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Author Topic: Dads not doing well!!!  (Read 4753 times)

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Offline lovingdaughter

  • Member
  • Posts: 23
Dads not doing well!!!
« on: November 20, 2006, 10:07:33 PM »
Hello everyone,

   Hope all is good with you guys.

I will try to make a long story short, Dad was admitted on Nov 2, with high fever & lots of pain, later (a week later) diagnosed with gall stones. The problem...very low blood count so we could not do the procedure to remove them until his count was up. His heart rate also went up to 167 so he was moved to  ICU to bring that down & monitor.  So for the next 6 days he received platelets, plasma and whole blood, still a problem building up his count so they put him on steroids, they were finally able to do the procedure on Nov 15 and removed 6 large stones. To our surprise he went home on Fri. Nov 17.
Surprised because they were planning to go back in & remove the gall bladder, now ? and also he had begun to swell all over, feet hands, etc. But they said it was due to all of the fluids that he had received recently.

Now it is Nov 20, last night he began throwing up, a black substance and diarrhea, also black. So now he is back in the hospital, he has gained 20 lbs since admission on Nov 2. He is so bloated that he can't even feel his feet. His blood pressure was 212/87 at time of admission and heart rate of 137. Platelet count under 40 not sure about the rest, I was searching for a pen but trying to hear & remember what I could. He IS bleeding internally!!

There was mention of possible ulcer, possible heart failure, & possible "who knows". They need to do an endoscope to find the bleeding but can't until his blood count is better. They have once again, started him on platelets and given something to hopefully help with the fluid retention, but said until they know where the bloating is coming from this is all they can do.

I hope I haven't left anything out. Please for those of you who pray, remember him and for those of you who don't please think of us!
 
                          My Best to ALL of you!!
                                        Lisa
 :'(
« Last Edit: November 20, 2006, 10:11:44 PM by lovingdaughter »

Offline Eldon

  • Member
  • Posts: 2,664
Re: Dads not doing well!!!
« Reply #1 on: November 20, 2006, 10:15:07 PM »
Hey Lisa,

I send my BEST wishes and prayers for your father's recovery.



Make the BEST of each Day!

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: Dads not doing well!!!
« Reply #2 on: November 20, 2006, 10:19:50 PM »
  Lisa,

    I am so sorry to hear this.   I know this is a very stressful time for you and really have nothing  soothing to ease your worry.  But please stay strong, your support and love means the world to him.   I know you already know this and admire the strength you have displayed during this ordeal.   I hope he gets better so he can continue his time on earth here with such a beautiful and caring daughter  .  Lisa, you are both in my thoughts and prayers.

   Sincerest Regards,

   Thomas
I despise the song Love is in the Air, you should too.

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Dads not doing well!!!
« Reply #3 on: November 20, 2006, 11:15:42 PM »
Lisa,

I will keep you and your Dad in my prayers.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Longislander

  • Member
  • Posts: 2,486
Re: Dads not doing well!!!
« Reply #4 on: November 20, 2006, 11:45:00 PM »
Lisa,

I'll be keeping you and your dad in my thoughts. I hope the doctors figure this out quick, so your dad can heal, and you can ease the stress you're going through.

Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline ndrew

  • Member
  • Posts: 695
  • ....-.-.-.-.-.....
Re: Dads not doing well!!!
« Reply #5 on: November 21, 2006, 12:02:11 AM »
Lisa,

Healing thoughts for you and your father in this time of difficulty...

Drew

Offline IzPoz

  • Member
  • Posts: 332
  • God, grant me the serenity...
Re: Dads not doing well!!!
« Reply #6 on: November 21, 2006, 12:05:59 AM »
Lisa,

My thoughts and prayers are with you through this troubled time.  I hope that it gets better.
The reason angels can fly is that they take themselves so lightly. ~ Chesterton G. K.

Offline Christine

  • Member
  • Posts: 1,069
Re: Dads not doing well!!!
« Reply #7 on: November 21, 2006, 11:28:11 AM »
Hi Lisa,
My thoughts and prayers are going out to you and your Dad. I know it is a hard time for you and your family. I hope you can feel our love and support around you now.
Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline Teresa

  • Member
  • Posts: 1,753
Re: Dads not doing well!!!
« Reply #8 on: November 21, 2006, 02:11:02 PM »
Lisa,

You and your Dad are in my thoughts and prayers!

