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Author Topic: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage  (Read 1937 times)

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Offline tednlou2

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Disappointing news, but perhaps something can be learned from it.  Would longer treatment make the difference? 

http://www.nbcnews.com/health/health-news/cured-hiv-baby-infected-doctors-find-n152861

Offline dico

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #1 on: July 10, 2014, 04:32:20 PM »
It is a disaster.

Offline mecch

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #2 on: July 10, 2014, 06:01:14 PM »
Dico you are over-invested in a cure. In my opinion.
The mother of this child was negligent. That baby was supposed to have been on HAART. The baby disappeared from medical care, AND therefore treatment, several times and for long periods.  Showing up quite a while into a long period without drugs, which was NOT a medically guided experiment, but rather parental negligence, the child was declared "cured"....  Evidently, prematurely.  Well, that's a pity.

This was not a controlled, planned, research or experiment in "the cure". It was doctors, having recuperated the child into care, waiting to see what might happen since the untreated kid wasn't showing the infection....

There is a lesson in this, its TAKE YOUR MEDICINE FOLKS and get on with your lives.

I'm looking at you, too, Ted.  Take the damned pills why don't you.

The cure may not come in our lifetimes.  We need to get on with living while we wait.
« Last Edit: July 10, 2014, 06:17:50 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline geobee

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #3 on: July 10, 2014, 07:23:45 PM »
How did the child go UD for over 2 years and then poof! have a viral load?  Was it that the virus was lying dormant, or was she fighting it off? 

Also, the article says “These children can live to their 30s and 40s,”  -- why not a normal life span? 

Scientific curiosity aside, I sure hope the child gets good regular care.


Online Jeff G

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #4 on: July 10, 2014, 07:36:07 PM »
How did the child go UD for over 2 years and then poof! have a viral load?  Was it that the virus was lying dormant, or was she fighting it off?



Its the same old story and thats the virus in the gut and brain rebounding ... the same reason why our combos are not enough to eradicate the virus from our bodies because of the viral reservoirs .

I can honestly say I was not one bit surprised when I read this today for many of the same reasons mecch noted .

Offline zach

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #5 on: July 10, 2014, 07:44:26 PM »
i'm open for correction, but as i understand the reservoirs of hiv are not in the bloodstream so aren't reflected in VL #s

Offline emeraldize

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #6 on: July 11, 2014, 04:20:13 AM »
WTF.  I just heard this on NBC national news and I was dumbfounded as to who put this 30-40 year span life span forecast out!

Haven't found the source yet, but way to go someone.


Offline stuka

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Re: hiv infection signs reappear in 'cured' child
« Reply #8 on: July 11, 2014, 11:57:59 PM »
what a piece of shit, m fkng virus!!!! i can't believe i let this monster enter my body

Offline dico

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Re: hiv infection signs reappear in 'cured' child
« Reply #9 on: July 12, 2014, 01:40:21 AM »
what a piece of shit, m fkng virus!!!! i can't believe i let this monster enter my body

Can't say better. This virus is an incurable monster.

Offline geobee

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #10 on: July 12, 2014, 02:38:54 AM »
Incurable, sure.   But fatal, no.  I thank God for that.  And I think about all the people that suffered so that I could live. 

It's my five year anniversary this month.  I try not to think of it as a monster but more of a hitchhiker.  Something I can tolerate, manage, that gives me an appreciation for my life.  But there are some nights, like tonight, that I just get lonely. Dating with HIV -- that's the hardest part for me.

Offline mecch

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Re: hiv infection signs reappear in 'cured' child
« Reply #11 on: July 12, 2014, 07:15:38 AM »
what a piece of shit, m fkng virus!!!! i can't believe i let this monster enter my body

Change the story and imagery, folks.  You'll live better.

My virons are hunted, scared and cowardly trolls, lying quiet and motionless in caves.  One wakes up, hopeful to have a peak... he's slaughtered...  Pathetic nuisance. 

Eventually there will be a way to exterminate every last one of them.  And if not, they will wait till I die before they have a walk around again, and what good is that gonna do 'em, they'll be dead quite soon after I am.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline dico

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Re: hiv infection signs reappear in 'cured' child
« Reply #12 on: July 12, 2014, 08:40:45 AM »
Change the story and imagery, folks.  You'll live better.

My virons are hunted, scared and cowardly trolls, lying quiet and motionless in caves.  One wakes up, hopeful to have a peak... he's slaughtered...  Pathetic nuisance. 

Eventually there will be a way to exterminate every last one of them.  And if not, they will wait till I die before they have a walk around again, and what good is that gonna do 'em, they'll be dead quite soon after I am.

And what about the fact that I can transmit the virus to others? What about the fact that majority of people won't continue à relationship with an infected people ? What about the fact that I can not buy à house coz the Banks dont borrow to an immune suppressed person?
What about the fact that I will surely die of à cancer within 20 years if no cure is found ?

