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Author Topic: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????  (Read 16236 times)

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Offline whizzer

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  • Posts: 363
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #50 on: February 20, 2007, 11:44:08 PM »
Well said, JK,

These are mere epidemiological terms.  HIV or AIDS, it makes no difference in how you will manage your disease.  Don't sweat the definitions.

Bocker,

The CD4 percent is calculated first, then multiplied times the total lymphocyte count to determine the absolute CD4 count, as explained here:  http://www.hivandhepatitis.com/hiv_and_aids/test/lab4a.html

It is a very nice explanation of how they do it.

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #51 on: February 21, 2007, 12:51:33 AM »
Wesley,

I know how crazy I can get around shit like this, so the best advice I can give is to remember to breathe and let your feelings happen.  Do remember however that whatever your T-cells may be, you felt healthy yesterday and you are still healthy today, so do whatever follow up is needed and then figure out the next steps.  I think a retest is very important (but you know that).  If the absolute CD4 goes back up, great -- if not -- just move forward and lean on folks here.  Try not to focus on the AIDS label (easier said then done, I know), stress can also lower your CD4s, so try whatever you can to relax a bit before your next draw.

For clarity -- someone said that the absolute count is based on the %age and I believe that is backwards - although I've never done t-cell testing - so I could be wrong, I'm pretty sure that it is done with Flow Cytometry which, I believe, counts the t-cells.  The abs count can move alot because of the number of lymphocytes that you have can change, but the CD4% tends to remain more stable because it is a combination of the total lymphocytes and the absolute number of CD4s.  Hope that didn't muddy it up.   :-\

At any rate -- my thoughts are with you -- I hope you've heard back from the nurse about a possible transcription error (maybe 319 vs 139??).

Hugs,
Mike


Hey Guys,

I had it confirmed that as much as I'd hope the person doing the lab work was dyslexic it was indeed the correct lab number as far as that goes.

I've been on the phone and have not eaten or showered today so I'm sure I look like a complete mental patient.  : )   

So, oh boy.   I did speak with the nurse and she actually felt the result was  out of the ordinary so we are going to redo the tests tomorrow hopefully.   

I apologize for not replying to email and I think I'm just completely exhausted.   

My gut feeling is that those labs are WRONG.   The 139 doesn't match 30%.     

I've racked my brain over this.   

This can't be right or otherwise I have some new supervirus or something completely out of control.

I know a bit about various other lab results having worked in insurance.   So, I finally convinced the nurse to go over my profile completely over the phone.   Apparently, there is nothing that stands out except for slight drop in white blood cells........nothing big.

So, I was on the phone with people I know and trust for advice on a multitude of issues.   

Still, it's depressing to explain to your family that you have a technical AIDS diagnosis and what the difference is etc. 

This doesn't add up to me or anyone else.    It sounded like a horrible mistake or whatever.    However, having gone over every single aspect of my life from a month ago I was  wondering what had changed?   What did I do wrong?   

Leme just say, I've said fuck it to the stop smoking issue right now. ; )

Definitely having a drink as well.    I figure might as well be in extra terrible shape for the next labs cause every time I did all the "right" stuff I got the worst results.

I don't care if anyone thinks I'm overly dramatic or wants to dismiss my issues as "anxiety".   Bullshit!    Those are my feelings and I don't think they were unwarranted with an AIDS diagnosis this morning.

So, sweeping through all the crap.   I thought why did this happen?    Sometimes the most logical reason is the simplest.   Over and over I went through my mind and went over medical history etc. and IT HIT ME.

On Feb 9th, the day I took the new labs at the lab downstairs from the first doctor there was only one thing different I did that no one else has considered or advised me on.

The day I had my labs done I'd had the 2nd shot for HEP A vaccine within aprx. 30 min. to 1 hour of having my bloodwork drawn.   Both the vaccine and the bloodwork were drawn out of my left arm within no more than 1 hour apart.

Right now, I believe this could very well explain why I now have an "AIDS" diagnosis.    NO ONE including the entire freaking staff was alert to that or even thought of that as perhaps being the explanation.

Maybe I'm all wrong and just grasping for straws, but from what I've seen the 30% does NOT match an AIDS diagnosis????????

I'm not sure if it's a LAB Fuck Up or a Staff/doctor screw up.   I'm not even sure if either is true. 

So, regardless I'm having complete redo.   Either way, things look bad.   

ANYONE ELSE HAD A HEP. A vaccine screw up labs and give them an AIDS diag. ?

This is the only thing which I could think of that makes sense.

Thanks you guys,

Love Wesley

PS.  Sorry, I'm like all over the map with emotions as this plays out and likely won't have any answers unless some of you know if that shot in the same arm could have caused me to have fucked up counts that don't match anything I've had before??????????????

« Last Edit: February 21, 2007, 02:29:48 AM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline bocker3

  • Member
  • Posts: 3,386
  • You gotta enjoy life......
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #52 on: February 21, 2007, 07:33:06 AM »
Good morning Wesley,

Hope you are feeling a bit better after a night's sleep.  The unfortunate truth is, even if your repeat shows an increase in CD4, you'll probably never know what happened.  Maybe lab error, maybe vaccine induced, maybe just a real biological anomaly, maybe (insert any possibility) -- but in the end, you have to look at the big picture. So, I'm hoping for a better repeat for you.

Whizzer --

Thanks for the link -- it was a good explanation of the flow cytometry. 

Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline Cliff

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  • Posts: 2,645
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #53 on: February 21, 2007, 07:48:58 AM »
I must disagree with Cliff.

In 1987 the  CDC published it's defining elements of the AIDS diagnosis (MMWR1987 36 supp 1S).  This one was based solely on clinical presentation, that is, what OIs you had.

In 1993, the CDC updated it's definition (MMWR 41 RR-17) to include ANYONE with a CD4 count below 200, OR a CD4 percent at or below 14, and ALL HIV infected persons with what they term an "AIDS defining illness".  To see this list, use this link
Thanks for the correction.  Oh well, I guess I have AIDS too.

Offline racingmind

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  • Posts: 236
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #54 on: February 21, 2007, 10:05:48 AM »
Hi Wesley.

I had the Hep vaccine also.  My ID doctor said to make sure that I had my blood draw BEFORE getting the shot as to not mess with the CD4/VL test results.  I had them done on the same day, but I got the blood draw done first.....

Amazing that the so called professionals where you go weren't thinking the same thing.  I'll bet that is the reason for your results.  I think you'll know more after your retest.

I'd reconsider the smoking thing....no matter what, smoking kills CD4 cells...that's a fact.  Have a drink if you must, but if you have been off the smokes for a while, it would be a shame to backslide there.

Keep us posted;)
Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline Ihavehope

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  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #55 on: February 21, 2007, 10:12:19 AM »
Hi Wes

Hope you went to get your blood drawn this morning and you will be in my prayers today. Everything is going to look much better soon.

