were like when we didn,t have ANY CHOICES.WE have come a long way since then .great new drugs,great variety of doctors,agencies to help us when we no where else to turn.I remember all to well like it was just yesterday,when our social life consisted of funerals and hospital visits but now we have HOPE.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Kmjohnson1314 on May 27, 2014, 03:36:42 pm
Thankfully I haven't had any side effects of my drugs.  I've been on Atripla for almost two months now and it's done wonders. My biggest issue is feeling like my boyfriend isn't interested in me. As in, lack of sexual activity. Like, I know it's for the better that we don't get too hot and heavy, but sometimes I convince myself it's more because of me than my diagnosis.

At first, I had a lot of troubles simply being alone. Whenever I'd get home from work I'd start getting into my head and thinking all these dooming thoughts, getting myself worked up into a sobbing frenzy. I took steps to ensure I would spend as little time alone by having friends over (then, I got a dog. That helped A LOT) or by going to a friend's house.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on May 27, 2014, 03:46:09 pm
Thankfully I haven't had any side effects of my drugs.  I've been on Atripla for almost two months now and it's done wonders. My biggest issue is feeling like my boyfriend isn't interested in me. As in, lack of sexual activity. Like, I know it's for the better that we don't get too hot and heavy, but sometimes I convince myself it's more because of me than my diagnosis.

At first, I had a lot of troubles simply being alone. Whenever I'd get home from work I'd start getting into my head and thinking all these dooming thoughts, getting myself worked up into a sobbing frenzy. I took steps to ensure I would spend as little time alone by having friends over (then, I got a dog. That helped A LOT) or by going to a friend's house.

Welcome to the forums . It does get better in time and coming here to give and get support may help you as well .

Please be aware that the forums are searchable so if you are comfortable having your name and face associated with this forum we are comfortable seeing it .  ;)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: craftypoz on June 03, 2014, 07:33:42 pm
For me the most challenging thing is, as I approach 20 years living with HIV without symptoms or issues, that I grow more anxious about when things will escalate, when symptoms will appear, when it won't be possible to go a day or so without thinking about being poz. Taking meds once a day serves as my reminder, but I don't linger on the thought. But the longer I live, the more anxious I become, wondering when things will change, when symptoms will be more frequent, more visible.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: tom g on June 05, 2014, 04:52:53 pm
i battle fatigue every day so ive learned to take many breaks..it helps and i dont ever appologize for taking one..im blessed to have a neg roomate who cares and supports me..wouldnt know what id do without him..

Dan...Plz keep taking ur meds on time..it helps set an example for ALL of us. Your never alone if you dont want to be
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: tryingtostay on June 05, 2014, 07:11:07 pm
I think for me,  even with my unique scenario, it has got to be the Brain Fog.  I've been describing it to my doctor as dizziness; didn't know it was called brain fog.  It has been a daily thing for me from morning to night.  Sometimes impairing my cognitive functionality to a noticeable difference.  It gets me down as-well. 

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: newbie92 on June 08, 2014, 04:44:51 am
The biggest challenges for me are... Facing reality. Understanding that this is life now. I fear that my life will be cut short. I fear that I will not be able to attend med school any longer. I feel like I can not talk to my family because I'm afraid of judgement and criticism. I just want to feel normal.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: initforlife on June 17, 2014, 10:23:16 am
The biggest challenges for me are  One is not hating the guy who gave this to me. Oh how I remember that day in march when he texted me and said please call me. I was at work he called told me I needed to be tested he had hiv.  I drove straight to health dept  right then got tested Then I call him back told him not to be upset we were in this together no matter what my results were. I also told him there would be no blame game as we both had sex unprotected. so both at fault. the second would be I wished I have never told a very close family member who I thought I could trust. turns out I couldn't and she told the rest of my family. Like to say you find out who your true friends are and who you can trust . anyway I'm scare to death people around me will now find out  I live in a small town and they still do not accept things or people who they think are different.   Third having family who now know about my hiv act as though they are going to catch something from me! Really read up on it. very hard to catch unless we are having sex is what I want to scream but no I just say it is not that easy to get. and I go on  and the one last thing  again   is not hating the guy who gave this to me now, since he told me it is hard for him to see or talk to me as I made him think about the hiv to much! Ha thanks to him I have to think about it every day.  the meds are not a problem to me as of right now I have other health issues before this so already on meds.  Thanks for this site. and I just wanted to add to all the one who are just finding out they have hiv.  You can over load your mind at first take and deep breath and walk away from google for a while then come back  some stuff I read at first scared me and then I saw it was dated in early years.. This site has been and continues to be my life saver!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Poppy33 on July 16, 2014, 07:32:19 pm
Having a freakin headache everyday and trying to gain the weight back that I lost.ugh!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mleatherboy on August 20, 2014, 01:24:03 pm
Damn. To say reading this thread is painful is an understatement. Long before I was poz I was raised in a sense by older gay men (mentored). So I've heard stories of what it was like when AIDS first came about and people dropped dead. I watched AIDS documentaries, learned about stonewall, read one of randy shilts book, that way I was educated in HIV and the history and the impact it had on the gay community. Still though, I feel guilty that I did used to turn down poz men when I was younger. I was just scared was all. Even thought I knew better. I was also one of those idiots when I was younger to use the whole, "NEG/DDF UB2". I hate that shit so much today when I see it on websites and I realize the impact it has now. But I just typed it blindly because everyone else did just like stats and I just wanted to get it right. I think most people type it blindly anyways and think nothing of it.

Stigma is something that scares me deeply because I've read and been told stories of the stigma that people have faced. It scared me at first from even talking to people. Hell one cute guy talked to me and I just up and left because I was afraid of being turned down. I had a few bad experiences when I was first poz so I had a general assumption that neg guys don't want anything to do with poz guys. But I've been with a neg guy or two lately and it doesn't bother them so it was just a bad impression I got. It's partially a defense mechanism but when I met someone at a bar, in person, or wherever one of the first things I say is that I'm HIV positive. When I was at a bath house a few months back I told guys and no one wanted anything to do with me. I found one poz guy and he was almost afraid to touch me or do anything but I could see the desire of what he wanted to do. Just touch and contact with another. I told him I was poz and he told me he was too. He seemed so relieved and wasn't as closed up.

But I've known people like that who have been rejected by so many that they feel they are no longer desirable or that they aren't even allowed to feel human touch or contact. Dehumanized almost. I think that's part of the problem with my fear of the stigma. I've got some, but not nearly as much as older gay males who have this for years and I know the meds and acceptance are much better then they used to. I think sometimes I'm kind of living in the past and fearing that it's still like it used to be and people still don't understand and won't. But part of that is not wanting to reject or insult the memories and experiences of people who really did go through all the stigma.

It's scary sometimes now when I'm in public because when I watch people pass or talk whether it's at a gay bar, event, or in public I just can't help but wonder how many of these people are positive, how many people would accept me, who wouldn't? It's an irrational fear that I've created but it's hard to break. That and my social skills and shyness are a bit limiting to begin with.

Healthcare and meds have been extremely difficult with me either. I'm not the most reassured person or strongest. When I originally tested positive I was alone with no one to help me and I was confused at how to get on meds, how to get care, and decided that well fuck it. It's almost like I've been hiatus for a year and in a different world or reality. But now that I'm back where I grew up and with my roomate and best friend of 4 years I've had to face all the initial fears of HIV alone. And what's really hit home lately is watching the AIDS documentaries, even shows like queer as folk, movies like The Band Played On, and Dallas Buyers Club. It never quite hit home before but now that i actually have it, it just really hits home now. But that's not to say negative men are unaffected my roomate who watched one the stonewall documentaries cried when he saw the AIDS quilt because he knew people. I've heard too that survivor's guilt, which someone said something about, doesn't just apply to positive people but even negative men sometimes.

But for some reason and maybe this is stupid but I don't feel like I can talk about being positive or anything HIV related to my roommate who is neg or anyone. I have a trucker friend who's neg and every time I mention something he just kind of nods and I just can't discuss anything like that with him. So that's probably the biggest dilemna right now. Some days I just feel so exhausted or fatigued that I flat out pass out. Other times I have so much energy it's unnatural. But the tired/fatigue/energy balance is just out of control right now and leads to me staying up all night/sleeping all day, but at least I don't miss my meds anymore like I used to. That and not having a job and going to school for a job and failing that. That really hit me hard I was so damn close to having a good career and now I'm back to square one.

I feel guilty posting this because mild depression, dealing with HIV alone, and irrational fear of an aged type of stigma is mild compared to others. Hell I met someone once who showed me pictures of what he looked like when he was wasting. And I'm young and fortunate (or maybe not) that I haven't had anyone close to me pass away and I don't know that feeling or the impact it leaves. I feel guilty also because I feel like I should be doing something. I came out when I was 18 because after learning about stonewall and gay rights I felt it would be a slap in the face to NOT appreciate that we can be out now. The only thing I can think of doing right now is the AIDS Walk in october. I really wanted to do that last year but I was scared to and my schedule didn't allow me. I also have taken a liking to the biohazard symbol and have a messenger bag that has the logo smack dab on. And I take that bag everywhere with me and I have mixed feelings about it, sometimes pride, sometimes shame, guilt, and regret. I don't quite know why I have the need to "mark" myself and make it public but I feel it's all I can do right now is create public awareness. I'm not going to shout on a rooftop "I'm HIV Positive", but being young brings some rebellion so sometimes I really do want do that. I've been thinking of taking the symbol and mark further but I'm waiting for now. But I'm not out to my family, I will after my levels go to undetectable. They won't reject me or hate me just worry, and that bothers me more. Shouldn't but I hate it when people have to worry about me even though the situation I'm in and my decisions have led to it.

I will admit that when I was at AHF the first time I went there I saw Poz Magazine. And this guy on the cover he was at Pride one year and to hear him speak at the parade and be so open about being HIV positive and not being afraid was really inspiring. There was also some positive music artist too that I listened to. Maybe it's a bit early to get political or try to do something and I think that everyone has their own way of contributing. Some people volunteer, work at clinics, donate, or participate in HIV related events. I think being out and open about one's status is also a way to help but it's not something everyone can do.

A few months ago I was really just tempted to just drive off into the sunset and just let chance and fate happen and wherever I end up I end up. Just no job, no real aspirations, dreams, or goals it leaves you feeling hollow sometimes. But even though I'm jobless my roomate has been my biggest support and he's kind of what's kept me tethered to Atlanta, reality, and reason and logic. If it weren't for him I would have probably left a long time ago. I'm not sure I should really even get into the relationship aspect of HIV. I've had relationships in the past and both were poly and monogamous at first anyways. I've learned and realized that sometimes when you're in a relationship you don't get to focus on your interests and things you want to do. Partially because a majority of energy is focused on the partner. But that's the biggest advantage I can say about being single right now. I feel I have a chance to explore myself and learn about who I really am. I'd rather learn who I really am and grow into my own person then have someone take care of me or change me. I don't want someone to fix me, I want to fix myself, it's just figuring out how that's very hard at times.

I think the hardest thing I'm accepting right now is I don't really fit into any group or subculture in the gay community. I used to be part of a few. Fitting in is a painful concept really and maybe the reality of "I don't" is even harder to face but accepting that you don't brings a little relief and less stress. I was actually stress free a few weeks ago but it's come back and hit hard. I'm trying to control it because I know that's bad for your levels and CD4. Well I've probably bitched and ranted enough. Didn't mean to do it this much. Again, my problems are nowhere near as severe as people here. And I feel selfish posting this, but it's a bit of an eye opener. I feel like it's a good wake up call that maybe things aren't as bad and I just need to stand and carry on.

As for some positives and ways I've coped. Well, I used to write, alot. Blog and write stories even although I've realized lately that writing doesn't help me as much as it used to. It used to feel so therapeutic and freeing to be able to let thoughts, feelings, and words flow out and release. But it doesn't get me to sleep anymore like it used to. Whenever I feel a huge surge of emotions or guilt or feel overpowered I play my guitar that I'm learning how to play. It's odd but I feel it channels everything. The only problem is I'm sometimes playing 7-8 hours a day lately and don't really want to eat, sleep, or go out and do anything. I just want to get better and I feel at ease when I'm playing/practicing. But if it's preventing me from looking for work right now (Which I need to) turn down friends or chances to meet people or eat that's not a good thing and more of a dependent. Which it shouldn't be. If anything it will probably make me a bum.

