Questions About Treatment & Side Effects / Re: Polyneuropathy, better without NRTIs ?
« Last post by Jim Allen on Today at 03:06:31 pm »I've been under medication since 2009, starting with TVD/ATV/r then ABC/3TC/ATV/r then ABC/3TC/NVP then ABC/3TC/RAL then BIC and now ODEFSEY (about 2 years).
I think you missed the Triumeq as well, right? (DTG, 3TC & ABC) BIC & ODEFSE, I would not re-exposure myself to anything with TAF/TDF; it works excellently for so many, but it's just not my cup of tea.
Gabapentin did not help ... I almost cannot climb stairs and am only 60 ...
I was wondering if switching to Juluca or Cabenuva would not help (getting rid of NRTIs) could help ...
I'm in my 40s and don't climb stairs, so I can somewhat relate, although it's different. I'm sorry to hear Gabapentin didn't help, and I hope things get better soon. I'm on pregabalin myself, and it half helps against the pain and discomfort of my neuropathy.
But nothing will fix my issues; once the damage is done, it's usually done, and it just becomes a case of managing it. I should add that it somewhat depends on the root cause and the level of damage done; if it is HIV itself, then nothing is going to fix it. Anyhow, that's really a case-by-case thing, so it is something to discuss with your doctor.
I was wondering if switching to Juluca or Cabenuva would not help (getting rid of NRTIs) could help ...
I would doubt it; however, I'm not you, and it's certainly something to discuss with your HIV consultant and neurologist. Remember that you are the pilot, and it's your choice to try.
Juluca contains drugs you have already had, DTG and rilpivirine, and Cabenuva is Cabotegravir/rilpivirine.
Take it easy.