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #56 on: February 21, 2007, 12:20:54 PM »
Thanks everyone,


You know when I had a 200 point drop in 2 months last year 627 to 409 I told my doctor at that point I felt like I wanted to start meds.   I said at this rate I will have no t cells left.    He said "it doesn't happen like that."   Well, apparently sometimes it does.

His crabby nurse called me back this morning.   I asked her about the HEP A. vaccine.   She didn't feel this could be the reason for the drop (probably cause she's the one who gave me the shot) but that my doctor had agreed to have all lab work redone.

I go in at 1:30 today to have em drain my blood once again.  Have an apt. next Wed w/ Doctor Know It All ; )

I don't personally care about the AIDS label for myself.   That is the least of my concerns.   My issue is the massive drop of 215 points in one month coupled with the 7% increase in %.   Clearly, this warrants some concern.   

So, my doc went by the standard stuff, but originally he shared another few examples of how the numbers decline etc. over time with me.    Uh, well, mine have not lived up to his high expectations I guess.

I'm sure I went through a good pack of cigarettes and a few coctails last nite.    I want my next labs to come out normal.   I can hear it now,  "We're sorry, but your blood has secretly been replaced by Folger's Crystals" ; )   Although, in my case they'll probably say wow all we got was nicotine tar and Absolute Vodka ; )

I agree with everyone who said a retest is in order.   Regardless, I won't be waiting for the outcome before starting meds now.   Wednesday, we'll discuss whether Atripla or the Sustiva/Truvada combo may be the choice.   I've done my homework so far on those and think for my schedule etc.  Atripla is the best choice right now for me.

Really appreciate all those opinions and ideas and thoughts.   My next lab test clearly won't be much of a concern at this point ; )

Love,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline egello

  • Member
  • Posts: 899
  • cb
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #57 on: February 21, 2007, 01:08:02 PM »
hey wesley,

being a newbie myself, can't give you a lot of support on this. however, being an aids patient, i can tell you that its really no big deal, tee hee....

i look hotter than i have ever looked currently and my energy level is amazing. i work, lift weight and get laid, although there is something up with my erection level....

besiedes that, those are just number and they seem to have protocols down to make you well again. no biggie, and i shoudl konw becuase i was freaking out just a few months ago too and i laugh about it now.

take care, and hope everthing is well down there.

my ex who is also hiv poz went to school in austin and loves it there...
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline Mike89406

  • Member
  • Posts: 206
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #58 on: February 21, 2007, 01:35:28 PM »
Wesley

I have gone through a similar experiance. I went from 350 to 126 but my percentage was at 28 and fell to 23 thats not bad 14% is considered AIDS/Advanced HIV Disease nowdays.

The CD4 numbers dont tell the whole story, and frankly after thinking meds would jump me right back up they didnt as fast as I would have liked. A year now and I havent seen 200 on my labs yet however it was due to radiation therepy and a live virus I acidently took..But I understand that yes with a lower CD4 number most people get stressed even myself. I thought there was no hope however the fact remains that I'm responsible for taking care of myself, not anyone else.

Now I just cant worry anymore its toio much for my immune system, and after 2 labs on meds and getting my hopes up I cant. Even though I've been on Septra pills since last summer i just have to be strong and keep striving.

Theres a very good chance that the numbers will get back up but I cant worry about it anymore, Not too mention I quit smoking for my own good maybe that contributed to my numbers staying low anyways we have to just be patient I understand but understand that CD4 is not a true assesment of you're health. Every doctor and specialist has told me that the CD4+CD3 Lymphocyte percentage is a more accurate reading.

I was under the belief that while healty before my lower numbers and meds I could depend on propholaxis and supplements and vitamins seemed to work a little. But when you're immune system is compromised to a certain level we have to change our perception and be more serious about our health, I know many times I was in denial or wouldn't think of my condition, however everyone has his/her day when we get that wake up call its up to the individual how we respond and deal with the outcome.
« Last Edit: February 21, 2007, 01:40:36 PM by Mike89406 »

Offline poet

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  • Posts: 934
  • Poet living and working in Central Maine
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #59 on: February 21, 2007, 03:41:35 PM »
Hey Wesley,  you sound calmer today, which is a good sign.  I am glad that you are getting the labs redone today.  I would also support your starting meds. if you feel that you need to do so, before getting the labs back.  I waited until the 200's but others here have posted in the past that they started with great long term results much earlier.  I hope that you will also sort out where the problem lies, whether it's your doctor, his nurse, the combination or that they, too, were thrown off base by this for some reason.  Best, Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline Longislander

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  • Posts: 2,486
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #60 on: February 21, 2007, 05:13:13 PM »
Hey Wesley, I'm glad you 're getting retested, have the appt with Doc next week, etc. I'm sorry if you won't have the new results back by next wednesday (?) but I think you're ready to start the meds , mentally, no matter what the outcome.

The smoking thing~ understandable, but tomorrows a new day~

My last labs showed a drop by 109.  Of course it concerned me, and I wondered, too, if the pneumonia shot I got BEFORE the lab draw could have caused this. I never got that answer, but I suppose it's always a possibility. I go for a new draw next week.

Now stop drinking and smoking so much. You can do plenty of that while you're enjoying your company this coming weekend!
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

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  • Posts: 815
    • HIV Discussion Group on Myspace!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #61 on: February 21, 2007, 05:59:12 PM »
Wesley

I have gone through a similar experiance. I went from 350 to 126 but my percentage was at 28 and fell to 23 thats not bad 14% is considered AIDS/Advanced HIV Disease nowdays.

The CD4 numbers dont tell the whole story, and frankly after thinking meds would jump me right back up they didnt as fast as I would have liked. A year now and I havent seen 200 on my labs yet however it was due to radiation therepy and a live virus I acidently took..But I understand that yes with a lower CD4 number most people get stressed even myself. I thought there was no hope however the fact remains that I'm responsible for taking care of myself, not anyone else.

Now I just cant worry anymore its toio much for my immune system, and after 2 labs on meds and getting my hopes up I cant. Even though I've been on Septra pills since last summer i just have to be strong and keep striving.

Theres a very good chance that the numbers will get back up but I cant worry about it anymore, Not too mention I quit smoking for my own good maybe that contributed to my numbers staying low anyways we have to just be patient I understand but understand that CD4 is not a true assesment of you're health. Every doctor and specialist has told me that the CD4+CD3 Lymphocyte percentage is a more accurate reading.

I was under the belief that while healty before my lower numbers and meds I could depend on propholaxis and supplements and vitamins seemed to work a little. But when you're immune system is compromised to a certain level we have to change our perception and be more serious about our health, I know many times I was in denial or wouldn't think of my condition, however everyone has his/her day when we get that wake up call its up to the individual how we respond and deal with the outcome.

