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Author Topic: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????  (Read 16167 times)

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Offline AustinWesley

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UPDATE:  See my last post.  What do you think???????

Now I know why my doctor didn't return my call back with my labs.   I am shaking right now because of this.  Why did I ever listen to him and believe I could go for years or even months?

Now I HAVE AIDS?

How the fuck could this have happened?

My last test results are below, this info I finally got out of the nurse as the worst wake up call of my life a few minutes ago.

My heart is racing and I am totally freaked out.

MY CD4 is now 139   AIDS?

Hands are shaking as I type this..........  How could this happen in a MONTH?

Right now I need serious help, and I can't understand this.   Don't listen to any doctor telling you this crap of years and years.

Wesley
« Last Edit: February 21, 2007, 01:28:07 AM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Rainbow1

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #1 on: February 20, 2007, 01:17:38 PM »
Wesley , after my reply to alex about stopping my meds, i have had alot  of replys that i am trying to understand, when i was first diagnosed i was given the choice to start meds or not i choose to start before my numbers went that low, my numbers have dropped below the 200 since i have been on the meds but i have been through three different chemo treatments for cancer and my numbers as i posted in the other post are now 208. so please just take care of yourself and given time your numbers will come back up

Offline allopathicholistic

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #2 on: February 20, 2007, 01:22:37 PM »
Your percentage (30%) is healthy.

Offline newt

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #3 on: February 20, 2007, 01:29:14 PM »
Hey Mr Austin

bummer

I think I would panic, I did panic when I got the CD4 result of 8 after being in my 300s, it was a mix-up, so..

First, get a retest, labs make mistakes, and CD4 does bounce around too, with a % of 30 a mix up/odd result for the day seems likely (CD4 of 139 would normally be a CD4 % of about 8%)

Second, 1-3% of people need treatment real soon, like within a year, this everyone gets 10 year before meds thing is a fib, docs should be more honest

Third, treatment works, it works whether it's 1 yr before meds or 15, and while it may be coming sooner than you thought, it will still work

Take care

- matt (not here, but here) the newt
« Last Edit: February 20, 2007, 01:31:18 PM by newt »
"The object is to be a well patient, not a good patient"

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #4 on: February 20, 2007, 01:32:58 PM »
Austin

Research tells us that CD4 cells are the numbers we should focus on mostly, and that is true BUT there are other factors as well such as VL and %. I am so sorry to hear about your CD4 counts falling to that number but your % does not indicate that you have AIDS. Usually (I am not an expert) you need to have a percentage lower than 15% and less than 200 CD4 cells.

I know how u feel right now and all I can tell you is to try to stay calm babe. You will be ok and listen to what your doctor tells you. I am guessing he told you that you have to start meds soon right? Ask your doc to put you on a phropholactic to avoid PCP if he hasn't told you yet. REMEMBER numbers go up and down and unfortunately your numbers right now went below 200, but they will go up again once you start meds. What is your VL right now?

the 5 to 10 year to get AIDS diagnosis is a bunch of bull. Now in days that is becoming less likely. Supposely they dont know why newly infected people CD4's are dropping so low so quick. Perhaps it could be that the older the virus gets the wiser it is and knows how to attack one's immune system.

Please keep us posted Austin, and please stay calm.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Lisa

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    • http://www.myspace.com/lisanowak58
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #5 on: February 20, 2007, 01:35:29 PM »
Aside from just having the shit scared out of yourself, you are no less healthy at this moment than you were an hour ago when you were posting in other threads.
Please don't let the word, or the number frighten you so much.
Alex has a point, your percentage is still better than mine, and I have been undectable with a 500/600CD4 for years.
Don't Panic!! You ARE going to be OK. Try to calm yourself down a bit, take some breaths, and look at it with your analytical mind. You KNOW this isn't going to suddenly kill you tonight, or tomorrow. I am sorry that the doc was a bit too patronizing of you however.
Gather yourself, do some research, and have your questions ready for the next visit, because you will need to be your own best advocate when it comes to the consideration of a med coctail.
I'll PM you.
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #6 on: February 20, 2007, 01:41:13 PM »
The % and CD4 count don't make much sense to me. I think there must have been a slight mistake in the lab. Your % is actually very good for not being on meds yet.

That is why when my doc told me 200 CD4 cells and wanted me to wait another 2 weeks I said F**k it, let me start now I dont wanna see them fall lower.

I am pretty show there was a blip and your CD4 cells are higher.

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline skeebo1969

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #7 on: February 20, 2007, 01:42:17 PM »

   Wes...

   Shit happens and I know first hand because mine crashed pretty much the same way.  It is quite the wake up call I know...  Like you, I was told I would go at least two-three years before I ever needed meds.   Like you, my numbers pretty much showed this might be true.   When I was given  this dreadful AIDS diagnosis my Cd4's were 137 and 13.3%.... Like you, I freaked and did not understand.... Like you, I was scared of the meds...  Now like me, you are going to have to make a very serious choice.   I hope like me, the meds agree with you and you experience little/no side effects.  As allopathicholistic said your percentage shows you will hopefully make a good rebound with the meds...  Shit I did and you can too...  Try to relax.  God I use to hate when people would tell me that.

  Time to get over your fears Wes....

  Thomas
  (Who hates to see you in fear)
I despise the song Love is in the Air, you should too.

Offline Lisa

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #8 on: February 20, 2007, 01:44:12 PM »
I agree with (not here) Newt. Get another set of labs before you hit the panic button. Did you know that your CD4's can vary at any point in a given day?  I try to always make sure my doc visits are at the same time of day.
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline Life

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  • Member 2005
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #9 on: February 20, 2007, 01:48:12 PM »
Wes, as everyone elese has said... Dont Panic!   30% is the numer Im focusing on...  Now with that Wes,  yes, you are nearer to that next step you need to think about.... But you have already prepared for that.   Im curious as to what your doctor has explained to you about cd4 vs % relationship and what his recomendations are as far as retesting on your cd4... Your getting alot of hugs right now....  Feel em...

Love,
« Last Edit: February 20, 2007, 01:50:38 PM by Eric »

Offline Queen Tokelove

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #10 on: February 20, 2007, 01:49:18 PM »
Wesley,

Don't give up sweetie. I'm going with the others and say it has to be a mistake and you need to get some more bloodwork done. Nothing is perfect and it could simply be a mistake. Not taking this lightly mind you cause if it was me , I would be going off too. But if it happens to be correct, then it's time for meds. It's not over, not by a long shot, don't you throw in the towel and just give up...FIGHT...As you know I'm here for you if you want to talk away from these forums....Just say the word..
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline AustinWesley

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    • HIV Discussion Group on Myspace!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #11 on: February 20, 2007, 02:18:46 PM »
Wesley,

Don't give up sweetie. I'm going with the others and say it has to be a mistake and you need to get some more bloodwork done. Nothing is perfect and it could simply be a mistake. Not taking this lightly mind you cause if it was me , I would be going off too. But if it happens to be correct, then it's time for meds. It's not over, not by a long shot, don't you throw in the towel and just give up...FIGHT...As you know I'm here for you if you want to talk away from these forums....Just say the word..

Im trying to not burst into tears.   Uh, too late.  ; (

I'm so fucking angry.   

I've finally got the not idiot nurse on the phone and remained calm and she agreed that the numbers are all over the place.   I'm waiting for a call back to see if they can get me in today for a retest because even she doesn't get the CD4 at 139 and my % jumps 7 points.

So, I already knew meds were planned, but I am assuming they'll also want to give me Bactrim as a precautionary measure?

The other nurse felt this counted as an emergency deal to get me in by tommorow.

I've told my sister while I remained calm and here we go again.   "It must be a mistake in the labs"    I've heard all that before.  And now I will be expecting a call from my mom.   Oh good news mom, I paid attention to all these doctors who told me to wait and now I'll forever be labled with AIDs if I don't die in the next month anyways.   What am I supposed to tell her?

So now my 2nd worst nightmare came true.

I'd had friends coming in for the weekend looking forward to a lot of fun.   Sorry, guys, I'm having an emotional meltdown cause I got AIDS and can you please stay at a hotel.

I am absolutely furious with both doctors for advising me not to take meds from that last time.   THIS IS WRONG.   I don't believe in misleading people like that. 

So my doctor is gone today and I can hardly wait for not only the meds but all the other crap they'll now want to add on top of Atripla or whatever.

I'm pretty strong usually but this just has done me in.   

DON'T BELIEVE it when people continue to promote Oh, you'll be fine for years.

It's still a surreal nightmare to me and I wish I'd gone with my own decision back before when I had a 200+ point drop in 2 months, but was talked out of it.  I'm angry with myself.

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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  • Yes, I'm a cry baby, AND WHAT?
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #12 on: February 20, 2007, 02:32:29 PM »
Austin

Don't be angry at yourself. It is not your fault and the doctor's can not predict how much your CD4 cells will increas and decrease. I was furious as well when my CD4 cells fell from 240 to 200 in a 3 week period even after my doctor said she would bet money that my counts would increase and instead they decreased. My % went from 22% to 16% and she didn't even have the courage to tell me it was an AIDS diagnosis all she said was "it is still in the 200's but your % fell to 16% so I am putting you on Bactrim and you will start meds in 2-3 weeks once I receive your geno type results".

Did you get a flu or pneumonia shot recently? Did you get a cut anywhere in your body? These can be some factors that can lower your CD4 counts. When do you get to talk to your doctor and discuss your labs and meds? If you still are gonna get another lab test then you should consider still being put on bactrim, "just in case".

It's ok to cry and feel hurt, let it all out.

AL
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Maestro

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  • Posts: 225
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #13 on: February 20, 2007, 02:42:57 PM »
Austin,

You've given me a lot of good advice about insurance, so let me try and return the favor.  My Uncle has had "aids" for 7 years.  His cd4 has never gone above 200 and his percentage is around 11-12%.  What I have learned from this site is that a lot is not understood about the #'s.  Low #'s do not translate in to poor health.  At least from my experience with him.  It seems many people have started meds with way lower #'s and are doing fine now. 

I think the most important number is undetectable viral load and a couple months on meds should put you right there at undetectable.

M

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #14 on: February 20, 2007, 03:00:16 PM »
Well, after the lovely wake up call to try and keep information from me for another week and a half I weeded that out of her.

Now, the other one feels it's an emergency.

I guess they all went to lunch cause either the doctor gave me the worst advice of my life or the lab results are wrong.

I've been reading everyone's advice and opinions, rest assured I'll be glued to this computer until I'm on the phone or get the labs redone.

I'm not sick at all (other than from the emotional trauma right now).   I don't have any cuts, can't even recall the last time I sneezed.   I'd actually not been feeling overly fatiqued.  I'd done nothing different that I can think of. No drastic loss of weight or gain.

I'd had a genotype done shortly after diag. and it came back clear.   All other stuff was normal.

I don't think considering the history of my labs that anyone can make sense out of it.  To me, that CD4 and percent drastic change from a month ago does not add up?

So, I don't want to tell my mom yet cause I'm afraid she'll have a heart attack.   Just yesterday I was talking with her and they'd called her in for some diabetes related drama.

I'd not had labs done at that lab before.  This is the only thing different.   It happens to be located in the same building as my doctor who is MIA and apparently trying to sort out a reasonable explanation over the next 10 days for what the Hell is going on.

Thanks for the PM's too.   I'd like to let everyone be able to hear what all of you guys say here so this doesn't happen to anyone else.

Lab mistake?  Maybe?  Aids in a month?   WTF!

All I can wonder now is if I have cancer or something?   

Love ya guys for the advice and thoughts, even the one's that I've never talked with.

Wesley

Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline racingmind

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #15 on: February 20, 2007, 03:20:08 PM »
Wesley,

Was there anything unusual about the day when you had the blood drawn?  Were you stressed, etc?  I have heard that things like that can have an effect on numbers.   I always try to be in a good place mentally when I go for blood draws.  Your percentage is really good...which is why I think it might be a fluke....I'd retest right away..and then again maybe 2 weeks later.....  Hang in there Wesley.  Try not to freak out until you have more information.  We all know that nothing is written in stone where HIV is concerned....

We are here for you....if you wanna chat...go to thinkpoz....
Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #16 on: February 20, 2007, 03:44:31 PM »
Racingmind (That's what mine's doing)

No, there was nothing.  Based on the prior counts in Jan. I'd told the doc I saw a clear trend and wanted to start meds.   Since the prior doc hadn't bothered to do complete panels on all my other junk liver function, blood sugar etc.   I suggested the set of labs be done right there prior to starting meds so I could properly track "Progress"!

So, 8 or 9 viles of blood later I get this mixed up mess. 

I'd gotten to that office early and wasn't overly stressed.  After 5 sets of labs it had become a routine.   

Although, I had a prior incident at another lab testing site which I don't use anymore.   They just drawn everything and I'd gotten home.  Phone rang and it was they'd dropped some viles of my blood in the centrifuge machine so I had to had to go back.   That was a long time ago.

But at least thier final results were better than this lab.   

