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Author Topic: My Stribild Review  (Read 1509 times)

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Offline pr1990

  • Member
  • Posts: 4
My Stribild Review
« on: June 14, 2014, 01:03:12 PM »
Ok, I started Stribild on june 4 2014 with a CD4 at 317, and Viral Load at 1,1 million. I take it everyday at 4:30pm with food.  My next labs to check cd4 and viral load is at july 23.

So far in this 10 days, Stribild has caused me some minor side effects. Most common on me is dizziness (feeling like you're on a boat) some head pressure but not a fully headache, and diarrhea (I have this even before Stribild because HIV was causing me gastrointestinal problems which led doctors to find out that I had HIV, so Im not sure if this diarrhea is because of Stribild itself).  The only time I get nausea was because I swallow the medicine first and then eat... I dont suggest to do that, you will experience nausea, diarrhea (and this one will be because of medicine..) and some fever. So after that lesson, I always swallow the pill after I have eaten all the food, and no nausea comes after.

Will update the post later with my new labs, or if any other side effect presents in the run.

Offline la-hir

  • Member
  • Posts: 26
Re: My Stribild Review
« Reply #1 on: June 14, 2014, 01:18:25 PM »
Hi pr1990, we started exactly same day with same medication...  ::) is good so fare.. I am just trying figure out what food can eliminate bitter- metallic taste in my mouth, because sometimes I have it sometimes not. I take my pill with breakfast always between 8-9. I am not exact at the time sometimes early and sometimes late but always between 8 and 9 AM I have sometimes pressure in my head, but is always go away in few minutes. I realise, that when I drinking lots of water true the day I feel better. I will have my blood done in Monday. Results 24/6 when I see my DR. One thing make me very nervous and that is Stribild interaction :( I need to use now steroid cream for my eczema and is looks like I shouldn't use it at all.... :( L. X

Offline pr1990

  • Member
  • Posts: 4
Re: My Stribild Review
« Reply #2 on: June 14, 2014, 05:41:11 PM »
Well, I have not presented the metallic taste that some people talks about, but I dont think changing foods will help with that, food will just taste bad because of the medicine as side effect, like when someone is sick, the food will not taste good no matter what.  However you should verify that mettalic tasting with your doctor, since I didn't read about it on the possible side effects charts, but I have read a lot of post talking about it too, so its not only you. 
About the time to take it, I decided to take it 4:30pm everyday because I was sure I was going to be awake by that time all days... I like to sleep a lot so if I choose 8am like you, my adherence would be terrible if some days I wake up at 1pm... hehe.  Plus my work lunch break is from 3:45pm to 4:45pm so I got the chance to take it at my lunch break with food when at work.

Offline fgh12

  • Member
  • Posts: 33
Re: My Stribild Review
« Reply #3 on: June 17, 2014, 09:17:08 PM »
Hey guys, congratulations with your brave choice of starting meds.
Like you, I also started Stribild, but about 1 month ago.
It has been a smooth sail till now. I'm getting my viral load and cd4 labs next week.

Pr1990 I think some of your symptoms like are indeed due to your quite high viral load.
However, like most haart meds, diarrhoea could also be due to the Stribild.
If you like on the forum, you will see that most of us that started Stribild had little to no side effects, so I cannot comment on your other side effects.

However, most people adjust to the meds and probably in a few weeks you won't have side effects anymore, I think especially in your case when your viral load starts going down.

Good luck to you both with the treatment!
Diagnosed: September 2013
Sep. 2013: CD4 320
Jan. 2014:  CD4 690
May 2014:  CD4 800
May 2014: Started Stribild
June 2014: Undetectable

Offline pointer165

  • Member
  • Posts: 43
Re: My Stribild Review
« Reply #4 on: June 17, 2014, 09:31:56 PM »
21days on Stribild::
My side effects:: trouble sleeping good even with extra Ativan

I know once I've taken my dose( on a high fat meal.. Make a grilled cheese) the next 6-8 hours I'm running to the bathroom to pee/ no diarrhea / at least 6-10 times per hour , so I've increased water intake a bit

The worse us tightening of the chest/ like a panic attack but it's not.. Can't take a reap breath at times.