Hey Mike,

Really appreciate you sharing your experience and insight.   The interesting part here is your count and % dropped.    For some odd reason my % jumped up 7 % to 30%.   Not consistent in my case, but guess I'll see.

Well, I had not only the HIV tests redone, but everthing.   I decided to use my right arm this time to see if it's any luckier.   I'm starting to wonder about that lab cause the girl there could barely use a computer.   I made sure I watched the labels on those cause I didn't want any more issues. ; )

I dropped by one of the ASO's to get some other information.  They all really friendly and all.   I wanted to find out what to do in the event I lost my health insurance cause I'd have to sell my house to pay for meds with the outrageous costs, and I don't want any more issues.   They weren't much help because I have assets and apparently none of their clients are in my particular situation. 

On the bright side it was a beautiful day today and I enjoyed driving 90 on the freeway with my tunes blasting.   

My appointment will be next Wednesday and I should have the latest batch of results in.   Have a lot on my mind, but I got copies of the bad AIDS paperwork just in case I need them for future reference or some other mess.

Pretty much I'm worn out from lack of sleep, having another 8 or so viles of blood sucked out and the traumatic experience of getting those last bizarre numbers etc.

I've not changed my plans for company coming this weekend, but I'm so tired today from everything I think I'm just gona crash.  Tomorrow is another day.

Thanks for all the help, advice and commentary.

SO, we'll see if the Hep A vaccine caused my AIDS or if it was my own stupidity for listening to two separate HIV docs who advised me not to take meds.   

If I had it to do over I would have just started back when my counts hit 409.   Now, if those numbers turn out to be correct no telling how long it will take my CD4 counts to return to a decent level.

The labs hopefully will be in by Wednesday and I'll probably have a bottle of pills which could have prevented all this additional drama.   

Take care all!

Wesley
« Last Edit: February 21, 2007, 06:02:02 PM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Teresa

  • Member
  • Posts: 1,753
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #62 on: February 21, 2007, 07:34:30 PM »
                         

Im glad you are keeping your plans for the weekend. Have a great time with your friends and try not to stress too much.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline Mike89406

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  • Posts: 206
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #63 on: February 21, 2007, 10:44:56 PM »
Wesley,

I had 350 or so CD4 in Oct 2005 28% VL 12,000 Well My work was administering the flu mist nasal vaccination in Nov 2005. No one at work except the head guy knows I'm HIV+ anyways I didn't know the mist was a live flu virus I took it , and they forgot to document it in my medical record as they were giving 99% of workers the mist or shot as well that day.

In Dec 2005 I developed a dull ache in my right tectsicle thought it might be a hernia at first then was referred to a urologist. Found out after several tests I had a tumor on my right test. Had the thing removed with surgery in Jan 2006 had to heal up then off to radiation treatment from Feb-April 2006 in June I had my next labs done My CD4 was 126, 23% 45,000 VL I was crushed after being healthy most my life and physically fit despite smoking.

Started Septra/Bactrim in July 2006 Did follow up labs in mid Aug CD4 176, 24%, Vl 40,000  Ok so I thought this might be a good sign did labs again is Sept 2006 CD4 176, 24% VL 48,000. Started meds Sept 14th day after my B-day (Sustiva and Truvada) 1 month later CD4 166 31%, VL 131. All good except CD4. Then labs in Dec 2006 CD4 166 24% VL Undetectable. What do i do? Its apparent that theres nothing I can do right now. It has been a roller coaster year. My doc mentioned that they used a different lab facilty in Decmeber so the numbers may not have been as accurate.

Some people will say the numbers or % wasn't horrible but I worried a little. It's my body All except last year I have always been healthy despite HIV I work out and never saw numbers below 350 in my 6 yrs of POZ. It took a while before I accepted it but that's life it happens to some. To add insult to injury I just recovered from Appendicitis and the appendix had to be removed 2 weeks ago hopefully that didn't affect my immune system too much.

The odd thing as of lately is I have been getting night sweats since after the operation almost every night (I haven't had night sweats since 2003-2004 when my numbers were between 300-400 t-cells)

Offline Queen Tokelove

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #64 on: February 22, 2007, 03:33:22 PM »
Hey Wesley,

I was wondering how you were holding up. I hope things get better with the next results. It's funny how people kind of go through the same thing. I just got my cd4 back and mine took a 100 point dive from 372 to 272. Not an AIDS diagnosis but damn. It's time to start the meds but I'm cool with that. This happened within 4 weeks. But anyhow back to you...I had that talk with my nurse too and funny yours says that it wouldn't affect it because mine says it would, that's why the space it out if I received a flu or hep shot. Keep your chin up....
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #65 on: February 22, 2007, 03:39:24 PM »
Hey Wesley,

I was wondering how you were holding up. I hope things get better with the next results. It's funny how people kind of go through the same thing. I just got my cd4 back and mine took a 100 point dive from 372 to 272. Not an AIDS diagnosis but damn. It's time to start the meds but I'm cool with that. This happened within 4 weeks. But anyhow back to you...I had that talk with my nurse too and funny yours says that it wouldn't affect it because mine says it would, that's why the space it out if I received a flu or hep shot. Keep your chin up....

hey girl

Sorry to hear your CD4 drop. Yea, it looks like it's time for da meds. You should do well on them just like me, just don't think about it so much. Keep us posted with your events.
Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Queen Tokelove

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #66 on: February 22, 2007, 04:08:22 PM »
hey girl

Sorry to hear your CD4 drop. Yea, it looks like it's time for da meds. You should do well on them just like me, just don't think about it so much. Keep us posted with your events.
Al

I apologize for the brief hijack Wesley....Ihave, I'm not stressing it at all. I was all psyched for the meds a few months ago, nothing has changed other than the addition of 2 more pills.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #67 on: February 23, 2007, 03:48:31 PM »
Hey Queen,

Don't worry bout a hijack ; )   

Thanks for all the shared stories and opinions to all.   Yes, I'm still very anxious and have way too much on my plate, but I'm working on handling several things at once.   I think that's enough to stress anyone out, but I can't do anything till next Wednesday anyway.

So, I've gotten my house ready for my guests this weekend, working on other stuff and trying to put this out of my mind.   

To be honest it was stressing me out more from a few choice comments and what not here and the last thing I need is more stress ; )

I haven't fallen apart, but I focusing on other things.   I don't have high hopes the labs are wrong even though the overwhelming majority of people believe they are.    When I was first diagnosed the doctor at the time told me 50% of the tests came back false positive so you can imagine that stress nightmare.   I won't let myself go through that again.

Anyways, I had ALL labs redone including all the regular medical tests to check for other junk.   It's not just a matter of "anxiety".   I would prefer to be proactive and avoid any potential pitfalls I can in the future.   I realize some things I can't control, but the things I can do to eliminate future problems I will.