Reading this I do sound like a train wreck. I think I need to get over my fears and insecurities and go to some social groups. Although I searched and didn't find any poz ones in my area. Pride is coming up so that's a good chance. Since writing this and probably reading this is such a headache I hope that one thing that happens is in a few months time things chance and I grow some stones and stop worrying so much what people think and have more self confidence and a job hopefully. I know it probably doesn't mean anything but I really am sorry what some people have gone through and the experiences they've had. My only hope is that the people who do help at clinics, are politically active keep on doing what they do to get rid of stigma, more support groups, and that the medicines keep getting better and someday that being HIV positive won't be that much of a big deal and people are more accepting of it. But maybe that's being a bit too ideal.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Joe K on August 20, 2014, 04:48:05 pm
LeatherBoy,

First, you don't sound like a "train wreck", rather you sound like someone who has taken control of your life and has a pretty realistic view of it all.  There really are no right or wrong answers to our issues, all that matters is we find something that works for us.  This leads me to...

Second, please do not ever view your own struggles, against the struggles of others.  We each have our own tolerances and abilities in dealing with adversity and when we suggest that some "suffer" more than others, it creates divisions.

All suffering is relative, it's not a contest, nor a measure of character.

Thank you for sharing your story and welcome to the forums.

Joe
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: drewm on August 20, 2014, 05:16:43 pm
Took me a while to read and absorb your post LeatherBoy. Welcome to the forums.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on August 20, 2014, 05:25:36 pm
Welcome and thanks for sharing .
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Torchwood on September 01, 2014, 02:01:06 pm
Telling my 3 daughters (ages 5, 5 and 6) and the social ramifications that they will have once their school friends find out. I tell very few people about my HIV status because really, it is none of their damned business. Also in that regard, quite ALOT of people know about my status as I totally disclose it when SCUBA diving, racing cars (legally) or just getting some seat time at the track.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Torchwood on September 01, 2014, 02:03:15 pm
deciding when and who to tell. been one year since I was diagnosed with HIV/AIDS and i  have told no one. it doesn't feel right not letting family and close friends know. I realize that the fear of rejection and shame are the things I need to work out. getting there just takes time.         on a brighter note thanks to all  of you for this site. this is my first ever post anywhere and after reading what I wrote I still got a long way to go in learning to express my thoughts.  thanks for listening                 

I waited 7 years to tell the majority of my family. A lot of them still don't know because I do not associate with them. Don't feel bad about it and welcome.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: wpa16101 on September 04, 2014, 12:01:31 pm
the biggest challenge I would say is not the physical part. The "social death" that I experienced when I was diagnosed was beyond any experience I could ever imagine. I have kept my status confidential. my thoughts are need to know basis. not even family knows. no one. It has isolated me totally to a point and has taken a huge toll psycologically. imagine how hard it is for a healthy normal person to find someone to share their life with. try it with hiv. find a nice lady to spend time with, date and have a relationship with. then tell them, by the way, I am hiv positive. the idea of total rejection and being outed have eliminated that for me. it is and will be a lonely life as far as I can tell at this point. one day at a time is all I can worry about
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Keav on September 07, 2014, 10:08:30 pm
The biggest challenge? Where to begin!

For one, I need to actually accept the fact that I am HIV+. Since finding out, I have occupied my life to the fullest extent, to where I don't have any down time to think of it. I feel that if I can't come to terms with this, I can never live a normal life.

Second, while trying to come to terms, I am not sure how long it will actually take for that to happen. The person that I am currently dating, I feel as if I have totally shut him out of my life; not wanting him to touch me at all. He doesn't deserve it at all. With that being said, I often wonder if I should just end things with him, rather than sending him on an emotional rollercoaster.

Last, if I should continue to try and hunt down the person that infected me. I have been trying to inform him for almost eight months, but have been unsuccessful, as he has been rescheduling over and over again.

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: leatherman on September 08, 2014, 09:36:48 am
The person that I am currently dating, I feel as if I have totally shut him out of my life; not wanting him to touch me at all. He doesn't deserve it at all.
I would hope that you could work you way past this issue. Didn't you say that your BF is also HIV+? If y'all are both on medications and UD, there is no chance in hell of any cross-infection or anything. People living with HIV often serosort (hook up with those of the same status) to avoid a lot of "bad feelings" and anxiety. If your BF has already been poz a while, he is probably the best person in the world to understand you and the issues you are going through. It would be a shame to throw away a good guy that could help you.

Last, if I should continue to try and hunt down the person that infected me. I have been trying to inform him for almost eight months, but have been unsuccessful, as he has been rescheduling over and over again.
Nope. stop trying right now. The past is the past and that guy's health is his concern. You should simply send him a note saying that he needs to get checked for any STDs and HIV, and leave it there. BTW have you been contacted by your state's health dpt? Most states do anonymous partner notification. (when someone tests poz, this data is given to the state. the state health dpt contacts you to make sure you understand the issues surrounding being HIV positive. they ask for a list of possible sexual contacts you might have had. they then follow up with those people suggesting they should get tested.) There really isn't any reason for you to continue to track down this guy when the state will do it anonymously for you.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Kmg1947 on September 11, 2014, 10:50:45 am
My son says his biggest challenge is just the stigma. He is in fear of people knowing. He has had to change Doctors because of it. Some places like clinics are not confidential at all they just throw around the most personal sensitive information like it is nothing, as they are not living with this. He explains that to me often. He said people comment on his weight as he is small, so he feels like they are looking for something. He is trying his best to move out of this state and go somewhere else and not be known. I respect that! I told him no matter what I am standing here for him and will see him where ever he is at, as well as continue to being the support he needs.

One day at a time.
Kay
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: drewm on September 11, 2014, 11:40:25 am
My son says his biggest challenge is just the stigma. He is in fear of people knowing. He has had to change Doctors because of it. Some places like clinics are not confidential at all they just throw around the most personal sensitive information like it is nothing, as they are not living with this. He explains that to me often. He said people comment on his weight as he is small, so he feels like they are looking for something. He is trying his best to move out of this state and go somewhere else and not be known. I respect that! I told him no matter what I am standing here for him and will see him where ever he is at, as well as continue to being the support he needs.

One day at a time.
Kay

Thanks for being his rock, Kay. My mom is still my rock. Sorry about the confidentiality issues. That is something that should definitely be addressed with his doctor / management of the clinic.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Kmg1947 on September 11, 2014, 01:23:35 pm
Thank you so much for your encouragement.

Kay
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Wade on September 11, 2014, 08:48:52 pm
 Mine is fatigue,no doubt  , sometimes I'm fine , but I defiantly tire more easily & takes a long time to get moving in the mornings , & the lipo of course , but I learned that's part of who I am now.  Fix the things I can & the rest Well.................
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: zach on September 11, 2014, 09:46:03 pm
lonely, worn out
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: JosephP on September 17, 2014, 10:41:23 pm
l
but what really killed me, my youngest son sat in class and listened to kids making fun of hiv/aids.... I've never in my life felt so ashamed as when he cried telling me that story

That really hurts... Sorry!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: JosephP on September 17, 2014, 11:01:46 pm
Biggest? also most difficult... Keep mum about it! It has been 12 months since my shocking dx and still some times I get jolted by the tought that I am HIV+... No bitterness, I should have taken precautions but stupidity, the passion of the moment and ignorance have me here today. My ID doctor is great and she gave me hope since the first moment...My primary doctor is also very supportive. I feel great and take that blue pill day after day. I have become a slave of it and panic if I leave my house without my daily dose....
Reading all the posts here help a great deal. I can identify with so many of us that are going thru the same and gives me the courage to continue with life. I have stopped being sexually active, but I am approaching a moment with a girl friend of mine as our relationship has advanced and sex, or the thought of it, is inevitable...What I am going to do? I have not the faintest.. That is my biggest challenge... Also, there are some changes going on at work...Will I have to disclose? Additionally, I have three kids, adults now but nonetheless my kids... How will they react? How did you let this happen at your age, dad? is the question that pops on my head constantly. I have been reading these posts for a year now and love the compassion and understanding. It eases the pain somewhat knowing that I am not alone in the world...Dumb? no...Realist. I know my time to disclose might be getting closer and that does scare me!
One thing HIV has done for me is that I have became closer to God. I do pray. I do hope. I wish for  Him to pass his healing hands over me and rid me of it..
Keep up the good work and let's help each other...
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: atxpozguy on October 01, 2014, 01:47:11 pm
Mine is quality of life as it has taken a nose dive and the outlook does not look good after being diagnosed with cancer that is untreatable, the 40+ meds I must take to address organ damage caused by years of toxic cocktails, body weight is big concern now as I lost 40lbs with the last 30 days, muscle mass down to 37%, chronic diarrhea,  constant trips via EMS to the hospital, a primary care doc that is ruthless, zero support from local ASO, chronic neuropathy pain and early onset Alzheimer.

I am basically tired of all these health problems, tired of taking of taking all of this medication, have no appetite and not being able to see Dr Death for 3 months at a time..

This is what living with HIV/AIDS virus for 30 years does to us LTS...
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: JRRRRRR on October 13, 2014, 06:57:00 pm
Treatment adherence. It's an enormous effort for Matty the Damned. Not the night-time dose, but remembering to take the morning dose.

Bugger. Which is what I've gotta do know. Ah, shit! Or did I already take the fucking thing?

MtD
(Who can never remember)

PillBoxie app!!!  Put it on Nag Mode!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mitch777 on October 13, 2014, 08:46:39 pm
Mine is quality of life as it has taken a nose dive and the outlook does not look good after being diagnosed with cancer that is untreatable, the 40+ meds I must take to address organ damage caused by years of toxic cocktails, body weight is big concern now as I lost 40lbs with the last 30 days, muscle mass down to 37%, chronic diarrhea,  constant trips via EMS to the hospital, a primary care doc that is ruthless, zero support from local ASO, chronic neuropathy pain and early onset Alzheimer.

I am basically tired of all these health problems, tired of taking of taking all of this medication, have no appetite and not being able to see Dr Death for 3 months at a time..

This is what living with HIV/AIDS virus for 30 years does to us LTS...



At,

I am a bit dismayed that I missed this post.

While I have just had my own 32nd year being hiv+ as I speak I have not faced what you have. I DO however have great admiration for the strength you have had and without knowing if your condition is treatable or not or I would have two different replies maybe.

I'm glad in either case that you told us your story. I really would love to give you a hug right now.

m.

