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Author Topic: A Call to Those HIV Seniors... (you know who you are)  (Read 5186 times)

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Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
A Call to Those HIV Seniors... (you know who you are)
« on: November 10, 2006, 11:46:14 AM »
Well, I am back from my self imposed hiatus, and will make every attempt to spend as much time here daily to keep me abreast of the entire goings on here. 

Lots has happened since I was last a regular here, and I will only be touching on it with my posts to each of you, rather than trying to re-count all that has gone on.  I am also working on the Blog to bring everyone up to date.

I really wanted to touch a bit on some of the situations that have recently gone on here, and in doing so, make a request that some of you who are now firmly planted on the “Guest List”, log back in and start to contribute again.  I had a good conversation with one of the site managers, and found out that they are making every attempt possible to keep the forums from becoming a place that is uncomfortable for any of the membership.  Obviously this is a really difficult job, as there are literally thousands of members, and keeping track of every post in every forum is not easy, or possible.  What we need to do is to make sure that whenever things are going slightly askew, we need to let them know so that they can keep track of the situations as they evolve.  It is obvious that some members tend to like being negative and mean, and these folks are sure to be dealt with in the future, but we still need to keep on top of each situation so that others don’t suffer indignation, due only to their own stuff.

I am making this post to plea with all the ones that I have grown to love and admire, due to their own struggles and victories with HIV/AIDS.  This website, and these fora, need you and your experience.  I know that in the past that some of us have been “raked” over the coals as being Dinosaurs, The Geritol Set, Non Relevant, and just plain Out of Touch with the New population of HIV+’s.  Reality shows that those statements are more than wrong and we are truly a needed resource in this modern age of HIV infection.  Our experiences are priceless to those who are new to HIV, and our combined knowledge about this disease, and how to live with it intelligently, are a resource that make this one of the richest sites on the web.

Lord knows that I am one that is more than sensitive to negative inputs from those who couldn’t possibly know how, what I am donating, contributes to your life when living long term with this bug.  However, I would caution you that are HIV naïve, to look at the contributions of those who have years of experience with HIV as not being outdated, nor should anyone mistake their experiences as things that will certainly, or maybe less certainly, happen to you; but are placed here for your information.   I have contributed many times in the past, with information that has been drawn from my own personal experience, only to be told in responses that my “opinion” is invalid in this new day of HIV/AIDS.  Hell, who is qualified to diminish my “PERSONAL” experience.  Nobody, I would say, except me.

So, for those of you who have been forced to feel invalidated, or sidelined by the “New Face Of AIDS”, please return to the conversation.  Your absence is very noticeable, and the level of “real” HIV experience is sorely needed in these forums, to keep the level of knowledge up there with the very best we can offer.  We are, after all, the only line of information to many of these new infected, and when they pose questions that are real and valid worries about HIV, and the only response they get is “Please Get Well Soon”, well, this just isn’t acceptable.  NOT that those messages are not totally valid and an expression of true concern for those suffering, it is just that we are actually remiss if we don’t get back involved in the dissemination of true and useful information to help those who are really fighting for their lives.  If this is truly a Support forum; then it is our responsibility to be one of those that offer true and useful support.

I have been watching Matty, Jonathan and Lis’s threads with real concern and worry, as they are literally struggling to stay alive, and most of the new membership don’t even realize that they might be watching someone die.  How very sad if we all who are qualified and capable; just stay silent, due to our own daily struggles.  These people in these forums need our help, our knowledge, and they need to know that many of the membership of these forums are actually struggling to stay alive, and not just worried about drug side effects and whether or not to stay home from work.  Lis, Joe, Nancy, Fishkernish, Bailey, Jonathan and many others that escape my feeble HIV encrusted brain; please return to the conversation.  You are sorely missed so very very much. 

Thanks for reading.

In Love,
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline Teresa

  • Member
  • Posts: 1,753
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #1 on: November 10, 2006, 02:08:08 PM »
Welcome Back Tim,

You have been missed! I have missed the others that no longer post here or that do not post as frequently as they did.

As someone fairly new to HIV/Aids (been 6 months) I need the experience and knowledge of the "dinosaurs" (your word Tim not mine) on these forums. I for one don't know how I would have made it these 6 months without you. You are needed here more than you realize.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline J.R.E.

  • Member
  • Posts: 7,288
  • Joined Dec-2003 Living positive, since 1985.
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #2 on: November 10, 2006, 02:47:09 PM »
Hello Tim,

Great to see ya ! From one old timer to another, I toast you with a shot of geritol !! ;)
Now to get everyone else back...


