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Author Topic: peripheral neuropathy pattern  (Read 2974 times)

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Offline egello

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  • Posts: 899
  • cb
peripheral neuropathy pattern
« on: February 23, 2007, 05:14:50 AM »
gosh, just tonight, my feet and leg started to hurt again. haven't felt this for like a week. the feeling comes and goes, why does it happen like htat?
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline allopathicholistic

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  • Posts: 3,258
Re: peripheral neuropathy pattern
« Reply #1 on: February 23, 2007, 09:19:45 AM »
sorry to hear. describe the feelings to us.

when do you see your doctor next? he's the one who told you it was definitely PN?  ???

Offline egello

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  • Posts: 899
  • cb
Re: peripheral neuropathy pattern
« Reply #2 on: February 23, 2007, 01:53:41 PM »
well, he said that nothing that i am on shoudl be causing pn.

i know its pn because of what i read. oh well, they come and go...
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: peripheral neuropathy pattern
« Reply #3 on: February 24, 2007, 02:24:24 PM »
When I was on Truvada Reyataz Norvir I had tingling in my fingertips and that lasted for about 4 weeks if I gripped something too hard but it wasn't somethid I would call pain. How bad are your pains?

Did you see this old thread? http://forums.poz.com/index.php?topic=1729.0

Offline egello

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  • Posts: 899
  • cb
Re: peripheral neuropathy pattern
« Reply #4 on: February 24, 2007, 08:14:16 PM »
to the point that sometimes, my feet feel like they are going to pop open from all the pressure....
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline Miss Philicia

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  • Posts: 23,558
  • celebrity poster, faker & poser
Re: peripheral neuropathy pattern
« Reply #5 on: February 24, 2007, 08:30:31 PM »
I've never had it. 
"Iíve slept with enough men to know that Iím not gay"

Offline egello

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  • Posts: 899
  • cb
Re: peripheral neuropathy pattern
« Reply #6 on: February 24, 2007, 10:53:58 PM »
wow, after all these years you never had PN Philly?

did you have any OIs since you were diagnosed?
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: peripheral neuropathy pattern
« Reply #7 on: February 25, 2007, 08:56:42 AM »
i know its pn because of what i read. oh well, they come and go...

pop open from pressure? oh goodness, i hope that gets resolved for you, even if it's not an everyday thing for you. What did your doctor say about HIV's ability to cause PN independent of meds issues? I've heard members here say that HIV itself can cause PN 
« Last Edit: February 25, 2007, 12:21:29 PM by allopathicholistic »

Offline egello

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  • Posts: 899
  • cb
Re: peripheral neuropathy pattern
« Reply #8 on: February 26, 2007, 01:56:29 AM »
yeah, he said that it can,, he also realizes that i probably know everything more than he does from obsessive reading regaring HIV, he said that with PN, it tends to travel up your legs,,,, unless that happens, he told me to just keep monitoring it and see what happens,,, not whole a lot they can do... i am f$%ked for life
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline egello

  • Member
  • Posts: 899
  • cb
Re: peripheral neuropathy pattern
« Reply #9 on: February 26, 2007, 06:19:02 PM »
ahh.. shoot, its bad today,,, and today my hands and arms are feeling the pressure and tingling too. my armas are lookign all veiny... :'(
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline pozniceguy

  • Member
  • Posts: 1,169
  • Niceguy Dallas
Re: peripheral neuropathy pattern
« Reply #10 on: February 26, 2007, 07:17:36 PM »
Egello , I have  the PN  and have had it since 1994....it does travel up my legs..sometimes more than others....doesn't always "hurt" most times it just feels tingly or sort of numb...I have been using Neurontin for most of that time..It certainly seemed to help, when I don't take it ( tried to reduce dose) the the creep starts up the legs again.......also ..you need to be aware of the DVT..(deep vein thrombosis) this condition van be more serious..especially if you sit for long periods of time or lie down ( that is why getting out of bed can be a bitch some times...) until you get up and move around to get things moving again.....hopefully as you are working out regularly this will not be a problem.... 
There are other treatment beside Neurontin but this one has worked for me so I stick with it...

Nick
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline egello

  • Member
  • Posts: 899
  • cb
Re: peripheral neuropathy pattern
« Reply #11 on: February 26, 2007, 07:23:53 PM »
thanks nice guy,,,

does PN and Lipo have any link?
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: peripheral neuropathy pattern
« Reply #12 on: March 13, 2007, 11:42:10 AM »
QUESTION: Does PN always start in both feet at the same time or can it begin in just one foot?   ???