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: DANIELtakashi on December 05, 2014, 01:34:36 am
How long i can live is a question that drives me nuts now.
Here in Japan, there is an image of this disease as only a killer.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: DiabloII on December 10, 2014, 09:28:16 pm
I have had many challenges since being diagnosed 6-6-12 with HIV/AIDS.  My first challenge was accepting what I believed to be a death sentence.  I went into a deep depression made worse by extreme fear and the absence of having someone there to support me.  On more than one occasion, I thought of suicide as the answer.  However, I was taking care of my mother and knew suicide would destroy her.  I bucked up and eventually started meds.  My first encounter with meds almost took care of the suicide issue when a violent reaction landed me in ICU for 3 days.  Although I did not tell my family of my diagnosis, a former partner and good friend come to the conclusion I was poz.  I was horrified that someone now knew my dark secret!  He, being in the medical field, encouraged me to stay strong and continue with getting on meds.  However, he admonished me "NOT" to share my status with anyone!  After many trials with meds, my ID doc finally found meds I was not allergic or immune to.  The down side, the list was short!  As I went on the meds, my health started improving.  However, my mental health continued to become worse!  Eventually, I landed in therapy and began taking antidepressants.  As time went by, I started getting better and back on track.  Thank GOD for work!  It kept me occupied where I didn't dwell as much on my health.  11 months after my diagnosis, my younger brother found my meds and began asking questions.  He eventually determined I was poz and outed me to my mother which almost killed her soul!  Knowing that she knew only emphasized why I wanted to keep it a secret.  Not because of rejection, but because of the hurt and worry I saw on her face almost daily as she herself struggled with end of life issues.  On her last day with me, she begged me to do whatever it takes to beat this disease and not give up!  After she passed, I was once again thrown into a deep depression.  This time is has become much worse.  Now I seem to feel I have no more self-worth.  I have withdrawn from friends and family and basically get up every day, go to work, get off and go to bed.  I have since somewhat overcome the depression but still find it difficult to get out and do normal things.  My biggest fear is being alone the rest of my life!  Prior to my diagnosis, I was outgoing, had friends, had relationships and was extremely sexually active.  Now, not so much in any of those categories.  I still refuse to come out of the pill box about my status and I fear daily, someone will find out and out me to others.  There are days I wish I would tell everyone and let it be what it is going to be, but I'm afraid!  I want a love life!  A life partner!  Someone to share the good times and the bad times with!  I would say I want to be normal again but, I don't remember what normal is!  Recently, my ID doc informed me that my meds were not as effective as he had hoped they would be.  Although my CD4 has significantly improved and I have had labs return where by VL was UD, my latest VL's are slowly increasing.  My ID doc changed me to 4 new meds.  I'm lucky in that my insurance covers the cost of the meds.  However, with the new meds, my deduct has sky rocketed and it is putting me deeper in a financial crisis.  Additionally, these new meds have caused me to experience significant fatigue and GI issues.  They have also caused me to gain a significant amount of weight!  All this is really causing me to ask once again, why continue when I know what to look forward to!  Will things ever even out where I can enjoy life and companionship once again?  I'm not asking for normal or anything vastly great.  Just something that will bring some happiness once again into my life!  AM I BEING SELFISH FOR WANTING THIS?
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: moka1970 on January 16, 2015, 07:14:37 pm
My biggest challenge/fear is when I meet someone how/when will I tell them that I am positive and when the person finds out will they reject me.
Also..when do I tell my son that I am positive? I've been positive for about 22 years. My son is 10. He's negative (Thank God!)
Sometimes I am concerned that my ex-husband will tell our son out of spite.  My ex-husband is also negative.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mecch on January 16, 2015, 07:42:53 pm
My biggest challenge/fear is when I meet someone how/when will I tell them that I am positive and when the person finds out will they reject me.
Also..when do I tell my son that I am positive? I've been positive for about 22 years. My son is 10. He's negative (Thank God!)
Sometimes I am concerned that my ex-husband will tell our son out of spite.  My ex-husband is also negative.
How long have you been single? Haven't had to disclose yet to a romantic interest?
If your husband tells your son before you are ready to tell him yourself, you would be best to be ready with a firm and calm response. People can react based on how OK and calm we our ourselves.  If you keep any fear or shame about being HIV+ and show it, your son, or anyone, like a potential romantic interest, will react based on that, as much as the HIV status itself.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: chemeng83 on January 19, 2015, 11:45:52 pm
Hey everyone.  I just found this community and thought I'd let out my story.  Was diagnosed in 2012 after randomly going in for a screening.  I told my girlfriend at the time 3 weeks later.  Man, that was the hardest thing I've ever had to do.  However, I kind of suspected she was pos and didn't know because she was the only one I'd had sex with in a year and I knew my status before I started with her was neg.  Anyways, turns out she was pos as well.  Anyways, we got married and have settled down.  I can honestly say that I'm not 100% sure if we would've got married without hiv.  In some twisted way, it's a common struggle that we both face.  In regard to the medication, I don't view it as a burden...this is the stuff that is saving our lives!  I also don't worry about what could happen.  Sure, I have fears like everyone else (negs have most of the same ones) but how I will die is not one of them.  Whether car accident heart attack, or cancer, its going to happen to us all.  I've found it to be frutile to analyze it further who has added a single second to their lives from worrying?

What I have found is anxiety over disclosure.  That's the real effect of hiv.
Title: Biggest challenge is probably the fatigue
Post by: Carolinaonmymind on February 03, 2015, 07:22:49 am
I have always been a fairly active person, but a year into the meds I am finding my energy levels zapped at the end of the day. I have gained alot of weight (which has been a roller coaster since my diagnosis). I have to get myself back into an active routine but just don't have it in me most days. I am hesitant to take any type of supplements to help with this because I am unsure of any possible drug interaction with Atripla.

The other real challenge has been intimacy with my wife. For months I didn't even think of having sex again, but now I am craving that closeness. My virus is under control and I wouldn't do anything unsafe to risk her health, but she isn't ready yet. The time will come but it sucks knowing that she is afraid of being intimate. I totally understand though. Just wish she would spend the time educating herself like I have been forced to do.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: novemberguy on February 06, 2015, 09:15:16 am
Mine is my employment opportunities abroad. Im form an asian 3rd world country, and I keep on applying for jobs from 1st world countries including the US, but Im always rejected by the employer & agencies after testing positive. They even ask me to pay them for the damages & some even threatened to sue me. =( I just want to work abroad to earn more & provide for my family. Why can't the foreign countries accept hiv+ from a poor country like me? I am very capable to to the job, no OIs and completely healthy.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: WowThatWasLifeChanging on February 18, 2015, 07:19:48 pm
April 14th will be a year since I found out my diagnosis. 3 months prior to this I lost a child so finding out I had HIV wasn't nearly as traumatic. But now that the numbness from my grief is wearing off everything else is sinking in. I thought I would like to have another kid one day so i take a 3 pill a day regimen that is supposedly safe for pregnancy. I never forget the morning pill but on more than once have forgotten the evening dosage. i freak out and my ID doc reassures me as long as I'm 90% compliant I will be ok. My biggest challenge is my eating. I was a horrible eater before this, and now I have absolutely NO appetite. I drink 5 ensures a day and eat just a few things, if that. I am really worried about this. I feel it in my energy, and focus. I just constantly think, if I cannot eat, how long will I live like this, drinking only ensure. And of course, my doctor says well you aren't loosing weight and you are getting calories....but I don't think this is good for me. I have a teenage son and a young daughter. I also struggle like others with what and when to tell them. I want to tell them so they are safe and don't risk getting infected ever. (Although is is likely possibility my infection came from a dentist office and no knowledge could prevent that). I also struggle with disclosure. I went to the eye doctor for the first time since my dx last week and got to the question where it asked about HIV and just marked it no. I cannot bring myself to mark it yes. I have also not been back to a dentist out of fear and also because I don't want to tell them. I have only ever told my boyfriend (who is neg) and my best friend. No family, no one else. That is hard. But I listen to comments they make in conversation and think, if they only knew I had it...
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: zach on February 18, 2015, 08:03:29 pm
WTW...

I empathize with your loss. I too lost a child just months prior to diagnosis. It did seem to delay my reaction and ability to live for myself.

If you ever need to talk, PM me.

Zach
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: yahi on March 14, 2015, 04:46:22 pm

This is my first post in this forum. I 've been reading your forum long before my hiv diagnosis, i dont know why. Now i feel more comfortable here than in local forums. I dont live in the states, i 'm in europe. The most difficult thing in my life after my diagnosis is to accept myself as I am. That simple.

Happy and sad to find you all, guys and girls.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Joe K on March 14, 2015, 05:38:29 pm
Hey Yahi,

The only thing required to belong here is to be poz.  I encourage you to start your own thread, in the Living With HIV forum, where you will get all the support you need.  We understand what living with HIV is like, some of us have been doing it for over 30 years.  We'd like to hear more about you and help you, in whatever way we can.

Joe
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: mleatherboy on April 10, 2015, 06:40:49 am
Quote from: Joe K
All suffering is relative, it's not a contest, nor a measure of character.

I don't think I quite understood that when I read that a year ago or so. But you're absolutely right. I never thought of it as a contest but a measure of character I did.

I don't know why I randomly thought of this site again I haven't been online (or blogged, or written, or done personal stuff in ages) but I thought about it.

I remember how scared I was when I wrote all that even though I'd already been poz for almost a year. More like a lost year though. I felt so alienated from people back then and scared of myself and never able to comprehend what my body was going through or what I was going through because I just didn't know myself. I turned away from a few people at that time because I was scared. I tried doing something with a neg guy (condoms of course) but I was still pretty scared. But I remember waking up and going through the day I couldn't think of anything except HIV, what other guys are dealing with, what people dealt with, and what's going to happen to me. HIV+ movies destroyed me too they just tore me up inside watching what people were going through and feeling guilty knowing that I and others have it so much better.

I crushed hard on a few guys who were HIV+ and at one point I almost considered settling with a guy or two just out of fear of being alone and being comfortable, safe, and secure. But I snapped out of it. I no longer worried if what I was doing or feeling was affecting my viral load and stress started to go away. My biggest obstacle hasn't been HIV+ anymore it's been finding a job and being out of work for so long. I've been in school for a while and as hard as I studied and tried just kept failing and failing. I was really close to giving up but I just finished recently. And it's crazy because all the depression, sense of doom or bleakness has just washed away. I'm more motivated then I've been in months now that I'm done with school to get a decent career so I can go out, socialize more and have a life of my own and find what I'm good at.

I guess what I'm saying is all my initial fears of HIV and the things that held me back I overcame. I still sort of favor towards sero sorting just because someone with a common similarity with you feels more comfortable. Like talking about meds and stuff. I still haven't let my family know and don't know if I ever will. I've talked to someone about that before. My attitude towards HIV right now as it was starting to earlier is completely open. I state it in all my profiles and when I do actually socialize I let people know. I'd rather be rejected up front then have it happen later. In a strange sense I can take a little it of pride in being poz. Although I've been told that's controversial. The pride comes from the fact that I was a wreck a year ago and being poz and going through it mostly by myself made me re-examine, analyze, and listen to myself. Because I had to it was a necessity but it also helped me be a little less analytical and be more accepting. Instead of fighting my body or ignoring it like I did for years I became more accepting. I get stressed about something I let it go. I feel tired I sleep. I feel hungry I eat. Instead of questioning why I felt a certain way which I used to.

I don't know if I would have gotten to this point if I wasn't HIV+ but having it and accepting it has helped me accept so much more and that's what I find and take pride in. Even though some are against it.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Gary555 on April 22, 2015, 07:30:12 pm
Hello everyone!

My name Gary and I am just about turn 50 years old in November. I am married to my partner of almost 30 years. I was diagnosed in August 1999. A long story as to how this happened. Fred is HIV-. I started back in 2000 on a case study of Sustiva & Combivir. Went off in 2001 and haven't been on meds until this month. I was in a holding pattern with CD4 around 750 and VL around 4 to 8 K. My current doctor asked what was my secret for not being on meds for almost 15 years. I will NOT take Atripla and was on Triumeg about a week ago. The anxiety / panic attacks and  racing heartbeat were unbearable. The med worked great, but due to my mental issues will never take it. Any suggestions as to what works for a person with mental illness? I am absolutely terrified what the next ones will do to me, but sure beats dying from AIDS complications. PEACE and LOVE!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on April 22, 2015, 09:09:15 pm
Hello everyone!

My name Gary and I am just about turn 50 years old in November. I am married to my partner of almost 30 years. I was diagnosed in August 1999. A long story as to how this happened. Fred is HIV-. I started back in 2000 on a case study of Sustiva & Combivir. Went off in 2001 and haven't been on meds until this month. I was in a holding pattern with CD4 around 750 and VL around 4 to 8 K. My current doctor asked what was my secret for not being on meds for almost 15 years. I will NOT take Atripla and was on Triumeg about a week ago. The anxiety / panic attacks and  racing heartbeat were unbearable. The med worked great, but due to my mental issues will never take it. Any suggestions as to what works for a person with mental illness? I am absolutely terrified what the next ones will do to me, but sure beats dying from AIDS complications. PEACE and LOVE!

