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Author Topic: Med shortage ???  (Read 1975 times)

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Offline aztecan

  • Member
  • Posts: 5,396
  • 29 years positive, 57 years a pain in the butt
Med shortage ???
« on: January 26, 2007, 11:03:08 PM »
My pharmacist called today to let me know he couldn't give me my refill for Crixivan.

He said there apparently is a shortage and none is available at this time. He said he has put me on a list to have it shipped to him as soon as it become available fromt he manufacturer.

Has anyone heard anything about this?

EEP!

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Jody

  • Member
  • Posts: 1,824
Re: Med shortage ???
« Reply #1 on: January 26, 2007, 11:06:39 PM »
Dear Mark...That's awful...I know sometimes my pharmacy has to order meds and I get them the next day...I try to stay a few ahead of my refill...We have to stay on schedule, it's not like cholesterol or blood pressure meds where you can miss a dose or two and just go back...I hope it turns out to be just a day.

Jody  ???
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline fondeveau

  • Member
  • Posts: 425
Re: Med shortage ???
« Reply #2 on: January 26, 2007, 11:08:26 PM »
No shortage of Chantix....eh, Mark?  Get that one filled yet?  I always call a day ahead to my pharmacy so they are sure to have my meds.  And, I make  that call ten to fifteen days before I run out.

Offline Miss Philicia

  • Member
  • Posts: 24,064
  • celebrity poster, faker & poser
Re: Med shortage ???
« Reply #3 on: January 26, 2007, 11:09:27 PM »
That's clearly unacceptable.  I'll be interested to hear how this turns out.  Good luck
"Iíve slept with enough men to know that Iím not gay"

Offline aztecan

  • Member
  • Posts: 5,396
  • 29 years positive, 57 years a pain in the butt
Re: Med shortage ???
« Reply #4 on: January 26, 2007, 11:11:24 PM »
I still have about two weeks worth left, so I'm not out.

The pharmacy always has to order them because none are kept on hand here. It is a small town and a local pharmacy.

The pharmacist was on the phone to the manufacturer when I talked to him. We'll see what happens.

I may take a drug holiday without really wanting to.

SIGH,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Miss Philicia

  • Member
  • Posts: 24,064
  • celebrity poster, faker & poser
Re: Med shortage ???
« Reply #5 on: January 26, 2007, 11:17:02 PM »
Well, that's good you have a buffer.  I'm sure they will find some within two weeks.
"Iíve slept with enough men to know that Iím not gay"

Offline poet

  • Member
  • Posts: 934
  • Poet living and working in Central Maine
Re: Med shortage ???
« Reply #6 on: January 27, 2007, 05:21:51 PM »
Mark, let's reactivate the reporter in you and get in touch with the manufacturer yourself unless someone posts with what is going on here?  Yes, you could wait with the two week supply, but I don't think any of us behave that way or, at least I would want to know more than the relayed message about a 'shortage.'  Did something happen in the manufacturing process?  Is the drug company pulling Crixivan and replacing it with something else (which happened to Agenerase with me)?  Given how many patients are on it, how everyone knows about compliance and compliance = cash flow, I suspect something going on.  Best, Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline J.R.E.

  • Member
  • Posts: 7,145
  • Joined Dec-2003 Living positive, since 1985.
Re: Med shortage ???
« Reply #7 on: January 27, 2007, 08:41:44 PM »


I have always received my meds through Walgreens, ever since starting. I use the same store all the time. I also phone in my renewal about three days in advance. ( even though I have about a week left of meds), beyond that point. I like to play it on the safe side...

There have been times, even with Walgreens, that they have said they are having difficulty getting some of the meds. I had trouble with Epzicom, on a couple of occasions. At that point I "stress" to them the importance of having to take these medications on a daily basis. They end up calling the other stores in the area, and usually get back in touch with me within the next day or two, and tell me that the  prescription is in. Sometimes they have had me go to another Walgreens all together. We got one on just about every street corner here.

I am not on crixivan, so I am not familiar with why they are having difficulty. I am sure things will work out for you Mark, but stay on top of it.


Take care----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Med shortage ???
« Reply #8 on: January 27, 2007, 08:52:36 PM »
I am with Win on this one Mark...Call the MFG direct and raise bloody hell. . This is an outrage. And totally unacceptable.

I would do it quickly, ole buddy!

Good luck and keep us posted.
Positive since 1985

Offline Miss Philicia

  • Member
  • Posts: 24,064
  • celebrity poster, faker & poser
Re: Med shortage ???
« Reply #9 on: January 27, 2007, 11:53:57 PM »
This is why I make sure I only patronize a pharmacy that caters to HIV+, and why I insist on living only in cities with lots of pozzies running around town.  Currently I go to Pharmacare which CVS owns.  I know the one I go to is mostly all poz folks, and it's in the gay part of town.  Are all Pharmacares for HIV?  I'd never heard of them before moving here.

In NYC I patronized a mom and pop pharmacy (not many of those left now are there?) in the heart of the Village.  Elderly people and HIV+ people, and they were ever so attentive and helpful.  They'd always advance me a few days if there was some paperwork problems too -- lots of places will not do that.  Actually I'm currently dealing with TWO pharmacies as I get my fuzeon from another place down the street, also caters to HIV+.

