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Author Topic: Im living with HIV and want to talk with others...  (Read 4351 times)

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Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Im living with HIV and want to talk with others...
« on: November 19, 2006, 08:01:29 PM »
Hey...when I tested positive last November I really was depressed and didn't find anything but dating or medical sites.  So I created my own site, its just for us and doesn't cost a thing.  Lets meet and talk at www.justtestedpositive.com

Offline Eldon

  • Member
  • Posts: 2,664
Re: Im living with HIV and want to talk with others...
« Reply #1 on: November 19, 2006, 08:17:06 PM »
Hey Rayvjr,

It is unfortunate that you have tested positive with HIV. However is is good that you are reaching out to others for additional support. You will experience many thing s on this site as you interact with us.

I wish to extend to you a warm WELCOME here at the forums. Here you will find the encouragement, communication, understanding, support, some cries, some laughter, and many of your questions relating to HIV/AIDS answered.


We have a great group of Real People who will listen as well as answer you. We are here to encourage one another and to learn from each other.
Implementing a Positive Mental Attitude will also assit you on your journey in this life as well as a positive impact on your immune system.

Talking to other people helps us see that we are not the only ones with problems. Feel free to come and vent with whatever is on your mind from time-to-time as it is highly therapeutic.

In the interim, you may want to start taking a multi-vitamin, Omega 3 and eat a diet high in fruits, vegetables, whole grains, lean protein, and low-fat dairy and avoid processed foods, saturated and trans fats. This will also help you maintain a healthy weight.

Exercise at least three times per week for a minimum of 30 minutes.

Make the BEST of each and every Day!

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: Im living with HIV and want to talk with others...
« Reply #2 on: November 19, 2006, 08:19:37 PM »

  Can I still go there even though I did not "JUST" test positive..  Is there a cut off?  I tested pos in September of 2005.
I despise the song Love is in the Air, you should too.

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: Im living with HIV and want to talk with others...
« Reply #3 on: November 19, 2006, 08:21:26 PM »


   Eldon you keep giving me fits of deja vu!   I'm going nuts I think!
I despise the song Love is in the Air, you should too.

Offline RevMC

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  • It's me!
    • Psychic AwakeningSchool.com
Re: Im living with HIV and want to talk with others...
« Reply #4 on: November 19, 2006, 11:41:51 PM »
Hi Ray,

Great for you!!!  I wish you the best of luck with your website.  Remember too to point people to here if they have questions, there's a lot of useful information here.  People will visit both sites.

18 1/2 yrs of being poz so I guess I'm out  ;)

Love and Light,

Rev. Michael
Part of my story: "Sale Of A Lifetime" POZ December 2003
http://www.poz.com/articles/172_752.shtml

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE



Love and Light and Reiki sent your way,
Rev. Michae

Offline Eldon

  • Member
  • Posts: 2,664
Re: Im living with HIV and want to talk with others...
« Reply #5 on: November 19, 2006, 11:44:19 PM »
Hey Thomas,

Deja vu?


Make the BEST of each Day!

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: Im living with HIV and want to talk with others...
« Reply #6 on: November 20, 2006, 01:06:09 PM »
Everyone is welcome...its a site for all of us to come together and chat...since I posted this a lot of people have come by to chat...come and visit.... www.justtestedpositive.com

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
You guys have alot to say...share it with me...
« Reply #7 on: November 20, 2006, 03:13:32 PM »
Just put up a webradio station page on my website for people like us.  You can put your voice comments on it and share ideas and thoughts...come by and visit...just a site for people with HIV to meet...chat...share ideas...I made it myself and dont charge...and never will....so pass by www.justtestedpositive.com and leave your thoughts and comments on the radio for others like us to hear...kinda like a voice message board..lol....Im also hoping some of you will put on a radio show...

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: You guys have alot to say...share it with me...
« Reply #8 on: November 20, 2006, 03:14:47 PM »
And you don't have to be recently positive...its for all of us....

Offline MSPspud

  • Member
  • Posts: 613
  • Joined Mar 2005 - Formerly UofMurbs
Re: You guys have alot to say...share it with me...
« Reply #9 on: November 20, 2006, 03:16:05 PM »
So every one of this person's 7 posts has been a promotion for this other site.  Is that allowed?  Buy a banner ad.
« Last Edit: November 20, 2006, 04:57:24 PM by MSPspud »

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: You guys have alot to say...share it with me...
« Reply #10 on: November 20, 2006, 03:23:26 PM »
hey...Im just trying to bring us together...trust me Im not making any money...just making friends...