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Online RapidRod

  • Member
  • Posts: 15,193
Re: Dads not doing well!!!
« Reply #9 on: November 21, 2006, 03:57:07 PM »
Lisa, my thoughts are with you both.

Offline Robert

  • Member
  • Posts: 2,639
Re: Dads not doing well!!!
« Reply #10 on: November 21, 2006, 05:57:32 PM »
Lisa....

Oh I hope he's feeling better today.  I'm praying for you both now and a special prayer on Thanksgiving. 

robert
..........

Offline J.R.E.

  • Member
  • Posts: 6,962
  • Joined Dec-2003 Living positive, since 1985.
Re: Dads not doing well!!!
« Reply #11 on: November 21, 2006, 07:26:16 PM »
Lisa,


Just continue being there for him !! This is what he needs. My thoughts go out to both of you.



 Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of DEC 9th, 2013,  t-cells are at 437 Viral load  <40 .

 Current % is at 16% (L)

  
 62 years young.

Offline lovingdaughter

  • Member
  • Posts: 23
Re: Dads not doing well!!!
« Reply #12 on: November 21, 2006, 07:29:16 PM »
Thanks to all of you.
  
     Today I went to see him & he lost 10 lbs over night, they injected him with something (not sure of the name) to make him urinate ALOT!! So that was a plus, but they took him to surgery to do the endoscope to see where the bleeding is coming from and sent him right back because of his blood counts were too low, so tonight they plan to give him more platlets and try again tomorrow. He is just sooooo depressed, he wanted to be home for Thanksgiving, when they sent him home on friday, he thought he would be but now,, I really doubt it & so does he. I can deal with "A" lost holiday if that means I have ALOT more with him.

Thanks again guys,, it really means alot to be able to vent.

                             My best to all if you!!!!
                                            Lisa

Offline IzPoz

  • Member
  • Posts: 332
  • God, grant me the serenity...
Re: Dads not doing well!!!
« Reply #13 on: November 21, 2006, 08:13:54 PM »
Lisa,

Just do the best you can to bring up his spirits.  I'm glad he's lost some of the retained fluids.  That should help him to feel somewhat better, if anything, more comfortable.  If he's got congestive heart failure, make sure you stay on the nurses about how much his iv drip is on.  I've had to get onto many a nurse for opening up an IV for my husband. 

I hope they find the source of the bleeding and are able to fix it while they are in there.

My thoughts are with you daily, and pray that he gets out soon.

(Find out if he can have some home made turkey and thanksgiving dinner).
The reason angels can fly is that they take themselves so lightly. ~ Chesterton G. K.

Offline lovingdaughter

  • Member
  • Posts: 23
Re: Dads not doing well!!!
« Reply #14 on: November 24, 2006, 10:11:12 PM »
Ok, New update

  Dad's blood count finally came up enough for them to do the scope on Nov 22, and the found that he has esophagitis, there were 3 spots of erosion and they biopsied them, we will get the results later. On Thanksgiving day they gave him 2 units of whole blood & then sent him home, no explanation for the severe swelling. Today the 24th, he is still swollen, ( not as bad as Monday when he went in) but he can still barley walk. I really wonder if they check everything out??? or do they come up with an answer for the current, life threatening problem, then forget the rest. Its almost like, "OK, we've found SOMETHING to tell the family" Now send him home.

I thank all of you for letting me vent !!!!

Hope all of you are doing great!!!

   Thinking of you all,  Lisa

Offline Longislander

  • Member
  • Posts: 2,486
Re: Dads not doing well!!!
« Reply #15 on: November 24, 2006, 10:54:37 PM »
you do have to wonder sometimes.. Glad he was able to be home yesterday, though. I hope everything is on the upswing from here.

Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline RevMC

  • Member
  • Posts: 223
  • It's me!
    • Psychic AwakeningSchool.com
Re: Dads not doing well!!!
« Reply #16 on: November 24, 2006, 11:39:37 PM »
Lisa,

Yes, the swelling can be caused by all the fluids they pumped into your dad. 

