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Author Topic: Sustiva and Gynecomastia  (Read 3162 times)

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Offline stephenhoward

  • Member
  • Posts: 9
Sustiva and Gynecomastia
« on: January 11, 2007, 03:32:47 PM »
Ok, I think this is a new one.  I am a male who has been diagnosed with Gynecomastia--swelling of the breasts.  They are very painful when pressed or bumped on nipples--sounds funny but it isn't.  Had a mammogram--no cancer.  Had hormone levels tested and all are fine.  Wondered since this appears to have started sometime after a switched to Sustiva if any other males have experienced this side effect and if so what did you do (other than getting off Sustiva).  (also on Ziagen and Viread.)

Offline thunter34

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  • Posts: 7,318
  • His name is Carl.
Re: Sustiva and Gynecomastia
« Reply #1 on: January 11, 2007, 03:36:53 PM »
Haven't heard of that side effect with any of those drugs, but they aren't on my regimen.  Sorry to hear about that.  So you were on Viread and Ziagen without that side effect before, huh?  You don't take any testosterone or growth hormone type replacements for wasting and such?  If so, those would be the more likely culprits.  I don't think it sounds funny at all, btw. 
AIDS isn't for sissies.

Offline Ann

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  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Sustiva and Gynecomastia
« Reply #2 on: January 11, 2007, 04:40:02 PM »
Hi Stephen,

I've heard of (usually heavy) pot smoking causing this, and there is something in sustiva that can cause positive marijuana drug tests, so maybe there is a connection there somehow?

Ann
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Offline koi1

  • Member
  • Posts: 713
Re: Sustiva and Gynecomastia
« Reply #3 on: January 11, 2007, 06:31:29 PM »
One of the only few good side effects of my wasting was that I got rid of my manboobies, please don't tell me they are coming back. Anyway as a kid I always had beesting breasts, they were not noticable when I worked out and had a nice chest. But then I got lazy and had moderate boobies. Anyway, I heard working out helps make them less noticable, as in my case.

rob
diagnosed on 11/20/06 viral load 23,000  cd4 97    8%
01/04/07 six weeks after diagnosis vl 53,000 cd4 cd4 70    6%
Began sustiva truvada 01/04/07
newest labs  drawn on 01/15/07  vl 1,100    cd4 119    7%
Drawn 02/10/07
cd4=160 viral load= 131 percentage= 8%
New labs 3/10/07 (two months on sustiva truvada
cd4 count 292  percentage 14 viral load undetectable

Offline newt

  • Member
  • Posts: 3,887
  • the one and original newt
Re: Sustiva and Gynecomastia
« Reply #4 on: January 12, 2007, 08:47:28 AM »
"The object is to be a well patient, not a good patient"

Offline koi1

  • Member
  • Posts: 713
Re: Sustiva and Gynecomastia
« Reply #5 on: January 12, 2007, 09:32:07 AM »
Matt,

Shit! I wonder how rare it is. I read the report on the link you gave. It is good to be aware of this though.

rob
diagnosed on 11/20/06 viral load 23,000  cd4 97    8%
01/04/07 six weeks after diagnosis vl 53,000 cd4 cd4 70    6%
Began sustiva truvada 01/04/07
newest labs  drawn on 01/15/07  vl 1,100    cd4 119    7%
Drawn 02/10/07
cd4=160 viral load= 131 percentage= 8%
New labs 3/10/07 (two months on sustiva truvada
cd4 count 292  percentage 14 viral load undetectable

Offline dixieman

  • Member
  • Posts: 889
Re: Sustiva and Gynecomastia
« Reply #6 on: January 12, 2007, 04:38:41 PM »
Its fat redistribution... Kalentra... zerit and a few others have been known to cause gynomastia... and smoking exceptionally large quantities of weed can also cause this...but, if ones testosterone level is normal then it is a side effect of the meds.... I had am mamagram done 2 years ago... I dont know if it was the pain in the glands that hurt most... or getting my small tiddy mashed over and over again... but, I kinda enjoyed all that handling...when I was taken off of zerit and kalentra the swelling slowly went away... plus with the fat being sucked out of my body.... I have now got the Clint Eastwood look and I am fortunate enough the fat has started accumulating back on my cheeks... not like a dried prune anymore... feel for you because it is not pleasant to have gynomastia...talk with your doctor about it... 

