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Author Topic: First anniversary off treatment - here's the results  (Read 2256 times)

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Offline gemini20

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First anniversary off treatment - here's the results
« on: November 20, 2006, 12:34:46 PM »
As is customary I thought I'd share my latest blood results that I received this morning as they seem to indicate that I'm doing something right despite stopping all my treatment just over a year ago.

Just to put everything in context for those who don't know me or don't want to go looking for old posts that fill you in on the details -I've been positive for 15 years, had two spells on treatment - the first in 1999/2000 for four months only; then again from April 2004 to October 2005. I stopped all medication then as I struggled with compliance, when I stopped t-cells were at 474 (33%) and viral load <50.

In the last 13 months off treatment I've not had any illness at all and these have been my results:

December 2005  t-cells 315 (13%) viral load 26,000
January 2006               298 (17%)             21,000
March 2006                 252 (14%)             17,000
June  2006                  222 (15%)             35,400
August 2006               222 (16%)             66,000
November 2006          245 (15%)             13,600

Although it is not statistically significant changes in the last three months, it is encouraging for me (and perhaps others) to know that viral load can go down and t-cells go up without any medication whatsoever.

The only thing that I've added into the equation since August is a teaspoon of manuka honey each night, probably has no bearing whatsoever on my immune system but it doesn't seem to be doing me any harm so I'll keep taking it.

My doctor and I agree that I can stay off treatment for the forseeable future, doesn't want to see me for another 3 months - that suits me just fine!

Best wishes from a very happy Emma

Diagnosed 11th September 1991
Current CD4 count 484 (26%); viral load undetectable (December 2011).
Restarting boosted Prezista 08/04/11

Offline allopathicholistic

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Re: First anniversary off treatment - here's the results
« Reply #1 on: November 20, 2006, 02:21:03 PM »
Interesting! Thank you for sharing with us.  8)

Offline penguin

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Re: First anniversary off treatment - here's the results
« Reply #2 on: November 20, 2006, 02:52:52 PM »
magic - hope you can do something nice to celebrate  :)

manuka honey, good stuff - order mine online, to get the higher UMF strength.


Offline Blixer

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Re: First anniversary off treatment - here's the results
« Reply #3 on: November 20, 2006, 07:08:54 PM »
Thanks for sharing Emma!  Your results over the past year are very encouraging.
Diagnosed 1/9/06
8/27/2007 CD4 598, 29%, VL 58 (72 wks)
11/19/2007 CD4 609, 30%, VL < 50 (84 wks)
2/11/2008 CD4 439, 27%, VL <50 (96 wks)
5/5/2008 CD4 535, 28%, VL <50 (108 wks)
10/20/2008 CD4 680, 28%, VL <50 (132 wks)
Changed to Atripla in 2012
1/14/2013 CD4 855, 35%, VL <40

Offline Eldon

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Re: First anniversary off treatment - here's the results
« Reply #4 on: November 20, 2006, 08:57:10 PM »
Hello Emma,

Thank you for sharing. Take care of You!

Make the BEST of each Day!

Offline Life

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  • Member 2005
Re: First anniversary off treatment - here's the results
« Reply #5 on: November 20, 2006, 09:05:36 PM »
Emma...  I am so proud of you and the courage you have to look this situation straight in the eye and maintain your health & love for others..  May the powers that be keep you safe and healthy for a long time to come...


Offline Jeffreyj

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Re: First anniversary off treatment - here's the results
« Reply #6 on: November 20, 2006, 09:37:32 PM »
You are one brave woman! Great results, Congratulations! I am very happy for you.
Positive since 1985

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: First anniversary off treatment - here's the results
« Reply #7 on: November 21, 2006, 12:46:54 PM »
That's great Emma!  I'm glad you are doing so well without meds.



"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline newt

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  • the one and original newt
Re: First anniversary off treatment - here's the results
« Reply #8 on: November 21, 2006, 04:36:54 PM »
Thanks Emma, kinda impressive too - matt

Now playing: Damien Rice, Accidental Babies (good but bitter song . . . pass the razor blades)
"The object is to be a well patient, not a good patient"


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