Stop telling that everything's OK. Hiv has been a disaster both for m'y professionnal and private life.

Offline mecch

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Re: hiv infection signs reappear in 'cured' child
« Reply #13 on: July 12, 2014, 08:51:35 AM »
And what about the fact that I can transmit the virus to others? What about the fact that majority of people won't continue à relationship with an infected people ? What about the fact that I can not buy à house coz the Banks dont borrow to an immune suppressed person?
What about the fact that I will surely die of à cancer within 20 years if no cure is found ?

Stop telling that everything's OK. Hiv has been a disaster both for m'y professionnal and private life.

I understand you are in shock, I'm sorry you are feeling so pessimistic. But the shock and ignorance means your thinking isn't clear -- many of your assumptions above are quite wrong.

It will take time to chill about being HIV+ - but it is very possible. Most of us have done so.  You will need more information, more experience, a different outlook, and time.

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline BKKKevin

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #14 on: July 12, 2014, 11:44:09 AM »
Monsters are creations of ones own imagination...

Offline leatherman

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #15 on: July 12, 2014, 12:55:51 PM »
i'm open for correction, but as i understand the reservoirs of hiv are not in the bloodstream so aren't reflected in VL #s
these reservoirs can "spill over" and be seen as a blip in VL "if" a test catches it at the right time. Our labwork is only a quick snapshot at one moment; hence why looking at the trend is more important. reservoirs also "leak", and that's why daily medication is needed. Daily meds work as both PrEP and PEP to combat the overflow, leak, spill from the reservoirs.


What about the fact that I can not buy à house coz the Banks dont borrow to an immune suppressed person?
what kind of bank are you going to?!? Why in the world would they know your HIV status? And why would that make them not give you a loan? That's sounds very weird and probably untrue. I got both a house and a car loan back from I had AIDS - and that was in the early 90s.

What about the fact that I will surely die of à cancer within 20 years if no cure is found ?
um, I'll just quote something I posted just over 4 yrs ago
---- and it was all old news then!

read this then
http://www.poz.com/articles/hiv_life_exectancy_survival_761_14989.shtml
or these threads
http://forums.poz.com/index.php?topic=21859.0
http://forums.poz.com/index.php?topic=27135.0

or how about this report from Feb 2010 (something a bit more current)
"Many patients diagnosed with HIV today will have normal life expectancies"
http://www.aidsmap.com/en/news/507F3477-660B-4D89-8527-DD915A1B339D.asp
For nearly two decades, we have known that death or a shortened life span by AIDS was no longer the way things are. Within the last decade, it's been proven time and time again that antiretrovirals have worked a miracle. that's why PLWH (people living with HIV) today have access to care (through Ryan White, insurance and other programs); have daily medications to take (heart, cholesterol, HIV, diabetes, aches and pains); get house, school and car loans; work towards earning money for retirement; fall in love; get married (only 30 states to go if you're gay!); and have babies without HIV - all because we know that in 2014 you're going to live to be old even if you have HIV. Heck, these days you can end up with AIDS and still live to be old.

I started with all those early meds in 1992 and I'm still here, alive and kicking, 30+ poz yrs later. Why oh why, would you think in 2014 that with today's improved meds that you shouldn't be able to at least live the same life I have, if not better? ;) :D
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Jmarksto

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #16 on: July 12, 2014, 05:11:16 PM »
This viral rebound will certainly send the doctors of the three Canadian babies recently announced to be thought to be in remission back to the microscopes.


I suspect we will be hearing much more about this at the upcoming AIDS 2014 conference in a week or two.
03/15/12 Negative
06/15/12 Positive
07/11/12 CD4 790          VL 4,000
08/06/12 CD4 816/38%   VL 49,300
08/20/12 Started Complera
11/06/12 CD4   819/41% VL 38
02/11/13 CD4   935/41% VL UD
06/06/13 CD4   816/41% VL UD
10/28/13 CD4 1131/45%  VL 25
02/25/14 CD4   792/37%  VL UD
07/09/14 CD4 1004/39%   VL UD
11/03/14 CD4   711/34%   VL UD

Offline drewm

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #17 on: July 12, 2014, 05:22:09 PM »
Mecch is right. You can let the virus control your life. Live in fear, see the cup as half empty...whatever...or you can make damn sure it is NOT life determining. This virus is a nuisance that can be controlled. How you live with it is your choice but as for me, the sun is still shining. Swallowing the pills is NOT optional.
Diagnosed in  May of 2010 with teh AIDS.

PCP Pneumonia . CD4 8 . VL 500,000

TRIUMEQ - VALTREX -  FLUOXETINE - FENOFIBRATE - PRAVASTATIN - CIALIS


Numbers consistent since 12/2010 - VL has remained undetectable and CD4 is anywhere from 275-325

Offline Almost2late

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #18 on: July 15, 2014, 06:01:13 PM »
Though I was not surprised with the news about the baby, I felt as something was taken from me a bit.. That baby meant hope to me.. that we're getting closer to that day.