The last two lasts the 6-8 hours. Just sent off an email to my md

Thanks
TC
Guamanian

Offline tednlou2

  • Member
  • Posts: 4,906
Re: My Stribild Review
« Reply #5 on: June 18, 2014, 12:44:55 AM »
For those taking Stribild, have you found all the discussions about drug interactions and boosting many meds, not listed to be red flags, to not be an issue?  Or, have usual doses of other meds before now make you feel like you've taken much more?

Offline AusShep

  • Member
  • Posts: 207
Re: My Stribild Review
« Reply #6 on: June 18, 2014, 01:50:04 AM »
For those taking Stribild, have you found all the discussions about drug interactions and boosting many meds, not listed to be red flags, to not be an issue?  Or, have usual doses of other meds before now make you feel like you've taken much more?

Jesus dude, have you started yet?  I've been gone a bit...

I've had listed drug boost interactions due to ritonavir before but never noticed anything or had any changes in my bloodwork.

Online Dan0

  • Member
  • Posts: 422
Re: My Stribild Review
« Reply #7 on: June 18, 2014, 01:02:05 PM »
For those taking Stribild, have you found all the discussions about drug interactions and boosting many meds, not listed to be red flags, to not be an issue?  Or, have usual doses of other meds before now make you feel like you've taken much more?

A complete non-issue.
You can be the ripest, juiciest peach in the world, and there's still going to be somebody who hates peaches.

"Honey, you should never ask advice from a drunk drag queen who has a show to do." - JG

06/2002 DX
10/2006 Atripla UD
10/2013 Stribild Still UD

Offline la-hir

  • Member
  • Posts: 26
Re: My Stribild Review
« Reply #8 on: June 18, 2014, 06:00:30 PM »
Hello,

metallic taste gone...  :P great ... dry mouth is better also ....

but last three days I have very bad headache  :'( I am taking my medicine in the morning and headache is come usually around 4 in afternoon
Don't wanna take any other medication so just suffer ... never have that before... is like pressure on side of my head...
Trying drink lots of water also eat lots of water melon, thats no help.  :'(
Would be helpful take my medicine in night though to sleep it ??? 
Other then that don't feel my Stribild...

BTW did you hear about UK trial for Stribild-LIGHT ??? 

L. lots of love! x

Offline pointer165

  • Member
  • Posts: 43
Re: My Stribild Review
« Reply #9 on: June 18, 2014, 06:18:11 PM »
I had a good day & night yesterday on the Stribild.. It's a strange medication because my side effects do not take over till hours after I take the pill.. I read the package insert of this drug/ specifically says HIGH fat meal.. So I make sure that meal is in my stomach before I take it.. I think this has helped a bit
Thanks
TC
/center]
Guamanian

Online Dan0

  • Member
  • Posts: 422
Re: My Stribild Review
« Reply #10 on: June 18, 2014, 06:53:22 PM »
Hello,

metallic taste gone...  :P great ... dry mouth is better also ....

but last three days I have very bad headache  :'( I am taking my medicine in the morning and headache is come usually around 4 in afternoon
Don't wanna take any other medication so just suffer ... never have that before... is like pressure on side of my head...
Trying drink lots of water also eat lots of water melon, thats no help.  :'(
Would be helpful take my medicine in night though to sleep it ??? 


I don't mean to be insulting - but are you sure that you're not drinking TOO much water? It can cause just as strange of a reaction as too many vitamins and supplements.  It just seems odd that taking the medication in the morning would result in a side effect that much later (8 hours plus?).  If you've changed anything in your routine in preparation for side-effects, well, THAT may be causing the side-effects! Even when I made the stupid mistake of double-dosing (and don't laugh, most of us have been there!), the effects hit me within 30 minutes or so - not hours later.