All the best----Ray 8)
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 12/10/14,  t-cells are at 350,  Previous 8/25/14--- 402/ Viral load remains <40

 Current % is at 13% / Previous 8/25/14 11%

  
 63 years young.

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #3 on: November 10, 2006, 03:52:49 PM »
Thanks Teresa and Ray, now let's keep our fingers crossed and see just who turns up. 

In Love,
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #4 on: November 10, 2006, 04:03:31 PM »
I have been on this site, just about a month now, and I cherish the word of those that has been dealing with this virus for awhile. I understand that the things some go through may not happen with me but it's always good to get a heads up. I take the knowledge I gain here and share it with others when the HIV topic arises.

I agree with Moffie, wherever you are, dinosaur or not, please come back. Don't let the pettiness of some keep you away from those who needs your wisdom and experience.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline AlanBama

  • Member
  • Posts: 3,647
  • Alabama: the 'other' 3rd World Country!
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #5 on: November 10, 2006, 04:32:35 PM »
Hi Tim,

Glad you're back, and thanks for the explanations/clarifications.   I think some of us had just reached the 'saturation' point with all the negativity and nastiness, but hopefully "this too, shall pass".

Like you, I'm worried about Matty, Lis & Jonathan, as well as a couple of other folks who have major issues that they have not disclosed in the forums.   I've been struggling since we got back from Montreal, to get my cardiac condition under control.  My blood pressure and pulse rate is up and down like a yo yo.
We have doubled my Coreg (for Congestive Heart Failure) and added another drug, and I see the cardiologist for yet more tests on the 30th of Nov.
For those who may not know or remember, I contracted bacterial endocarditis back in the 90's when I had no immune system (pre protease era), and it damaged my heart muscle.

Old and new alike have much to contribute here, so everyone let's please keep it going!  This is my only form of support other than friends and family.

Hugs,
Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline RapidRod

  • Member
  • Posts: 15,288
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #6 on: November 10, 2006, 04:41:23 PM »
Glad to see you back Tim.

Rodney

Offline Eldon

  • Member
  • Posts: 2,664
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #7 on: November 10, 2006, 04:50:27 PM »

If this is truly a Support forum; then it is our responsibility to be one of those that offer true and useful support.



Hello Moffie,

It is ever so good to hear your "voice" back on these forums. Truly there is a "purpose" for each and every one of us, just as well there is a "purpose" for this site. It is up to us as a group to help with fulfilling that "purpose". Support each other.

Make the BEST of each and every Day!

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #8 on: November 10, 2006, 04:57:01 PM »
Yes, Akasha, Alan, Rod and Eldon,

I am back...  and now one of you made me cry.  Alan, I had no idea, and I want to thank you so very much for sharing this very disturbing news.  Damn, why didn't we hug more in Montreal?

In Love, and ........... Support.
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline bear60

  • Member
  • Posts: 4,105
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #9 on: November 10, 2006, 05:59:19 PM »
Well, from one senior to another.....I appreciate all that you do and say to help others, Tim.  I need support as you do and finding that support is a wonderful thing.  I have lost so many of my friends to HIV and other causes that I am almost the last one standing...so to speak. So, coming here and seeing that everyone is doing the best they can, in some not so great situations, is inspiring .  Thanks for your support Tim.
Poz Bear Type in Philadelphia

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #10 on: November 10, 2006, 06:25:43 PM »
Glad you are back Tim! And thanks for reminding me this is a support group. Almost forgot. Nice to see you back. I hope The newbies and the oldies can respect EACH OTHER so we can all learn from each other. I know I have learned so much from all ages. I am seeing someone (yeah it's true :)) who is been poz for one year. I told him jokingly  I wouldn't hold his lack of experience against him. And of course, he agreed to not hold my 22 years against me LoL.  My point is, we are all in this together. Hiv is HIV, it doesn't matter how long you have had it. We all must fight the same battle. We can all learn from each other. And I truly believe we can all be better off in the long run if we SUPPORT each other, rather than fight.

I hope everyone feels good today! Welcome back MOFF!!!!

Positive since 1985

Offline anniebc

  • Member
  • Posts: 5,956
  • AM member since 2003
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #11 on: November 10, 2006, 06:47:01 PM »
Dearest Tim

If it wasn't for you "Old dinosaus" I wouldn't be where I am today, or doing what I'm doing...there is not a day goes by that I don't silently thank you all for the information, the encouragment, and inspiration you all gave me when I arrived here as a newbie 4 years ago.

The newly infected need you guys..they need your wisdom and experience, I hope you won't let them down...lets get this back to being what it started off as...a support forum.

