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Author Topic: Lessons Learned from Mississippi Baby  (Read 834 times)

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Offline Ptrk3

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  • Posts: 163

Offline JakaTingkir

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Re: Lessons Learned from Mississippi Baby
« Reply #1 on: August 31, 2014, 04:42:40 PM »
once again...its all abt T memmory stem cells...when baby got flu or something n virus would reborn again....i think they should learn abt argentinian woman...who is seroreversion n no virus detectable more than 7 years.

Offline leatherman

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  • Google and HIV meds are Your Friends
Re: Lessons Learned from Mississippi Baby
« Reply #2 on: August 31, 2014, 06:29:20 PM »
like the other thread, this isn't really news either. It's been known for some time that the HIV reservoirs are the hindrance to finding some type of cure.


on a personal note, and said with a wink and a smile:
I see not obsessing about a cure was not a lesson that you learned Ptrk.  ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Ptrk3

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  • Posts: 163
Re: Lessons Learned from Mississippi Baby
« Reply #3 on: August 31, 2014, 06:43:20 PM »
I'm trying not to obsess too much, but it's a habit of mine to check Science Daily every day.  I really want there to be a cure for this disease soon.  We seem to be so close.

Question for long-term survivors:  some have commented that these links are not news, and I understand that the "general" info may not be news, but isn't there a new nuance that expands the general info.  Otherwise, just curious, why would these stories be posted with current dates?  Is this just information that is being recycled, or is something new learned by each study that adds to the knowledge base and brings us closer to a cure?

Anyway, I don't want to irritate people on the forum, so maybe I'll just hang back for a while with info about research.  Many of you probably check the same websites I do, so there's probably not much value-added with my posts.

Online Jeff G

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Re: Lessons Learned from Mississippi Baby
« Reply #4 on: August 31, 2014, 06:57:01 PM »
I'm trying not to obsess too much, but it's a habit of mine to check Science Daily every day.  I really want there to be a cure for this disease soon.  We seem to be so close.

Question for long-term survivors:  some have commented that these links are not news, and I understand that the "general" info may not be news, but isn't there a new nuance that expands the general info.  Otherwise, just curious, why would these stories be posted with current dates?  Is this just information that is being recycled, or is something new learned by each study that adds to the knowledge base and brings us closer to a cure?

Anyway, I don't want to irritate people on the forum, so maybe I'll just hang back for a while with info about research.  Many of you probably check the same websites I do, so there's probably not much value-added with my posts.

I think Leatherman was just ribbing you ... you can post to your hearts content about whatever you want . I like hearing from you on any topic .

Offline Almost2late

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Re: Lessons Learned from Mississippi Baby
« Reply #5 on: August 31, 2014, 09:06:39 PM »
Please don't stop posting this stuff  because its very much appreciated by some of us who are still learning about this disease.. Never was much on science in school but its threads like this that I'm learning from  :) .. I honesty want to learn "everything" I can about HIV and you have a way of making it easier to follow, thanks  8)

Offline Ptrk3

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Re: Lessons Learned from Mississippi Baby
« Reply #6 on: August 31, 2014, 09:34:44 PM »
Thanks, Jeff and Almost2late:  I'll keep posting but will try to make sure that the info is new or, if not new, clearly advances the research.  I'm new to this, too, and am still learning, so sorry if some of the info is "old hat" to others.  I can understand how the same old stuff can be irritating to some, but I often rely on the relatively recent dates of some of the research, which makes me think that something new is in the research--baby steps toward a major breakthrough.

I am still very sad about my diagnosis, and have not been good, I guess, at acceptance. Though I am a little over a year into diagnosis and treatment, this disease is the first thing I think of in the morning and the last thing I think of at night.  Not an hour goes by without my thinking of it.  I know I need to work on acceptance, but it is hard now for me to fully accept where I am.  I hope to gain the wisdom many of the long-term people on this forum have earned, but it takes time, even though I have sought professional help.

Offline geobee

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  • Posts: 284
Re: Lessons Learned from Mississippi Baby
« Reply #7 on: September 01, 2014, 12:15:06 AM »
Acceptance takes a while.  It's not something you can make happen and will happen on its own.   I like your posts. 


