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Author Topic: Tivicay & Epzicom  (Read 1252 times)

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Offline Rem

  • Member
  • Posts: 22
Tivicay & Epzicom
« on: May 31, 2014, 04:47:36 PM »
My doctor started me on Tivicay and Epzicom on 05/29/14.  I decided to take my meds in the evening at 8:30.  From my knowledge, common side effects are headache and insomnia, which happen in relatively few people. 

I've taken two doses, and definitely noticed a mild headache/head pressure occurring about an hour after taking my dose.  In regards to the insomnia, I've noticed myself waking up more frequently in the night.  I'm a bit nervous about that because I have always been an incredibly sound sleeper.  I also have been constipated the last two days, yet have not changed my diet and am normally very regular (I take Citrucel and acidophilus daily). 

I have a few questions.
  • I've heard that side effects can be mild in the first few weeks, then go away.  Should I expect my side effects to gradually dissipate?  If they don't, should I talk to my doctor about them?  I'm wondering if living with side effects is commonplace. 
  • If I eventually wanted/needed to change the time I take my meds (e.g. from 8:30PM to 6:30AM), how would I go about doing that?  Is it even possible?
Any personal experiences with this medication combination would be appreciated.
 
04/28/14 - Diagnosed
05/08/14 - CD4 268 (19.4%) VL 89,672 - Initial Lab Work
05/29/14 - Started Tivicay & Epzicom
07/28/14 - CD4 329 (25.3%) VL <20

Online zach

  • Member
  • Posts: 1,452
  • not fade away
Re: Tivicay & Epzicom
« Reply #1 on: May 31, 2014, 05:39:23 PM »
tell your doctor about that fiber and probiotic (which is a bacteria). could possibly be a problem if you are on any sort of prophylactic antibiotics, antifungals, or antibacterials. doubt it though

side effects, i try to think most about what is, not what might (not) be. what i've seen, its never as bad as you hear or fear

congrats on taking the plunge!
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: Tivicay & Epzicom
« Reply #2 on: May 31, 2014, 07:11:11 PM »
Hi Rem,..

Just curious, did your doctor do an abacavir allergy test ?  Also, although I am not on Tivicay, I won't be able to respond to that, but having been on Epzicom for over 10 years, I can tell you that I also got a slight headache from it when I first started it. I wrote that in my journal when I started it.  At that time I was on the separate doses of Abacavir and Epivir, before I got it combined in Epzicom.

Also seeing that my original regimen over 10 years ago was Zerit, viramune and Epivir, when the doctor decided to drop the Zerit for abacavir, there was no doubt that this was causing this temp headache as I was already on Epivir.


Still following me ?    ;)

I can tell you that the headache wasn't that bad, ( more of an annoyance) and it didn't last too many days. It also wasn't constant. I've never had any further problems with the Epzicom.


As far as insommnia due to Epzicom, I can say that this has never been a problem for me.  The only other issue I had with Abacavir, was some light sensitivity. This didn;t bother me in the daytime, but was most noticeable, when doing nighttime driving.  This also resolved itself quite quickly.

So, I am going to take a wild guess, and say that you may be getting this slight headache from the Abacavir portion of Epzicom, and it should go away in time. According to my journal, I had a slight headache for about 4 days.

======================
"Some side effects of abacavir may occur that usually do not need medical attention. These side effects may go away during treatment as your body adjusts to the medicine. Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. Check with your health care professional if any of the following side effects continue or are bothersome or if you have any questions about them"

More common

  **  Headache **

Less common

   ** Trouble with sleeping **

=============================

Good luck and keep us updated.  If you notice anything else, you can always contact your doctor.


Take care---Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Rem

  • Member
  • Posts: 22
Re: Tivicay & Epzicom
« Reply #3 on: May 31, 2014, 08:19:01 PM »

congrats on taking the plunge!

Thanks!  Hooray!  I feel much better knowing I'm on meds. 

tell your doctor about that fiber and probiotic (which is a bacteria). could possibly be a problem if you are on any sort of prophylactic antibiotics, antifungals, or antibacterials. doubt it though

I told my doctor everything I take and he didn't mention any issues with any of it.  He seemed a bit nonchalant.  But, thank you for the information.

And Ray, thank you so much for your reply.  I'm more at ease when I hear others' stories, especially the successes.  It's dose #3 for me tonight, so I'm hoping that in a few more days my body will adjust and the mild side effects will subside.
04/28/14 - Diagnosed
05/08/14 - CD4 268 (19.4%) VL 89,672 - Initial Lab Work
05/29/14 - Started Tivicay & Epzicom
07/28/14 - CD4 329 (25.3%) VL <20

Offline Rem

  • Member
  • Posts: 22
Re: Tivicay & Epzicom
« Reply #4 on: May 31, 2014, 08:28:25 PM »
Just curious, did your doctor do an abacavir allergy test ?

Oh, and yes.  ;D
04/28/14 - Diagnosed
05/08/14 - CD4 268 (19.4%) VL 89,672 - Initial Lab Work
05/29/14 - Started Tivicay & Epzicom
07/28/14 - CD4 329 (25.3%) VL <20

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: Tivicay & Epzicom
« Reply #5 on: June 03, 2014, 08:28:38 PM »
Hey REM,..


Hows things going? Have the headaches diminished ? What is this day five or six ?