Offline koi1

  • Member
  • Posts: 713
Re: Sustiva and Gynecomastia
« Reply #7 on: January 13, 2007, 09:36:13 PM »
I heard strong drinking also causes bitch tit, as well as steroids. Go figure. I know when I was drinking beer everyday I exacerbated the problem. Curbing my drinking helped lessen it.

rob
diagnosed on 11/20/06 viral load 23,000  cd4 97    8%
01/04/07 six weeks after diagnosis vl 53,000 cd4 cd4 70    6%
Began sustiva truvada 01/04/07
newest labs  drawn on 01/15/07  vl 1,100    cd4 119    7%
Drawn 02/10/07
cd4=160 viral load= 131 percentage= 8%
New labs 3/10/07 (two months on sustiva truvada
cd4 count 292  percentage 14 viral load undetectable

Offline ManISOMan

  • Member
  • Posts: 168
Re: Sustiva and Gynecomastia
« Reply #8 on: February 23, 2007, 05:14:19 PM »
Hello, I mentioned this under another topic.  I had discovered a lump right under my left nipple and it was painful to the touch.  I told my doctor, he said he didn't feel a lump.

One day, I just said I want to have this taken care of, I was concerned about whether or not it was cancerous.  So, I went for the mammogram, and they immediately did the sonogram.  I definitely had a lump, and it was given a 5 on the birad scale, which means suggestive of malignancy.  I was quite worried at this point.

I saw a surgeon and he said the lump should be removed.  I had a mastectomy, and the lump is gone.  It was benign, and now I have no pain.  I have medicaid and medicare and I didn't have to pay anything for this.  I was concerned, as I have a family history of breast cancer on the maternal side, of course my doctor told me that didn't matter.  I also had a male cousin that had breast cancer.

Here are the hiv meds I've taken--Fortovase, Epivir, Zerit, Ziagen, and Emtriva.  Which caused it, I don't know.  I didn't wait for it to change or go away.  And, it's a great relief to know it wasn't cancerous. 

Offline ManISOMan

  • Member
  • Posts: 168
Re: Sustiva and Gynecomastia
« Reply #9 on: February 23, 2007, 05:19:23 PM »
I should also have included, i was told it was gynecomastia.  And I don't have a drinking problem.  In fact, I don't have a lot of friends, because I express how I feel about alcohol and that doesn't go over well.  And, that doesn't mean that I don't enjoy a drink now and then.  And, I don't smoke.  I just point these things out for people looking for common denominators in the cause for side effects.
Thanks for reading. 

Offline ManISOMan

  • Member
  • Posts: 168
Re: Sustiva and Gynecomastia
« Reply #10 on: February 23, 2007, 05:26:43 PM »
Okay, I am quite vocal. 

Also, it wasn't like I had, as someone above mentioned, "bitch tits."  As you can see in the photo, I have worked out and have a decent chest, this was just a lump under my nipple.

And I was fortunate, the surgeon said that I may have a divot after the surgerry.  I don't, you'd hardly know I had a mastectomy.  I even got a funny look from a doctor when I said I had a mastectomy.  They call it that as men don't have a lot of breast tissue and when they removed the lump, they took all the breast tissue. 

I know how I felt anticipating what I might look like after surgery.  I can only imagine how a woman must feel when she loses her breast or fears she may.  We as gay men, can be just as vain about our chests.

Offline ManISOMan

  • Member
  • Posts: 168
Re: Sustiva and Gynecomastia
« Reply #11 on: February 23, 2007, 05:33:01 PM »
Oh, and one more thing from the vocal guy.  I've never taken a steroid.  Sometimes, I think I'd like to.  I keep meeting men that do and look great and seem to get the dates and I've not heard of one of them having a mastectomy.  I am familiar with the downside of steroid use..........and still I'm envious of those I've seen taking them....................well except for the guy on tv whose biceps blew up.  And maybe, I'll have the last laugh when I'm skinnny and vascular, but stil alive and lonely. 

Offline antibody

  • Member
  • Posts: 525
  • "every man thinks his burden is the heaviest"
Re: Sustiva and Gynecomastia
« Reply #12 on: March 02, 2007, 03:11:58 PM »
Hi Stephen,

I've heard of (usually heavy) pot smoking causing this


huh? i smoke like a fish and i've never ever heard of this
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