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Author Topic: Don't Leave Me This Way: Motor Neurone Disease  (Read 23092 times)

0 Members and 1 Guest are viewing this topic.

Offline bocker3

  • Member
  • Posts: 4,285
  • You gotta enjoy life......
Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #50 on: October 20, 2011, 05:47:27 pm »
Sorry to hear about your Nan -- although your lineage is quite clear, isn't it!

Have been thinking about you and very happy to see you posting.  Your Aussie wit is missed.

Hang strong -- and shit up a storm, oh Damned one......

Hugs,
Mike

Offline Theyer

  • Member
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  • Current ambition. Walk the Dog .
Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #51 on: October 20, 2011, 06:54:15 pm »
I do agree about the poo thing. Hope yours is blissful tomorrow
t
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline klassykitty

  • Member
  • Posts: 379
Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #52 on: October 20, 2011, 09:05:10 pm »
 Mtd
Sorry to hear about your Nan, she sounds like she was a great lady. 

You will always rule the world no matter what your body functions are doing.  I imagine when I run to the bathroom in the morning your name will pop into my brain.

Sending hugs and good thoughts your way.   As David  said some of that help will come your way.

Miss you on here :'(
Michelle
How to handle stress like a dog:
If you can't eat it or play with it.....
then pee on it and walk away

Diagnosed 01-20-2011
01-23  CD4 32    VL 125,400
02-18        76     VL 189
03-14  no cd4 test done   VL-52
04-14   69  VL-UNDECTABLE  YEA!!
05-26   50  whoopsy  
06-27   71        %-7
08-15   64 WTF %-9 
10-16  80         %7  
2012  CD4  %Thing   VL-UD
01-18  87    7
04-18  93    8  
07-16  151  8         
10-18  83    9    VL-70
2013   CD4   %thing       VL-UD
01-28  121     9
04-24  148    11   
07-25  157    11   
10-22  185    13
2014   CD-4  %thing   VL-UD
02-07 201 YEA!!!!!!  12
06-03  205      12

Offline anniebc

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #53 on: October 20, 2011, 09:46:50 pm »
I'm so sorry to hear about your Nan Matty, I hope you passed on her message to Fay, I think of you every day.

Aroha and hugs
Jan :'(
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline komnaes

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #54 on: October 21, 2011, 12:11:40 am »
Sorry to hear about your nan Matty..

Miss you and take care, Shaun
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #55 on: October 21, 2011, 06:17:17 am »
Sorry to hear about your Nan, Matty. At least you're still here to carry on her cantankerous tradition and I know you'll do her proud.

I had a lovely poo this morning and named it after you. Alas, I had to flush, but there's always tomorrow. :)

Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline skeebo1969

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #56 on: October 21, 2011, 10:16:14 am »


  Matty,

    Sorry to hear about the passing of your Nan.  I disagree about the poo thang, I prefer to hold it till 9 pm.

   

   
I despise the song Love is in the Air, you should too.

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #57 on: October 21, 2011, 12:21:07 pm »

I disagree about the poo thang, I prefer to hold it till 9 pm.


Typical stoner - always putting things off! ;D
Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline skeebo1969

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #58 on: October 21, 2011, 02:03:10 pm »
Typical stoner - always putting things off! ;D

It regrets me to inform the forum that my stoner days have been left solely to dreams of being surrounded by pot plants since moving to this miserable place called Massachusetts.  The police here scare the shit out of me..

I also would like to report that I really thought the "what percent are you" thread in off topic was about the American public's new considerations regarding legalization of marijuana.  I am part of the 50% who now approve.  I also think it's a fine way to get us out of the current financial woes that plague our country..

Sorry Matty for the hijack.  I fully expect a thrashing for this...

Skeebo
I despise the song Love is in the Air, you should too.

Offline Miss Philicia

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #59 on: October 21, 2011, 03:28:23 pm »
Sorry to hear about your grandmother, matty -- as well as the after shave.
"I’ve slept with enough men to know that I’m not gay"

Offline odyssey

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #60 on: October 21, 2011, 10:04:22 pm »
Matty-

Sorry to hear about your nan. Of course, it took a minute or two to get it through my thick Yankee skull of what relationship a "nan" was, but anyway...

Also very glad to see you back here on the 4ums. I was really starting to worry and was about to pester all the frequent posters to see if anyone had your phone number and could call you and check up on you. So glad you're around again!

Hugs and good thoughts!
odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline northernguy

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #61 on: October 22, 2011, 12:10:21 am »
Jeez, I haven't been around for a while.  Sorry to hear about this Matty.  And I refuse to believe you're a bastard (despite the curmudgeonly genes from your nan)! 
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline spacebarsux

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #62 on: October 22, 2011, 02:29:25 am »
I understand how painful the loss of a grandparent is.

My condolences Matty.
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline OneTampa

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #63 on: October 22, 2011, 11:03:32 am »
Matty,

Sorry for your loss.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline Solo_LTSurvivor

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #64 on: October 22, 2011, 02:44:14 pm »
"Fay Hasler and I never got along. But if you see her, I want you tell her something",

Matty, sorry to be tardy for the party ~ I'm sorry to hear of your nan's passing.

She sounds like she was one helluva gal.
don't equate intelligence with lack of masculinity
Jim Phelps, Mission Impossible
____________________________

Seroconverted: Early 80s
Tested & confirmed what I already knew: early 90s

Current regimen: Biktarvy. 
Last regimen:  Atripla (with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky ::))
Past regimens
Fun stuff (in the past):  HAV/HBV, crypto, shingles, AIDS, PCP

Jan 2012: 818/21%
Apr 2012: 964/22%
Jul. 2012: 890/21%
Oct. 2012: 920/23%

Still UD after all these years

Offline Matty the Damned

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #65 on: October 25, 2011, 06:09:59 am »
So we sank Nan in the hill today.

