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Author Topic: Newbie here  (Read 4915 times)

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Offline NewYorkKat

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  • Posts: 133
  • Hangin' On Staying Strong
Newbie here
« on: January 03, 2007, 03:04:43 PM »
I have butterflies in my stomach.....

This is my first posting. I would never think I would be here but life is funny and you take it as it comes.

I was diagnosed 12/12/06. I would never think I would end up this is way. So let tell you my story.

All my life I was careful. When I came out, safe sex was everywhere. So I was always careful. My first BF and I had great time in the 10 years we were together. We practiced safe sex and in 1996 I got my first HIV test and it came back negative. After we broke up, I was still careful. In 2005 I met an amazing person who opened my mind to the world. We went to France and he gave me a wedding band. We always practiced safe sex and in June 2006 I got my 10th HIV test and it came back negative. He too is negative. However it was to change.

I went to Germany in July 2006 and I acted stupid. Very stupid. I look back now and I actually felt more safer in New York than in Germany. When I got back (My BF didn't;t come with me. I went to there to see a friend)
I noticed a slight fever and that was it. I never had the flu so I didn't know what was it like. I went to get tested and it came back negative but my doctor said get tested in a few months, that it was too early to tell.

On Dec 12, 2006, I went to a clinic and my test came back positive. It felt like someone kicked my stomach and I was in shock! This came at a very bad time. I just went back to college and it was holidays. I had a final that night. I said to myself "How can I tell my BF??? He's going to kill me!" So you can imagine how I felt during my Anthropology test.  I was shaking. I even told my Psychology professor who happens to be a HIV Educator. He was so helpful. (Thank you God for putting him in my life!)

I got home and told my bf. He was in shocked. However, he said no matter what happens, he will always love me and be by my side. He said he married me through thick and thin. He got me health insurance and helped me pay for some bills. (WHAT A WONDEFUL MAN!!!)

So now I been going to GMHC and they have helped me out. I have been educating myself on this. I went back to school to study psychology (Lord only knows how our minds are so fragile and play a big role in our physical health!) so now I want to help people out dealing withmental  health issues especially HIV.

What frightens me the most are the meds and what they can do. I read horror stories and it gives me knots in my stomach. A doctor at Callen and Lord (where I got tested) looked at my blood work and said my VL is 8744 and my T cell count is 744 (I don;t know what that means. Anyone can help?) and she said I was healthy. I go back on Thursday and get a followup.

I am scared. Really scared but I know I must be strong. I pray each night before I go to bed and that helps me rest. I am watching my diet and started back into the gym ( I was once obese and lost nearly 100 pounds).   

I am glad I found this forum. I hope they find a cure. I know they will. I mean, if they clone meat for human consumption and it gets approval from FDA, they can find a cure.

I plan to be around for a long time and continue my studies. My old plans are still in effect!


Offline Ihavehope

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  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: Newbie here
« Reply #1 on: January 03, 2007, 03:35:53 PM »
Hello

I want to first let you know that this website will help you try to get adjusted the same way I am learning to get adjusted. I myself was tested positive 12/6/06 and felt like my world shut down. I had a suspicion and was in denial for about a year. The last time I got tested was 1/05 and it came negative, but since then I did stupid things that led me to get infected. In 4/06 I had a flu, like yourself, i never get the flu and that is where my first suspicion came. I ended up going to several doctors on 10/06 because I felt some chest pains and gastritis both doctors told me I was fine but the last doctor told me some white blood cells showed up in my urine. The first thing that came to mind was HIV, after 3 weeks of trying to build my courage to go get tested at Callen Lorde I made the appointment. I wanted to get it over with and have a good Christmas and celebrate that I was negative and promised myself I would never ever do the things I did again. Unfortunately things didn't work out the way I wanted them to.

All I can tell you is that you are not alone. And feeling guilty and depressed will make your mind and body sick. I been talking to several doctors who specialize in this and they claim that good treatment is out there for us and although many people do feel side effects it does keep us alive. Just know that if you ever need to talk to anyone I am here. BTW your CD4 counts looks very good, so I wouldn't worry too much about treatment now. Good luck papo.

Alex
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline rick21007

  • Member
  • Posts: 286
Re: Newbie here
« Reply #2 on: January 03, 2007, 03:51:56 PM »
Hey There--Welcome from another newbie!  I was diagnosed the day before you were.  I can sure relate to a lot that you say.  Wow!

First of all your T-cell count is really encouraging.  Mine is 560 and I was pretty happy it was so high.  I don't go in for my first appt. with my hiv specialist until January 22nd.  In the meantime my regular MD has been great.  My hiv Md had called me last week just to introduce herself and check up on how I was doing (who ever heard of a doc doing that for a new patient??) and she told me I most likely would not need to start meds now, given my current labs., so maybe you won't either.  Fortunately I am a very healthy guy otherwise and in great shape and am practiced at taking care of myself.  That all counts for the good.

