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Author Topic: Got a new script  (Read 800 times)

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Offline Almost2late

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  • Posts: 472
  • "The Nutcracker"
Got a new script
« on: June 26, 2014, 02:03:57 PM »
Hi Everybody,

Okay so I went to see my ID doc and my cd4's went down from 184 to 117, so I asked about percentage and that to went down 9% to 8%  :( .. My VL down 595 to 235  :-[ so fuckin slow but the right direction, was expecting better.

Now I tell him about the fun stuff, how my lymph nodes still bother me and the Atripla fuckin with my mind, so he gives me a script for Tivicay/Truvada  :-\ and I say fine your the doc.

Then I start thinking, here's my chance to build a reserve in case of a zombie apocalypse or something.. can't let those atripla's go to waist right? and I got a months worth so wtf.. Yeah, I know that shit is fucking with my mind but now I'm gonna pay double for those copays, why don't they combine these 2 pills anyways?

Now I did do a little homework on the threads here and google about T/T and it said its some great stuff compared with atripla but honestly I was hoping for stripbild bc of the copay thingy.

My KS appears to be fading painfuly slow but also going the right direction.. Maybe thats why my lymph nodes under my ears are so fuckin fussy cause its fighting cancer I think.

And recently I've been having really freaky dreams.. Had a nightmare that I was being terrorized by a hand-puppet no lie, it really scared the living shit outta me  :-[ but I'm going to stay on this shit for one more month.

I've learned to cope with my emotions when I'm at work or out and about by reminding myself of the meds side effects, this seems to help.. any advise from you guys would be so appreciated, thank you
"Every man has his own destiny: the only imperative is to follow it, to accept it, no matter where it leads him." - Henry Miller

http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.” - Nostradamus

Offline Jeff G

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  • How am I doing Beren ?
Re: Got a new script
« Reply #1 on: June 26, 2014, 02:11:55 PM »
You are making progress and the new meds will help you make headway on that . Its your choice to wait a month to build up a supply but you can also do that by filling your script as early as possible every month ... its slow but sure .

The bright side is once you ditch the Atripla you will feel better in a day or two tops . Best of luck and keep up the good work .

Offline Almost2late

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  • Posts: 472
  • "The Nutcracker"
Re: Got a new script
« Reply #2 on: June 26, 2014, 02:28:31 PM »
Thanks Jeff  :)
"Every man has his own destiny: the only imperative is to follow it, to accept it, no matter where it leads him." - Henry Miller

http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.” - Nostradamus

Offline Jmarksto

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  • Posts: 533
Re: Got a new script
« Reply #3 on: June 26, 2014, 03:58:46 PM »
you can also do that by filling your script as early as possible every month ... its slow but sure .

This is exactly what I do - my insurance company lets me refill after three weeks.  The only catch was that the manufacturer co-pay will only allow 12 copays in a year, so you can get caught without the manufacturer copay at the end of the year.
03/15/12 Negative
06/15/12 Positive
07/11/12 CD4 790          VL 4,000
08/06/12 CD4 816/38%   VL 49,300
08/20/12 Started Complera
11/06/12 CD4   819/41% VL 38
02/11/13 CD4   935/41% VL UD
06/06/13 CD4   816/41% VL UD
10/28/13 CD4 1131/45%  VL 25
02/25/14 CD4   792/37%  VL UD
07/09/14 CD4 1004/39%   VL UD
11/03/14 CD4   711/34%   VL UD

Offline Almost2late

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  • Posts: 472
  • "The Nutcracker"
Re: Got a new script
« Reply #4 on: June 27, 2014, 11:02:38 AM »
Think I may reconsider and not wait so long  ???
The Atripla is just too much for me.. called in sick  :P
"Every man has his own destiny: the only imperative is to follow it, to accept it, no matter where it leads him." - Henry Miller

http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.” - Nostradamus

Offline Jeff G

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  • How am I doing Beren ?
Re: Got a new script
« Reply #5 on: June 27, 2014, 02:57:01 PM »
Think I may reconsider and not wait so long  ???
The Atripla is just too much for me.. called in sick  :P

Having suffered major Atripla side effects myself I cant blame you for going ahead and switching meds right away . You will feel better right away once you do it .

Offline Almost2late

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  • "The Nutcracker"
Re: Got a new script
« Reply #6 on: June 29, 2014, 08:28:05 AM »
Good morning sunshine!