Really do appreciate all the well wishes and information.    I probably won't be logging back on here again until I know more.

So, in the meantime I'm just gona put this as far back in my mind as possible and party like a rock star this weekend ; )

Hope you all are well & everyone's doing great.

Have a great weekend everyone!

Love,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #68 on: February 26, 2007, 12:57:01 PM »
Wow, just when I thought things couldn't get any worse.   LOL, when it rains it pours.

So, as I mentioned I intended to party like a rock star this weekend.   Mission Accomplished!

Ugh, I was stressed out from those horrible lab results.   So, I tried to put that in the back of my mind and go on with weekend plans.

Well, lucky me.  I found out my ex is apparently in another relationship.  Not like I wish him any ill will, but didn't exactly cheer me up ; )

So, to top it off I found out someone I'd casually been dating has apparently been seeing someone else cause his friend let it slip.  Again, no great loss, but I think I would have made Britney look good after my weekend.  ; (

Anyways, what I've learned this weekend is that HIV+ guys are just as sneaky and cut throat as the rest of em.   So, I'm fairly disgusted with gay men once again.  However, I've a few cards here from a party so I guess I'll see how those pan out ; )

Oy, well I did more shots at that party and not quite sure how I ended up making out with the host, but I had a lot of shit going down so mix that with enough alcohol and I could've been the next Anna Nicole ; )  Yikes!   I just hope no one posts anything on YouTube.  Grrr. 

Well, I guess Wednesday will be here and I'll be starting some damn meds so probably no more partying for me for a while.   Thanks all ya guys for the emails.   

Peace!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #69 on: February 26, 2007, 01:03:38 PM »
hey sexy

when do you get your new lab results?

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #70 on: February 26, 2007, 01:20:01 PM »
Hey Al,

The labs are supposed to be in by Wednesday.   Either way I have to pick out meds and deal with all that fun stuff.   I seriously suspect something was wrong with that last set cause I am not sick.

Aside from the massive hangover yesterday I've been fine.  Other than the now massive stress and some other disappointing news which was amplified by lots of alcohol I've really been feeling decent.

I read your other post about "fast progressors."   You know there seems to be no rhyme or reason in any of this.  I know people with amazing counts who are sick and others with really low counts that are doing fantastic.

My emotions have been all over the map this last week.   The meds weren't the huge issue, but having to rush into them is what is bothering me. 

Regardless of the outcome I will be posting the info. here.   

Thanks for sharing your story as well.  I've read everything and know you got a lot on your plate as well.

Love,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline libvet

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #71 on: February 26, 2007, 09:08:03 PM »
Wesley,

I don't what to say that hasn't already been said.   I won't pretend to say I know how you are feeling.  My own experience was slightly different.   

The important thing is that you are doing the right thing now by having the test redone because it seems to be an outlier.

Other than that, just try to keep in mind that no matter which way the second results go, it's just a different chapter in what you are dealing with. 

You are here and you are bright and have the tools at your disposal to deal with this, even if you don't feel like you do at the moment.  The fact that you are at this website shows that.

Just hang in there and try to keep things as normal as possible for yourself until you get your new results.   I know it sounds trite and cliche, but keeping yourself busy will make the time between now and then go a whole lot easier even if you don't feel motivated to do much more than worry.   You ARE going to worry and obsess about this for the time being, just try not to let it beat you down too much. 

I'll be keeping my fingers crossed for you that this is just a simple lab mistake and I have absolutely no doubt that no matter what, you'll come through this like a champ.

Michael


Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? NEW INFO!
« Reply #72 on: February 27, 2007, 06:04:47 PM »
Hey Michael, Al and all you guys,

THANK YOU ALL FOR HELPING ME KEEP MY SANITY!  BIG BEAR HUGS TO EVERYONE! ; )

Ok, so I got the latest results just now over the phone.   I don't have AIDS anymore I guess.   Supposedly, my doctor is going to attempt to explain what the Hell happened with those prior results tomorrow.

New counts:

CD4 274   Percent:  26%   VL  18,500    Not so bad considering I smoked and drank my way through the week stressing out over that other nightmare.

Thank God I never listened to that other doctor who told me to wait till May to come back.   

I just exhaled a HUGE sigh of relief.   Yes, I know MEDS are in my very very near future, but at least I'm not in a mad rush to figure out which ones and having to take other crap on top of them.

I'm convinced the HEP. A vaccine in the same arm less than an hour before is the reason for this although we shall see what explanation my doctor trys to peddle to me tomorrow.   

Either way, I am very happy with those numbers from 12 days prior.   Could be the Hep. vaccine lowered my other numbers as well.

I have no idea, but am greatly relieved I didn't hear I had no Tcells left as it leaves more options open still, but considering all the stress and anxiety I would not recommend to anyone to wait it out for years without closely keeping tabs on those labs.   

From what I've noticed there seems to be a trend that those who wait so long have a harder time building their counts back up.

Although 274 wasn't terrific I was quite relieved I'd not gone in the reverse direction.   Whew!   This calls for a drink to celebrate! ; )

Anyone else care to speculate what doc is gona say?    I don't think any of them will ever acknowledge it was the vaccine that caused me all this stress and trauma, but I'm very curious to hear the latest excuse or theory from em.

You guys were all great.  Sorry if I was bitchy or came across wrong, but that "NEWS"  scared the Holy Crap out of me.   And, it's also very frustrating to feel defeated after you've done all you can to keep those labs good.

Thanks you guys for walking me through it!    Now my deal is figuring out which meds to go on and I'm actually looking forward to them now because I feel like I'm actually doing something that will help get me back to my life completely. 

I want my damn life back (ALL of IT) and I think it's time to take control back!   Hopefully, Meds will be the catalyst I need to do that completely!

Much Love and Big Hugs to All,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #73 on: February 27, 2007, 06:11:45 PM »
YAY!!!!!



I know the numbers aren't fabulous but at least they went up. I am sure it was the Hep A vaccine that contribute to the blip, my nurse told me that even a small paper cut can at times alter your lab results. 274 is not a great number though, have you decided about your med options? are you gonna go for another set of labs?

Your % is good but it did decrease.

Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Buckmark

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #74 on: February 27, 2007, 06:18:22 PM »
Wesley,

Your CD4 count certainly showed a dramatic increase.  I'd be willing to bet the doc
will say that the low number on your previous test is somehow related to your Hep
vaccincation.  Truthfully, I don't think the doc will really know for certain -- and a
good doc would admit that to you.

I'm sure you must be very relieved at this nice rebound.  It gives you a little
breathing room to make your decision about medications.

Cheers,

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Andy Velez

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #75 on: February 27, 2007, 06:20:50 PM »
That is certainly much happier news, Wesley.