Now, since no one is calling me back I can only assume:

1)  Major Lab Fuck Up
2)  I have some other disease like cancer too and they are scrambling to figure out how to tell me
3)  I have a bizarre strain of HIV or it went undiagnosed for 15 years and all the HIV tests I had were all wrong
4)  My virus is bipolar but has been on a manic streak, that just went depressive
5)  The nurse just likes fucking with me.
6)  There is a God and he wants me dead.
7)  My doctor doesn't have the balls to admit he doesn't know shit and is affraid to tell me he was wrong in telling me it was a bad  idea to start meds.

I'm sure as I sit here with still no call back that something is wrong and if I do have cancer or some other God Awful nightmare I don't know how I will handle it.

Other than the seroconversion bit which was bad I've not had really any physical changes other than what I'd described repeatedly as a serious fatigue all the whole time.   The female doc I got rid of was the one who suggested that was all in my head and based on my last numbers told me to come back in MAY!

How many T cells would I have left by May?   Should we take a poll?

Maybe I'll do a poll on this,  or better yet I should do a poll on all of those other options and let everyone here take a shot at it ; )

I don't know what to do, laugh, cry, scream  (another poll)

Seriously, I hope that someone here can come up with some rational scenario?

Love,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline heartforyou

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  • I must be a survivor in many ways...
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #17 on: February 20, 2007, 03:53:56 PM »
Wesley,

now, take a deep breath first...

I had 7 CD4 and I felt great... so what, even if the count is correct, you are not going to die tomorrow.
Maybe you need some shock therapy like reading my figures to realise there is nothing utterly wrong.
Your percentage being at 30 is great.
In my 20 years of HIV I learned some important lessons concerning figures :

1.What counts is how I feel....no big help if my T count is at 950 and I feel lousy.
2. CD counts can go up and down. Even the place and time where the sample was taken can give a difference in counts.
3.Percentage is what counts the most.

I hope you feel a little bit better now. Rely a bit on us oldies. We all have been there.

Hermie, who has gone from 1200 to 7 and up to 950 again....

Hugs to you Wesley. You will be fine.
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #18 on: February 20, 2007, 04:05:08 PM »
1)  Major Lab Fuck Up Great Possibility based on your CD4 %
2)  I have some other disease like cancer too and they are scrambling to figure out how to tell me Not Likely
3)  I have a bizarre strain of HIV or it went undiagnosed for 15 years and all the HIV tests I had were all wrong Not likely, you may have had it a little longer than you estimate BUT if you had your yearly test then likely not
4)  My virus is bipolar but has been on a manic streak, that just went depressiveYea your virus is a crazy mutha*ucker
5)  The nurse just likes fucking with me.No, you can sue her.
6)  There is a God and he wants me dead.You will not die any time soon
7)  My doctor doesn't have the balls to admit he doesn't know shit and is affraid to tell me he was wrong in telling me it was a bad  idea to start meds.
Your doctor was "hoping" to see an increase in CD4 cells but it didn't happen but now YOU have to make the decisions.
« Last Edit: February 20, 2007, 04:33:24 PM by Ihavehope »
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline RapidRod

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #19 on: February 20, 2007, 04:08:11 PM »
If you never have had an OI with less than a 200 CD4, you don't meet the definition of AIDS.

Offline racingmind

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #20 on: February 20, 2007, 04:14:13 PM »
Yeah Wesley,

Listen to those who have been there.  They know what they are talking about.  I know it's hard waiting for the call back.   I know it's harder to say 'I have AIDS' than it is to say "I'm HIV positive".   They are just words.  It's just a classification system.  Even if it turns out that your CD4 Number is correct, you are going to get the help you need.  BREATHE.   It's going to be alright.  You are not ill.   You are not going to get ill overnight.  Make a cup of green tea and sit down in a quiet room and concentrate on something else for now.
A good book or a engrossing movie.  Give your mind a break from all of this.  The call will come and you will be better able to listen and comprehend what they have to say.   It's the best advice I can offer.

It could be nothing, remember that.  Labs fuck up all the time.     
It's going to be okay.

BREATHE.
Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline David_CA

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #21 on: February 20, 2007, 04:21:51 PM »
Wes,
Unless you know when you were infected, you may have already been fine for years.  Your numbers are much better than mine were when I ended up sick as hell with PCP.  Although the numbers are important, your health is what matters most, to me, and you haven't mentioned any OI's or anything else wrong.  I think all the Dr's can do is make an educated guess about how quickly ones numbers will take to dip into the 'worry zone'.  Also, I kinda think they say all the positive things they say to keep us from freaking out, to sort of 'ease' into the whole HIV thing. 

Even if  it's not a lab mistake, can't our CD4 numbers jump around quite a bit?  I'd definitely want another set of labs run, and I certainly wouldn't tell my family too much until I knew for SURE that the numbers were correct.  As RR said, I think you have to meet two criteria to be diagnosed with AIDS. 

Take care and do what you can to not stress too much (easier said than done, I know) until you get more info.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline Andy Velez

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #22 on: February 20, 2007, 04:32:25 PM »
OK, Wes.

First of all, you're not going to fall through a black hole. Even if it feels like that's happening right now.

Given the news you're dealing with, it's totally understandable how you're feeling. I'm glad you can come here and vent.

Wesley, who's available to you for medical care? Maybe the most important thing in your health arsenal is to have a doctor whom you have faith in and whom you can work together with as partners to keep you well.

Make yourself a cuppa tea or something healthy and satisfying. Bit by bit this will get dealt with.

Really.

Keep us posted on what's going on. We're listening and we care what happens to you.

Cheers,   
Andy Velez

Offline Boo Radley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #23 on: February 20, 2007, 04:58:39 PM »
Wesley,

As others have said, what matters is your current state of health and the desirability of having blood work another time before deciding to start HAART.   By definition I also have AIDS because my CD4 count was 169 in October, 2004.  A definition of AIDS based solely on a CD4 count <200 is a "convenient" way of saying you need to watch what's happening with your body and HIV.  If you haven't had any other symptoms it would appear your immune system is still strong enough to hold off infections but no one can tell at exactly what CD4 count your immune response might be compromised.   Get blood work done again before deciding to start meds.   What is your viral load?

Take some deep breaths, try to relax, tell yourself you will be all right and believe it.  If you need to start HAART you seem to be well adjusted to the idea of beginning.  You're going to be OK one way or another.  You're at one of the most difficult stages some of us go through with HIV, having an unacceptably low CD4 count but being otherwise healthy.  You know the other shoe could drop any day and a sniffle or sneeze seems ominous. 

I wish you the best of luck and hope your CD4 count is a blip and the next test is much better. 

As much as we all argue around here I think we try to support each other when the XXXX hits the fan for another member.   

Boo

If you never have had an OI with less than a 200 CD4, you don't meet the definition of AIDS.

Sorry to contradict you, Rod, but the CDC definition of AIDS now includes the single symptom of cd4s <200 -- it used to be cd4<200 and an OI but the definition was changed to reflect the fact that people at that stage of infection, with a baseline cd4<200, need to start HAART as soon as possible or the likelihood of an AIDS-defining illness occurring within varying time frames is probable.

Boo

String up every aristocrat!
Out with the priests and let them live on their fat!





Everything I do, say, think, excrete, secrete, exude, ooze, or write © 2007 Sweet Old Boo, Inc.

Offline dtwpuck

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #24 on: February 20, 2007, 05:12:32 PM »
Wesley,
This really sucks.  I am really sorry you have to deal with this so soon. 

I've always been told not to put too much credence in the CD4 count because they fluctuate so much.  But it's hard not to.  Really hard.

Right now you are dealing with a lot of difficult feelings.  Take a deep breath.  Try to remain calm so you don't make any decisions out of panic.  (not that I think you will)....

You are still OK.   You've received some bad news, but this is bad news that you can manage.  You will probably have to go on meds, and that's not so much fun, but many of us are, and only some of us are crazier because of it.    :-)

Sweet man, try to find someone to talk to, who will listen to you and let you vent.  Don't stop crying if you feel like crying.  You will get past it if you let yourself feel.

Many hugs,
Scott   
Floating through the void in the caress of two giant pink lobsters named Esmerelda and Keith.

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #25 on: February 20, 2007, 05:25:40 PM »
Wesley, wow , man this does suck. Go ahead and cry, and scream, and yell all you want. Then try to breathe deeply and relax. If the nurse will get you in to be redrawn tomorrow, you'll want to be a little less stressed.

Try to convince yourself this is a lab error, until you know differently. Your % and VL are pretty good. I don't know how long it takes to get your usual results, but mine only take 5 days. See if they can put a rush on it.

You were ready to start meds anyway. Perhaps you can get the script filled and start tomorrow nite, even while waiting for the results of the redraw. It would probably help ease your mind a little bit.

Let your weekend visitors know you're a little down, and let them help you.

If I were closer I'd come give you some hugs, and maybe, maybe take a few punches from you to let out the steam ;)

See if you can't find some friends down there to hold onto. Until this is cleared up, we're all here for you. You know how to reach me if you want to talk.

Me



infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline poet

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #26 on: February 20, 2007, 05:28:57 PM »
Wesley, it doesn't pass the sniff test to me, the cd4's dropping that far for no reason.  Having had off numbers myself because the technician forgot to shake the vials, I would assume, quite honestly, that the count is wrong, either not yours or the person couldn't count that day. 

I don't understand why, that said, you can't access your doctor today since what you need is a simple blood draw for your cd4's if not viral load, not access to your doctor.  If your doctor's office can't see you, is there a company which you can use in Austin, given your health insurance, etc.?  You wouldn't need an appointment and the sooner you get in, the sooner the results come back.  I will p.m. you as well.  Best, Win

Let me edit this post to add, for anyone new to the forums and new to the information here that we all need to focus on the long term pattern and not the blips, whether up or down.  Think of your results as numbers you put on a graph.  It's exactly like how we need to live our lives, with the bad days and the good days.  It's exactly like the stock market, with stocks moving up one day, down the next, sometimes in leaps and drops, other times incrementally. Matt is, blessedly, our science expert here, so read his post above. 
« Last Edit: February 20, 2007, 05:37:59 PM by poet »
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #27 on: February 20, 2007, 05:48:02 PM »
Hey Everyone,

Thanks so much.  Just for the record I do know when I was infected and that's a non issue unless somehow HIV tests have been inaccurate multiple times.

After a date rape, minus the date, 3 years ago I had monthly tests for an entire year to be sure I didn't have it.  That was in 2003 before moving to Austin.

Here I've had 2 relationships where we both were tested together and always negative.   Then I met the sociopath that gave this to me last year an went through the seroconversion.   I don't need any lectures on how I'm half responsible etc.   I'm well aware of my own stupidity for trusting that sick fuck.

So, I do know my history.  Let's not go there cause that one is stressing me out and I know people are trying to help.  And I also know that many don't know who, when or how and it really doesn't matter.   I think it's clear that I've admitted many faults and showed an obvious lack of good judgement.   One of my shortcomings isn't a faulty memory.

Things I've done:

Rationally and calmly explained it to both my sister and mom so as not to panic them.   Now I have Aids!   Can only imagine what is going through their minds, but lucky my family sticks together cause I really feel for people who don't have that support.

The doctor is out today.   They were supposed to call me back, but the nurse didn't and wanted the doctor to review this bizarre drop.  

I WILL have complete tests drawn again before any meds for my own sanity and so I can share them here for others who are going through this nightmare.

I don't have a huge fear about meds anymore and that was previously discussed and I'd planned to start after this set of labs regardless of the outcome.   Apprehensive yes.   With an AIDS diagnosis, much more worried do to the fact that none of us know how we will react.

So, I spoke with the other nurse who's supposed to go check the actual printed numbers to confirm the 139 and 30% which don't add up to me.   CD4 plumets and % jumps way up?  
Even she doesn't feel this is usual so she's going down to confirm to make sure someone didn't type it into the computer wrong because she didn't think it seemed correct.   I will wait for her call.

Regardless, I will have complete thing redone hopefully tomorrow morning or afternoon.   I still plan to take meds and just hope to the almighty Buddha that I don't have to add a whole cornucopia of other items to Atripla.

I had a genotype run right off the bat.  It's all clear.  Sometimes those don't really mean crap.    

I have had a wide range of emotions today.  

Had I started meds right off I wouldn't have been in this mess today.   Maybe a different one, but I can't think of that right now.

I'm LIVID that because I didn't listen to myself to start meds I will forever now be labeled with AIDS.    It's not like I care about that stupid label, but so many others do and I guess I'll just have to educate more people on that as well.

Well, I guess I've earned my ranks now for the Aids Club or do I have to have Aids for a set period of time?  Sorry, I'm angry and pissed at myself and no one here.  

So, the one gal is supposed to call me back to indeed confirm I technically have AIDS.

I am reading all of your responses here and appreciate each and every one of them.   No one should ever have to go through what any of us here have to.   I realize I'm very lucky to have some of the things on my side that I do.   I think maybe I have a fear that all of that could evaporate overnight like my T cells.

