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Author Topic: I am sick and tired of being sick and tired  (Read 4225 times)

0 Members and 1 Guest are viewing this topic.

Dan J.

  • Guest
I am sick and tired of being sick and tired
« on: February 18, 2007, 02:30:30 PM »
I have been battling the flu since Jan 30th, & I'm not over it yet. Been having very bad migrane headaches, throwing up & fevers of 100+ start around 2 PM.  & my hiv meds aren't workig anymore & my doc says to me there is nothing else he can prescribe me.  I am frustrated by this recent CSI issue. Everyone here should have read the tems of service BEFORE they registered at this site, I did & I understood the terms. I don't see why this has sudenly become such a big issue. I thnk the whole point of this CSI thing was to raise the membership counts & try to expose more HIV+ people to what is offered here.

Right now I can't deal with being here on a daily basis anymore & will be taking a break for a while.

Take care,

Dan

Offline ndrew

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  • ....-.-.-.-.-.....
Re: I am sick and tired of being sick and tired
« Reply #1 on: February 18, 2007, 02:47:49 PM »
Hi Dan,

I hear your frustration.  I had the flu, then a cold, then a sinus infection.  I still feel pretty fatigued, but I am trying to it back together (actually started to go to the gym). 

I can't help you with your meds. but I know a there are others on here who can.  That's a huge stressful hurdle of stress.

Take your time to heal and focus on what is important and healthy for you.  There will always be disagreements, but remember behind this are a lot of wonderful, caring people.

Luv and support,
Drew

Online Miss Philicia

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Re: I am sick and tired of being sick and tired
« Reply #2 on: February 18, 2007, 02:49:40 PM »
Are you folks catching the flu even though you had your yearly flu shot?

Anyway, Dan hope you feel better soon and rejoin us.
"Iíve slept with enough men to know that Iím not gay"

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #3 on: February 18, 2007, 02:52:08 PM »
Dan, I hope you get to feeling better soon.

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #4 on: February 18, 2007, 02:56:13 PM »
philly267, what we got inoculated for this year wasn't the strain that started going around. I just avoid large congregations of people and hope I don't come down with it. It does the number on people with a good immune system, let alone those that don't.   

Dan J.

  • Guest
Re: I am sick and tired of being sick and tired
« Reply #5 on: February 18, 2007, 03:00:26 PM »
Everyone I am sorry for venting  liike I did. I am just so tired of being sick. I went to eat lunch & rushed home to take the meds that don't work anmyore & I threw up in the driveway. Now I don't have anything on my stomach to take my meds. Quess I will skip this dose.

I didn't mean to go on a tirade about the CSI thing. I understand some of your concerns about, but what is done is done & I don't think it can be changed until the storyline ends. We are all just going to have to deal with  for a while. I  have faith in Peter & believe what he has told us, why should we doubt him now?

Thanks,

Dan

Offline skeebo1969

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Re: I am sick and tired of being sick and tired
« Reply #6 on: February 18, 2007, 03:01:57 PM »

  Dan I hope you feel better soon...  Maybe some Jewish Penicillin is what you need..

  Take care of yourself Dan..
I despise the song Love is in the Air, you should too.

Offline mjmel

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Re: I am sick and tired of being sick and tired
« Reply #7 on: February 18, 2007, 03:11:48 PM »
Sorry to read you are feeling poorly, Dan J.
Hope you feel better--soon.

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #8 on: February 18, 2007, 03:14:49 PM »
Dan, it's quite alright to vent. There is nothing good about being ill. Just take care of yourself.

Rodney

Offline emeraldize

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Re: I am sick and tired of being sick and tired
« Reply #9 on: February 18, 2007, 03:23:41 PM »
Dan

I hope you have someone you can lean on during this period. Safe to assume you're staying in close touch with you doc? Especially, during this series of fevers, vomiting and dose-skipping.

Sent with a hug.
Em

Offline DanielMark

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Re: I am sick and tired of being sick and tired
« Reply #10 on: February 18, 2007, 03:46:40 PM »
Hope things begin to improve for you, Dan.
MEDS: REYATAZ & KIVEXA (SINCE AUG 2008)

MAY 2000 LAB RESULTS: CD4 678
VL STILL UNDETECTABLE

DIAGNOSED IN 1988

Online Miss Philicia

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Re: I am sick and tired of being sick and tired
« Reply #11 on: February 18, 2007, 03:46:59 PM »
philly267, what we got inoculated for this year wasn't the strain that started going around. I just avoid large congregations of people and hope I don't come down with it. It does the number on people with a good immune system, let alone those that don't.  

Yeah, that's what I suspected and why I asked.  Nothing worse than the flu, though I'm starting to think I may be getting bronchitis right now.  The cough has begun!  I get this yearly, sometimes twice.  It's such a joy.
"Iíve slept with enough men to know that Iím not gay"

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #12 on: February 18, 2007, 03:56:27 PM »
Oh, I don't want that either. Just take care of yourself.