Yes, we must live life to the fullest.. I buried a friend this week who died of cancer may he rest in peace and he was a year younger than me .. Knowing him he probably would have rather lived with hiv than have died of whatever.

When life gives you lemons, wash down your meds with lemonade
"Every man has his own destiny: the only imperative is to follow it, to accept it, no matter where it leads him." - Henry Miller

http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.” - Nostradamus

Offline zach

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #19 on: July 16, 2014, 05:39:39 AM »
lets not write the child off, just because of a viral load.

the kid still has hope y'all

Online Jeff G

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #20 on: July 16, 2014, 08:31:58 AM »
lets not write the child off, just because of a viral load.

the kid still has hope y'all

I agree with Zach . This baby has the benefit of the same medicine we do and can lead a full life . One of the reasons this forum exist is to offer the support and hope that we can be everything we want to be and lead fulfilling lives despite HIV .

I do understand the disappointment because in the 80's we were assured a cure was 5 years away and that was when HIV was a death sentence so we hung our hopes and dreams on that cure . When the mid 90's rolled around and viable treatments were found it I was still a bit disappointed there was no cure in sight. It dawned on me that sometimes in life you do not get what you want but in its place you get what you need .

I am not some jaded old LTS, I'm as hopeful and optimistic as I have always been and the ONLY reason I typed all this out was because I am very sure that if people do the work to keep their bodies and spirit healthy and keep living life to the fullest in the absence of a cure when the day comes there is a cure you will be thankful because many of your hopes and dreams will already be realized and the rest of your life even better ... despite HIV . 

Offline Miss Philicia

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #21 on: July 16, 2014, 08:35:26 AM »
I'm a jaded old LTS. I've never thought a cure was coming -- not in the 80's, 90's or The Aughts --  and didn't pay this "baby story" any attention. Next.

Furthermore, even if a cure appears tomorrow my body is so fucked already that the only substantive difference it will make is that I won't have to pop HIV pills. I'll still be popping pills for hypertension (that nobody should get at age 40), pancreatic enzymes, neuropathy etc. etc. etc. along with endless appointments with medical specialists.

But hey, it would be great news for the rest of you so don't let me rain on your parade. :P
« Last Edit: July 16, 2014, 08:42:41 AM by Miss Philicia »
"I’ve slept with enough men to know that I’m not gay"

Offline mecch

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #22 on: July 16, 2014, 08:42:58 AM »
I'm holding out for the Egyptian plasma-gamma-ray-gun cure. Plus they give you 2-for-1 Koshary coupons on the way out.
Listen if he cure ain't in Egypt then I'm pretty sure it's encoded on the walls of Chichen Itza in the Yucatan.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline elf

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #23 on: July 18, 2014, 05:30:39 PM »
I hope aliens will abduct me and heal me. :o
I got GRID on GRInDr

Offline Dr.Strangelove

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #24 on: July 19, 2014, 07:35:30 AM »
I'm holding out for the Egyptian plasma-gamma-ray-gun cure.

You will have to wait for another 6 months at least. They are doing some additional testing, just to make sure it's safe and doesn't kill you while curing you from Hep and Hiv:

Egypt army delays use of ‘Aids detecting machine’

Offline tednlou2

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Re: Baby Thought To Be "Cured" Has Viral Rebound; Signs Of Immune Damage
« Reply #25 on: July 19, 2014, 05:35:44 PM »
I'm a jaded old LTS. I've never thought a cure was coming -- not in the 80's, 90's or The Aughts --  and didn't pay this "baby story" any attention. Next.

Furthermore, even if a cure appears tomorrow my body is so fucked already that the only substantive difference it will make is that I won't have to pop HIV pills. I'll still be popping pills for hypertension (that nobody should get at age 40), pancreatic enzymes, neuropathy etc. etc. etc. along with endless appointments with medical specialists.

But hey, it would be great news for the rest of you so don't let me rain on your parade. :P

Wouldn't a cure help lessen these health problems?  Or, at least keep them from continuing to get worse?  I suppose with certain health issues the damage is done and will just continue to get worse, regardless.  If someone has bad cardiovascular disease, I suppose the damage is done.  If it isn't too bad yet, I would think stopping the damage from the virus would help the body to heal what it can, without adding further damage.  Basically, it would seem a cure would help certain patients with medical problems, to finally gain some ground against them.  Patients wouldn't be miraculously healed of all health problems.

Btw, I went through a short period of reading all the cure news.  But, the virus seems so illusive, that I figured a cure would be at least 20 years away, if ever.  I figured better and better regimens and things like monthly doses would be more likely.  Or, treatments to reduce the inflammation and health issues the virus causes.


 


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