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Author Topic: Damn HPV  (Read 11151 times)

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Offline AtomicA

  • Member
  • Posts: 156
  • that's Famous with an F
Re: Damn HPV
« Reply #50 on: December 12, 2006, 08:36:39 PM »
One more question... for anyone who has gone through this before... they didn't tell me how long I can expect there to be bleeding, and a full week later it's still painful as all hell and the amount of blood in my stool doesn't seem to be going down. Should I be worried or is that normal?

Offline Eldon

  • Member
  • Posts: 2,664
Re: Damn HPV
« Reply #51 on: December 12, 2006, 09:06:33 PM »
Hey Adam...

Since the symptoms in your stool has not changed, it would be of a consideration to check-in with your Doctor to have another look at the situation for the said occurrences.



"Don't Give Up, Don't Give In... Cause it is all within you to WIN!"

Offline J.R.E.

  • Member
  • Posts: 7,284
  • Joined Dec-2003 Living positive, since 1985.
Re: Damn HPV
« Reply #52 on: December 16, 2006, 08:56:28 AM »
Hello ,

The following link will give you some execellant information on HPV. You will need to create a user name and password,( which is easy to do) to read article. But its very informative ;

http://www.medscape.com/viewprogram/6385?sssdmh=dm1.231340&src=nlcmealert


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 12/10/14,  t-cells are at 350,  Previous 8/25/14--- 402/ Viral load remains <40

 Current % is at 13% / Previous 8/25/14 11%

  
 63 years young.

Offline AtomicA

  • Member
  • Posts: 156
  • that's Famous with an F
Re: Damn HPV
« Reply #53 on: December 19, 2006, 11:12:20 PM »
well, things seem to be going MUCH better now. Though the itchyness came back with a vengeance the last couple of days. I don't know if that's things healing or it it's the little bastards coming back already (the itching is what made me notice them in the first place) But I'm hoping against hope that it's just me healing. F/U with the surgeon is on Jan. 29th so I will see if this was a long term fix then.

I was going over some of the old news briefs in here, there was mention of one of the protease inhibitors (I can't remember which one... I've been writing finals all week and my mind is a bowl of jell-o). that comes in liquid form being studied as topical application apparently attacks and kills HPV infected cells? anyone know if this is going forward?

Offline Tucsonwoody

  • Member
  • Posts: 396
Re: Damn HPV
« Reply #54 on: December 19, 2006, 11:18:15 PM »
AtomicA

Good to hear an update, was wondering how you were doing.  Hope the evil bastards are gone!

Here is a link to an article discussing possible use of a PI for HPV

http://www.eatg.org/news/newsitem.php?id=228

And the lead paragraph:

Throughout the world, many HIV-positive men and women undergo surgery and other invasive procedures to remove precancerous and cancerous lesions caused by HPV infection every year. But if the University of Manchester research pans out, it may be possible to treat these lesions topically, using a cream, gel, or ointment version of lopinavir.

Good luck - Kevin
And I wished for guidance, and I wished for peace
I could see the lightning; somewhere in the east
And I wished for affection, and I wished for calm
As I lay there - Nervous in the light of dawn

Online Miss Philicia

  • Member
  • Posts: 24,522
  • celebrity poster, faker & poser
Re: Damn HPV
« Reply #55 on: December 21, 2006, 03:53:48 AM »
Quote from: poet
Dr. Stephen E. Goldstone, author of The Ins and Outs of Gay Sex, is considered the ass/butt doctor and his practice is in the city.  He is, to my mind, a bit fixated on the subject, so if you book an appointment, listen to what he has but leave before taking the next step.  One client of mine swore that he had saved him, literally, by catching hpv and then anal/colon cancer before it spread.  He of course insists on anal pap smears as standard medical attention of gay men.  Efu and the others have been right on the money with the issue and in their experiences.  Win
Ah, the lovely chubby Dr. Goldstone I know him well.  That's who my butt doctor was when I lived in NYC.  Though most of the time it was this other guy on staff who was a member of the Radical Fairies that did the actual laser procedures.  I guess I need to go back and get checked as it's now been 2.5 years since anyone has looked up in there.
"Iíve slept with enough men to know that Iím not gay"

Offline poet

  • Member
  • Posts: 934
  • Poet living and working in Central Maine
Re: Damn HPV
« Reply #56 on: December 21, 2006, 05:29:38 AM »
Glad I rechecked the thread, Philly.  In case others in the NYC area are interested, what was your take on him, his practice, etc.?  Would you recommend him (I know you plan on going back)?  Thanks! Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Online Miss Philicia

  • Member
  • Posts: 24,522
  • celebrity poster, faker & poser
Re: Damn HPV
« Reply #57 on: December 21, 2006, 11:05:19 AM »
Well, I had anal warts back around '98 and it took several treatments to rid myself of them.  Maybe three visits or so.  I got my one and only hemmoroid of my life at the same time and think all that inflammation let them spread, because I couldn't get rid of the AW's until the H went away.

Then my HIV specialist around 2002 did an anal pap smear.  He was very up on the HPV thing and was doing this for all patients once they were 10 years into their diagnosis.  Mine came back with "irregular cell structure" so off I went to Dr. Goldstone.   What can I say about him?  Obviously knows his subject... pleasant demeanor.  But to be honest most of the time I was there I saw this other guy on his staff for the actual procedures and only dealt with Goldstone on the initial visit.  I kind of did this because the other guy was funny and well... it's an invasive procedure and the first time you have anything done like that it's rather traumatic.