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: You guys have alot to say...share it with me...
« Reply #11 on: November 20, 2006, 03:27:04 PM »
when I tested positive all I could find was pay sites and dating sites and medical sites...I'm just trying to bring us together, Im sorry if it seems otherwise...
« Last Edit: November 20, 2006, 03:29:03 PM by rayvjr »

Offline dad1216

  • Member
  • Posts: 135
Re: You guys have alot to say...share it with me...
« Reply #12 on: November 20, 2006, 03:42:07 PM »
I think most of us has already found our site to share our ideas and thoughts with some of the greatest people around....

It's right here!!
23 years HIV+ (Oct 88)
11 years AIDS (March 00)

CD4=83  VL=47,000  (May 2011)
CD4=63  VL=78,470  (Oct 2010)
Prezista..Norvir..Truvada

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: You guys have alot to say...share it with me...
« Reply #13 on: November 20, 2006, 04:13:45 PM »
I didn't expect such negativity trying to put together something new...its a shame.  Here I am trying to do something good...something that made me smile for a little while...and you two guys just bring me down.  If we don't look out for each other, who will.  What a bummer...

Offline MSPspud

  • Member
  • Posts: 613
  • Joined Mar 2005 - Formerly UofMurbs
Re: You guys have alot to say...share it with me...
« Reply #14 on: November 20, 2006, 04:19:12 PM »
OK, then... you've reached a support forum, yet have told us nothing about yourself or your issues.  Your last 10 posts have been about nothing other then this site (which by the way, most of us are well past just testing positive). 

If I wanted advertisements, I'd turn off my pop-up blocker.

Just my two cents.

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: You guys have alot to say...share it with me...
« Reply #15 on: November 20, 2006, 04:42:46 PM »
Its fine...I get it...won't bother you again...I just thought some people might actually benefit from your experiences....but I guess reaching out here is not a good idea.  Some of us haven't come to terms with HIV as easily as you...I was trying to be creative instead of crying, or being depressed over my condition...I guess I turned to the wrong people for support.
« Last Edit: November 20, 2006, 04:52:06 PM by rayvjr »

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Im living with HIV and want to talk with others...
« Reply #16 on: November 20, 2006, 04:58:38 PM »
Ray,

I've merged your two threads that you started in one forum because they're both on the same subject. Please, try to start no more than one thread on a subject.

(That doesn't mean if someone else started a thread on a similar subject that you can't...)

It seems a little odd to me that you'd come to an established forum to advertise your own without getting to know us or even (it would seem) understanding that you're posting on a forum that is already set up... doing just what you say you couldn't find. Confused? Me too.

It's a bit like hacking into a Budwiser advert to hawk your own brand of beer.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: Im living with HIV and want to talk with others...
« Reply #17 on: November 20, 2006, 05:04:12 PM »
No Ann, I like this forum.  I created a very simple site that was my way of reaching out to others.  Its not just a message board and I just came here to share it with others...its not a profit thing...heck I put my money into and Im not charging a red cent and never will...I was just trying to share....but I guess this is upsetting to people here...Im sorry...

Offline thunter34

  • Member
  • Posts: 7,250
  • His name is Carl.
Re: Im living with HIV and want to talk with others...
« Reply #18 on: November 20, 2006, 05:11:47 PM »
Hey, Ray! 

I don't think anyone's trying to stomp on your idea outright.  I just think we'd all like to get to know more about you & where you're coming from first before we hop over to broadcast our HIV stories.  Your other thread title was "share with me".  I think everybody just kinda wants you to share with us some first.

But I don't think anyone intends to make you feel like you're being run off or anything.
AIDS isn't for sissies.

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: Im living with HIV and want to talk with others...
« Reply #19 on: November 20, 2006, 05:17:11 PM »
Ok, I am Ray from New Jersey.  I am a the father of an adopted 11 year old child, and was diagnosed one year ago this month.  At the time, i was an elected official in the State of New Jersey.  I went public with my diagnosis on World AIDS Day because I felt I needed to be an example that HIV affects us all, even, successful politicians.  The public was very supportive, the party kicked me off the ticket.  I did not run for re-election.  I have spent the last year of my life putting the pieces together.  I built a site to bring us together, not to make money...I am very disapointed that people have reacted to the fact that I came to the "well" to get "water".  Yes, you have many readers here and I felt that some might be interested in what I was doing....