The metallic taste I have encountered rarely and usually it was when I took the pill absolutely *dry*.  If I popped the pill and then went to eat in a few minutes, that taste would sometimes be present.  If I made sure to down it with some liquid (coffee, soda, water), then it seemed as if there wasn't anything to notice. Not a full-on quart of water, just enough to get it down. I don't think that the few times I experience the metallic taste that it was from the absorbtion of the pill but the remnants of the coating in my throat. 
You can be the ripest, juiciest peach in the world, and there's still going to be somebody who hates peaches.

"Honey, you should never ask advice from a drunk drag queen who has a show to do." - JG

06/2002 DX
10/2006 Atripla UD
10/2013 Stribild Still UD

Offline pointer165

  • Member
  • Posts: 43
Re: My Stribild Review
« Reply #11 on: June 18, 2014, 07:04:06 PM »
Water intake:: I count my 8oz of water / never quarts / sometimes I forget to hydrate and that is why I count . I totally agree with you about too much water .. Former Pharmacist here

Thanks
TC
Guamanian

Offline fgh12

  • Member
  • Posts: 33
Re: My Stribild Review
« Reply #12 on: June 18, 2014, 09:00:28 PM »
Can you give me more info on the Stribild light thing?

I have had a few bad headaches but I don't think it was the stribild.
In fact, I had one yesterday when i woke up on my couch after falling asleep for 6 straight hours and forgetting to take my pill!
Diagnosed: September 2013
Sep. 2013: CD4 320
Jan. 2014:  CD4 690
May 2014:  CD4 800
May 2014: Started Stribild
June 2014: Undetectable

Offline eric48

  • Member
  • Posts: 1,179
  • @HIVPharmaCure & tinyurl.com/HIVPharmaCure
Re: My Stribild Review
« Reply #13 on: June 19, 2014, 05:14:17 PM »
Can you give me more info on the Stribild light

I am curious toknow too.  Mobile.eric
NVP/ABC/3TC/... UD; CD4 > 1000; CD4/CD8 ~ 2.0   safety stock : 2 months

Offline la-hir

  • Member
  • Posts: 26
Re: My Stribild Review
« Reply #14 on: June 19, 2014, 06:30:56 PM »
Hello,
though I figured out what trigger my headache. I am studying or my exam till late night and I think I am just tired... I have had 9 hours sleep last night and - today feel great! :) no headache at all  8)

I need to agree with that Stribild is weird medication... any feeling about tablet in the body is come after hours when you take it. And always least few minutes and after they gone..

I can't wait for my first results next Tuesday.

I have question about Bone density- How long is going to take this will start appear in our bodies?

Stribild light is testing by Liverpool University Hospital. Trial is up to 2016. There is some reduction of Elvitegravir and exchange of Tenofovir with something else.
I found it on Terence Higgins Trust_UK

Thank you guys! Lots of Love! L. x

Offline fgh12

  • Member
  • Posts: 33
Re: My Stribild Review
« Reply #15 on: June 19, 2014, 08:11:13 PM »
Could you please post or pm the link?
 I'm really curious!

Quad was the name of Stribild in the beginning:
Bone health

According to the FDA, “In previous clinical trials, tenofovir has been associated with bone toxicity, including decreases in bone mineral density.” The occurrence of thinner-than-normal bones (osteopenia) and severely thin bones (osteoporosis) was as follows:

Quad – 1.3%
Atripla – 0%
atazanavir-based regimen – 2.2%
Overall, the proportion of participants with broken bones was less than 1% and distributed as follows:

Quad – 0.4%
Atripla – 0.9%
atazanavir-based regimen – 0.9%
Most of the fractures were mild or moderate in severity.