I can understand why you're thinking about meds. At the same time if you can tolerate the tension and feelings about it, given the ups and downs you have experienced, I am wondering if you might be well off to wait for another round of numbers before making a decision to see what direction things are going in.

It would be good to see how another time period of overall good health care in your daily life, good nutrition, rest, excercise and other good stuff might positively affect your numbers.  

In the meantime you can certainly enjoy the relief of the happier set you received today.

Cheers,
Andy Velez

Offline dtwpuck

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #76 on: February 27, 2007, 06:21:04 PM »
Wesley... whew... congrats.
I had an aberrant test once because of a vaccine.  The test was actually taken as part of a study to watch the fluctuation of cd4's during vaccines.  So, it completely stands to reason that this happened. 

Big hug... 

Floating through the void in the caress of two giant pink lobsters named Esmerelda and Keith.

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? NEW INFO!
« Reply #77 on: February 27, 2007, 08:25:49 PM »
Wesley,

Your CD4 count certainly showed a dramatic increase.  I'd be willing to bet the doc
will say that the low number on your previous test is somehow related to your Hep
vaccination.  Truthfully, I don't think the doc will really know for certain -- and a
good doc would admit that to you.

I'm sure you must be very relieved at this nice rebound.  It gives you a little
breathing room to make your decision about medications.

Cheers,

Henry


Hey You Guys,

Al, Thanks!   I feel like I just won an Oscar ; )   Hell for all of my emotions over the last week I think I should have one ; ) 

Andy, yes you are correct that now I have some breathing room I've not jumped to a Med decision entirely.  One more set of labs possibly, but it's definitely in my near future.   At least it's something I can consider more now.

Puck,  You are just great always.   Thanks so much to you for everything.

Henry,  Also a huge thanks for your insight all along.

To be honest I was so happy today that I got this news and that my number 1 guess as a lab mistake/ abnormality came true I feel like I have a new lease on life.   I don't want to break that lease by taking risky behavior and making ANYMORE bad decisions based on what others have told me.   Advice and shared experiences are how I learn.   I've read a lot of stuff, but like others have said I may have HIV, but it doesn't have me.  I really like that train of thought.

So, tonite I'm definitely celebrating that news.  It wouldn't surprise me if the vaccine also lowered my overall numbers, not like they were spectacular before, but I think this is pretty good evidence that you really do need to pay attention to your own health and make your OWN decisions because it really is up to You.

Unless, I hear some other drastically horrible news tomorrow my doctor is going to have some explaining to do.    Mostly, I'm more concerned right now about which med combo to choose.   My primary thoughts right now are that I want whatever will knock this virus on it's fuckin ass and kick my counts into high gear without taking anything else out of my life.   Sound familiar?

But for tonite I'm very very relieved.   I'm glad I covered every possible outcome and this time I got lucky.   I'm not gona wait around for another next time.  No thanks!

Cheers you guys!

Love ya,

Wesley
« Last Edit: February 27, 2007, 09:40:53 PM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Queen Tokelove

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #78 on: February 27, 2007, 10:27:18 PM »
Wesley~~

Congrats on the new numbers. Our cd4 count is about the same, mine is 272, it took a 100 point swan dive. I still haven't gotten my viral load back. I am about to take the step of starting meds after my appointment, that is if my diabetes is in check.

I am wondering why your doc won't admit that it was likely that the vaccine affected your numbers. I have been told by my clinic nurse that it is possible and it happened to me about a few months ago after getting my flu shot. It's just a matter of timing it better next time.

As far as the past lovers go, don't even sweat it. It's better you found out now than later or maybe this person who let it slip has some type of personal interest? I go by the saying, believe none of what you hear and half of what you see. Jealousy is out there, ya know. I would just focus on the company you have coming and have a good time.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline tigger2376

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #79 on: February 27, 2007, 10:49:21 PM »
you and I may not always agree but I'm so pleased your numbers are better. I ddn't think what people said worried you, maybe I've misjudged you but don't let the ratbags get you down
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #80 on: February 27, 2007, 11:37:59 PM »
Wesley, AWESOME, I'm glad it was wrong.!! Seems like you're on the right thought track now.

I went in for my draws today, and she told me I needed hep A and hep B shots. I said NOT TIL AFTER THE DRAW!! I asked her if my last #'s could have been affected by the pheumonia shot the phlebo. gave me just before the draw, and she said absolutley not~

I'm very happy for you~
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #81 on: February 28, 2007, 02:46:01 AM »
you and I may not always agree but I'm so pleased your numbers are better. I ddn't think what people said worried you, maybe I've misjudged you but don't let the ratbags get you down

Hey Tigger,

I really do appreciate your positive thoughts.   While we some how got off on the wrong track I would NEVER wish anyone bad test results here.   Not you, not anyone!   We've had differences on our views and that is true.   However, regardless of how I may perceive someone here I'd hope no one has to go through what I have or you have or any of us have.

I've been on the phone a lot today.  Tonight, I actually broke down in tears of happiness.   No one could rain on my little parade from this right now no matter how hard they try.   

Yeah, I know what I have coming my way, but this was for me a big lucky break I needed.   However, I know that everyone here won't be as lucky or they will be dealing with so so much.   I don't typically get overly emotional, but yes I'm teary eyed over my own relief as well as what I know what others are trying to cope with.

I just realized I'd left the computer on once again.   Yo, I will most definitely sleep well again and regardless of my outcome tomorrow don't think for a minute I have forgotten about you guys.  May sound corny, but to me each of you represents a piece of my life whether you know that or not.   Whether we argue over bullshit or try to outwit each other I know we are ultimately coming from the same place.

With that, I will say good nite and wish you all the best!

Love,

Wesley
« Last Edit: February 28, 2007, 02:52:25 AM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Regretsafew

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #82 on: February 28, 2007, 10:39:31 AM »
Hey Wes,

Glad to hear you are better with your situation.  Good luck on your  dr's  appt. 
Been thinking of  you and hoping you are okay.   

Hugs to you man.

Joey

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #83 on: February 28, 2007, 06:51:46 PM »
Wesley,

Your CD4 count certainly showed a dramatic increase.  I'd be willing to bet the doc
will say that the low number on your previous test is somehow related to your Hep
vaccination.  Truthfully, I don't think the doc will really know for certain -- and a
good doc would admit that to you.

I'm sure you must be very relieved at this nice rebound.  It gives you a little
breathing room to make your decision about medications.

Cheers,

Henry


Hey Henry,

Oh he denies that to the bitter end.   We got into it a bit in the office today, but if you ask me the problem was the nurse cause she's been avoiding my calls ever since and I think regardless if it was or wasn't the cause it's just plain stupid to give anyone a vaccination right before labs are drawn.

After proclaiming his 17 years of experience we moved on to the medication issue.   Well, in all his brilliance he neglected to put the dosage on the Sustiva.

