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Author Topic: Just had to change meds AGAIN  (Read 1862 times)

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Offline tigger2376

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  • too bad to die youngish!
Just had to change meds AGAIN
« on: December 16, 2006, 08:06:33 PM »
Sorry,seem to whine a lot on these forums bt only started 27/9 and been swapped twice. Doesn't this mean I have less options in the future? Taken off kaletra now on invaranise and rotanivir, (sorry if spelling wrong) with kivexa, df118 painkillers,gabapentin for neuropathy and multiple anti sickness, anti diaorhea stuff. Know I'm relatively new to this but is this the norm?
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline Eldon

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Re: Just had to change meds AGAIN
« Reply #1 on: December 16, 2006, 08:13:24 PM »
Hey Tigger...

Don't hold back! If you need to vent, by all means do so. From what it appears your Doctor is trying to find the best possible combo for you. However, to gain clarification on this you may want to ask him/her about the specifics such as your Genotype.

Gerry and Newt???


"Don't Give Up, Don't Give In... Cause it is ALL within you to WIN!"

Offline tigger2376

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Re: Just had to change meds AGAIN
« Reply #2 on: December 16, 2006, 08:17:20 PM »
Derr? sorry to seem uninformed but whats that? If its what I think it is I'm white, female, hetero, family history of cancer, arhtritis and heart disease. I'm also 6''2 and 171ilbs TMI I know but is any of that relevant?
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline Eldon

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Re: Just had to change meds AGAIN
« Reply #3 on: December 16, 2006, 08:19:15 PM »
No. No. Gerry and Newt are members of the forum who have expertise in this area about med regimens.


"Don't Give Up, Don't Give In... Cause it is ALL within you to WIN!"

Offline tigger2376

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Re: Just had to change meds AGAIN
« Reply #4 on: December 16, 2006, 08:23:55 PM »
NO, didn't mean to be dismissive, was any of MY reply relevant. SORRY
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline tigger2376

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Re: Just had to change meds AGAIN
« Reply #5 on: December 16, 2006, 08:26:20 PM »
Just not too articulate sometimes, apologies, worded reply wrongly, was asking what a genotype is, providing info and asking if there was 2 much info in my reply!
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline Eldon

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Re: Just had to change meds AGAIN
« Reply #6 on: December 16, 2006, 09:23:13 PM »
Hey Tigger...

A genotype is to determine if you have any resistance to any anti-viral medication.


"Don't Give Up, Don't Give In... Cause it is ALL within you to WIN!"

Offline aupointillimite

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Re: Just had to change meds AGAIN
« Reply #7 on: December 16, 2006, 09:38:19 PM »
Do you see an HIV specialist or a more general practice doc? 

Have you spoken with your doctor about your concerns at all?
Your tastebuds can't repel flavor of this magnitude!

Offline HIVworker

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Re: Just had to change meds AGAIN
« Reply #8 on: December 16, 2006, 10:15:11 PM »
I think a lot of the GI problems can be related to ritonavir. Look it up in the "Drugs" section of this website.

Rich
NB. Any advice about HIV is given in addition to your own medical advice and not intended to replace it. You should never make clinical decisions based on what anyone says on the internet but rather check with your ID doctor first. Discussions from the internet are just that - Discussions. They may give you food for thought, but they should not direct you to do anything but fuel discussion.

Offline gerry

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Re: Just had to change meds AGAIN
« Reply #9 on: December 16, 2006, 11:45:46 PM »

From what it appears your Doctor is trying to find the best possible combo for you. However, to gain clarification on this you may want to ask him/her about the specifics such as your Genotype.

Eldon:  From what I read from Tigger's posts, Tigger changed meds due to side effect issues and not necessarily due to resistance issues, so doing a genotype is probably premature in this situation.

Tigger: The Lessons section have tips that might help you deal with the side effect.

Offline sdcabincrew74

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Re: Just had to change meds AGAIN
« Reply #10 on: December 17, 2006, 12:35:37 AM »
Eldon:  From what I read from Tigger's posts, Tigger changed meds due to side effect issues and not necessarily due to resistance issues, so doing a genotype is probably premature in this situation.

Tigger: The Lessons section have tips that might help you deal with the side effect.

Premature?  I think genotype testing should be done for EVERYONE before starting meds.  Basically, if for nothing else, than to get a baseline of what your virus will respond to and in the future you can see how it changed....
The difference between an overnight and a layover is luck!

Offline Tucsonwoody

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Re: Just had to change meds AGAIN
« Reply #11 on: December 17, 2006, 12:38:59 AM »
Am too new to the HIV+ world to know much...but I know my ID doc did a genotype before recommending my medications.  Was lucky enough that I was not resistant to anything....yet.

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Offline David_CA

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Re: Just had to change meds AGAIN
« Reply #12 on: December 17, 2006, 12:47:25 AM »
My Dr. also did a genotype and some sort of phenotype test a few months ago... well before I went on meds.  It makes sense to me to do so.  I had no resistances, fortunately.

David
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Offline gerry

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Re: Just had to change meds AGAIN
« Reply #13 on: December 17, 2006, 12:54:00 AM »
Premature?  I think genotype testing should be done for EVERYONE before starting meds.  Basically, if for nothing else, than to get a baseline of what your virus will respond to and in the future you can see how it changed....

I didn't say a genotype test should not be done before initiating treatment three months ago; I hope he had one before starting as that's in the current standards now.  If he changed treatments due to side effects, you don't necessarily have to run another genotype test if you already have a baseline because you are not changing due to failure to suppress the virus.  Plus if there is not enough viral load in between treatments, then the genotype cannot be run anyway.  I was under the impression that Eldon was asking for a genotype test in between the switch.

Offline Boo Radley

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Re: Just had to change meds AGAIN
« Reply #14 on: December 17, 2006, 02:01:19 AM »
Sorry,seem to whine a lot on these forums bt only started 27/9 and been swapped twice. Doesn't this mean I have less options in the future?

tigger,

1) You're not whining, just asking important questions.  We'll tell you when you're whining...

2) Assuming your doctor switched meds because of side-effects the drugs you've stopped using could be tried in the future if necessary.  Short-term use of meds does not usually cause drug resistance to occur.  I'm a living example because I took Combivir (AZT and 3TC) and Viracept (ick) for 5 weeks in 1998 but stopped and in 2004 I started taking Trizivir (AZT, 3TC, and abacavir) and my viral load went to undetectable within 3 months.  If my assumption is wrong (i.e., your doc determined your HIV is resistant to the drugs you stopped taking, which isn't likely unless you have a very aggressive strain of HIV) then you would probably not benefit from trying the same drugs again in the future.  You really need to clear the question up with your doc.

3) Drug resistance is still a very real problem for many people on HAART but newer classes of drugs are emerging and therapy options are much better than they were even 10 years ago. 

4) As others suggested if you did not have a genotype test run before you began meds you might discuss this option with your doctor now.   A genotype test is helpful for determining if your HIV has genetic mutations that make it less sensitive to specific drugs or drug classes.   Here is the link to a full explanation: http://www.aidsmeds.com/lessons/Resistance7.htm

Good luck!

Boo
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