I had a terrible experience with Atripla and now take Truvada and Intelence . Intelence calls for twice a day dosing but once you get to undetectable you can take it all with a meal making the combo a 3 pill once daily at the same time combo … breakfast lunch or dinner, whatever works best  . I find this combo side effect free but each ones experience may be different . Best of luck and welcome to the forum .
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jeffreyart on May 03, 2015, 03:16:36 am
I can relate to you Dan. I have major gi issues, c diff almost destroyed my gut have swiss cheese for gut lining. Meds make my gut swell, I take with food, most foods make my gut swell too its a real challenge eating solid food. I just don't take the meds a lot lately its better but I know not good. I tried going on a med vacation once 10 years ago, my t-cells dropped in 1/2 in 2 weeks so I know the dangers. This is my biggest challenge, even bigger than Aids in 97. I'm still absorbing the reality, its so hard to believe a misdiagnosis led to this. I always thought Aids would eventually get me not anything like this. I am seriously thinking on how I can get to France, they have new treatments to heal the gut lining.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jeffreyart on May 03, 2015, 03:28:14 am
Lol wow just realized I addressed Dan from 07. I assumed these were all recent, know what happens when we assume, oh well.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: zach on May 03, 2015, 09:34:09 am
it's been an ongoing thread for a long time jeffrey, thanks for contributing
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: LiveWithIt on June 24, 2015, 08:17:32 pm
Being poor and not being able to make ends meet on disability and being stuck where I am.  and not having any real friends, or fake friends.  :-X
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: atxpozguy on June 24, 2015, 09:59:03 pm
This question is no different than others on this forum, playing with one's mind.

I lived with this virus 32 years, 10 months and 18 days, most newbies can live a normal life now that meds without side effects are available.

Most will never suffer as us 30+ yr pozzies and god forbid never witness the millions of gay brothers who died because of being overdosed with azt or the multiple organ failures.

I've tired and ready to head home, but with God's help, I will leave this life when the Lord calls me home, which could be any day now...
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: rawbud on September 01, 2015, 06:16:42 pm
The biggest personal challenge that I face is the side effects of my meds. Some days I'm nauseous and don't have an appetite this happens quite often. Along with that it's the stomach pain that I have seems like every other week I have pain. I am currently taking Truvada once a day and Isentess twice a day. Other than that feeling good enough to go to work everyday has become more of a challenge for me as well.  :-\
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on September 01, 2015, 06:32:54 pm
The biggest personal challenge that I face is the side effects of my meds. Some days I'm nauseous and don't have an appetite this happens quite often. Along with that it's the stomach pain that I have seems like every other week I have pain. I am currently taking Truvada once a day and Isentess twice a day. Other than that feeling good enough to go to work everyday has become more of a challenge for me as well.  :-\

Welcome to the Forums . How long have you been Poz and how long have you been on these meds ?
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Echoe89 on September 12, 2015, 11:41:06 pm
Hi everyone, I'm a new member.

I got my hiv + result in Dec 24, 2014. At the time, I was very devastated. I wanna die. I can see my future crumbling. I was with my parents. I'm 26 years old now. I'm glad that my parents and brother never stop loving me or treat me differently. They show me huge support. I only reveal my hiv status to my family. Not my friends.

I started the medication since February 2015. I feel so much better now. No more hospitalized. Two weeks first, I felt dizzy, fatigue, and a little bit anemia. But it's gone now.

My biggest personal challenge is that I'm scared if I reveal my hiv status, I'll lose my friends, I'm still scare with social views toward hiv person. Of course the uncertainty future now. I don't know what kind of job that will be available for people with hiv. Everytime I think about applying job, I always scare. I will get rejected.

Until now, I'm struggling to build my confidence and spirit. I don't want to be beaten by hiv physically or mentally.

I hope you guys have a wonderful day.  :)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on September 13, 2015, 09:03:28 am
Hi everyone, I'm a new member.

I got my hiv + result in Dec 24, 2014. At the time, I was very devastated. I wanna die. I can see my future crumbling. I was with my parents. I'm 26 years old now. I'm glad that my parents and brother never stop loving me or treat me differently. They show me huge support. I only reveal my hiv status to my family. Not my friends.

I started the medication since February 2015. I feel so much better now. No more hospitalized. Two weeks first, I felt dizzy, fatigue, and a little bit anemia. But it's gone now.

My biggest personal challenge is that I'm scared if I reveal my hiv status, I'll lose my friends, I'm still scare with social views toward hiv person. Of course the uncertainty future now. I don't know what kind of job that will be available for people with hiv. Everytime I think about applying job, I always scare. I will get rejected.

Until now, I'm struggling to build my confidence and spirit. I don't want to be beaten by hiv physically or mentally.

I hope you guys have a wonderful day.  :)

Welcome to the forums. There are many of us here that have had HIV for over 30 years and we have gone on to have amazing lives ... if we can do this you can too. I look forward to hearing more from you.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: drewm on September 13, 2015, 09:09:27 am
Hi everyone, I'm a new member.

I got my hiv + result in Dec 24, 2014. At the time, I was very devastated. I wanna die. I can see my future crumbling. I was with my parents. I'm 26 years old now. I'm glad that my parents and brother never stop loving me or treat me differently. They show me huge support. I only reveal my hiv status to my family. Not my friends.

I started the medication since February 2015. I feel so much better now. No more hospitalized. Two weeks first, I felt dizzy, fatigue, and a little bit anemia. But it's gone now.

My biggest personal challenge is that I'm scared if I reveal my hiv status, I'll lose my friends, I'm still scare with social views toward hiv person. Of course the uncertainty future now. I don't know what kind of job that will be available for people with hiv. Everytime I think about applying job, I always scare. I will get rejected.

Until now, I'm struggling to build my confidence and spirit. I don't want to be beaten by hiv physically or mentally.

I hope you guys have a wonderful day.  :)

Welcome to the forums. You will find folks, like Jeff, who are 30 years or more into this disease. As for me, I marked my 5th Aids-A-Versary last spring. Reading these forums is really helpful as there are people all over the map with experiences and opinions that run the gamut. I have disclosed to family and very, very few friends and the reaction was love, compassion and help. None of the aforementioned treat me any different.

Disclosure is a tough call. There is so much ignorance about this disease that it makes the subject a difficult one to breach. Anyway, glad you are here but sorry you need to be.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Denvaux on September 13, 2015, 09:43:40 am
Echoe89, 

For me it's about being in full control of my thinking. Sounds easy but no, the negativity can so easiy creep in to my mindset and before I realise I allowed a thought in, I'm beating myself up for being hiv+, and replaying that same self pity & self-loathing tune that was the norm at diagnosis.  In short, it really is mind over matter and when I'm in control of my thinking I'm fine- when I allow autopilot I'm in trouble.
I applaud your stance on non disclosure to friends- don't ever let anyone bully you in to disclosure to anyone other than those YOU believe need to know- great stance!
Regarding employment, I don't know where you live so can't comment on employment law re Hiv;  in my country however, were you discriminated against in employment as a result of being Hiv +, you'd have a very winnable law suite going.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: leatherman on September 13, 2015, 09:16:50 pm
I got my hiv + result in Dec 24, 2014.
Welcome!
I got my dx on dec 26th. Merry f-ing Xmas, amirite? LOL
In Nov this year, I'll mark the day I got infected 30 yrs ago, so my advice is to hang in there and just give it some time. Things will get better when you get used to the news. ;)
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Echoe89 on September 13, 2015, 11:47:44 pm
@leatherman @denvaux @drewm @jeffg Hi everyone, thanks for the warmth welcome. I honestly feeling much better after I found this forum. I spent hours reading threads here. And many articles about hiv survivors.

I'm a former flight attendant. I'm gay. I had to quit because I was hospitalized for diarrhea, hepatitis a and skin problem (rash) on my face and neck. At the time my cd4 was 25. Now my cd4 is 329. Thank God everything is better now.

I'm from Indonesia. I used to worked in the mid east for one of the airlines there. I realize that it maybe impossible for me to apply (again) as a flight attendant. In mid east is a big no for hiv+. I read many articles about discrimination towards hiv+ in many countries. It still scares me though.

You guys are amazing. I hope I can do what you guys do. I do wanna live my life like you guys. I have my family supports, I guess someday I'll disclose my status to my very close friends. Like you guys did.

Have a wonderful day guys 💐💐
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: lovegod on October 07, 2015, 09:23:58 pm
Hey guys i am recently diagnosed on june 6th 2015 started meds on 26th june 2015 almost three months now on meds , just got my tests done after meds awaiting results. 

FIRST :Well the biggest fear i face is that any new change in body scares the shit out of me as if i hv contracted something big .Fear of having cancer or slightest of pain send chills to spine.

Secondly: the social stigma attached to the disease is so much that i feel i wana move away from my country to other.

Third my family treats me like another diabities patient who they think would eat medicines and would be fine , the depression i went through past of couple of months is not at all understood by any , its just killing me more and more  . Though i have accepted the fact we all are born one day to die . Jus tht difference in others and us is we know and they are in ignorance .

Personally meditation has helped me calm down a lot. I dont know how to deal with my family and other things , my dreams have taken all together a U-Turn so wanted to see the world visit places do things . This disease has been such boomerang in my life that it has changed life upside down. Hope to change attitude towards life like you guys and start living normally .
THanks a ton to all of you for being a support system , though we all are in different parts of world i feel like i have another virtual family who understands me and i am not alone dealing with all this
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: PittGurl on October 08, 2015, 11:02:14 am
 lovegod - WOW you just wrote exactly how ive been feeling this past week - UGH!!!!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: CD4_800 on October 08, 2015, 02:46:03 pm
I feel like a walking bio-hazard who doesn't deserve to ever date again
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: hellodave on November 19, 2015, 03:05:01 pm
Dating - been single for 6 years since my diagnosis, I've spent over 5 years not looking, but the last few months I've joined a couple of dating sites, both general and hiv and I feel invisible
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: chwhyoche on December 05, 2015, 01:51:08 am
lipodystrophy and the stigma, but its not that I care so much for myself, than my family.
But the thing that I have been noting that bugs me is that the doctors often encourage to keep it a secret.    I know they mean well, but its like the establishment is supporting us to be hush hush.  They don't do that with people with cancer or diabetes.   
I guess since its thought to be sexually derived, like other STDs. 

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: ClarkeCombo on December 18, 2015, 05:52:58 pm
Keeping my wife & I "going". We're both in constant pain, constant fatigue...and whatever else hits us after 2-decades of this. She's 54 and I'm 62.

Bigoted Primary Care Physicians. Doctors that either can't, or refuse to "keep up". Doctors that don't listen even though between the two of us, we have 40-years of knowledge of HIV/AIDS.

We've no friends here...or at least "friends" we can talk to/with about what's happening to us.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Gruff on December 20, 2015, 07:38:52 pm
Hi folks - this is my first post in any of the POZ forums, and I'm happy to have found you. I've been positive for over 7.5 years.

I was honestly surprised by many of the responses in this thread.  Many of you seem to be struggling in one way or another with your status.  I feel very blessed: I have a partner, I've missed only three med doses in 7 years, I have great insurance, and I am 100% open about being gay and being positive.  To me, I feel like I have a responsibility to help and educate others, and I embrace that.

To answer the question - my biggest challenge is keeping my anger in check when i read online profiles using the word 'clean,' and basic fear - even in the gay community - of contracting my HIV even though I've been undetectable for the last 7 years.  There is still alot of stigma and misinformation and bad, "old school" understanding of HIV out there.

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: OnlyMeHere on December 27, 2015, 11:00:44 am
Having to deal with it alone.  No support system.  Family told me I bought and paid for HIV.  Friends all walked away.  That's my biggest personal challenge.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: OnlyMeHere on December 27, 2015, 01:02:21 pm
Living South Florida, the biggest personal challenge, is trying to find someone sober, and someone who hasn't slept with half of Miami.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Gruff on December 28, 2015, 04:39:39 pm
Living South Florida, the biggest personal challenge, is trying to find someone sober, and someone who hasn't slept with half of Miami.

With all due respect...your last post said your biggest challenge was not having a support system.  Your very next post (above)  heaps disdain on those who have "slept with half of Miami."  You might want to consider that there is a connection here: Fort Lauderdale and Wilton Manors has a greater gay male population than almost anywhere else in the US.  These men could be a huge support system...if you would allow yourself to break down the wall that separates yourself from them.  For most gay men, having sex is a normal, natural, enjoyable part of life - and yes, many do not see having many sexual partners in the same negative light as the hetero-normative community does.  I embrace and celebrate my gay orientation, and have a blast getting to meet new men - and yes, sleeping with them.  And Yes, i am partnered to a wonderful man.  The "Paradigms" and "Rules" of gay male sexual activity have, historically, not been the same as the "ideal" of "one-parter-for-life, and no-sex-before-marriage" that we were all raised with.