You know, they say your nails don't really keep growing after you're dead. But I swear with the Living Lord Jesus as my witness that old bag had claws like a manchu lord at her viewing yesterday.

Anyway she's under the sod now and my extended family are finally fucking off.

Moreover I've stopped feeling sorry for myself and I have a hunger for forums meat.

So expect me back amongst you shortly.

MtD
(Who thinks you're all a bunch of cunts)

Offline Theyer

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  • Current ambition. Walk the Dog .
Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #66 on: October 25, 2011, 11:02:52 am »
Let the flagellation begin......
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline denb45

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #67 on: October 25, 2011, 11:16:22 am »
Good for u Matty  ;) glad to have u back in the forums u have been missed  :-*
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline newt

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #68 on: October 25, 2011, 01:45:26 pm »
Dear matty

You can't spell cats

- matt
"The object is to be a well patient, not a good patient"

Offline anniebc

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #69 on: October 25, 2011, 04:58:45 pm »

MtD
(Who thinks you're all a bunch of cunts

Not all of us surely... ;).

I'm glad it's over and look forward to having you back among those who really do care about you, and stop using naughty words in front of the children you know how upset they get.. ;)

Missed you.
Aroha
Jan :-*

-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline WillyWump

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #70 on: October 25, 2011, 05:08:58 pm »

, and stop using naughty words in front of the children


and the sissy men amongst us.

Hurry back, there are some members who need some schoolin' from the Damned One.

Oh , and glad your Nan is RIP'ing in the hill.

-Will

POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline bocker3

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #71 on: October 25, 2011, 06:43:43 pm »
and I have a hunger for forums meat.
MtD
(Who thinks you're all a bunch of cunts)

Welcome back -- you have been missed!!

Oh -- there is a new Big Pharma conspiracy thread that should help feed your 'hunger".

Hugs,
Mike

Offline jkinatl2

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #72 on: October 25, 2011, 08:57:38 pm »
Welcome back -- you have been missed!!

Oh -- there is a new Big Pharma conspiracy thread that should help feed your 'hunger".

Hugs,
Mike

That's probably way too easy for Matty. I suspect he likes his prey a little tougher and stringier. Something in a jerky he'd have to pick from his fangs after.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline bocker3

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #73 on: October 25, 2011, 10:39:10 pm »
That's probably way too easy for Matty. I suspect he likes his prey a little tougher and stringier. Something in a jerky he'd have to pick from his fangs after.



You are probably correct -- I don't know what I was thinking, we all know the dearest Damned One likes a challenge...........

Offline phildinftlaudy

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #74 on: October 25, 2011, 10:50:44 pm »



(Who thinks you're all a bunch of runts)

My grandpa used to call us runts when we were younger - thanks for bringing back some happy memories

He called us runts and rug rats

Sometimes guinea pigs too -
But only when we got out of the pool all soakin' wet

I think you are quite the runt to...

Come to think of it - I guess many of us are runts -
I love running with the runts

If I could smoke a blunt, run like a runt, let out a little scrunt, and a little grunt --- people would probably then start calling me a big ole' queenie actin' little *unt   (I didn't want to say any naughty words - because I know how those types of words are very offensive to you)

Welcome back oh runty one!  Luff Ya!
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ann

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #75 on: October 25, 2011, 10:52:28 pm »
My grandpa used to call us runts when we were younger - thanks for bringing back some happy memories

He called us runts and rug rats

Sometimes guinea pigs too -
But only when we got out of the pool all soakin' wet

I think you are quite the runt to...

Come to think of it - I guess many of us are runts -
I love running with the runts

If I could smoke a blunt, run like a runt, let out a little scrunt, and a little grunt --- people would probably then start calling me a big ole' queenie actin' little *unt   (I didn't want to say any naughty words - because I know how those types of words are very offensive to you)

Welcome back oh runty one!  Luff Ya!


Runt the duck was that all about?
Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline phildinftlaudy

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #76 on: October 25, 2011, 11:40:08 pm »
Runt the duck was that all about?

I don't know -
but it made more sense then the conspiracy theory thread.... didn't it?  ;)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline thunter34

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #77 on: October 26, 2011, 12:01:59 am »
I don't know -
but it made more sense then the conspiracy theory thread.... didn't it?  ;)

It made sense to me.
AIDS isn't for sissies.

Offline jkinatl2

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #78 on: October 26, 2011, 12:10:08 am »
I don't know -
but it made more sense then the conspiracy theory thread.... didn't it?  ;)

I've picked stuff off my scalp that made more sense than that.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline anniebc

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Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #79 on: October 26, 2011, 02:13:34 am »
Runt the duck was that all about?

It's just Cupid Stunt messing with your heads, I think he is just thankful that summer is over so those poor wee guinea pigs get the chance to dry out and all the pools have been covered over for winter... ;)

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline aztecan

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  • 36 years positive, 64 years a pain in the butt
Re: Don't Leave Me This Way: Motor Neurone Disease
« Reply #80 on: October 26, 2011, 10:39:08 am »
Well, thanks to century link's takeover and a three-month battle when I have had very intermittent internet, I am late to the game.

First, Matty, condolences about your Nan.

Secondly, glad you've seemed to get your second wind. I have missed your sorry butt miserably.

HUGS,

Mark

"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

 


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