Hope all is well ---Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Rem

  • Member
  • Posts: 22
Re: Tivicay & Epzicom
« Reply #6 on: June 03, 2014, 09:25:50 PM »
Tonight was day #6 of taking meds!

I still feel a bit of a headache about an hour after taking my dose, but I can tell it's getting milder each day.  The insomnia, though not bad, is still evident.  I wake up quite often each night.  With that said, I've noticed a positive side effect of having much more energy throughout the day.  I'm not yawning all day and pining for a nap at 1:00 each afternoon like I was before. 

04/28/14 - Diagnosed
05/08/14 - CD4 268 (19.4%) VL 89,672 - Initial Lab Work
05/29/14 - Started Tivicay & Epzicom
07/28/14 - CD4 329 (25.3%) VL <20

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: Tivicay & Epzicom
« Reply #7 on: June 05, 2014, 05:27:25 PM »
Tonight was day #6 of taking meds!

  With that said, I've noticed a positive side effect of having much more energy throughout the day.  I'm not yawning all day and pining for a nap at 1:00 each afternoon like I was before.


 Yes !!  :)      I noticed the increase in energy levels almost immediately after starting on meds.  Also, I was sleeping much less. Prior to meds I was sleeping almost 10 hours a day if not more, and it still wasn't enough at times.

Now, I find 8 to 9 hours of sleep is more than enough.  I have also realized, that since I have retired, that I don't need those afternoon naps anymore.

I see that Tivicay can be taken with or without food ( Same as Epzicom) I have found that taking food with my meds makes it a lot easier.

Everything's looking good for you REM,  just take it one day at a time !!


Ray  8)



Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Shayne504

  • Member
  • Posts: 27
Re: Tivicay & Epzicom
« Reply #8 on: June 05, 2014, 06:12:25 PM »
I too had insomnia, but doc suggested switching to to before bed and Poof problem gone!

Offline Rem

  • Member
  • Posts: 22
Re: Tivicay & Epzicom
« Reply #9 on: June 05, 2014, 06:42:32 PM »
I had the same issue with sleep beforehand, Ray.  I could easily sleep 10 hours and it still did not feel like enough.  Now it's like I have magic energy flowing through my body.  Although, I did have a rough day today, but that's just because I'm overworked and stressed.  ;)

I too had insomnia, but doc suggested switching to to before bed and Poof problem gone!

I do take my meds before bed.  Well, 8:30PM and then I'm asleep by 9:30.  I initially had some problems falling asleep, but now it's fine.  I just wake up in the middle of the night, and that has never been a problem.  I'm the best sleeper I know.   

I also have never been a big dreamer.  However, the other night I found myself sleep/dream walking.  I "woke up" and peered into my full-length mirror (like it was a doorway to somewhere) and then opened and closed my closet door a few times.  I distinctly remember that I thought I had to check on someone to make sure they were ok.  When I really woke up in the morning, the scenario felt like a dream, but I know I was sleepwalking.  It's scary to think about sleepwalking, especially because I live alone. 

That's only happened once, but hopefully it doesn't continue. 
04/28/14 - Diagnosed
05/08/14 - CD4 268 (19.4%) VL 89,672 - Initial Lab Work
05/29/14 - Started Tivicay & Epzicom
07/28/14 - CD4 329 (25.3%) VL <20

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: Tivicay & Epzicom
« Reply #10 on: June 05, 2014, 07:00:41 PM »

  I distinctly remember that I thought I had to check on someone to make sure they were ok.  When I really woke up in the morning, the scenario felt like a dream, but I know I was sleepwalking.  It's scary to think about sleepwalking, especially because I live alone. 

That's only happened once, but hopefully it doesn't continue.


Rem,  Make sure to log these events down, and report them to your doctor the next time you see him, especially if they continue. But yes, hopefully it won't continue.!




Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Rem

  • Member
  • Posts: 22
Re: Tivicay & Epzicom
« Reply #11 on: August 04, 2014, 07:18:16 PM »
Just wanted to update this.

I have adjusted extremely well to the medications.  Aside from becoming a lighter sleeper, no major lingering side effects.  I am still taking my medication in the evening at 8:30, so I'm sure if I switched my dosage to the AM it would be better in terms of sleeping. 

But, I just received my first labs...  Two months after beginning treatment I am undetectable!  ;D

04/28/14 - Diagnosed
05/08/14 - CD4 268 (19.4%) VL 89,672 - Initial Lab Work
05/29/14 - Started Tivicay & Epzicom
07/28/14 - CD4 329 (25.3%) VL <20

Hurray!  It's a great feeling to know my numbers are all moving in the right direction so quickly.  I go back for my next appointment on 10/29/14 and I'm looking forward to even better results!
04/28/14 - Diagnosed
05/08/14 - CD4 268 (19.4%) VL 89,672 - Initial Lab Work
05/29/14 - Started Tivicay & Epzicom
07/28/14 - CD4 329 (25.3%) VL <20

Offline Matts

  • Member
  • Posts: 216
Re: Tivicay & Epzicom
« Reply #12 on: August 05, 2014, 04:33:50 PM »
It is impressive again how quickly Tivicay makes one UD.

I think at Your next appointment in Octobver You will get All-in-one Triumeq.
Finally a fixed dose combo without a Booster or food restrictions.
tivicay/kivexa

 


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