Hugs to you Tim

Jan :-*

-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Ric Wilke

  • Member
  • Posts: 573
  • I joined AIDSmed.com 10/2002.
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #12 on: November 10, 2006, 07:38:49 PM »
Hey dear Friends,

Those of you who know me know that I'm an old "newbie".  I'm 56 years old but only 5 years Dx.

This place is my stronghold and my support system.  I have met many great people here.  I have also met some who have let me down.  I only concentrate my focus on the former.  The others seem to have problems with dealing with the "heat in the kitchen" and have build their own new one.  This is good for all of us.  Let's wish them a long and happy life and let's move on.

I personally miss two very special fiends that have not had anything to say lately.  Dear Jim and Mike, if you are still reading here, please post so we know that you are okay.  You both offered so much to this group and I know that you both have so much more to share.  I miss you guys.

I am saddened by the recent events that have occurred here on the forums.  Personally, I feel that the forums are a place in which we can support each other as we face each day with new problems, new exciting news and just being there for this wonderful family.  I welcome everyone with an open heart.

With deepest respect and love, Ric

Offline Terry

  • Member
  • Posts: 339
  • 7/13/82 Infected
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #13 on: November 10, 2006, 08:08:05 PM »

Tim,

I expressed my feelings, in Dachshund’s thread, (Your thought’s on Time Out’s?) to Peter about how this forum has changed.

Part of my Quote:

Peter,

AIDSmeds.com, years ago use to be about, (Well at least for me it was.) AIDS and the Medications/treatment/side-effects/support available.   It was not whether a person was male, female, gay, straight, intelligent, dumb, young or old, black or white. It was more about obtaining the hard to find information pertaining to dealing with, living with, and surviving HIV/AIDS.



I agree that this site would be a lot more enjoyable if it went back to being a support/group type forum and a little less about having to constantly stroke the ego’s of some members.

Myself, I have learnt quite a lot from the younger members in here. (Some of which have been HIV+ almost as long as I have.)Their compassion and understanding for their fellow human being, at times leaves me speechless.

And then at times I’m disappointed at the lack of compassion from others.

Glad that your back and doing well!



Offline Just John

  • Member
  • Posts: 267
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #14 on: November 10, 2006, 08:08:30 PM »
Hi Moffie;

I was brought up to respect experience and was taught that from it comes true wisdom and knowledge, this has proved to be true in every aspect of my life so far and the only time that I couldn't ever accept it was as a petulant teenager. (yes I can remember that far back, heehee)

I have gained a great deal of information from you "Dinosaurs" on this site and hope that I will always do so, gradually I suppose, with luck and some good living becoming one myself. I believe that the people here who have disrespected you and "hauled you over the coals" are a minuscule proportion of the members here who have been helped with knowledge, support and comradeship from the members who post on these pages. Please try to understand that some of the younger members have never known, or had any experience of the early years of this disease and that some of them are lulled into a false sense of security by the information given to them by their Doctors and support workers, i.e. "take the meds and you will probably live a normal lifespan". Exacerbated by reports in the popular media that this is now the case they are quite likely to have the opinion, that many of the problems suffered by you and others either now or in the past will never apply to them, what they don't realise of course is that possibly they will.

I think that one of the things which makes this forum so inviting to me is the diversity of it's members, gay/straight, male/female, young and old and all combinations in between from all over the world which gives some real life to discussions and also ensures that the information and advice given is more likely to be accurate and relevant and provided from different perspectives.

I know that it is difficult to stay in a place where somebody is always having a go at you but please stay around for all our sakes, we need you it's just that they don't realise it yet; they will grow up ----------------eventually.


John.
Some cause happiness wherever they go; others, whenever they go.

Offline al

  • Member
  • Posts: 9
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #15 on: November 10, 2006, 10:36:20 PM »
Glad to see you back Tim.

Rodney
???i am new to this, how do I join in on the topics. I don;t no anyone.   al----alice

Offline Longislander

  • Member
  • Posts: 2,486
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #16 on: November 10, 2006, 10:38:46 PM »
trust me Alice-just start fresh, and welcome ;D
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline al

  • Member
  • Posts: 9
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #17 on: November 10, 2006, 10:51:34 PM »
Thanks,  I am working on when to answer back and meet lots of people . There has to be someone out there to talk about Hiv and how to feel better       Alice

Offline heartforyou

  • Member
  • Posts: 1,105
  • I must be a survivor in many ways...
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #18 on: November 11, 2006, 08:04:33 AM »
Dearest Moffie, sweetest Tim, cherished companion.

Thank you for showing up again.
You know, distance and location may physically keep us apart, but energy doesn't care about these boundaries.

I can feel you back here and I  am relieved to find you in good spirit.