Offline thunter34

  • Member
  • Posts: 7,250
  • His name is Carl.
Re: Im living with HIV and want to talk with others...
« Reply #20 on: November 20, 2006, 05:24:46 PM »
Well, Ray-  good to meet ya!  And, yes I am interested.  I still think you'll probably need to stick around and spend some time among folks here before many would warm up to the idea.  It's an intensely personal arena that would probably require time to work up trust.  I'm sure you can understand that and that it's nothing against you individually. 
AIDS isn't for sissies.

Offline poet

  • Member
  • Posts: 934
  • Poet living and working in Central Maine
Re: Im living with HIV and want to talk with others...
« Reply #21 on: November 20, 2006, 05:56:07 PM »
Ray, let's talk about massage and massage sites.  Years ago, there was one website for male masseurs and bodyworkers to link or list from.  For some reason, the site's owner began to let things slip.  Listings no longer were active.  Links no longer worked.  With his permission, I created what became the largest website for male masseurs and bodyworkers (and kept expanding it into men's health and wellness).  We were both free sites, to use and to link/list from.  Then two site developers came along and created their own sites.  Both charged linkers/listers eventually.  But you know what?  We all met different needs and hit different markets.  Guys used all four of the sites.  Aspects of one site, profiling certain masseurs over others, were more attractive to some.  We co-existed.  So with that background, I would always welcome anyone looking at any website and figuring out how he would tweak the model.  It gives us all better products/sites.  I wish you well with your website.  Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline srmn98

  • Member
  • Posts: 133
Re: Im living with HIV and want to talk with others...
« Reply #22 on: November 20, 2006, 06:08:56 PM »
hey there,

I checked out your site and was excited by what I found. I'm recently diagnosed (6 weeks) and am looking for all of the resources I can. Best of luck and I will chat with you soon.

 :)

s

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Im living with HIV and want to talk with others...
« Reply #23 on: November 20, 2006, 09:56:30 PM »
Ray,

I think it's great that you started your own site. I agree with Thunter that folks were prolly taken aback by it because we don't know much about you. It's sad that your party kicked you due to being honest about being poz. This is not the only site I go to and feel free to PM with the addy to your site.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline MSPspud

  • Member
  • Posts: 613
  • Joined Mar 2005 - Formerly UofMurbs
Re: Im living with HIV and want to talk with others...
« Reply #24 on: November 20, 2006, 10:24:03 PM »
Welcome and thank you.  I am sorry for my reaction earlier but I am extremely leery of promotions w/o the person being on the board for a bit.  Overtime we have gotten a lot of that and it bugs the shit out of me when people just use the board only to promote.
« Last Edit: November 20, 2006, 10:26:35 PM by MSPspud »

Offline rayvjr

  • Member
  • Posts: 45
    • Just Tested Positive.Com
Re: Im living with HIV and want to talk with others...
« Reply #25 on: November 21, 2006, 09:41:30 PM »
Thanks for the change of heart guys...you guys have such great things to say on this Message Board.  I have a radio program on my site...anyone interested in sharing a few thoughts?  You can send me audio MP3 or WAV up to thirty minutes.  I broadcast a show every week...would love to have other people doing shows too!...any amauteur radio hosts here..LOL...you can email those MP3 files or WAV files to ray@justtestedpositive.com...if you listen to my show you'll see I'm not so bad after all...lol...just looking for friends!

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Im living with HIV and want to talk with others...
« Reply #26 on: November 21, 2006, 11:11:05 PM »
I'm still waiting for that addy? I use to dj back in the day for a college station. PM me with the details, please.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Longislander

  • Member
  • Posts: 2,486
Re: Im living with HIV and want to talk with others...
« Reply #27 on: November 21, 2006, 11:38:30 PM »
I just visited the site, and it's a nice little place he's got there. A few HIV related vid to watch, a chat room, and the radio broadcast thing.

Queen, justtestedpositive.com
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Im living with HIV and want to talk with others...
« Reply #28 on: November 22, 2006, 12:41:33 AM »
Ah, thanks Long....
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Longislander

  • Member
  • Posts: 2,486
Re: Im living with HIV and want to talk with others...
« Reply #29 on: November 22, 2006, 12:43:53 AM »
 ;D
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

 


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