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Author Topic: I thought 2006 was bad....  (Read 1912 times)

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Offline morethanpoz28

  • Member
  • Posts: 29
I thought 2006 was bad....
« on: March 04, 2007, 08:32:03 PM »
You know I thought 2006 was a rough year but 2007 is one for the record books…At this moment my partner is in the hospital with PCP.  He was coughing and short of breath for over a week with fever but was refusing to go to the doctor no matter what I tried to tell him.  He is only a week into Atripla and has developed a rash over his entire body.  Of course he is depressed and disheartened.  Now the ID doc says she is going to switch him to Kaletra b/c of rash and depression which may be a good thing but he feels like a failure for having to switch meds (I know that is the depression talking.).  Still, I don’t know how to help him.  I am trying to take care of myself also and my 8 year old so I can’t even be at the hospital as much I would like.  AAAARRGHH….if it isn’t one thing it is another. 

Pardon me while I ramble a bit and provide a little context…Last week Wednesday (2/28) someone broke into his account somehow and made cash withdrawals from San Antonio, TX totaling $500.  The bank is investigating but I doubt he’ll get his money back.  And he isn’t rich (and neither am I!). On Thursday he was so short of breath he couldn’t go to work.  I wanted to take him to the hospital but he refused to go.  Friday he had an appointment with our ID doc and she said he was fin, probably the flu, sent him for a chest x-ray with a prescription for Zithromycin just in case the x-ray showed something.  The clinic was closing at noon and we reached radiology at 11:30.  When they took his x-ray, the technician told us not to leave and I knew it was bad.  But they couldn’t find the ID doc so they sent us home. (Yes, they sent us home.)  Later on we got a call to go to the ER the next morning b/c he had pneumonia. (Duh!) We don’t live together so I had to take care of my son but later that evening his fever spiked and I rushed over to get him and he was admitted.  Now I am running between the hospital, taking care of my son, trying to do my job (which is suffering), and maintain my T-cells.  I am being pulled in so many directions….and I am pissed that the doc couldn’t see he had PCP when I knew he had and that the hospital let us go when clearly his x-ray showed pneumonia!  His ID doc is my ID doc and I am concerned about this choice in judgment.  She stated that since his T-cells were at 250 n one thought about PCP but from what I have read his smoking and the fact he had thrush should have led them to err on the side of caution and prescribe Bactrim as a prophylactic.  Can’t wait to see what the rest of March will bring!  Anyway…thanks for letting me vent. 

Lisa
Diagnosed 1/16/07
1st Lab 1/18/07 CD4 443; 37%; VL 660
2nd Lab 4/3/07 CD4 306; 28%; VL 1300
Retest 4/16/07 CD4 425; ?%; VL ?

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: I thought 2006 was bad....
« Reply #1 on: March 04, 2007, 08:33:46 PM »
Matty the Damned sends his fondest thoughts and best regards to both of you at this difficult time.

:-*

MtD

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: I thought 2006 was bad....
« Reply #2 on: March 04, 2007, 08:42:58 PM »
((((((Lisa))))))

I'm sorry to hear you and your partner are having such a rough time. Please, please make sure you take care of yourself during this time, we don't want you getting sick too!

I'll be sending plenty of love, light and positive healing energy to all three of you. Hang in there hun, and please keep us updated.

More hugs,
Ann
xxx
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 24,763
Re: I thought 2006 was bad....
« Reply #3 on: March 04, 2007, 09:24:18 PM »
Hi Lisa,

When so much is going down all at once it's awfully hard to keep any sense of balance in the situation.

So let me just strongly second Ann's recommendation that you first take care of yourself in whatever way that makes sense to you. By doing that you will be in the best position to do anything for anyone else when you need to. But your health and your spirit are the top of the list.

With proper care in hospital your partner will come through this ok. So one step at a time and your own care is that first step.

Wishing you and your partner well,
Andy Velez

Offline Longislander

  • Member
  • Posts: 2,486
Re: I thought 2006 was bad....
« Reply #4 on: March 05, 2007, 07:35:25 AM »
I'm sure that post helped you vent all of this. Do take care of yourself, as your partners getting his help at the hospital.  You can only do what you can do.  I hope he gets better soon.
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline poet

  • Member
  • Posts: 934
  • Poet living and working in Central Maine
Re: I thought 2006 was bad....
« Reply #5 on: March 05, 2007, 07:55:38 AM »
Vent all that you need to, Lisa and, if you have the energy in all of this, come here so we can offer what support and advice we can to help lift things for you.  Best, Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline blondbeauty

  • Member
  • Posts: 1,784
Re: I thought 2006 was bad....
« Reply #6 on: March 05, 2007, 10:06:36 AM »
Lisa, first of all take care of yourself or you won´t be able to look after your son and your partner, and they need you.
His cd4 count is not bad (he is above 200). He will be better soon. Let the meds and antibotics do their work. Things will get better very soon.
Good Luck!  :-* :-* :-*
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933

Offline cjc

  • Member
  • Posts: 1,011
  • Sweet Girl
Re: I thought 2006 was bad....
« Reply #7 on: March 05, 2007, 10:30:40 AM »
Hello, sorry that things are not going well. take care of you and then you will be able to take care of your child and partner. It's hard enough to take care of things when they are going well much less going bad but keep trying. I hope everything gets better for you.. Cristy

Offline Christine

  • Member
  • Posts: 1,069
Re: I thought 2006 was bad....
« Reply #8 on: March 05, 2007, 06:40:45 PM »
Sending you good thoughts and prayers.
Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline LatinAlexander

  • Member
  • Posts: 599
  • Bogota, Colombia
Re: I thought 2006 was bad....
« Reply #9 on: March 05, 2007, 11:10:04 PM »
Yes, keep yourself fine... They need you...and you need them...

Whishing you strength...

Alex
Poz since Jul 19 2006
Initial numbers : CD4-250 VL 3500
First labs after HAART (Dec 04-2006) : CD4-432 VL-<40 (Undetectable)  cd4%=25.11%
Started HAART: Combivir+Efavirenz Aug 26 7:38 pm
Feb 08 2007 - Gradually stopping HAART cause of Myalgia. Protecting Efavirenz. Stopped Efavirenz, ahead with Combivir....
February 17 Combivir stopped.
April 3 -07 : Started ddi+3tc+efavirenz...
Gay and positive (What a lack of Identity...:) )
Looking for my Ben....

Offline aztecan

  • Member
  • Posts: 5,398
  • 29 years positive, 57 years a pain in the butt
Re: I thought 2006 was bad....
« Reply #10 on: March 06, 2007, 11:37:09 AM »
Hey Lisa,

You have a lot on your plate right now.

I am sending copious amounts of positive energy your way. I hope things smooth out.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

 


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