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Author Topic: My last days Meds free  (Read 2592 times)

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Offline Ihavehope

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My last days Meds free
« on: January 18, 2007, 10:11:57 AM »
Hey Guys

I know for some people starting meds was not an option when they were diagnosed and ended up in the hospital and that is what happened to me. Being recently infected (less than 2 years) i thought I had a lil bit more time. If you were me, what would you eat or do that you can't do now that you are on meds. I am sure there is not much of a change but I know Alcohol and certain food should be avoided while on meds. What should I indulge myself with or do. After all my ID doctor said I will be on meds for the rest of my life.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline bear60

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Re: My last days Meds free
« Reply #1 on: January 18, 2007, 11:56:49 AM »
No offense...but isnt this a Nutrition question?
Poz Bear Type in Philadelphia

Offline ARMANDO

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Re: My last days Meds free
« Reply #2 on: January 19, 2007, 09:49:01 AM »
well it depends on what you want ,"DO YOU WANT TO DIE FROM AIDS OR DO YOU WANT TO LIVE WITH HIV"?.many of my friends had asked the same question but unfortunately they  made the choice to give up.they went out more ,drank more ,tried different drugs and definitely had lots of annonymous sex.i had about twenty friends back then and they are all dead,i am the last one left.I made the decision to live with hiv,so i quit drinking ,quit the bars,never smoked,got lots of rest ,started working out,started meds and 18 yrs later ,i am still here.for me it is quite an accomplishment but yet i am sad that i couldn't influence my friends to follow the same route.YOU NEED TO SPEND SOME TIME WITH YOURSELF AND ANALYZE EXACTLY WHAT YOU WANT!!BEING ON MEDS IS NOT THE WORST THING THAT COULD HAPPEN!!

Offline Roger1

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Re: My last days Meds free
« Reply #3 on: January 19, 2007, 11:15:17 AM »
Read my article on:  1 Year Later Without Medications

I now seriously wonder if taking medications and staying as healthy as possible for the rest of ones HIV/AIDS life is the key to surviving.

I turned 40 years old today and have been poz for the last 9 and I feel great without the medications.

Offline Miss Philicia

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Re: My last days Meds free
« Reply #4 on: January 21, 2007, 01:03:50 AM »
what article are you talking about?
"Iíve slept with enough men to know that Iím not gay"

Offline SouthSam7

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Re: My last days Meds free
« Reply #5 on: January 22, 2007, 05:13:31 AM »
I do everything now that I did before meds.  In fact, I do MORE!  I don't deny myself anything.  I have a glass of wine about every other day, and I eat healthier now than before I got on meds, but I enjoy all types of food.

I also exercise!  6 or 7 days a week!  Even 10 minutes of walking in place if that's all you have time or place for.  I love it.  I am in 1000% better health than I was before I started meds. 

Don't overdo anything (party drugs, esp., and alcohol), and just respect your body.  Help it help your meds work. 

You'll get used to the "rest of your life" thing.  Just like you eat, brush your teeth and piss everyday, so will you take your meds.  It's not that big a deal as long as you can get and afford them!  Good luck; you're NOT alone!

Love,
Sam

Offline Esquare

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Re: My last days Meds free
« Reply #6 on: January 22, 2007, 02:20:38 PM »
The only difference in my eating after meds is that I don't eat around bedtime anymore because it can make me feel high. I would say that I do eat healthier since being HIV positive all together though in order to get more protein, calcium, and Vitamin C in me since I don't want to take supplement vitamins. Also, alcohol isn't off limits on my meds (atripla) but it makes the side effects worse with some others. I've enjoyed several beers since I have been on meds. I made the decision to give up having hard liquor on my own but I hope I never have to give up beer and wine and I don't plan to unless my medical numbers tell me to do so. It's all about doing things in moderation now and that works for me so far.

Offline Miss Philicia

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Re: My last days Meds free
« Reply #7 on: January 22, 2007, 02:28:27 PM »
I really don't see much of an issue about having ONE glass of anything with a meal, unless it simply upsets your stomach.  Of course, if one glass tends to lead to more with any individual that's a different matter.

I've had some HIV medication where alcohol seemed to make me sensitive... probably sulfites found in red wine as I've had sulfur issues in the past with Bactrim for example.  Of course, red wine is unfortunately may favorite alcohol to drink with a meal.  Hasn't bothered me for some time though so that's a good thing.  Hard alcohol can have a tendency to bother me, but I think that's more a result of the AMOUNT of medications I take, and not one specific one.  I can still handle one mixed drink as a cocktail with no problem.