I think if you will open yourself up to that paradigm possibility - even if you don't change your personal approach - you might find men more approachable and develop a support system.  Just because they like sex and sleep around doesn't mean that they're not good choices to serve as support for you.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: OnlyMeHere on December 30, 2015, 01:49:25 pm
Very true......no support system at all.  I realize where I live, and the huge gay population here.  With all the HIV in this community, this is one reason I moved here.  With no family in place, one day all these HIV services are going to be a great resource for me.  Having sex is not a normal thing for me.  I haven't had any type of physical contact since I was diagnosed 4 years ago.  I went to a HIV "workshop" that was supposed to last for 8 weeks.  I stopped going.....want to know why?  I was literally the only person out of 45 people who didn't use drugs, and didn't sleep around.  So, sad to say, I don't really trust my HIV community. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on December 30, 2015, 01:54:20 pm
Very true......no support system at all.  I realize where I live, and the huge gay population here.  With all the HIV in this community, this is one reason I moved here.  With no family in place, one day all these HIV services are going to be a great resource for me.  Having sex is not a normal thing for me.  I haven't had any type of physical contact since I was diagnosed 4 years ago.  I went to a HIV "workshop" that was supposed to last for 8 weeks.  I stopped going.....want to know why?  I was literally the only person out of 45 people who didn't use drugs, and didn't sleep around.  So, sad to say, I don't really trust my HIV community. 

Why so down on people who enjoy a healthy sex life ? Its one of the simple pleasures in life. I have been celibate for a number of years but that is my choice … if anything I am envious of people who explore their sexuality and enjoy it.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: OnlyMeHere on December 30, 2015, 02:32:26 pm
I'm not "down" on people who enjoy a healthy sex life.  I have not had any type of intimacy/sex/whatever since I was diagnosed 4 years ago, and that will continue as long as I am positive.  That's my choice.  Men think about sex every 7 seconds!  So, if men THINK about sex every 7 seconds.....how many times out of the day do they actually HAVE sex (or look at porn, masturbate, etc).  If the hookup websites and bathhouses would go away....people might just actually go out and do something radical.....MEET FACE TO FACE....have an actual conversation, and see how things go.  Then you can decide if you want to see this person again, or heaven forbid....have another date, and wait on sex to see if you are compatible and actually love each other.  I'm assuming everyone got the same memo......"go out and screw everyone until you conquered the city"...........I guess I missed that memo
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on December 30, 2015, 02:41:13 pm
I'm not "down" on people who enjoy a healthy sex life.  I have not had any type of intimacy/sex/whatever since I was diagnosed 4 years ago, and that will continue as long as I am positive.  That's my choice.  Men think about sex every 7 seconds!  So, if men THINK about sex every 7 seconds.....how many times out of the day do they actually HAVE sex (or look at porn, masturbate, etc).  If the hookup websites and bathhouses would go away....people might just actually go out and do something radical.....MEET FACE TO FACE....have an actual conversation, and see how things go.  Then you can decide if you want to see this person again, or heaven forbid....have another date, and wait on sex to see if you are compatible and actually love each other.  I'm assuming everyone got the same memo......"go out and screw everyone until you conquered the city"...........I guess I missed that memo

When you came to the forum I assured you that you would get support and brutally honest opinions on your post … You need an attitude adjustment . You seem to be in conflict with everyone from your doctor to the community you live in.

I hope you stick around and learn from our members who have been there and done that. Most all of your post reek of a person who has not fully come to terms with living with HIV.
This is meant as constructive advice … if you don’t do the work to accept your diagnosis and the challenges that come with it your future looks bleak. Take it from someone who has been there… there is life after HIV.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: OnlyMeHere on December 30, 2015, 02:49:05 pm
I had typed out this long response to you, but I'm realizing it takes 2 to argue, and I'm not going to do it with you.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jeff G on December 30, 2015, 02:56:07 pm
I had typed out this long response to you, but I'm realizing it takes 2 to argue, and I'm not going to do it with you.

I promise you I am not trying to argue with you. You came here for support and help and we cant provide that if we do not respond to what you share in an honest way.

Im not judging you … you sound just like I did years ago and many here have the same issues you are going through so you are not alone.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Gruff on December 30, 2015, 04:06:22 pm
I'm not "down" on people who enjoy a healthy sex life. 

I have not had any type of intimacy/sex/whatever since I was diagnosed 4 years ago, and that will continue as long as I am positive.  That's my choice.

If you really examine those two statements of yours with a critical eye...it sounds to me like you're saying you've made a choice, and it's not a healthy one.

Sex is a normal, natural part of the human existence.  The sex drive is hardly different than any other innate drive for survival.  Yes, you can choose to deny yourself - throughout the ages, countless monks and nuns have tried to do exactly that.

But understand then, that much of your disdain for the rest of the world, and perceived lack of a support system,  has to do with the fact that you resent others enjoying what you, for whatever reason, have denied yourself.  And that makes it hard to find the support you're looking for: not because they have sex or sleep around, and not because you choose not to - - but because you choose to be resentful that others haven't taken the same bitter road that you have.

In other words...it sounds like it ain't them that's the issue....
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: OnlyMeHere on January 02, 2016, 09:52:55 am


If you really examine those two statements of yours with a critical eye...it sounds to me like you're saying you've made a choice, and it's not a healthy one.

Sex is a normal, natural part of the human existence.  The sex drive is hardly different than any other innate drive for survival.  Yes, you can choose to deny yourself - throughout the ages, countless monks and nuns have tried to do exactly that.

I've made a choice not to have sex anymore!  Sex may be a normal, natural part of human existence, but that does not mean that I must partake.  I do not resent anyone who chooses to have sex.  That's their choice, just as it is mine not to.  You act like I'm committing some sort of crime by making a conscience choice not to have sex.  Where is the support in that?  Not wanting to transmit this horrible disease?!  I'm getting perceived as an asshole because of MY choices.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: ReginaD1984 on January 06, 2016, 12:00:56 am
I've been positive for nearly 5 years and recently reached undetectable status. The biggest struggle is finding love, every man I meet runs away after I tell them about my status. This is doing major damage to my self esteem some days I can barely find the will to live. Not protecting myself years ago is ruining me now, I don't think I will ever find anyone who cares for me. I am beautiful, great career, but I feel like a walking plague.  :'( :'( :'( I try to stay positive but it's so so hard when I have constant reminders every time I take a pill or get rejected. I'm at the end of my rope here!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: chwhyoche on January 09, 2016, 10:12:34 pm
Regina, big hug to you!   I commiserate with you!  This meeting a partner, who is good, kind, loving, with mutual attraction, and is stable, was hard before and near impossible now. Even the men I've met on here have been a bust.

I miss my husband.  I hoped he would live a long time.  I enjoyed being married.  I enjoyed having someone I loved and who loved me. 
I feel very low today.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: lioness on January 25, 2016, 06:09:14 pm
Today was having a great discussion with my friends till a topic rose on HIV. I got really pissed of en wanted the topic changed but the more I wished for a change the more the discussion went on. One guy commented those who get HIV nowadays are stupid, reckless and should their own fault. It felt like a Pearce in my heart. It reached a point where it had come to a point where people were goggling to see which country had highest infection (we r students from different countries. I felt like walking away coz I wasn't participating but decided to get glued to my phone as if surfing.

After parting I rushed here coz this is the only support group I have. I really feel stressed and wonder if I will ever tell anybody about my disease
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: CaveyUK on January 25, 2016, 06:17:31 pm
Today was having a great discussion with my friends till a topic rose on HIV. I got really pissed of en wanted the topic changed but the more I wished for a change the more the discussion went on. One guy commented those who get HIV nowadays are stupid, reckless and should their own fault. It felt like a Pearce in my heart. It reached a point where it had come to a point where people were goggling to see which country had highest infection (we r students from different countries. I felt like walking away coz I wasn't participating but decided to get glued to my phone as if surfing.

After parting I rushed here coz this is the only support group I have. I really feel stressed and wonder if I will ever tell anybody about my disease

Funnily enough, I was thinking about this today - if the subject of HIV had come up amongst friends who are negative and don't know about me (ie. nearly all of them) pre-diagnosis, I would have weighed in about how remarkable the modern meds are and how its a chronic condition rather than a terminal illness yada yada, but weirdly since diagnosis I'm almost afraid to say anything in case, for some bizarre reason, I 'give the game away' about my diagnosis! The mind does strange things....

I thought about it as I am going to see a singer soon live - John Grant -  who happens to be HIV (my tickets were bought pre-diagnosis) in concert in a few weeks, and a guy at work was saying how great the bloke was and how he had his last album, and then said 'Was reading about him on the weekend. Didn't realise he was American, and gay and...', and I was waiting for the 'and he has HIV....' so my mind scurried as to how I would respond, hence the above thoughts. Luckily, his phone rang just at that point :)

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: RobbyR on January 25, 2016, 06:46:20 pm
My biggest challenge is as a still young guy, dating and playing, having HIV is just an annoying barrier when it comes to that. Yea I'm undetectable, but let's face it most guys don't even know what that means. Usually about once or twice per week, I can be chatting with a cute guy, and inevitably, they'll ask about status, and when I tell, they'll either just stop chatting or blow me off because of it, which is dumb, because there's tons of worse stuff like hepatitis or stds but whatever.

There's a few who are ok with it, but its touch and go. And being hiv positive is just an annoying ever-present barrier to fun casual dating. Like I'll be chatting with a guy I like or, is cute, and I know that if things progress enough, hiv status will always come up one way or another, and it's in the back of my mind how to tell them about it and always worrying about rejection because of it. I like to think I am a nice guy, decent looking, and have a lot to offer even as a friend, but hiv is just something there that plays with your head. For the most part I don't think much about it, but just when it comes to dating or hooking up, I wish I didn't have to deal with it. They need to find a cure! But I'm grateful for what we do have.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: chwhyoche on January 28, 2016, 04:01:21 pm
About 4 years ago, I unexpectedly bumped into my 6th grade teacher after 30 or so years.   We only talked for minutes at the gym we both were going to at the time, BUT for those minutes she happened to get on the topic of HIV.   She knows I'm living in the SF bay area now.  Anyway, she started going on and on jokingly about "You know how THOSE people get it.  You know how they get it ...."  yada yada UGH.  I couldn't believe she was being such a bigotted bitch.  I don't even know how she jumped to that topic.   I guess due to the area I live in.   I felt so uncomfortable and it was the end of my illusion that my 6th grade teacher was so awesome.  I even saw the hate and ignorance in her eyes.   Couldn't believe the conversation.   Actually it made me grateful for HIV, that I'm not stuck in that mindset anymore. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jckent on February 02, 2016, 06:15:26 am
My biggest problem is my employer.
I am meant to be on the road a lot.  But i have such bad diarrhea, i often can't risk driving far.  Also the tiredness after a day's driving just wipes me out.

I carry two pairs of spare trousers in the car always.

My employer won't make any changes saying basically its my job, like it or lump it.
I pretty much live on Imodium, which is killing me.

he doesnt know im HIV. just that i have a condition that means i can be extremely unwell and am receiving treatment.  If i told him about my condition fully, my life would be even more unbearable.  he has make his view quite clear in the past about such things.
I thought when i was diagnosed a month ago. taking daily tablets and worrying about the health side would be my greatest worry. but its not.
I also have been told i must be considerate of other members of staff, thinking im getting special treatment.
 i know this may sound like a rant, but in my area there is so little support, there is no where to turn for help.
ok rant over.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: CaveyUK on February 02, 2016, 04:32:12 pm
My biggest problem is my employer.
I am meant to be on the road a lot.  But i have such bad diarrhea, i often can't risk driving far.  Also the tiredness after a day's driving just wipes me out.

I carry two pairs of spare trousers in the car always.

My employer won't make any changes saying basically its my job, like it or lump it.
I pretty much live on Imodium, which is killing me.

he doesnt know im HIV. just that i have a condition that means i can be extremely unwell and am receiving treatment.  If i told him about my condition fully, my life would be even more unbearable.  he has make his view quite clear in the past about such things.
I thought when i was diagnosed a month ago. taking daily tablets and worrying about the health side would be my greatest worry. but its not.
I also have been told i must be considerate of other members of staff, thinking im getting special treatment.
 i know this may sound like a rant, but in my area there is so little support, there is no where to turn for help.
ok rant over.