So, I was all planning to start Sustiva/Truvada tonight.   Now we have a big pharmacy fuck up.   The crabby nurse calls me up on my home and cell phone.   She's about as dumb as dirt I think.   I left a clear message why I'd called.   Apparently, she is just trying to kill me by stressing me out.

So, I freaking lost it with her on the phone.   Here I am at the pharmacy and she calls me back instead of the pharmacy wanting to know why they couldn't fill the prescription.   So I tell her again.   She still doesn't get it.   Finally, I say well do I have to write the damn thing myself or what?

Talk about ridiculous.   So the incompetent nurse who vehemently denies the Hep. Vaccine screwing up my labs can't even understand basic English.  I'm wondering if it was even a Hep Vaccine administered now.

As it sits now the pharmacy can't fill my prescription.  The nurse doesn't care and my pharmacy has to order the drugs.   So, I guess we will all just sit around until she gets off her lazy ass and gets my chart and/or asks doc if he wouldn't mind figuring out which of the 4 dosages I was suppose to have.

Fucking I really hate stupid people and I'm am more convinced now then ever that there was some huge screw up cause my labs have never taken a dive like that.   Doc had some half assed explanation which made absolutely no sense whatsoever. 

But I won't harp on this latest mistake.   It does say a lot to me when a doctor has to resort to "I've been dealing with this for 17 years"   

Ugh!   So, I pointed out my labs before when I had the drop from 627 to 409 when I wanted to start meds.   I was worried that something like this would happen.   When I brought up the fact he said "It doesn't work like that."   Oh Hell, his precious ego was bruised. 

Anyways, now thanks to advice of waiting I will forever have a technical AIDS label which I said thanks for that too!   You could say we weren't exactly bonding today.

So, moving on we went over meds.    I agree that Sustiva/Truvada was what I'd like to try first since I had to figure that out too.   I suggested this because Atripla as a beginning med could cause other issues.   However, if the Sustiva Truvada combo is ok then I can switch to Atripla.

In the meantime my Tcells continue to dwindle away as the incompetent nurse has to walk 20 feet or so to find my chart and I wouldn't want her to strain herself.   God forbid she may actually burn a calorie or two.

Can ya tell how happy I am today?   

Jesus Christ!   
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline dtwpuck

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #84 on: February 28, 2007, 07:08:51 PM »
Man... I think it's time for a new doctor. 
You probably will want to start sustiva over a weekend anyway.  At least from my experience, I was a bit whacked out for a few days. 

Once this blows over, we can exchange stupid doctor stories.  Mine here in Detroit... oh my is he unorganized.

What are you going to do to calm yourself?
Floating through the void in the caress of two giant pink lobsters named Esmerelda and Keith.

Offline Miss Philicia

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #85 on: February 28, 2007, 07:16:35 PM »
I've never had vaccinations done before blood work was drawn.  That is just such a no-no I thought.
"Iíve slept with enough men to know that Iím not gay"

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #86 on: February 28, 2007, 07:30:00 PM »
Man... I think it's time for a new doctor. 
You probably will want to start sustiva over a weekend anyway.  At least from my experience, I was a bit whacked out for a few days. 

Once this blows over, we can exchange stupid doctor stories.  Mine here in Detroit... oh my is he unorganized.

What are you going to do to calm yourself?

LOL!   Well, to be honest I'm sort of happy he made this obvious mistake on the prescription.   Apparently, his 17 years of experience haven't helped in writing proper prescriptions either.

I'm gona watch a movie, have several strong drinks and smoke!   I probably won't be watching Philadelphia though!  Maybe John Q or Damaged Care, The Rainmaker are more fitting ; )

I'm absolutely convinced Nurse Ratchet was behind the scenes causing drama cause everyone knows she gave me the vaccination.   No telling what it was now.  I think it's possible she gave me any number of things.

Yeah Philly!    NO ONE I can find seems to think having a vaccination just prior to labs is proper protocol.    Anyways, I better triple check my prescription to make sure I don't get Viagra or some other fun surprises. 

Talk w/ ya'll later.   Nancy Grace is on and I want to see her belittle people and take out some aggression ; )



Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline RAB

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #87 on: February 28, 2007, 08:00:51 PM »
Wesley

I've been following this thread and reading everything that you and the other members have written.

First, regarding the issue of the Hep vaccination causing the dramatic decline in your previous labs.  Since the vaccination and blood draw were done almost simultaneously, it's virtually impossible that was a contributing factor.  I respect completely the fact that you are convinced otherwise, but the reality is what it is.  For whatever reason, the previous labs were so far outside any sort of expected results, they were obviously suspect.

Second, your most recent labs, while showing an increase from the previous, were very likely impacted by the Hep vaccination.  So those labs also should be viewed with some skepticism.  Or at least with the acknowledgement that they probably were not a realistic representation of your actual condition.

Third, it seems like you don't have the best relationship and/or respect for your current health care provider or the support staff.  If that's truly what you are experiencing, then you have got to find a different doctor.  You need to work with these people as a team to successfully receive the quality care that being HIV + requires.  If you aren't comfortable with them, if you aren't confident with the information they are providing, then run from them as fast as you can.  This decision, above deciding to start meds, is the most important and practical one you can make.  You just have to believe me on this. 

Finally, about this issue of having an official AIDS diagnosis.  The labs were obviously a mistake.  But even if they weren't please don't invest too much emotion in the terminology.  The term AIDS, while it carries a great deal of emotional impact, in actuality doesn't mean all that much.  So many, myself for instance, have been officially diagnosed as having AIDS, yet here I am with an optimally controlled viral load and a CD4 count in the 700s. 

I admire your tenacity and strength, those qualities will serve you well as you begin your treatment regimen.  Just try and not invest too much energy in the unnecessary emotion, that won't do much at all.

Keep us posted on how you're doing.

Good luck buddy.

RAB

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #88 on: March 01, 2007, 12:19:31 AM »
yeah, I'd say it's time for a new doctor/staff.
I asked the PA yesterday if my pneumonia shot administered before the lab draw which produced the drop last time could have been the culprit. She also said no, it was too close, and that a week or so later, it would have affected the lab results. Who knows?

Take care of yourself, and enjoy the movie.
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #89 on: March 01, 2007, 11:46:43 AM »
Wesley

I've been following this thread and reading everything that you and the other members have written.

First, regarding the issue of the Hep vaccination causing the dramatic decline in your previous labs.  Since the vaccination and blood draw were done almost simultaneously, it's virtually impossible that was a contributing factor.  I respect completely the fact that you are convinced otherwise, but the reality is what it is.  For whatever reason, the previous labs were so far outside any sort of expected results, they were obviously suspect.