Offline J.R.E.

  • Member
  • Posts: 6,960
  • Joined Dec-2003 Living positive, since 1985.
Re: peripheral neuropathy pattern
« Reply #13 on: March 13, 2007, 07:05:10 PM »
QUESTION: Does PN always start in both feet at the same time or can it begin in just one foot?   ???


It started in both feet, and also had  tingling and numbness in both hands,( fingertips, and the tops of the hands) just about at the same time.


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of DEC 9th, 2013,  t-cells are at 437 Viral load  <40 .

 Current % is at 16% (L)

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 6,960
  • Joined Dec-2003 Living positive, since 1985.
Re: peripheral neuropathy pattern
« Reply #14 on: March 13, 2007, 08:28:16 PM »


Here'w a n informative link, from THE BODY ;

http://www.thebody.com/bp/julaug02/pn.html



Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of DEC 9th, 2013,  t-cells are at 437 Viral load  <40 .

 Current % is at 16% (L)

  
 62 years young.

Offline gordonh28

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  • Posts: 20
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Re: peripheral neuropathy pattern
« Reply #15 on: March 16, 2007, 04:58:15 PM »
Neuropathy is certainly a strange bed fellow, I say this with all seriousness, because it comes and goes as it pleases, and will always feel different than the last time. I started meds right after diagnoses and with 2 years I had tinling and numbness in my fingers and toes, strange because I had high tcell and low viral loads. I took a nine month holiday, and it went away. It took 8 years to come back. I have a thumping in my Left heel, like there is a AA battery source there, and the bottom of both feet are numb. I get a burning feeling some times, and I still get the numbness in my finger tips. That is bothersome but I have learned to deal with it. I cannot sleep with anything covering my feet or toes, IE blankets sheets, etc. Good thing I live in Florida. I have tried every drug and nothing works for more than a few weeks.
I came off a three year drug holiday a couple of years ago, and the pesty beast never let up. I am now taking monthly shots of injectable B-12. It is only one mil. but it gives me relief for 3 out of the 4 weeks monthly. I am hoping that I can get the dosage increased eventually. I pray they could just come up with a cure all side effects pill, wouldn't that be something nice to wish from Santa.
Hope i helped a little.
Al
Gordonh28 ( Al )

I have been in St Pete, Fl. for 9 years.
Moved here from Miami, I lived there for 12 years. (Diagnosed in 1995)

Labs
02/28/2008 VL>25    CD4>837 CD4%>37
05/08/2008 VL>25    CD4>875 CD4%>35
08/26/2008 VL>25    CD4>578 CD4%>38
11/04/2008 VL>25    CD4>879 CD4%>34
02/24/2009 VL>25    CD4>833 CD4%>36
05/04/2009 VL>25    CD4>762 CD4%>37
08/25/2009 VL>25    CD4>823 CD4%>37
10/21/2009 VL>25    CD4>1025 CD4%>34
03/13/2010 Vl>25     CD4>745  CD4%>34
04/06/2010 VL>25    CD4>877  CD4%>35
Norvir/Comb/Lexiva

Offline risred1

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  • Posts: 419
  • My Source for Supps - www.newyorkbuyersclub.org
Re: peripheral neuropathy pattern
« Reply #16 on: March 18, 2007, 10:17:26 PM »
http://newyorkbuyersclub.org/resources/all-about-supplements/index.html is a search engine for commonly used supplements for people with HIV, you may want to look at some of these supplements and their potenrial benefits they may, and I repeat, may help.

One line of thought is to follow diabetics who suffer from PN as well. supplements such as Alpha Lopaic Acid and other anti oxidents may help. Alwasy tell your doctor, some of this stuff interacts with meds!

 
risred1 - hiv +
02/07 CD4 404 - 27% - VL 15k
10/07 CD4 484 - 31% - VL 45k
05/08 CD4 414 - 26% - VL 70k
01/09 CD4 365 - 23% - VL 65k
05/09 CD4 291 - 23% - VL 115k - Started Meds - Reyataz/Truvada
06/09 CD4 394 - ?% - VL 1200 - Boosted Reyataz with Norvir and Truvada
07/09 CD4 441 - ?% - VL 118 - Boosted Reyataz with Norvir and Truvada
09/09 CD4 375 - ?% - VL Undetectable - Boosted Reyataz with Norvir and Truvada
12/09 CD4 595 - ?% - VL Undetectable - VIT D 34 - Reyataz/Truvada/Norvir

 


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