I know you think this is just a fact of life and is more of an issue with stigma (and it is, in a way) but from your description it sounds like med side effects. If it continues, talk to your HIV doc about alternatives.

Some of the more recent drugs have very good side effect profiles, so you shouldn't have to put up with uncontrollable diarrhea or fatigue.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jckent on February 03, 2016, 02:33:36 am
Hiya Caveyuk
I actually had both of these ( diarrhea & tiredness) before i was diagnosed.  It's what prompted me to be tested in the first place.

The meds I am on have had zero side effects.
 I'm on triumeq .  I'm getting my first post med results today.

Thanks anyway.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on February 03, 2016, 07:14:40 am
Hiya Caveyuk
I actually had both of these ( diarrhea & tiredness) before i was diagnosed.  It's what prompted me to be tested in the first place.

The meds I am on have had zero side effects.
 I'm on triumeq .  I'm getting my first post med results today.

Thanks anyway.

Hi jcKent,

Not quite sure where you are located?
But sorry to hear that your having work issues at the moment.

I just wanted to chime in that like yourself my fatigue and other issues where not related to the meds as I had the issues, a number of them building up long before I starting the meds.  Specifically My fatigue was so bad it was like hitting a brick wall or 30th wave.

However when I started taking my meds I did get a lot better, it took a few weeks at first to feel any change but I slowly gained some needed weight and in the months following that, I then slowly but surly got better.

I'm currently on the same regime as you after switching from Tivicay/Truvada and  it working well for me, and I have my energy back and my other issues have mostly long settled down as well.

So give it and yourself some time.

Jim
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: jckent on February 22, 2016, 08:42:01 am
Hi all, going on from my last posts.
Last week i had to resign. someone had started a rumour i had Aids. no one wouldtalk to me.
so i stood up and said i have colon cancer to all the staff as someone has said i had aids.  a member of staff stood up and shooted at me it wasn't them. (it was).
i stormed out very stressed. this person out a complaint in against me, saying she now feels scared and threatened by me. my employer was saying maybe i shouldn't be a work, because she cant work with me. and the company cant really afford for me to be ill.
i actually had no choice but resign.
it is sad in this day and age such bullying and bigotry still exists.

normally everyday. I am a totally balanced normal married guy. loving life.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Wade on February 22, 2016, 09:14:10 am
I am sorry to hear this .  She is the one who should have a complaint filed against them, not you. I don't know where you are located , but as far as I know it is not a crime to be working while living with HIV.

Sending you my Best , Wade
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on February 22, 2016, 09:46:48 am
Hi,

I'm really sorry to hear what has happened.

I can't believe that after being subjected to bulling & harassment though means of exclusion and finally rumors your employers response is you are the one that who should not work as he can't afford for you to be ill/sick. 

It's shocking for him not to act when you said you were sick and also not to act when you were subject to harassment, his final mistake is in essence forcing you out.  Really sorry you had have experience "constructive dismissal" .

Not sure where you are based but if it was me (UK in the past / now ROI )
I would be claiming my resign was under "constructive dismissal" "constructive dismissal. This is when your employer makes it impossible for you to carry on working so you resign" Than I would be seeking legal advice and checking with citizensadvice to be honest as he made no adjustment when you told him you were sick and provided the doc's note despite the request being reasonable again employers are required to do so where I am based, i'm not sure where you are based and finally he did not act on the harassment and said he can't afford ill employees meaning you. Where I am based HIV is protected as a disability in the work place.   

Your employer has acted disgracefully.
Wishing you all the best

Jim




 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Beaner61 on May 02, 2016, 12:24:16 am
 (de lurking here after 9 months)
Me in a nutshell:  Mid-50's, diagnosed last summer. I live in the US. On Stribild, VL got to undetectable within the first month of treatment.  My CD4 is up to 711, and may climb further yet.  So in many many ways I am very lucky.  But...

My biggest challenge?  Something of a tie.

Fear that I will lose my job (for whatever reason) and not be able to pay for meds, or else will have to exhaust all my financial resources (I have a son in college).

Loneliness. I live in small city in an otherwise very rural area.  I don't really have any friends nearby, and not that many long distance friends either.

Thanks for "listening."
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on May 02, 2016, 12:43:25 am
Hi

Welcome to forum.

Glad you have decided to change from lurking to posting and that you are doing well with the treatment.

Hope to hear more from you on the forum.

Jim
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: floridartist on May 24, 2016, 09:56:40 pm
My biggest challenge is food, I'm getting tired of eating, and all the preparation of it all, It gets to a point that I don't know what to eat so I don't eat, then the domino effect kicks in, first the hunger, then the weight loss, then I'm  basically too tired to do anything, (fatigue) or even want to go food shopping, when I finally cant stand the hunger I go to the store, Then I don't know what to buy, so I get the basics, Ensure Plus, Milk, bread, fruit, frozen foods, simple stuff. And this goes on and on month after month year after year and I'm tired of it, its my biggest challenge of all challenges. After all said and done, there is hope, I like to eat out,  I could do it every day, The flip side of that is, I don't like to eat out alone, so that's my story, Thanks, John   
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: leatherman on May 25, 2016, 07:55:27 am
My biggest challenge is food
figuring out what to eat is always an issue. Probably 1/5 of what my partner and I talk about on a daily basis is what to eat for dinner. (the rest of our conversation is about how happy our dogs make us, his frustrating job and my advocacy or yard work projects, how much we love each other, and what to watch on TV) But I certainly remember eating alone, or eating when I was all aidsy. Anything simple and quick (you know, chips take no prep time and instant mashed potatoes are done in 90 secs. LOL) because dinner-for-one is a hard task. I'm sure there are plenty here that can sympathize and empathize with you.  ;)

However, I don't know that food is much of a part of the challenge of living with HIV - except in the years waiting on disability when I was horribly poor. I had to go to church pantries and kitchens for food because my cupboards were bare. Oh and food has off-and-on been an issue with the meds. In the old days you had to take some with food and some without, some 2 hrs before and some 2 hours after meds. It would get quite confusing and I used to have a chart on the fridge to remember what was the med "side dish" with what meal. Personally, my easiest-to-remember-to-take regimens have been the ones that required taking the meds with food - it ensures that I eat dinner, as at least one meal a day.

Hopefully, you'll figure out what to eat tonight ;) I don't know what I'll be eating this evening because I haven't asked my partner yet to get a clue about what to make. LOL  ;D
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Alternis on May 26, 2016, 08:51:21 pm
I just recently got diagnosed so maybe it wasn't much a of a challenge compared to other member.

In terms of relationship, I can handle being alone well. Ever since I broke up 2yrs ago, I already accepted my fate as forever alone guy. So not being in a relationship is not an issue for me. Although it can be lonely at times, but I'm such a hermit (I don't even own any FB or social media OR dating site/apps lol) living my own unsocial life. If someone took an interest on me, I can just said that I'm poz and we'll see from there (recently I met someone and we had a crush on each other and when I told him, he suddenly had to move out of town so yea lol).

I won't tell my parent. Ever. I never told them about my illness before since I knew my parent had to struggle with their own illnesses. My mom passed away last year to complication and I don't know about my dad but it's best for him to not know about my condition.

In terms of coping up with my status, I think I'm coping up well. My family (including me) had always subjected to illnesses. Me taking a 2x1 medication everyday is nothing compared to what my mom has been through with taking like 3 or 5 x3 for 5 years. I'll live and be grateful for today's medical advances.

Now. My biggest challenge is my resistance of drugs. My body resist most of the drugs known to human. I develop severe allergic to penicillin, ibuprofen, or any NSAIDs. I even develop allergic reaction to any generic pills sold. I will see my doctor this Friday noon because suddenly I develop allergy to my arv regimen (after taking the new truvada regimen). This is a challenge before whenever I got unusual illnesses (that's why I got to the critical point because the doctor can only treat me with therapy and not medication as I will develop allergy to them) but this... I need this med. Hopefully the doctor has something to counter my condition.

Another challenge is my dream life. I'm relatively young (28 y.o) aiming to be a full professor while living my academic tenure now. I planned on getting a scholarship for my PhD abroad but this... this changed my life so much I don't know what to do now. Sigh...
Heading a center of research, everyone just seemed to push me to go for the scholarship application but I somehow doubt that they would take someone poz. As for my co-worker, well, I just said some shit about me having la-di-da illnesses and they will believe that (like I said, I have a record of having many unusual illnesses and some even reach critical condition so they will believe anything I said). I know they will chop my career when they found out I'm poz so yea. That's why I can't even think on applying scholarship right now because they will need me to be truthful of my status and then everyone will know that I'm poz. Not to mention how to cope up living with HIV abroad, the cost of medication, insurance, etc.

But eh, that's for me to handle. I know I can handle anything well so I believe I'll have some alternative route to this dream life I planned on living AFTER I successfully deal with this allergy I have lol
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Mzchurchgurl on May 30, 2016, 09:41:23 pm
I need a real man I'm a woman of god and I'm trying to DAT someone with HIV I feel lonely I'm from chicago hit me up
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: rookie72 on June 13, 2016, 07:28:07 am
I was diagnosed 2 months ago. It took a while to get my blood results back and have only started meds just over a week ago.
I actually had a number of days in row where I didn't even think about my HIV status.
That was until I was prescribed Genvoya. Now I have this pill every night that reminds me of the night I got infected.  That's my personal challenge.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: benlovesblue on June 19, 2016, 10:17:41 pm
6 months into the diagnosis, my biggest challenge is surviving it self.

I also worry for future career change since here in Malaysia, we DO NOT have any non discriminatory law against NOT hiring a poz.  :-[

Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Skot on July 11, 2016, 04:49:50 pm
The most devastating component to this virus is the isolation and loneliness . Heterosexual women treat me like I am deadly poison . No support for heterosexual oriented people . I am 53 and live in a rural community .  I have no friends ,family or children . I predict that I shall die alone . Things could be worse ...
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: CaveyUK on July 11, 2016, 05:10:56 pm
The most devastating component to this virus is the isolation and loneliness . Heterosexual women treat me like I am deadly poison . No support for heterosexual oriented people . I am 53 and live in a rural community .  I have no friends ,family or children . I predict that I shall die alone . Things could be worse ...

53 with no friends, family or children. Feeling isolated and hetero women don't 'get it'

Obvious possible solution.... move somewhere more metropolitan. Try to stimulate interests and build a circle of friends. Don't try and rush for a relationship - many hetero women are okay with HIV, but it's all about fishing to find them.

Living in an isolated rural community with no friends sounds like it as much of your problem as HIV is, to be honest...

Just a thought
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Skot on July 16, 2016, 10:16:04 am
I live next to Mount Shasta . I have lived in cities and things were the same as far as dating went ... I went on some dates and had great chemistry with some . Everytime I disclosed my status it ended abruptly . I have yet to meet or even hear of any female "Bug chasers" . Why is that ? . I am done with cities and the drugs ,crime , traffic , insanity and am fortunate to be here in the mountains in a tiny log cabin . I have my art and am surrounded by beautiful scenery . It is more lonely for me to be in a city and see people doing things together .  Living here I am not reminded of what it was once like to be human .love
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on July 16, 2016, 12:29:35 pm
Sorry to hear you have isolated yourself. Personally my take on dating  has always been that it is challenging, HIV does not make much difference. It also depends on the delivery of the disclosure, that took me a few attempt to get it right and i get laid just fine.

One thing from your post stood out, that is the bug chasers part, why would you want to be with a Bug chaser to start with? Personally I don't think its a very  romantic idea or something to build a relationship on.