Started the new meds last night at about 10 pm, same time I would take my atripla and it wasn't too bad at all.. my throat was a little dry and a little pressure around my head (no headache), also felt like that feeling I get when I've had a little too much coffee  :-\
Was hoping my swollen lymphs would go away but that did'nt happen, I think I got a headcold

No crazy dizziness, no depression, no unstable emotions, or foggy mind and no sleep disruption.. I slept through the entire night without getting up for anything  :) and thats that there's probably sustiva still in my system

Overall I feel much better even with the headcold.. hopefully that will clear up too.. will continue updates on this thread.. wishing everyone a nice day  :)
"Every man has his own destiny: the only imperative is to follow it, to accept it, no matter where it leads him." - Henry Miller

http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.” - Nostradamus

Offline Jeff G

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  • How am I doing Beren ?
Re: Got a new script
« Reply #7 on: June 29, 2014, 10:02:04 AM »
Good morning sunshine!

Started the new meds last night at about 10 pm, same time I would take my atripla and it wasn't too bad at all.. my throat was a little dry and a little pressure around my head (no headache), also felt like that feeling I get when I've had a little too much coffee  :-\
Was hoping my swollen lymphs would go away but that did'nt happen, I think I got a headcold

No crazy dizziness, no depression, no unstable emotions, or foggy mind and no sleep disruption.. I slept through the entire night without getting up for anything  :) and thats that there's probably sustiva still in my system

Overall I feel much better even with the headcold.. hopefully that will clear up too.. will continue updates on this thread.. wishing everyone a nice day  :)

Its been most peoples experience that once you make a med change off of Atripla/sustiva the side effects and quality of life improve rapidly . I'm happy to hear you have seen improvement after one night off, it gets better from there . 

Offline Almost2late

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  • Posts: 472
  • "The Nutcracker"
Re: Got a new script
« Reply #8 on: June 30, 2014, 06:44:45 AM »
Thanks Jeff for your encouragement .. Last night was only my second night and again rested much better .. If only these lymph nodes would settle down I'd be so much more at ease, worried so much its something else like lymphoma.. my next id doc appointment isn't till late August.. hopefully by then I'll be ud with cd4's in the 200 range.. is this normal for people with aids to have lymph nodes swell up on them this long? .. dr. just looks at them and says my immune system is trying to repair itself, no test have been done on them.

Well off to work to dodge OI's, wishing everyone a wonderful day  :)
"Every man has his own destiny: the only imperative is to follow it, to accept it, no matter where it leads him." - Henry Miller

http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.” - Nostradamus

Offline Jeff G

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  • How am I doing Beren ?
Re: Got a new script
« Reply #9 on: June 30, 2014, 11:40:42 AM »
Its not uncommon to have swollen lymph nodes but you are doing the correct thing by discussing it with your doctor and following up on it . I hope you are not putting your fingers in your nodes and palpating them . If your lymph nodes were completely normal and not inflamed you can make them so simply but pushing on them .

Offline Almost2late

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  • Posts: 472
  • "The Nutcracker"
Re: Got a new script
« Reply #10 on: July 04, 2014, 11:01:11 AM »
Good morning all and Happy Independence Day!

Well its been close to a week now since I switched from atripla to tivicay/truvada.. I'm just so happy I didn't postpone the switch any longer cause now I see life so much clearer.. Not dissing the atripla cause it literally saved my life and lord knows I'm grateful for that.

Since my switch I've been eating more, starting to weights and been riding my bicycle alot further, (22 miles  :) ) which is my passion.

And yes my lymph nodes are still a little swollen but for some reason I'm not so bothered by it right now.. guess I'm just so high on life right now, not gonna let it get me down.. will bring it to my docs attention next month (thanks Jeff).

I would like to thank the people on these forums for sharing your experiences, it makes the world of difference, Thank you  :)

http://www.youtube.com/watch?v=6NXnxTNIWkc&feature=kp
"Every man has his own destiny: the only imperative is to follow it, to accept it, no matter where it leads him." - Henry Miller

http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.” - Nostradamus

Offline wolfter

  • Member
  • Posts: 4,732
Re: Got a new script
« Reply #11 on: July 04, 2014, 11:08:18 AM »
Many of us noticed immediate improvements upon stopping Sustiva.  Glad you're feeling better with the med change.

greg
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

 


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