Much love,

Wesley





Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #28 on: February 20, 2007, 05:52:19 PM »
Wesley, if you don't hear from her by 15 minutes prior to the office closing, call her yourself, ok?
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline DanielMark

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #29 on: February 20, 2007, 05:52:21 PM »
First things first Wesley,

(((HUG)))

My suggestion is that you ASSUME nothing and wait till you can check out the facts. A mind under duress will come up with all kinds of frightening stuff. That's the last thing you need to be doing to yourself right now.

Daniel

MEDS: REYATAZ & KIVEXA (SINCE AUG 2008)

MAY 2000 LAB RESULTS: CD4 678
VL STILL UNDETECTABLE

DIAGNOSED IN 1988

Offline Cliff

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #30 on: February 20, 2007, 06:03:26 PM »
One lab result of 139 (especially with a % of 30) is NOT AIDS.  AIDS is confirmed counts of below 200 AND and OI, such as:

Pneumocystis carinii pneumonia
Toxoplasmosis
Tuberculosis
Extreme weight loss and wasting
Meningitis and other brain infections
Fungal infections
Malignancies such as lymphoma, cervical cancer, and
Kaposi's Sarcoma

Blips happen.  Your % (and lack of an OI) suggest that this is either a blip or a lab error.  But not AIDS.  Start meds if it will bring you comfort, but giving yourself a label, that isn't warranted, probably isn't going to make this situation any easier.

Offline Miss Philicia

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #31 on: February 20, 2007, 06:07:08 PM »
Err.. sorry I missed this thread earlier Wesley.  I can't add much more that's not been said.  Could be an error, might be right.  Then you go on meds and your numbers will go up AND YOU WILL BE MUCH BETTER.

I'd tell you to try and maintain an sense of calm but I know that's not realistic.  But still try to -- get some sleeping pills for the week.

Good luck.
"Iíve slept with enough men to know that Iím not gay"

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #32 on: February 20, 2007, 06:09:01 PM »
If you are going to get another lab test tomorrow then promise yourself that you will relax and not indulge in the "what if" and "OMG, I have AIDS". Rent some movies, ask your siblings to spend more time with you, exercise or do whatever can distract you from this. If it is going to bring you peace of mind talk to your doctor about starting meds or you can wait to see your new lab results. It sounds to me that you have done your share of thinking about meds so when you take the first pill think you will begin to battle the virus and your numbers will gradually increase. Distraction is key otherwise you can drive yourself mental. I went through this process alone and scared, you have the support of a great family so take advantage of this.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline StrongGuy

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #33 on: February 20, 2007, 06:10:17 PM »
You've received some great advice and all I would add is even if you don't feel like it, it might help in a small way to hang out with a friend or family and watch a movie or go out to eat. Of course it's still going to be on your mind but sometimes getting out and moving can help.

Oprah has a saying I think about a lot when I get worried that says "what you focus on expands." I know it's impossible not to focus on this right now because I remember like yesterday the anxiety you are having - but for me chatting with a friend or just getting out used to help a little bit.

You know were here when ya need us just reach out if ya wanna talk...

Peace...
Mike :)
"Get your medical advice from Doctors or medical professionals who you trust and know your history."

"Beware of the fortune teller doom and gloomers who seek to bring you down and are only looking for company, purpose and validation - not your best physical/mental interests."

"You know you all are saying that this is incurable. When the real thing you should be saying is it's not curable at the present time' because as we know, the great strides we've made in medicine." - Elizabeth Edwards

Offline gemini20

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #34 on: February 20, 2007, 06:10:55 PM »
Wesley,

Sorry that you're freaking out about the drop in CD4 numbers but like others have said you need to take a deep breath for a moment and focus on how your health actually is in reality. And in addition 30% is certainly not a level that would give me any cause for concern, it's three times what I have currently!

Giving so much energy and power to the 'AIDS' label is not conducive to remaining well and healthy. It's easily done though because of the <200 definition you have in the USA - if you lived over here in the UK you wouldn't have 'AIDS' unless you had an OI, so maybe that is something to think about.

I certainly went through huge anxiety when my counts first dropped below 200, thought it was the beginning of the end - how wrong I was - but so easy to do when someone somewhere has decreed that a certain number means something seemingly so dramatic!

I've learnt from experience that the numbers more often than not do not bear any relation to how I'm feeling. For example back in Feb 2002 my counts fell below 200 but by Sept 2003 my CD4 count was back up at 299, all without any meds and even having got bacterial pneumonia in that period.

It's perfectly understandable to freak out, be angry and upset by these circumstances but all I can offer from my experience is the perspective that says it's not the end of the world (even though it feels like it); mistakes can happen; and if it's the reality then you'll find your inner strength to deal with that.

Best wishes,

Emma
Diagnosed 11th September 1991
Current CD4 count 484 (26%); viral load undetectable (December 2011).
Restarting boosted Prezista 08/04/11

Offline bear60

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #35 on: February 20, 2007, 06:13:01 PM »
Wesley....
You get a big {{{{{{{{{HUG)))))))))))) from me too. Keep calm.
Poz Bear Type in Philadelphia

020501

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #36 on: February 20, 2007, 06:14:04 PM »
being one of the new guys around here and just beginning to learn about this stuff myself, i honestly dont have any advice to offer from the medical side and granted i dont know you like everyone else around here does, but we're all on the same team and i'm rooting for you just as hard as anyone.  try not to worry about it and take your mind somewhere else.  nearly impossible to do, i know, but stressing over it isn't getting you anywhere, especially when its just a wack lab job.   ;)  hang in there bud.

Offline jkinatl2

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #37 on: February 20, 2007, 06:15:26 PM »
I was diagnosed with AIDS in 1994. Hard to sustain anxiety for so long, ya know :)

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #38 on: February 20, 2007, 06:16:37 PM »
I was told by my doctor that they actually have someone sit down and count all the CD4 counts you have in a test tube one by one. Is this true?

Maybe the guy/girl who read the CD4 cells didn't bring her glasses into work that day or had a hangover. Could happen.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline thirtysomething

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #39 on: February 20, 2007, 06:32:25 PM »
Dude, you need to first stop saying that you have AIDS. You are torturing yourself.  Your percent is very high and I believe it's definitely lab fuckup. From what I have read in this 1 year, 30% CD4 = couple of hundred CD4 T-cells.

Go in for another bloodwork and if it turns out it's not officially AIDS, smack the nurse and change the doctor asap!






Offline whizzer

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #40 on: February 20, 2007, 06:34:53 PM »
I must disagree with Cliff.

In 1987 the  CDC published it's defining elements of the AIDS diagnosis (MMWR1987 36 supp 1S).  This one was based solely on clinical presentation, that is, what OIs you had.

In 1993, the CDC updated it's definition (MMWR 41 RR-17) to include ANYONE with a CD4 count below 200, OR a CD4 percent at or below 14, and ALL HIV infected persons with what they term an "AIDS defining illness".  To see this list, use this link

http://www.thebody.com/encyclo/aids.html

So there you have it.  If you are HIV positive and have had PCP, regardless of your CD4 count, you have AIDS.  Same with esophageal candidiasis, histoplasmosis,  esophageal candidiasis, and many, many more.  If you are HIV positive and have any one of these OIs, regardless of your CD4 count, you have AIDS.

I personally prefer the new staging method of describing your disease state, but the old AIDS term is still there.  And if you interpret it correctly, many of us here who are doing quite well meet the definition of AIDS.


That being said, WES, your CD4 number and percent just don't match up, and I suspect a lab error.  Now, their error may not be in the CD4 number, but in the percent, but that is unlikely, since the absolute CD4 count is calculated using the percent.  The only way they could match up in your case right now is if your WBC (white count) is very low.  I would do a quick new set of labs, not because it is an emergency, but for your own piece of mind. 

When you get your lab work done, have them fax you the lab report.  All the numbers of everything will be there for you to see.
Sometimes folks get in a hurry and read them wrong.

-Whiz


Offline J.R.E.

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #41 on: February 20, 2007, 06:54:30 PM »
Hey Mr Austin



First, get a retest, labs make mistakes, and CD4 does bounce around too, with a % of 30 a mix up/odd result for the day seems likely (CD4 of 139 would normally be a CD4 % of about 8%)

Second, 1-3% of people need treatment real soon, like within a year, this everyone gets 10 year before meds thing is a fib, docs should be more honest


Take care

-



I would also get a retest as Matt has suggested.



Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline RapidRod

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #42 on: February 20, 2007, 07:26:22 PM »
Boo, it states in the 2005 surveillance report if the CD4 is less than 200 with a % of less than 14. He has a % of 30. He needs to retest.

Offline ga1964

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #43 on: February 20, 2007, 08:03:36 PM »
Hi Wesley,

I'm new here and can't offer any advice as to your numbers, but the feelings you have expressed took me back to Dec. when I was told that I had tested HIV+ and due to my CD4 being below 200 I had AIDS.  My doctor put me on Atripla and I am also taking Bactim untill my CD4 count raises above 200 for atleast 6 months.  I'm trying to learn all the numbers and % and what they mean to my health, it's still very confusing to me.  I know the fears you are feeling and wish I could say something to ease them.  The best advice I got was to try to calm myself and know that there were others hear that are here for you.  Just knowing that someone cared helped me alot.

David.

Offline Peter6836

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #44 on: February 20, 2007, 08:29:49 PM »
Wesley,
I do not know as much as many others here. What I do know is that last December I tested negative this November 11 months later my CD4 count was 106.
When i went on the Atripla it made a world of difference. Keep positive, relax, stress is not a good thing.  Spend time with your wonderful family, just because you are catagorized with AIDS today does not mean that your CD4 count cant go up and you will not have AIDS a few months from now.
God Bless you, I will remember you in my prayers.
Peter

Offline Londonguy

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #45 on: February 20, 2007, 08:39:29 PM »
I know it's hard, honestly I do.  I was in exactly the same position you were last summer when I got enormously hung up on the AIDS definition I had just barely acquired.  It did my head in and I couldn't believe it had happened so quickly.   And it happened again a few weeks ago when I saw how low my CD4 had gone and how annoyed I was at one particular doctor who intervened from me taking meds at the last minute last summer because she thought I would rebound and I never did.

But you know what?  The sky didn't cave in, I didn't suddenly get over-run with OIs or collapse with exhaustion.  I carried on as normal,albeit with Septrin, and nothing has happened.  Please do not get hung on on that label, it doesn't do any good.  I've already said that I don't believe that the permanent label does anyone any good mentally (I understand some people need it for money purposes), and as far as I'm concerned, when my CD4 goes back above 200 I'm no longer going to think of myself as having AIDS, it makes it easier for me.  

But yes, get retested because the % and absolute count don't match up.  You really need to just take a deep breath and realise that nothing is going to happen between now and the time you get your next results.

Offline Lis

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #46 on: February 20, 2007, 08:46:17 PM »
Im sorry that your freaking out... that is the nature of this crap.. start the meds... and see what happens.. I hope that your results are better then mine have been...  remember... the more you stress, the more stress you put on your body....  find some way to calm your self a tad...

lisbeth
poz 1986....

Offline Miss Philicia

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #47 on: February 20, 2007, 08:57:33 PM »
When I was diagnosed in '93 with 184 cd4's my doctor did not scare me with the word "AIDS" -- next test it was something like 223.
"Iíve slept with enough men to know that Iím not gay"

Offline bocker3

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #48 on: February 20, 2007, 09:59:11 PM »
Wesley,

I know how crazy I can get around shit like this, so the best advice I can give is to remember to breathe and let your feelings happen.  Do remember however that whatever your T-cells may be, you felt healthy yesterday and you are still healthy today, so do whatever follow up is needed and then figure out the next steps.  I think a retest is very important (but you know that).  If the absolute CD4 goes back up, great -- if not -- just move forward and lean on folks here.  Try not to focus on the AIDS label (easier said then done, I know), stress can also lower your CD4s, so try whatever you can to relax a bit before your next draw.

For clarity -- someone said that the absolute count is based on the %age and I believe that is backwards - although I've never done t-cell testing - so I could be wrong, I'm pretty sure that it is done with Flow Cytometry which, I believe, counts the t-cells.  The abs count can move alot because of the number of lymphocytes that you have can change, but the CD4% tends to remain more stable because it is a combination of the total lymphocytes and the absolute number of CD4s.  Hope that didn't muddy it up.   :-\

At any rate -- my thoughts are with you -- I hope you've heard back from the nurse about a possible transcription error (maybe 319 vs 139??).

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline jkinatl2

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #49 on: February 20, 2007, 10:29:58 PM »
Wesley, if you don't learn how to cope with the stress better, you will not last long with HIV.

Seriously. AIDS is just a statistical label. There is NO DIFFERENCE between you right now and a week ago, two, four, seven. I worry sometimes that this forum, well-meaning perhaps, allows and encourages hystrionics in the guise of support.

You will have to deal with this crap for decades. You simply cannot continue this level of anxiety. Above all else, it is bad for your health.