Second, your most recent labs, while showing an increase from the previous, were very likely impacted by the Hep vaccination.  So those labs also should be viewed with some skepticism.  Or at least with the acknowledgement that they probably were not a realistic representation of your actual condition.

Third, it seems like you don't have the best relationship and/or respect for your current health care provider or the support staff.  If that's truly what you are experiencing, then you have got to find a different doctor.  You need to work with these people as a team to successfully receive the quality care that being HIV + requires.  If you aren't comfortable with them, if you aren't confident with the information they are providing, then run from them as fast as you can.  This decision, above deciding to start meds, is the most important and practical one you can make.  You just have to believe me on this. 

Finally, about this issue of having an official AIDS diagnosis.  The labs were obviously a mistake.  But even if they weren't please don't invest too much emotion in the terminology.  The term AIDS, while it carries a great deal of emotional impact, in actuality doesn't mean all that much.  So many, myself for instance, have been officially diagnosed as having AIDS, yet here I am with an optimally controlled viral load and a CD4 count in the 700s. 

I admire your tenacity and strength, those qualities will serve you well as you begin your treatment regimen.  Just try and not invest too much energy in the unnecessary emotion, that won't do much at all.

Keep us posted on how you're doing.

Good luck buddy.

RAB

Hey RAB,

Well thought out response and I'd agree with you.   My prescription is filled supposedly although nurse never called me back.  Big surprise. 

Regarding doctors:

I did get rid of another woman here who was absolutely terrible.   She's very well known and people love her for whatever reason.   I'm not one of her fans.   She claimed my fatigue was in my head.   Three weeks and she never transferred the few records back to my other doc.  At one point she thought I might have a "Staff Infection".   Did a test and no one from her office returned my calls.  When I finally did get her receptionist on the phone she said, Oh well you didn't have it so we didn't bother calling you.   

I'm not going to put this woman's name here, but I seriously wonder if she perhaps has more than doctor's ego going on.   You can't get a word in edgewise with her and I think she's hopped up on something.   

Her advice in January:   Don't take any meds and come back in MAY with a CD4 of 354. 

I believe her superior attitude helped to give my doc. her personal opinions while my records from her office consisted of a 2 page fax.


So, current doc has some issues, but I don't want to burn bridges because if I loose health insurance he is one at the free clinic as well.   His one nurse pretty much sucks.   She's bitter because I just called her boss directly when she wouldn't return calls.   

At this point, I have my med RX and now I'm calling the shots.  Why on Earth this doc. would want me to continue waiting is beyond me.   

I've got the names of 2 other doctors so I wll seriously consider interviewing them now.   ; )

Good Grief!   

So, I am going to pick up my drugs.   Not about to take any MORE unnecessary risks.   If you want to have a technical AIDS label for life just listen to both my HIV docs.  Medication is YOUR CHOICE!

While I don't believe this label is anything more than a label it may be one you get too for waiting and listening to all the brilliant "experts."

Wesley




« Last Edit: March 01, 2007, 12:08:50 PM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Regretsafew

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #90 on: March 01, 2007, 02:30:53 PM »
Hey Wes,

Good luck on your meds man.  The nurse at my clinic told me not to have labs drawn  until about 30 days after a vaccination.  Although she didnt give any details about it but she said something about it stimulating the CD number and it would not be accurate.   Anyways  I hope you are well. 

Have a great weekend. 

Joey

Offline xtremepms

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    • Cono
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #91 on: March 01, 2007, 05:52:10 PM »
Hey Henry,

Oh he denies that to the bitter end.   We got into it a bit in the office today, but if you ask me the problem was the nurse cause she's been avoiding my calls ever since and I think regardless if it was or wasn't the cause it's just plain stupid to give anyone a vaccination right before labs are drawn.

After proclaiming his 17 years of experience we moved on to the medication issue.   Well, in all his brilliance he neglected to put the dosage on the Sustiva.

So, I was all planning to start Sustiva/Truvada tonight.   Now we have a big pharmacy fuck up.   The crabby nurse calls me up on my home and cell phone.   She's about as dumb as dirt I think.   I left a clear message why I'd called.   Apparently, she is just trying to kill me by stressing me out.

So, I freaking lost it with her on the phone.   Here I am at the pharmacy and she calls me back instead of the pharmacy wanting to know why they couldn't fill the prescription.   So I tell her again.   She still doesn't get it.   Finally, I say well do I have to write the damn thing myself or what?

Talk about ridiculous.   So the incompetent nurse who vehemently denies the Hep. Vaccine screwing up my labs can't even understand basic English.  I'm wondering if it was even a Hep Vaccine administered now.

As it sits now the pharmacy can't fill my prescription.  The nurse doesn't care and my pharmacy has to order the drugs.   So, I guess we will all just sit around until she gets off her lazy ass and gets my chart and/or asks doc if he wouldn't mind figuring out which of the 4 dosages I was suppose to have.

Fucking I really hate stupid people and I'm am more convinced now then ever that there was some huge screw up cause my labs have never taken a dive like that.   Doc had some half assed explanation which made absolutely no sense whatsoever. 

But I won't harp on this latest mistake.   It does say a lot to me when a doctor has to resort to "I've been dealing with this for 17 years"   

Ugh!   So, I pointed out my labs before when I had the drop from 627 to 409 when I wanted to start meds.   I was worried that something like this would happen.   When I brought up the fact he said "It doesn't work like that."   Oh Hell, his precious ego was bruised. 

Anyways, now thanks to advice of waiting I will forever have a technical AIDS label which I said thanks for that too!   You could say we weren't exactly bonding today.

So, moving on we went over meds.    I agree that Sustiva/Truvada was what I'd like to try first since I had to figure that out too.   I suggested this because Atripla as a beginning med could cause other issues.   However, if the Sustiva Truvada combo is ok then I can switch to Atripla.

In the meantime my Tcells continue to dwindle away as the incompetent nurse has to walk 20 feet or so to find my chart and I wouldn't want her to strain herself.   God forbid she may actually burn a calorie or two.

Can ya tell how happy I am today?   

Jesus Christ!   

Hey Wesley,
I am not sure how things work there, but from working in a doctors office, I can tell you, only the doctor can make certain decisions.  Many times we are made to look like idiots because the doctor does not give the right orders. 
Lucky for me, we have gone to electronic prescribing, and the doctors I work for allows us to have full prescribing abilities.  Before, we had to page the doctor and if and when he called back we were allowed to call in prescriptions.  Your nurse may well be a bitch, but just keep an open mind on this.  If the doctor says give the Hep vac, we may question him in private, never in front of a patient, but we do as we are told to do.  It is  a no win situation, if you question the doctor to much, you may lose your job.  If you don't, things like this happens.  Many days I go home crying and wanting to quit, but you don't quit a job until you have another, and not many jobs here in Michigan anymore! 
Cono

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #92 on: March 02, 2007, 07:21:25 PM »
Hey Cono,

Oh, I'm glad I don't work at a doctors office.  You know the older nurse is much nicer and I like her.   I don't think I'll ever let the one inject me with anything again though.  She has a poor attitude, and the pharmacist knew more about the meds than she did for certain.  Pharmacist was way nice and went over everything in as much detail as I needed with Patience and a smile.

