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Author Topic: Once again, shingles vaccine topic.  (Read 403 times)

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Offline mitch777

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  • Posts: 3,380
  • wish i were here
Once again, shingles vaccine topic.
« on: July 06, 2014, 09:15:37 PM »
Just was wondering how long it's been, if at all, that there was a general consensus about the safety of us hiv+ folks getting this vaccine.

Most of what i read by searching seems to indicate that those with a cd4 count > 200 and an UD VL should be relatively safe with the vaccine. Maybe a 5% chance of actually coming down with a case of shingles because it is a live one after all. My memory sucks but I think the CDC is behind the times?

I'm thinking that I should be pushing my doc about this. It's been about 3 or 4 years since I last asked and he once again wasn't on board with the concept.

I also seem to remember that those who are hiv+ have a far greater chance than those who are neg. The longER term side effects seem painful and I'm concerned.

Any consensus here? Like I said, bad memory. Sorry, no links. Tired pup tonight.
31 years hiv+ (oct. 2013) with a curtsy.

Offline J.R.E.

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  • Posts: 7,099
  • Joined Dec-2003 Living positive, since 1985.
Re: Once again, shingles vaccine topic.
« Reply #1 on: July 06, 2014, 09:31:25 PM »
M,..

I am planning to discuss this once again, with my Primary care or ID Doctor ( who by the way was not on board with it either) at the next appointment.

I've had shingles at least 3 times, ( last time Oct 03) So, if there is a possibility of preventing it in the future , Why Not !

I'm over 60, tcells are over 400 VL -Undetectable. I think I meet the criteria, and it doesn't matter whether you've had shingles in the past, you can still get the vaccine, from what I've read on it.

I don't know if the VA offers this, but if they give me the go ahead, I will get it from Walgreens without hesitation.

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 7,099
  • Joined Dec-2003 Living positive, since 1985.
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline Lou-ah-vull

  • Member
  • Posts: 944
Re: Once again, shingles vaccine topic.
« Reply #3 on: July 06, 2014, 11:40:29 PM »
My new ID doctor says that a consensus is emerging that the shingles vaccine is suitable for those of us with relatively normal immune systems and so-called undetectable levels of virus.  There has not been a recommendation or definitive statement.  There has not been research on the undetectable, healthy immune system HIV+ community (and there most likely will not be.)  I am 58 and apparently there is an insurance issue (at least with Humana) in people under 60.  There is a shortage of shingles vaccine in Louisville right now..so I am holding.  I take valcyclovir daily to hopefully prevent a third occurrence of shingles.  I feel comfortable with trying the vaccine and it would be nice to take those two blue pills out of my "pill pile" each day (not to mention the $25 a month copayment.)

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD
06/14:  823 (47.2%), UD

Offline wolfter

  • Member
  • Posts: 4,395
Re: Once again, shingles vaccine topic.
« Reply #4 on: July 07, 2014, 07:09:13 AM »
I too don't remember what we decided the last time we discussed this.  I don't recall why, but my doctor wasn't on board with me getting the vaccine either. 

Shingles is another bullet I've managed to dodge.  Bill must have been an elite controller of sorts as he never had low CD4s or a high VL.  Even after 20 years.  Just had a weird thought; was I being given daily injections of his elite controller genes?  Sorry, off topic.

Anyways, he came down with a horrid case of them in the early 90's while nursing me.  Wracked with AIDS, with an imminent demise, I managed to not contract them.  Seems he was in misery for about a week waiting on the meds to work.

I too will ask my doctor.  Probably shoot him an email so I can always refer back to it
productivity breeds content

Offline mitch777

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  • Posts: 3,380
  • wish i were here
Re: Once again, shingles vaccine topic.
« Reply #5 on: July 07, 2014, 11:19:37 AM »
Thanks Ray. That was one of the links I found. Several other basically said the same thing but with less detail about the study.

Gary, that's just awful that your insurance company would have an issue with someone younger than 60. I'm glad to hear your doc seems to be up to speed on the latest info at least, even if the data is somewhat limited at this point.

I'm curious if many here have had the vaccine while being poz and if so, did anyone come down with shingles because of it.
31 years hiv+ (oct. 2013) with a curtsy.

 


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