"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

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Offline whizzer

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #50 on: February 20, 2007, 11:44:08 PM »
Well said, JK,

These are mere epidemiological terms.  HIV or AIDS, it makes no difference in how you will manage your disease.  Don't sweat the definitions.

Bocker,

The CD4 percent is calculated first, then multiplied times the total lymphocyte count to determine the absolute CD4 count, as explained here:  http://www.hivandhepatitis.com/hiv_and_aids/test/lab4a.html

It is a very nice explanation of how they do it.

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #51 on: February 21, 2007, 12:51:33 AM »
Wesley,

I know how crazy I can get around shit like this, so the best advice I can give is to remember to breathe and let your feelings happen.  Do remember however that whatever your T-cells may be, you felt healthy yesterday and you are still healthy today, so do whatever follow up is needed and then figure out the next steps.  I think a retest is very important (but you know that).  If the absolute CD4 goes back up, great -- if not -- just move forward and lean on folks here.  Try not to focus on the AIDS label (easier said then done, I know), stress can also lower your CD4s, so try whatever you can to relax a bit before your next draw.

For clarity -- someone said that the absolute count is based on the %age and I believe that is backwards - although I've never done t-cell testing - so I could be wrong, I'm pretty sure that it is done with Flow Cytometry which, I believe, counts the t-cells.  The abs count can move alot because of the number of lymphocytes that you have can change, but the CD4% tends to remain more stable because it is a combination of the total lymphocytes and the absolute number of CD4s.  Hope that didn't muddy it up.   :-\

At any rate -- my thoughts are with you -- I hope you've heard back from the nurse about a possible transcription error (maybe 319 vs 139??).

Hugs,
Mike


Hey Guys,

I had it confirmed that as much as I'd hope the person doing the lab work was dyslexic it was indeed the correct lab number as far as that goes.

I've been on the phone and have not eaten or showered today so I'm sure I look like a complete mental patient.  : )   

So, oh boy.   I did speak with the nurse and she actually felt the result was  out of the ordinary so we are going to redo the tests tomorrow hopefully.   

I apologize for not replying to email and I think I'm just completely exhausted.   

My gut feeling is that those labs are WRONG.   The 139 doesn't match 30%.     

I've racked my brain over this.   

This can't be right or otherwise I have some new supervirus or something completely out of control.

I know a bit about various other lab results having worked in insurance.   So, I finally convinced the nurse to go over my profile completely over the phone.   Apparently, there is nothing that stands out except for slight drop in white blood cells........nothing big.

So, I was on the phone with people I know and trust for advice on a multitude of issues.   

Still, it's depressing to explain to your family that you have a technical AIDS diagnosis and what the difference is etc. 

This doesn't add up to me or anyone else.    It sounded like a horrible mistake or whatever.    However, having gone over every single aspect of my life from a month ago I was  wondering what had changed?   What did I do wrong?   

Leme just say, I've said fuck it to the stop smoking issue right now. ; )

Definitely having a drink as well.    I figure might as well be in extra terrible shape for the next labs cause every time I did all the "right" stuff I got the worst results.

I don't care if anyone thinks I'm overly dramatic or wants to dismiss my issues as "anxiety".   Bullshit!    Those are my feelings and I don't think they were unwarranted with an AIDS diagnosis this morning.

So, sweeping through all the crap.   I thought why did this happen?    Sometimes the most logical reason is the simplest.   Over and over I went through my mind and went over medical history etc. and IT HIT ME.

On Feb 9th, the day I took the new labs at the lab downstairs from the first doctor there was only one thing different I did that no one else has considered or advised me on.

The day I had my labs done I'd had the 2nd shot for HEP A vaccine within aprx. 30 min. to 1 hour of having my bloodwork drawn.   Both the vaccine and the bloodwork were drawn out of my left arm within no more than 1 hour apart.

Right now, I believe this could very well explain why I now have an "AIDS" diagnosis.    NO ONE including the entire freaking staff was alert to that or even thought of that as perhaps being the explanation.

Maybe I'm all wrong and just grasping for straws, but from what I've seen the 30% does NOT match an AIDS diagnosis????????

I'm not sure if it's a LAB Fuck Up or a Staff/doctor screw up.   I'm not even sure if either is true. 

So, regardless I'm having complete redo.   Either way, things look bad.   

ANYONE ELSE HAD A HEP. A vaccine screw up labs and give them an AIDS diag. ?

This is the only thing which I could think of that makes sense.

Thanks you guys,

Love Wesley

PS.  Sorry, I'm like all over the map with emotions as this plays out and likely won't have any answers unless some of you know if that shot in the same arm could have caused me to have fucked up counts that don't match anything I've had before??????????????

« Last Edit: February 21, 2007, 02:29:48 AM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline bocker3

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #52 on: February 21, 2007, 07:33:06 AM »
Good morning Wesley,

Hope you are feeling a bit better after a night's sleep.  The unfortunate truth is, even if your repeat shows an increase in CD4, you'll probably never know what happened.  Maybe lab error, maybe vaccine induced, maybe just a real biological anomaly, maybe (insert any possibility) -- but in the end, you have to look at the big picture. So, I'm hoping for a better repeat for you.

Whizzer --

Thanks for the link -- it was a good explanation of the flow cytometry. 

Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline Cliff

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? Scared!
« Reply #53 on: February 21, 2007, 07:48:58 AM »
I must disagree with Cliff.

In 1987 the  CDC published it's defining elements of the AIDS diagnosis (MMWR1987 36 supp 1S).  This one was based solely on clinical presentation, that is, what OIs you had.

In 1993, the CDC updated it's definition (MMWR 41 RR-17) to include ANYONE with a CD4 count below 200, OR a CD4 percent at or below 14, and ALL HIV infected persons with what they term an "AIDS defining illness".  To see this list, use this link
Thanks for the correction.  Oh well, I guess I have AIDS too.

Offline racingmind

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #54 on: February 21, 2007, 10:05:48 AM »
Hi Wesley.

I had the Hep vaccine also.  My ID doctor said to make sure that I had my blood draw BEFORE getting the shot as to not mess with the CD4/VL test results.  I had them done on the same day, but I got the blood draw done first.....

Amazing that the so called professionals where you go weren't thinking the same thing.  I'll bet that is the reason for your results.  I think you'll know more after your retest.

I'd reconsider the smoking thing....no matter what, smoking kills CD4 cells...that's a fact.  Have a drink if you must, but if you have been off the smokes for a while, it would be a shame to backslide there.

Keep us posted;)
Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #55 on: February 21, 2007, 10:12:19 AM »
Hi Wes

Hope you went to get your blood drawn this morning and you will be in my prayers today. Everything is going to look much better soon.

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #56 on: February 21, 2007, 12:20:54 PM »
Thanks everyone,


You know when I had a 200 point drop in 2 months last year 627 to 409 I told my doctor at that point I felt like I wanted to start meds.   I said at this rate I will have no t cells left.    He said "it doesn't happen like that."   Well, apparently sometimes it does.

His crabby nurse called me back this morning.   I asked her about the HEP A. vaccine.   She didn't feel this could be the reason for the drop (probably cause she's the one who gave me the shot) but that my doctor had agreed to have all lab work redone.

I go in at 1:30 today to have em drain my blood once again.  Have an apt. next Wed w/ Doctor Know It All ; )

I don't personally care about the AIDS label for myself.   That is the least of my concerns.   My issue is the massive drop of 215 points in one month coupled with the 7% increase in %.   Clearly, this warrants some concern.   

So, my doc went by the standard stuff, but originally he shared another few examples of how the numbers decline etc. over time with me.    Uh, well, mine have not lived up to his high expectations I guess.

I'm sure I went through a good pack of cigarettes and a few coctails last nite.    I want my next labs to come out normal.   I can hear it now,  "We're sorry, but your blood has secretly been replaced by Folger's Crystals" ; )   Although, in my case they'll probably say wow all we got was nicotine tar and Absolute Vodka ; )

I agree with everyone who said a retest is in order.   Regardless, I won't be waiting for the outcome before starting meds now.   Wednesday, we'll discuss whether Atripla or the Sustiva/Truvada combo may be the choice.   I've done my homework so far on those and think for my schedule etc.  Atripla is the best choice right now for me.

Really appreciate all those opinions and ideas and thoughts.   My next lab test clearly won't be much of a concern at this point ; )

Love,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline egello

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #57 on: February 21, 2007, 01:08:02 PM »
hey wesley,

being a newbie myself, can't give you a lot of support on this. however, being an aids patient, i can tell you that its really no big deal, tee hee....

i look hotter than i have ever looked currently and my energy level is amazing. i work, lift weight and get laid, although there is something up with my erection level....

besiedes that, those are just number and they seem to have protocols down to make you well again. no biggie, and i shoudl konw becuase i was freaking out just a few months ago too and i laugh about it now.

take care, and hope everthing is well down there.

my ex who is also hiv poz went to school in austin and loves it there...
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline Mike89406

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #58 on: February 21, 2007, 01:35:28 PM »
Wesley

I have gone through a similar experiance. I went from 350 to 126 but my percentage was at 28 and fell to 23 thats not bad 14% is considered AIDS/Advanced HIV Disease nowdays.

The CD4 numbers dont tell the whole story, and frankly after thinking meds would jump me right back up they didnt as fast as I would have liked. A year now and I havent seen 200 on my labs yet however it was due to radiation therepy and a live virus I acidently took..But I understand that yes with a lower CD4 number most people get stressed even myself. I thought there was no hope however the fact remains that I'm responsible for taking care of myself, not anyone else.

Now I just cant worry anymore its toio much for my immune system, and after 2 labs on meds and getting my hopes up I cant. Even though I've been on Septra pills since last summer i just have to be strong and keep striving.

Theres a very good chance that the numbers will get back up but I cant worry about it anymore, Not too mention I quit smoking for my own good maybe that contributed to my numbers staying low anyways we have to just be patient I understand but understand that CD4 is not a true assesment of you're health. Every doctor and specialist has told me that the CD4+CD3 Lymphocyte percentage is a more accurate reading.

I was under the belief that while healty before my lower numbers and meds I could depend on propholaxis and supplements and vitamins seemed to work a little. But when you're immune system is compromised to a certain level we have to change our perception and be more serious about our health, I know many times I was in denial or wouldn't think of my condition, however everyone has his/her day when we get that wake up call its up to the individual how we respond and deal with the outcome.
« Last Edit: February 21, 2007, 01:40:36 PM by Mike89406 »

Offline poet

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #59 on: February 21, 2007, 03:41:35 PM »
Hey Wesley,  you sound calmer today, which is a good sign.  I am glad that you are getting the labs redone today.  I would also support your starting meds. if you feel that you need to do so, before getting the labs back.  I waited until the 200's but others here have posted in the past that they started with great long term results much earlier.  I hope that you will also sort out where the problem lies, whether it's your doctor, his nurse, the combination or that they, too, were thrown off base by this for some reason.  Best, Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #60 on: February 21, 2007, 05:13:13 PM »
Hey Wesley, I'm glad you 're getting retested, have the appt with Doc next week, etc. I'm sorry if you won't have the new results back by next wednesday (?) but I think you're ready to start the meds , mentally, no matter what the outcome.

The smoking thing~ understandable, but tomorrows a new day~

My last labs showed a drop by 109.  Of course it concerned me, and I wondered, too, if the pneumonia shot I got BEFORE the lab draw could have caused this. I never got that answer, but I suppose it's always a possibility. I go for a new draw next week.

Now stop drinking and smoking so much. You can do plenty of that while you're enjoying your company this coming weekend!
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #61 on: February 21, 2007, 05:59:12 PM »
Wesley

I have gone through a similar experiance. I went from 350 to 126 but my percentage was at 28 and fell to 23 thats not bad 14% is considered AIDS/Advanced HIV Disease nowdays.

The CD4 numbers dont tell the whole story, and frankly after thinking meds would jump me right back up they didnt as fast as I would have liked. A year now and I havent seen 200 on my labs yet however it was due to radiation therepy and a live virus I acidently took..But I understand that yes with a lower CD4 number most people get stressed even myself. I thought there was no hope however the fact remains that I'm responsible for taking care of myself, not anyone else.

Now I just cant worry anymore its toio much for my immune system, and after 2 labs on meds and getting my hopes up I cant. Even though I've been on Septra pills since last summer i just have to be strong and keep striving.

Theres a very good chance that the numbers will get back up but I cant worry about it anymore, Not too mention I quit smoking for my own good maybe that contributed to my numbers staying low anyways we have to just be patient I understand but understand that CD4 is not a true assesment of you're health. Every doctor and specialist has told me that the CD4+CD3 Lymphocyte percentage is a more accurate reading.

I was under the belief that while healty before my lower numbers and meds I could depend on propholaxis and supplements and vitamins seemed to work a little. But when you're immune system is compromised to a certain level we have to change our perception and be more serious about our health, I know many times I was in denial or wouldn't think of my condition, however everyone has his/her day when we get that wake up call its up to the individual how we respond and deal with the outcome.