Offline Life

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  • Posts: 2,388
  • Member 2005
Re: I am sick and tired of being sick and tired
« Reply #13 on: February 18, 2007, 04:04:35 PM »
Dan, I am saying some prayers for you sweetie....  I wish your doctors could do something for you... Thats to long to not feel good and it would be a drag on anyone to feel like that...  Stay strong knowing how many people love and care for you...

Love,

Dan J.

  • Guest
Re: I am sick and tired of being sick and tired
« Reply #14 on: February 18, 2007, 04:05:33 PM »
Dan

I hope you have someone you can lean on during this period. Safe to assume you're staying in close touch with you doc? Especially, during this series of fevers, vomiting and dose-skipping.

Sent with a hug.
Em

Thank goodness I have Herman.

Online Miss Philicia

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Re: I am sick and tired of being sick and tired
« Reply #15 on: February 18, 2007, 04:06:38 PM »
Yeah, my numbers are good now so I'm wondering if I can deal with it on my own or if I should call my doctor on Tuesday.  Because I'm Miss Pro-Active I'm sure I'll pick up the phone, definitely if it progresses more.  It's been mild all week long... sure I picked it up in NYC.  That place is just crawling with bacteria due to the population density.

I've got some left over medications that I can dive into in a heartbeat if I need to.  It's really not that bad yet, but I know how it begins slowly and builds up because I've been getting it since even before I had HIV.  I was always the "sickly child" in the family, and my brother the Aryan Jock.
"Iíve slept with enough men to know that Iím not gay"

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #16 on: February 18, 2007, 04:11:19 PM »
I would Philly, get some pills and a inhailer. It could be worse, you could have what Dan has too. I hope you both get over it as fast as you can.

Offline Longislander

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Re: I am sick and tired of being sick and tired
« Reply #17 on: February 18, 2007, 04:11:22 PM »
Dan, I hope you start feeling better soon.  Take a break if you feel you need it, but please pop in every now and again and let us know how you're doing.

Big hugs
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: I am sick and tired of being sick and tired
« Reply #18 on: February 18, 2007, 04:35:07 PM »
Dan,
You are so very lucky to have Herman. I know how you fell being sick for so long.

I have had the runs for 7 straight days now, and crapped the bed last night. I was so weak and run down, I wanted to scream.

But we must keep going and keep the faith. What else can you do?

Hang in there  Dan. Better days ahead.
Positive since 1985

Offline Ihavehope

  • Member
  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: I am sick and tired of being sick and tired
« Reply #19 on: February 18, 2007, 05:07:09 PM »
Dan

Hang in there sweatheart. Keep on pushing and finding strength. Hermie will be with u soon so that should give you something nice to look forward to. You can do it baby.

Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline heartforyou

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  • Posts: 1,105
  • I must be a survivor in many ways...
Re: I am sick and tired of being sick and tired
« Reply #20 on: February 18, 2007, 06:02:08 PM »
Danny boy, hang in there now.

I have been struggling to keep going myself lately, after my rectum surgery and  a heavy bronchitis.
And having to work 14 hours daily again. That part will be over in exactly 10 days.....
So, there is little more I can do for you.then talk to you...

You will be getting that so needed third drug that my doctor has hammered on, since you took that genotype test with her.
I hope your doctor let's go of his Ego and starts treating you full power. I hate to see you struggle when there is salvage right in front of you.

This is a place to vent, so please, don't worry about that.

Hug from Hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline egello

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  • Posts: 899
  • cb
Re: I am sick and tired of being sick and tired
« Reply #21 on: February 18, 2007, 06:21:47 PM »
hey

sorry to hear that,,,

could all that be some sort of allergic reaction to some of your meds?

hmm.... rest and take care, i know it sucks to be poz and be sick as well.....
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline tigger2376

  • Member
  • Posts: 462
  • too bad to die youngish!
Re: I am sick and tired of being sick and tired
« Reply #22 on: February 18, 2007, 07:20:52 PM »
Dan. i'm sorry you feeling so bad. Hope the time that you are taking out helps x
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline poet

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  • Posts: 934
  • Poet living and working in Central Maine
Re: I am sick and tired of being sick and tired
« Reply #23 on: February 18, 2007, 07:28:41 PM »
Hey Dan.  I agree that when you are tired or, as in your case, not feeling well and frustrated with meds. not working, the forums can start to look drab or even annoying.  I wish you a speedy recovery and posts to come back to which remind all of us why we are here.  Best, Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline Robert

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  • Posts: 2,649
Re: I am sick and tired of being sick and tired
« Reply #24 on: February 18, 2007, 08:06:05 PM »
I think Thomas has a wonderful idea.  Chicken noodle soup.  A can of Campbell's chicken noodle soup can do wonders.  Two cans even better.  Add toast or a grilled cheese and, hopefully,  you'll be feeling a little better.

You have enough to stress out over so, Danny, don't even give the CSI shit a second thought.  It's not worth it.  At the end of the day, we'll all still come back and one way or another give each other the support we need.

robert
..........

Offline joemutt

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  • Posts: 1,042
Re: I am sick and tired of being sick and tired
« Reply #25 on: February 18, 2007, 11:52:12 PM »
Hey Dan, Get well soon.

Dan J.

