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Author Topic: Partner newly diagnosed with HIV and PCP  (Read 110 times)

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Offline Lee82

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Partner newly diagnosed with HIV and PCP
« on: December 02, 2016, 07:04:24 PM »
So the last 3 weeks have been the toughest time of my life and I'm hoping for some support and advice.

For the last 3 months my partner of 4 years has been increasingly ill. Severe shortness of breath and weight loss resulted in him being admitted to hospital 3 weeks ago. After 4 days he was diagnosed with HIV and the day after he went into intensive care for 3 days as he had developed PCP. I'm told they were 30 mins away from a ventilator. During his time in ICU he was fitted with a mask and given up to 60% oxygen. Incidentally when he was admitted to hospital on day 1 his oxygen saturation was 70%. The mask steadied his sats and for a week after that he was moved to a high dependancy ward where they tried to reduce the amount of oxygen he was on. A few days in he developed severe thrush in his mouth which brought him to tears anytime he tried any food. He was given a new antibiotic to help with the thrush and slowly they reduced his oxygen. 2 days ago he moved onto the normal ward, today he is on 30% oxygen with a 30% flow and the thrush in his mouth is half as bad as it was. Physically he is so weak he can barely sit in a chair for any longer than 2 hours. I'm absolutely heartbroken at seeing him like this, he is the love of my life and it's taking every ounce of my strength not to break down every time I see him.

Has anyone else been in this situation, can people recover from this? His cd4 count was 24, and this has all happened so quickly, I'm trying to read up online about it but it is soul destroying and I need to remain positive for his sake.

Offline Ptrk3

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Re: Partner newly diagnosed with HIV and PCP
« Reply #1 on: December 02, 2016, 07:39:06 PM »
Lee82:  I'm glad you found these forums. Please make sure you are tested, too, just to make sure of your own HIV status.

In answer to your question, yes, resoundingly, many on these forums have been in your partner's situation and have fully recovered and gone on to live their lives, return to their jobs, and attain health and peace of mind.

I was diagnosed in hospital with PCP and CD4's of nine (Viral Load of 110,000).  My oxygen saturation at the time was similar to your partner's.  I was back at work fulltime in about a month.  Today's medication is miraculous and the so-called Lazarus Effect is quite common: 


It sounds like your partner has already improved markedly, since he no longer is in the Intensive Care Unit, but now on a "regular" floor.  You have every reason to be very hopeful and be optimistic of his full recovery.

Most likely he will be started on antiretroviral medication immediately and some prophylactics to make sure he doesn't get pneumocystis pneumonia (PCP) again (Bactrim or the equivalent) until his CD4's are safely above 200 and azithromycin to guard against the opportunistic infection of Myobacterium-Avium-Complex (MAC) until his CD4's are safely above 100:


It may take a while for his CD4's to recover to a safe threshold (above 200), but the goal now is to get his viral load to an "undetectable" state so his CD4's can begin to recover.

As long as your partner is adherent to his new medical regimen, you and he have long and healthy lives ahead of you.  Best wishes to you both as you begin the journey back to health.

Please use these forums for continued support and tell your partner to feel free to seek the support he may need here, too. 

We all here look forward to updates from you on his continuing progress.

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