Hey Mike,

Really appreciate you sharing your experience and insight.   The interesting part here is your count and % dropped.    For some odd reason my % jumped up 7 % to 30%.   Not consistent in my case, but guess I'll see.

Well, I had not only the HIV tests redone, but everthing.   I decided to use my right arm this time to see if it's any luckier.   I'm starting to wonder about that lab cause the girl there could barely use a computer.   I made sure I watched the labels on those cause I didn't want any more issues. ; )

I dropped by one of the ASO's to get some other information.  They all really friendly and all.   I wanted to find out what to do in the event I lost my health insurance cause I'd have to sell my house to pay for meds with the outrageous costs, and I don't want any more issues.   They weren't much help because I have assets and apparently none of their clients are in my particular situation. 

On the bright side it was a beautiful day today and I enjoyed driving 90 on the freeway with my tunes blasting.   

My appointment will be next Wednesday and I should have the latest batch of results in.   Have a lot on my mind, but I got copies of the bad AIDS paperwork just in case I need them for future reference or some other mess.

Pretty much I'm worn out from lack of sleep, having another 8 or so viles of blood sucked out and the traumatic experience of getting those last bizarre numbers etc.

I've not changed my plans for company coming this weekend, but I'm so tired today from everything I think I'm just gona crash.  Tomorrow is another day.

Thanks for all the help, advice and commentary.

SO, we'll see if the Hep A vaccine caused my AIDS or if it was my own stupidity for listening to two separate HIV docs who advised me not to take meds.   

If I had it to do over I would have just started back when my counts hit 409.   Now, if those numbers turn out to be correct no telling how long it will take my CD4 counts to return to a decent level.

The labs hopefully will be in by Wednesday and I'll probably have a bottle of pills which could have prevented all this additional drama.   

Take care all!

Wesley
« Last Edit: February 21, 2007, 06:02:02 PM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Teresa

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #62 on: February 21, 2007, 07:34:30 PM »
                         

Im glad you are keeping your plans for the weekend. Have a great time with your friends and try not to stress too much.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline Mike89406

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #63 on: February 21, 2007, 10:44:56 PM »
Wesley,

I had 350 or so CD4 in Oct 2005 28% VL 12,000 Well My work was administering the flu mist nasal vaccination in Nov 2005. No one at work except the head guy knows I'm HIV+ anyways I didn't know the mist was a live flu virus I took it , and they forgot to document it in my medical record as they were giving 99% of workers the mist or shot as well that day.

In Dec 2005 I developed a dull ache in my right tectsicle thought it might be a hernia at first then was referred to a urologist. Found out after several tests I had a tumor on my right test. Had the thing removed with surgery in Jan 2006 had to heal up then off to radiation treatment from Feb-April 2006 in June I had my next labs done My CD4 was 126, 23% 45,000 VL I was crushed after being healthy most my life and physically fit despite smoking.

Started Septra/Bactrim in July 2006 Did follow up labs in mid Aug CD4 176, 24%, Vl 40,000  Ok so I thought this might be a good sign did labs again is Sept 2006 CD4 176, 24% VL 48,000. Started meds Sept 14th day after my B-day (Sustiva and Truvada) 1 month later CD4 166 31%, VL 131. All good except CD4. Then labs in Dec 2006 CD4 166 24% VL Undetectable. What do i do? Its apparent that theres nothing I can do right now. It has been a roller coaster year. My doc mentioned that they used a different lab facilty in Decmeber so the numbers may not have been as accurate.

Some people will say the numbers or % wasn't horrible but I worried a little. It's my body All except last year I have always been healthy despite HIV I work out and never saw numbers below 350 in my 6 yrs of POZ. It took a while before I accepted it but that's life it happens to some. To add insult to injury I just recovered from Appendicitis and the appendix had to be removed 2 weeks ago hopefully that didn't affect my immune system too much.

The odd thing as of lately is I have been getting night sweats since after the operation almost every night (I haven't had night sweats since 2003-2004 when my numbers were between 300-400 t-cells)

Offline Queen Tokelove

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #64 on: February 22, 2007, 03:33:22 PM »
Hey Wesley,

I was wondering how you were holding up. I hope things get better with the next results. It's funny how people kind of go through the same thing. I just got my cd4 back and mine took a 100 point dive from 372 to 272. Not an AIDS diagnosis but damn. It's time to start the meds but I'm cool with that. This happened within 4 weeks. But anyhow back to you...I had that talk with my nurse too and funny yours says that it wouldn't affect it because mine says it would, that's why the space it out if I received a flu or hep shot. Keep your chin up....
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #65 on: February 22, 2007, 03:39:24 PM »
Hey Wesley,

I was wondering how you were holding up. I hope things get better with the next results. It's funny how people kind of go through the same thing. I just got my cd4 back and mine took a 100 point dive from 372 to 272. Not an AIDS diagnosis but damn. It's time to start the meds but I'm cool with that. This happened within 4 weeks. But anyhow back to you...I had that talk with my nurse too and funny yours says that it wouldn't affect it because mine says it would, that's why the space it out if I received a flu or hep shot. Keep your chin up....

hey girl

Sorry to hear your CD4 drop. Yea, it looks like it's time for da meds. You should do well on them just like me, just don't think about it so much. Keep us posted with your events.
Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Queen Tokelove

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #66 on: February 22, 2007, 04:08:22 PM »
hey girl

Sorry to hear your CD4 drop. Yea, it looks like it's time for da meds. You should do well on them just like me, just don't think about it so much. Keep us posted with your events.
Al

I apologize for the brief hijack Wesley....Ihave, I'm not stressing it at all. I was all psyched for the meds a few months ago, nothing has changed other than the addition of 2 more pills.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #67 on: February 23, 2007, 03:48:31 PM »
Hey Queen,

Don't worry bout a hijack ; )   

Thanks for all the shared stories and opinions to all.   Yes, I'm still very anxious and have way too much on my plate, but I'm working on handling several things at once.   I think that's enough to stress anyone out, but I can't do anything till next Wednesday anyway.

So, I've gotten my house ready for my guests this weekend, working on other stuff and trying to put this out of my mind.   

To be honest it was stressing me out more from a few choice comments and what not here and the last thing I need is more stress ; )

I haven't fallen apart, but I focusing on other things.   I don't have high hopes the labs are wrong even though the overwhelming majority of people believe they are.    When I was first diagnosed the doctor at the time told me 50% of the tests came back false positive so you can imagine that stress nightmare.   I won't let myself go through that again.

Anyways, I had ALL labs redone including all the regular medical tests to check for other junk.   It's not just a matter of "anxiety".   I would prefer to be proactive and avoid any potential pitfalls I can in the future.   I realize some things I can't control, but the things I can do to eliminate future problems I will.

Really do appreciate all the well wishes and information.    I probably won't be logging back on here again until I know more.

So, in the meantime I'm just gona put this as far back in my mind as possible and party like a rock star this weekend ; )

Hope you all are well & everyone's doing great.

Have a great weekend everyone!

Love,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #68 on: February 26, 2007, 12:57:01 PM »
Wow, just when I thought things couldn't get any worse.   LOL, when it rains it pours.

So, as I mentioned I intended to party like a rock star this weekend.   Mission Accomplished!

Ugh, I was stressed out from those horrible lab results.   So, I tried to put that in the back of my mind and go on with weekend plans.

Well, lucky me.  I found out my ex is apparently in another relationship.  Not like I wish him any ill will, but didn't exactly cheer me up ; )

So, to top it off I found out someone I'd casually been dating has apparently been seeing someone else cause his friend let it slip.  Again, no great loss, but I think I would have made Britney look good after my weekend.  ; (

Anyways, what I've learned this weekend is that HIV+ guys are just as sneaky and cut throat as the rest of em.   So, I'm fairly disgusted with gay men once again.  However, I've a few cards here from a party so I guess I'll see how those pan out ; )

Oy, well I did more shots at that party and not quite sure how I ended up making out with the host, but I had a lot of shit going down so mix that with enough alcohol and I could've been the next Anna Nicole ; )  Yikes!   I just hope no one posts anything on YouTube.  Grrr. 

Well, I guess Wednesday will be here and I'll be starting some damn meds so probably no more partying for me for a while.   Thanks all ya guys for the emails.   

Peace!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #69 on: February 26, 2007, 01:03:38 PM »
hey sexy

when do you get your new lab results?

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #70 on: February 26, 2007, 01:20:01 PM »
Hey Al,

The labs are supposed to be in by Wednesday.   Either way I have to pick out meds and deal with all that fun stuff.   I seriously suspect something was wrong with that last set cause I am not sick.

Aside from the massive hangover yesterday I've been fine.  Other than the now massive stress and some other disappointing news which was amplified by lots of alcohol I've really been feeling decent.

I read your other post about "fast progressors."   You know there seems to be no rhyme or reason in any of this.  I know people with amazing counts who are sick and others with really low counts that are doing fantastic.

My emotions have been all over the map this last week.   The meds weren't the huge issue, but having to rush into them is what is bothering me. 

Regardless of the outcome I will be posting the info. here.   

Thanks for sharing your story as well.  I've read everything and know you got a lot on your plate as well.

Love,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline libvet

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #71 on: February 26, 2007, 09:08:03 PM »
Wesley,

I don't what to say that hasn't already been said.   I won't pretend to say I know how you are feeling.  My own experience was slightly different.   

The important thing is that you are doing the right thing now by having the test redone because it seems to be an outlier.

Other than that, just try to keep in mind that no matter which way the second results go, it's just a different chapter in what you are dealing with. 

You are here and you are bright and have the tools at your disposal to deal with this, even if you don't feel like you do at the moment.  The fact that you are at this website shows that.

Just hang in there and try to keep things as normal as possible for yourself until you get your new results.   I know it sounds trite and cliche, but keeping yourself busy will make the time between now and then go a whole lot easier even if you don't feel motivated to do much more than worry.   You ARE going to worry and obsess about this for the time being, just try not to let it beat you down too much. 

I'll be keeping my fingers crossed for you that this is just a simple lab mistake and I have absolutely no doubt that no matter what, you'll come through this like a champ.

Michael


Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? NEW INFO!
« Reply #72 on: February 27, 2007, 06:04:47 PM »
Hey Michael, Al and all you guys,

THANK YOU ALL FOR HELPING ME KEEP MY SANITY!  BIG BEAR HUGS TO EVERYONE! ; )

Ok, so I got the latest results just now over the phone.   I don't have AIDS anymore I guess.   Supposedly, my doctor is going to attempt to explain what the Hell happened with those prior results tomorrow.

New counts:

CD4 274   Percent:  26%   VL  18,500    Not so bad considering I smoked and drank my way through the week stressing out over that other nightmare.

Thank God I never listened to that other doctor who told me to wait till May to come back.   

I just exhaled a HUGE sigh of relief.   Yes, I know MEDS are in my very very near future, but at least I'm not in a mad rush to figure out which ones and having to take other crap on top of them.

I'm convinced the HEP. A vaccine in the same arm less than an hour before is the reason for this although we shall see what explanation my doctor trys to peddle to me tomorrow.   

Either way, I am very happy with those numbers from 12 days prior.   Could be the Hep. vaccine lowered my other numbers as well.

I have no idea, but am greatly relieved I didn't hear I had no Tcells left as it leaves more options open still, but considering all the stress and anxiety I would not recommend to anyone to wait it out for years without closely keeping tabs on those labs.   

From what I've noticed there seems to be a trend that those who wait so long have a harder time building their counts back up.

Although 274 wasn't terrific I was quite relieved I'd not gone in the reverse direction.   Whew!   This calls for a drink to celebrate! ; )

Anyone else care to speculate what doc is gona say?    I don't think any of them will ever acknowledge it was the vaccine that caused me all this stress and trauma, but I'm very curious to hear the latest excuse or theory from em.

You guys were all great.  Sorry if I was bitchy or came across wrong, but that "NEWS"  scared the Holy Crap out of me.   And, it's also very frustrating to feel defeated after you've done all you can to keep those labs good.

Thanks you guys for walking me through it!    Now my deal is figuring out which meds to go on and I'm actually looking forward to them now because I feel like I'm actually doing something that will help get me back to my life completely. 

I want my damn life back (ALL of IT) and I think it's time to take control back!   Hopefully, Meds will be the catalyst I need to do that completely!

Much Love and Big Hugs to All,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #73 on: February 27, 2007, 06:11:45 PM »
YAY!!!!!



I know the numbers aren't fabulous but at least they went up. I am sure it was the Hep A vaccine that contribute to the blip, my nurse told me that even a small paper cut can at times alter your lab results. 274 is not a great number though, have you decided about your med options? are you gonna go for another set of labs?

Your % is good but it did decrease.

Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Buckmark

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #74 on: February 27, 2007, 06:18:22 PM »
Wesley,

Your CD4 count certainly showed a dramatic increase.  I'd be willing to bet the doc
will say that the low number on your previous test is somehow related to your Hep
vaccincation.  Truthfully, I don't think the doc will really know for certain -- and a
good doc would admit that to you.