I'll admit my emotions have been all over the map these last couple weeks.

So, last night Raggs and I went to visit my brother.   I took over my two little bottles of pills so he could see what $1600 buys ya here in America.   So I told him about my technical AIDS diagnosis.  Before I could explain it all he got all weepy eyed and that made me cry.   He doesn't quite understand all that much about HIV and asked me how long I was gona have to take these pills and when I said forever that seemed to upset him.

Anyways, we ended up having some drinks and were chit chatting about all kinds of stuff like potential side effects.   I have Sustiva and Truvada.   They aren't as big as I thought they'd be.   Sort of remind me of Flintstone vitamins ; )  The Truvada are a pretty shade of blue.   Sustiva looks more like a beige multivitamin.   They don't look scary!

Supposedly, I have to take these only at night together on an empty stomach.   My doc won't have it any other way, but the pharmacist disagreed about timing being a big ordeal and said I can have a light meal.    I'm wondering if it might be better for me to take these in the morning instead??????    I never eat breakfast anyway so as long as it's on an empty stomach what difference would it make day or night??????

I've never heard much about Truvada, but several people have spoken of vivid dreams etc. with Sustiva.   Dreams don't scare me really, but I've been known to sleep walk.   My mom is always worried I'm gona sleep walk and fall in my pool and drown ; )  Anyways, the sleep walking incidents typically only happen when I'm under a lot of stress.   This week qualifies so my brother is gona come over and spend the night tomorrow when I take these pills just so my mom won't be worried.  Now, I'm tempted to pretend to sleep walk and play some evil prank on him ; )

For all the horrible side effects I've heard about I'm really not that worried.   I don't think anything could be worse than Zoloft if any of you have taken that.  Ugh!  That was a long time ago, but my stomach felt as though I'd eaten a bowl of glass shards and I sort of passed out at work and freaked everyone out.  So, my hope is that this will be one big non event. 

Someone mentioned watching porn before bed to spruce up your dreams so I may give that a whirl.

Well, any last minute tips on the meds anyone?   

Thanks,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Nico

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  • Posts: 262
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #93 on: March 02, 2007, 08:51:20 PM »
Wes,
Take the meds and don't set yourself up for something that may/will not happen.  Shit, we all face new challenges in life.  Yes, this is new to you (meds), but not so new since you have been so involved with other HIV+ people through "my space", Aids Meds, etc. 

We all feel the same way.  We all are scared and afraid.  We don't want to take this shit and wish we could just be O..Fucking..K!

Be thankful you have access to meds.  Be thankful you have a place to vent.  I wish I only had to pay your price for meds.

Damn it, you are still accepting this.  I have - I had no choice.  I just don't want you to set yourself up for failure.

I have broken through the fear and you will too.  Times may be tough, but you have "us".

Peace and hugs.

Roger

 
Poz since 1990.

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #94 on: March 02, 2007, 09:17:02 PM »
no tips for you Wesley, just want to wish you every success with the meds.

oh, one tip-you may not want to watch the porn if your bro's gonna be in the room with ya~ ;)
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #95 on: March 02, 2007, 10:10:03 PM »
Wes, I take Atripla, so the same advice goes for it as for Truvada and Sustiva.  Follow the suggestions of taking it right before bed and on basically an empty stomach (but drink lots of water with it) for the first week or two.  Then, you can experiment to see how much or what you can eat prior to taking it.  I've found that eating peanuts late at night causes me to have a horrible hangover-like headache the next day; I think that's the Sustiva.  I can eat as much meat, cheese, chips, cookies, whatever and I feel fine, but I stay away from peanuts at night.  Each person is different and the list of side effects is pretty much what is possible to experience, but not what is likely.  I've said it before, but my Atripla could almost be a placebo the side effects are so mild.  I did have another really funky dream last night that made absolutely no sense, but I've not had any bad dreams. 

Sometimes, the Atripla (Sustiva?) makes me feel dopey if I stay up a while after taking it and first thing in the morning if I don't get enough sleep.  I'd rather sleep through that and deal with it during the day, so definitely take it at night right before bed. 

Good luck with it; you'll likely do fine.  When you get your first labs after being on the drugs for a month or so, I think you'll feel that they are worth it.  I know I did.  I have labs scheduled for Monday, and I expect to be undetectable.  Take care.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline AustinWesley

  • Member
  • Posts: 815
    • HIV Discussion Group on Myspace!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #96 on: March 04, 2007, 12:45:25 AM »
Hey David,

Thanks for the tips.   Damn it!  I fell asleep watching a movie earlier so now I'm gona pop my pills in an hour or so here for the 1st time.

So, I am behind on my CSI shows (the Vegas ones) and think I'm just gona watch those.  LOL, no telling what my dreams will be about, but I won't think about it.   

Well, if I pop on here in a few hours trying to solve a murder or something you guys will know why.

Thanks Long and Roger!  ; )

Either I will fall asleep or I'll be back here later.   Wish me luck!

Sweet Dreams!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Longislander

  • Member
  • Posts: 2,486
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #97 on: March 04, 2007, 03:56:05 AM »
hope it's morning, and your dreams were all sweet and mushy~ ;)
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

  • Member
  • Posts: 815
    • HIV Discussion Group on Myspace!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #98 on: March 04, 2007, 01:15:33 PM »
LOL,  I am so disappointed.   I didn't have ANY dreams!

I slept for like 9 hours and this morning I really don't notice any issues.   Maybe a little slight dizziness and a bit groggy.   So, I don't know if there is some cumulative effect or what, but I feel fine.

As someone that knows all too well anxiety issues and panic attacks Sustiva and Truvada haven't done anything yet.

I was a little groggy this morning and just a tad dizzy (almost enjoyable) like a slight "high".

Tonite will be 2nd night so we'll see if anything changes, but quite frankly my biggest concern was some giant anxiety attack or feeling disconnected with reality, waking up with night terrors, that kind of thing.

So far NOTHING has happened!   I've had much much worse side effects from  things like Metabolife and antidepressants.

For all the bro ha ha I have nothing to report that special.    Again, I don't know if there's some cumulative effect yet, but so far for all the fireworks my first night was a BIG FAT DUD!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline tigger2376

  • Member
  • Posts: 462
  • too bad to die youngish!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #99 on: March 04, 2007, 07:03:58 PM »
So far,so good!
Said I hoped we'd be raising a glass to no side effects in a week....roll on friday!
Long may this continue for you
Jo
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

 


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