Mind you, I'm not out propping a bar every weekend mostly due to age more than anything.  Hangovers get nastier for everyone as they age regardless of HIV.  I might get drunk once per year now but that's only recently.

I also find the viewpoint of doctors really varies on this.  Where I go now there are tons of ex-drug addicts or just drug addicts there so I think they just automatically say don't drink.  Both of my doctors in NYC were a bit more realistic in assessing each individual, but then they were both private practice with a bit more normalized client base.
"Iíve slept with enough men to know that Iím not gay"

Offline SouthSam7

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Re: My last days Meds free
« Reply #8 on: January 22, 2007, 10:32:41 PM »
Two things:

Since I take protease inhibitors with Norvir, the effects of anything I eat or drink stay with me longer (I feel effects of alcohol longer, etc.) because the Norvir causes your liver to not eliminate things as fast.  I know you don't have to worry about that since you are probably not on a protease inhibitor if you are on Sustiva (Atripla), but then again I don't have to worry about the high feeling or funny dreams.  I would be lying if I said the one-pill-once-a-day thing wasn't attractive.

Secondly, I would recommend you take a multivitamin with no or low iron.  It really makes a difference for me since we don't always eat right.  I believe (but have no proof) that hiv and or the meds make it harder for the body to absorb nutrients, or maybe it causes your body to need more nutrients than negative people.  Either way, I feel you need to supplement with a multivitamin.  Check with your doctor, though, first.  Anyone have an opinion?

Love,
Sam

Offline Miss Philicia

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Re: My last days Meds free
« Reply #9 on: January 22, 2007, 11:15:13 PM »
Actually I think HIV effects absorption in the intestines, or wherever, and that's why you need a daily vitamin pill.  They hand them out with every big ADAP order for me so I generally always take one, but I take Pancrecarb too so I should be absorbing things well anyway.

Don't all HIV specialists recommend at least a daily vitamin, without iron?  Mine always have.  I think some people go overboard with that stuff but that's just me... goodness knows when I was first diagnosed I probably popped 10 other supplements each day in addition to my HIV meds.  Pricey.  Tumeric makes your urine nasty looking.  Blue green algae capsules give you MAJOR gas.
"Iíve slept with enough men to know that Iím not gay"

Offline SouthSam7

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Re: My last days Meds free
« Reply #10 on: January 23, 2007, 03:42:16 AM »
Actually I take a bunch of stuff based on information I picked up along the way.  Selenium was shown, in one study, to increase cd4 counts in hiv+ people, so why not take it, right?  I also take polychosinol to help with my cholesterol.  My cholesterol went up very soon after I started my meds.  Protease inhibitors will do that.  I don't know if it really works or not, but my cholesterol is down a little so something is helping.  I take pepto tablets every day.  I take 1/2 aleve or 1/2 ibuprofen every day to help with headaches associated with my meds. 

I fill up a two week pill holder twice a month with a BUNCH of pills.  It's like a little game, now.  I try to see how long it will take me to fill it up each time.  Of course the first pills I put in are my hiv meds, the most important.  Then I add in all the others.  I have it down to about 10 minutes.  That's not bad considering I take 7 hiv pills a day plus the other stuff for side effects.  As far as I know I have never missed a dose.  Good luck,

Sam

Offline Ihavehope

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Re: My last days Meds free
« Reply #11 on: January 23, 2007, 11:17:15 AM »
I know everyone is different and  reacts differently to meds. But My family is very nosy and It will be hard to hide the fact that I am on meds. How long did you realize that your body was changing after meds. Is it true that all these recent drugs are better than the old ones? I've asked that question b4 but need reassurance.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Miss Philicia

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Re: My last days Meds free
« Reply #12 on: January 23, 2007, 11:45:09 AM »
I was on HIV medication for five years before I noticed any physical manifestations appearing but keep in mind this was in the 90's when all the medications were new, or other alternatives quite limited.  From what I read, yes they have a better handle on what causes lypo which is I guess what you are obsessing over.  Anyway, within five years I'm sure you will have disclosed to your family so please don't cause yourself more unnecessary worrying than you've already been doing.
"Iíve slept with enough men to know that Iím not gay"

Offline Ihavehope

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  • Yes, I'm a cry baby, AND WHAT?
Re: My last days Meds free
« Reply #13 on: January 23, 2007, 12:15:50 PM »
hey Philly

Lipo is a concern but I know there is absolutely nothing I can do about that and will deal with it when it comes. I keep hearing people talking about fatigue, intestinal problems and other things which I am afraid of. I have been a healthy guy and i fear the unknown. Ay Dios Mio (Oh Lord), this feels like a nightmare.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline SouthSam7

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  • Posts: 428
Re: My last days Meds free
« Reply #14 on: January 24, 2007, 06:21:14 AM »
Three things:

1. I got a little belly almost immediately after starting meds but that's because I quit 10 years of meth use!  Now I exercise moderately and the belly is gone; don't sweat it.

