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Author Topic: After much thought, I decided to start.  (Read 2131 times)

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Offline Ihavehope

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  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
After much thought, I decided to start.
« on: February 08, 2007, 01:31:39 PM »
I am sorry to bug you guys again with my issues but hopefully I can soon adjust myself to this new lifestyle.

After much thought I decided to pick up my prescription tomorrow to start my treatment with Kaletra/Truvada. Tuesday I found out my CD4 dropped to 200 and I have been kind of worried about what could happen soon and I know I have to start treatment real soon, so what is the point in waiting.

I switched doctors Tues but will not get to have my first appt until Feb 22 which is 2 weeks from today. According to Adherent she recomends I take my time to read the side effects of the meds and meet with my new doc. My old  doc had already made the presciption for me. From talking to a couple of people one expert on meds and someone living with HIV there is no real point in waiting.

I called the Adherent nurse and informed her of my decision and she didn't sound too happy because she wanted me to wait to see the new doctor before starting treatment. Under normal circumstance (not having AIDS diagnosis) I would have waited but unfortunately I am a worrier by nature and I know these 2 weeks will be very miserable for me and would not be able to function normally so I might as well start and get to be on meds. I want to get the CD4 cells UP! I feel fine and not feeling sick buthave been told that my CD4 counts are a red flag and with AIDS diagnosis things can change rapidly.

I hope I am making the right choice by starting tomorrow and not waiting to see my new doctor but I think I need my peace of mind to continue to go to work and live my life. I am on bactrim but that only protects me from PCP. I am nervous meds but more nervous about getting an OI. I feel like I am going against what adherence advised by not waiting.


« Last Edit: February 08, 2007, 01:34:44 PM by Ihavehope »
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline egello

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  • Posts: 899
  • cb
Re: After much thought, I decided to start.
« Reply #1 on: February 08, 2007, 01:46:58 PM »
hmmm

i can't really give you a clear advice on this, but if I was in your shoe, I would just wait to see your new doctor.

at 200, starting meds just two weeks later, I really don't think will do much harm. Just make sure you stay very very clean, try to go to hiv specialized eye doctor for cmv infection and eat healthy and don't over do anything. Sleep a lot and don't eat junk food. And in two weeks, see your new doc and start from there.

Did you say that you have thrush? In my case, it tooke me 2-3 months after developing thrush that I had developed PCP pretty severe one too.

Why Kaletra? I heard that the combo I am on and Atripla is the way to go for treatment naive cases like us. I think I read some not so great stories regarding some hiv meds that start with letter 'k'.

when was your recent blood test? Can you get it done again next week so that your new doctor will have something new to see?

My doc didn't want to start me on hiv meds as long as possible even when I was at 11 cd4 count and I was in and out of the hospital for PCP. There is something about immune reconstitution syndrom.

Don't stress out too much, I just went through what you fear you might have to go through, its pretty easy to deal with especially when you have someone to cook for you and etc.... They have the protocols down.

If you are going to take my advice, make sure to monitor your health very very carefully such as fatigueness, unusal runny stool or upset stomach, loss of sexual appetite and etc..

Aren't there lots of good hiv specialized doc in NYC?
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline Boo Radley

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Re: After much thought, I decided to start.
« Reply #2 on: February 08, 2007, 01:51:44 PM »
Ihavehope,

You need to do what you think is best.  In truth starting meds or not starting meds "2 weeks early" isn't going to make a lot of difference but if it makes you feel better start tomorrow.

The only question I'd have for the Adherent is why she thinks you should wait?  Will the new doc want you on different drugs or anything like that.  If she just feels that way because of protocol then stuff it -- take the meds when you're ready, tomorrow.

Good luck!  Maybe your CD4 count will rise above 200 faster and you can stop taking Bactrim... ugh!

Boo
String up every aristocrat!
Out with the priests and let them live on their fat!





Everything I do, say, think, excrete, secrete, exude, ooze, or write © 2007 Sweet Old Boo, Inc.

Offline Ihavehope

  • Member
  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: After much thought, I decided to start.
« Reply #3 on: February 08, 2007, 01:55:29 PM »
hmmm

i can't really give you a clear advice on this, but if I was in your shoe, I would just wait to see your new doctor.

at 200, starting meds just two weeks later, I really don't think will do much harm. Just make sure you stay very very clean, try to go to hiv specialized eye doctor for cmv infection and eat healthy and don't over do anything. Sleep a lot and don't eat junk food. And in two weeks, see your new doc and start from there.

Did you say that you have thrush? In my case, it tooke me 2-3 months after developing thrush that I had developed PCP pretty severe one too.

Why Kaletra? I heard that the combo I am on and Atripla is the way to go for treatment naive cases like us. I think I read some not so great stories regarding some hiv meds that start with letter 'k'.

when was your recent blood test? Can you get it done again next week so that your new doctor will have something new to see?

My doc didn't want to start me on hiv meds as long as possible even when I was at 11 cd4 count and I was in and out of the hospital for PCP. There is something about immune reconstitution syndrom.

Don't stress out too much, I just went through what you fear you might have to go through, its pretty easy to deal with especially when you have someone to cook for you and etc.... They have the protocols down.