Anyway, I think having a cooperative pharmacy is up there with having a good doctor if you are on a lot of meds.
"Iíve slept with enough men to know that Iím not gay"

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Med shortage ???
« Reply #10 on: January 28, 2007, 06:12:50 AM »
I get mine overnited to me. I get a call about a week or two telling me the date of the shipment and the arrival date and if I need to change or add medications. They do all the other foot work, contacting the doctor for needed prescriptions etc. So far so good. I've only had one blip with my fungus medicine but it wasn't a problem with PharmaCare. My new fungal medication is being shipped to me by the manufacture.

Offline Coffeechick88

  • Member
  • Posts: 431
Re: Med shortage ???
« Reply #11 on: January 28, 2007, 06:58:07 AM »
I haven't actually heard of a shortage.  I used to have problems every month when I dealt with the local pharmacy--every month I could count on them to not have my meds in stock and have to special order them.  Life has gotten so much easier with home delivery. 

Maybe a call to the manufactor can see if there is indeed a shortage (just because they say there is one doesn't mean it is true).  Also, are there other pharmacies in the area?  I remember once when I was picking up a prescription for my grandma and they gave me the manufactor problem line--this was something she had to have--she waited until she was out to decide to get it refilled.  It was her Fort Myers house, so luckily I had many pharmacies to choose from and I stopped at each one and I found a pharmacy that not only had it in stock, but had the capability of getting it the next day if needed.  I transferred her script over there and got it.  Another thing--if your pharmacy is part of a big chain, such as CVS--they can see what the other pharmacies in the network have and get it over nighted.  Walgreens also will take CVS scripts pretty easily so if one goes to a CVS it is easy to do a transfer and pick up what they have in stock there.  Hope at least some of this was helpful and hope you get this mess straightened out!
Lucas James is here
Born 6-14-08 at 1233 am
8 lbs 14 oz, 22 in long

Offline skeebo1969

  • Member
  • Posts: 5,705
Re: Med shortage ???
« Reply #12 on: January 28, 2007, 08:06:21 AM »


  Mark I hope the replies in this thread help you to find a solution before you run out.  Goodluck!
I despise the song Love is in the Air, you should too.

Offline aztecan

  • Member
  • Posts: 5,396
  • 29 years positive, 57 years a pain in the butt
Re: Med shortage ???
« Reply #13 on: January 28, 2007, 10:32:26 AM »
Thanks all. I was just wondering if anyone had heard of any shortfalls in production. I know they were common back when I started Crix, but that was nearly 11 years ago.

I plan to check with the pharmacist again Monday and, if still no luck, then contact Merck.

I used to have my meds shipped to me. It was Pharmacare, of al companies. It was a nightmare.

No order went by without some kind of problem such as shipping to the wrong address, failure to charge it to a credit card and then sending me a bill, waiting three to four weeks for a shipment, etc.

Also, their "convenient" Web site never worked.

That is why I opted for a local pharmacy. I have used this pharmacy for years and never had a problem in the past.

It also is great to have a pharmacist you know and who knows you - and your meds. This guy will talk to you about the meds, make sure you know what potential side effects are possible, ask how you are doing with other meds, etc.

I like having the personal touch and knowing there is someone I can talk to if I have a question or a concern.

I know this local pharmacy will have to order the HIV meds in, because they don't keep them in stock. It makes sense because the pharmacy doesn't want to be stuck with a lot of high-priced meds on hand that only one or two people use.

I know others who use this pharmacy and have little or not trouble getting what they need, even Marinol while on Medicaid, which is no easy feat at times.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline poet

  • Member
  • Posts: 934
  • Poet living and working in Central Maine
Re: Med shortage ???
« Reply #14 on: January 28, 2007, 04:30:57 PM »
Simply to balance the situation for someone reading this thread.  Pharmacare, the chain which specialises in hiv and, I believe, cancer drugs, was bought by CVS.  Before that, the Chelsea NYC branch and other locations were Standlander's Pharmacy out of Pittsburgh which Pharmacare bought before CVS bought it.  I was able to have my drugs purchased via ADAP NY shipped to the store.  Yes, there were glitches which I can't remember at this point.  Never on billing.  I currently use the Pharmacare located in Boston which bills MassHealth and me a small co-pay, $1, $2 or $3 per prescription which ends up being $10.00/month for my four drugs.  They did have one computer screwup in which some of us were lost.  I keep the ship date in the back of my head, so when it came and went and no shipment showed up, I called (I have two months supply stashed away).  They also ship next day via Fedex with a signature required, so if I am not home, they would not leave the shipment around for someone else to make off with.  Because they specialise, are a 'speciality pharmacy' in name, they are more likely to keep the drugs we need in stock. 

Again, this is simply to balance Mark's experience so that someone looking for a pharmacy can keep the pros and cons in mind.  Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Med shortage ???
« Reply #15 on: January 29, 2007, 04:44:54 AM »
Win, I never have to sign for my shipments. If I don't answer the door, they (Fedx, UPS or DHL) put it on the front seat of the car or if I'm gone they put it in a big plastic bag and set it on my step. I know when it's coming, but I can't always be home to get it. Now if I wasn't home to get my IV meds and heparin and needles. I would get a nasty note from my UPS guy, RODNEY, I'll be back with your fucking medicine this evening. Don't worry, I'll put it on ice. You owe me.. Nice guy he is.  ;)

 


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