Louie, my other half, had 2 units of blood and fluids around the clock.  They were trying to get his electrolites and other levels under control.

Louie was given diaretics also so that he could get rid of a lot of the fluids.  He too started swelling.  They also monitored how much he was urinating.  Not sure why your dad had so much swelling.  It took time for the fluids to build up, it's going to take some time for it to get better.  Hang in there.

I do know that when someone is week that certain counts need to be at a certain level before a procedure can be done.  Louie was in need of a colonoscopy but he was too week and they said he would not survive the procedure if there were complications.

Hang in there for your dad, you've been doing the right thing for him.  Keep up with everything that is going on and ask lots of questions.  If something doesn't make sense to you ask for them to explain it until you understand what's going on.  When you write something down like a procedure of any other technical stuff, search on WebMD.com or a general search on-line for more information.  I did many a night and learned quite a bit.

Your family is in my thoughts and prayers.

Love and Light,
Rev. Michael

Part of my story: "Sale Of A Lifetime" POZ December 2003
http://www.poz.com/articles/172_752.shtml

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE



Love and Light and Reiki sent your way,
Rev. Michae

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Dads not doing well!!!
« Reply #17 on: November 25, 2006, 04:10:13 PM »
Your Dad is a very lucky and blessed man to have a loving daughter such as yourself.

I will keep you both in my thoughts and prayers.

You are a pillar of strength. Which is awesome.
Positive since 1985

Offline FiercenBed

  • Member
  • Posts: 183
Re: Dads not doing well!!!
« Reply #18 on: November 25, 2006, 08:11:14 PM »
god bless!

Offline lovingdaughter

  • Member
  • Posts: 23
Re: Dads not doing well!!!
« Reply #19 on: November 25, 2006, 10:38:26 PM »
You have all been a great support to me & I thank all of you for the kind words & prayers. you all have some insight, in different ways, that I can use or just some form of comfort. I appreciate all of you!!  I will update as soon as I know more, hopefully good news and I only hope I can return the favor to all of you sometime, not only in a time of need but just as a friend.
           
                                                      God Bless,
                                                             Lisa

Offline Eldon

  • Member
  • Posts: 2,664
Re: Dads not doing well!!!
« Reply #20 on: November 25, 2006, 10:46:26 PM »
Hey Lisa,

You are more than welcome! We are all here to support each other.



Make the BEST of each Day!

Offline Lakis

  • Member
  • Posts: 83
Re: Dads not doing well!!!
« Reply #21 on: December 15, 2006, 03:48:06 PM »
Hi Lisa,Your Dad is a lucky man to have daughter like you.My thoughts are with both of you.
Lakis

Offline PositivelyYours

  • Member
  • Posts: 133
Re: Dads not doing well!!!
« Reply #22 on: December 15, 2006, 05:36:47 PM »
My prayers and thoughts and with you and your dad.  I pray that he get better soon.

PositivelyYours

Diagnosed: 08/10/2006
08/31/06 CD4:240/VL:39,000
09/12/06 CD4:359/VL:50,000
11/16/06 CD4:509/VL:76,000 (Flu Shot)
02/13/07 CD4:270/VL:69,000
02/17/07 Developed the Shingles
02/20/07 CD4:326/VL (Not Tested)
03/20/07 CD4:484/VL:54,000
06/19/07 CD4:488/VL:51,000
09/18/07 CD4:372/VL:27,000
10/09/07 Took Flu Shot
12/18/07 CD4:408/VL:85,000
03/18/08 CD4:394/VL:116,000 (Still No Meds)
05/22/08 CD4:412/VL:63,000
08/13/08 CD4:362/VL:67,000
09/23/08 Took Flu Shot
10/15/08 CD4:340/VL:54,000
11/14/08 Started Atripla @ 9:45 p.m.
1/30/09 CD4:641/VL:<48 Copies
5/07/09 CD4:667/VL: Undetectable
12/02/09 CD4:759/VL: Undetectable
03/05/10 CD4:537/VL: Undetectable
03/16/10 Rec'd TB Skin Test, Pneumonia & Hep B Vac
04/15/10 Hep B & Tetanus Vac
6/10 CD4: 748 VL: Undet.

 


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