Jim
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: s0nie on July 23, 2016, 11:58:20 pm
ANGER, not that I am infected, or that my life may be shorter than it may have been, or that I may have to suffer some illness that others may not experience. Anger that I have not yet found my bliss. What I am meant to do with my life, what I should do with my life, how I can make a difference in the world. I want so much to feel love and experience love. I want so much to be Christ like and do the right things with my life. Its length does not matter but its substance does. I feel that I have a clock ticking that now creates a timeline that I need to follow. I have no problem with my mortality, I have no fear of death. But I have a fear of living, a fear that I will not live life to its fullest. That I will not be able to love as much as I can. That I will not be able to be loved as I would like. I fear that I will not be able to make the difference in the world that I want to make. Not that I want to be known as Gandhi, or King, or Einstein, I just want to make a difference in the world that is important.
This is beautiful and I feel the same.Thank you for sharing Peter. I had a mental breakdown many years ago. It was very stupid thing thinking back on it. But slowly but surely time has made it go away.  I know things will be a struggle as time goes on but I have to just do the best that i can. Many times i eat things that are not good for me and fatigue hits me hard. I I haven't had any relationships for a long time. I don't have any friends. My family doesn't know. For a long time i asked myself why me? Why me? But i've stopped being angry at myself. I want to smile more and make people smile while i still can. I want to love and be loved.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Nathionk on August 04, 2016, 03:17:01 am
The biggest personal challenge for me is just waking up and looking at those pill bottles... It's a consent reminder that I made a stupid life altering mistake, and I have to live with it forever, and most times living with it forever seems worse than just stopping meds and letting it take its course. The biggest part is realizing I deserve what comes to me regarding my status, whether it be rejected partners, a boyfriend dumping me because of getting diagnosed with it, and recently my neighbor posting all over Craigslist lies about me not taking medicine and to stay away from me. My biggest challenge is myself.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: CaveyUK on August 08, 2016, 04:00:07 pm
My biggest challenge is myself.

I'd agree with that. Have you sought any help for the way you are feeling? Seems like that would be a good thing to do.

We have all made mistakes which is why we are here. Hell, everyone - HIV or not - makes mistakes. Put it down to bad luck, cosmic karma or just one risk too far...whatever you do, there is absolutely no point in beating yourself up about your status anymore. It is what it is.

But the future starts with a blank slate. Live your life to the full, enjoy life and make the most out of every day.

I know that the stigma makes things tougher but try to rise above it. You are taking a pill to control a chronic condition. Before too long everyone takes some daily treatment for something....you've just got a head start.

But certainly look for help for the mental side of things. You don't need to deal with that crap on your own.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Rick Day on September 16, 2016, 12:20:16 am
Hi, everybody! This is my first post here. My first post on any forum in dealing with me being an HIV positive man.

My biggest personal challenge is informing my parents about my status. They know I'm gay, but they're very conservative. I told my sister (my only sibling) a few of months ago. I knew she'd be accepting. We talked about how to tell the folks. She reminded me that one of my cousins, the only other gay man (out) in my family, has a partner who is poz. Mom and her sister love that man. So my sis suggested that I tell my aunt first, and get her advice on telling Mom. (Dad will be extremely difficult.) I'm just still very nervous, even to tell my aunt!! And this is unusual for me.

The immediate family is spread out in north Alabama. We only see each other on holidays and birthdays. Dad is one of those guys who keeps things in. Mom is someone who ignores those issues that deal with sexuality. Aunt is a theatre gal, but also ultra-conservative.

I'm not asking for advice (won't turn any down!). I'm posting this mostly to express myself in public, a way of "getting it off my chest" kind of a thang. Who knows... I might wake up tomorrow and decide to tell the whole family right away. (Nah. Won't happen.)


I look forward to making some new friends and network a little. All y'all have a great day!!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Rick Day on September 16, 2016, 12:33:46 am
ANGER, not that I am infected, or that my life may be shorter than it may have been, or that I may have to suffer some illness that others may not experience. Anger that I have not yet found my bliss. What I am meant to do with my life, what I should do with my life, how I can make a difference in the world. I want so much to feel love and experience love. I want so much to be Christ like and do the right things with my life. Its length does not matter but its substance does. I feel that I have a clock ticking that now creates a timeline that I need to follow. I have no problem with my mortality, I have no fear of death. But I have a fear of living, a fear that I will not live life to its fullest. That I will not be able to love as much as I can. That I will not be able to be loved as I would like. I fear that I will not be able to make the difference in the world that I want to make. Not that I want to be known as Gandhi, or King, or Einstein, I just want to make a difference in the world that is important.

Wow!!! That's a perfect description about how I feel. Especially a fear of not living my life and not making a difference. Like you, I'm not afraid of my mortality. But I see it now. I know my time is limited on this Earth.

What will I leave behind?

How will I impact the world around me??

What's my legacy going to be???
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: msdana on October 20, 2016, 01:29:49 am
I hope you get better soon. I feel you.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on October 20, 2016, 02:55:37 am
I hope you get better soon. I feel you.

Welcome to the forum.

Perhaps you can open a new topic and introduce yourself to the other members.
Are you living with HIV, how are you getting on, what kind of treatment are you on?

All the best.

Jim
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: RossH on November 12, 2016, 11:48:44 am
I've only had this since April 2016 but I'm tired of it already.  I never really had much of a fighting spirit and have struggled with depression all my life.  It's worse now. Just getting through the day is a major effort due to fatigue and just not feeling well.  Some days I stay in bed all day.  I'm on Triumeq,  Effexor XR 150 Twice daily, Klonopin 3x/day  and Trazadone 1-2 at bedtime plus a BP meds lisinopril and Toprol.  I'm angry that I didn't take care of myself to keep from getting this. I'm not sure why I'm still here.  But I'll stay as long as God wants me to regardless.

10/28/16 VL 46 CD4 1423
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Gokhan_Tr on November 25, 2016, 08:26:35 am
I think it's showing a positive attitude no matter what I feel, and feeling suspicious if everything is going well or if I am getting worse everyday even though my doctor says everything is going great.

Oh and being super super careful with other people as if I will hurt / infect them.

PS: I know I need psychological support and I am seeking for it yet I haven't found any good doctors to lean on.

Diagnosed @26.02.2016
VL: 15.000 - #CD4:261 - %CD4: %31,6
Started Stribild @14.04.2016
@16.05.2016 VL: 29 - #CD4:660 - %CD4: %33,5
@11.08.2016 VL: Undetectable - #CD4:669 - %CD4: %38,3
@11.11.2016 VL: Undetectable - #CD4:820 - %CD4: %33,5
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Still Unbroken on November 27, 2016, 05:13:00 am
Dan, I hope things improve for you soon.  Personally, I'm afraid -almost paranoid- about missing doses.  I've only been on meds for 5 months, but I haven't missed any so far.  I felt so crappy when I had that nasty PCP a while back and do not wish to repeat that experience.

As to the biggest personal challenge, I guess it's not getting overwhelmed by all this.  I'd not had any health concerns until a little over a year ago when I found out my HIV status.  It's was a shock to find out that I really wasn't as invincible as I've always felt I was.  I try not to think of any of this as permanent, although I know it is.  It helps keep me from dwelling on it all.  Take care.

David

 Dan, my partner and were both diagnosed as poz a few months ago. We have both always been in good health, not on any medications and rarely went to the doctor. This past May everything changed for me. I started going down hill fast and felt like my body was shutting down. I was very scared and couldn't figure out what was wrong with me. I had to stay in bed all day in order to find some relief and comfort I really thought I was going to die. When we were diagnosed we also were in shock, I too always felt invincible, my mindset has always been stuck at age 23 LOL a 23 year old mind in a 53 year old body! Taking the meds every day were new for both of us, but we are both loyally taking them. I do not want to miss them or forget them and end up feeling as bad as I did in May.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: bigsur123 on January 06, 2017, 12:38:14 am
It probably sound shallow but dealing with lipoatrophy has been my biggest challenge. I handled the other symptoms and side effects, the uncertainty about the future, the clinical trials, the medical bills, my partner being ill, etc with less difficulty. Because I've kept my HIV infection a secret from practically everyone the lipo stressed me out. When coworkers pulled me into their office and asked if I'm feeling okay, when family members made comments about how thin I am, when strangers made rude comments it all felt like a personal attack. I'd have to quickly think up an excuse to cover up the secret. It suck when you catch people talking about you behind your back. Part of me would like to just tell people and be done with it but I have my partner's feeling to think about. It's not my secret is our secret.

So if it is such a big secret why am I posting photos? Because I felt the need to share my lipo experience with other people who are going through it. Because I'm not ashamed of having HIV. Because if people find out about it they will just have to deal. My partner was not happy when I posted my lipo photos but since doing so I've received emails from over 300 people from literally around the world thanking me for doing so. He has since conceded that I did the right thing.

Sorry what are Lipo photos and how would I see them?
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Heartbeat on January 11, 2017, 12:10:08 am
My biggest challenge is taking my meds on time, I never miss a day but i also keep taking them at different times, The other challenge is disclosing my status to my family to date I've been living with Hiv for a year and only 3 people know my status. I know for a fact my family will support and stand by me but i don't see the point of putting them through the pain and heartache :-X :-X :-X. Lastly it's the side effects of the meds the vivid dreams, back pains and hot flushes.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on January 11, 2017, 04:02:38 am
@Heartbeat

Welcome to the forum, glad you found us.

Perhaps you can open your own introduction thread and introduce yourself it will give more members an opportunity to reply and support you.

Sorry to hear about the challenges, that said wild dreams etc. normally settles down once you body adjusts. That said if its bothering you and persists you could always talk about a possible switch.

As for disclosing well that one is very personal and different per person, overall I have to say as living with HIV nowadays is very manageable and live Simpy goes on so to speak the value of disclosing when not needed looses it worth somewhat.

Take it easy.

Jim
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: newbie2016 on January 13, 2017, 07:16:42 am
emotions and the secrecy
Secrecy, amazing how often you can be caught in your tracks hiding information,such as illness related,doctor,specialist appointments
Emotions well that has been emotionally exhausting
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: dallas nk on January 14, 2017, 10:25:31 am
My biggest personal problem is depression and fear..fear of the future for myself and children. I have four small children who I would love to see grow and become adults. Also, knowing that if co-workers find out, etc., I would be "black-balled" and possibly fired. Unfortunately, most don't know the facts about HIV and they're afraid that if you "touch" them they will get it so the stigma is real and we suffer for it. I'm a woman and that makes it EXTRA hard. Its also hard to keep this secret from family and friends. I'd recently told my mother (after long careful thought) and I was so surprised at her response!! My fear was unfounded because she was more supportive than I'd hoped.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: gpath on February 11, 2017, 05:07:00 pm
Hello dan I actually first time in forum.. i'm totally deafness from birth, i living with HIV for 13 years.. i feel improving better because my 1 medicine name odefsey    since 1 years before i had 3 medicines for 5 years, cause bone make less and less. My Dr is woman, she really care about my health. my living is work part time job , i m alone and lstay at home. i lost many friends ..and some deaf  did speech hate to me from online. i can't report  to other state. we r different states..
i'm hurting lot . seeing my therapy one time day a every week. she understand my emotions.. she and i working on change.org about hate speech...  does it will help change.org for hate speech. i have long story. i report law enforcement on person from missouri  hate speech against me.  law enforcement won't help it at all...i really angry about hate speech online.. sweetdeeam...
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on February 11, 2017, 08:08:13 pm
Hi

Welcome to forum sorry to read your having a rough time.

Great that your on the new meds and doing well on them, I do however hope you engage with the world again and get out of your home to enjoy it, perhaps some therapy to help you vent and move onwards could help. 

Not sure I understand the hate speech issue as I have not seen it so can't really comment directly on that, I do however hope you can work towards/on a more positive life, no pun intended. Personally I know for sure there are plenty who say both hateful things about my gender and also my disabilities and in some instances slanderous (defamation of charterer) things about me personally online. Up to them to waste their time doing that, I would and will not waste my time, energy or life on them.

Anyhow hope that you can find a solution that brings you peace in life.
Looking forward to seeing more of you on the forum and if you post your  introduction thread in "living with HIV"  I am sure more members will be able to talk to you and perhaps help. 

Jim
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: abrokenman on March 12, 2017, 12:30:46 pm
For Me, considering if I stay on My meds at this point - because what's the point!

I'm at the point to let the chips fall where ever they fall. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Ptrk3 on March 12, 2017, 12:46:03 pm
Sadly, the "chips" will fall only one way, if you stop your meds:  eventual sickness and death and, quite often, not in a pleasant or quick manner.

The point of taking meds is to stay healthy and alive and to do our part to stop the spread of this virus.