If you are going to take my advice, make sure to monitor your health very very carefully such as fatigueness, unusal runny stool or upset stomach, loss of sexual appetite and etc..

Aren't there lots of good hiv specialized doc in NYC?


Hi egello

I am sure it would be best to wait for the new doc but I am a nervos wreck now. The blood was drawn on January 4 and it's been over a month now so it may have gone down a bit. Also i went from 240 to 200 in 2 weeks so that is 40 T-cells lost in less than a month. I have white spots on my tongue but the docs/nurses are skeptical about it. They take about a minute looking at my tongue and they are confused wheter it is, or isn't I got the white spots in October, 4 months ago and it hasn't gone away. Alot can happen in 2 weeks and nothing can happen at all, by why risk it? I feel like I am stuck in between 2 walls right now following my  old doc or my new doc that I haven't sat down and talked to about treatment option. I am just a mess.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline egello

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  • cb
Re: After much thought, I decided to start.
« Reply #4 on: February 08, 2007, 02:11:23 PM »
white spots? where? on your tongue? are they like lesions? are they bit hairy? how big are they? on the sides of your tongue? explain more... are your tongues coated? what about back of your mouth on the ceiling area? Have they gotten larger? Explain more in detail!

if its going to make u feel better, take the meds. That stress alone will have devastating impact on your immune system. However, can you still call your old doctor and possibly go see him just in case some side effect appears?

just to let you konw, hiv meds are not going to prevent you from OI in that short 2 weeks,,, they supposedly first have to get the viral load down, then your body has chance to recover lost t cells. Arrghh, I dont want to tell you the wrong thing, so I am not going to say anymore.

In either case, I really don't think its big deal to take them now or wait for two weeks. I just have my doubts becuase my doc told me i should either be on my current combo or atripla and he is in my opinion very good and experienced hiv doctor. Heck he went through aids himself in the early 90.

I am on my current combo (which I really started full week after he has prescribed them to me) because the doctor has seen a lot of good result with them than with atripla since its so new, and with my low count, he wanted something more guaranteeing with least side effect.
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline Mike89406

  • Member
  • Posts: 206
Re: After much thought, I decided to start.
« Reply #5 on: February 08, 2007, 02:22:05 PM »
I remember Ihavehope saying that she ad a resistance check done, and apparantley she is resistant to NNRTI's which is Sustiva . Correct me if Im wrong Ihavehpe but you said you cant take sustiva+Truvada or Atripla due to you're resistant strain.

Offline Miss Philicia

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  • Posts: 24,408
  • celebrity poster, faker & poser
Re: After much thought, I decided to start.
« Reply #6 on: February 08, 2007, 08:17:54 PM »
If it's thrush they'll just give you some diflucan to get rid of it... it's no big deal.  And I don't see a big deal with your numbers starting treatment now or in 2 weeks.  If it's going to make you more sane (Please!  yes Please! :))))~~~ then do it because at least you'll be sleeping better.  I don't see anything bad happening with it... in fact I find it odd they told you to wait.

Good luck, I'm sure you'll be fine.  Did you ever find out your VL?  I can't remember.
"Iíve slept with enough men to know that Iím not gay"

Offline Ihavehope

  • Member
  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: After much thought, I decided to start.
« Reply #7 on: February 08, 2007, 08:21:50 PM »
Dec 19 blood drawn and it was 26,300K no VL results since then.

The white spots are in the back of the tongue and in the middle, not spots on the top of the tongue nor pain associated with this. Docs and nurses seem hessitant to say it's not thrush but I guess to calm me down they said it isn't.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline blondbeauty

  • Member
  • Posts: 1,784
Re: After much thought, I decided to start.
« Reply #8 on: February 08, 2007, 08:27:56 PM »
Start your meds. There is no point of giving it a second thought because it is something you can not avoid.  Your health and pharma companies will thank you for your wise decision.
Best of luck in this new adventure.
You will do excellent.  ;)
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933

Offline MSPspud

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  • Posts: 613
  • Joined Mar 2005 - Formerly UofMurbs
Re: After much thought, I decided to start.
« Reply #9 on: February 08, 2007, 09:18:28 PM »
If it's going to stress you out, I'd start the meds.  It may not be as bad as you think and you're always welcome to talk about it on here.  To prepare, plan a quieter weekend, get some Metamucil or Imodium and foods you like.  I wouldn't take it on an empty stomach.  You'll be OK. 

Offline Miss Philicia

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  • Posts: 24,408
  • celebrity poster, faker & poser
Re: After much thought, I decided to start.
« Reply #10 on: February 08, 2007, 09:31:37 PM »
Buy a tongue scraper and see if that helps.  If it doesn't demand diflucan.  It will go away in a couple of weeks with that.  I've only had thrush one time, and it was rather mild.

And remember, I told you to start going to the ADAP dentist as Callen Lorde in Chelsea.  It's right off 9th Ave around 18th or something.

HERE:  http://www.callen-lorde.org/services/oral.html
« Last Edit: February 08, 2007, 09:33:25 PM by philly267 »
"Iíve slept with enough men to know that Iím not gay"

 


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