Offline Jmarksto

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  • Posts: 513
Re: Lessons Learned from Mississippi Baby
« Reply #8 on: September 01, 2014, 10:44:34 AM »
Hey Ptrk3,


My belief is that we all walk a different path to acceptance, some of us take longer than others, although one year is a very short time on that path - in my opinion. Please keep in mind that it does get easier with time.


The whole point of acceptance is so you can truely enjoy today, and only you know if this is helping you enjoy today or if it is too much of a distraction. I try to make sure that I really enjoy the present, while I have hope for the future.


Best,
JM
03/15/12 Negative
06/15/12 Positive
07/11/12 CD4 790          VL 4,000
08/06/12 CD4 816/38%   VL 49,300
08/20/12 Started Complera
11/06/12 CD4   819/41% VL 38
02/11/13 CD4   935/41% VL UD
06/06/13 CD4   816/41% VL UD
10/28/13 CD4 1131/45%  VL 25
02/25/14 CD4   792/37%  VL UD
07/09/14 CD4 1004/39%   VL UD

Offline Ptrk3

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Re: Lessons Learned from Mississippi Baby
« Reply #9 on: September 01, 2014, 12:17:07 PM »
Thanks, Jmarksto and geobee for the kind sentiments.  I'm sure all of you know that some days are better than others.  I've just been going through a rough patch for whatever reason over the last few days.  I know I need to focus on those things that I am grateful for (I am in decent health and the meds work fine), but "human nature" gets in the way and I ruminate, etc., about a lot of things and the regrets and self-recriminations come flying about all sorts of things, not just my HIV status, but mostly that.  Sometimes it's not just a day at a time, but a moment at a time.  I do find comfort in reading through this forum and am grateful for the support it gives.  Thanks for reminding me that these moments do pass and that things get better.

Offline mecch

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  • red pill? or blue pill?
Re: Lessons Learned from Mississippi Baby
« Reply #10 on: September 01, 2014, 05:26:30 PM »
I'm trying not to obsess too much, but it's a habit of mine to check Science Daily every day.  I really want there to be a cure for this disease soon.  We seem to be so close.

Question for long-term survivors:  some have commented that these links are not news, and I understand that the "general" info may not be news, but isn't there a new nuance that expands the general info.  Otherwise, just curious, why would these stories be posted with current dates?  Is this just information that is being recycled, or is something new learned by each study that adds to the knowledge base and brings us closer to a cure?

Anyway, I don't want to irritate people on the forum, so maybe I'll just hang back for a while with info about research.  Many of you probably check the same websites I do, so there's probably not much value-added with my posts.

There probably are nuances...
But the advice to you is that unless you are a researcher or doctor or in public health about HIV, you would have to invest a lot of your life time understanding the nuances...   Whereas there is probably plenty of living to do pursuing the interests that you have in life, besides the science of HIV research.   
Nobody is censuring you, it was just a recommendation.

I do believe that you are over invested in this:
"I really want there to be a cure for this disease soon.  We seem to be so close."

Sure we all do honey... But that hope AND 2.50 is what gets you a ride on the NYC subway. 

(Meaning without the 2.50, NO RIDE.)

Also if you really want to pursue extensive reading in HIV research, you will eventually recognise "boilerplate" research writing.  Many of the articles have a way of saying things that is hedging and vague and a sort of public relations for the careers and business of being in science research.  And, a research report saying something is "promising" or a "key breakthrough" or a "surprising discovery" doesn't necessarily mean any of those things, to the general public.

The takeaway is that you are going to hear about truly important discoveries and promising treatment and cure news, as soon as they really do happen.  You don't have to follow the research.  The real stuff will be out to the public lickity split.

If daily reading of research really floats your boat, have at it and enjoy!
« Last Edit: September 01, 2014, 05:31:13 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Almost2late

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Re: Lessons Learned from Mississippi Baby
« Reply #11 on: September 01, 2014, 06:50:25 PM »
Found an article which may be redundant.. still I found most interesting and with your permission, I would like to share.. Mind you, I'm not pretending to be Einstein here.. just your average working class, hiv pozitive joe, thank u very much

http://www.theglobeandmail.com/life/health-and-fitness/health/aids-cure-may-come-but-can-we-afford-the-cost/article20290576/

 


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