We, the dinosaurs, are the Shepard's of the newly infected, I think.
Showing the way, being life proof that HIV can be survived, but also showing the scars that so many years of HIV ( 20 years for me) left on each of us.

This site is like  a tide to me. Some days I get drawn to it, on others I get swept out to the sea of life. But I always return.

So my Moffie, my gifted writer, my spiritual brother and my dear dear friend and love : welcome back.

hermie :-* :-* :-*
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline Iggy

  • Member
  • Posts: 2,435
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #19 on: November 11, 2006, 10:46:39 AM »
.
« Last Edit: January 12, 2007, 08:00:05 PM by Iggy »

Offline joyluckclub

  • Member
  • Posts: 136
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #20 on: November 11, 2006, 04:12:56 PM »
Hey,

To all of the HIV seniors,

I'm glad you are here.
"Honey, be who you is"  Madea.........

Offline wellington

  • Member
  • Posts: 508
  • Don't sweat the little things.
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #21 on: November 11, 2006, 04:41:23 PM »
As Terry notes,
Quote
... this site would be a lot more enjoyable if it went back to being a support/group type forum and a little less about having to constantly stroke the ego’s of some members.

Some recent unpleasantness aside, I don't feel this place ever stopped being a supportive one. Granted, I've only been here for the last six months, so I can't comment on what it might have been like before then. However, I still see lots of information and experience being offered and exchanged. I don't feel that I have to understand or take to heart everything that is said here. Maybe that's why I'm able to continue to feel good about it all. When members express themselves poorly, I chalk it up to the real-life issues to which Alan alludes, of which I may not be totally aware. Sometimes people just need to vent and I recognize that this is a convenient and safe place to do just that. While I may not always know how to process those outbursts by chiming in with a few words of experience or observation, I know that there are others more adept than I who will step up and speak out.

As long as there is a respect for person, attacking only the positions and never the person behind them, I cannot fathom that this place will do anything but continue to thrive.

Offline Lis

  • Member
  • Posts: 601
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #22 on: November 11, 2006, 05:02:14 PM »
Tim... thanks for all that you do

Iggy... you made my heart MELT!!! you spoke VOLUMES..

lis
poz 1986....

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #23 on: November 12, 2006, 02:25:59 AM »
Not to hijack but.....Iggy, that was one of the most thoughtful post's Ive' ever read on hear. Thank you for that!
Positive since 1985

Offline aztecan

  • Member
  • Posts: 5,430
  • 29 years positive, 57 years a pain in the butt
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #24 on: November 12, 2006, 09:54:18 AM »
Hey Tim,

I don't know if I'm a dinosaur, although I usually feel like one when discussing meds.

Sharing our experiences and knowledge is critical for those recently on this path. As you said, it isn't meant to dictate what course people must take, or to predict with absolute certainty what anyone's future holds. but to give insight gathered through our years walking our path.

I've missed you. I'm glad you are back.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Christine

  • Member
  • Posts: 1,069
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #25 on: November 12, 2006, 11:01:03 AM »
Tim,
I am glad your back! I hope others follow. I also want all of those "dinosaurs", and the newbies to know I value their posts, their knowledge and experience that they share here.

I guess I would be a newbie dinosaur, being here less than a year but poz for 13 years. I learn something new everyday here, and the support has helped me deal with it all. I am no longer alone with hiv.

Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #26 on: November 12, 2006, 11:27:45 AM »
Let's have the truth, the whole truth and nothing but the truth. Nothing is quite as powerful. As an HIV newbie I say we need to hear from ALL positive people - pun intended! Christine, maybe you can be a newbisaur  :D

Sharing our experiences and knowledge is critical for those recently on this path. As you said, it isn't meant to dictate what course people must take, or to predict with absolute certainty what anyone's future holds. but to give insight gathered through our years walking our path.

Beautiful, poignant and perfectly worded!! Amazing! Thank you!

Offline Life

  • Member
  • Posts: 2,388
  • Member 2005
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #27 on: November 12, 2006, 08:52:29 PM »
I am blessed to know all of you..

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #28 on: November 13, 2006, 05:18:32 AM »
Well Guys,

I certainly didn't expect to see so very many responses this morning, but here they are.

I just want to thank all of you who responded with such positive thoughts and some like Iggy's who were so very well thought out and completely moving contributions to this thread.  I happen to like it when we all share our thoughts with each other, as it tends to strengthen the relationship we all have together.  This has been a very good thread in that sense, and I thank you all for coming in and sharing your feelings and thoughts.