I'm sure you must be very relieved at this nice rebound.  It gives you a little
breathing room to make your decision about medications.

Cheers,

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Andy Velez

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #75 on: February 27, 2007, 06:20:50 PM »
That is certainly much happier news, Wesley.

I can understand why you're thinking about meds. At the same time if you can tolerate the tension and feelings about it, given the ups and downs you have experienced, I am wondering if you might be well off to wait for another round of numbers before making a decision to see what direction things are going in.

It would be good to see how another time period of overall good health care in your daily life, good nutrition, rest, excercise and other good stuff might positively affect your numbers.  

In the meantime you can certainly enjoy the relief of the happier set you received today.

Cheers,
Andy Velez

Offline dtwpuck

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #76 on: February 27, 2007, 06:21:04 PM »
Wesley... whew... congrats.
I had an aberrant test once because of a vaccine.  The test was actually taken as part of a study to watch the fluctuation of cd4's during vaccines.  So, it completely stands to reason that this happened. 

Big hug... 

Floating through the void in the caress of two giant pink lobsters named Esmerelda and Keith.

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? NEW INFO!
« Reply #77 on: February 27, 2007, 08:25:49 PM »
Wesley,

Your CD4 count certainly showed a dramatic increase.  I'd be willing to bet the doc
will say that the low number on your previous test is somehow related to your Hep
vaccination.  Truthfully, I don't think the doc will really know for certain -- and a
good doc would admit that to you.

I'm sure you must be very relieved at this nice rebound.  It gives you a little
breathing room to make your decision about medications.

Cheers,

Henry


Hey You Guys,

Al, Thanks!   I feel like I just won an Oscar ; )   Hell for all of my emotions over the last week I think I should have one ; ) 

Andy, yes you are correct that now I have some breathing room I've not jumped to a Med decision entirely.  One more set of labs possibly, but it's definitely in my near future.   At least it's something I can consider more now.

Puck,  You are just great always.   Thanks so much to you for everything.

Henry,  Also a huge thanks for your insight all along.

To be honest I was so happy today that I got this news and that my number 1 guess as a lab mistake/ abnormality came true I feel like I have a new lease on life.   I don't want to break that lease by taking risky behavior and making ANYMORE bad decisions based on what others have told me.   Advice and shared experiences are how I learn.   I've read a lot of stuff, but like others have said I may have HIV, but it doesn't have me.  I really like that train of thought.

So, tonite I'm definitely celebrating that news.  It wouldn't surprise me if the vaccine also lowered my overall numbers, not like they were spectacular before, but I think this is pretty good evidence that you really do need to pay attention to your own health and make your OWN decisions because it really is up to You.

Unless, I hear some other drastically horrible news tomorrow my doctor is going to have some explaining to do.    Mostly, I'm more concerned right now about which med combo to choose.   My primary thoughts right now are that I want whatever will knock this virus on it's fuckin ass and kick my counts into high gear without taking anything else out of my life.   Sound familiar?

But for tonite I'm very very relieved.   I'm glad I covered every possible outcome and this time I got lucky.   I'm not gona wait around for another next time.  No thanks!

Cheers you guys!

Love ya,

Wesley
« Last Edit: February 27, 2007, 09:40:53 PM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Queen Tokelove

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #78 on: February 27, 2007, 10:27:18 PM »
Wesley~~

Congrats on the new numbers. Our cd4 count is about the same, mine is 272, it took a 100 point swan dive. I still haven't gotten my viral load back. I am about to take the step of starting meds after my appointment, that is if my diabetes is in check.

I am wondering why your doc won't admit that it was likely that the vaccine affected your numbers. I have been told by my clinic nurse that it is possible and it happened to me about a few months ago after getting my flu shot. It's just a matter of timing it better next time.

As far as the past lovers go, don't even sweat it. It's better you found out now than later or maybe this person who let it slip has some type of personal interest? I go by the saying, believe none of what you hear and half of what you see. Jealousy is out there, ya know. I would just focus on the company you have coming and have a good time.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline tigger2376

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  • Posts: 462
  • too bad to die youngish!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #79 on: February 27, 2007, 10:49:21 PM »
you and I may not always agree but I'm so pleased your numbers are better. I ddn't think what people said worried you, maybe I've misjudged you but don't let the ratbags get you down
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #80 on: February 27, 2007, 11:37:59 PM »
Wesley, AWESOME, I'm glad it was wrong.!! Seems like you're on the right thought track now.

I went in for my draws today, and she told me I needed hep A and hep B shots. I said NOT TIL AFTER THE DRAW!! I asked her if my last #'s could have been affected by the pheumonia shot the phlebo. gave me just before the draw, and she said absolutley not~

I'm very happy for you~
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #81 on: February 28, 2007, 02:46:01 AM »
you and I may not always agree but I'm so pleased your numbers are better. I ddn't think what people said worried you, maybe I've misjudged you but don't let the ratbags get you down

Hey Tigger,

I really do appreciate your positive thoughts.   While we some how got off on the wrong track I would NEVER wish anyone bad test results here.   Not you, not anyone!   We've had differences on our views and that is true.   However, regardless of how I may perceive someone here I'd hope no one has to go through what I have or you have or any of us have.

I've been on the phone a lot today.  Tonight, I actually broke down in tears of happiness.   No one could rain on my little parade from this right now no matter how hard they try.   

Yeah, I know what I have coming my way, but this was for me a big lucky break I needed.   However, I know that everyone here won't be as lucky or they will be dealing with so so much.   I don't typically get overly emotional, but yes I'm teary eyed over my own relief as well as what I know what others are trying to cope with.

I just realized I'd left the computer on once again.   Yo, I will most definitely sleep well again and regardless of my outcome tomorrow don't think for a minute I have forgotten about you guys.  May sound corny, but to me each of you represents a piece of my life whether you know that or not.   Whether we argue over bullshit or try to outwit each other I know we are ultimately coming from the same place.

With that, I will say good nite and wish you all the best!

Love,

Wesley
« Last Edit: February 28, 2007, 02:52:25 AM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Regretsafew

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #82 on: February 28, 2007, 10:39:31 AM »
Hey Wes,

Glad to hear you are better with your situation.  Good luck on your  dr's  appt. 
Been thinking of  you and hoping you are okay.   

Hugs to you man.

Joey

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #83 on: February 28, 2007, 06:51:46 PM »
Wesley,

Your CD4 count certainly showed a dramatic increase.  I'd be willing to bet the doc
will say that the low number on your previous test is somehow related to your Hep
vaccination.  Truthfully, I don't think the doc will really know for certain -- and a
good doc would admit that to you.

I'm sure you must be very relieved at this nice rebound.  It gives you a little
breathing room to make your decision about medications.

Cheers,

Henry


Hey Henry,

Oh he denies that to the bitter end.   We got into it a bit in the office today, but if you ask me the problem was the nurse cause she's been avoiding my calls ever since and I think regardless if it was or wasn't the cause it's just plain stupid to give anyone a vaccination right before labs are drawn.

After proclaiming his 17 years of experience we moved on to the medication issue.   Well, in all his brilliance he neglected to put the dosage on the Sustiva.

So, I was all planning to start Sustiva/Truvada tonight.   Now we have a big pharmacy fuck up.   The crabby nurse calls me up on my home and cell phone.   She's about as dumb as dirt I think.   I left a clear message why I'd called.   Apparently, she is just trying to kill me by stressing me out.

So, I freaking lost it with her on the phone.   Here I am at the pharmacy and she calls me back instead of the pharmacy wanting to know why they couldn't fill the prescription.   So I tell her again.   She still doesn't get it.   Finally, I say well do I have to write the damn thing myself or what?

Talk about ridiculous.   So the incompetent nurse who vehemently denies the Hep. Vaccine screwing up my labs can't even understand basic English.  I'm wondering if it was even a Hep Vaccine administered now.

As it sits now the pharmacy can't fill my prescription.  The nurse doesn't care and my pharmacy has to order the drugs.   So, I guess we will all just sit around until she gets off her lazy ass and gets my chart and/or asks doc if he wouldn't mind figuring out which of the 4 dosages I was suppose to have.

Fucking I really hate stupid people and I'm am more convinced now then ever that there was some huge screw up cause my labs have never taken a dive like that.   Doc had some half assed explanation which made absolutely no sense whatsoever. 

But I won't harp on this latest mistake.   It does say a lot to me when a doctor has to resort to "I've been dealing with this for 17 years"   

Ugh!   So, I pointed out my labs before when I had the drop from 627 to 409 when I wanted to start meds.   I was worried that something like this would happen.   When I brought up the fact he said "It doesn't work like that."   Oh Hell, his precious ego was bruised. 

Anyways, now thanks to advice of waiting I will forever have a technical AIDS label which I said thanks for that too!   You could say we weren't exactly bonding today.

So, moving on we went over meds.    I agree that Sustiva/Truvada was what I'd like to try first since I had to figure that out too.   I suggested this because Atripla as a beginning med could cause other issues.   However, if the Sustiva Truvada combo is ok then I can switch to Atripla.

In the meantime my Tcells continue to dwindle away as the incompetent nurse has to walk 20 feet or so to find my chart and I wouldn't want her to strain herself.   God forbid she may actually burn a calorie or two.

Can ya tell how happy I am today?   

Jesus Christ!   
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline dtwpuck

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  • дано мне тело, что мне делать с ним?
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #84 on: February 28, 2007, 07:08:51 PM »
Man... I think it's time for a new doctor. 
You probably will want to start sustiva over a weekend anyway.  At least from my experience, I was a bit whacked out for a few days. 

Once this blows over, we can exchange stupid doctor stories.  Mine here in Detroit... oh my is he unorganized.

What are you going to do to calm yourself?
Floating through the void in the caress of two giant pink lobsters named Esmerelda and Keith.

Offline Miss Philicia

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #85 on: February 28, 2007, 07:16:35 PM »
I've never had vaccinations done before blood work was drawn.  That is just such a no-no I thought.
"Iíve slept with enough men to know that Iím not gay"

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #86 on: February 28, 2007, 07:30:00 PM »
Man... I think it's time for a new doctor. 
You probably will want to start sustiva over a weekend anyway.  At least from my experience, I was a bit whacked out for a few days. 

Once this blows over, we can exchange stupid doctor stories.  Mine here in Detroit... oh my is he unorganized.

What are you going to do to calm yourself?

LOL!   Well, to be honest I'm sort of happy he made this obvious mistake on the prescription.   Apparently, his 17 years of experience haven't helped in writing proper prescriptions either.

I'm gona watch a movie, have several strong drinks and smoke!   I probably won't be watching Philadelphia though!  Maybe John Q or Damaged Care, The Rainmaker are more fitting ; )

I'm absolutely convinced Nurse Ratchet was behind the scenes causing drama cause everyone knows she gave me the vaccination.   No telling what it was now.  I think it's possible she gave me any number of things.

Yeah Philly!    NO ONE I can find seems to think having a vaccination just prior to labs is proper protocol.    Anyways, I better triple check my prescription to make sure I don't get Viagra or some other fun surprises. 

Talk w/ ya'll later.   Nancy Grace is on and I want to see her belittle people and take out some aggression ; )



Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline RAB

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  • Joined March 2003
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #87 on: February 28, 2007, 08:00:51 PM »
Wesley

I've been following this thread and reading everything that you and the other members have written.

First, regarding the issue of the Hep vaccination causing the dramatic decline in your previous labs.  Since the vaccination and blood draw were done almost simultaneously, it's virtually impossible that was a contributing factor.  I respect completely the fact that you are convinced otherwise, but the reality is what it is.  For whatever reason, the previous labs were so far outside any sort of expected results, they were obviously suspect.

Second, your most recent labs, while showing an increase from the previous, were very likely impacted by the Hep vaccination.  So those labs also should be viewed with some skepticism.  Or at least with the acknowledgement that they probably were not a realistic representation of your actual condition.

Third, it seems like you don't have the best relationship and/or respect for your current health care provider or the support staff.  If that's truly what you are experiencing, then you have got to find a different doctor.  You need to work with these people as a team to successfully receive the quality care that being HIV + requires.  If you aren't comfortable with them, if you aren't confident with the information they are providing, then run from them as fast as you can.  This decision, above deciding to start meds, is the most important and practical one you can make.  You just have to believe me on this. 

Finally, about this issue of having an official AIDS diagnosis.  The labs were obviously a mistake.  But even if they weren't please don't invest too much emotion in the terminology.  The term AIDS, while it carries a great deal of emotional impact, in actuality doesn't mean all that much.  So many, myself for instance, have been officially diagnosed as having AIDS, yet here I am with an optimally controlled viral load and a CD4 count in the 700s. 

I admire your tenacity and strength, those qualities will serve you well as you begin your treatment regimen.  Just try and not invest too much energy in the unnecessary emotion, that won't do much at all.

Keep us posted on how you're doing.

Good luck buddy.