Yes, it can be challenging at times. Many of us have been where you are, so I understand your feelings completely. I do not minimize them.

Please continue your meds and, if necessary, seek support and guidance from professionals, if you think you may be depressed.

Continue, too, to seek support from your peers on these forums.  It does get better, maybe not "easy," but better.

Take care of yourself.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: abrokenman on March 12, 2017, 04:06:18 pm
ThanX 4 the concern/advice Ptrk3 but I have NO more fight in Me nor do I want to have more.

I have an appointment very soon with someone to talk (out) about my feelings but guess what, I can talk to a pencil and get the same emotion back. What - they are going to say "It's okay as long as you take you medication Daily" Well guess what... My daily dose suppresses HIV but not MY inner thoughts/feelings/beliefs so therefore I'm left with those dark depressing moments with no way out and WHAT... I'm expected to feel like "but , hey at least I take a dose of pills a day" and ALL is fine".

I have no support here, in this forum; as I have not been on here since December 2016 and guess what.... No PM's, no replies to <MY last replies/post only thing I see is everything moving forward and the not so recent past forgotten. Oh, that's because EVERYONE is taking their Once a day med and all is well. Besides, Who said it will be the disease that claims My Life - I'm much smarter than that. Check MATE!
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Ptrk3 on March 12, 2017, 04:48:10 pm
Perhaps when you talk to whomever it is with which you have an appointment, you could discuss with him or her whether seeking a medical professional who could prescribe you an appropriate antidepressant to improve the quality of your life is something you should pursue. 

You do sound depressed.  Many people here in these forums, including me, can empathize with you.  Yes, life can be tough for anyone, no matter his or her HIV status and every self-reflecting person has dark nights of the soul, but by understanding the reasons for our unhappiness or dissatisfaction, we can find the strength and grace to persevere, endure.

Here's a recent piece on depression worth reading:

http://nymag.com/scienceofus/2017/02/a-new-way-to-understand-and-treat-depression.html?mid=full-rss-scienceofus

Don't take it personally that people don't "PM" you.  Aside from my fellow moderators I don't get many PM's, or send them (unless I feel that someone is in dire straits).  I prefer writing in the open forums because you never know when someone may read something you wrote and feel support and camaraderie.  There is always support here for you as long as you are open to looking for it and finding it here and there, when it may be least expected.

Also, over the last couple of years, even, it does seem like traffic on these forums has gone down (other than the always active "Am I Infected?"--which is transient, since people get what they need and move on), as people for whatever reason adjust and move on with their lives.

Please continue to be active with these forums and seek whatever assistance you may need to improve your outlook on life.

My thoughts are with you and your struggles:  I wish you peace of mind.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Jim Allen on March 12, 2017, 05:12:03 pm
Hi

Sorry to hear that you are having a rough time and hope things look better for you soon. Do check the links Patrick provided and also talk to your doctor about how you feel. Some of the HIV meds do enhance mood and feelings so that is another reason to flag any such problems with your doctor.

As for the PM's and the site, if you need us or need to vent or talk feel free to post we are all here for each other, however yes life with HIV nowadays for most members mean they take a pill a day and move on with life, it does not hold them back or hinder them and so to be honest its a good thing that over time places like this are less and less needed.

Take it easy and if you need to talk we're here.

Jim
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: spicy1 on May 09, 2017, 02:47:35 pm
Anxiety is my greatest battle which seem to be affecting my mental health and im permanently on tension relaxers and sleeping tablets
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: awakening on May 09, 2017, 10:33:21 pm
If you have access to a meditation or mindfulness class, I recommend it. It can change your life for the better in terms of stress reduction.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: newbie2016 on May 10, 2017, 07:30:43 am
Abrokenman,, sorry don't know how to reply to your post..I like your comments and that is excatly how i feel, "sure we take our meds, but it doesnt help with the rest of our thoughts and feelings".
I fully get that.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Angelvera on May 22, 2017, 04:18:33 am
My major challenge is getting married. Am from a society where as a woman if you are not married at the age of 27-30 your people will use you as a case study and also a prayer point, even trying to know why you are still single at 32. I had to move on not caring about what my people will think about me. I got admitted into the university to keep my body and soul busy in order not to worry much, yet i have the challenge on how to settle my bills, like paying school fees, rent and able to live comfortable without looking up to anyone. Its really not easy when most time i wake up knowing i need to go for lectures but no money to get there, most times coming back know i need to take my drugs but no food to eat to keep strong. Its not easy though but am struggling hard to pull through. Everyone is waiting for me to come home and tell them hey! He is coming to pay my bride price, lol. Trust Africans and their mentalities about marriage. All the same am a strong woman.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: Cerise_81 on June 20, 2017, 11:43:22 am
My biggest personal problem is dealing with the mood swings/depression. Wanting love and and having little difficulty finding friends that you can trust and be comfortable around. I already had low self esteem growing up, and now this, is like a blow it my confidence. There are days that can go by and I'm doing great, days and month, but there are the days Not wanting to deal with the daily stress and worries, questioning what's my purpose, why am I alive. But having faith, hope and strength while shedding a some tears get me through. Dealing with all the questions like why are you single with no kids at the age of 36. I hate it. I hate it because I want it. That's all I ever dreamt about, having my own family.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: PozLawyer on September 30, 2017, 04:51:20 am
The knowledge that if I had started PrEP about 8 weeks earlier in 2014, I could still be negative today.  We know from VL tests that confirmed neg so I could start PrEP, but I could not afford to fill the script (and did not know about copay assistance).  Continued boinking around, decided to get retested with a VL test once I COULD afford the script, and bingo, HIV+.

Then they had *new* scripts for me.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: leatherman on September 30, 2017, 08:25:22 am
The knowledge that if I had started PrEP about 8 weeks earlier in 2014
however if you had started using condoms to protect yourself from gonorrhea, chlamydia, or syphilis, you could have also avoided HIV. The problem wasn't that you couldn't afford PrEP; but that you were not protecting yourself. I would suggest that not starting PrEP is not the biggest personal challenge you face regarding your HIV status; but not getting PrEP was a challenge regarding keeping your HIV negative status.

what sort of challenges do you face now in regards to your HIV positive status?
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: kentfrat1783 on September 30, 2017, 08:40:02 am
Hi All,

Hope all are having a great start to their weekend.  That is if you have it off or working.

I was Dx'd in May after being admitted to the hospital and the doctors couldn't figure out why I was so sick.  Well they started asking questions and done one test and found it.  Well an ID doctor also came in to see me and he knew I had PCP even before the blood work and he was right. 

Since then it has been a little up and down for me.  I started on Atripla about a month after my Dx and my CD4 went from 2 to 42 and VL from 169k to 54.  Taking the pills at the same time is my hardest challenge.  I am slowly moving when I take the Atripla at night to 10pm and going to get it to about 10:30. It is funny that some nights I don't even remember taking the pill so I could them and sure enough I did.  I want to get back to hitting the gym at my normal time.

I've had depression and anxiety prior to the Atripla and it isn't anything different prior to so not worried about the side effects of it.  Just hard having the Dx and not really wanting others to know what I have.  I have a few nurse friends and I've never told them the Dx but used clues so not sure if they connected the dots yet.  A few close family members know and my best friend knows.  He is totally cool with it.  I have one other friend I want to tell but just haven't yet.  He's been concerned about me but don't want to talk about it when his kids are around. 

The side effects of the pills haven't been bad either.  The first few months my body was getting adjusted to them but nothing too extreme.  It's been better then I would have thought.

My ID doctor is still concerned about me.  He still says he's never seen a CD4 count so low and wants me to get some immunizations but won't even think of it until my count is over 100.  He isn't even talking about 200 yet.  At least he is honest and upfront.

Doesn't help that there aren't any support groups in my area (at least none that I can find).  The closest one is like 1.5 hours away. 

Just need to take it one day at a time and keep an open mind.

Kenneth
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: PozLawyer on September 30, 2017, 08:51:56 am
however if you had started using condoms to protect yourself from gonorrhea, chlamydia, or syphilis, you could have also avoided HIV. The problem wasn't that you couldn't afford PrEP; but that you were not protecting yourself. I would suggest that not starting PrEP is not the biggest personal challenge you face regarding your HIV status; but not getting PrEP was a challenge regarding keeping your HIV negative status.

what sort of challenges do you face now in regards to your HIV positive status?

The mental health implications that come with that knowledge are a current challenge that relate to my HIV+ status.  I am well aware that PrEP does not protect against those other illnesses.  My choice then and now was to not use condoms, and I am aware that left me open to many STD's not just HIV.   But thank you for the lecture on condoms. 
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: den2542 on November 18, 2017, 04:56:24 pm
I can't begin to tell you all how helpful your posts and this thread has been for me today. I realized that the feelings and thoughts I have are not just my own, they are ours. I too have many of these same struggles. I for one was infected in a workplace situation which was confirmed. That is not to say that I wasn't sorta promiscuous in my younger days. I am hard on myself because I carry so much guilt and shame. I learned I was Poz one year after getting married and spouse was pregnant back in 93. I was in a career in which employees were expected to be strong minded. After
They put us in the hospital for 2 weeks and the windows were blacked out and doors were locked from the inside, I was discharged and allowed back in the career field bc I was asymptomatic.  During the entire marriage I was sidelined and marginalized by the wife and ridiculed for having HIV. I felt like the roommate only to pay the bills. I was in denial abt HIV and felt I could fight it. Wife I think was poisoning my food or at least I thought so. She'd say things like "can't wait till ur dead". The child was negative and so was wife. We had two more kids by sperm donation. At the workcenter I could feel people talking about me... how thin I looked. By 2002 from a CD4 count of 900 in 93 in 2002 i was told in 6 month u will die unless you start meds. Cells were 46. I dtood in front of the mirror and took that pill and literally felt it working. It was Combivir. Before that I'd walk a few steps and had to lay down. I was so out of breath. I could feel life slippjng.  I was so exhausted I was afraid to use AZT bc word on the BBS on the computer said it would kill ya.  I stayed in the marriage 18 years for my kids. Divorced in 2011. She had bipolar, BPD and NPD. I never told her I was on meds, I knew she'd leave. When she found out, and she knew I might live she demanded a divorce after 18 years. Said I could live in the garage. I filed. I had her served. That's when she wanted to change her mind. Said if I gave her a lipo she'd come back. She got on the witness stand and told about my status. Fast forward I am divorced now 6 years. Cd4 went up 200 points and even before the marriage I had quit smoking. I am now on Atripla going to Genvoya soon. After the divorce I had to heal. So I went to get not 1 but 2 master degrees. Lately I think as I get older, what will become of me? I never once thought about not taking my meds bc I remember what it was like to come close to death. My biggest issue now is 1) will I ever find someone or will I die of loneliness. When the thought of being with someone comes I am reminded of everything the doc says about new STDs. Also I worry if anyone found out. I never told the kids or family. My fam is pretty judgemental. So keeping this in is hard. Not having someone to love you 4 u  is hard. Btw I won the divorce case and got joint physical joint legal custody snd no child support. Ex wife turned lesbian. So you can see that your posts mean alot to me. I never told a soul abt my HIV bc I'm afraid to. You all are the only ones. There's alot more I could write like about physical abuse when I was younger, but I think the most things I deal with now are loneliness, grief, sadness, anger, fear, but most of all thankfulness for the meds. I use an ap called Medisafe. Never miss a dose. But still I'm sad. So y'alls posts gave me hope and most of all knowing I'm not alone.
Title: Re: What is the biggest personal challenge you face regarding your hiv status?
Post by: den2542 on November 18, 2017, 07:20:09 pm
kellyspoppi et all who posted about those that are LTS from the 90s. I am one of those. Being in government and the military we did not dare advocate or disclose.  And secondly, still in government I am here to tell you nothing has changed. It's more covert now than ever before. I would love to post a long discertation on my evidence. But please believe me when I tell you we have made progress but not enough. People look at this as a gay and black disease still. And we on the front lines know its not. I for one was infected as a result of a workplace accident and yes I was promiscuous as a bi man , but it was the workplace accident that got me. Had it not been for those  from the 80s and yes many were gay, and they accepted me with open armed regardless of how I was infected, I would not be here today. I owe my very life to those who came before me in 93.