Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
August 30, 2014, 08:51:52 PM

Login with username, password and session length


Members
  • Total Members: 23350
  • Latest: Smasher
Stats
  • Total Posts: 636687
  • Total Topics: 48324
  • Online Today: 179
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 3
Guests: 121
Total: 124

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld  (Read 3829 times)

0 Members and 1 Guest are viewing this topic.

Offline bobino

  • Member
  • Posts: 264
Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld
« on: December 01, 2006, 09:42:15 PM »

Thought I would post this in this forum for those who might be interested.  Earlier this week, I saw Dr. Carl Grunfeld, who is one of the leading researchers investigating lipodystrophy in HIV patients.  Here are a couple of things he told me that I haven't seen generally reported.

First some background:

I've been HIV+ for about 2.5 to 3 years, and over the past 12 to 18 months, I've been experiencing peripheral fat loss (face, butt, arms, legs) as well as some visceral fat gain (my pants are all tight now).  My CD4 count is normal, and my viral load has varied from undetectable to numbers in 100s.  I'm not on HAART and I never have been.  So, I'm not the typical lipo patient -- not on meds, and my immune system is basically normal.

So I got in to see Dr. Grunfeld and he told me that he doesn't believe that what I am experiencing meets his definition of lipo.  He told me that I'm going through a period of post-infection fat loss.  He said his research indicates that this is common in HIV+ people (even healthy ones) who are recently infected.  He says there is a "step down" in body fat after which the fat loss process hits a plateau and remains stable for years until one starts taking meds or the immune system fails.

I had not read about this phenomenon anywhere, so I thought that I would post this info here.

The good news is that Dr. Grunfeld believes that my fat loss will not get much worse.  The bad news is that he admits he could be wrong.  I'll be going back to see him in 6 months, and I'll see what he says then.

Suivons les rivières
Gardons les torrents
Restons en colère
Soyons vigilants

Offline pozniceguy

  • Member
  • Posts: 1,176
  • Niceguy Dallas
Re: Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld
« Reply #1 on: December 02, 2006, 07:54:36 PM »
Thanks for the info.   this pretty much follows what happened to me..lost a lot of fat..got sick..numbers were terrible  cd= 2......vl=1mil+.....PCP  ....officially diagnosed with HIV  probably infected years before....
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline egello

  • Member
  • Posts: 899
  • cb
Re: Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld
« Reply #2 on: February 13, 2007, 02:30:04 AM »
Thanks for the info.   this pretty much follows what happened to me..lost a lot of fat..got sick..numbers were terrible  cd= 2......vl=1mil+.....PCP  ....officially diagnosed with HIV  probably infected years before....

so you just never gained back that lost fat on peripheral part of your body as you got better?
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline pozniceguy

  • Member
  • Posts: 1,176
  • Niceguy Dallas
Re: Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld
« Reply #3 on: February 13, 2007, 10:36:13 AM »
Egello...no I never did gain it back ..I have been on Serostim for a few years to "stop" wasting but also to help regain "lean muscle loss"  that has worked to a degree.  I have gained back some definition in muscle but it is virtually without fat...I feel a lot better and can move well enough ...the Sculptra treatments have "restored" the facial features so I don't look "sick" ...I never was a large person //  used to be 6' 165lbs,,,now 5'10" 145lbs and holding steady for several years...
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline egello

  • Member
  • Posts: 899
  • cb
Re: Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld
« Reply #4 on: February 13, 2007, 12:28:58 PM »
niceguy

wait,,, you got shorter? Lipo makes you shorter too? FFFFFFFF...... I am short as it is.....  :'(

So is Sculptra treatments  the best treatment to go with in terms of safey and naturalness? Looking at facial wasting website, I think I am at stage 1. What should I be doing to prevent any further wasting?
Reyataz / Norvir / Truvada/ Androgel 5 g / 2 days
1/29/07 14 T, 300 k V, 1.8 %
2/22/07 197 T, 247 V, 6.8 %
3/27/07 164 T, <50 V, 5.4 %
5/28/07 177 T, <50 V, 8.2 %
7/28/07 214 T, <50 V, 9.6 %
10/3/07 380 T, <50 V, 10 % no more Mepron, Famvir

Offline antibody

  • Member
  • Posts: 525
  • "every man thinks his burden is the heaviest"
Re: Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld
« Reply #5 on: February 13, 2007, 05:39:45 PM »
i know i lost a lot of fat from my face, arms, legs and upper body. all this was about 4 years before starting Atripla. I had people tell me to get off the d4t and i wasn't even on treatment. this guy didn't even know me. he said this based on looking at me and said i'm a hiv researcher over at UCSD you really should change hiv meds...... i was flabbergasted to say the least! who the fuck is this guy? he is not my doctor. not my nurse!! where does he get off! it's like asking a chick when are you due? and she is not even pregnant!! anyways... i don't really know where i am going with this except i know i lost a lot of fat that i will never get back. i miss that fat, i love that fat!! i want my fat back!!!
Timbuk      <50/ 794  CD4 10/06 
                 <50/ 1096 CD4 3/07
                 <40/ 1854 CD4 4/09

Started Atripla  7/14/06
Switched to boosted Reyataz Truvada 3/28/07

*Ask me about Medical Marijuana and how it can help you!*

Offline pozniceguy

  • Member
  • Posts: 1,176
  • Niceguy Dallas
Re: Initial Post-Infection Fat Loss - Advice from Dr. Carl Grunfeld
« Reply #6 on: February 14, 2007, 12:31:24 PM »
egello .. yes a little shorter....the fat pads in the feet and some of the overall loss from all over the body seems to have reduced my total height....of course being a little older than you , the pads( fluid discs between the bones)  in the spine gradually thin down and that contributes as well, but I am at least 2 in shorter than I  was in 1994 when diagnosed with HIV+, just another one of those after effects that vary from person to person....
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.