RAB

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #88 on: March 01, 2007, 12:19:31 AM »
yeah, I'd say it's time for a new doctor/staff.
I asked the PA yesterday if my pneumonia shot administered before the lab draw which produced the drop last time could have been the culprit. She also said no, it was too close, and that a week or so later, it would have affected the lab results. Who knows?

Take care of yourself, and enjoy the movie.
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

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    • HIV Discussion Group on Myspace!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #89 on: March 01, 2007, 11:46:43 AM »
Wesley

I've been following this thread and reading everything that you and the other members have written.

First, regarding the issue of the Hep vaccination causing the dramatic decline in your previous labs.  Since the vaccination and blood draw were done almost simultaneously, it's virtually impossible that was a contributing factor.  I respect completely the fact that you are convinced otherwise, but the reality is what it is.  For whatever reason, the previous labs were so far outside any sort of expected results, they were obviously suspect.

Second, your most recent labs, while showing an increase from the previous, were very likely impacted by the Hep vaccination.  So those labs also should be viewed with some skepticism.  Or at least with the acknowledgement that they probably were not a realistic representation of your actual condition.

Third, it seems like you don't have the best relationship and/or respect for your current health care provider or the support staff.  If that's truly what you are experiencing, then you have got to find a different doctor.  You need to work with these people as a team to successfully receive the quality care that being HIV + requires.  If you aren't comfortable with them, if you aren't confident with the information they are providing, then run from them as fast as you can.  This decision, above deciding to start meds, is the most important and practical one you can make.  You just have to believe me on this. 

Finally, about this issue of having an official AIDS diagnosis.  The labs were obviously a mistake.  But even if they weren't please don't invest too much emotion in the terminology.  The term AIDS, while it carries a great deal of emotional impact, in actuality doesn't mean all that much.  So many, myself for instance, have been officially diagnosed as having AIDS, yet here I am with an optimally controlled viral load and a CD4 count in the 700s. 

I admire your tenacity and strength, those qualities will serve you well as you begin your treatment regimen.  Just try and not invest too much energy in the unnecessary emotion, that won't do much at all.

Keep us posted on how you're doing.

Good luck buddy.

RAB

Hey RAB,

Well thought out response and I'd agree with you.   My prescription is filled supposedly although nurse never called me back.  Big surprise. 

Regarding doctors:

I did get rid of another woman here who was absolutely terrible.   She's very well known and people love her for whatever reason.   I'm not one of her fans.   She claimed my fatigue was in my head.   Three weeks and she never transferred the few records back to my other doc.  At one point she thought I might have a "Staff Infection".   Did a test and no one from her office returned my calls.  When I finally did get her receptionist on the phone she said, Oh well you didn't have it so we didn't bother calling you.   

I'm not going to put this woman's name here, but I seriously wonder if she perhaps has more than doctor's ego going on.   You can't get a word in edgewise with her and I think she's hopped up on something.   

Her advice in January:   Don't take any meds and come back in MAY with a CD4 of 354. 

I believe her superior attitude helped to give my doc. her personal opinions while my records from her office consisted of a 2 page fax.


So, current doc has some issues, but I don't want to burn bridges because if I loose health insurance he is one at the free clinic as well.   His one nurse pretty much sucks.   She's bitter because I just called her boss directly when she wouldn't return calls.   

At this point, I have my med RX and now I'm calling the shots.  Why on Earth this doc. would want me to continue waiting is beyond me.   

I've got the names of 2 other doctors so I wll seriously consider interviewing them now.   ; )

Good Grief!   

So, I am going to pick up my drugs.   Not about to take any MORE unnecessary risks.   If you want to have a technical AIDS label for life just listen to both my HIV docs.  Medication is YOUR CHOICE!

While I don't believe this label is anything more than a label it may be one you get too for waiting and listening to all the brilliant "experts."

Wesley




« Last Edit: March 01, 2007, 12:08:50 PM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Regretsafew

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  • Posts: 100
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #90 on: March 01, 2007, 02:30:53 PM »
Hey Wes,

Good luck on your meds man.  The nurse at my clinic told me not to have labs drawn  until about 30 days after a vaccination.  Although she didnt give any details about it but she said something about it stimulating the CD number and it would not be accurate.   Anyways  I hope you are well. 

Have a great weekend. 

Joey

Offline xtremepms

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    • Cono
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #91 on: March 01, 2007, 05:52:10 PM »
Hey Henry,

Oh he denies that to the bitter end.   We got into it a bit in the office today, but if you ask me the problem was the nurse cause she's been avoiding my calls ever since and I think regardless if it was or wasn't the cause it's just plain stupid to give anyone a vaccination right before labs are drawn.

After proclaiming his 17 years of experience we moved on to the medication issue.   Well, in all his brilliance he neglected to put the dosage on the Sustiva.

So, I was all planning to start Sustiva/Truvada tonight.   Now we have a big pharmacy fuck up.   The crabby nurse calls me up on my home and cell phone.   She's about as dumb as dirt I think.   I left a clear message why I'd called.   Apparently, she is just trying to kill me by stressing me out.

So, I freaking lost it with her on the phone.   Here I am at the pharmacy and she calls me back instead of the pharmacy wanting to know why they couldn't fill the prescription.   So I tell her again.   She still doesn't get it.   Finally, I say well do I have to write the damn thing myself or what?

Talk about ridiculous.   So the incompetent nurse who vehemently denies the Hep. Vaccine screwing up my labs can't even understand basic English.  I'm wondering if it was even a Hep Vaccine administered now.

As it sits now the pharmacy can't fill my prescription.  The nurse doesn't care and my pharmacy has to order the drugs.   So, I guess we will all just sit around until she gets off her lazy ass and gets my chart and/or asks doc if he wouldn't mind figuring out which of the 4 dosages I was suppose to have.

Fucking I really hate stupid people and I'm am more convinced now then ever that there was some huge screw up cause my labs have never taken a dive like that.   Doc had some half assed explanation which made absolutely no sense whatsoever. 

But I won't harp on this latest mistake.   It does say a lot to me when a doctor has to resort to "I've been dealing with this for 17 years"   

Ugh!   So, I pointed out my labs before when I had the drop from 627 to 409 when I wanted to start meds.   I was worried that something like this would happen.   When I brought up the fact he said "It doesn't work like that."   Oh Hell, his precious ego was bruised. 

Anyways, now thanks to advice of waiting I will forever have a technical AIDS label which I said thanks for that too!   You could say we weren't exactly bonding today.

So, moving on we went over meds.    I agree that Sustiva/Truvada was what I'd like to try first since I had to figure that out too.   I suggested this because Atripla as a beginning med could cause other issues.   However, if the Sustiva Truvada combo is ok then I can switch to Atripla.

In the meantime my Tcells continue to dwindle away as the incompetent nurse has to walk 20 feet or so to find my chart and I wouldn't want her to strain herself.   God forbid she may actually burn a calorie or two.

Can ya tell how happy I am today?   

Jesus Christ!   

Hey Wesley,
I am not sure how things work there, but from working in a doctors office, I can tell you, only the doctor can make certain decisions.  Many times we are made to look like idiots because the doctor does not give the right orders. 
Lucky for me, we have gone to electronic prescribing, and the doctors I work for allows us to have full prescribing abilities.  Before, we had to page the doctor and if and when he called back we were allowed to call in prescriptions.  Your nurse may well be a bitch, but just keep an open mind on this.  If the doctor says give the Hep vac, we may question him in private, never in front of a patient, but we do as we are told to do.  It is  a no win situation, if you question the doctor to much, you may lose your job.  If you don't, things like this happens.  Many days I go home crying and wanting to quit, but you don't quit a job until you have another, and not many jobs here in Michigan anymore! 
Cono

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #92 on: March 02, 2007, 07:21:25 PM »
Hey Cono,

Oh, I'm glad I don't work at a doctors office.  You know the older nurse is much nicer and I like her.   I don't think I'll ever let the one inject me with anything again though.  She has a poor attitude, and the pharmacist knew more about the meds than she did for certain.  Pharmacist was way nice and went over everything in as much detail as I needed with Patience and a smile.

I'll admit my emotions have been all over the map these last couple weeks.

So, last night Raggs and I went to visit my brother.   I took over my two little bottles of pills so he could see what $1600 buys ya here in America.   So I told him about my technical AIDS diagnosis.  Before I could explain it all he got all weepy eyed and that made me cry.   He doesn't quite understand all that much about HIV and asked me how long I was gona have to take these pills and when I said forever that seemed to upset him.

Anyways, we ended up having some drinks and were chit chatting about all kinds of stuff like potential side effects.   I have Sustiva and Truvada.   They aren't as big as I thought they'd be.   Sort of remind me of Flintstone vitamins ; )  The Truvada are a pretty shade of blue.   Sustiva looks more like a beige multivitamin.   They don't look scary!

Supposedly, I have to take these only at night together on an empty stomach.   My doc won't have it any other way, but the pharmacist disagreed about timing being a big ordeal and said I can have a light meal.    I'm wondering if it might be better for me to take these in the morning instead??????    I never eat breakfast anyway so as long as it's on an empty stomach what difference would it make day or night??????

I've never heard much about Truvada, but several people have spoken of vivid dreams etc. with Sustiva.   Dreams don't scare me really, but I've been known to sleep walk.   My mom is always worried I'm gona sleep walk and fall in my pool and drown ; )  Anyways, the sleep walking incidents typically only happen when I'm under a lot of stress.   This week qualifies so my brother is gona come over and spend the night tomorrow when I take these pills just so my mom won't be worried.  Now, I'm tempted to pretend to sleep walk and play some evil prank on him ; )

For all the horrible side effects I've heard about I'm really not that worried.   I don't think anything could be worse than Zoloft if any of you have taken that.  Ugh!  That was a long time ago, but my stomach felt as though I'd eaten a bowl of glass shards and I sort of passed out at work and freaked everyone out.  So, my hope is that this will be one big non event. 

Someone mentioned watching porn before bed to spruce up your dreams so I may give that a whirl.

Well, any last minute tips on the meds anyone?   

Thanks,

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Nico

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  • Posts: 262
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #93 on: March 02, 2007, 08:51:20 PM »
Wes,
Take the meds and don't set yourself up for something that may/will not happen.  Shit, we all face new challenges in life.  Yes, this is new to you (meds), but not so new since you have been so involved with other HIV+ people through "my space", Aids Meds, etc. 

We all feel the same way.  We all are scared and afraid.  We don't want to take this shit and wish we could just be O..Fucking..K!

Be thankful you have access to meds.  Be thankful you have a place to vent.  I wish I only had to pay your price for meds.

Damn it, you are still accepting this.  I have - I had no choice.  I just don't want you to set yourself up for failure.

I have broken through the fear and you will too.  Times may be tough, but you have "us".

Peace and hugs.

Roger

 
Poz since 1990.

Offline Longislander

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  • Posts: 2,486
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #94 on: March 02, 2007, 09:17:02 PM »
no tips for you Wesley, just want to wish you every success with the meds.

oh, one tip-you may not want to watch the porn if your bro's gonna be in the room with ya~ ;)
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline David_CA

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #95 on: March 02, 2007, 10:10:03 PM »
Wes, I take Atripla, so the same advice goes for it as for Truvada and Sustiva.  Follow the suggestions of taking it right before bed and on basically an empty stomach (but drink lots of water with it) for the first week or two.  Then, you can experiment to see how much or what you can eat prior to taking it.  I've found that eating peanuts late at night causes me to have a horrible hangover-like headache the next day; I think that's the Sustiva.  I can eat as much meat, cheese, chips, cookies, whatever and I feel fine, but I stay away from peanuts at night.  Each person is different and the list of side effects is pretty much what is possible to experience, but not what is likely.  I've said it before, but my Atripla could almost be a placebo the side effects are so mild.  I did have another really funky dream last night that made absolutely no sense, but I've not had any bad dreams. 

Sometimes, the Atripla (Sustiva?) makes me feel dopey if I stay up a while after taking it and first thing in the morning if I don't get enough sleep.  I'd rather sleep through that and deal with it during the day, so definitely take it at night right before bed. 

Good luck with it; you'll likely do fine.  When you get your first labs after being on the drugs for a month or so, I think you'll feel that they are worth it.  I know I did.  I have labs scheduled for Monday, and I expect to be undetectable.  Take care.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #96 on: March 04, 2007, 12:45:25 AM »
Hey David,

Thanks for the tips.   Damn it!  I fell asleep watching a movie earlier so now I'm gona pop my pills in an hour or so here for the 1st time.

So, I am behind on my CSI shows (the Vegas ones) and think I'm just gona watch those.  LOL, no telling what my dreams will be about, but I won't think about it.   

Well, if I pop on here in a few hours trying to solve a murder or something you guys will know why.

Thanks Long and Roger!  ; )

Either I will fall asleep or I'll be back here later.   Wish me luck!

Sweet Dreams!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #97 on: March 04, 2007, 03:56:05 AM »
hope it's morning, and your dreams were all sweet and mushy~ ;)
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #98 on: March 04, 2007, 01:15:33 PM »
LOL,  I am so disappointed.   I didn't have ANY dreams!