Like you I don't know what I would have done without the love and support of the Love of my Life.  Fortunately I did not expose him.  (The reason I got tested in the first place was to be sure of my status prior to having unprotected sex.)  He has been like the Rock of Gibralter.  He told me his love is stronger than the hiv virus. He had asked me to marry him just a few weeks before I was diagnosed.  (Gay marriages are not legally recognized here but we decided we would rather have a religious ceremony anyway, and we wanted to take each other's names legally).  If anything this has brought us closer than ever before.  I have never been one to lean on anyone.  It feels really good to know someone is there and keeps coming through when I need that now.


None of us can do it alone, that is for sure.  I found this forum just before Christmas.  The folks here are first class!!

Rick

Offline NewYorkKat

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  • Posts: 133
  • Hangin' On Staying Strong
Re: Newbie here
« Reply #3 on: January 03, 2007, 04:04:08 PM »
Hey guy! Thanks for reaching out!  Yes I am scared but I know I can't be. Yes, it is true that having a wonderful husband who is so supportive makes me feel that I will beat this thing. I do have a few concerns but I need a MD HIV Specialist to help me with that.

My husband is a great guy and i am glad I didn't infect him. He's an angel and he makes me strong.

Please keep in touch! What a wonderful group this is!

Offline Ihavehope

  • Member
  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: Newbie here
« Reply #4 on: January 03, 2007, 04:09:04 PM »
Can you tell me how good the support groups are in GMHC? I really need to find a support group.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Ann

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  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Newbie here
« Reply #5 on: January 03, 2007, 08:00:54 PM »
Hi NYKat, welcome to the forums.

Your numbers are fantastic and you don't need to worry about meds just yet. Give yourself time to adjust to the idea of being positive first - you've got plenty of time.

If you have a look at the Welcome thread at the top of this forum (and the one in the Living forum), you will find there are many different areas to this website. One section is the Lessons and if you have a look through them, you'll see one called "The blood tests you'll need". In that section you'll find very good, easy to understand information concerning what your numbers mean.

Hang in there. It's a rollercoaster ride of emotions to start with, but it does get better in time.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline rick21007

  • Member
  • Posts: 286
Re: Newbie here
« Reply #6 on: January 04, 2007, 12:11:54 AM »
I joined a fraternity in college.  The guys in my pledge class got pretty tight and stayed that way through  our college days.  Kinda feels like those of us who were recently diagnosed around the same time are the new pledge class on this forum.  Seems like we might get to be pretty tight also.  And thanks to all you upper-classpersons who will guide us through, knowing what we are going through now and what lies ahead!

Rick




Offline Longislander

  • Member
  • Posts: 2,486
Re: Newbie here
« Reply #7 on: January 04, 2007, 01:06:04 AM »
Hey Kat, welcome! Your #'s are great, and sounds like you're doing pretty well considering. Looking forward to reading more from you!

Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline NewYorkKat

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  • Posts: 133
  • Hangin' On Staying Strong
Re: Newbie here
« Reply #8 on: January 04, 2007, 08:38:17 AM »
Thanks for responding to my forum! I feel like we are already a loving family!

We all must hang in there!
 

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: Newbie here
« Reply #9 on: January 04, 2007, 11:12:42 PM »
I was shaking. I even told my Psychology professor who happens to be a HIV Educator. He was so helpful. (Thank you God for putting him in my life!)

hi - sorry about the diagnosis but glad to hear about the help you got from your professor, bf, the GMHC, etc. The GMHC offers tons of services. If you need something, they can probably give you that help on site or point you in the right direction. They're so helpful. I've been going there for a year

Offline Johnny Guaylupo

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  • Posts: 43
    • MYSPACE PAGE
Re: Newbie here
« Reply #10 on: January 05, 2007, 01:08:54 AM »
Hey NYKAT

Sounds good to me..but please don't stress yourself. When I was first diag. at 17 I went through stress which affected my immune system..NO NO..