In Love,
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #29 on: November 14, 2006, 03:09:20 AM »
You are welcome Moff. I hope things will "settle down" now. Knowledge is power. And we all need to become more powerful. The personal attacks are so silly, and a waiste of our valuable time.

I wish there was a sign at the front of the Door:

"Before posting, please check your EGO before entering"

Love and peace to us all.
Positive since 1985

Offline gaz41

  • Member
  • Posts: 54
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #30 on: November 14, 2006, 02:43:48 PM »
I check in occasionally,i don´t have as much time as i had previously, but when i do come into the forums and see whats going on , it doesn´t exactly induce me to want to stay

garry

Offline Nancy

  • Member
  • Posts: 59
  • No one belongs in jail for a Plant!!!
    • The Human Solution International
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #31 on: November 28, 2006, 03:13:27 AM »
Tim,

Sorry to be a disappointment, but this place has become too toxic for me to deal with.  The hate and venom just oozes. 

You'll always be one of my favorite people I've met here, along with Lis, Jan and a couple others.



 
Deborah Cadigan-Little
Diagnosed Oct 1993
Member since Sept 2002
Meds Dec 2003

Offline NightmareHall

  • Member
  • Posts: 61
  • Out for a Sunday drive to Zeta Reticuli
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #32 on: November 28, 2006, 10:00:35 AM »
*
« Last Edit: December 14, 2006, 11:03:43 AM by NightmareHall »

Offline jntmax39

  • Member
  • Posts: 81
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #33 on: November 28, 2006, 09:18:52 PM »
Well iI for one am greatful for you all. I need your  knowledge and wisdom of what is happening to me.My husband asked me lastnight why I come on here and I said to him, I need these people
everyone for the most part is comppasionate and loving,I feel like I could be apart of something.
It seems funny but I feel like I can get my strength from all of you.
It's been 2 yrs since being diagnosed and sometime I just get so angry.Then I come on here and I get a sense of piece,like I'm not alone in this. And of course I need to ask my silly questions all the time.lol...THANK YOU OLD TYMERS..LOL...

Offline Lis

  • Member
  • Posts: 601
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #34 on: November 28, 2006, 09:39:47 PM »
Nancy

It sorta feels like a bad marriage... i feel that... but you are always in my thoughts and prayers!!!  GIRL!!!! you are what keeps ME strong!!!


lisbeth
(who loves Nancy)
poz 1986....

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #35 on: November 28, 2006, 10:34:52 PM »
It really sucks that the room has become "toxic", a word someone used from a previous post. I have only been here since this past October so I really don't know who the older set is unless they make themselves known. I refuse to let someone run me from this forum because they may have a negative opinion or always has one. I read their posts like I read everyone else's.

I do not diminish anyone's experiences but instead take heed to it because it could happen to me. Or if someone has had a bad experience and wants advice, I share and in my cases, I usually state that it is solely my opinion. It is up to the person whether they decide to follow it. I do not expect anyone to agree with what I say but it is appreciated when folks do, all this tells me is that we tend to think alike on certain things.

What has disturbed me, is how people have gone to singling people out in the forums if they are incorrect about something or has a difference of opinion. Is this being done to belittle another, sometimes I wonder when there is the PM feature.

Just because I may be HIV naive does not mean I do not have anything to contribute. I may be naive but we all have been at one point but some seem to overlook this fact. It's almost like because you may have experienced more or has more medical knowledge than myself, am I suppose to be inferior? Um, last I knew, we all have the same virus....Hello?

Those are just my 2 cents since someone bumped this back up.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline IzPoz

  • Member
  • Posts: 332
  • God, grant me the serenity...
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #36 on: November 28, 2006, 11:05:51 PM »
In my opinion, I think we all are here to educate each other.  The newly diagnosed may learn about something new that we 'old timers' may not know about.  And us 'old timers' can help guide the newbies through the rough parts of early stages of diagnosis, drug reactions and interactions, dating, family life, etc.

So, remember to continue to respect each other and move forward. 
The reason angels can fly is that they take themselves so lightly. ~ Chesterton G. K.

Offline DanielMark

  • Member
  • Posts: 1,475
Re: A Call to Those HIV Seniors... (you know who you are)
« Reply #37 on: November 29, 2006, 06:40:02 AM »
I like to keep things simple as possible in my life. To that end, in my cyber life I share whatever I am living and if someone can relate then that’s great, if not, then also fine.

I leave the technical questions and info stuff to those who are more interested and probably more knowledgeable in those areas.

Daniel
MEDS: REYATAZ & KIVEXA (SINCE AUG 2008)

MAY 2000 LAB RESULTS: CD4 678
VL STILL UNDETECTABLE

DIAGNOSED IN 1988

 


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