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Author Topic: New visit to docs new meds AGAIN!  (Read 1353 times)

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Offline chemistry001

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New visit to docs new meds AGAIN!
« on: March 09, 2008, 05:58:05 AM »
Every time i go to the hospital i get given a new set of meds and with it come the same old side effects, i just ask for Imodium now as part of my regime, as soon as my body gets use to the new meds I'm changing. I know the doctor is trying his hardest but i just need to rant for a moment or two.

Back in November 07 i was changed over from Sustiva and Kivexa to Kaletra and Kivexa as my VL was starting to rise very slowly. I was to told to come back in two months for new tests and these showed that the VL was still rising (from 115 to 158). My doc called the specialist in who decided to take on the case and he switched me to Kaletra and Truvada. He told me to come back in 1 months time for new bloods and these showed the VL has risen again to 179. Again he said that he WILL get the VL undetectable and was unsure why it was not going down as my adherence is 100% and the initial resistance tests when i was diagnosed were that the virus was susceptible to all drugs. So he said he would change the drugs again to Truvada, Ritonavir and Fosamprenavir and in three weeks i will go back for bloods as he said that it should drop after two weeks. If not then he will try another regime.

I know that the doc is working on my best interest but its gets you down so much when you hear that things are not working and you have to swap and change every visit. I just cant wait for the time when i can have a few months where I'm not buying the local shop out of toilet roll.

Love to you all
Paul xXx
Diagnosed 01/08/06
CD4-9, VL->500,000, CD4% 1
Started on Sustiva/combivir 22/08/06 changed to kivexa 18/09/06
CD4-50, VL-1496, CD4% 5
CD4-112, VL-125, CD4% 7.5
CD4-121, VL-<50, CD4% 9
CD4-125, VL-71,(re-done 149), CD4% 11
CD4 -231, VL-74, CD4% 15
Cant remember the next few dates
17/01/08  Kaletra and Truvada
CD4 - 281, VL-115
CD4 - 287, VL-178

Offline BT65

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Re: New visit to docs new meds AGAIN!
« Reply #1 on: March 09, 2008, 02:36:07 PM »
Hmmm, when my doctor changes my regimen, he wait to take new labs for a month.

Well, good luck with the new meds.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

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Offline MOONLIGHT1114

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  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: New visit to docs new meds AGAIN!
« Reply #2 on: March 09, 2008, 03:27:19 PM »
Hi Paul~

I can't believe your doc has changed your meds so much in such a short time.  I know it must be very frustrating for you.  I wonder if the detectable VL (initially) was justa  blip?  I remember when I had one, we waited 3 more months for another round of labs to be done and when the VL was detectable again, then we switched. 

Hang in there, and maybe make sure the doc gives each new med some time to work?  i.e. Three weeks+ or so?  Just my humble opinion.  Kudos on the Imodium, its a lifesaver, isn't it?  ;)

~ Cindy :)
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline dgr20002

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  • Posts: 288
Re: New visit to docs new meds AGAIN!
« Reply #3 on: March 09, 2008, 03:35:22 PM »
Hi there.  I gotta say, too, that a VL of 178 is really nothing IMO and no reason not to give the meds a few months to work.


Offline cubbybear

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  • Posts: 510
  • Joined August 2005.
Re: New visit to docs new meds AGAIN!
« Reply #4 on: March 09, 2008, 06:45:36 PM »
Hey Paulie.

Good luck with the new meds, I hope your doctor can find something that works for you to keep that viral load down.

There's a bear in there!
Positive since 2000
Diagnosed 17/9/2005 CD4 35 VL 293,000
Meds 23/9/2005 Sustiva/Truvada
Currently CD4 232 VL Undetectable


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