They stick some thing around your butthole that stretches it open from what I recall, and then they actually take a video of your innards that they show you later.  They locate areas of dysplasia which is the irregular pre-cancerous tissue and then they go at with the laser.  As I recall they prescribed me some xanax to take before the visit so you're relaxed, and once I had the laser stuff done (i think I only had to do that once) they sent me home with some hydrocodone or something like that.  I don't recall having that bad an experience bleeding... maybe some the first day but nothing like others above seem to have experience.

Other times I went back to Goldstone's office they did the check up but gave me the all clear.   So yeah, I'd definitely recommend him.   I can't imagine anyone more experienced with HPV in HIV+ patients in NYC or pretty much anywhere.  Since I live in Philly, no I won't be going back to Goldstone.  I just found a place that's doing this though here if anyone needs the information, though I've not gotten an appointment yet.  Once I go I'll give some updates here.
"Iíve slept with enough men to know that Iím not gay"

Offline poet

  • Member
  • Posts: 934
  • Poet living and working in Central Maine
Re: Damn HPV
« Reply #58 on: December 21, 2006, 11:49:47 AM »
Thanks for the Goldstone practice information which should be useful for future readers in the NYC area confronting hpv.  Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline onemoretime

  • Member
  • Posts: 142
Re: Damn HPV
« Reply #59 on: February 15, 2007, 08:17:53 PM »
i had those dam warts too for a year, went to goldstones office for over a year.  finnally after having them lazered, frozed, acided, off.. and using the aldera cream 3 times a week... i went back one month and they were gone.... what a night mare that was.. I too was diagnosed after hiv.  I didnt feel them at first but once i found out i had them i sure felt them.. glad to be over it.. also glad to have such a nice gay friendly office like goldstones to go to.
08/04 diag 490 cd4 vl 50,000
10/25/05 436 50,513 hvb 1.1 billion
12/13/05 truvada sustiva
02/16/06 742 und, hpb 63,000
04/27/06 740 und hpb 60,000
01/05/07 458 und hvb und
03/08   470 undetectable still on atripla. Non smoking (chantex)
08/08 cd4 550 undetectable hiv, Hep B UND. Atripla
06/09  cd4 444, vl undetectable testo 130
09/09/09 CD4 687 46% UND  Testo 213 started androgel
10/12/09 cd4 682 46% und testo 597
01/12/10 cd4 842 48% und testo 434
041010 cd4 693  53% testo 492
100410 cd4 568 48% testo 523
012711 cd4 523 hcv 56 testo 596
083011 cd4 280 Hcv/HIV und
042912 cd4 158 hcv /hiv und, was on hep c for 11 months. do have ssdi filed and getting LTD
061912 cd4 151, bactrum, hep c and hiv und
071712 cd4 287 52% HIV HCV und
112012 cd4 520

Offline AustinWesley

  • Member
  • Posts: 815
    • HIV Discussion Group on Myspace!
Re: Damn HPV
« Reply #60 on: February 17, 2007, 03:55:24 AM »
Uh, this never occured to me.   I thought I'd read through a few things to deal with my insomnia and now I'm all freaked out.

I know in Texas they are making it mandatory for girls at a cetain age to be vacinated for this.  Why not boys as well?

I'm confused as to why so many had to have surgery?    I thought this was typically handled by other means.

Anyways, I thought the only real concern with cancer and HPV was with females?   At least that's what I'd always been told.

So, is this the reason my doctor wanted me to have a colonoscopy?   Does HIV cause a great cancer risk for males with HPV?

Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline paradise

  • Member
  • Posts: 8
Re: Damn HPV
« Reply #61 on: February 18, 2007, 09:05:09 PM »
Not gonna lie to you, before my last posts I hadn't had my first um... movement yet. Now I have.

<insert brutal yelping noise HERE>

make sure they give you some REALLY strong painkillers. T-3's aren't cutting it for me. Stock up on metamucil too.

Offline Longislander

  • Member
  • Posts: 2,486
Re: Damn HPV
« Reply #62 on: February 18, 2007, 09:09:01 PM »
Wesley, I believe the risk is there for men also. I also think there is an anal pap smear to test for abnormal cells thats just like a small bottle cleaner the doc sticks in a bit and turns..........

Not sure why the doc want you to have a colonoscopy???
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline AustinWesley

  • Member
  • Posts: 815
    • HIV Discussion Group on Myspace!
Re: Damn HPV
« Reply #63 on: February 19, 2007, 02:38:33 AM »
Hey LongIslander,

Thanks!   I guess I've hit my stress peak with my labs coming up tomorrow and things not lookin dandy.   I've no idea other than that cancer runs in my family why they want me to have a colonoscopy, but wondered if this was the reason.

Right now I don't think I can deal with any more bad news.   If I have cancer, oh well, so be it, but please don't tell me!

Know you are in the same boat so hope all is well.

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline SouthSam7

  • Member
  • Posts: 428
Re: Damn HPV - COST?
« Reply #64 on: February 19, 2007, 02:59:20 AM »
I don't mean to sound dumb, but how the hell do all of you afford all this medical care?  I can't even afford my hiv meds, much less my cholesterol medicine, or anything else.  Each month it's the same crisis, "how am I going to get my meds this month?"

I don't get it; it's like you all live in a different country than me.  I feel like I live in the third world. 

Please answer me because I am serious as a haart attack! (ok that part was supposed to be funny but the first part of my post I'm being serious).

Offline Longislander

  • Member
  • Posts: 2,486
Re: Damn HPV
« Reply #65 on: February 19, 2007, 05:09:32 PM »
Hey guy, fortunately I have great health insurance at work.

I've read about your problems with health coverage, and its a sad state of affairs in this country that you have to struggle with this issue, along with everything else.
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

 


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