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Author Topic: Strange red spots after 4 years  (Read 2266 times)

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Offline lostman

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Strange red spots after 4 years
« on: February 23, 2007, 05:54:04 AM »
Dear experts,

For several months I am observing dark red and purplish lesions on my body and I see new lesions almost every week.They are of the various size from less then 1 milimeter ( almost microscopic size) up to larger around 2 - 3 milimeters of flaty shape and there are 2 nodular lesions of dark red colour of size 3mm on my arms ( those were the first ). The total number of lesions might be around  60 on my hands, legs, hights, palms, upper arm, chest, back and new are occuring like very small red spots which grow by time passing.
I have got normal brown spots that have most of people but those purplish - dark red spots are really stressing me. The lesions are located almost symetricaly comparing the left and right extremities.
These lesions are not itchy and painful and they do not fade when pressed.

What I do not understand is how this might be possible to have KS and being HIV neg. My possible exposure was 4,5 years ago and I had 7 HIV ELISA negative tests, the latest negative test was 3 years ( HIV1, HIV2, p24antigen test ) since the exposure.
My total lymfocyte count taken 9 month ago was 2900, ( and CBC was OK ) so I gues that CD4 count should not be too low but of course the CD8 count is not known and might be high and thus total count is within the range.
My additional persistent symptoms for more then 4 years are PGL, white tongue, pain similar to PN, esophageal pain, trush in inguinal area and perineum, fatigue, tinnitus, red eyes, yeallow flashes in eyes sometimes, often diarhoea and flatulance, discomfort in lower abdominal area, headache. Recently I have noticed loss of enamel on the top of my front lower teeth. Could this be somehow connected with strange lesions? I mean Calsium deficiency or similar.

I would like to ask you what do you think about my strange symptoms? Could this be KS despite my HIV neg tests that should have ruled out the HIV infection or should I ask for more tests like bDNA or PCR test?

Thank you very much for your answer. 

LostMan

Offline Coffeechick88

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Re: Strange red spots after 4 years
« Reply #1 on: February 23, 2007, 06:02:49 AM »
Assuming you haven't had any other exposures such as unprotected intercourse, then you have reliably tested negative and do not have HIV.  Go to a doctor for a diagnosis.  Do not attempt to diagnose yourself.  HIV is not the problem here, but there can be many other things that you can have.
Lucas James is here
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Offline Ann

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Re: Strange red spots after 4 years
« Reply #2 on: February 23, 2007, 06:46:53 AM »
lost,

While I am NOT saying that you do have KS, you don't have to have hiv to get KS. KS has been around for centuries and some hiv negative people do get it. It's a type of cancer.

You have ruled hiv out as a possible cause to your problems. Go see a doctor and show the doctor your skin problems. We can't diagnose them here, all we can do is tell you that you are reliably and conclusively hiv negative.

Now go make an appointment with your doctor.

Ann
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline lostman

  • Member
  • Posts: 4
Re: Strange red spots after 4 years
« Reply #3 on: February 23, 2007, 07:32:15 AM »
Hello Ann and Coffeechick,

Thanks for your answers.I think I should add more info why I am still thinking of the HIV infection.The girl I was having intercourse 4,5 year ago she had similar red spots but that time I had no idea that it might be something dangerous. Before this I was really healthy man. When I noticed swollen lymph nodes several weeks later I started worried and had all the panel for STD up to 7,5 months past the exposure. All tests were negative just symptoms persisted and new were comming as I mentioned above.
Well, honestly I have to say that I am worried to go to the dermatologist  but there is no other way how to find what is going on. I just want to be sure that HIV is ruled out because other expert ( a professor ) have advised me to take a bDNA test just to be sure.
So this is why I named myself a lost man because some people are telling me that HIV is ruled out while others say have another test. I feel to be lost in the magic circle of confusing information and feel more terified about my life and future.

