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Author Topic: mystery trial  (Read 1563 times)

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Offline harleymc

  • Member
  • Posts: 1,483
mystery trial
« on: August 14, 2022, 05:36:02 am »
Sunday afternoon (Australian east coast time) I received a call from my doctors clinic saying they are enrolling participants in a study.

It's for nonresponders. After 10 years of undetectable viral loads i can't crack 250 cd4s hopefully this new trial will find something that boosts cd4s. I don't know any details yet. Tuesday morning will be my first appointment.

I will maintain my currents. ARTs.

Offline LeftyBowler300

  • Member
  • Posts: 104
Re: mystery trial
« Reply #1 on: August 14, 2022, 10:41:07 pm »
Keep us updated!
I wouldn’t mind adding a few cd4 to my collection  ;)
Apr 1, 2017 DX - CD4 8 , VL 820,000
OI's: Disseminated Histoplasmosis, Thrush, PCP
Apr 17, 2017 started Genvoya, Bactrim, Sporanox, Azitrhomycin
Jun 9, 2017 - CD4 42 (3%) , VL 100
Jul 17, 2017 - CD4 57 (4%) , VL 53
Sep 16, 2017 - CD4 57 (4%) , VL 130 - Ugh..
Oct 20, 2017 - CD4 63 (5%) , VL 100
Dec 1, 2017 - CD4 56 (3%) , VL <20
Mar 15, 2018 - CD4 73 (5%) , VL <20
Nov 5, 2018 - CD4 104 (7%), UD
Jan 26, 2019 diagnosed with HIV-associated DLBCL (lympoma) with 6cm mass near liver w/ abdominal fatty tissue involvement
6 rounds of RR-EPOCH
2 rounds of high dose methotrexate
(8 rounds of IV chemo total)
11 Lumbar punctures with intrathecal chemo
June 5, 2019 - Complete Response/Remission
Feb 20, 2020 - CD4 187, VL UD
Aug 2020 - CD4 247, VL UD
Stopped all prophylaxis
June 2021 - 2 years remission

Offline harleymc

  • Member
  • Posts: 1,483
Re: mystery trial
« Reply #2 on: August 15, 2022, 07:44:24 pm »
The last place on the trial got filled before I could have my entry appointment.

Disappointed but trying to console myself with the notion that if it works it'll be released, if it doesn't work then nothing lost.

But still, it is a big disappointment,  I don't even know what the investigational substance is.

Offline harleymc

  • Member
  • Posts: 1,483
Re: mystery trial
« Reply #3 on: August 17, 2022, 11:51:05 pm »
So apparently another slot has been found, off to see the vampires and investigators friday

Offline leatherman

  • Member
  • Posts: 8,156
  • Google and HIV meds are Your Friends
Re: mystery trial
« Reply #4 on: August 18, 2022, 09:09:51 am »
congrats and best wishes!  :D
leatherman (aka mIkIE)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"


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