Study technicians also performed low-dose X-ray scans (called DEXA) of bones to assess their density in a subset of participants:

Quad – 54 participants
atazanavir-based regimen – 66 participants
Overall, small decreases in bone density in the spine and hip occurred. This has happened in other clinical trials and appears to be relatively common in the first year or two of ART. After this time, bone density tends to stabilize.


http://www.catie.ca/en/treatmentupdate/treatmentupdate-191/anti-hiv-agents/quad-safety-and-effectiveness-issues-depth
Diagnosed: September 2013
Sep. 2013: CD4 320
Jan. 2014:  CD4 690
May 2014:  CD4 800
May 2014: Started Stribild
June 2014: Undetectable

Offline Waterboy

  • Member
  • Posts: 12
Re: My Stribild Review
« Reply #16 on: June 19, 2014, 10:48:48 PM »
I started Stribild today a little dizzy and my ears are ringing like tinnitus.I have had it before, years ago has anyone had that.

Offline la-hir

  • Member
  • Posts: 26
Re: My Stribild Review
« Reply #17 on: June 20, 2014, 04:04:10 PM »
Waterboy - exactly!!! I have that my first day.
I also have ears problems one year a go and my first day with Stribild... but is gone away quiet quickly.
fgh12:
http://forum.myhiv.org.uk/default.aspx?g=posts&t=4558

Lots of love! L. x

Offline Waterboy

  • Member
  • Posts: 12
Re: My Stribild Review
« Reply #18 on: June 20, 2014, 08:21:19 PM »
Thanks taking my second, I did sleep good last night and almost didn't want to get up but was called in a 5 am

Offline InquisitHIV

  • Member
  • Posts: 28
  • Laughter is the best medicine.
Re: My Stribild Review
« Reply #19 on: July 16, 2014, 05:13:56 AM »
I have also had ear problems,,, way too much wax, having to clean our wet wax regularly with cotton buds,,, never experienced this before!
A man with more than one thing on his mind.

The future belongs to the curious. The ones who are not afraid to try it.
Explore it. Poke at it. Question it. And turn it inside out.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,955
Re: My Stribild Review
« Reply #20 on: July 16, 2014, 05:25:26 AM »
I have been on Stribild for about a year and am not treatment naive and have found it is one of the easiest meds I've ever taken as far as side effects are concerned.  The only one I ever noticed was nausea the morning after taking it; but only around the start of the med, and only lasting a short period.

I've been on many, many different meds since the early 90's, and know all about meds that cause a large amount of side effects, and Stribild is not one of them.  I do not attribute all the physical "things" I have to Stribild.  While it is good to know the "usual" side effects, I do not obsess over every little thing. As I said, I definitely do not believe every little physical issue I have can be attributed to Stribild. 

The only thing that ever caused me concern is the Truvada's tendency to cause kidney issues, but only because I'm diabetic so am more prone to this.  And when I was a case manager, I had a few clients that had to stop Truvada due to kidney problems.  But, my doctor checks my kidneys every time I get labs (every 6 months), so I am not as concerned.  I believe I have a good doctor.

While it is good to research our meds and know the components of each, what they can cause etc., I do not get all worked up about every little ingredient, aspect, etc.  The reason for me not to do this is because I can develop everything I read about.  I realize others may not experience this.  I do believe in having a partnership with my doctor concerning my care.  I do not rely just on my doctor for everything.  I can't, I've been living with this for far too long to put "all" my trust in the medical community, without relying on my own knowledge and experience.

As I said, Stribild has been one of the best tolerable meds I've ever taken.  I take the Stribild at night, don't watch out for certain foods, and I do take something for GERD.  I would have a discussion with my pharmacist, doctor, if I had certain concerns.  I have never heard of any HIV med causing excessive ear wax.  I would probably attribute that to something else. 

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Tsolteg

  • member
  • Posts: 1
Re: My Stribild Review
« Reply #21 on: September 22, 2014, 03:59:29 PM »
one week Stribild: nightmares, lil bit foggy head, lil head ache and neuropathy issues a increased. Gas gas gas. The many sever side effects while on Complera vanished in <48hrs. Eating and sleeping well. Do have nightmares but they are nothing like Sustiva terrors.
Stay tuned. Only a week. Im assuming and hoping body will settle in.

 


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