 

Offline RapidRod

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Re: Strange red spots after 4 years
« Reply #4 on: February 23, 2007, 07:38:55 AM »
Why? A PCR DNA test is not a diagnostic test. Why not use the money and go see a dermatologist?

Offline Andy Velez

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Re: Strange red spots after 4 years
« Reply #5 on: February 23, 2007, 08:19:59 AM »
"What I do not understand is how this might be possible to have KS and being HIV neg."

And what I don't understand is why you would insist on ignoring the negative test results and having conclusively tested negative for the HIV virus. Stop practicing medicine on yourself without a license. It's bad for your health. We cannot responsibly make any interpretation of what you have described. That's what doctors are for and you should see one including as Rod suggested, a dermatologist.

All kinds of things can go in your body for all kinds of reasons. Nothing you have described is in any way HIV specific. That's no surprise considering your test results. For some reason that's going out the window and HIV is the only thing your mind can come up with.

Please go see a doctor and find out what's REALLY going on.

Good luck with getting this satisfactorily diagnosed and treated.

Cheers,
Andy Velez

Offline lostman

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  • Posts: 4
Re: Strange red spots after 4 years
« Reply #6 on: February 26, 2007, 04:21:07 AM »
Andy and others,

Thank you for your replies.I realize that for you it might be difficult to understand why I am still thinking of the HIV infection despite of the obvious 7 negative serological tests.
I will reprint the answer from the pofessor from the same question I put here above.

"This is difficult to interpret. HIV Elisa tests do cover the vast majority
of HIV subtypes, even though the PCR test does not, so a false negative
Elisa is very rare, though not impossible.
Nevertheless, your symptoms are compatible with a
Dx (diagnosis) of HIV so retest with
an Elisa and get a bDNA. If still negative, you may have an immune
deficiency disease of another origin. Check for HTLV 1 virus and get those
lesions biopsied. If not KS, then they may give us a clue.
It is also possible, especially if you feel well and have no weight loss,
then your symptoms are multifactorial and not related to immunedeficiency."

So I understand here that there is tiny chance that it might be missdiagnosed HIV infection. So what is your opinion?

Andy,
You have mentioned, that nothing is HIV specific what I descriped. So I would be interesting what is HIV specific. I think that persistent swollen lymph nodes generaly and symptoms I described above can be easily found in the list of HIV infection.Of course I would be very happy if HIV is really sorted out but I do not want to go to the local dermatologist and then to be sent for HIV tests as the result of examination. Do you know what I mean? I want to be absolutely sure that HIV is out of the question before I go to the local dermatologict in my town.

Thank you once more for your replies.

Offline Ann

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  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Strange red spots after 4 years
« Reply #7 on: February 26, 2007, 07:28:17 AM »
Lost,

You are conclusively hiv negative. Go get your skin problems checked out by the appropriate doctor and move on with your life.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline lostman

  • Member
  • Posts: 4
Re: Strange red spots after 4 years
« Reply #8 on: February 26, 2007, 08:26:27 AM »
Thank you Ann,

For sure I will visit the doctor. I will write you what was going on to keep you and others informed.

Offline Andy Velez

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  • Posts: 23,845
Re: Strange red spots after 4 years
« Reply #9 on: February 26, 2007, 08:56:12 AM »
The point about symptoms, (and this includes everything you have mentioned), is they are often ones which occur during all kinds of illnesses. And sometimes someone who's actually HIV+ doesn't evidence any symptoms for many years.

Which is we say neither the presence nor the absence of symptoms will ever tell you anything accurately about your HIV status.

In your case, your comments from that doctor notwithstanding, you have more than sufficiently tested negative to certify that you are indeed HIV negative. Period.

You've been dragging around this concern for way too long. Get yourself to a dermatologist and find out what's really going on. And any other medical advice you need to resolve your concern. No matter how you try to spin it, this is NOT an HIV situation, no way, no how.
Andy Velez

 


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