Also..Housing Works has an excellent primary care in the east village..let me know if you want to go to another doctor they have a full staff and you don't have to wait 4 weeks to see a doctor and you can come in as a walk in..
AIDS ISN'T OVER UNTIL IT's OVER FOR EVERYONE!
www.myspace.com/johnnyguaylupo

Offline thunter34

  • Member
  • Posts: 7,305
  • His name is Carl.
Re: Newbie here
« Reply #11 on: January 05, 2007, 01:27:49 AM »
Kiddo, your numbers are FABU !  Like Ann said, you have plenty of time to adjust to the POZ thing before having to worry about meds and such.  As an FYI:  the ''normal'' average range for t-cells is between 500-1500, but some people are a bit above or below that range with or without HIV.  As you can see, 744 places you firmly in the normal healthy range.  Your Viral Load is also good (well, if any viral load can be considered ''good'', that is!).  Mine was greater than 750,000 when I got diagnosed.  This just highlights once again the benefits of frequent testing and early detection. 

Rick:  Your numbers also look pretty good, and I'm jealous as all hell of both of you with your supportive men!
AIDS isn't for sissies.

Offline NewYorkKat

  • Member
  • Posts: 133
  • Hangin' On Staying Strong
Re: Newbie here
« Reply #12 on: January 05, 2007, 07:56:39 AM »
WOW! Thanks for everyone's support! I am so glad I was recommended this website! I thought I would go through this alone and if anything, that scares me a lot a well. My husband said he will help me get the best treatments possible. I truly believe now that love conquers all and that is the most importnt. Thanks again!

So far I feel good and it's good to know my T-Cell count is great and my VL is low. So I am glad I caught this early and didn't hurt my husband and myself.

I love you all!


Offline rick21007

  • Member
  • Posts: 286
Re: Newbie here
« Reply #13 on: January 05, 2007, 09:35:53 AM »

 I'm jealous as all hell of both of you with your supportive men!
[/quote]


Hey, you seem like a really fine catch yourself.  Some guy is going to get real lucky and find you.  Hope it's soon!

(ya'll may be too young to remember the song "He's So Fine"---an old MoTown hit.
"He's so fine.  Can't wait to make that boy mine--yah, he's so fine.")  Anyway here's to ya!!!

Rick



Offline Nico

  • Member
  • Posts: 262
Re: Newbie here
« Reply #14 on: January 05, 2007, 09:30:51 PM »
NY-Kat,
I am also new here, but not to HIV.  Been poz since 1990.  In the few weeks I have been here, I have tried to absorb all the information and good feelings, but I always find something new.

You have my support and I know all the friends I have made on this board support you (as you can tell) - so you are never alone. 

Glad to see you here and always reach out when you need help or can offer it to someone else.

Cheers!
Roger 
Poz since 1990.

Offline Javicho

  • Member
  • Posts: 268
Re: Newbie here
« Reply #15 on: January 05, 2007, 10:47:20 PM »
Welcome to our family, you will find alot of information and good people in here, I'm glad you have a wonderfull husbund that is helping you that is the most important thing to have some one who loves you no matter what  :-*

Javier

Offline loverboy32

  • Member
  • Posts: 9
Re: Newbie here
« Reply #16 on: January 09, 2007, 12:37:05 AM »

You dont need to beat yourself up about this. None of us wanted HIV.  In time you will realize your life will be pretty much normal.  Take good care of yourself, eat some greens,  etc,. 

Hang in there Newbie

x

Offline lifechanging2007

  • Member
  • Posts: 29
Re: Newbie here
« Reply #17 on: February 12, 2007, 04:06:42 PM »
hello newbie,

well i have to say your story really touched me.
and yeah it is weird how the majority of HIV+ people have been infected outside there homeland. Like myself i've been careful 75% of the time and it only took one little mistake and here we are. However I am really happy you have a supportive husband and you found your inner strength and decide to start your studies again.
I truly believe their is a path for each and every one of us and a story behind the virus. I can't wait to find out my path and my story.
I will keep you posted for my results and my second appointment with the doctor.
PS: I like what you wrote "Hanging on staying strong"

lifechanging2007@hotmail.com
newbreath2007@yahoo.com
27/01/07 CD4=15.36%=245 VL=542000
14/03/07 CD4=13%=241 VL=858000    STARTED COMBIVIR AND SUSTIVA ON APRIL 27, 2007
05/09/07 CD4=22%=361  VL=undetectable
21/12/07 CD4=22%=451  VL=undetectable

The greatest adventure is what lies ahead
Today and tomorrow are yet to be said
The chances, the changes, are all yours to make
The mold of your life is in your hands to break.

Offline NewYorkKat

  • Member
  • Posts: 133
  • Hangin' On Staying Strong
Re: Newbie here
« Reply #18 on: February 15, 2007, 04:22:36 PM »
Thank you so much! I didn't think I would be able to move anyone.

The first thing we must do is to BELIEVE that we will be fine. Trust me. I still have fears and wish this would go away but the truth is that i won't but I will not let a "condition" stop me just like poeple without legs, arms, diabetes, cancer, etc.

So hang on! We will be alright!

 


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