  • Guest
Re: I am sick and tired of being sick and tired
« Reply #26 on: February 18, 2007, 11:58:15 PM »
Thank you all for your kind responses. I know I don't have it as bad as some of our other forum members but I am frustrated especially with my HIV med situation & the flu has really worn me down over the last 4 weeks.  At the end of January I weighed 166 lbs, I now weigh 140. My viral load is on the rise & my tcells are dropping. My doc said that would be normal after the flu . Plus with the HIV med doses I have missed because I just didn't feel eating much (& still don't) are contributing to that situation.

I am not leaving the forums, just taking a break. I spend too much time here and get wrapped up in whats going on . Sometimes it's good to be here so much. It takes my mind off my own personal health issues but at the same time it drags me down.
 

I posted this thread because I need some encouragement. I received that today.

I dread going to bed because I know the nightsweats are going to come & it is bothersome to know that during the middle of the night I will have to change the sheets at least twice.

Thanks for listening.

Dan

Dan

Offline RapidRod

  • Member
  • Posts: 15,288
Re: I am sick and tired of being sick and tired
« Reply #27 on: February 19, 2007, 12:09:38 AM »
Dan, I don't miss a dose even if I don't feel like eating. I take them anyway. I've never had a problem with doing it that way. I know it may have something to do with the absorption rate, but that's better than not taking them. That's if you can keep them down since you are sick with the flu. I do hope you feel better soon.

Offline AustinWesley

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Re: I am sick and tired of being sick and tired
« Reply #28 on: February 19, 2007, 03:26:49 AM »
Hey Dan,

Take a break if you need to and get well.  That's all that is important. 

Hang in there.   I know it is so damn frustrating with stuff that drags on.   Especially in the winter!   

Best wishes and take care!

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Online Miss Philicia

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Re: I am sick and tired of being sick and tired
« Reply #29 on: February 19, 2007, 09:15:45 PM »
My cough is getting  worse.  I think I may call the doctor tomorrow.  I hate bronchitis.
"Iíve slept with enough men to know that Iím not gay"

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #30 on: February 19, 2007, 09:25:31 PM »
Sir, you were suppose to do that today.

Offline northernguy

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Re: I am sick and tired of being sick and tired
« Reply #31 on: February 20, 2007, 01:41:20 AM »
philly267, what we got inoculated for this year wasn't the strain that started going around. I just avoid large congregations of people and hope I don't come down with it. It does the number on people with a good immune system, let alone those that don't.   


That's funny, up here the news was saying that the vaccine was a pretty close match for the strain that emerged.  Wouldn't the vaccine be the same worldwide?
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #32 on: February 20, 2007, 07:40:53 AM »
It didn't help here with that strain of flu.
« Last Edit: February 20, 2007, 11:13:58 AM by RapidRod »

Offline RapidRod

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Re: I am sick and tired of being sick and tired
« Reply #33 on: February 20, 2007, 07:41:34 AM »
Dan, are you feeling any better?

Offline Lisa

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Re: I am sick and tired of being sick and tired
« Reply #34 on: February 20, 2007, 10:57:06 AM »
I'm so sorry you have been so sick sweetheart. I know I haven't heard from you much, but I thought it was because you were busy with work, and Hermie. Silly me.
I know it's no fun being sick, but if it had to be something, I'd rather it be a flu, than the nasty Norovirus that has been going around  here like wildfire.
You know it takes us much longer to recover from these things, especially since you have been in a weakened state with the new meds.
My only best asvice, is to make absolutely certain you keep yourself hydrated. Have you been trying any of the nutritional boosters? Ensure, Sustacal, you know.....
I have found that keeping a small personal fan on you at night does help dissipate the night sweats a little more efficiently. Even in the winter time.
I'll keep you in my thoughts. Hope you feel better baby. :-*
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Online Miss Philicia

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Re: I am sick and tired of being sick and tired
« Reply #35 on: February 20, 2007, 11:30:01 AM »
Sir, you were suppose to do that today.
It's better today... I slept a lot all night.  (and took some old medicine I had left!!!)
"Iíve slept with enough men to know that Iím not gay"

Dan J.

  • Guest
Re: I am sick and tired of being sick and tired
« Reply #36 on: February 20, 2007, 12:19:25 PM »
I have an appointment with my new general practitioner Wednesday afternoon for the worst headache I ever had in my life since last Friday. It's so bad I am light sensitive, sound sensitive the pain is behind my left ear. I hope the doc orders an M.R.I. of my head. I can't look at the computer screen very long  so I am trying to keep this brief.   

Dan J.

Offline Queen Tokelove

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Re: I am sick and tired of being sick and tired
« Reply #37 on: February 20, 2007, 01:56:42 PM »
Dan~~

I hope you get better soon.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline tigger2376

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  • too bad to die youngish!
Re: I am sick and tired of being sick and tired
« Reply #38 on: February 20, 2007, 09:38:03 PM »
Good Luck with GP, hope he/she can help. take care
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Online Miss Philicia

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Re: I am sick and tired of being sick and tired
« Reply #39 on: February 21, 2007, 08:54:59 AM »
Bronchitis back.  Calling doctor at 9 AM
"Iíve slept with enough men to know that Iím not gay"

 


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