I slept for like 9 hours and this morning I really don't notice any issues.   Maybe a little slight dizziness and a bit groggy.   So, I don't know if there is some cumulative effect or what, but I feel fine.

As someone that knows all too well anxiety issues and panic attacks Sustiva and Truvada haven't done anything yet.

I was a little groggy this morning and just a tad dizzy (almost enjoyable) like a slight "high".

Tonite will be 2nd night so we'll see if anything changes, but quite frankly my biggest concern was some giant anxiety attack or feeling disconnected with reality, waking up with night terrors, that kind of thing.

So far NOTHING has happened!   I've had much much worse side effects from  things like Metabolife and antidepressants.

For all the bro ha ha I have nothing to report that special.    Again, I don't know if there's some cumulative effect yet, but so far for all the fireworks my first night was a BIG FAT DUD!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline tigger2376

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  • too bad to die youngish!
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #99 on: March 04, 2007, 07:03:58 PM »
So far,so good!
Said I hoped we'd be raising a glass to no side effects in a week....roll on friday!
Long may this continue for you
Jo
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #100 on: March 04, 2007, 11:10:59 PM »
Thanks Tigger!

Yep, NO major issues so far.   I'm much relieved.   Tonite will be 2nd night, but I'm not worried so things are looking up!   

Really, I think I need a to start a new thread now about my "med" non issue or something.   I just hope it stays that way.

Take care & thanks!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #101 on: March 05, 2007, 10:19:26 AM »
Hey Austin

You took the took the big step of meds. I am proud of you and am happy your first night on meds was uneventful. Supposely the first weeks are the most difficult and if you can handle the first weeks without much happening then you have succeeded. Keep us posted and let us know how night 2 went.

I totally agree with you about getting more side-effects on anti-depressents than the meds. I literally was going crazy with the side-effects of anti-depressants and had to end them after 2 weeks. I was expecting the worse from HAART but it turned out to be less uneventful than anti-depressants, go figure.

Love,

Al
« Last Edit: March 05, 2007, 10:20:58 AM by Ihavehope »
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #102 on: March 05, 2007, 12:32:19 PM »
Hey Al,

Well, day 2 and I had zero side effects.   I even took them 45 minutes earlier to see if anything would happen before I went to bed.   Nothing I could notice, maybe got sleepy a little earlier.

Slept great! So, day 3 is here.   

I think the psychological effects were far greater from my own fear.   It was interesting to me that the pharmacist pointed out the side effects of Sustiva/Truvada weren't much different from the majority of prescriptions.   That pharmacist also gave me her own point of view that the patients that seemed to have problems were on multiple other prescriptions.   

You know that prior doctor I fired said she wasn't going to prescribe anything with Sustiva including Atripla because she felt I'd have a lot of side effects.   Hmm, well so far she has been wrong on everything and I'm glad I didn't listen to her.

I have to run, but wanted to leave a quick message here.   There's a tremendous fear of meds out there.   Well, so far I can't personally say I've had anything to report.   I haven't even eaten very nutritional food this week.   The only thing I didn't do was have anything to drink (alcohol).    I figure in a couple weeks I should be completely adjusted and then I'll have a drink or 3 if I like.   For now, there hasn't been anything I could complain about.

Glad you are doing well also.   I know I turned into a blubbering mess before and now feel slightly embarrassed ; )

Much love,

Wesley

Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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  • Yes, I'm a cry baby, AND WHAT?
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #103 on: March 05, 2007, 12:35:36 PM »
Oh girl,
Don't feel embarrased. You had a reason to be afraid and overwhelmed. I cried and screamed here and there was one or two folks who called me cry baby but I am a cry baby so they really didn't tell me anything i didn't know. Well girl, you shall do fabulous, just like me.

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline megasept

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  • Steven here...
Re: HELP! Lab Tests & AIDS vs. HIV Terminology
« Reply #104 on: March 05, 2007, 01:11:46 PM »
UPDATE:  See my last post.  What do you think???????

Now I know why my doctor didn't return my call back with my labs.   I am shaking right now because of this.  Why did I ever listen to him and believe I could go for years or even months?

Now I HAVE AIDS?

How the fuck could this have happened?

My last test results are below, this info I finally got out of the nurse as the worst wake up call of my life a few minutes ago.

My heart is racing and I am totally freaked out.

MY CD4 is now 139   AIDS?

Hands are shaking as I type this..........  How could this happen in a MONTH?

Right now I need serious help, and I can't understand this.   Don't listen to any doctor telling you this crap of years and years.

Wesley


Wesley: Sorry you're going through a rough patch. You're tough enough to publicly admit how scared and angry you are right now.

Two simple points:

1) Let's not make "AIDS" diagnosis vs. an "HIV" diagnosis into a big deal. Let's stick to analyzing the numbers, trends, and percentages. Same virus. I know you understand this intellectually, but somehow this shit gets into our subconscious and plays with our already-elevated fears (I believe our dreams help or hurt us, each and every day).

You many have "gotten worse" and I pray you will get much better, and soon. You (and all poz) may swerve back an forth over the artificial barrier (linguistic and social service policy-driven) between two terms for the same damn disease. The sooner everyone stops using "AIDS" for any stage of HIV the better off we'll be.
 
2) I do not believe in changing laboratories, at least not to get at the truth.

I once had my blood drawn simultaneously, and sent to two different labs. I was entitled under a study, and when asked to decline the duplicate offer--a little light bulb went on in my head--I thought "This could be interesting". It was way too interesting.

Result: very different numbers from the same blood from the same hour. In fact, that experience is so disturbing, I feel like we could almost pick a lab for the kind of "result" we want. YIKES!
This is not to say your test results are false. But it is cautionary about taking these numbers as finite indicators.

Get better!  8) -megasept

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #105 on: March 06, 2007, 04:45:32 PM »
Oh girl,
Don't feel embarrassed. You had a reason to be afraid and overwhelmed. I cried and screamed here and there was one or two folks who called me cry baby but I am a cry baby so they really didn't tell me anything i didn't know. Well girl, you shall do fabulous, just like me.

Al

LOL AL! 

You gotta change that avatar!   I thought oh Lord my vision has gone all strange.   Well tonite is 4th dose.   

I had difficulty sleeping last night which was related to something I had to handle today (not the meds).   Anyway, I definitely think Sustiva/Truvada should be taken at night.   

I got up cause I was wrestless and wow that Sustiva must have been kicking in high cause I had a woozy dizzy feeling.  I was heading downstairs for a smoke to contemplate the stuff I had to do today and I was like why the Hell did I buy a multilevel house? ; )   I didn't feel sick or anything, more like I was in a fun house walking down those stairs.   Like I had some inner ear issue ; )   Little strange, but not scary or sick like.

In fact, I've noticed after I handled my stress ordeal today that I was feeling pretty damn good.   I decided to pamper myself and went out and took care of me today.   

So tonite is nite 4 and honestly I don't feel bad.  I've haven't been sick at all.   So, we'll see, but so far so good.   

Here's what I tell myself (corny as it is)   OK, pills kill that fucking virus cause in a month I want those numbers undetectable and work your magic! ; )   

I anticipate things will continue to improve.   Considering my lousy diet and what not it's amazing I have not been sick without HIV. ; )

I'm starting to look at these pills like vitamins.   I feel like I'm taking control of my life again.   I just could not see going in circles waiting tell I got really sick debating the pros and cons and etc forever on here any longer.

The way I look at it there are over 1 million people in the US with HIV.  There are 5000 on here.    My guess is the vast majority of people are out living there lives and just taking the meds and that is what I will be doing.    I'll come back to update this and of course if anything changes, but I'm happy with my decision.

Love ya,

Wesley
« Last Edit: March 06, 2007, 04:53:24 PM by AustinWesley »
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Andy Velez

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #106 on: March 06, 2007, 05:16:41 PM »
Wesley, I'm glad you're doing well so far. Excellent move to dump the dumb doctor.

And I agree that starting a new thread is a good idea as well. Not because you need to feel embarassed but rather just for staying current and making it easier for people to get through the thread.

Cheers,
Andy Velez

Offline Basquo

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #107 on: March 06, 2007, 09:59:23 PM »
Wes ROCKS!  Thanks for sharing your experience with us. You're brave, and you make me want to be brave, too.

Offline Longislander

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #108 on: March 06, 2007, 11:34:52 PM »
Quote
I was like why the Hell did I buy a multilevel house? ; ) 
   

lol, I thought the very same thing when I was first diagnosed!


Like Basquo said, thanks for sharing this all with us. I wanna be brave too ( soon)!
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Catman

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    • Who is the Catman?
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #109 on: March 07, 2007, 10:57:43 AM »
All you "first timers" will be brave and I'm sure of that! I've been taking meds since 1993 and it's always been like taking a vitamin pill. I can only say that injecting Fuzeon is not fun (but I have to do it twice a day) and my brief experience with Sustiva was no fun either. The nightmares were to vivid and I felt drugged even at work and driving. Crixivan gave me pancreatitis like 6 times but I only quit it when I became resistant. Every other med was well tolerated no matter the amount of pills I'd take. I'm here for you guys for any boosting of bravery, and "longislander", you've met me personally and know I have plenty of braveness to share.
Catman

Meow to the birds
Meow to the tree's
Meow to the end
of this dreadful disease...

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #110 on: March 07, 2007, 11:04:39 AM »
Thank you Catman.. You are a breathe of fresh air.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #111 on: March 07, 2007, 06:05:15 PM »
Hey Basquo and LongIsland,

Thanks, with regards to the med issue I don't really feel I was brave.   I took the most sensible course of action with my best educated guess and got lucky, really lucky.

I feel terrific.   Going on day 5 with NOT ONE negative side effect and I'm very thankful for that cause now I will be able to move on with my life.   Hell, my fatigue is gone and I don't look any different or feel weird.   I feel like all of the horrible effects are diminishing that I was having and I have energy again.

I most definitely have empathy for those who aren't so lucky.   But, I now strongly feel that I've made the right choice for myself.

Yes, I'm well aware of some of the potential for long term effects, but I chose to do something and don't regret it.  If I develop some liver issue later or God knows what I'll deal with it later.   Had my counts not gone haywire I would have likely waited somewhat longer, but all of that horrible anticipation and anxiety for now is gone for the most part.

Each person ultimately has to make their own private decision.   I'd encourage everyone to learn as much as possible beforehand, but just know that even if only 1 in 1000 people has some side effect it has to be reported to the FDA and all of the horror stories don't happen to everyone.

Best wishes on your own decisions.

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline jack

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #112 on: March 07, 2007, 06:42:10 PM »
be happy we are no longer in the days of 38 pills plus some liquid norvir per day.
Numbers go up and numbers go down,sort of like the stock market.  I guess after awhile you sorta get immune to it,till they get down to 134,that would scare me too.
Many people have no problems on sustiva, I just had vertigo that can I can only describe as very similiar to a one minute lsd trip except I couldnt stand up. I am taking truvada now and having no problems,even though each one of the drugs that make it up have made me very sick and nauseous in the past. Go figure.

Offline budndallastx

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #113 on: March 08, 2007, 06:51:09 AM »
Glad you're doing well with the meds Wes.  When do you get your next set of labs?
Meds since: 11/20/2006
Sustiva / Truvada
12/08/2008 VL:<48 CD4 622 (38%)   
9/8/2008 VL:<48 CD4 573 (30%)
5/2008 VL:<48 CD4 464 (30%)
1/2008  VL: <50  CD4 425(28%)
9/2007   VL: <50  CD4 465 (27%)
6/2007   VL: <50   CD4 443 (26%)
3/2007  VL: <50   CD4 385 (25%)
12/2006 - VL: <50   CD4: 384 (25%)
11/2006 - VL:  22K  CD4: 208 (18%)

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #114 on: March 08, 2007, 11:46:15 AM »
Hey Bud,

I'll probably wait a month to 6 weeks.   I really need to start a new thread about this but for those who've followed it this far I'm not sure how.  Maybe I will call it chapter 2 or something : )

What's today? Day 6 or something?  I had to get up earlier and did notice a slight foggy/groggy feeling, nothing bad, but I've also noticed I'm not wiped out anymore.

So far so good.   Better than I could have anticipated. 

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #115 on: March 08, 2007, 11:51:38 AM »
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline AustinWesley

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Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #116 on: March 08, 2007, 01:35:31 PM »
Thanks Al,

I've been officially warned for "flaimbaiting" as I am also not one of the favorites here so I am not sure I will be allowed to share my opinions anymore!

Not sure why I have now been singled out as well for expressing a valid concern, but guess that's the way the mop flops around here.

Audios!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Ihavehope

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  • Yes, I'm a cry baby, AND WHAT?
Re: HELP! How could I have gone From HIV+ to AIDS Overnight? UPDATE????
« Reply #117 on: March 08, 2007, 01:42:28 PM »
Hey Wes

Sorry to hear that the other girls aren't play nice with you. Don't go!

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

 


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