2. I keep my meds in my bedroom and only one family member knows.  You don't have to tell anyone if you don't want to.  I have a little pill thing that I put one day's worth in and take with me.  No one needs to see all your business.

3. I take medicine that is hardly cutting edge, and I'm doing great.  I thought about switching from my PI and NRTI regimen to one of the new once a days (like Atripla) but there's no way I'm going to change unless I have to.  I'll stay on my current regimen unless I get resistant to it.  If you switch a lot without really needing to, you'll become resistant to too many combos then it will become difficult to find a combo that works for you.  Stay on what you are on now as long as possible; the side effects will go away in a several months (not  two weeks like they tell you).  But you can learn to treat your side effects by taking Imodium at the same time as your meds, for example.  You'll get through it.

Peace,
Sam

Offline Ihavehope

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  • Yes, I'm a cry baby, AND WHAT?
Re: My last days Meds free
« Reply #15 on: January 24, 2007, 12:30:25 PM »
Thank you everyone for your advice.

I've gotten some great replies in this thread and others. I've also gotten one or two threads from people who are simply tired of me worrying and panicing. But I think that I am now at a point where it finally hit me that my life is going to change and I better get use to it and grab all my guts and be brave. Concerns of lipo are in the top 3 conerns because of obvious physical changes and because diabetes runs in the family. I would naturally be overweight with a belly if it weren't that I take care of myself by avoiding certain foods and walking and excersiing often. So the belly growth I imagine will occur because my mother and father both have huge bellies, lol. I had an uncle who dies young of Kidney failure and my grandfather died of liver problems. My favorite foods are spicy food, pork and beef, Sugar coated things and pastas which I may need to lay off a little. For those who have been on meds for many years and are undergoing lipo, I apologize if my threads have annoyed you. Now that I have read more and know more I will probably be less worried about it.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline Miss Philicia

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  • celebrity poster, faker & poser
Re: My last days Meds free
« Reply #16 on: January 24, 2007, 01:46:40 PM »
Nobody is annoyed with a lipo thread... but any doctor experienced with HIV will put you first on a regimen that they think has the least liklihood of causing this.  They're all aware of it.  Those of us that have it were around and getting it in the late 90's when they couldn't even assign a name to it yet, so once we had it was had it.  If you have to choose between being alive and your face sink in which are you going to choose?  It is what it is, and if you get it you do the best you can and move on.  Stuff is becoming available to at least inject some crap in your face and make it not noticeable.  Worry about it when and IF you get it, but by all means bring it up with your doctor when you visit.  Do you have the conversations with your HIV specialist?
"Iíve slept with enough men to know that Iím not gay"

Offline alberche

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Re: My last days Meds free
« Reply #17 on: January 30, 2007, 04:52:01 PM »
Hiya Ihavehope!!!

Well, I am on meds since six months now, with an PI (Atazanavir + Ritonavir).

Untill now all my labs are normal. I have gained some 20 pounds, but before I lost 30 pounds since I got infected 9 months ago until the moment I started on meds. So I feel good, 10 pounds less than before being post.

I started to go to the gym regularly since 4 months ago. In addition to the fact I am much more attractive now  ::) , I feel really better, and this helps me a lot to fight stress, and also aids me to better concentrate in my work.

I try to go to bed regularly at the same time. I eat a lot of fruits, always take one or two pieces of fruit with me when going out of home to work or when traveling. Sometimes I feel like Carmen Miranda with that big hat full of fruits.

I try to avoid as possible animal fat, butters or similars. Prefer vegetable oils such as corn or olive oil. Eat more fish than meat, and avoid fried foods.

I also quitted industrial fruit juices and all things with too much additives or colorants or things alike.

For the rest of things, I take a glass of wine from time to time, or non alcoholic beers, and also some rum or whiskey when going out, very occasionaly and only few quantities.

I think you don't have to change a lot your daily routines, just simply taking a bit more care of what you put inside your body.

As per regards of meds, if you are going to start on Atripla or similar, you can store them in your room, in a dark, dry place, no exposed to extreme temperatures, and get a pill cage you can take with you discretely in your bag or pocket, those in metal with flavoured peppermint pills can suit your needs to take your 1 or 2 days doses to the job, to school or just simply when going out.

Hughs!
love is blindness...  a wonderful song!

 


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