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Author Topic: Anyone have chronic kidney disease and kidney stones too?  (Read 329 times)

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Offline jm1953

  • Member
  • Posts: 262
Anyone have chronic kidney disease and kidney stones too?
« on: August 15, 2014, 10:15:12 PM »
Maybe this should be posted in the Long Term Survivor Thread as I am one, but thought I might get more responses here. 

Among a myriad of other health issues due to the virus, long term use of HIV medications, my age, or all three my chronic kidney disease is the most frightening.  I have had Stage three kidney disease for a couple of years now, but slowly graduating to Stage four due to lower GFR and increasingly higher creatinine levels.  Plus complicating the picture has been bouts with kidney stones.  In July 2013 I had two surgeries within a month dealing with huge stones.  Then had stents in for another month.  Just had another CT and have 5 stones my Urologist feels are fragments from the Lipotripsy and laser surgery last year. 

Bottom line, I am terrified of having to go on Dialysis.  I'm fortunate to have a wonderful kidney doctor who get's HIV.  He is doing everything he can to help me not graduate into Stage four or five which is Dialysis, and to help prevent the formation of kidney stones.  This of course requires monthly renal monitoring, and frequent Ultra sounds or CTS, plus consuming a low oxalate diet for stones along with a kidney friendly diet.  Plus a special calcium and mineral program, along with Alipurinol (sp) to lower Uric Acid. 

Just wanted to know if other members may be having the same symptoms and how you are dealing with it.  It seems for long termers it has been determined long time HIV med use, and how long you have had the virus can affect major organs mostly the heart and kidneys.  I may be wrong on this, however my kidney specialist is pretty convinced it is taking HIV meds for 20+ years, that is the major culprit.

For what it's worth.  Thought I'd throw it out there.

JM
Positive 25 years. 7/21/2012 Current CD 4: 780 Viral load: less than 50. 38 to 40%
Current drug regimen, Isentress, , Emtriva, Sustiva Wellbutrin, Klonipin, Allegra, Ambien, Testosterone, Nandrolone, Vicodin, Benedryl, Aspirin, lots of vitamin supplements.

Offline weasel

  • Member
  • Posts: 1,686
Re: Anyone have chronic kidney disease and kidney stones too?
« Reply #1 on: August 16, 2014, 08:20:06 PM »


   Hi  JM  ,

                 I was taken off Truvada a couple months ago after being
   on it for ten years .
      I was told IF I did not switch MEDS I would go into Full-Blown
    Kidney Failure !
    For some reason my I.D. Doctors said they had been watching my numbers
   get worse for FOUR YEARS !!
    I have no idea WHY doctors would wait that long ?

   I am on Epzicom now , not feeling up to par , but i will not know until
   September if my Kidney numbers are going in the right direction .

    I'm 60 and have had HIV half my life .
 
    I hope they get your kidneys back to normal .
                                                                            Carl

   P.S.  No Kidney stones , just gall stones and gall bladder pain .
" Live and let Live "

Offline DrewEm

  • Member
  • Posts: 66
Re: Anyone have chronic kidney disease and kidney stones too?
« Reply #2 on: August 17, 2014, 02:43:17 AM »
Another thing which causes kidney stones is heavy consumption of colas - Coke, Pepsi or generic.

DrewEm

Offline jm1953

  • Member
  • Posts: 262
Re: Anyone have chronic kidney disease and kidney stones too?
« Reply #3 on: August 17, 2014, 09:16:32 PM »

   Hi  JM  ,

                 I was taken off Truvada a couple months ago after being
   on it for ten years .
      I was told IF I did not switch MEDS I would go into Full-Blown
    Kidney Failure !
    For some reason my I.D. Doctors said they had been watching my numbers
   get worse for FOUR YEARS !!
    I have no idea WHY doctors would wait that long ?

   I am on Epzicom now , not feeling up to par , but i will not know until
   September if my Kidney numbers are going in the right direction .

    I'm 60 and have had HIV half my life .
 
    I hope they get your kidneys back to normal .
                                                                            Carl

   P.S.  No Kidney stones , just gall stones and gall bladder pain .

Thanks Carl.  We have something in common.  I too have almost lived half my life with HIV.  I am 61 and diagnosed in in 1987.  27 years I think.  I don't know whether it is a blessing or not.  I'm getting tired.   I wish I was a stronger person.
Positive 25 years. 7/21/2012 Current CD 4: 780 Viral load: less than 50. 38 to 40%
Current drug regimen, Isentress, , Emtriva, Sustiva Wellbutrin, Klonipin, Allegra, Ambien, Testosterone, Nandrolone, Vicodin, Benedryl, Aspirin, lots of vitamin supplements.

 


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